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@@VkVk-kx2jw wow! Thanks for sharing, your dad sounds like a legend after all he’s been through. So for b12 I get a shot once a month. You can do sublingual everyday, but I prefer to do one shot once a month. From my bloodwork, I have more of a problem with iron then I do with calcium. Apparently I took too many tums and my calcium was super high, so I cut tums out. So if you dad is struggling with calcium, maybe try a supplement and see what the bloodwork shows. Give your dad my best wishes ❤️

@Dangarangg Thank you for the advice steve! I've shared this video with my father and he is so happy for you! Thank you for taking your time out to spread awareness !

For sure the worst part! Be we got this! 👊🏽👊🏽👊🏽

❤

@@moonpatrol712 this is so awesome! You got this!!!!

Hello how are you now brother

Hello bro how are you Now??

Thank you so much!!

@@sofeabian1372 thank you!🙏🏽

@@BikeFreak73 thanks for the feedback! I’ll work on that! Thanks for watching 🙏🏽

@@K9sf lol thanks! Been doing well just super busy with life, which is a great thing! Hope all is well!

@@BeetinGenes thank you! And thanks for what you do!

@@gretavanpuyvelde7048 wow brother! You’ve been through a lot, but I’m so glad to hear about no spread! 🙏🏽🙏🏽🙏🏽

It’s been 10 years in March and doing fine! Thanks for asking brother!

@@Dangarangg omg you are fine??? You live without stomach I can't believe 😲😲😲😲 brother I had anterior vagotomy After I got many symptoms I think I'm soon die 😭😭😭😭

@@arupdebbarma4420 I’m so sorry to hear of your struggles, how long ago was your operation?

@@Dangarangg only 6 month brother But I want to know what type did you surgery total gastrotomy or partial Gastrotomy

Brother please tell me what type did you surgery total gastrotomy or partial gastrotomy

Hey brother! Great to connect with you. I’m so sorry about your GIST. I had Hereditary Diffuse Gastric Cancer (HDGC). I’m considered cancer free now but have to get regular check scans. You got this brother, one day at a time. Just enjoy life on the good days and be gracious on yourself on the bad days. Much love and blessings to you! 🙏🏽

Hey brother, I’m so sorry it took so long to get back to you. I’m now almost 10 years out and I’m pretty consistently 175 lbs if I eat well. When I busy I lose a tone of weight really fast. I definitely have to limit my carbs and sugar because it spikes my blood sugar and then insulin kicks in and drops my blood sugar. It makes me yo-yo up and down all day. I try to limit carbs, but mix in mostly protein, fruits and veggies. Hope that helps! Much love brother!

Tumne bhi gastrotomy karwa hain kiya

Hey Metal Dave, I’m so sorry to hear about what you have gone through with your aunt and your mom. CDH1 was brutal on my family as well. When my sister died, I became an athiest. It took me a while, one step at a time to realize all the various ways God was with me even when I didn’t realize it. My faith has been a huge part of my journey and I realize everyone has their own. I’d encourage you to find someone you trust to just bounce your ideas off of and help you process. As for CDH1, get tested. The hardest part is getting down to your geneticist. As someone who grew up without a dad because of CDH1, I knew it was going to take courage, but it helped knowing it was going to be for my own kids. You got this brother. Let me know if I can encourage you some how! 👊🏽👊🏽👊🏽👊🏽👊🏽🙏🏽🙏🏽🙏🏽🙏🏽

@@Dangarangg thanks for the advice. i appreciate it

65?!?! That’s wild!! I loved this descent, it’s been too long.

Hi Ivan! sorry it took so long to get back to you! I actually snack all day, and then I eat two larger meals. I definitely feel hunger, but it wasn't the same as when I had a stomach. I don't get the "hunger pains", but I do know when I feel like I haven't had enough energy. Thanks for asking!

@@Dangarangg can you drink while eating your meal after 6 years ?

@@nathanlashley6620 yes actually! Sometimes it’s a bit much and I’ll get dumping, but it’s pretty rare these days

I believe it was vegetable oil for a higher smoke point

I definitely still struggle with nausea, but over the years everything has really mellowed out and I've been able to figure out my diet so that it does not effect me as much.

Hi brother! I'm so sorry your mom is going through this, I'm praying for her now! For me after surgery the key was figuring out my nutrition first and foremost. I needed to get a good team of doctors consisting of nutritionists an endocrinologist and a primary care doctor to track along with me. Take it slow and figure out how food effects your body and they eat what you can when you can. Avoid heavy carbohydrates the beginning to regulate your blood sugar.

Thank you so much! I’m working on a video I’ll be updating people soon!

Hi! Actually what I find is a high carb meal too late in the day gives me a ton of reflux

@@Dangarangg thank you, dear!

How are you now??

Hi! First of all, I am so sorry to hear about this journey that you are just beginning. There are so many questions I had to journey through. I think right off the bat, I would get familiar with the options with the surgeon. Will your surgery be fully open (like mine) or will it be laparoscopic? Anecdotally from online communities, it seems like those who had a TG laparoscopically had better outcomes than those with my form of surgery. Secondly, I would really mentally prepare that you will be losing a significant amount of weight, the hope however, is that you will regain and learn a new normal. Let's start there - much love. Grace to you.

how has it gone so far?

Hey! Thanks for the question - It took me a long time to eat red meat again (I would say about 2 years), but strangely enough, i discovered, the more rare the red meat, the easier it was to eat. When it was over cooked, things would get stuck and it would cause a tone of pain. If I didn't chew enough it would always come back up as well. So for me what I found: overcooked, dry, undigestible foods like kale, gave me a lot of issues. Rare, juicy, easily digestible foods + a ton of chewing, makes it easier. Once my body started to adapt to my new digestive system, it seems to handle stuff well. The only real problem I have is with carbohydrates and sugars which really mess me up. Hope it helps! let me know if you discover what works for you. Best wishes! God bless you my friend.

@@Dangarangg for sweetners, try stevia. It's a better alternative to sugars. It has zero calories so it won't spike up your blood sugar. As for me, I think I'm about to lose my stomach. It's been in too much pain lately. Seems like something is really wrong with it.

@@cesiumion Thanks! I've started switching to stevia, I like that it's natural. Has a bit of a taste, but I think I'm getting used to it. Keep me posted on whats happening. Prayers for you!

Hey Brian! So sorry to hear about your journey, but I am thankful you shared it with me! I struggled to gain weight for the first 3 years, now I am able to eat really normally. The first year I remember jumping up and high giving my wife when I broke 1200 calories in a day, but that was when I was at my worst at 148-155 lbs. My body did not like being that thin, but now at 170 it took about 5 years, but it's leveled out. See if you can talk to an a bariatrics doctor and an endocrinologist, they were the most helpful to me.

@@Dangarangg Appreciate the follow up. i got of kind of easy at first they thought I had straight up stomach and Esophagus Cancer turns out it was Gist Tumor still cancerous but not as bad as what you went thru. they talk more then half my stomach and the Esophagus valve. I ignored alot of things i should not have like throwing up blood and others thank God for my friends at work who noticed things were not right with me and forced me to make a Drt apt when I finally went my red blood cell count was so low they were shocked. But good news is tumor removed. I was thin to begin with probably around 150 before i got sick and down to 130 before the surgery. Not sure what I am at now have not gone to dr in a while kind of used Covid as a excuse not go, i know still had a few iron infusions i needed to finish. Sorry for rambling on for long, last question for now do start you day with protein drinks ? i know that is one thing I need more of but i got back in the habit right away of working 12-15 hours a day and do not take the time to eat properly. i more than thank you for reaching out to me and may God bless you and that you and those around you stay healthy.

@@briandelmore7188 wow! I'm glad you have people who got your back! That's a blessing in an of itself. Yea, for sure you don't sound like you had as much wiggle room as I did around weight. I've always been a big dude and started my cancer journey at 217. I definitely would prioritize nutrition, then work... in fact, you might even maximize your work if you can focus on nutrition. I drank a lot of protein shakes in the beginning because it was easier for me to get down, but now I've really tried to stick to whole foods because I don't want to get too heavy in unhealthy ways. For me my go to was a protein powder (iso pure zero sugar) with coconut milk, splash of heavy whipping cream, banana, peanut butter. I could do a video of some different blended treats I do if you think that would be helpful?

That's interesting! My guess is that it has to do with my oven temperatures or if I'm using a porceline/ceramic vs pyrex. I find if I use a longer dish with more shallow cream, I get less water. Maybe I'll do a side by side and see if the vessel makes a difference at all. Let me know if you try a different baking dish and what happens

@@Dangarangg thanks for responding. I used 9 by 13 inch Pyrex and used about 1 litre of whipping cream at 175 Fahrenheit for 10 hours. Turned darker and about 200 gr. Of liquid milk under cream. I have the same pie dish, I will try it next time. You actually got less milk left at the bottom of your cream but please tell me why you used sugar and salt and how much cream did you put in your dish. Thanks

hahahaha thanks!

Wow! Thanks for sharing! I highly recommend a bicycle it’s so fun and is an incredible way to explore. Coughing up that yellow liquid is like getting lava into your lungs! But you and I know what it’s like, keep it up my man! Maybe one day we can do a ride together 👊🏽

How have you been gaining weight? Any tips are welcome!!

@@oyitaable Peanut butter or any nut butter. High calorie smoothies. Low sugar and low carbohydrates. My wife stocked up on Trader Joe’s Banana & Almond butter protein smoothie with coconut water, pea protein. It’s 320 calories per serving. Total sugar 12 grams. Total carbs 19 g. I drink 1/2 servings at a time with a spoonful of peanut butter. I get reflux from a popular meal replacement drink I won’t mention. Also don’t skip meals. I ate lots of fattening food the last 2 months. French fries, McDonalds and other fast foods. Not healthy, but I gained a few pounds. Good luck.

@@K9sf @oyitaable everything Mr. Roberts said here, eat what you can when you can. I leveled out, but it took me a few years to get to where I am today. From the online community it seems to take about 3-4 years.

Hi Roseline! I'm sorry I missed this message and by now your dad has gone back to more of a normal life. It took me a really long time to get back to a normal diet. I'm now about 9 years out and things have gone to a new normal and I'm eating enough to maintain weight.

Hi Muhammed! I am so sorry to hear about your struggle after surgery. I ended up losing about 102 kg to 67 kg about a year after surgery and it took me 3 years to get back up to my average which is 77 kg. My best advice is to see a nutritionist, but you might have to consider some liquid nutritional supplements. I know it was really hard for me in the first 12 months. Are you following up with a doctor?

I actually don't feel much of a difference physically outside of how different nutrition makes me feel.

Wow, brother I am so so sorry to hear about your journey over the past 9 years, the fact that you continue to keep moving forward is inspiring for me. Unfortunately, my situation without a stomach because of stomach cancer sounds a little but different, but for me the most helpful information has been through No Stomach for Cancer who was able to point me to various symposiums that I have attended for gastric cancers. While at these symposiums I have been able to talk to the leading oncologists and surgeons for gastric cancer and that has been really helpful. I don't know if these kinds of symposiums would be helpful or if they are available in your area, but it was a good way for me to just learn more about how my surgery has affected my body. Much love to you and I hope you keep moving forward. - Steve

@@Dangarangg Hello Steve and thank you very much for taking the time to answer my message, I appreciate your information very much. Now I am not in the states but soon I will return to Los Angeles area, and I was asking you all this, because I think I could have your same diet , since I do not have a stomach as such, and all the food falls into the intestine and it does all the work, which is what causes me all that series of symptoms. As I saw in the video, you are having a normal breakfast with your boss such as bacon, eggs, coffee, etc., and I think this does not cause you any more discomfort, so I thought that they had probably made you some kind of reservoir or bag in your intestine to be able to retain or digest food, so I thought well it may be the same case since my case is as if I did not have a stomach like you, since I cannot have breakfast something like I see in your video, because It causes me great discomfort, I always appreciate your time, God bless you always Steve.

hey thanks! you should see the inside of the drawers where I stuffed everything before the video hahahahaha! Thanks man!

This was true at the beginning, I would get dumping syndrome, but today it's not a problem at all. If I eat something that absorbs too much water - like pasta, bread, rice, etc... it causes a lot of discomfort, so I try to avoid it. Hope that helps!

awesome because I am person without stomach like you but I am recovering it

God bless you I am Christian from the church

@@alexanderzevallos8019 Ahhhh brother!!! Blessings on you as you journey forward!

Wow! Thanks so much for sharing your story, and I am so sorry to hear about your uncle! I'm am so sorry that you are having to walk through it. He's lucky to have someone like you in his corner... it makes a huge difference! Keep me posted on how he is doing and let me know if you have any questions about it - but go to nostomachforcancer.org, you may find some more helpful info there. Peace my brother!

Thanks for the question! It really just happened pretty naturally around year 3. For about 3 years I hovered between 150-160 and now I''ve been closer to 175 lbs. Naturally the food pocket that they made out of my doudenum began to stretch out and I was able too eat more food. Initially, really high fat foods - peanut butters, protein shakes... but then I would have a lot of food anxiety, so I stopped tracking and just did the best I could and seemed to do way better. Hope this helped!

Do you ever get nausea?

Hey Kaori; can you elaborate about your starch note? I would love to know🙏🏻

Thank you!! And we really take coffee waaaaay too seriously 🤣. For sure I’m going to check out those resources out! Thank you thank you!!!

oyitaable best way is to watch fork over knives, what the health than read starch solution which I find at library... how not to die book is great. I eat bowl of pasta when u crave it no regrets 😆 but I follow whole food plant based diet. 😀

@@kaoritabei800 I'll have to check these out

Hello from ARGENTINA! Wow! I'm humbled to be a tiny part of your journey. Congratulations on 5 years my friend! I hope you are doing well. I hope one day to visit you when I can travel to Argentina. It's on my top 10 list of countries to visit! Best wishes my friend!