Living A Full Life With Muscular Dystrophy
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- Опубликовано: 4 июл 2016
- Mike Klinkhamer is an inspiration, defying many of the stereotypes associated with Muscular Dystrophy.
For more information, visit Muscular Dystophy Canada at www.muscle.ca/
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Развлечения
I lost my 18 year old younger brother,, he was a dmd patient,, i can feel the pain but hats off to your grit and resilience. The void will always be there because he was my favorite person.. I love him alot.. May Almighty bless all of you ❤
this is the first time i look up someone with muscular dystrophy. i have it. im 34. i can still move my arms but cant raise them. i can still move my legs and adjust them. i can transfer from my chair to the toilet by sliding. the thing is, i always kept to myself, especially in school because i always felt that i was an inconvenience to others. i hated the idea of people having to change plans or arrangements because of me. i never knew anyone else with my disability and even in today's time, never looked up others to see how they lived. after high school, out of some miracle, i met a girl. we had a baby together when i was 21. i went to college, got a degree, and worked from home. when i think about my disability then vs now, i was able to do a lot more back then. its just hard looking at the future.
Hello, droopie. You're social situation in high school (and for me continuing on from there) sounds all too familiar. Although I was able to break out from that at some point and even worked as a photographer and artist in a music and art community for many years. I'd still be doing it if I hadn't lost my transportation. I'm 44 now. In a way, I'm a failure because professionally I have thus far fallen way short of my goals. However it's hard to get worked up over it considering the life I could have very easily been stuck with as a dude with MD. BTW I was thought to have had limb girdle MD for most of my life. I'm in a wheelchair, but I'm just as able as I was at 18. I usually live alone when my brother has better luck in his romantic lifie, ha. The point is I had a life such as it was. Loved and lost and had a few thrills and made some memories and all that happy horse. And if I ever get in a position to drive again... Anyway the doctor made me get a DNA test because my limb girdle diagnosis was always tentative for whatever reason. Back in 1979 when I had a muscle biopsy it wasn't conclusive. So I had ths DNA test and never heard back. I don't always make it to the annual doc appointment because I tend to blow it off if I don't need a new chair or a signature for whatever. So three years later after the DNA test, it turns out I have some version of limb girdle (I think) that only like 100 people have had since 1976 -- I have this rare MD. What it means is I'm REALLY lucky and can probably expect good qualty of life for a long time. Much longer than expected bc I expected to be in shit shape by now. But no. Now I have to find a way back to a real life now that 'll be here longer (unless I gets AIDS or something, amirite?).
How is your kid doing? Not to pry but I've never entertained having kids out of fear of the kid having the disadvantages I had. Hope you and your family are well.
Can this be cured by working out ?
@Tgon Mwort You’re not a doctor
@@rdg665 no it’s not atrophy muscles
@Tgon Mwort I have muscular dystrophy, and no there's no cure or magical supplement you can take to fix it. Also with some forms of muscular dystrophy, working out can prolong your muscles strength, but will not stop or reverse the muscle disease from breaking down at a faster pace then the usual person.
Fair play to you Mike. Beautiful music in this video!
Great video Mike! Thanks!
My brother is 15 with muscular Dystrophy.
You’re all loved , you all have a purpose here.
Praying for a miracle cure 🙏
damn im 15, someones brother and have muscular destrophy.
my sister was 24 when she passed away with it
I have muscular dystrophy can we chat each other
I will never forget the day I came across dr Igho channel on RUclips , I will always keep it memorable, thank you doctor for helping me cure my muscle dystrophy & pain completely , and putting a smile on my face , you made me feel more alive like never before, Thank you Dr Igho
@@noontvcenter5855 i also have muscular dystrophy
Thank you so much for sharing and speaking truth!!
You're awesome Mike and a great inspiration! My brother and I both have bmd and are confined to wheelchairs. We both can relate to just wanting to do normal things like going to the coffe shop, retaurant, or pub for a beer. Cheers!
The Daily Brodown same here
I’m sorry
Anyone have any questions I would like to invite you to my channel I also have MD n confined to a chair it sucks but like mike says I’m trying to show n help others like me that we can still have fun go out yeah I understand the pain discomfort depression it took me 3 years n I’m still a work in progress we all r don’t give up life is hard I know but this to shall pass🙏🏼😘💕 hope to meet you guys!
I have Congenital Muscular Dystrophy. I agree with everything you said.
I lost my best friend my cousin to this it a devastating illness.. you are a absolute hero x
sorry for your loss i just lost my nephew he was 35 with 2 beautiful kids the pain is unreal it hurts so bad to know we cant have him back
@@rubypersha5881At what age was he diagnosed with this disease?
How many years did your friend survive?
@@abhishekkushwaha2794probably when he was young like under 10. Beckers dystrophy is often less serious and can appear better ages 5 and 20
I have Md , everyday is a challenge, but you are a inspiration to me 💛
At what age were you diagnosed with this disease?
Tell me first symptom of this disease..
Please
Iam md patient n Allhamdolliha I had 3 kids I also face problem
Ap ko kis age main hui thi@@cookingwithumberkhan1520
i have a friend who's currently in the hospital diagnosed with md. he can't swallow or chew food and walk because the muscles on his body atrophied at the age of 70 and on a feeding tube. he needs a tracheostomy to aid his breathing. next step for him will be in a long term care facility with assistance and a electric wheelchair. his quality of life will never be normal again because time is not on his side due to his age. just watching mike klinkhamer get around is an inspiration but not all md patients will have that chance and confined. just be thankful for what you have and the life with what you got during covid times.
what is the age of our friends?
Sure Mike you have to enjoy yourself. Well said.
How can anyone not like this video?
One could dislike the fact that this disease exists. Don't sue rating like this, sometimes people just want to dislike something negative on a video to present their disagreement, they are not disliking the video itself, which could cause confusion in this case.
It is really horrible
That pain is known to those who suffer it
At 26 bud and still standing, but really dont know if I can do a wheel chair soon I work in a factory, stretch everyday, and ride my sport quad, also fish and love sports. Not giving up is my only motivation right now.
@Tgon Mwort so you gonna believe a farmer and ignore scientific facts? Lol ok
@Erwingaming39 Wow that's so inspirational! I'm the same age as you, 26 (: and yes I have muscular dystrophy too. I can still walk, but I fall down a lot and it takes a lot out of me. I used to run, be an outdoorsy type, but now I struggle to even stand up from chairs or a couch. Now I fight with chronic depression bc of my MD, I was wondering if you do too. I feel so alone sometimes, and like a real burden. I wish I could just be my old adventurous self and have normal working legs again :/
@Tgon Mwort faulty dystrophin gene what are u on about not genetic. U dont know shit
Chat to me in any social media
Hey people , i have MD too and iam 23 year old i can walk but i need someone to be with me incase if i fail, im doing mbbs in 3rd year , I don’t have friends and i use to sit alone most of time, this is leading me to depression and things are getting out of my way now
i am also suffering from muscular dysrophy ..my age is 31
2 of my cousins were diagnosed with this disease. One of them is 40 and the other one is 34 or so..
What was the first symptoms? Please share 😢
I am a muscular dystrophy patient and I also had ozone therapy but I am better than this but I cannot walk.
I will never forget the day I came across dr Igho channel on RUclips , I will always keep it memorable, thank you doctor for helping me cure my muscle dystrophy & pain completely , and putting a smile on my face , you made me feel more alive like never before, Thank you Dr Igho
I have the same disease (Im 13)
My brother passed away on march 3rd 2020..he had Becker's muscular dystrophy..he passed away so young..he was 32 years old. I wish he was still here..he lived hes life to the fullest.but why did he pass away so young if I see people are older them him..
@Dinesh Singh ..thank you for your kind words. Hope you and your family is safe.
Jenna Gast Thank you Jenna. I hope he’s finally walking around and playing with he’s drum set in heaven too. Hope your family is safe and well.
Well looks like I’m fucking going to die young
@@jantone7 how he's passed away ? Can you explain me please
@@jantone7 i also have muscular dystrophy
Meditation can be better than acupressure and yoga.
I have muscular dystrophy too and I am 38
If you are ready to spare about 5 hrs a day for one month then contact me on WhatsApp 91 9322303271.
Within a month you will find relief in pain and improvement in body movement
I have muscular dystrophy too and I'm 23
@@relaxing.sunset-music please contact me on whatsapp 91 9322 30327 1
I have same disease . I am 35 from india
Iam also suffering from muscular dystrophy. My age 28 from India
If you are ready to spare about 5 hrs a day for one month then contact me on WhatsApp 91 9322303271.
Within a month you will find relief in pain and improvement in body movement
I am 14
Ur a ermayzing man a inspiraysern 2 meey
To anyone who finds my comment: please eat a high fiber diet, drink green tea, use Creatine and use ashwaganda Herb, Blessed Be.
Me 20 suffering from muscular dystrophy
Yes
I have dmd too and im 31
Its not impossible if god is there......
I know a guy, who has DMD too, he is 39!
Lastkum munai
I couldn’t stay 2 months not able to perceive or taste anything and with ringing on my both ears…I quickly used a herbal supplements from Dr Madida and I got my lost sense of smell, loss of taste back and all the buzzing, disturbing sounds inside my ears all stopped.
Party
😭😭😭😭😭😭😭😭i have Muscular dystrophy now I'm 28 years old from India
If you are ready to spare about 5 hrs a day for one month then contact me on WhatsApp 91 9322303271.
Within a month you will find relief in pain and improvement in body movement
Look up dr joel wallach and his research with the mineral SELENIUM, god bless.
😘
💋💋
I am also suffering from muscular distrophy. And my age is 26
If you are ready to spare about 5 hrs a day for one month then contact me on WhatsApp 91 9322303271.
Within a month you will find relief in pain and improvement in body movement