💜  Alfie’s Epilepsy Channel  💜
💜  Alfie’s Epilepsy Channel  💜
  • Видео 42
  • Просмотров 3 098 689
Focal seizure (27/09/24)
This is a prime example of why seizures can be mistaken for being intoxicated or on certain substances i lost consciousness in this seizure but look fully aware and conscious then when i come around i get showed that and that’s mainly why I’m uploading these type of videos to show people why you shouldn’t always judge a book by the cover and to help people that have the same feelings and feel horrible about it happening in public and just so everyone knows if anyone that is going through this don’t hesitate to comment! Nobody should go through this alone it’s horrible!!
I suffer with temporal lobe epilepsy and I’m just putting them up as some support and awareness 💜💜
Any questions just lea...
Просмотров: 3 699

Видео

My worst tonic clonic seizure yet (27/09/24)
Просмотров 9 тыс.День назад
I suffer with temporal lobe epilepsy and I’m just putting them up as some support and awareness 💜💜 Any questions just leave them in the comments and I’ll get to them in the next update video. Can’t thank you all enough for the support it means the world 💜💜 #epilepsy #mentalhealthmatters #seizures
Holiday Here We Go!😁 Update Video (19/08/24)
Просмотров 1,6 тыс.Месяц назад
Finally we all get a break which is much deserved by everyone who helps me fight through this, its about time my mum had some time to worry and think about herself for a change 😊💯 I suffer with temporal lobe epilepsy and I’m just putting them up as some support and awareness 💜💜 Any questions just leave them in the comments and I’ll get to them in the next update video. Can’t thank you all enoug...
Update Video (17/08/24) Going on holiday ☀️and Showing my first tattoos!! 🎨
Просмотров 1,3 тыс.Месяц назад
I suffer with temporal lobe epilepsy and I’m just putting them up as some support and awareness 💜💜 Any questions just leave them in the comments and I’ll get to them in the next update video. Can’t thank you all enough for the support it means the world 💜💜 #epilepsy #seizures #mentalhealthmatters
Focal/partial seizure (12/08/24)
Просмотров 6 тыс.2 месяца назад
This is a prime example of why seizures can be mistaken for being intoxicated or on certain substances i lost consciousness in this seizure but look fully aware and conscious then when i come around i get showed that and that’s mainly why I’m uploading these type of videos to show people why you shouldn’t always judge a book by the cover and to help people that have the same feelings and feel h...
Bad tonic clonic seizure (11/08/24)
Просмотров 16 тыс.2 месяца назад
This one happened in the middle of the night whilst I was asleep I suffer with temporal lobe epilepsy and I’m just putting them up as some support and awareness 💜💜 Any questions just leave them in the comments and I’ll get to them in the next update video. Can’t thank you all enough for the support it means the world 💜💜 #epilepsy #seizures #mentalhealthmatters
Update video, New start!! (26/05/24)
Просмотров 5 тыс.4 месяца назад
Finally they’ve actually changed something to see if it works and not only that im feeling so much better with my anxiety as they have started on citalopram and you can probably see the difference in the video hardly any stuttering and fidgeting with things whilst talking or forgetting what im saying just hope everyone else in the same position get the help they need and deserve 😁💜💙😁 I suffer w...
Update Video (16/05/24)
Просмотров 2,7 тыс.4 месяца назад
I suffer with temporal lobe epilepsy and I’m just putting them up as some support and awareness 💜💜 Any questions just leave them in the comments and I’ll get to them in the next update video. Can’t thank you all enough for the support it means the world 💜💜 #epilepsy #seizures #mentalhealthmatters I also make music let me know what you think 🙂💯🔊 youtube.com/@DJ.ShawZzZ?si=Tx8ynIAU72Onzn1s
Aura and Complex Partial Seizure almost full one (07/04/24)
Просмотров 14 тыс.6 месяцев назад
This is a prime example of why seizures can be mistaken for being intoxicated or on certain substances i lost consciousness in this seizure but look fully aware and conscious then when i come around i get showed that and that’s mainly why I’m uploading these type of videos to show people why you shouldn’t always judge a book by the cover and to help people that have the same feelings and feel h...
My worst grand mal seizure (07/04/24)
Просмотров 45 тыс.6 месяцев назад
The end part of this video is a prime example of why seizures can be mistaken for being intoxicated or on certain substances and that’s mainly why I’m uploading these type of videos to show people why you shouldn’t always judge a book by the cover and to help people that have the same feelings and feel horrible about it happening in public and just so everyone knows if anyone that is going thro...
Update video (07/03/24)
Просмотров 6 тыс.7 месяцев назад
My music channel: youtube.com/@DJ.ShawZzZ?si=SX_zLJkPY3Pjfu6k I can’t thank you all enough for the support it means the world. It’s all been up and down at the minute really lost another job for the epilepsy, constantly feeling down and having thoughts. Everything has to go wrong for me It’s literally a never ending struggle and wouldn’t want anyone to go through this alone 💜💜 Any questions or ...
Focal Seizure nearly full one (06/02/24)
Просмотров 14 тыс.8 месяцев назад
This is a prime example of why seizures can be mistaken for being intoxicated or on certain substances and that’s mainly why I’m uploading these type of videos to show people why you shouldn’t always judge a book by the cover and to help people that have the same feelings and feel horrible about it happening in public and just so everyone knows if anyone that is going through this don’t hesitat...
Update video (06/02/24)
Просмотров 4,8 тыс.8 месяцев назад
I suffer with temporal lobe epilepsy and I’m just putting them up as some support and awareness 💜💜 Any questions just leave them in the comments and I’ll get to them in the next update video. Can’t thank you all enough for the support it means the world 💜 #epilepsy #seizures #mentalhealthmatters
Focal seizure at work (Aura) (06/02/24)
Просмотров 15 тыс.8 месяцев назад
I suffer with temporal lobe epilepsy and I’m just putting them up as some support and awareness 💜💜 Any questions just leave them in the comments and I’ll get to them in the next update video. Can’t thank you all enough for the support it means the world 💜
Another Bad Tonic Clonic Seizure (29/01/24)
Просмотров 74 тыс.8 месяцев назад
I suffer with temporal lobe epilepsy and I’m just putting them up as some support and awareness 💜💜 Any questions just leave them in the comments and I’ll get to them in the next update video. Can’t thank you all enough for the support it means the world 💜 #epilepsy #seizures #mentalhealthmatters
Really Bad Tonic Clonic Seizure (29/01/24)
Просмотров 34 тыс.8 месяцев назад
Really Bad Tonic Clonic Seizure (29/01/24)
Focal Seizure (Aura) (29/01/24)
Просмотров 10 тыс.8 месяцев назад
Focal Seizure (Aura) (29/01/24)
Really Bad Grand Mal Seizure (18/12/23)
Просмотров 75 тыс.9 месяцев назад
Really Bad Grand Mal Seizure (18/12/23)
Aura and Partial Seizure (9/12/23)
Просмотров 21 тыс.10 месяцев назад
Aura and Partial Seizure (9/12/23)
Quick Update Video (20/11/23)
Просмотров 4,6 тыс.10 месяцев назад
Quick Update Video (20/11/23)
Tonic clonic seizure (1/11/23)
Просмотров 20 тыс.11 месяцев назад
Tonic clonic seizure (1/11/23)
Focal Seizure (09/10/23)
Просмотров 11 тыс.Год назад
Focal Seizure (09/10/23)
Another update (29/08/23)
Просмотров 5 тыс.Год назад
Another update (29/08/23)
New Update Video (Explaining First Seizure/Why I’ve Not Uploaded In A While)
Просмотров 6 тыс.Год назад
New Update Video (Explaining First Seizure/Why I’ve Not Uploaded In A While)
Another Update Video (23/02/23)
Просмотров 7 тыс.Год назад
Another Update Video (23/02/23)
How My Life’s Going (02/02/23)
Просмотров 6 тыс.Год назад
How My Life’s Going (02/02/23)
Focal seizure (23/01/23)
Просмотров 35 тыс.Год назад
Focal seizure (23/01/23)
My First Update Video (Introduction)
Просмотров 9 тыс.Год назад
My First Update Video (Introduction)
Another bad tonic clonic seizure - 24/12/2022
Просмотров 164 тыс.Год назад
Another bad tonic clonic seizure - 24/12/2022
Bad tonic clonic seizure - 24/12/2022
Просмотров 144 тыс.Год назад
Bad tonic clonic seizure - 24/12/2022

Комментарии

  • @СергейГетьманов-б7щ

    Али хранит тебя бог наш Иисус Христос

  • @romaine012
    @romaine012 День назад

    Heartbreaking to watch! Stay well ♥️

  • @Jen999
    @Jen999 2 дня назад

    Understand we do how hard it is to face each day.. not knowing what will happen… Our hearts break with the knowing of it… Yet the knowing that your beautiful music gives you solace and peace.. with the making of it.. Gives us hope for you.. that you will make it thru each day.. Our hero you are Alfie.. look up to you we do..💜💜 Our prayers and our hugs for you .. never ending they are..🙏🤗 We love .you.. Today.. tomorrow.. forever💜💜 Love you we do..💜💜 William and Jen 💜💙🌱🌹✨

  • @Jen999
    @Jen999 2 дня назад

    Alfie.. whenever we run we think of you.. 💜 However you are.. whatever you do.. our hearts are there too💜💙 💜 In life some we meet.. we cannot imagine being in this awful world without them..💜 Alfie.. you are one of these precious few💜 Please continue making your beautiful music, dear friend💜 Please continue your awesome fight against this ruthless foe, beautiful warrior💜💜 This world we live in is hard.. the paths we must walk treacherous and steep 💔🖤 Our way is made better.. because you are here too💜 Our life is made brighter.. because of knowing you 💜 Thank you for sharing your life with us Alfie.. thank you for caring💜💜 We love you💜 Slan mo charaid William and Jen 💜💙🌱🌹✨

  • @normacamposshute3134
    @normacamposshute3134 3 дня назад

    I have a fried who has grandmather seizure she has 2-3 times a day of them 😢

  • @drakedesjardins6001
    @drakedesjardins6001 3 дня назад

    I just saw this video. It makes me sad that he has this condition. Sending prayers his way. Hope he feels better after his seizures. Prayers and positive vibes.❤❤❤

    • @Jen999
      @Jen999 3 дня назад

      Thank you ever so much for your kind words and your prayers.. so much appreciated they are.. epilepsy is a sad lonely and painful road to walk.. as all of those afflicted know too well.. to know there are those like you you care brightens that road .. God Bless you for caring.. 🙏💜 From his friends William and Jen 💜💙🌱🌹🦋

  • @TaraOHare
    @TaraOHare 4 дня назад

    Sent from the devil himself

  • @SadoqatNorova-jn6rd
    @SadoqatNorova-jn6rd 4 дня назад

    Вай далбайоп пачимо смотрела ны памагають темболы женщина господи я смотрит хочу помогать снимать видео зачем-то надо будет помогать больжимой

  • @michellesaenz9325
    @michellesaenz9325 5 дней назад

    Yea I have those kind also plus the ones you look like your looking out of space

  • @Jen999
    @Jen999 5 дней назад

    We think of you each day Alfie.. and we are amazed at how well you handle dealing with epilepsy 💜 My husband William suffered from this from premature birth.. which the neurologist said triggered his nocturnal tonic clonic epilepsy.. which was also resistant to meds and seizures ran over 5 minutes and in clusters.. We were often asked the question.. is it easier to deal with epilepsy if you develop it as a child.. a teen.. or older? From our experience we would have to say.. no matter what age you get it.. epilepsy is hell..😭💔🖤 That said.. since William had always had epilepsy.. he was used to it., knew what to do.. pretty much what to expect.. it was dreadfully hard to grow up with this.. and finding me.. who loved him dearly and accepted him as he was.. and wanted to fight this with him.. made a huge difference in his life..💜💙🦋 Even so.. having talked to many children and young teens.. upon whom epilepsy hits like a lightening strike out of a clear blue sky.. we think this is far, far worse than being born with it.. Because their life changes completely.. without warning.. and they face fear they cannot understand.. and worse.. there is no one to talk to about it.. and they feel so alone and scared..😭💔 Just the way it happened to you.. and that is why we admire you and are so grateful to you.. That you cared about others who suffered that awful pain and fear.. so you did something about it..💜💜 You set up this channel.. you put videos of your own suffering out there.. so others would not feel alone.. What you did.. and what you continue to do.. means the world Alfie.. there are no words to thank you enough.. Each time we watch your heartbreaking seizure videos.. each time we watch your courageous updates.. there are so many facing this for the first time.. who are helped..💜💜 And there are also grateful parents and caregivers and friends.. who watch someone else going thru what their own loved one is suffering.. and THEY feel better knowing they are not alone either 💜 What you do matters Alfie.. to all who watch.. And that is the reason we call you our hero.. because you are 💜💜💜 We love you Alfie 💜💜 William and Jen 💜💙🌱🌹🙏

  • @GRAND_MOBILE-d7b
    @GRAND_MOBILE-d7b 7 дней назад

    Оллохим узинг шипо бергн ❤🤲🤲❤билип билми килган гунохларини узинг кечиргн. ❤🤲🤲🤲❤

  • @bunnygaffney2765
    @bunnygaffney2765 7 дней назад

    Alfie I hope your doing better. I had something like this when I was 35. After 2 yrs they discovered I was being poisoned with mercury.

  • @richardanderson-gj8wr
    @richardanderson-gj8wr 7 дней назад

    Any updates awesome kind enduring polite positive amazing young man. Alfie i pray your recovering well buddy

    • @alfiesepilepsychannel
      @alfiesepilepsychannel 7 дней назад

      Will be doing an update video this week sometime explaining more of how I am and thank you for your support 💜💜

    • @Jen999
      @Jen999 7 дней назад

      @@alfiesepilepsychannel We are so thankful you got thru this last one.. we appreciate your updates Alfie.. wish there was more we could do to help.. we love you and want for you freedom from these awful seizures.. we send you hope and love 💜💜 William and Jen

    • @richardanderson-gj8wr
      @richardanderson-gj8wr 7 дней назад

      @@alfiesepilepsychannel no problem awesome kind amazing friendly enduring young man Alfie.

  • @Jen999
    @Jen999 7 дней назад

    One of your worst seizures ever, this is.. for us who went thru this.. breaks our hearts to watch..💔💔💜 Because we feel the pain.. we taste the fear.. we remember the shifting sands of uncertainty you must walk upon.. about when the next one will come.. These videos have brought you close to us.. especially us who suffer from same..💜 Even as you lie there unaware as the seizure progressed.. we know how hard you are fighting it..💜 And when it is over.. there is an expression on your face as you sleep.. of the utmost courage and strength.. You have won this battle.. and determined you are to fight again and again.. until you win the war💜 You have the support.. and the prayers.. You have the hope.. and the love.. Of all of us on this channel.. who love you and want you to win.. with all our hearts💜💜 Many people describe a hero as someone who is strong or brave or courageous.. yet there is more than that.. A true hero is someone who selflessly acts for the good of others .. which is what you do.. making this channel.. putting your videos out there.. telling others they are not alone.. that you are there for them..💜💜 That’s what a hero is Alfie.. and you.. are ours.. our hero.. We love you 💜 William and Jen 💜💙🌱🌹✨

  • @Jen999
    @Jen999 7 дней назад

    Hello Alfie.. this video came up on our feed as we were getting ready for a run.. Thought we’d check in with you.. 💜💜 Watching you reminds us of what we went thru.. knowing first hand how bad that was.. breaks our hearts for you.. And yet you are so strong.. your expression reflects your determination to beat this.. to fight it off.. to get thru it💜💜 A fighter you are, dear Alfie.. a true warrior.. tried and tried again. In the searing flame of epilepsy.. and each time found worthy.. We are proud of you.. we feel privileged to know you.. Those who have not been where you are.. have not been thru a seizure.. cannot possibly understand.. Those of us who have… do understand.. Alfie .. you have have our respect and our support.. as well as our gratitude for what you are doing for others who sail in this same ship of sadness.. whose sails are filled with fear., Watching you in these videos gives us hope.. quells the fear.. eases the pain.. We are not alone.. and we have you to thank for that.. We pray for you.. and we love you💜💜 William and Jen 💜💙🌱🌹🙏

  • @HanAsley
    @HanAsley 8 дней назад

    Love Philippines 🙏🙏🙏🇵🇭🇵🇭🇵🇭🇵🇭♥️♥️♥️

  • @HanAsley
    @HanAsley 8 дней назад

    Amen 🙏🙏🙏 Amen 🙏🙏🙏 Amen 🙏🙏🙏

  • @EllenJacob-Oliver
    @EllenJacob-Oliver 8 дней назад

    I Hope You Feel Better Seizures Are Painful Sometimes 💟💟💟💟❣❣❣❣💜💜💜💜

  • @planethoth1238
    @planethoth1238 8 дней назад

    How old are you brother

  • @notinohi0
    @notinohi0 8 дней назад

    I just watch his video a few time and it's heartbreaking as a young lad have to deal with this I only wish that there was a cure out there I really do

    • @Jen999
      @Jen999 8 дней назад

      Thank you for your beautiful comment.. every one of us on his channel feel same about Alfie.. he is so kind and caring.. our hero he is💜💜 William and Jen 💜💙🌱🌹🦋

  • @richardanderson-gj8wr
    @richardanderson-gj8wr 9 дней назад

    How are you doing now Alfie I pray you recovered well or are recovering well from these siezures.

  • @mariahlaguna3950
    @mariahlaguna3950 10 дней назад

    I need to make a comment on this one. Why are yall asking him if he hasn’t been turned to the side? It’s because he doesn’t want to be touched alright. Everyone’s reaction is different after they have a seizure. My friend yesterday had a cluster of three little grand mal seizures. After his episodes he snaps his fingers🫰while inhaling and exhaling to calm himself down so he can get back on track.

  • @Jen999
    @Jen999 11 дней назад

    A note of appreciation for you Alfie.. for having the courage to make these deeply personal videos.. and put them out there for us.. A brave and resilient warrior you are.. as those who know this suffering.. we realize the physical and emotional toll this takes on you.. we wish only to be there to show you we care💜💜 You are our hero Alfie.. thank you for being there for us.. when we feel alone.. Knowing you are there.. and you care.. means the world.. We love you Alfie 💜💜 William and Jen 💜💙🌱🌹🙏

  • @Jen999
    @Jen999 11 дней назад

    Anyone watching this for the first time pretty much has no idea what this all means.. That a focal seizure.. an aura.. can happen by itself or just before a severe tonic clonic seizure.. like in the next video.. After watching both.. they will begin to understand a bit more about what epilepsy is.. and the awful physical and mental toll it takes on those who suffer from it.. Thank you ever so much for your courage in putting these videos out there.. your doing this helps those who have this horrible affliction also have hope.. First.. that epilepsy can be fought.. And second.. they are not alone in facing it.. which means the world.. Thank you Alfie.. we send you our prayers.. our hope for you to win this fight.. our support.. and our love💜 William and Jen 💜💙🌱🌹🙏

  • @francescagiughese9781
    @francescagiughese9781 11 дней назад

    Devi fare la respirazione diaframmatica

    • @Jen999
      @Jen999 10 дней назад

      We saw your comment.. to those of us who play a wind instrument.. in our case an ocarina.. diaphragmic breathing is an old friend.. we call it belly breathing.. Breathing from your belly.. for those who haven’t heard about it.. allows the musician access to more air.. so they can play longer and hold notes better.. making for a sweeter sound.. For those of us who use this method of breathing in meditation.. it helps us relax and “ let go” of tension.. achieving peace.. Breathing this way helps to relieve stress and anxiety.. which is one of the main triggers in epilepsy.. Which is why you made your comment.. this is much appreciated and we thank you for it..💜 My sweet husband suffered from epilepsy all his life.. we were told about belly breathing by our physical therapist.. who realized William’s huge stress load.and resultant anxiety.. was provoking his seizures.. There are other benefits too.. such as lowering blood pressure and promoting better sleep.. Thank you again for your comment.. because helping to reduce the anxiety brought on by stress is helpful in dealing with seizures..💜 William and Jen 💜💙🌱🌹🦋

  • @francescagiughese9781
    @francescagiughese9781 11 дней назад

    Devi fare la respirazione diaframmatica

    • @Jen999
      @Jen999 10 дней назад

      Hello.. this thoughtful comment was addressed in the previous video on focal seizure above.. and was much appreciated.. thank you!💜 William and Jen

  • @aRandomGurl
    @aRandomGurl 11 дней назад

    Just wanna ask you if you tried looking into ketogenic diet, I heard that it helped many.. btw I’m so glad I can understand your accent cause my first language isn’t english, and I love to hear from you in your update videos.. just wanna be there for you, be your friend, cheer you up and share a bit of my support and advice..

  • @arturoortiz-lf8yg
    @arturoortiz-lf8yg 12 дней назад

    i agree 😢💔

  • @richardanderson-gj8wr
    @richardanderson-gj8wr 12 дней назад

    To everyone who is showing support and prayers for this brave courageous enduring and kind young man. Thank you all i know the support means a lot to him. Me and Alfie have had some exchanges on here and i can by his responses he is a kind polite humble and awesome young man.

    • @Jen999
      @Jen999 12 дней назад

      And so worthy of the support Alfie is!💜💜 And thank you for your beautiful words! We are all praying hard as we can for Alfie.. that he will get better.. he is and will always be our hero.. helps us all to keep fighting.. to keep hoping.. to keep going.. we send him our prayers and our love.. sure we wish we could hug him💜💜 William and Jen and our Lads 💜💙🧡💚 💜

  • @alterman156channel
    @alterman156channel 12 дней назад

    This has got to be perhaps the worst seizure of yours that has been recorded. It must have been awful to go through this seizure. I hope that you can eventually get the seizures under control.

  • @Grapevine_1987
    @Grapevine_1987 12 дней назад

    I love you Alfie ❤

  • @olivierlavigne3754
    @olivierlavigne3754 13 дней назад

    ❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤

  • @olivierlavigne3754
    @olivierlavigne3754 13 дней назад

    ❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤

  • @LuisRamirez-xn4ck
    @LuisRamirez-xn4ck 13 дней назад

    Isn’t alfie on epilepsy medication 😢

    • @Jen999
      @Jen999 12 дней назад

      Yes.. Alfie has listed his meds in his updates.. Sad truth is many times meds do not work.. or help s bit but cannot stop the seizures.. Epilepsy is a lifetime battle.. there is no absolute cause and no cure as yet.. although many dedicate their lives to finding one.. Alfie is amazingly strong and courageous.. this is what all those who suffer must be.. This channel is the result of Alfie’s desire to help others afflicted with epilepsy.. as well as their families and friends.. Alfie is brave and resilient.. and for those of us who support him and his channel.. Alfie is our hero.. Because of this brave and kind young man.. none of us have to feel alone.. he is always there.. 💜💜💜 William and Jen 💜💙🌱🌹🙏

    • @LuisRamirez-xn4ck
      @LuisRamirez-xn4ck 12 дней назад

      @@Jen999 I myself have epilepsy grand mal seizures aka tonic clinic seizure I have a device called a vns stimulator I been seizure free for 7 years now thanks to the little device and the medication I take keppra and lacosamide aka vimpat ive been seizure free I hope alfie becomes seizure free because he is a good man and it hurts me seeing him like this because I can feel the pain when I see him in your video convulsing😔

    • @Jen999
      @Jen999 12 дней назад

      @@LuisRamirez-xn4ck We so agree with you Luis.. and are thankful the VNS works well for you.. it has benefited many.. My husband William suffered from nocturnal tonic clonic seizures.. his epilepsy was thought to be from his premature birth at 7 months which seriously weakened his heart and lungs.. Unfortunately the vagus nerve controls heart function on the left.. and this device would be ruled out in patients with cardiac problems.. but for those who can get it.. the device is lifesaving.. We are praying better meds will be found for Alfie and other sufferers.. the videos are heartbreaking and we cry for him.. 💔😭💜 Alfie is courageous and strong.. and incredibly kind.. and as you say.. it is horrible he has to go thru this.. Thank you for your kind reply.. we are so happy you are seizure free.. and we are praying hard soon Alfie will be also.. We send you prayers and hugs.. as well as love 🙏🤗💖 Jen and William💜💙

  • @shermanhatch2716
    @shermanhatch2716 13 дней назад

    Turn him to his side

    • @Jen999
      @Jen999 11 дней назад

      As you can see from the video.. Alfie’s Mum.. who is filming this for him.. has made him comfortable as possible.. Alfie is in a safe spot so he will not fall.. he has the soft couch cushion behind him.. and another pillow strategically placed.. both to protect his head and for comfort.. He is covered with a warm blanket to ward off the cold feelings that follow the seizure.. and dressed appropriately in shorts and a light shirt.. as there is a lot of heat and sweating during the seizure.. All this his Mum did to prepare for the seizure and protect him during it.. she is doing an excellent job.. Unless you have dealt with epilepsy in one you dearly love.. you have no idea how extremely difficult this is for her.. she is to be commended.. As for Alfie.. he is a strong and courageous lad.. a true warrior.. he fights every time hard as he can.. and this seizure he just went thru was an extraordinarily severe one.. How do I know? My beautiful and courageous husband suffered exactly as you just saw in Alfie’s video.. and as his wife and caregiver.. I relate totally with Alfie’s Mum.. Epilepsy involves the entire family.. we all work together to help those we love.. Thank you for your concern.. and rest assured Alfie is in the best possible hands he could be.. his Mum’s 💜 William and Jen 💜💙🌱🌹🙏

  • @Riliesweatherandfunworld
    @Riliesweatherandfunworld 13 дней назад

    Get well soon Elfie, prayers for you, I'm sorry to hear that,❤

  • @Riliesweatherandfunworld
    @Riliesweatherandfunworld 13 дней назад

    Get well soon, hope one day you will be seizure free, praying for you.❤️

  • @tiyasabar
    @tiyasabar 13 дней назад

    Oh my God, his seizures have returned. Oh my God, protect Alfie. I hope his seizures will be cured.

  • @nabilzhimi3461
    @nabilzhimi3461 13 дней назад

    ❤❤❤❤🙏🙏🙏🙏🤷‍♂️

  • @Mayah_Abelman
    @Mayah_Abelman 13 дней назад

    Another one? i'm sorry Alfie... :(

  • @AlfieFrosty-u7h
    @AlfieFrosty-u7h 13 дней назад

    Hi alfie. Is there anyway we can contact each other? I'm from the UK and suffer with the exact same type of seizures. I was close doing dying last year. Seeing you go through the same is horrible and we might be able to help each other 💜 Much love mate.

    • @alfiesepilepsychannel
      @alfiesepilepsychannel 13 дней назад

      Thank you so much for the support mate and My email address is: alfieshaw655@gmail.com

  • @AlfieFrosty-u7h
    @AlfieFrosty-u7h 13 дней назад

    Hi alfie, another alfie here. I also suffer with grand mal seizures with focal too. How's the recovery going? Have neuro given any info on what/why? Hope you are OK though. 💜

  • @erikuniken
    @erikuniken 13 дней назад

    We often see you at your most vulnerable. I really appreciate that because your vulnerability gives relief to others who watch your videos. You make a positive impact on other people's lives. I wish I could sit next to you to hear how you feel at the moment. Combative? Or down? And I would tell you that I am incredibly proud of you. Because of your music and of the endearing, openhearted man you are. My heart is with you mate.

    • @Jen999
      @Jen999 13 дней назад

      These are the most beautiful words we have ever heard.. we are both unashamedly crying our eyes out.. Alfie is so blessed to have a friend like you.. who truly cares.. and is not afraid to say so.. We feel as you do.. and so grateful we are to also have you as a friend.. Thank you Erik for your beautiful words.. we shall hold them in our heart forever..💜💙 May God Bless you and Alfie.. and keep you safe.. We.. William and me.. shall love you both beyond life🙏 William and Jen 💜💙🙏🌹🕊️

    • @alfiesepilepsychannel
      @alfiesepilepsychannel 13 дней назад

      Thank you both so much 💜💜

    • @Jen999
      @Jen999 13 дней назад

      @@alfiesepilepsychannel You are so welcome sweet lad.. we are so very sorry this happened.. and grateful to God you made it thru.. you are so strong and courageous.. and you fight hard against a ruthless horrible enemy.. We believe in you Alfie.. we will pray hard for you.. mean the world you do.. always you do your best.. and you will get there.. 💜💜 You are a grand lad who deserves a good life.. keep hope in your beautiful heart.. we hold you close in our own💜 William and Jen💜💙✨

    • @erikuniken
      @erikuniken 13 дней назад

      ​​​@@Jen999 Hi Jen. Actually i am quite scared to say 'i love you' or things like that. But i've seen it too often that people wished they could one more time say something meaningfull to a loved one who passed away. They taught me not to wait to open up my .... heart so to say. But I often find it scary because you never know how someone else will take it. You don't want to make people uncomfortable, right? Jen, I respect you very much and enjoy reading your comments because I feel how much authenticity and love they convey. And because you have the gift of expressing your thoughts and feelings in such a beautiful way.

    • @Jen999
      @Jen999 13 дней назад

      @@erikuniken We just replied and it was lost so will try again😭 Erik you have a pure heart.. one of the very few who actually do.. and the words you say are so meaningful, true and kind because of this..💖 We understand what you mean about being afraid to say I love you.. because it is so hard to do.. Felt the same way as you until I met William.. who also had this fear.. he cried when he told me he was so sick.. because he was afraid I would not want him if I knew.. That was when I first told him that I loved him no matter what.. that we would face this together.. 💜💙 Perfect love casts out fear Erik.. and when you love someone.. and you tell them.. you are talking only to them.. and nothing and no one else matters.. it is between the two of you and God Alone hears..🙏 After I told William we held each other and cried together.. he said it meant the world to him to know I loved him💜💙 And you are right Erik.. even though we feel afraid.. always best it is to follow the lead of our heart.. and let how we feel be known.. it means the world for them to hear it.. Being able to pray with you for Alfie means the world to me.. it brings peace and hope..🙏🕊️ Thank you for your kind and caring words.. you too have a gift Erik.. that of a pure heart.. and that is so beautiful to see..💖 And Alfie.. we are all praying for you, sweet lad.. Erik and William and me.. we love you 💜💜💙💖 William and Jen 💜💙🌱🌹🙏

  • @Jen999
    @Jen999 13 дней назад

    So thankful you are feeling well enough to answer your comments Alfie.. those wee hearts you send mean the world… and so do you💜💜 Slan mo charaid William and Jen 💜💙🙏🤗💖

  • @jamvillanueva6507
    @jamvillanueva6507 13 дней назад

    I wish I can get inside my phone screen and help you.😢

    • @Jen999
      @Jen999 11 дней назад

      @@jamvillanueva6507 You are not alone.. we are all wishing we could somehow be there to comfort Alfie and his Mum.. our hearts break watching.. all we want is to help somehow.. and your idea sounds good to us.. we send Alfie prayers and hope.. and unlimited virtual hugs we wish were real.. and we send him our love always and ever💜💜 William and Jen💜💙

  • @erikuniken
    @erikuniken 13 дней назад

    🫂

  • @jessmerritt9420
    @jessmerritt9420 13 дней назад

    Hi Alfie, thank you for sharing this, I have a question and you don’t have to answer it, I work with people with epilepsy every day and they have buccol, if you have this what’s your time frame with your seizures where it has to administered? As I’ve noticed you she’s quite severe and long seizures, sending all my love🤍

    • @Jen999
      @Jen999 11 дней назад

      @@jessmerritt9420 We saw your comment and have some experience with this.. so we are offering this to explain what it is to some who might not know.. Basically buccal refers to the thin membrane area between the gums and cheek.. the medicine is squeezed in there and absorbed.. if it is swallowed it might not act as fast.. there is a rescue med called midazolam that is given this way in hospital to stop seizures.. it works in about 10 minutes and used primarily with children.. it is sedating and can interfere with breathing.. And that can be a problem for a person with breathing difficulties.. My husband suffered severe nocturnal tonic clonic seizures.. because his heart and lungs were badly weakened by premature birth he could not be given any meds that would affect his breathing.. that is how we know about buccal meds.. Hope this helps a bit.. first time we’ve heard about buccal since we’ve been on the channel.. we wish you well and send you prayers for the patients you care for 💜🙏🕊️ William and Jen💜💙

  • @richardanderson-gj8wr
    @richardanderson-gj8wr 13 дней назад

    Praying for you brother, hugs to you enduring young man. This was a really bad one and the worst one you have had in a while. I hope you recover well bro. Alfie stay positive and hang in there awesome friendly young man

  • @Madison-er9ti
    @Madison-er9ti 13 дней назад

    Were you aware at all during this?

    • @alfiesepilepsychannel
      @alfiesepilepsychannel 13 дней назад

      No I’m only aware just before and when I wake up

    • @Madison-er9ti
      @Madison-er9ti 13 дней назад

      @@alfiesepilepsychannel oh. I get focals lasting several minutes where I'm aware and can feel deja vu and see colorful lights in my vision. I feel lucky because at least I know it's happening and can sit down in case it turns into a tonic clonic. I'm sorry you're still going through this, I hope you can find a medication that works well for you. <3

    • @Grapevine_1987
      @Grapevine_1987 13 дней назад

      ​@@Madison-er9tiThat's how mine were and then they turned impaired awareness!

    • @Madison-er9ti
      @Madison-er9ti 13 дней назад

      @@Grapevine_1987 really? It scares me that they might get worse. But my doctor told me it's okay that I'm still have the focal aware sometimes since I haven't had a tonic clonic in a year, my treatment is considered a success. The anxiety never goes away though

    • @Grapevine_1987
      @Grapevine_1987 13 дней назад

      @@Madison-er9ti Yeah they took so long to treat me though that it turned into that. THEN they took it seriously.