Bad tonic clonic seizure (11/08/24)

Поделиться
HTML-код
  • Опубликовано: 12 окт 2024
  • This one happened in the middle of the night whilst I was asleep
    I suffer with temporal lobe epilepsy and I’m just putting them up as some support and awareness 💜💜
    Any questions just leave them in the comments and I’ll get to them in the next update video. Can’t thank you all enough for the support it means the world 💜💜
    #epilepsy #seizures #mentalhealthmatters

Комментарии • 32

  • @Jen999
    @Jen999 2 месяца назад +4

    Your courage and resilience will get you there…
    Alfie.. we send you prayers.. hugs.. hope.. and always our love💜💙🌹

  • @AllisonLinner
    @AllisonLinner Месяц назад +1

    I am so very sorry you have to suffer through this. You are one of the very strongest people I've ever 'met.' I don't want to seem like I am trivializing or making light of your struggles, but I've got to say that you are extremely handsome! I wish you the very best in all that you do. 💜

  • @Riliesweatherandfunworld
    @Riliesweatherandfunworld 21 день назад

    Poor sweet boy, hope you get better soon, have a blessed night, praying you are doing to be 100& seizure free one day.❤

  • @YummyYummyCookie123
    @YummyYummyCookie123 2 месяца назад +5

    Keep fighting, you're gonna win ❤

  • @Jen999
    @Jen999 2 месяца назад +4

    Stay strong Alfie.. never give up.. keep going.. you will get there💜💙

  • @taylagreen2380
    @taylagreen2380 Месяц назад

    Sending all of the positive energy i can your way, thank you for sharing what this looks like for you, youre doing such a wonderful thing spreading awareness 💜
    My 28 y/o fiance has been diagnosed with right temporal lobe epilepsy this year, having been living with consistent seizures for 12+ months and his tonic clonics look extremely simular. No seizures easy to do through, Hoping you had a smooth recovery from this one 🙏

  • @mattshipley570
    @mattshipley570 Месяц назад +2

    My brother was diagnosed with Epilepsy fairly recently, and I have just witnessed him have a seizure very similiar to this one. Im now trying to educate myself as much as possible on the symptoms. I cant imagine how much pain and torment it must be for you mate, stay strong and all the best 🙏

  • @Jen999
    @Jen999 2 месяца назад +5

    There are no words to express the immense sorrow we feel at watching you suffer so, Alfie..
    The one good thing.. your dear Mum is right there with you.. caring for you.. watching over you. Helping you thru this..
    So thankful we are to see that.. to know you are not alone in your agony..
    We are crying for you.. as well as for her.. even as we watch.. we are praying for you both..
    So sadly from our own experience.. we realize these setbacks are part of the hell on earth of epilepsy.. we deeply feel your pain, dearest Alfie.. as well as we honour the strength and courage of you both..
    Our prayers go out to you, beautiful lad.. to help you cope with this…
    Strong and courageous you are Alfie.. strong and courageous you will continue to be..
    We believe in you with every fibre of our being.. we know how hard you fight..
    We stand with you.. in support.. in understanding..
    Most of all in love.. with our belief in you made even stronger by witnessing your own personal courage and resilience..
    You will get there Alfie.. you will 💜💙🌹🙏

  • @helenslade5920
    @helenslade5920 2 месяца назад +2

    My grandson, daughter, brother and two nephews suffer with epilepsy, stay strong Alfie, you're in my prayers ❤❤❤❤

  • @richardanderson-gj8wr
    @richardanderson-gj8wr 2 месяца назад +2

    Aww praying for you bro i pray you're recovering well awesome kind enduring young man. Hugs to you Alfie

  • @Jen999
    @Jen999 Месяц назад +1

    Each time we see you suffer thru a horrible seizure .. our heart breaks💔
    Each time we realize the courage and strength it takes to make these videos.. and upload them.. we cry😭 for you💜
    Because ……….
    We know there are many others watching who share your pain… as we do.. and who appreciate your caring enough to do this💜🌹
    Epilepsy is ruthless.. irrational.. and unpredictable 💜
    No one is immune.. anyone can be targeted💜
    Your channel is a safety line for so many with no one to turn to.. who will understand.. to care.. as you do💜.. to feel their pain.. as you feel it💜
    When you say those words.. anytime you want to talk.. I’m always here..💜
    When you say I don’t want anyone going thru this to feel alone 💜
    You are throwing out a lifeline to us who are drowning in fear.. in doubt.. in confusion.. in panic.. and feel so horribly alone..💔😭💜
    So.. to help.. you set up this channel.. you make these videos..💜
    Doing that.. in the eyes of those suffering as yourself.. is offering a priceless gift Alfie💜
    Thank you, dear lad, with all our hearts.. for the giving of it.. by the giving of yourself 💜
    We have not the words.. to say how much we love you 💜
    William and Jen
    💜💙🌱🌹🙏

  • @Jen999
    @Jen999 Месяц назад +1

    Nocturnal tonic clonic seizures are worst of all..
    They happen when the one who suffers is most vulnerable.. asleep.. and often alone..
    They come on as a thief in the night.. unobserved.. sinister.. deadly.. and usually with no warning or aura…
    So important that you show this one Alfie., so vital to see this can happen unawares while sleeping..
    We are thankful you have a system in place where your Mum is notified and comes quickly to your aid..
    She immediately placed you on your side and cleared everything out of the way..
    She stayed with you.. monitoring your breathing.. keeping your airway clear..
    Biggest dangers with these seizures.. for anyone who may not know.. is stoppage of breathing and/or the heart..
    Also falling on the face and.. unable to move.. suffocation..
    Your Mum is your guardian angel.. watching over you and keeping you safe, Alfie 💙🌹
    Thank God for her💜💙🙏🌹

  • @mikedurant78
    @mikedurant78 2 месяца назад +4

    Stay strong my friend. Sending you lots of love. Your in my prayers Alfie. Can you please do an update video? I thought the neurologist was going to change your meds? Lots of love from New York city.

    • @Jen999
      @Jen999 2 месяца назад +3

      Alfie did an update video on 26/5/24.. he will be doing another soon..💜💙

    • @mikedurant78
      @mikedurant78 2 месяца назад +3

      @@Jen999 thank you. I really appreciate it. I was thinking and concerned for him.

    • @Jen999
      @Jen999 2 месяца назад +2

      @@mikedurant78 we could tell… we all are.. Alfie is the kindest and bravest man we know.. 💜💙🌹

  • @kristypaul8067
    @kristypaul8067 2 месяца назад

    Aww your so strong ❤

  • @tiyasabar
    @tiyasabar 2 месяца назад +1

    Alfie, be strong and patient, okay?

  • @EdwinPadilla-vt2zd
    @EdwinPadilla-vt2zd 2 месяца назад

    Hi buddy OMGGGG I can’t believe what I’m seeing with my eyes right now and so you know ❤ I have the same seizures as you when I sleep through the night ❤️😭😭😭😭

  • @darrenshaw895
    @darrenshaw895 2 месяца назад

    Feel for you son xx❤️

  • @angeladamron3645
    @angeladamron3645 2 месяца назад

    Dang I hate that I hope you get better soon you know what my dad has seizures on couch same thing

  • @juneariannemaevillanueva9223
    @juneariannemaevillanueva9223 2 месяца назад +1

    HUGGGGGGGSSSSSS

  • @lania.m
    @lania.m 2 месяца назад +1

    Sending you strength 🤍🙏🏻

    • @Jen999
      @Jen999 Месяц назад +1

      We think your comment is beautiful.. 💜💙🌹

  • @mariahlaguna3950
    @mariahlaguna3950 2 месяца назад +1

    Oh no!!😞

  • @musicallou4900
    @musicallou4900 14 дней назад

    Can I ask why you was not put into recovery position?

  • @CraySanchez
    @CraySanchez 2 месяца назад +1

    What was the cause of Alfie epilepsy?

  • @Afrikan
    @Afrikan 2 месяца назад

    💜

  • @erikuniken
    @erikuniken 2 месяца назад +1

    ❤👊🏽

    • @Jen999
      @Jen999 2 месяца назад +1

      Thank you.. God Bless you Mo charaid💜💙🙏

  • @olivierlavigne3754
    @olivierlavigne3754 2 месяца назад

    😢💗💗💗💗💗💗💗💗💗💗💗💗💗

  • @abigailmagiera9938
    @abigailmagiera9938 2 месяца назад

    😮🤲🤲🤲🤲