ILBDC 2022 - The lived experience of Lewy body dementia - sleep

A session from the International Lewy Body Dementia Conference 2022, held in Newcastle UK.
Kevin Quaid was diagnosed with Lewy Body Dementia in 2017 aged 53, after being diagnosed first with Parkinson's disease. He is a member of the Irish Dementia Working Group as well as Vice-chairperson of the European Working Group of People with Dementia (EWGPWD)and co-founder of Lewy body Ireland.
His new book "I am KEVIN! not Lewy" can be purchased online, for example via Amazon.
Helen Bundy Medsger is a LBD Peer Mentor, Support Group Facilitator and Support Services Volunteer for the Lewy Body Dementia Association

[@malcolmdouglas5476]

Thank you Kevin.

[@pamlacooper3288]

I commend you sir. You are my hero today.

[@izitmoi3036]

Thank you for this video 🌻

[@jordanbethanne]

Everyone says how hard it is to be diagnosed with Lewy Body and I agree. But the problem is that no one wants to be responsible for that type of diagnosis and the weight of it. It seems to happen over lots of progressive illnesses. But that's years of not getting treatment for the issues.

[@sawsanalhassani9278]

I’m a caregiver for my mom. At night she cries and want me to stay with her in her room. I’m exhausted and refuse to sleep in her room. Am I doing the wrong thing?