Williams Syndrome
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- Опубликовано: 31 май 2024
- Tinabeth meets families successfully living with Williams Syndrome - a genetic condition that is characterized by medical problems, including cardiovascular disease, developmental delays, and learning challenges.
To learn more about the condition check out:
williams-syndrome.org
This segment originally aired on SCIENCE & U for CUNYTV.
I have Williams syndrome god made me and I'm happy For God doesn't make mistakes he made us special I'm here to tell you I've have a happy life I've accomplished so much God loves us all
That's right!! Thanks for sharing that Brand Kolb!! :)
You're indeed god's special child and I hope and pray that you achieve all your dreams. Keep spreading the love and positivity ♥️
God loves you ❤️
as someone whose son might be diagnosed with this very soon this warms my heart
I've recently found out about this syndrome and I have a couple questions if you don't mind me asking, since I don't personally know anyone with Williams Syndrome..
Do people with Williams Syndrome understand racism or homophobia? How would they define it?
To me personally is so hard to understand how can people be racists and I don't have any syndromes, so I just can't imagine how hard it must be for you!
Their happiness is so infectious I would love to be around these people. Such a shame that health problems accompany this
Trust me, it is wonderful to be around them. I just started music lessons with twins with WS and their classes are the best of all in my day. I'm so grateful to God that I connected with them in this life. They bring me such joy. 🥺❤️
My son has WS he’s 5 years old and he’s the sweetest and most loving boy. I love my baby.
God bless you. My neighbors kid had it, hes a few years younger than I am and I am now 34. He is Happiest person I've ever met. Very talented as well. Don't be afraid to challenge them in the arts or after school activities, you never know what he may fall in love with and excel at.
I bet your child is beyond wonderful to be around! Bless you and your family, warm wishes ❤
My grandson is 5 and he suffers from Williams also and he’s the funniest most adorable little boy ever ♥️♥️
I'm currently writing a paper on Williams syndrome. The thing that drew me to wanting to learn more is how friendly they are. I'm a pretty lonely person, so the idea that there is an entire group of people who have kindness and and the desire to make friends ingrained into them is something I find so beautiful.
I too feel this way! I have not been able to connect well to people due to bullying and so I am shy and withdrawn. But when I first read about this unique syndrome, I was enchanted.
Which kind of paper do you write? Scientific article!
@@nouraa5368 A research paper with a class presentation. If I remember correctly I got a good grade on it, and it was one of the few research papers I've enjoyed writing for my major, and I write a lot of research papers
@@kindrafaskell5177 very nice job. But do you mean that you did you Phd on Williams syndrome?
@@nouraa5368 Nope. Still an undergrad. It was a final paper for my Lifespan and Development class
These kids would make the best friends anyone could have. These kids are too pure for this world.
its so cruel that these sweet angels have health problems :'(
But yet in a strange conundrum it could also be considered a blessing as these beautiful souls are deserving of something far better than the realm we call life.
Hello! I am a museum guide in a museum with self-playing instruments! Tomorrow is the first time I am going to give a tour to people with Williams syndrome. I am very excited but also a little nervous. I hope I’ll be able to deliver a memorable experience for every single member. This video was very nice! Thankyou
Thank you for sharing! I'm sure your tour went well!! 😊
My daughter Rose will be 4 next month.all her diagnosis did was make me love her even more.she was just diagnosed a week ago.she is the light of my world.
Let's be honest... That they are not burdened by the negativity that most of us are, is a down right blessing.
Typical human behaviour to see the down side of it. But just imagine how that must be. Happy inside, most of the time.
I'd rather be "to positive" for my own good... Than to negative for my own good. Unfortunately, most people are the latter. And many of our brothers and sisters felt they had to give up their lifes because of that.
It's like they are always on acid.
I think that I have a friend with this. ( I felt like it was rude to ask that or avoid her because of her disabilities. ) She fits the look, has a learning difficulties, mind of 10 year old ( she's 16 ) and is very friendly. She acted like she knew me as soon as I sat next to her. She didn't have any bad feelings when I said I was a gay goth who doesn't believe in God and almost every day she says that I am her favourite friend and that she is going to miss me when I go to college.
God dont care if you gay or goth but he does love you the way your friend does.
My youngest brother has Williams Syndrome and without him I don't know where our family would be, he's helped us get through so much rough times and we love him so much. God bless every WS, they're very pure, it brings a tear down my face watching this. He is very friendly, whenever you're down he makes sure you're okay and smiles in your face. They are the best.
So many people commenting saying "William's syndrome is a gift, I wish more people had William's syndrome" that is reeeeeeally not good. This syndrome has a tendency to be glamorised, people seem to think it just makes you a happy person, which it DOES, but it's at the cost of other things. These people are extremely outgoing and sociable with new people, but studies show they're always lonely because they can't make friendships that are not superficial. A person with William's syndrome would love to play games with you or watch a movie with you or go shopping with you but eventually you're going to want to have a slightly deeper conversation with a person and William's syndrome people can't do that because they have learning difficulties and social problems (at that level). So yes, although it seems like a blessing, it's as much of a curse as any other syndrome. I can't imagine how frustrating it must be to have William's syndrome, the whole world rejecting you because you're too "good", I'd rather have autism and just have no social skills whatsoever.
I wish all people could be this beautiful.
They are enlightened ones. Thank you for giving us love and smile.
Having Williams syndrome does make you vulnerable because a lot of people don't understand and a lot of people take advantage of you I'm 39 and I've always had to try to be like everyone else and function like everyone else and go at the same pace. I always had to be the understanding one for others to have to be around me. I'm so nice to people I've been molested and raped sexually harassed. I was put in bad and harmful situations all my life. I've been physically and emotionally and mentally and sexually abused by many people through life. Some People Also think there's something wrong with me and people run away from me. I've been shoved to the back or hidden because I'm like this. I've been called retarded, weird, freak, why do I smile so much, crazy, slow, difficult. I'm glad there's finally awareness on this topic/subject . So many of us have had to endure a lot of crap and disrespect from others. I'm in a marriage of 16yrs still married and it has been so freakin hard it has been the same bullying and abuse as when I was a child and it's not getting easier or better.
Thank you Stephanie for taking the time to share your experiences with us. I really appreciate it 😊
I am so sorry to hear about the horrible things that you have been through. No one deserves this. I know that you are an intelligent woman no matter what ignorant people have called you... they called me those kind of names too. I am glad you shared your story 🥰🙏🏼❤️
Ohh I hope it is not your partner who's doing the abusing! Sorry to hear it!
@@tbpusa tinabeth don't thank her. Did u even read her message😳 Give her some help not a bot message🥵
@@AniSKZ4141 All messages are personally from me and I'm always thankful when people have something to share. Thanking them for taking the time to watch, respond and perhaps share their experience is the least I can do. Sorry it's not the soliloquy you are looking for, but then again my earlier responses are not for you since you have nothing positive or uplifting to share. That comment like some of the others - aren't necessarily about looking for help, it's about being thankful that there's something about the syndrome out there - shedding light on it and sharing their experiences growing up with it. Yes, I will continue to thank people for sharing their experiences even if those experiences are negative because maybe someone else will read what they reveal and relate and realize they are not alone and thank them for sharing it as well. I'm not licensed to offer help. I'm only licensed to report and say thank you to those who reach out after watching something I write and produce.
My grandson has Williams, and his parents are amazing with him! He is headstrong, but he's a walking rainbow, and the Williams Syndrome Association has been a wealth of information. I am in awe of all of these people!❤
I didn't know anything about Williams Syndrome until now... thanks Tinabeth!
Despite their many medical issues, they are beautiful, friendly and loving people.
An example for the rest of us.
We all have issues, let's emulate the heart felt beauty of these earth bound angels.
Have some friends who have Williams syndrome and I got to say they are truly amazing people and there very special in there on way
It's important to educate children and in some cases, even adults about how the simple act of kindness, empathy and compassion towards our fellow humans, especially our special friends, could mean for them to live in a safer, healthier environment. It's important to treat them with the same dignity and respect that they deserve.
I totally agree 💯 Jesus was asked what is the greatest commandment he said that you must love Jehovah your God with your whole heart and mind and second is that you must love your neighbor as yourself in the words of a famous song what a wonderful world it would be if only Eileen
These people all have great personalities. Kind of a fascinating condition. Really sorry to hear about a lot of the health problems that go along with it though.
There's a young man probably in his thirties now, in my town and I figured out this is what he had. He is called "the mayor of Ferndale" by the whole town, or those that know him anyway, which is A LOT, as he is so friendly. I see him from time to time... Suburb of Baltimore Maryland..
My son Travis has Williams. And other than the health problems why in the world would any want to change someone with Williams? They are the most loving people and have the best outlook on life. My world was made better because of Travis. He has a way of making the worst days better. He just started his freshman year in the passages program at the University of South Alabama. I couldn’t be prouder of that young man..
These children have the heart of Jesus Christ. It's so beautiful. They are full of true love, a 1 Corinthians 13 verse 4-7 kind of love. What a blessing they are to the world. It is my hope that we can all learn to love like they do. God bless them all!
I agree 💯 totally Jesus said that you must love Jehovah your God with your whole heart and mind and second is that you must love your neighbor as yourself in the words of a famous song what a wonderful world it would be if only yes we should respect every one regardless of colour religion or disabilities Jehovah God created us we are all his children Eileen
What beautiful people!
This boy could make friends with random New Yorkers
God bless all there sweet souls world would be better if we all acted like this
i just watched a sweet sweet girls story with this condition. I wouldn't call it a disability because these special special souls are blessed in ways so many others are not. I call it differently-abled and these sweet peas are just angels! in the schools I went to in elementary starting in kindergarten special able kids came to our class and we all learned sign language and when I moved and switched schools there was an opportunity to become a buddy in the special kiddos class and I couldn't understand w by I was the only one to jump at it. The little girl had so many conditions her name was Alexis and she was just an angel too. She struggled to see but if I was in the hall surrounded by tons of kids she would single me out run up with her little hop from her leg braces and give me such a tight hug she wrapped a leg around me too. I was invited to her birthday party and I couldn't figure out why her mom was so excited I was coming I was glad to go it was a pool party and she had kittens what more does a 3rd grade girl want? 😂 I put on a puppet show I wrote for her class and made the puppets lol bless those teachers allowing me to do that im sure it was awful lol. I sure wish I knew what happened to her after I moved away. I don't know why I was lucky enough to have those opportunities but I know I wish every school did the same thing and that my kids would've had those opportunities. bless these sweet angels I wish I still had the chance to volunteer I'd love to get to know some of them with Williams syndrome it really interests me. I've always been of the belief that they weren't missing anything but instead given a gift the rest of us weren't. Their super power is innocence, the pure ability to love unconditionally and live with no hate in their heart only love and happiness. That sure doesn't sound "disabled" to me gifted mote like it! hugs to all these sweethesrts💗 I wish I could befriend them all
Thanks for taking the time to share your story!! I really appreciate it! :)
It's unreal how amazing these beautiful people are!!!
That mother is beautiful! So is the son! Children with Williams Syndrome are blessings and we could all learn from them😊
My younger sister has william syndrome and I just love the mess out of her soo much I wouldnt asked for a better sis (even tho I didnt ask for another sibling😂)
But still I love her and I just really love her moments of clarity, sometimes it's funny and sometimes it's sad but she is just the best.
Thanks for sharing about your sister!!😊
Yep , fun for a while and manageable with appropriate support both hands on and financially. To survive and thrive as humans we need balance. When you work closely with those living with intellectual disability and high support needs ,you quickly grow to understand the impact it has on parents,siblings and mostly the person themselves. A young man once said to me "just because you see me smile all day ,doesn't mean I'm happy , it's part of my disability and my fugging body won't physically let me express other emotions". Meaning , his facial muscles won't let him frown, be angry,look sad etc etc . He had cerebral palsy but Williams and other Syndromes are not that different when it comes to connection or lack there of ,with emotional state and outward perceptions.
My angel 👧 has a william syndrome. She is 3 years old and now she is start walking and speaking.
My child has Williams syndrome. Happy to see this vidéo. Thank you very much. It’s help full
As a person who is suffering from an anxiety issue, it looks the world is full of risks, dangers, and harms. I can't help keep doubting others. For me, they seem to be blessed, their personality is exactly the one I've ever dreamed of.
The kids are pretty cute! I wish more people could be as friendly as those who have WS but I would like for people to not have the disorder. Let's just be kind to everyone and give more love! It isn't hard if we respect and understand that other people are different, we can be more tolerant and maybe begin to spread happiness around the world.
I totally agree 💯 Jesus said that you must love Jehovah your God with your whole heart and mind and second is that you must love your neighbor as yourself and in the words of a famous song what a wonderful world it would be if only Eileen
He has a wonderful spirit.
i just learned about williams syndrome a year ago! and the fact that they are here amongst the evil's of this world! makes me sad!!! i wish i could shield them all!!! god bless anybody that has this, gift! which is how i see it! and only a few chosen ones are blessed to be in there presents
Such a beautiful kid and really admire his mother. What a strong and supportive woman. God bless them with strength and happiness. Lots of love.
What an amazing mom and little boy ♥️
These people don't need to change ever. They're perfect.
5:10 I have Asperger's and am amazed at the contrast with WS people. I believe this is the way we originally were before we were corrupted.
I'm here because before this video I saw another beautiful video of a boy and a horse. The mother of the boy is filming the interacting with horse and boy. The young untrained horse, so new to them, is inmensly loving and tender towards the boy. Blessings
Beautiful inside and out, (A rarity.) Maybe its the rest of us that have a issue
Thank you for sharing 😍 our son Isaiah 10yrs old has Williams syndrome
Great name for your son. He's truly a blessing and a gift from God. A daily reminder of the love that Jesus Christ has for you. Pure, innocent and true love.
My son has this syndrome. I have 9 kids and only one was diagnosed with Williams Syndrome. I believe this is a birth defect. My doctor's nurse made me lay down on the exam table while she performed a pap smear. She forced my cervix open and cut cells out of my cervix. I believe this caused a deletion from my son's chomosome. I am protesting, and I want all the parents to join me to prevent doctors from cutting on our cervix while we are pregnant. I'm asking for the father's help also. These are our children, and doctors are make billions of dollars by causing our babies to have birth defects during pregnancy and birth. Children with Williams Syndrome attend many doctor's appointments which is costing us billlions of dollars...
Thank you for sharing your story.
What a treasure....
I was 11 week old when I was got the condition
Thanks for sharing Aimee!
Your welcome
You are born with this. You can not get this at 11 weeks
3 as1 i think she meant she was diagnosed with the condition at 11 weeks.
Thank you for loving and giving us beautiful smile.
Imagine if everyone in the world was like this.... it would be such a happy place... no nasty people... So Sorry to hear about the heart problems etc..... ❣️❤️❣️
They r so special, i wish the health issues can be cure in the near future, the possitive mind that they have was the opposite mind of the society we live in. What else can you ask for if the health issues can cure, they live to love, and that's make me jealous
I had to write a paper on folks with WS. Such kind people....
It’s unfair that they have heart problems considering that they are the folks who deserve them the least
Good for him too for having such a wonderful, dedicated Mom. Well, since this condition is about love he"s in good hands. I think about the how much joy, love he can't help but to give to others, which of course brings it back to surround him in all he does. Thanks
Thanks for your comment! I really appreciate it!
This is great I love being who I am, and if people do not like me, then they’ll lay off of me and my friends that have William syndrome I will stand up for myself, and for those who have William syndrome a lot I care for those I don’t like what people are rude to me or anythingI’ll stand up for you guys every day cause you guys are my friends, William and people come to me
I thought my daughter had William Syndrome, CGH array showed up a rare 4q deletion syndrome the matches to William Syndrome in so many ways alike, only difference is the chomzone number. My daughter can't find other like her and has befriended many kids with William Syndrome. Gate video on awareness.
Thanks for sharing that! I really appreciate it!! :) Tb
I hope his doing ok
It's like they're on an ecstasy trip their whole damn life! damn!
Happy all the time, love dancing and listening to music. I don't think we should ever feel sorry for these people. 😬
I'd trade like 30-40 years and having some helath issues for being hype and ultra happy all the time for a short life.
Lol. That's what I was thinking too..lol it's like being on e all the time.heh
Before my sister was one-year-old she had to have surgery on the stenosis in front of her stomach because she was starving to death because she wasn't getting any of the food and dying of dehydration... they also had to do surgery on her aorta and surgery on her ear as she has Williams.
And she looks like these people here ...she looks a lot like Queen Elizabeth of England and sometimes I think Queen Elizabeth has it.. I'm not kidding.. I'm not trying to be funny.
Thanks for sharing! I really appreciate it!
Hey, hopefully you'll see this... I take your comment very seriously, but I believe you where mistaking princess margaret with elisabeth ?
Because she has facial features that look most like people with Williams...
From what I get, she was a very loving and endearing person at first, but also very selfish, spoiled and bitter when she was refused to marry the love of her life.
All in all, very childish.
Can someone tell me if they believe a kids with williams syndrome could be "spoiled enough" or miseducated enough / suffer enough trauma to... Turn selfish and bitter ?
Or are they absolutely hard wired to be loving and generous given any circumstances ?
@@pierre-yvesmachavoine4983
I think it is possible to some extent in the right conditions with that kind of negative, harmful Environment. a change in their personalities can develop because of how malleable Humans are by their surroundings. it just might take a lot more for it to happen and the changes might no be so established in them.
Our Lord gives special blessings, challenges, gifts and talents into every individual person. Who are we to junge someone disabled, as if God has made a mistake? We've got enough brillant thinkers. But we're deeply in need for loving, laughing and caring people. I'm thankful for everyone I meet with Williams- or Down-Personality, who taught me love and acceptance. None of them ever hurted me like so many other "normals" did...
Jesus said that you must love Jehovah your God with your whole heart and mind and second is that you must love your neighbor as yourself yes every one deserves respect whatever colour religion or disability Eileen
We are trying to get answers for my son. He is 21 months old and my walking. He has many developmental issues. We are waiting for the genetic test done and the mri. I’m praying for answers
^^not
Thanks for sharing. You and you're son are in my thoughts and prayers...
Regarding these poor souls short life spans, a quote comes to mind.
"The light that burns twice as bright lasts half as long"
OmG Die kinder sind schon extrem süß voll niedlich. Die muß man sofort lieb haben.
Our 17 months daughter has some similar facial features to those with Williams Syndrome, however she has developed so far typically, and has not had major health problems other than asthma episodes and low blood sugar when she was born (first days). I am wondering if children with Williams Syndrome may show typical development and hit all the milestones during the first 2 years of life
They sure can!
I've always found it interesting that people with syndromes look more like one another than they do their own family members
This is not a syndrome. It is a blessing. Would to God everyone had it.
with all love, the most innocent humans 💗💓💝
my brother has WS she’s so cute and loving and social❤️✨
it’s doing great with him and looks the same as the boy just he is blonde❤️
I have many years working at schools with special needs children. The most important thing people need more than anything else is understanding and knowledge. Videos like this are very important. As a Professional Magician, I perform regularly for Special Needs audiences of children and adults. People with Williams syndrome can teach us all to be better people. Yours truly, Magical Entertainer Vincent
TorontoPartyMagician.com
Thanks for your comment! I really appreciate it!!
Minus the physical and cognitive issues, I believe the entire world would benefit from everyone having Williams Syndrome. To have a heart so innocent and pure so as to immediately love and care for others you meet would make the world a much kinder and truly loving place. There would be no outsiders, enemies, or even the concept of "the other" with a heart as open as those in this video. They may have a rare disorder, but when you really think about it, they're outlook on life and other people would be better and healthier for the world as a whole. Even the least known person would be just as loved and cared for like another friend of family member, and that's the way the world should be in the most ideal and positive scenario.
Precious little angels
I have a friend who I think has this.
ilove you somuch miss
Ilove you somuch miss
He’s very cute
Williams syndrome is amazing, but would be more amazing without the health issues. Why the good people always have to suffer? They're the sweetest ever. I want to have a friend with Williams syndrome, but never met any
I have William Shatner syndrome. I’m always asking people to beam me up.
My name is Donna I have Williams syndrome
Thanks for sharing that Donna!
My older sister has it and she is now 69 years old
Hi Donna! 😎
My name is Aimee Laybourne
Seth link
Don't repeat things like his birthday guest problem.It's not good for his self image.
Well, the one kid that showed up was clearly his only friend out if the invited... Glad for that
They all have that same cute face
I've recently found out about this syndrome and I have a couple questions if you don't mind me asking, since I don't personally know anyone with Williams Syndrome..
Do people with Williams Syndrome understand racism or homophobia? How would they define it?
To me personally is so hard to understand how can people be racists and I don't have any syndromes, so I just can't imagine how hard it must be for them!
I'm honestly not sure -- from what I learned doing the segment - Williams Syndrome is characterized by mild to moderate intellectual disability or learning problems - so I think that some individuals with the condition may understand something like racism or homophobia and some may not. Sometimes I can't even wrap my head around how people think when it comes to racism or homophobia...
Thanks for watching the segment - I really appreciate it !! Best - Tinabeth
Lmao
@Tinabeth Pina you don't understand cultural and ethical differences? You don't understand how this clash hinders social growth for one group or another? You don't understand how a persons spiritual beliefs affect their acceptance of different lifestyle choices? You don't understand decades of crime statistics? You don't notice a trend within society as far as cultural tendencies of a certain race or ethnicity that leads to poverty, incarceration, social unrest, underage pregnancy, abortion, unemployment, criminal enterprises, drug addiction etc...... Wow you must be one dumb ass woman. 😂🤣😂🤣 Y'all gotta quit with the nonsense folks. The "I don't understand intolerance" bandwagon is a joke.
It’s My Birthday Party!
Sweeties😊👍❤️🇦🇺
Down syndrome is the same way to those careZone is 7 two in the same thing with that too and I understand that I’m going through with that
Awwwwwww
Benjamin: he got that Million Dollar smile;P =D
Hello my name is Nathan and i have williams syndrome!!!!!! i have had it all my life i am friendly outgoing love to meet new people plus i play almost anything by ear!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! :D and i don't let williams syndrome slow me down or keep me from doing the things i love to do!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! i am like the energizer bunny !!!!!! i keep going and going and going and going and going and going and well you get the picture :D hope we can be friends :)
I have a williams syndrome 7q11 23
0:49 “when he was first born” how many times was he born?
😂😂😂😂
Nobody should go threw something like that 😫
same
Through
I read before that the gene deletion that causes Williams Syndrome is one of the same ones in domesticated dogs. So they're kind of domesticated humans. Which is cool because dogs are better than wolves anyway.
..I need this.. I hate myself…
I'm glad you liked the video but please don't hate yourself - we all have something wonderful to offer - sometimes it just takes a while to figure it out...
@@tbpusa not really. I mean I wish, but..
@@ellie2917 trust me you do. Although I don't know you - I do know we all have something special - could be a smile, could be that you're polite ( a lot of people aren't anymore), maybe great dexterity at texting - it doesn't have to be something major like being the smartest or the best at something. Sometimes its the most subtle of qualities that make quite an impact :)
Anthony's mum is the image of Katy Perry!
I think williamson syndrome is beautiful in a way is that weird?
It must be nice to have money
Anthony you are so cute 💋💋💋💋😊
Have Williams syndrome
Why do they all tend to look the same just a question 😊
Ben, nobody...NOBODY liked middleschool. Not at all, not one bit.
I’m in middle school and I don’t like it
"They have an elvish look"
Imagine if a child with this condition was born in medieval times and survived infancy, their parents might think that their child was replaced by a fairy!