FSH Muscular Dystrophy Documentary
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- Опубликовано: 29 сен 2024
- Listen to the stories of people being diagnosed with FSHD and help us to raise more money for research into the disease. Visit our website to donate: www.fshdglobal.....
Thank you for your ongoing support of the FSHD Global Research Foundation. This support is making a difference to the lives of people affected by the disease in Australia and around the world.
This is so heartbreaking, may God granted the girl with this kind of disease a place in heaven with her family members who took care of her endlessly in their life.
Bummer that they are in such a bad way. Crikey!
My son has muscle dystrophy plz help my son 🙏🙏🙏🙏🙏
I have FSH and sometimes I think that they should legalize assisted suicide for people who have muscular dystrophy. When I was first diagnosed in 2016 my mom told me that the suicide rate for people who have this is actually very high-end now that were in 2021 it has gotten worse than it was a few years ago even. Sometimes I just don't want to live like this anymore. I'm tired of the comments and the stares. I'm tired of not being able to do things any normal person can do.
I am currently in Natalie's position and have chosen not to find out. I know I have it as most my Dad's side have it. Our strain progresses late 20's to early 30's. As a former athelete, body builder and martial artist this is really hard to come to terms with. My once fitness model physique is dwindling especially in the pectoral region. My partner is currently pregnant and watching this video has made me cry . Our strain is less aggressive and appears similiar to Bill's.
Are your muscles very sore and tired at the beginning?
Hi not sure if anybody answered u,but yes they are sore
As other people have said it's different for everybody but for me, in early childhood I was fine. Around 12-13 is when the pain began for me.
@@chelseaf.3352 Meet the Traditional healer who cured me from Muscular Dystrophy Disease, he can cure you also. you can also add him on Whatsapp.
I was suffering from Muscular Dystrophy Disease for years. i suffered till i meet Dr EHI ORIRI the great. +233 20 280 0522 or Email him on drehioriri@gmail.com.
@@cureforheartdiseasesandoth4989 get the fuck off of here. There is no cure for muscular dystrophy. Stop plugging your bullshit. There's a special place in hell for people like you. Fuck all the way off.
Yes. I started having trouble walking in my 30s. It felt like one side of my body didn't work well with the other side of my body. It was odd because I thought walking was so easy in my 20s.
I have Fshd 49 yr old Man, haven't had any physical limitations but within the last year I get muscle pain sometimes and I slowed down on heavy lifting and working out. Im on a mission to lose about 70lbs to get this excessive weight off my joints. I pray for everyone who is effected by this terrible disease 😢 🙏🏾
my aunt and my mom are similar to you and are both mostly unaffected at 50 and 60. my grandad was a teen onset as well as a nephew of his though.
What kind of answers are you looking for ? I have FSHD as well. Maybe I can help ?
Same her feel free to ask. I feel like a pro of fshd. :(
I just found out I have fshd I pray my child dosnt
@Tgon Mwort MD is a blanket term for many types of Dystrophies - FSHD, Duchenne, Becker, Limb Girdle. What you’re talking about is Nutritional Myopathy. FSHD is autosomal dominant which means it can be inherited and is congenital. The treatment for this is NOT selenium.
I am one of Monica's carers. She is just amazing. She has been diagnosed with another far serious condition and her outlook and attitude is phenomenal. She is an amazing artist and so wise. We all adore her. If I was half the woman Monica is I would be happy.
I like to inform you that we got good results in muscular dystrophy cases for further information call me 919428056321 or what'sApp 919322303271 you mail also kantilalbhanushali58@gmail.com
(to the most grievously afflicted in this video) Like, even though your muscles are hosed, you're awesome. Wishing you the best; never give up. You go, girl!
Wow! It's amazing to watch this and see people that look, walk and talk like me... It's also sad :/
MsAnnoyedmofo a. Ttt
I had bmd
So true. Im like i thought i did it my way but they walk and talk like me crazy. I HATE THIS ILLNESS! FSHD UR THE DEVIL!
Monica is an angel
In fact Bill could be mistaken for a member of our family. But perhaps that is degenerative facial tone? A million and one questions. Nowhere can I find answers! Anyone? Forums?
I have an ayurvedik medicine that is work for reduse CPK count
sure you do.... how about you give it free to people
@@demon45ize no
@@demon45ize Meet the Traditional healer who cured me from Muscular Dystrophy Disease, he can cure you also. you can also add him on Whatsapp.
I was suffering from Muscular Dystrophy Disease for years. i suffered till i meet Dr EHI ORIRI the great. +233 20 280 0522 or Email him on drehioriri@gmail.com.
ms is due to a lack of selinium in the body is very curable!
MS is far different to "MD". I think you're mistaken them