Really Bad Grand Mal Seizure (18/12/23)
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- Опубликовано: 12 окт 2024
- I suffer with temporal lobe epilepsy and I’m just putting them up as some support and awareness 💜💜
Any questions just leave them in the comments and I’ll get to them in the next update video. Can’t thank you all enough for the support it means the world 💜💜
Can’t thank everyone enough for the support it means the world and this one’s probably one of the worst one I’ve ever had and I will try and do an update video soon still in hospital at the minute as they changing my meds so with a bit of luck that will work will be sure to let you all know in few days thank you all again💜💜💜
Your so very welcome Alfie I hope you feel better soon stay strong I hope you have lovely Christmas from kerrie 💜
I pray you have a safe and wonderful Christmas.
Hey there Alfie, I want to thank you for sharing this, as horrible as it is to see let alone experience, the more information people have the better.
I remember my dreaded aura. A spectral flashing light appeared in my vision before the involuntary twist started to occur prior to falling unconscious 😔 terrifying sensation. I hope you're getting all the care you need fella x
@@michaelgadsby no problem that’s exactly why I upload to educate others that didn’t know about it or what it looks like and for others in the same situation I think it definitely helps when you’ve got people in the same situation to talk to and I know what you mean the aura is by far the scariest feeling ever pure fear, panic and trying to fight off that outer body feeling and not go into one it’s deffo the hardest fight known to me and thank you for your support means the world always here if you want to talk and prayers are with you mate🙏💯💜
We are thanking you for doing this.. and being there for all of us.. you are strong and courageous.. you fight hard.. when it gets bad for us.. we think of you.. and it helps to know you care.. that we are not alone 💜💙
Bless his heart . Very hard to see someone in such distress . You handled it like a champ. Prayers .
This tears at my heart. I wish I could stop this for you!
I feel the same😪
I feel the Same.
Praying for you, dear Alfie! From Massachusetts
Praying for you always bro. I hope you are recovering ok
Watching this really hurts my heart I'm so sorry much Love to You Alfie from Michigan 😢😢😢
Hey man praying for bro hope you Are recovering well Alfie praying for you hang in there buddy
Bless you dear. ❤
Sending prayers and lots of love to him, I hate that he’s going through this before Christmas 🎄. Sending him lots of gentle hugs, too! Hopefully his doctors will get things straightened out and they will calm down and give him a break.
I'm sorry that you had such a severe seizure. I hope that you are starting to do better. Hopefully the doctors treating you will manage to get something to work to help with the seizures.
Oh Alfie, I'm always thinking of you. 💜 I have them too but not nearly as severe. Your strength is inspiring
xxx
This was the video we saw that prompted our subscription..
We are still with you, Alfie.. 💜
God Bless you and keep you safe.. we love you and send you hope 🙏
💜💙🦋
I’m so sorry!! I have generalized epilepsy and it sucks!!!
This hurt my heart it's so agonizing! Bless you I pray they get this under control. ❤
My heart goes out to you want dear, I will pray for you daily to find relief. May god bless you and hold you in his arms.😢😢😊
Wow Alfie!! My heart goes out to you!! This was one hell of a seizure! 😢 I hope that they sort your meds out. I'm so fortunate to be well at the moment with my seizures. Try to look after yourself and take care,I know it's easier said than done.
Going by the feedback us guys understand what this poor guy is going through. Im crying witnessing this .....please stay safe Alfie
I really hope you'll recover soon..😢
Seeing you suffering tortures me.
I wish you a happy new year and i hope God will heal you.😞
Im so sorry. My 18 year old son started having these when he was only 12 and they have increased. He is terrified to go to sleep. He is very depressed and often talks about suicide. All I can tell him is that he is not alone.
Could not stop thinking about your comment.. and your son.. will try to help a bit with our experience.. when my dear love was 15, he faced amputation of his left leg due to brittle diabetes which plagued him since birth.. we were friends since age five.. he was my friend.. in school he had a grand mal seizure brought on by stress .. the teacher told us to leave.. I would not leave my friend.. so.. she let me stay.. he had told me he was sick and what to do..
Went to hospital with him.. and stayed with him .. we married at 18 .. his biggest fear was at night like your son.. he was terrified of dying alone in the dark.. did my best to assure him he was not alone as you are doing with your son.,
You are right.. this is all we can do.. assure them they are not alone., that you are there.. saying this.. and keeping the sacred promise of being there helps.. it means everything to them..
You are helping your son each time you say this.. he needs to hear it.. no matter what he says.. he needs to know you are there.. that he is not alone..
No one understands what we who love someone more than life go through.. unless they are doing it too..
Please, love, do not think that just saying he is not alone is all you can do.. because it means the world to him.. please keep saying it.. we send our prayers and our love to you both 💜💙
@@Jen999 THANK YOU SO MUCH! ❤️
@@La_Tasha You are welcome.. we are sending you our prayers and our love 🙏💜💙
Prayers for Alfie and you the family.
Prayers from Holland Alfie❤
Thank you for sharing this video, espacialy since it shows you in a vulnerable situtation like this. I think there should be more videos like that to show the public how a seizure realy looks like. I hope that the vidoe helps people to not me scared of people having a seizure, and hopefully giving first aid and calling and ambulance. For a first responder there is nothing to fear about a seizure, it looks scary, but it isnt. The only help a patient needs from a first responder in this case is to just clear the vicinity so the patient doesnt hurt himself.
God truly bless you & calm your raging storm! Its only a test! Hang on! Keep the faith!!!
Bless you Darling ...ive been there
Poor man hope he is OK 😢
This is truly the worst seizure we have ever witnessed.. the look in your eyes as you are suffering through this crushed our hearts .. we subscribed to your channel.. watching your videos is excruciatingly painful and we cry.. even so.. learning takes away fear and opens the door to better understanding..
So grateful for your courage and strength in making these.. so many are helped ..both those who suffer and those who love them..
Began praying for you as we watched.. and will continue to do so..
Stay strong , beautiful man.. you are giving all you have to fight this.. and for all of us out here who suffer too.. it is far better than you may think.. and we thank you, brave man.. we thank you 🌹
Jen999💜💙
😭😭😭aifie nooo I hope you get better soon 🙏🙏🙏🙏🙏
Sending hugs and prayers to you both God bless
Hugs from Illinois 💜
Hugs from Canada Alphie 🤎
Having a good friend or family near to comfort them and say it's going to be ok is so important.
@@scotty28653 you are so right.. it is so important that they do not feel alone.. which is the worst feeling ever..
You will hear people say they are unaware and do not remember.. not entirely true.. in the aura state they may be aware .. just unable to communicate.. and they may be able to hear.. if their seizure is focal they may remember all of it.. or not..
For my husband.. who suffered all his life.. the aura and post ictal.. aftermath of the seizure.. were the worst times.. he was able to hear me even tho he could not see me.. he told me hearing my voice.. saying he was ok.. that I was there.. that I love him.. meant the world.. and helped him get through them.. they should NEVER be left alone in ANY stage.. especially at night..
In our case.. I slept with my husband and helped him.. and yes.. got clocked many, many times.. which he could not help.. but a black eye.. a bloody nose.. etc .. was nothing to what my sweet guy suffered.. his seizures were so severe he fractured ribs.. had several lung collapse.. and so many bruises everywhere he looked like he’d been in a car crash.. he had suffered the loss of his left leg at 15 from dead nerves and if he could not roll back from being on his face he could suffocate..
These were nocturnal seizures should have someone with them at night.. or at least be monitored.. an Apple Watch works well..
Please remember.. do not leave your loved one alone! They need you there to help them..also the timing of seizures is vital.. any over 5 minutes.. or several in a row with no rest between is a medical emergency.. they can die.. they do not breathe whilst seizing.. and need oxygen.. ER services must be called!
Know this is probably more than you asked for.. even so, epilepsy can and is fatal in some cases..
Sadly we know this too well.. a vicious series of seizures caused my dear husbands lungs to collapse and stopped his heart.. even with recovery meds the strain on his heart was too much.. he died in my arms!!!
Therefore I am passionate about keeping this from happening to others..
Knowledge is power.. the more you understand.. the better you can help..
Hope this helps a bit.. thanks fir your comment and interest💜💙🦋
This came up today .. we are watching it again.. and crying even more than the first time.. because we have come to know you.. and to love you.. since then..
You continue to fight hard.. that is what has to be done to survive..
Only like yesterday it seems .. my William and I fought together.. each aura an attack that must be countered..
Each seizure a battle that must be fought..
There is no passivity when dealing with epilepsy .. no waiting for it just to go away.. cuz that doesn’t happen..
Each time is a knock down drag out street fight.. no rules.. no playing fair..
Epilepsy is viscious.. cruel.. indomitable if you allow it to be..
The secret is you fight .. for your consciousness.. for your life.. each and every time the same..
You cannot give up.. cuz it will take you down.. if you let it..
That’s why these videos are so important Alfie.. in them you show how to fight.. no.. it is not pretty.. so hard to watch..
People need to know what we’re dealing with here.. this is war.. and war is hell..
And you fight so hard Alfie.. watching you helps those who suffer alongside you.. helps the families and love ones who suffer too..
Thank you.. over and over again.. for having the strength and courage within yourself.. to do this.. to make this videos.. to show us how to fight..
You are a hero to more than you may realize.. you are hope.. you are resilience.. you are a brave young guy standing up against a formidable enemy.. and you are a fighter who does not quit..
Thank you .. there are no words yet written that can ever thank you enough..
Even so we try.. from all of us who suffer.. and from all of us who love and care for them.. thank you Alfie..
God Bless you and your dear family..
We thank Him for the day we found this video.. you mean more to all of us than we can even say💜💙xxx
You so Amazing and such strong person Alfie your mum is fantastic to must so hard and upsetting to see her son like this she was trying to keep you safe while in the car from kerrie 💜
My goodness....what a torment 😢. Am ready to lend you my ear if you need someone to listen to you, mate👂🏼👊🏼💪🏼
From Erik
Hugsx
This is the video we saw around Christmas.. we subscribed 10 seconds into it.. our hearts broke for Alfie’s suffering.. we are supporting him ever since.. we send him prayers, hugs, hope and love.. from this day on 🙏🏻💜💙🤗
God bless you
We cry together as we watch this.. your pain and suffering so palpable it cuts deeply into our souls..
We have not been with you long, Alfie.. please know we will not leave you..
Our concern .. our thoughts.. our prayers all go out to you this day.. from now on you are held within our hearts.. and there you have a place forever..
God Bless you and give you relief.. May you always know you matter so.. and you are loved.. by many🌹🙏🤗💜
Jen999💜💙
Get better Alfie
Oh, Alfie! ❤❤❤❤🙏🙏🙏
Bless you
Pray to you God 🙏
I’m sorry man. It must be so exhausting to deal with. I really wish there was a cure for this awful disease. I hope it’s in our lifetime that we can find it. You’re a very strong person. Never give up hope.
It definitely is exhausting, constant anxiety and I really do too, I’m on 8 tablets a day and still having them regularly thank you so much for your support means the world💯🙏
Still praying for you friend.
I speak healing in the almighty name of Jesus upon you! You are a beautiful child of God. Never think or feel that you are anything less! You handeled it wonderfully. Thank you for sharing. Be blessed.
Prayers my love…..
Well that answers that question as we’ve all been wondering how you are 💔
Hi Alfie! Sorry you had another one. The car is like one of the worst places they could happen. Im glad to read you are doing well.
It’s okay thank you for your support and I know makes you ache like mad after it way worse than in bed or something how’s Chris doing?x
@@alfiesepilepsychannel The shower and car are the worst. So cramped. Chris is...okay. Had another seizure, this time during a workout. He is alright just bummed.
Definitely I had 2 in bed last night so feeling rough and bummed to be honest and at least it’s under some control and tell him from me it will get better and keep fighting I’ve started on levetiracetam (keppra) really feeling the depression, mood swings and anxiety but hopefully that will work would rather have side effects than seizures all the best going to do an update video soon 💜💜
I feel you, Alfie.. im only 21, & i've had Epilepsy for 18 years.. this is the exact seizure i have every time i have one, & to this intensity, too... that neck twisting stiffly and hard, hurts like h*ll.. and the arms going crazy along with the mouth & eyes, not fun.. i feel you, man
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I husband have Epilepsy and love him so much I pray for ❤❤❤❤
Hello from Boston. Can you share Alfie’s background? My husband suffers from TC seizures. Started in his early 20s. We’ve had great success at Brigham & Women’s. Love to you!
Oh meu irmão que triste ver vc dando essas crises 😢mas que Deus venha te curar estou orando por ti Deus te abençoe
Hey Alfie! I really appreciate you sharing your journey. Was wondering: could you share some signs and symptoms of specifically temporal lobe epilepsy?
I will explain them more In depth in my next update video 💜
Good morning from Hungary, (I lived in Sheldon, Birmingham in the 80’s)Alfie’s seizures are exactly like I had from 1984-1998, I started getting headaches and feeling weird, then the early morning (after sleep) limb twitches started and I remember wondering what the heck was going wrong with me, I drove to work anyway thinking it was just the drink from the night before (I was a typical 18 year old)
I got to work (alpine soft drinks delivery driver), I was getting my lorry ready and the twitches continued but also I could feel the weirdness too, it was the Aura, the signal just before the actual seizure (I got to know these after a few months), that’s all I remember, I woke up in hospital, a full Tonic Clonic seizure, my first of many regular seizures
Like Alfie, they totally wipe you out, zap you if all your energy afterwards
This channel will help a lot of people that are new to epilepsy and it’s life changing condition
There wasn’t much out there back in the 80’s to help, I was confused and scared at what the doctor told me I’d got, my dad wasn’t ready to cope with it (my mom had left us)he wrote a letter to the council to give me a flat on my own, I was alone
Alfie isn’t he has the love and care from you and lots of support
Thank you on behalf of anyone that finds this channel
One of my classmates has seizures, she had one in class and it was terrifying, most of us haven't seen a seizure before and were really panicking, no one taught us anything about seizures, so I've been researching for a few days and I'm so sorry that you and other people go through this, i hope that eventually we may find something to stop these
Poor guy🥺😔
On what medication is Alfie?💊
I have 12 and half year daughter with medical refractory epilepsy and almost daily severe seizures and daily small seizures. 😢
We try almost every medication but there's just temporary effect.
She's now on 4 medication: Depakine, Topamax, Clonazepam and CBD.
Hugs from us. 🤗💜
I know how awful is to seeing how someone you love struggles with this and can't help him.😢
I’m on 1000mg keppra and 400mg Lamotrigine now and I’m feeling the effects badly on keppra but would rather have the effects than the fits hope you can get it sorted for her💜
@@alfiesepilepsychannel we tried and the bouth of this medication. In January next year we will try a new version Brivacetam (Briviact). Cross fingers for us to have effect. 💜
I'm following your profile and will keep an eye on how things are going with you. Today she again had 3 severe seizures of 3 minutes each, we are all feeling very tired now. 😔
You have our support and understanding. 💜
I wish you a happy and peaceful New Year's holiday. ❤
Dayums, that had to be exhausting and frightening. I wonder if seizures like that cause damage to any part of the brain. As a vet tech (a very long time ago), we'd encounter this in pets and it was devastating for both the pet and owners. I've not studied seizures so am pretty ignorant about them. I hope the best for you and if you don't mind, I would like to follow your story. ❤
How are you keeping Alfie?
Thinking of you 🌻
I certainly understand what you are dealing with. I’m so sorry man. Medication hasn’t controlled them to some extent? Have you tried the keto diet? Have you considered surgery?
my wife has these, but has been seizure free now for 4 years. Made me tear up a little watching this....this may sound weird for people who haven't experienced this sort of thing but this is far more traumatic for those around than the sufferer, you just need to make sure they don't bang their head or choke on vomit/saliva. My wife has no memories of her seizures. when she comes back after one she has total body muscle soreness, a bit tongue and/or mouth and a terrible headache. Initially she doesn't know anything has happened....I feel shattered for weeks after, and I'm always fearful of a recurrence even after all this time. anyway good luck to you, I hope things work out for you
I feel for you man thank you so much for the support means the world, always here 👌🏽💜
I hhave those ive have them since i was 15 they are bloody scary when you see some one else doing too it sure scarey i thouth tell you but watching its bloody worse i have so many diff types of them as well 😮😢😅
I used to get them the grandma seizures. I started smoking marijuana not on the daily basis and it seems to help keep them at bay this might be hard to watch, but thank God you were there to help him.
I smoke it too it deffo helps with a lot of things in epilepsy, it gets looked down on so much but I still seem to have clusters of seizures every month and still trying to find out why It’s still happening thank you so much for yours support 💜🙏💯
Gosh, that was a long one...did you have to go to the hospital? I'm so sorry you have to deal with this, it must be horrendous to have seizures so often.
Take care urself
Сам эпилептик с 15 лет и глядя на эти приступы эпилепсии понимаю, что чувствуют мои близкие, снимать на телефон нужно, чтобы потом можно было врачам показать и они по этим записям уже определили какая это форма эпилепсии,а вот в интернет выкладывать это как то неправильно, лично мне бы такая,, реклама,, не понравилась
I understand I have non eplitic seizures n little photosensitive eplipsey
The amount of sweat and stress on your body during the seizure is huge. You must be exhausted after this grand mal seizure.
Yeah. I’ve heard it makes you pretty tired afterwards.
Hi Alfie , How are you ! I had a question regarding the seizures . One of the dearest people in my life deals with epilepsy and it's still one of the hardest moments to watch everytime it happens . When I was a kid and something like it happened , I would just panic and don't know what to do . Now I'm a bit older , I want to help in everyway possible . So when you encounter one , does it help or comfort you if someone were beside you and supports you ? Or does it reduce the fear & anxiety that comes alongside ? Or should the person stay away until its over? I wanted to ask so I could do the right thing if it happens 🤍. Thanks and be well🙏🏻
We saw your comment and can offer our experience.. we hope it helps a bit..
Everyone is different.. asking the person beforehand always helps..
In our experience.. we had known each other since wee children.. I first helped William with a seizure when we were 5.. we had talked about it and he told me what helped him.. and I did that..
Mostly he had his at night.. by 15 we were gf/bf with plans to marry.. so I had a lot of experience helping him..
Basically you do your best to stay calm.. not easy.. and you make sure they are safe..
As William and I grew older.. his seizures worsened.. and we married .. I slept next to him on a mattress on the floor to keep him safe..
When you love the one who is suffering.. your desire to help them overcomes the fear. You learn you can do what needs to be done.. you are stronger than you think..
Hope this helps a bit.. that you cared enough to make a comment shows you care.. that’s half the battle right there.. 💜💙
@@Jen999 thank you so much. I appreciate that 🙏🏻
@@lania.m Life is tough. With epilepsy.. everything is at least 100 times harder..
We need to help each other much as we can..
Sending you prayers and love.. along with hope snd hugs💜💙🤗🙏🦋
This is awful for you I’m so sorry. I’m wondering when you were diagnosed with epilepsy ?
Thank you for your support and it was March 2019 I got diagnosed 💜💜
This something - which should remain private - why would someone - want the world to his this state!!!
Awareness, education and support!
If you suffer from this.. or love someone who does.. you welcome all the info you can get.. this channel is wonderful.. helps so much to know we are not alone.. and there are some who actually care.. rather than just stare and say cruel things.. Alfie’s channel is the answer to fervent prayers for many💜💙
@@Jen999 He could have died fr this - Not
Educational - keep things Private - of this nature
@@loismcmillan5464 Respect your opinion very much.. and you are correct.. people can and sadly do die from dire effects of epilepsy.. even so, many deaths and injuries can be prevented with proper education about what to do and when to do it.. Alfie is courageously using these videos of himself to help others suffering from epilepsy.. as well as those who care for them and love them.. my beloved husband lost his final battle to this wretched disease.. and my family and I stand behind anyone brave enough to help others.. it means so much to know that you are not alone 💜💙
@@loismcmillan5464 yes.. sadly it is possible to die from the dire effects of epilepsy.. that is why awareness, education and support., which Alfie offers on his channel.. are so important.. my beloved husband fought hard against this scourge.. and sadly lost his battle years ago.. the war rages on.. and many battles are being won.. thanks to awareness, education and support., provided by channels such as Alfie’s .. always assuring us that we are not alone💙💜
Зачем и для чего выставлять на обозрение мучения человека,для чего?
Всем известно что это за болезнь и как люди страдают!!!Я считаю что только для сбора лайков!
Monster!
Hey Alfie
Hope your ok bud.. Looks as tho your still having a rough time of it
Have they increased your medication yet?
I’m currently on 400mg Lamotrigine a day.. i’ve noticed an improvement on my seizure activity
Hwyl
Arf from Chester
Hey sorry for the late reply heads been everywhere and get a lot of comments they put my tablets up to 400mg Lamotrigine a day and 1000mg keppra to see if that works but the side effects are madness😵😵
@@alfiesepilepsychannel😔
Hells bells! im only on 100mg..but it works!....xxxxxto you
QUÉ HACER EN CASO DE UN ATAQUE EPILÉPTICO...GRABAR Y EXIBIR A TU FAMILIAR😢
🙏🏼🙏🏼
I feel so bad for him is he medicated?
I hate this for you. I have generalized epilepsy and non epileptic seizures snd a VNS implant set to every 1 1/2 minutes. I would not eosh any of this on anyone!?
سلام عليكم. يمكن علاجه بالقرآن الكريم يستمع إليه. أتمنى له شفاء العاجل إن شاء ألله.الله معكم
🥺😔🙏♥❤
😢😢
❣🙏
This made me cry . Allah bless u my bro 🥺❤️
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Oh, honey
My seizures start with an aura and I lose consciousness but I do not convulse. Coworkers say it just looks like I died.. Does this mean they're tonic and not clonic?
Sounds like the end of an aura and the start of a tonic clonic but not fully going into one tonic means your body stiffens up and you fall down and a clonic seizure is where parts of your body start to jerk and shake and possibly your whole body
@@alfiesepilepsychannel My body does fall to the ground and stiffen up.... it just doesn't convulse. I thought I made that clear my bad..
No one really needs to this his suffering - keep these episodes private
Where are you live ??
😢😢😢😢😢
call a doctor
Please look into diet changes, and try a Keto diet. Also cannabis oil has been proven and effective to stop seizures. I hope this helps, poor guy.
Why film it
Prima che gli vengono le crisi deve fare la respirazione diaframmatica
That’s not fine
Эпилепсия.
RSO
It’s kind of stupid, not trying to hate, but don’t record it, get helping them, don’t just let it happen.
I know what you mean but number 1 my mum is very weak and Ive hurt her before in the main stage and you’ve got to remember it’s dead weight at 11 stone it’s hard to move and would never want to hurt her number 2 I want to know what it looks like after waking up and getting told what’s happened mainly curiosity and thirdly I want them on record to support others in same situation and educate others that don’t understand or know much I appreciate your support so much but you’ve got to understand the reason first 💯💜
Thanks for letting me know, I hope he is ok now@@alfiesepilepsychannel
Sono una ragazzina di 36 anni con dei probemi di salute dalla nascita e mi chiamo Rita. Ti volevo dire che tu x me sei bellissimo e speciale ❤
i am so sorry that this is happening to you
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