I am usually just a silent viewer, but I just wanted to say that only Jason's and your opinions and decisions are important. Watching someone you love go through a devastating disease or cognitive disorder is horrible. Please don't worry about any of the comments. Your videos are great. They helped me get through some horrendous times and I appreciate you and Jason. I am a 70 year old grandma of three, so hopefully I have gained a bit of life wisdom over time. God bless you both.
I have learned so much from your videos. Thanks so much sharing your story. my only question... what test, or what doctor would be best to diagnose this condition? what
I see and understand that Jason was an exceptional husband and father but now I see that Leslie is an exceptional caregiver. It’s a lot of work and I hope everyone knows that 😀
Jason must be of superior intelligence that he is able to articulate and conceptualize through his illness and its stages. The two of you are quite a team. 🙏🏻
I just wanted to share with u that my Husband had LBD for 10 years. A positive note was that my Husband knew me every single day until the last six days of his life. I was so worried that one day he might not know who I was but every day he lit up when he saw me. He remembered my name and always wanted his kiss. You are both doing such a good job. Love is the key & respect for each other. My Husband & I were together 43 years. I will love him until the day I die.
It has got to be hard losing your husband a little everyday. Watching the decline must be very difficult. May God wrap his arms around your family and give you strength and peace Leslie.
Everyone with dementia is in a different place, depending on the day, the place & the time. And unlike Jason, many ppl with dementia (even in the early stages) aren’t able to admit they have anything wrong! God bless you for the work & awareness you are doing. 💜✝️🙏🏻
I hope Jason never loses his sense of humor. He makes me smile - sometimes with tears in my eyes. Leslie - he couldn't ask for a better caretaker. My life partner just went into a nursing home this year with dementia - he's 75 yrs old. I only wish I had the strength to take care of him at home. Much love to both of you and your family.
I was recently diagnosed with early onset Lewy Body dementia, I'm 54. I am so thankful to you two for making me feel OK with my situation. I have tried to find others with the disease who I could use as a support system. You both explain so many things I go through daily in a way that others can understand. Thank you! Sending lots of love and positive energy!!! ❤️
Hi, My mom had Lewis Body dementia. My grandmother had Parkinson’s disease. I am now 54 and wonder sometimes if it starting to happen to me. In the beginning my mom was aware something wasn’t right but she didn’t know what. She would forget how to tie her shoe but then suddenly remember. She had trouble finding words, and her thought process started to slow. May I ask what were your beginning symptoms and how that led to diagnosis? I am experiencing major fatigue and sleepiness and also some word finding issues.
AnneMarie, so sorry for your diagnosis. Check back on their previous videos, they're so informative and enlightening. Also check out people's comments. There is a lot of useful here from both perspectives. I hope you have help around you. My thoughts are with you.
@@andreaherrin8807 I told my doctor a few years ago I felt I may have early dementia starting the doctor said it was depression... I am experiencing same as you mention here and wonder if it would be worse now / have progressed more. The depression diagnosis (/guess?) Doesnt ring true for me. 🤷♂️ 55 now
@@andreaherrin8807 those are early symptoms I experienced with my neurodegenerative disease. I would also forget how to do things I’ve done for years. Walking into things was another big one, and a tremor.
People often tell me my husband with Alzheimer’s looks fine. They don’t know what goes on to help him stay on track with what was typical life. It hurts and makes me feel more isolated. Thank you for sharing and may the peace of Jesus always comfort you.🙏🏻💕
Hi, I took care of my mom after her Lewy body diagnoses and when she needed constant help. This was quite a few years ago and the internet was really small. I stumbled across an online diary by a sister and brother that had taken care of their mom. While it was difficult to read, I read it over and over. It was so helpful to me and my mom. Please know that you’re helping someone like me. Your personal experiences are priceless, believe me, I know. I wish you all the strength and many prayers.
I absolutely love you two. What a heart of gold you have Lesley. One of my dear friends was diagnosed with dementia about 8 years ago. I’m so sorry, such a cruel disease.
I personally love how y’all have been able to show the progression while still being respectful of Jason’s privacy. I completely understand the fine line between showing things in an honest perspective and also protecting Jason. We as viewers would never want him to feel embarrassed or uncomfortable in any way. We really appreciate and love you guys. Y’all are always in my prayers. ❤
It was really interesting how introspective Jason was able to be in the beginning speaking about how differently this affects each person. You can really tell what an intelligent man he is.
Leslie I am right there with you. No one sees the progression if they don’t live with the person. I have said before, my husband has Alzheimer’s and it is a different day every day. I pray for you and Jason. We have a long road ahead of us. God bless.
Leslie: I so wish you could filter the negative ,mean, & non common sensical comments. You are so true & are doing a beautiful job caring for Jason. love always from Colo
Jason is so articulate and tells the best stories. Love his humor. I know there must be many struggles and you both are very generous to share. You both are amazing! God Bless you both.
Please continue with exactly what you are doing. I worked in a memory care and loved every resident, maybe not every minute but almost every minute, and respected them greatly! It was an honor to work there. All the information you share is important, seriously helpful, hopeful, honest and loving. There is no way this is easy or you are not exhausted or frustrated etc. but you are showing us some of the gifts a day can bring. Let’s face it, Jason is also a born entertainer, likely will always be a part of every day! I never miss your posts! You are an amazing caregiver Leslie! Amazing! Xoxoxo
Those last 3 seconds are literally spot on with dementia almost makes me think that’s scripted it’s so perfect 🤣🤣🤣 you guys are so brave and thank you for raising awareness from both sides 🙌
Home Interior purchaser here (long time ago). I always enjoy your videos. I appreciate you explaining the heavy editing you do. I thought with you being a nurse that you have taken extra great care making Jason manage so well. I love love love Jason’s intelligence and awesome humor. Leslie, I love your graciousness and always being candid and real. Love you guys 💜💙
You two are a breath of fresh air. So open, honest, positive attitude so loving towards each other. You both are a wealth of info for others going through the same disease. I can see God's grace within you both. Thank you for your precious videos.
You two are wonderful. His sense of humor & acceptance of the inevitable make him an exceptional person and patient. Your dedication & seemingly boundless energy make you an exceptional person & caregiver. The love & respect the two of you have for each other is rare & beautiful. Thank you for sharing with us.
Awww sweetie don’t you worry what others say or may say..I personally love watching you guys..you guys are just the sweetest 💜💜💜💜continue sharing your journey 💜💜💜
Thank you for this BLESSING. My husband and I were thrown into this same fight one year ago. Sadly, it coincided with my husband’s retirement. I feel like I’m watching me and my husband when I watch your videos…makes me feel like we are not alone 💜
I did in home care for people with varying types of dementia The hardest part was watching their families deal with the long goodbye You are doing a fantastic job Lesley Take care of yourself
Yes, Leslie, take care of you. Reward yourself, once in a while with something fun...something you used to enjoy...or take a painting class... That is just an example.
I can’t tell you how helpful this was! My husband is the same age as Jason (but a bit farther along) and we’re both like you guys… great marriage, very close, very communicative, very talkative sharing our lives together and one of the hardest things for me was when he started shutting down and literally could not handle having conversations. It was so isolating to me because we’ve both always been big talkers with each other and when you don’t really understand how they’re feeling, it can easily be taken as rejection. He’s also now going through that lethargic, wants to do things but just can’t get himself to do it, stage. Like Jason, he’s a Mr. fix-it guy… always been in the building trades, can build you a shopping mall with a Q-tip and an eggplant… that kind of guy. It’s so sad to watch him lose all of his abilities. Thank you for doing these updates because it is so vital for my mental well-being to know I’m not the only one who’s going through this, nor is he. God bless you both. Been watching you forever. Also, on a quick note, I’ve created a private “Lewy Body Dementia Christian Caregivers Support” group on Facebook if you or anyone else is interested. ❤🙏 Love you sweet girl!!
My sisters husband (age 82) has just been moved to assisted living due to his Lewy body advanced stage. However, he has slightly improved since the move. We are attributing this improvement to the structured routine. She is feeling somewhat guilty because he seems so much better. But I remind her of the sleepless nights when she was up helping him. Every case is different.
I was a caretaker for my husband with Lewy Body Dementia and Parkinson’s for 11 years and everything you talked about and explained to people was right on point. I wish I had you to watch when I was going through our journey. My husband passed last year. The years go by fast and your videos with Jason will be priceless. 🍁🍂💕
Leslie and Jason, just let me start with saying how much I love you two. No one that hasn't been through what you are going through right now can know how hard it is. The fact that you both KNOW and FOLLOW the Lord is really all you need. It gives peace that surpasses anything. Leslie, I see your incredible selfless love for Jason and Jason you have maintained your wonderful sense of humor through it all and you always say you are not worried and I know that comes from faith in God!
He hasn't lost his sense of humor. I'm glad you talked about what you did today. It helps us understand better. I love seeing you two talking together.
A thumbs up doesn't seem appropriate and I want you to know how much I appreciate your channel and the openness you use to approach this illness. Jason thank you for being so honest with us. My mother had parkinson's and it wouldn't have dawned on me to use it as an opportunity for education. Thank you!
I was a caregiver for my mom who had Alzheimers. Actually, her last neurologist diagnosed her with Lewey Body due to some of the characteristics she was displaying. She passed away in 2017 and I still grieve over what her and I went through. My heart goes out to both of you as it is a very hard road to travel. It is a devastating, heartbreaking disease and I am sending many prayers your way.❤❤
Yes, we did Home Interiors, too. My mom had Lewy Body Dementia. When she was diagnosed, we searched for resources. Very little was to be found. Documenting your journey will be a true blessing for families going through similar situations. My prayers are for you and your family. Thank you for what you are doing and I very much enjoy your Channel.
May God be with you, Jason and your family as well as you continue on this journey. You are right, we do NOT know all that you go through to produce a video. And what a kind and compassionate human being you are to help Jason shine and appear his best. You two are adorable together.
You are such a great couple and are handling Jason’s dementia with such care and grace. Thank you for sharing your life with all of us and bless you and Jason.
Thank you! I took care of my mom for 4 years. They didn't diagnose the lewy body dementia until 1 year before she died. I'm glad you know and understand this disease now so that you can enjoy your time together ❤️
Please know I just enjoy these videos so much. My fathered had alzheimers, it was so heart breaking to go through with him. It's so wonderful to listen to Jason explain how he feels and what this brain is able to handle.... kind of gives me a inside look at how my dad must have been feeling. And Leslie you are my hero, I can only hope to be such a wonderful caregiver.
Everyone's walk thru this is unique and shame on anyone that would express a single doubt as to the sincerity of the helpful content you are putting out. No o e knows the silent tears that flow from a caregiver and a loved one. Prayers for you all.
I am a silent viewer as well. I need to let you know that I am so grateful for your ability to share such a personal journey. Thank you for being so raw and honest with your struggles and your successes. Your willingness to educate is surely appreciated.
You both are wonderful people. I thought it was so sweet when Jason mentioned one of his 'greatest buddies' was a 90 year old man, it warmend my heart! If doing these videos is difficult for Jason, maybe fatiguing, you can tell that he does them to help others. Your hearts are ALWAYS in the right place. ❣️❣️❣️
Fellow RN here Leslie, I love how you want others to understand Jason's journey but I'm so glad that you shared this video. I'm thinking maybe people are comparing their journey and thinking their's is not normal. Now that they see that you are prompting him and editing the videos, they will have a clearer picture of his actual status? When viewers don't see much of a difference, it may be because of that? As a 24/7 live-in caregiver to my 88 year old Mom, I thank you for contuing to educate others and be his advocate!
Dignity and Grace is how I describe each one of these videos. They are real without being unnecessarily harsh. You are both doing so much good and are providing such insight into this condition. Yes, I have seen that Jason is regressing as he naturally would. Keep going with these beautiful videos.
It is so heartwarming to have Jason participate in these videos as much as he is able. You both keep it so real. The relationship you have, complete with the joking around, is wonderful even though we get a glimpse into the tough times of your journey. I’m so thankful you draw strength from the Heavenly Father and am confident that He will help you navigate every step of the way. Blessings ❤
When my son was little he called his Dad honey because he heard me .Brought back sweet memories. Praying for you both . Went through Alzheimer with my mother. A lot of trying times. ❤️🙏🏻🙏🏻🙏🏻
Thank you for sharing your life with everyone. It has to be hard knowing the out come, but you still want to share the progression of this rotten disease. You have so much love still there. You’re a blessing for others going through this along with you. Bless you both, prayers for you also.
My mother is 83 with Alzheimers dementia and I can relate to the repetitive conversations and reminding mum to eat and drink, have showers, change her clothes etc. We are also at the stage of arranging respite care because she can’t take care of herself.
My grandma dealt with this also. It was so hard on her especially when she started to forget everyone's names. She went through so much. She held on for so long but went through it. I miss her all the time. My heart goes out to you both. This journey never gets easier. Prayers for God to hold you both through this.
Leslie, this is heartbreaking. I lift you both up in my prayers. Your resilience and dignity - both of you - is inspiring. I'm also the wife of a veteran (Australian Army) who is declining mentally but in a different way. I hear you. ❤
I have been watching you for about two years I really don’t comment because I watch on my tv and I like to relax and enjoy my videos. I love watching you and your lovely husband. You are doing a wonderful job. Your holiday decorating is the best.
My experience dealing with Alzheimer's in my dad was that I had to keep things simple. If he was having a better moment we could get a little less simple, but in general our talks had to be one point at a time and maybe only two or three points in the discussion. Anything more than that was so frustrating for him. You have many prayers for you and your family as you travel this journey.
My husband has dementia most likely caused by stage 4 cancer and the toxicity of all the chemo. It has forced me to retire and become a caregiver (again). Unless someone walks this path and has constructive advice they should keep quiet. We love our good days. We love being a team. And our number one goal is to make memories that our kids and grandkids will remember. Blessings to the both of you.
Jason , I so appreciate you pushing yourself through this video. You did an amazing job. You are a smart guy it is evident in how you present yourself. I'm really appreciate your challenges day to day and how you share this with us. In hopes of being helpful to others. What a kind thing to do. Thanks guys. Much love ❤️
Thank you for sharing this journey with us. You’re both doing the best you can with what you have. I’m glad you’re seeking help and support. I’m going through this with my brother.
I have been watching your channel with my husband, who is struggling with Dementia with Lewy Bodies as well, and it has helped to start many hard conversations. Mark started having symptoms, REM Sleep Disorder, loss of smell many years ago, and then came the sleep testing, the Mayo clinic, the brain scans..all roads lead to DLB. This year it became too challenging for him to continue to work. The memory issues were too great and the note-taking, post-it notes everywhere, had become too much. It is still hard for others to grasp. They want to question because they don't understand how someone his age, and with his drive and intelligence can be dealing with a geriatric disease. He is now 61, I am 56 and we have been married 31 years. As Jason, he is normally good in the mornings after being rested but tires easily, sleeping and resting throughout the day. It is a marvelous thing the two of you are doing, and I know that it is not easy. You do not need to justify to others as to why you and Jason are living your best life. The fact that Jason was attempting the bake-off challenge, in itself, was amazing. I love that you enjoy the things that are important, being with your family, experiencing travel (when not sleeping), laughing together. Thank you again for sharing and helping to open the lines of communication for those suffering, as well as family and friends.
I, too, am losing a bit if my husband (age 63) each day to dementia. It’s the most heartbreaking thing to experience! We have also have been together since I was 18 and fell in love my sailor! Been married almost 40 years. I am also an RN. So thankful for the Lord’s provision and strength!
Just know that those of us who have experienced care giving for our beloved dementia spouses/parents … know what’s happening behind the scenes. As always…your transparency is to be commended. U r literally teaching others. May God bless and keep u … 🇨🇦
My husband Leslie passed away from Lewey Body Dementia in March and it is a wicked disease. I can relate to all you share. Those of us who deal with this totally understand.
Hi Leslie and Jason. You both are such a blessing, and your willingness to be so open and share with us all what I know is a very difficult and challenging time in your lives is a testimony to what great folks you are. Sending you prayers and wishes for more good times together.
Hi, my husband has Parkinson’s dementia. I look for you and Jason because I feel so much comfort to hear your honesty. I too am constantly hurt by “friends” and “family” saying “he looks fine.” “He was talking fine.” I try to brush it off, but it is not helpful, and when you live with this daily, it’s hurtful to say the least. Thank you both for your honesty! Sending love and light to you both and your beautiful daughters!
Thank you for this. My daughter has very similar struggles with memory, confusion, exhaustion, as well as balance and hearing as a result of brain cancer treatment. It’s hard and I’m struggling; she is only 25 and recently retired from the Navy. We struggle with the VA and having them take her seriously. Her neurologist and med team outside the VA have been great but they also get frustrated dealing with the VA and the ever changing staff there. I need to work harder on our daily routines and keeping her active. Some days are great and others are just a a mess. I can’t thank you and Jason enough for helping me better understand but also not feel alone.
Thank you all so much for sharing your journey. It's very important. You both are a joy to watch! My dad lived with me for three years with Alzheimer's before he passed. So I don't have the same experience you have with a spouse, but I understand.
You guys are so amazing and you are providing such a valuable service to people dealing with dementia. Your courage, compassion and humor is so inspiring and provides a bright light to all of us who follow your story. ❤
Jason is a amazing guy. He shows a lot more than needed. I give you credit for even trying to do videos. I took care of my mom who had the same thing. God bless you both🙏🏻💖
Thank you so much for your openness to the real daily challenges! I'm so sorry you are going through this. I wish it weren't happening. I do find hearing your story very interesting and inspirational as well.
Lesley and Jason ,I think the two of you are great people! It's obvious how much you love each other and how strong you guys are.It's wonderful that you are being honest with people about your journey .You both seem so sweet !! God bless you both 😁🌻🦉🍁🦋🌽🍊🥧🎃💛🎃🧡🎃
This video is powerful. Especially showing us how he was trying to braid, but couldn’t remember. That was very good for all to see to really understand the struggles. I believe that Jason looks like he’s doing well is because you two are so close to one another and are truly working as a team. Just like your editing, your prompting him (that we may not see), your darling giggle/laugh, his humor and good attitude. You both truly exude a good attitude, love and support. I know it’s so much harder than it appears to many. I’m starting to struggle with dementia and it’s horrible! My mom is 30 years older than me and I see myself in her now with her memory, forgetfulness, repeating questions, walking in another room and forgetting what I’m doing, needing my kids to tell me how to do something, remind me how to do it, etc. Things that used to be simple. I’m constantly setting alarms to remind me of everything from close the curtains, feed my birds, feed my dog, put out the dumpsters, etc. I also have Covid Long-Haul which affects the memory and severe exhaustion for me. I can relate when Jason WANTS to do more and spend time with his grandkids, etc. but just doesn’t have it in him and wants to sleep. I can take a shower and get ready and I’m work out. Or walk across the street to get my mail and I’m done in. I have all the best intentions, but so much doesn’t happen. It’s VERY discouraging. I also live alone and can’t keep up on my normal daily living from dishes, laundry, cleaning, etc. It may take me a week before I can get myself to the pharmacy to pick up my meds, etc. I think every day that I’ll do it and many other things, but I don’t have it in me. I wish you two the very best. I am grateful that you share these videos. They ARE doing so much good for so many. May God continue to bless you both on this unique and challenging journey. Sending much love.💕🌟
Hi thank you for sharing.My husband is in stage 6..It is so hard he is now in a wheelchair..I'm glad you try to enjoy every second...we do too.God Bless
Jason and Leslie thank you for your story. Do not allow silly peoples comments bring you down. You have opened up your home and life to help others. What a blessing you are to so many.My husband has dementia ( undiagnosed ) but he can no longer use his phone or computer.Like Jason he does best in his home with familiar. Many people don’t understand the disease.Thank you for making people aware. You are a blessing. I love seeing both of you.
This is very educational, my husband at 64 start to forget things, this man is good with numbers and has had a very difficult job with federal Government in Canada and he has just signed his retirement paperwork. He is starting to forget stuff for work. Thank you for everything.
We have personally experienced LBD. My husband's mother had vivid recollections of past memories, but day to day would forget time and even tried to open her microwave with a butter knife. We found a burnt bottom mark on her coffee mug and she ate so much less. Six months that I wish that we could've done more. You and Jason have a loving, sweet marriage. May grace and love surround you.
Yes....This is us. My husband was diagnosed with EOAD just over two years ago. The day to day reality is so hard to explain (you both did a great job) that sometimes I go back and watch your videos just to feel there is someone else that totally gets it. Thank you so much for sharing your journey.
Robin Williams did Happy Feet with early DLB (Dem Lewy Body) and Nights at the Museum with it. These videos are so helpful for those of us questioning our own sanity as Family/Freinds & Caregivers. DBL is a silent killer for those around the patient, Not ness. the patient. Its very frustrating/dangerous for all people around when a patient Wont go in for a diagnosis and is in denial . When in fact a diagnosis Helps everyone around the patient so as to help them!!
I had a friend that sold Home Interior. Bought some for my parents, they loved it. I understand where you are coming from, because my Mom had Alzheimers, and went through every stage for a long time. Love you both!! 🙏🏼❤️
Hi Lesley! Home Interiors was the bomb!! My first experience with trying to decorate a home. I, too, married at 18. 😊 I lost my mom 2 years ago to Parkinson’s/Lewy body dementia. My husband and I moved in with my parents so that I could be her caregiver. You are doing such a fantastic job. And I believe it is truly the hardest job in the world. I’m so happy for you that you are going to have some of the resources that are so badly needed. God bless you every day in this journey. ❤
I love y’all! Yes every patient has a different journey even with the same disease!! Just like all our personalities are so different:) love all the videos ❤️
I love you guys! LBD is a awful diagnosis and changes all the time in personalities. A friend of mine has her husband on nicotine pouches and that seems to help with his memory (for now). There is also Lion’s mane capsules that help memory also. I hope that we get some real solutions for LBD and all dementia in the future. Love to you Leslie and Jason.
Jason I have to say I don’t have dementia but I can totally relate to “that’s enough discussion - I can’t take anymore - I need to be alone!” It seems that people in todays world just talk and talk and talk and never pause or allow anyone else to talk. It’s maddening! I appreciate your commentary on that. Love your videos!!
Lol I sold Christmas around the world and for a short time Home interiors. My daddy's doctor said there was a need to diagnose. He died at 92. I was his caregiver for 3 yrs. He was legally blind and deaf with dementia. Everyone is different. I watch to support your journey. My mama is 97 and is deaf but still handling her needs. I am still with her.
I am usually just a silent viewer, but I just wanted to say that only Jason's and your opinions and decisions are important. Watching someone you love go through a devastating disease or cognitive disorder is horrible. Please don't worry about any of the comments. Your videos are great. They helped me get through some horrendous times and I appreciate you and Jason. I am a 70 year old grandma of three, so hopefully I have gained a bit of life wisdom over time. God bless you both.
❤
I agree!
❤❤❤
I have learned so much from your videos. Thanks so much sharing your story. my only question... what test, or what doctor would be best to diagnose this condition?
what
♥️well said. I agree!
I see and understand that Jason was an exceptional husband and father but now I see that Leslie is an exceptional caregiver. It’s a lot of work and I hope everyone knows that 😀
Jason must be of superior intelligence that he is able to articulate and conceptualize through his illness and its stages. The two of you are quite a team. 🙏🏻
I just wanted to share with u that my Husband had LBD for 10 years. A positive note was that my Husband knew me every single day until the last six days of his life. I was so worried that one day he might not know who I was but every day he lit up when he saw me. He remembered my name and always wanted his kiss. You are both doing such a good job. Love is the key & respect for each other. My Husband & I were together 43 years. I will love him until the day I die.
🙏🙏🙏
It has got to be hard losing your husband a little everyday. Watching the decline must be very difficult. May God wrap his arms around your family and give you strength and peace Leslie.
Everyone with dementia is in a different place, depending on the day, the place & the time. And unlike Jason, many ppl with dementia (even in the early stages) aren’t able to admit they have anything wrong! God bless you for the work & awareness you are doing. 💜✝️🙏🏻
I agree totally.
I hope Jason never loses his sense of humor. He makes me smile - sometimes with tears in my eyes. Leslie - he couldn't ask for a better caretaker. My life partner just went into a nursing home this year with dementia - he's 75 yrs old. I only wish I had the strength to take care of him at home. Much love to both of you and your family.
I was recently diagnosed with early onset Lewy Body dementia, I'm 54. I am so thankful to you two for making me feel OK with my situation. I have tried to find others with the disease who I could use as a support system. You both explain so many things I go through daily in a way that others can understand. Thank you! Sending lots of love and positive energy!!! ❤️
Hi, My mom had Lewis Body dementia. My grandmother had Parkinson’s disease. I am now 54 and wonder sometimes if it starting to happen to me. In the beginning my mom was aware something wasn’t right but she didn’t know what. She would forget how to tie her shoe but then suddenly remember. She had trouble finding words, and her thought process started to slow. May I ask what were your beginning symptoms and how that led to diagnosis? I am experiencing major fatigue and sleepiness and also some word finding issues.
AnneMarie, so sorry for your diagnosis. Check back on their previous videos, they're so informative and enlightening. Also check out people's comments. There is a lot of useful here from both perspectives. I hope you have help around you. My thoughts are with you.
@@andreaherrin8807 I told my doctor a few years ago I felt I may have early dementia starting the doctor said it was depression... I am experiencing same as you mention here and wonder if it would be worse now / have progressed more. The depression diagnosis (/guess?) Doesnt ring true for me. 🤷♂️ 55 now
I don’t have Lewy Body, but I do have a neurodegenerative disease. I’m here to help and offer any kind of support 💜
@@andreaherrin8807 those are early symptoms I experienced with my neurodegenerative disease. I would also forget how to do things I’ve done for years. Walking into things was another big one, and a tremor.
And also you are so honoring of Jason. Such a good example of how to treat someone, especially when they face ongoing challenges.
People often tell me my husband with Alzheimer’s looks fine. They don’t know what goes on to help him stay on track with what was typical life. It hurts and makes me feel more isolated. Thank you for sharing and may the peace of Jesus always comfort you.🙏🏻💕
Hi, I took care of my mom after her Lewy body diagnoses and when she needed constant help. This was quite a few years ago and the internet was really small. I stumbled across an online diary by a sister and brother that had taken care of their mom. While it was difficult to read, I read it over and over. It was so helpful to me and my mom. Please know that you’re helping someone like me. Your personal experiences are priceless, believe me, I know. I wish you all the strength and many prayers.
I absolutely love you two. What a heart of gold you have Lesley. One of my dear friends was diagnosed with dementia about 8 years ago. I’m so sorry, such a cruel disease.
I personally love how y’all have been able to show the progression while still being respectful of Jason’s privacy. I completely understand the fine line between showing things in an honest perspective and also protecting Jason. We as viewers would never want him to feel embarrassed or uncomfortable in any way. We really appreciate and love you guys. Y’all are always in my prayers. ❤
It shouldn't matter what other people think, honestly we all need to understand not everything we see is what's happening
It was really interesting how introspective Jason was able to be in the beginning speaking about how differently this affects each person. You can really tell what an intelligent man he is.
Leslie I am right there with you. No one sees the progression if they don’t live with the person. I have said before, my husband has Alzheimer’s and it is a different day every day. I pray for you and Jason. We have a long road ahead of us. God bless.
Leslie: I so wish you could filter the negative ,mean, & non common sensical comments. You are so true & are doing a beautiful job caring for Jason. love always from Colo
Jason is so articulate and tells the best stories. Love his humor. I know there must be many struggles and you both are very generous to share. You both are amazing! God Bless you both.
Please continue with exactly what you are doing. I worked in a memory care and loved every resident, maybe not every minute but almost every minute, and respected them greatly! It was an honor to work there. All the information you share is important, seriously helpful, hopeful, honest and loving. There is no way this is easy or you are not exhausted or frustrated etc. but you are showing us some of the gifts a day can bring. Let’s face it, Jason is also a born entertainer, likely will always be a part of every day! I never miss your posts! You are an amazing caregiver Leslie! Amazing! Xoxoxo
Those last 3 seconds are literally spot on with dementia almost makes me think that’s scripted it’s so perfect 🤣🤣🤣 you guys are so brave and thank you for raising awareness from both sides 🙌
You are both so brave and so generous in sharing your life with us. I am sure you are making a tremendous difference for the good!
Home Interior purchaser here (long time ago). I always enjoy your videos. I appreciate you explaining the heavy editing you do. I thought with you being a nurse that you have taken extra great care making Jason manage so well. I love love love Jason’s intelligence and awesome humor. Leslie, I love your graciousness and always being candid and real. Love you guys 💜💙
Thank you for letting us share in your successes and struggles. This has really helped me understand lewy body’s so much more.
You two are a breath of fresh air. So open, honest, positive attitude so loving towards each other. You both are a wealth of info for others going through the same disease. I can see God's grace within you both. Thank you for your precious videos.
You two are wonderful. His sense of humor & acceptance of the inevitable make him an exceptional person and patient. Your dedication & seemingly boundless energy make you an exceptional person & caregiver. The love & respect the two of you have for each other is rare & beautiful. Thank you for sharing with us.
Awww sweetie don’t you worry what others say or may say..I personally love watching you guys..you guys are just the sweetest 💜💜💜💜continue sharing your journey 💜💜💜
Such a blessing to see the two of you constantly adapting to Jason‘s changing needs❤️
Thank you for this BLESSING. My husband and I were thrown into this same fight one year ago. Sadly, it coincided with my husband’s retirement. I feel like I’m watching me and my husband when I watch your videos…makes me feel like we are not alone 💜
I did in home care for people with varying types of dementia The hardest part was watching their families deal with the long goodbye You are doing a fantastic job Lesley Take care of yourself
Yes, Leslie, take care of you. Reward yourself, once in a while with something fun...something you used to enjoy...or take a painting class... That is just an example.
I can’t tell you how helpful this was! My husband is the same age as Jason (but a bit farther along) and we’re both like you guys… great marriage, very close, very communicative, very talkative sharing our lives together and one of the hardest things for me was when he started shutting down and literally could not handle having conversations. It was so isolating to me because we’ve both always been big talkers with each other and when you don’t really understand how they’re feeling, it can easily be taken as rejection. He’s also now going through that lethargic, wants to do things but just can’t get himself to do it, stage. Like Jason, he’s a Mr. fix-it guy… always been in the building trades, can build you a shopping mall with a Q-tip and an eggplant… that kind of guy. It’s so sad to watch him lose all of his abilities. Thank you for doing these updates because it is so vital for my mental well-being to know I’m not the only one who’s going through this, nor is he. God bless you both. Been watching you forever. Also, on a quick note, I’ve created a private “Lewy Body Dementia Christian Caregivers Support” group on Facebook if you or anyone else is interested. ❤🙏 Love you sweet girl!!
My sisters husband (age 82) has just been moved to assisted living due to his Lewy body advanced stage. However, he has slightly improved since the move. We are attributing this improvement to the structured routine. She is feeling somewhat guilty because he seems so much better. But I remind her of the sleepless nights when she was up helping him. Every case is different.
I was a caretaker for my husband with Lewy Body Dementia and Parkinson’s for 11 years and everything you talked about and explained to people was right on point. I wish I had you to watch when I was going through our journey. My husband passed last year. The years go by fast and your videos with Jason will be priceless. 🍁🍂💕
Leslie and Jason, just let me start with saying how much I love you two. No one that hasn't been through what you are going through right now can know how hard it is. The fact that you both KNOW and FOLLOW the Lord is really all you need. It gives peace that surpasses anything. Leslie, I see your incredible selfless love for Jason and Jason you have maintained your wonderful sense of humor through it all and you always say you are not worried and I know that comes from faith in God!
I am a fan of your putting this out there. I really like both of you and pray your journey is shared and that you receive the help you need.
I admire the respect I see between the two of you. I know it’s very difficult, but your love shines through.
He hasn't lost his sense of humor. I'm glad you talked about what you did today. It helps us understand better. I love seeing you two talking together.
A thumbs up doesn't seem appropriate and I want you to know how much I appreciate your channel and the openness you use to approach this illness. Jason thank you for being so honest with us. My mother had parkinson's and it wouldn't have dawned on me to use it as an opportunity for education. Thank you!
Well said
I was a caregiver for my mom who had Alzheimers. Actually, her last neurologist diagnosed her with Lewey Body due to some of the characteristics she was displaying. She passed away in 2017 and I still grieve over what her and I went through. My heart goes out to both of you as it is a very hard road to travel. It is a devastating, heartbreaking disease and I am sending many prayers your way.❤❤
Yes, we did Home Interiors, too. My mom had Lewy Body Dementia. When she was diagnosed, we searched for resources. Very little was to be found. Documenting your journey will be a true blessing for families going through similar situations. My prayers are for you and your family. Thank you for what you are doing and I very much enjoy your Channel.
May God be with you, Jason and your family as well as you continue on this journey. You are right, we do NOT know all that you go through to produce a video. And what a kind and compassionate human being you are to help Jason shine and appear his best. You two are adorable together.
You are such a great couple and are handling Jason’s dementia with such care and grace. Thank you for sharing your life with all of us and bless you and Jason.
Thank you! I took care of my mom for 4 years. They didn't diagnose the lewy body dementia until 1 year before she died. I'm glad you know and understand this disease now so that you can enjoy your time together ❤️
Please know I just enjoy these videos so much. My fathered had alzheimers, it was so heart breaking to go through with him. It's so wonderful to listen to Jason explain how he feels and what this brain is able to handle.... kind of gives me a inside look at how my dad must have been feeling. And Leslie you are my hero, I can only hope to be such a wonderful caregiver.
Everyone's walk thru this is unique and shame on anyone that would express a single doubt as to the sincerity of the helpful content you are putting out. No o e knows the silent tears that flow from a caregiver and a loved one. Prayers for you all.
I am a silent viewer as well. I need to let you know that I am so grateful for your ability to share such a personal journey. Thank you for being so raw and honest with your struggles and your successes. Your willingness to educate is surely appreciated.
You both are wonderful people. I thought it was so sweet when Jason mentioned one of his 'greatest buddies' was a 90 year old man, it warmend my heart! If doing these videos is difficult for Jason, maybe fatiguing, you can tell that he does them to help others. Your hearts are ALWAYS in the right place. ❣️❣️❣️
Fellow RN here Leslie, I love how you want others to understand Jason's journey but I'm so glad that you shared this video. I'm thinking maybe people are comparing their journey and thinking their's is not normal. Now that they see that you are prompting him and editing the videos, they will have a clearer picture of his actual status? When viewers don't see much of a difference, it may be because of that? As a 24/7 live-in caregiver to my 88 year old Mom, I thank you for contuing to educate others and be his advocate!
Made me cry… we LOVE YOU JASON!!! And you too Leslie! Still my favorite u tube channel! Sending love and prayers for you both every day.
I hope you both know how much we all love you and how many people are praying for you? ❤❤
Dignity and Grace is how I describe each one of these videos. They are real without being unnecessarily harsh. You are both doing so much good and are providing such insight into this condition. Yes, I have seen that Jason is regressing as he naturally would. Keep going with these beautiful videos.
It is so heartwarming to have Jason participate in these videos as much as he is able. You both keep it so real. The relationship you have, complete with the joking around, is wonderful even though we get a glimpse into the tough times of your journey. I’m so thankful you draw strength from the Heavenly Father and am confident that He will help you navigate every step of the way. Blessings ❤
When my son was little he called his Dad honey because he heard me .Brought back sweet memories. Praying for you both . Went through Alzheimer with my mother. A lot of trying times. ❤️🙏🏻🙏🏻🙏🏻
A classmates of mine- she and her brother called their dad honey for the same reason.
Thank you for sharing your life with everyone. It has to be hard knowing the out come, but you still want to share the progression of this rotten disease. You have so much love still there. You’re a blessing for others going through this along with you. Bless you both, prayers for you also.
Thank you for sharing your personal experiences. May God bless and keep you both.
My mother is 83 with Alzheimers dementia and I can relate to the repetitive conversations and reminding mum to eat and drink, have showers, change her clothes etc. We are also at the stage of arranging respite care because she can’t take care of herself.
Sorry your Mom is in this, my Mom went thru it, younger, hang in there sending prayers.
Your ministry through being so open is amazing! Praying
My grandma dealt with this also. It was so hard on her especially when she started to forget everyone's names. She went through so much. She held on for so long but went through it. I miss her all the time. My heart goes out to you both. This journey never gets easier. Prayers for God to hold you both through this.
Leslie, this is heartbreaking. I lift you both up in my prayers. Your resilience and dignity - both of you - is inspiring. I'm also the wife of a veteran (Australian Army) who is declining mentally but in a different way. I hear you. ❤
I have been watching you for about two years I really don’t comment because I watch on my tv and I like to relax and enjoy my videos. I love watching you and your lovely husband. You are doing a wonderful job. Your holiday decorating is the best.
You are both handling this with more grace than I ever could. The love you feel for each other just shines through.
My experience dealing with Alzheimer's in my dad was that I had to keep things simple. If he was having a better moment we could get a little less simple, but in general our talks had to be one point at a time and maybe only two or three points in the discussion. Anything more than that was so frustrating for him. You have many prayers for you and your family as you travel this journey.
My husband has dementia most likely caused by stage 4 cancer and the toxicity of all the chemo. It has forced me to retire and become a caregiver (again). Unless someone walks this path and has constructive advice they should keep quiet. We love our good days. We love being a team. And our number one goal is to make memories that our kids and grandkids will remember. Blessings to the both of you.
Jason , I so appreciate you pushing yourself through this video. You did an amazing job. You are a smart guy it is evident in how you present yourself. I'm really appreciate your challenges day to day and how you share this with us. In hopes of being helpful to others. What a kind thing to do. Thanks guys. Much love ❤️
I’m walking w my husband through brain injury and I’m seeing more dementia. You guys are blessings
Thank you for sharing this journey with us. You’re both doing the best you can with what you have. I’m glad you’re seeking help and support. I’m going through this with my brother.
Jason is so great at expressing his feelings ! Leslie you are a blessing and a angel !
I just LOVE Jasons sense of humor! I just love how funny you are thru all of this!
I have been watching your channel with my husband, who is struggling with Dementia with Lewy Bodies as well, and it has helped to start many hard conversations. Mark started having symptoms, REM Sleep Disorder, loss of smell many years ago, and then came the sleep testing, the Mayo clinic, the brain scans..all roads lead to DLB. This year it became too challenging for him to continue to work. The memory issues were too great and the note-taking, post-it notes everywhere, had become too much. It is still hard for others to grasp. They want to question because they don't understand how someone his age, and with his drive and intelligence can be dealing with a geriatric disease. He is now 61, I am 56 and we have been married 31 years. As Jason, he is normally good in the mornings after being rested but tires easily, sleeping and resting throughout the day. It is a marvelous thing the two of you are doing, and I know that it is not easy. You do not need to justify to others as to why you and Jason are living your best life. The fact that Jason was attempting the bake-off challenge, in itself, was amazing. I love that you enjoy the things that are important, being with your family, experiencing travel (when not sleeping), laughing together. Thank you again for sharing and helping to open the lines of communication for those suffering, as well as family and friends.
Keeping Jason engaged and active is so important!! Leslie you are an Angel!❤
Always look forward to these.
Thank you, stay strong and keep it to real.
I remember Home Interiors. My mom sold it too. Love your videos.
I, too, am losing a bit if my husband (age 63) each day to dementia. It’s the most heartbreaking thing to experience! We have also have been together since I was 18 and fell in love my sailor! Been married almost 40 years. I am also an RN. So thankful for the Lord’s provision and strength!
🙏🙏🙏
Just know that those of us who have experienced care giving for our beloved dementia spouses/parents … know what’s happening behind the scenes. As always…your transparency is to be commended. U r literally teaching others. May God bless and keep u … 🇨🇦
My husband Leslie passed away from Lewey Body Dementia in March and it is a wicked disease. I can relate to all you share. Those of us who deal with this totally understand.
Hi Leslie and Jason. You both are such a blessing, and your willingness to be so open and share with us all what I know is a very difficult and challenging time in your lives is a testimony to what great folks you are. Sending you prayers and wishes for more good times together.
Hi, my husband has Parkinson’s dementia. I look for you and Jason because I feel so much comfort to hear your honesty. I too am constantly hurt by “friends” and “family” saying “he looks fine.” “He was talking fine.” I try to brush it off, but it is not helpful, and when you live with this daily, it’s hurtful to say the least. Thank you both for your honesty! Sending love and light to you both and your beautiful daughters!
Thank you for this. My daughter has very similar struggles with memory, confusion, exhaustion, as well as balance and hearing as a result of brain cancer treatment. It’s hard and I’m struggling; she is only 25 and recently retired from the Navy. We struggle with the VA and having them take her seriously. Her neurologist and med team outside the VA have been great but they also get frustrated dealing with the VA and the ever changing staff there. I need to work harder on our daily routines and keeping her active. Some days are great and others are just a a mess. I can’t thank you and Jason enough for helping me better understand but also not feel alone.
Thank you all so much for sharing your journey. It's very important. You both are a joy to watch! My dad lived with me for three years with Alzheimer's before he passed. So I don't have the same experience you have with a spouse, but I understand.
Aricept I very highly used here in Norway as well, and when it works, it works great.
You guys are so amazing and you are providing such a valuable service to people dealing with dementia. Your courage, compassion and humor is so inspiring and provides a bright light to all of us who follow your story. ❤
Jason is a amazing guy. He shows a lot more than needed. I give you credit for even trying to do videos. I took care of my mom who had the same thing. God bless you both🙏🏻💖
Thank you so much for your openness to the real daily challenges! I'm so sorry you are going through this. I wish it weren't happening. I do find hearing your story very interesting and inspirational as well.
I love how your sweet dog wants to be close to y'all 🥰❤️🌻
Lesley and Jason ,I think the two of you are great people! It's obvious how much you love each other and how strong you guys are.It's wonderful that you are being honest with people about your journey .You both seem so sweet !! God bless you both 😁🌻🦉🍁🦋🌽🍊🥧🎃💛🎃🧡🎃
This video is powerful. Especially showing us how he was trying to braid, but couldn’t remember. That was very good for all to see to really understand the struggles.
I believe that Jason looks like he’s doing well is because you two are so close to one another and are truly working as a team. Just like your editing, your prompting him (that we may not see), your darling giggle/laugh, his humor and good attitude. You both truly exude a good attitude, love and support. I know it’s so much harder than it appears to many.
I’m starting to struggle with dementia and it’s horrible! My mom is 30 years older than me and I see myself in her now with her memory, forgetfulness, repeating questions, walking in another room and forgetting what I’m doing, needing my kids to tell me how to do something, remind me how to do it, etc. Things that used to be simple. I’m constantly setting alarms to remind me of everything from close the curtains, feed my birds, feed my dog, put out the dumpsters, etc. I also have Covid Long-Haul which affects the memory and severe exhaustion for me. I can relate when Jason WANTS to do more and spend time with his grandkids, etc. but just doesn’t have it in him and wants to sleep. I can take a shower and get ready and I’m work out. Or walk across the street to get my mail and I’m done in. I have all the best intentions, but so much doesn’t happen. It’s VERY discouraging. I also live alone and can’t keep up on my normal daily living from dishes, laundry, cleaning, etc. It may take me a week before I can get myself to the pharmacy to pick up my meds, etc. I think every day that I’ll do it and many other things, but I don’t have it in me.
I wish you two the very best. I am grateful that you share these videos. They ARE doing so much good for so many. May God continue to bless you both on this unique and challenging journey. Sending much love.💕🌟
Hi thank you for sharing.My husband is in stage 6..It is so hard he is now in a wheelchair..I'm glad you try to enjoy every second...we do too.God Bless
Jason and Leslie thank you for your story. Do not allow silly peoples comments bring you down. You have opened up your home and life to help others. What a blessing you are to so many.My
husband has dementia ( undiagnosed ) but he can no longer use his phone or computer.Like Jason he does best in his home with familiar. Many people don’t understand the disease.Thank you for making people aware. You are a blessing. I love seeing both of you.
We love you both thank you for this video and updating us and bringing awareness ❤
This is very educational, my husband at 64 start to forget things, this man is good with numbers and has had a very difficult job with federal Government in Canada and he has just signed his retirement paperwork. He is starting to forget stuff for work. Thank you for everything.
We have personally experienced LBD. My husband's mother had vivid recollections of past memories, but day to day would forget time and even tried to open her microwave with a butter knife. We found a burnt bottom mark on her coffee mug and she ate so much less. Six months that I wish that we could've done more.
You and Jason have a loving, sweet marriage. May grace and love surround you.
Yes....This is us. My husband was diagnosed with EOAD just over two years ago. The day to day reality is so hard to explain (you both did a great job) that sometimes I go back and watch your videos just to feel there is someone else that totally gets it. Thank you so much for sharing your journey.
Robin Williams did Happy Feet with early DLB (Dem Lewy Body) and Nights at the Museum with it. These videos are so helpful for those of us questioning our own sanity as Family/Freinds & Caregivers. DBL is a silent killer for those around the patient, Not ness. the patient. Its very frustrating/dangerous for all people around when a patient Wont go in for a diagnosis and is in denial . When in fact a diagnosis Helps everyone around the patient so as to help them!!
I had a friend that sold Home Interior. Bought some for my parents, they loved it. I understand where you are coming from, because my Mom had Alzheimers, and went through every stage for a long time. Love you both!! 🙏🏼❤️
You guys are adorable. Thank you for sharing. When my brain starts to feel overwhelmed by too much chatter, I go deaf.
Hi Lesley! Home Interiors was the bomb!! My first experience with trying to decorate a home. I, too, married at 18. 😊
I lost my mom 2 years ago to Parkinson’s/Lewy body dementia. My husband and I moved in with my parents so that I could be her caregiver. You are doing such a fantastic job. And I believe it is truly the hardest job in the world. I’m so happy for you that you are going to have some of the resources that are so badly needed. God bless you every day in this journey. ❤
I love y’all! Yes every patient has a different journey even with the same disease!! Just like all our personalities are so different:) love all the videos ❤️
I love you guys! LBD is a awful diagnosis and changes all the time in personalities. A friend of mine has her husband on nicotine pouches and that seems to help with his memory (for now). There is also Lion’s mane capsules that help memory also. I hope that we get some real solutions for LBD and all dementia in the future. Love to you Leslie and Jason.
Jason I have to say I don’t have dementia but I can totally relate to “that’s enough discussion - I can’t take anymore - I need to be alone!” It seems that people in todays world just talk and talk and talk and never pause or allow anyone else to talk. It’s maddening! I appreciate your commentary on that. Love your videos!!
Lol I sold Christmas around the world and for a short time Home interiors. My daddy's doctor said there was a need to diagnose. He died at 92. I was his caregiver for 3 yrs. He was legally blind and deaf with dementia. Everyone is different. I watch to support your journey. My mama is 97 and is deaf but still handling her needs. I am still with her.
I think the two of you are doing such a service for the community in a way that is so down to earth and real. I love you both!
I love how you support and honor your husband. You are sweet examples ❤