PSA: Americans should never seek "help" for suicidality. Seeking "help" will always lead to severe human rights violations, such as non-consensual drugging.
I developed akathisia from Vraylar and was taking propranolol for it. It only helped to a degree and I started having major anxiety spells at work. I got a second opinion because the doc didn’t want to get me off of Vraylar, and the new one said that the side effects were outweighing the benefits. I’m off Vraylar now and I’m feeling soooooo much better. Of course, I haven’t experienced 14 med changes. I’m just glad to be off of that pill because it was messing me up
I am on quetiapine and Lamictal, one of those gave me pretty severe akathisia. Like you, these medication’s are doing wonders for me and without them I honestly don’t know where I would be. My doctor prescribed me a medication called benztropine. I just started taking it, it’s helped a little bit. But I’m hoping that it starts helping more. Maybe you can ask your Doc about this?
Im taking seroquel, its been 3 years and despite a lot of negative comments about it on the internet, ive had a lot of help from it. I have noticed recently small movements of my body, they are very small, i can compare them to mini tics, random movements of my body. I have this fear that it could become worse with years, i dont think i can stop using the medication because the pros of taking it are more than the negative things. Im tired of reading comments about the dangers of these meds, i would be dead without seroquel. So i have this worry of will the akatisia be worse with time? Or other long term side effects? But at the same time you have to evaluate pros and cons when on these meds. And there are more pros of taking it.
Hi, I’m from Saudi Arabia, I have lurasidone-induced Akathisia, I want ask your akathisia, is it completely gone? What have you used to treat it. Please help.
So my neurologists suspects my movement problem is due to brain damage near the motor cortex. But it started long before i had that damage. In talking to a neural feedback specialist he started asking me questions about the feeling and what medication im on. He said my SSRI could be responsible for it, causing akathisia. Its this terrible feeling that builds up if i dont move my limbs, and results in large twitches if i force myself to sit still. Its 'agitation' feeling is lessened with movement. The neuro doc gave me Keppra and that seems to help some (makes it slightly more tolerable). Happens mostly at night. Its so uncomfortable that is causes a certain level of pain along with great discomfort. Sometimes making it impossible to sleep. No dr. had mentioned this to me until the neural feedback dr did. Asking my counselor about it today at my apt. It started over a decade ago when i started the SSRI, and has since gotten worse and more frequent. The keppra does lessened it to a degree that im not going mad over it anymore. But would rather not have to take a medication to counteract a feeling caused by another medication. Its a truly maddening feeling. As i have an energy disorder this makes it all that much harder as the movements burn up what little energy i have. Does anyone know if there is an SSRI less likely to cause akathisia? The zoloft I take works well so im hesitant to change it, but if it means stopping these movements it will be worth it. Im frankly shocked that no other dr mentioned this to me as a possibility as Ive complained about this for many years. I think the neurologist is wrong about it being related to the brain damage as it begun nearly a decade before they saw any damage (about the same time i started the SSRI). Not a single dr mentioned this possibility until last week. Very glad the keppra helps a little at least.
I’ve had chronic akathisia nearly 2 years and not even from an antipsychotic. I know people 4, 7, even 10 yrs off medications and still suffering. You discontinue the offending medications. You do NOT stay on a medication that gives you akathisia just like you do not stay on a medication that gives you tinnitus. The symptoms do not “die down”. At best, they will mask & aggravate the akathisia and allow it to smolder so that when you pull the antipsychotic away, it’s even worse. Maybe even turn it into the chronic monster that has ended 8 of my friends lives.
I hope you are doing well are you still taking the medication I had to start mine I’d rather be bipolar then deal with it all day long but I am still dealing with akathisia but it’s getting better I do have windows and I was able to swim again for the first time in four years yesterday. The one that triggered the most akathisia for me was Latuda and Zyprexa but I had tried all of the anti-psychotics and the second generation and every damn one of them sucks easier just to control it with diet and exercise I pray you are healing
Hey, I have an updated video that explains where I’m at with akathisia now if you wanted to take a look at that. That’s great that you were able to swim it’s the little victories I think that bring us joy and help us keep going.
I got akathisia in the most messed up way possible, I was in the hospital and I was not feeling well and apparently they overdoes me on a medication so I was feeling werid and I ended up feeling suicidal so they ended up taking me to the mental health side of the hospital tell me why they injected me by force bezos 6mg then my sister came and they called them saying I was acting crazy no I wasn't , my mom demanded them to let me go they did they acted stupid and the the next day my body went full akathisia and withdrawal from them injecting me bezos and letting me go home they knew what they were doing , it was like if they left me cold turkey I spent 2 months in pain my family didn't know what I had I ended up researching found out it was akathisia I went to mental hospital they called me a liar and put me on more drugs basically am happy now drug free it was a long healing journey and if i can warn people to not trust hospitals they are pay there to just do what they have to do they don't care about you and the health care systems suck
Thank you for making this video I'm struggling so bad 😭 from this it's complete torture did u ever have bad thoughts during it intrusive and irritability
Sorry to hear that you’re struggling. I had lots of thoughts like “this is so painful I can’t deal with it I want to die” it’s really painful in a weird way because it’s so unnerving and the inner unrest you feel is not nice so I get you. Maybe go back to your doctors and tell them :)
I’m glad you are feeling better. I’m going through Akathisia for the second time
How did that happen
It’s crazy people have to endure this multiple times
@siberianmoonlight thank you I’m better now!
PSA: Americans should never seek "help" for suicidality. Seeking "help" will always lead to severe human rights violations, such as non-consensual drugging.
You're not alone.
I've shared my own experience.
Let's band together.
Thank you for this lovely comment. ☺️
Les fight together
Thanks for sharing, Gi. Finally sat down and watched this properly.
This will really help someone!
Now the word akathesia has entered my vocabulary.
Thank you for watching it!! My hope was that more people know about Akathisia and now how painful it is.
Were you able to overcome this? @@thoughtsfromabipolarmind
I developed akathisia from Vraylar and was taking propranolol for it. It only helped to a degree and I started having major anxiety spells at work. I got a second opinion because the doc didn’t want to get me off of Vraylar, and the new one said that the side effects were outweighing the benefits. I’m off Vraylar now and I’m feeling soooooo much better. Of course, I haven’t experienced 14 med changes. I’m just glad to be off of that pill because it was messing me up
Sorry to hear it was messing you up it can be such a pain when that happens. Glad you’ve got it all sorted now and I hope you’re well :)
I am on quetiapine and Lamictal, one of those gave me pretty severe akathisia. Like you, these medication’s are doing wonders for me and without them I honestly don’t know where I would be. My doctor prescribed me a medication called benztropine. I just started taking it, it’s helped a little bit. But I’m hoping that it starts helping more. Maybe you can ask your Doc about this?
thank you so much for sharing this. Yes that sounds like a good idea thank you.
Im taking seroquel, its been 3 years and despite a lot of negative comments about it on the internet, ive had a lot of help from it. I have noticed recently small movements of my body, they are very small, i can compare them to mini tics, random movements of my body. I have this fear that it could become worse with years, i dont think i can stop using the medication because the pros of taking it are more than the negative things. Im tired of reading comments about the dangers of these meds, i would be dead without seroquel. So i have this worry of will the akatisia be worse with time? Or other long term side effects? But at the same time you have to evaluate pros and cons when on these meds. And there are more pros of taking it.
@@thoughtsfromabipolarmind hey how are you feeling, has your ak subsided?
@@johnnybaby4036 I have posted an updated video on my akathisia now if you wanted to take a look :)
@@thoughtsfromabipolarmind did alcohol consumption trigger your condition?
Hi, I’m from Saudi Arabia, I have lurasidone-induced Akathisia, I want ask your akathisia, is it completely gone? What have you used to treat it. Please help.
@@אוראלדור-י4ד ok thank you, i hope everything will be alright.
So my neurologists suspects my movement problem is due to brain damage near the motor cortex. But it started long before i had that damage. In talking to a neural feedback specialist he started asking me questions about the feeling and what medication im on. He said my SSRI could be responsible for it, causing akathisia. Its this terrible feeling that builds up if i dont move my limbs, and results in large twitches if i force myself to sit still. Its 'agitation' feeling is lessened with movement. The neuro doc gave me Keppra and that seems to help some (makes it slightly more tolerable). Happens mostly at night. Its so uncomfortable that is causes a certain level of pain along with great discomfort. Sometimes making it impossible to sleep. No dr. had mentioned this to me until the neural feedback dr did. Asking my counselor about it today at my apt. It started over a decade ago when i started the SSRI, and has since gotten worse and more frequent. The keppra does lessened it to a degree that im not going mad over it anymore. But would rather not have to take a medication to counteract a feeling caused by another medication. Its a truly maddening feeling. As i have an energy disorder this makes it all that much harder as the movements burn up what little energy i have. Does anyone know if there is an SSRI less likely to cause akathisia? The zoloft I take works well so im hesitant to change it, but if it means stopping these movements it will be worth it. Im frankly shocked that no other dr mentioned this to me as a possibility as Ive complained about this for many years. I think the neurologist is wrong about it being related to the brain damage as it begun nearly a decade before they saw any damage (about the same time i started the SSRI). Not a single dr mentioned this possibility until last week. Very glad the keppra helps a little at least.
Wow I’m so sorry you’ve gone through that! Glad you’ve now got help with it
I’ve had chronic akathisia nearly 2 years and not even from an antipsychotic. I know people 4, 7, even 10 yrs off medications and still suffering.
You discontinue the offending medications. You do NOT stay on a medication that gives you akathisia just like you do not stay on a medication that gives you tinnitus. The symptoms do not “die down”. At best, they will mask & aggravate the akathisia and allow it to smolder so that when you pull the antipsychotic away, it’s even worse. Maybe even turn it into the chronic monster that has ended 8 of my friends lives.
Thank you for sharing your experience. Do you ever have problems with speech during your episodes? When I get mine I can’t speak and stutter a lot.
I say the word like a billion times and I talk quite fast that’s usually a tell tale sign that I have hypomania
I hope you are doing well are you still taking the medication I had to start mine I’d rather be bipolar then deal with it all day long but I am still dealing with akathisia but it’s getting better I do have windows and I was able to swim again for the first time in four years yesterday. The one that triggered the most akathisia for me was Latuda and Zyprexa but I had tried all of the anti-psychotics and the second generation and every damn one of them sucks easier just to control it with diet and exercise I pray you are healing
Hey, I have an updated video that explains where I’m at with akathisia now if you wanted to take a look at that. That’s great that you were able to swim it’s the little victories I think that bring us joy and help us keep going.
@tyrel no I’m not bipolar we get misdiagnosed as it though. I only have anxiety depression
I got akathisia in the most messed up way possible, I was in the hospital and I was not feeling well and apparently they overdoes me on a medication so I was feeling werid and I ended up feeling suicidal so they ended up taking me to the mental health side of the hospital tell me why they injected me by force bezos 6mg then my sister came and they called them saying I was acting crazy no I wasn't , my mom demanded them to let me go they did they acted stupid and the the next day my body went full akathisia and withdrawal from them injecting me bezos and letting me go home they knew what they were doing , it was like if they left me cold turkey I spent 2 months in pain my family didn't know what I had I ended up researching found out it was akathisia I went to mental hospital they called me a liar and put me on more drugs basically am happy now drug free it was a long healing journey and if i can warn people to not trust hospitals they are pay there to just do what they have to do they don't care about you and the health care systems suck
I’m so sorry it’s such a horrible thing to have!
I’m have akastisia now as we watch this video it is horrible I just want it to go away up pacing back and forth as I watch this
Go back to your doctor and talk to them :) hope the symptoms ease soon
What caused your akathisia?
@@mo87m medication that I was taking
Thank you for making this video I'm struggling so bad 😭 from this it's complete torture did u ever have bad thoughts during it intrusive and irritability
Sorry to hear that you’re struggling. I had lots of thoughts like “this is so painful I can’t deal with it I want to die” it’s really painful in a weird way because it’s so unnerving and the inner unrest you feel is not nice so I get you. Maybe go back to your doctors and tell them :)
I can sit still but when i do the inner tenision feeling goes into overdrive.
It’s horrible I’m so sorry
How did you cure it?
I went to my doctor and they lowered the dose and I’m happy with the medication I take now
This happened to me , has it gone away yet?
Not yet, it’s subsided a bit and is easier to manage but it’s still there. How about yours? Hope it’s not too painful and irritating.
Mine has been up and down , today is a little better but not 100%. I’m praying for both of us.
@@valeriezushin9419 has it gone away yet?
@@thoughtsfromabipolarmindhas it gone now ?
Did you suffer with akathisia for 15 years straight?
Thankfully I haven’t I went to my doctor and they lowered the dose
@@thoughtsfromabipolarmind My akathisia went away after six months, thank god!!!. It was hell on earth and got me worried sick that it was permanent.