God Bless you for doing these videos Alfie.. please know you mean the world to us.. so thankful you have a job where they understand and will help you when you need it..💜 We are crying as we watch this.. we just watched the focal seizure video.. and when this update popped up.. was so relieved to see you.. 💜 Please do not worry about ignorant people and their dirty looks.. know that is hard as hell to do.. understand how you feel when you suffer a seizure in public.. my husband had this happen too.. it is beyond embarrassing.. it is mortifying.. and so.. please let those remarks slide away from you.. again not easy.. but you are a strong and courageous guy.. and doing this will ease your anxiety a bit..💜 Alfie you have nothing to apologize for.. these seizures are awful.. they are not your fault… shit happens.. and we cannot even think of anything harder to go through this as we watch you suffer in these videos..😭 Sorry if I am making mistakes.. can hardly see to type this.. 😭 You are a kind and caring guy who is loved by many.. as the comments you get prove.. all of us want one thing.. to see you seizure free.. and we are praying hard for this..🙏 Please know you are not alone either.. you are surrounded with love.. 💜 So keep on being the great guy you are.. making your wonderful music.. and knowing always you are on our minds and in our hearts.. we love you💜💙
Epilepsy is not kind… you are.. Epilepsy does not care.. you do.. Seizures are frightening.. you have the courage to face them.. Auras fill you with fear.. you are strong enough to get thru them… Courage is being afraid.. but going on… That’s what you do each day.. Just keep doing that.. and you’ll get there, Alfie.. Epilepsy is tough.. you are tougher.. Keep that in your mind.. always💜💙
After watching your latest update.. this one was at the end.. and we watched again.. These bring back so many memories of what my William went thru.. he was terrified of the aura.. because he knew what followed after.. William’s were a bit different.. as you say .. everyone is different When it came upon him.. I could feel it too.. and would try to get him somewhere safe.. He cried, Alfie.. he literally shook and sobbed.. as if his heart was breaking.. would hold him to assure him I was there.. and I would not leave him ever.. He could not speak at all.. only huge sobs that shook his whole body.. the doctor said he had a rare type of nocturnal epilepsy.. Usually his seizures came at night.. they were very violent.. he would suddenly sit up in bed and scream.. then shake and sob.. He convulsed so hard he bruised and sometimes fractured his ribs.. he was utterly terrified and seemed to be trying to escape something awful.. Still wake up myself at night and reach out for him.. to see if he is alright.. this will probably always be this way for me.. Whenever anyone comments about that fear.. or you talk about it when explaining auras.. understand completely I do.. You are such a blessing to all those who come to your channel to talk.. to ask questions.. just to be with someone who understands because he goes thru this himself.. There is no way to thank you properly for what you do, Alfie.. you are so courageous and kind to do this.. Talking about it helps., knowing you are there.. and that you care.. means the world.. Thank you, Alfie, for reading all our comments.. you are a hero to many.. including me.. God Bless you.. and help you heal.. sending you many hugs and much love.. with tons of respect💜💙🦋
This video came on our internet feed today.. and we watched again.. please do not feel you need to apologize for anything Alfie.. that you are able to do these updates.. after suffering so much.. completely blows our minds.. we understand and feel so grateful to you for sharing these.. your courage and strength are phenomenal.. we know from experience what these seizures take from you.. Talking about comments.. we are amazed how attentive you are to us.. we appreciate you so much because what you do.. is you keep us informed of how you do.. and that means the world to us.. because you do.. and it relieves our minds to see you there talking to us.. and we know you are safe.. that is what matters most to us..that you are safe💜💜 And all those guys giving you looks and remarks.. they have no idea what you go through.. but we do.. and we cry because we know how that feels💜💜 My husband used to try to look at me when he felt the aura.. we had talked about it and he said I’ll try to say help me if I can.. and that’s what he did.. and try to help him I did💜💙 We think about you every day and then we pray.. you mean the world to us.. just to see you and know you are safe is all we need.. 💜💜 You are not just a sweet guy who suffers from epilepsy.. you are a friend who cares .. who shares the most difficult times of his life.. so others will not feel alone.. God Bless you, dear Alfie.. we consider you a member of our family.. and we love you as one..please take care.. we are here for you.. 💜💙
Keep your head up brother. My doctors put me on 1000 mg Keppra and 150 mg Lamotrigine when I left the hospital the last time. I’m still glad you’re making music and working, I’m doing the same. The memory, brain fog, anxiety and all the side effects will eventually go away just takes patience for your body to adapt to. Stay healthy and well brother . Thank for the update videos!
Thank you so much brother means a lot and I feel for you really does take a lot of patience and strength to fight through the side effects of the meds and constant anxiety about when it’s going to happen next I try and put that to the side by making music and keeping myself and my brain occupied and I hope the best for you and hope you stay safe and healthy and no problem mate nobody should go through this alone 💜💙💯🙏
We were watching this again.. as RUclips put it on .. and we listened to you talking about work.. and that some guys were giving you dirty looks and remarks.. those really hurt .. even though they may not know about epilepsy.. and that you suffer from it.. it still hurts.. and it’s awful when it happens in public.. those stares are so painful.. 💜💜 The worst experience we ever had was when my husband .. we were dating then..suffered a seizure at the library.. we were 15 and he had been having these all his life.. we knew what to do.. and the librarian helped by getting most people away.. it was what was called grand mal then.. after it.. while my poor guy was in the recovery stage.. some girl who did not understand came up to me and said a bunch of not nice things.. I ignored her as I was trying to help my guy., she persisted.. ending with.. I see you are wearing his ring.. you’re not gonna marry him are you.. I gave her a if looks could kill look and she gave up and walked off a bit from us.. The librarian finally asked her to leave .. and that’s when the tears came.. People are cruel.. and ignorance is often why.. that is why what you do is so important.. to let people know what is true.. and what to do.. Every time we watch these brings memories to the forefront.. and every time we watch you suffering through this.. we thank you .. because you are making life easier.. safer.. and better for every one of us who so needs it to be.. you help more than you know.. and we appreciate you so much..💜💜 And yes.. I DID marry my beautiful guy.. loved him all my life.. still do .. We love you Alfie.. thank you for doing this.. especially from those like me from the opposite side of the fence.. caring for those we love 💜💙
Hey man, thanks for sharing this with us. I really appreciate it. I'm glad I get to know you. I am learning how epilepsy goes beyond only the seizures. Never realized how terrible it is for someone who suffers from it. I can't explain, but I really sympathize with you. I think just because you're such a friendly guy. Your sadness and struggle touch me very much. My prayers are with you. Thanks for everything. Bey 😊🤜🏼🙏🏼
Thank you so much it really is more than just seizures both mentally and physically hence why I show the focal seizures too as they take it out of you enough mentally and emotionally, nobody should go through this alone it’s demoralising thank you so much for your support means the world 💜
Four months ago we commented on this video.. from that day to this you have suffered much Alfie.. Still .. you do not give up.. you get up each day… and you do your best.. Still.. you go to the neurologist.. you stand up for yourself.. you say enough is enough.. and you make change happen.. Still … Your road is not easy.. you are a man of courage and strength.. you persevere.. Still … you make the most beautiful and inspiring music.. day after day you work hard doing this.. So.. four months have passed.. you are here.. you are fighting.. and you are forging onwards and upwards .. still.. And we are all here to support you.. to hug you.. to pray for you.. to love you.. still.. Nothing is ever gonna change that Alfie.. you will be loved.. forever💜💙🙏
I think your Amazing Alfie make me wo mad when said people look at you funny its not your fault you have seizures i think your such lovely person stay stong and just keep being you from Kerrie 💜
My step dad recently crashed a car due to a focal seizure. It had been well over a year since his previous seizure so he had the medical clearance to be driving but that didn’t stop the traffic controller from judging him for it. People who don’t know anything about the illness always seem to assume the worst and don’t realize that epilepsy is incredibly complicated and different for everyone
I feel for you and your dad it’s so unpredictable and that’s exactly why I made this channel to educate people who don’t know about epilepsy or the side effects of everyday life and for people who are in the same situation to know they’re not alone and to show what it looks like I know some are hard to watch but I’m just so curious to what happens after going unconscious and want to see it and what it looks like and a load of people with epilepsy or seizures have that same question. Nobody should go through this alone 💜🙏💯
Hey dude. Got diagnosed with seizures recently after 2 years with of undiagnosed focal seizures that turned into full T/C ones. Lost my previous job too. Medics believe mines caused by fatigue. On lamotragine too. Sucks big time. Family total freak when I have one. Great to hear about your new job. X
I feel for you it really does suck man constantly worrying about when it’s going to strike again and thank you so much for your support means the world and just know you’re not alone 💜💜
Im so sorry you're going through this. My daughter has epilepsy and fatigue can trigger her seizures. She had a sleep study done and has Narcolepsy and hypersomnia. Its tough hang in there. Maybe need a sleep study? Also low blood sugar. Praying sweetheart for you.
I don’t have Epilepsy but I live with type one diabetes and low blood sugars are scary and stressful especially when it happens in public, one of the things that helped reduce the stress a little bit is wearing a medical ID, it makes me feel safer because if something happened people will know that I’m diabetic and I need help, or when I’m too low and can’t explain what’s going on and what kind of help I need I can just show them my bracelet. I didn’t know how much helpful it would be with the stress and anxiety until I started wearing it, so having one might help you as well. Wish you all the best 💜
One time I was at church and when we was about to leave this woman fainted she has diabetes and she didn’t eat anything in the morning but my dad he one time fainted to at crunch and my dad lefed me so 😢 he didn’t watch me grow up I was 5 when he lefed and now I’m 15 my birthday is in July 11th I will be 16 I hope he comes down here to see me! 😭🙏
My seizures and symptoms have been the same since the start pretty much and I valet cars cleaning inside and out and they have said to me if I ever have the auras or have a seizure before work just chill out as it will make me seize by stressing and stuff the bosses brother has epilepsy so they fully understand 🙏💜
Alfie don't you get sleepy before the crisis? I suffer in public to look lost and absent. People don't understand laugh imitate 😕 🥺 A former schoolmate tells me to be careful that I say you're beautiful but comment on focal seizures with absence 😒
I get a really scary strange panic feeling mixed with crazy anxiety about it happening and when it starts to take me into a full seizure I start either laughing or crying which people really misunderstand hence why I’m uploading these videos to show people that not everything is what it seems thank you so much for your support 💜💜
@@alfiesepilepsychannel he takes me at a certain time with great sleepiness or squeezes me painfully in his fingers, hands, legs, certain areas and struggles, I don't know why, but I don't want to fall asleep during the day. I don't fall to the ground, I just stare blankly, absentmindedly bowing my head. i don't know anything when i do this people laugh imitating it annoys me
God Bless you for doing these videos Alfie.. please know you mean the world to us.. so thankful you have a job where they understand and will help you when you need it..💜
We are crying as we watch this.. we just watched the focal seizure video.. and when this update popped up.. was so relieved to see you.. 💜
Please do not worry about ignorant people and their dirty looks.. know that is hard as hell to do.. understand how you feel when you suffer a seizure in public.. my husband had this happen too.. it is beyond embarrassing.. it is mortifying.. and so.. please let those remarks slide away from you.. again not easy.. but you are a strong and courageous guy.. and doing this will ease your anxiety a bit..💜
Alfie you have nothing to apologize for.. these seizures are awful.. they are not your fault… shit happens.. and we cannot even think of anything harder to go through this as we watch you suffer in these videos..😭
Sorry if I am making mistakes.. can hardly see to type this.. 😭
You are a kind and caring guy who is loved by many.. as the comments you get prove.. all of us want one thing.. to see you seizure free.. and we are praying hard for this..🙏
Please know you are not alone either.. you are surrounded with love.. 💜
So keep on being the great guy you are.. making your wonderful music.. and knowing always you are on our minds and in our hearts.. we love you💜💙
Thank you so much 💜💜
@@alfiesepilepsychannel You are welcome.. and you are loved💜💙
You have a beautiful soul. I would love to have a friend like you ❤
Epilepsy is not kind… you are..
Epilepsy does not care.. you do..
Seizures are frightening.. you have the courage to face them..
Auras fill you with fear.. you are strong enough to get thru them…
Courage is being afraid.. but going on…
That’s what you do each day..
Just keep doing that.. and you’ll get there, Alfie..
Epilepsy is tough.. you are tougher..
Keep that in your mind.. always💜💙
After watching your latest update.. this one was at the end.. and we watched again..
These bring back so many memories of what my William went thru.. he was terrified of the aura.. because he knew what followed after..
William’s were a bit different.. as you say .. everyone is different
When it came upon him.. I could feel it too.. and would try to get him somewhere safe..
He cried, Alfie.. he literally shook and sobbed.. as if his heart was breaking.. would hold him to assure him I was there.. and I would not leave him ever..
He could not speak at all.. only huge sobs that shook his whole body.. the doctor said he had a rare type of nocturnal epilepsy..
Usually his seizures came at night.. they were very violent.. he would suddenly sit up in bed and scream.. then shake and sob..
He convulsed so hard he bruised and sometimes fractured his ribs.. he was utterly terrified and seemed to be trying to escape something awful..
Still wake up myself at night and reach out for him.. to see if he is alright.. this will probably always be this way for me..
Whenever anyone comments about that fear.. or you talk about it when explaining auras.. understand completely I do..
You are such a blessing to all those who come to your channel to talk.. to ask questions.. just to be with someone who understands because he goes thru this himself..
There is no way to thank you properly for what you do, Alfie.. you are so courageous and kind to do this..
Talking about it helps., knowing you are there.. and that you care.. means the world..
Thank you, Alfie, for reading all our comments.. you are a hero to many.. including me..
God Bless you.. and help you heal.. sending you many hugs and much love.. with tons of respect💜💙🦋
This video came on our internet feed today.. and we watched again.. please do not feel you need to apologize for anything Alfie.. that you are able to do these updates.. after suffering so much.. completely blows our minds.. we understand and feel so grateful to you for sharing these.. your courage and strength are phenomenal.. we know from experience what these seizures take from you..
Talking about comments.. we are amazed how attentive you are to us.. we appreciate you so much because what you do.. is you keep us informed of how you do.. and that means the world to us.. because you do.. and it relieves our minds to see you there talking to us.. and we know you are safe.. that is what matters most to us..that you are safe💜💜
And all those guys giving you looks and remarks.. they have no idea what you go through.. but we do.. and we cry because we know how that feels💜💜
My husband used to try to look at me when he felt the aura.. we had talked about it and he said I’ll try to say help me if I can.. and that’s what he did.. and try to help him I did💜💙
We think about you every day and then we pray.. you mean the world to us.. just to see you and know you are safe is all we need.. 💜💜
You are not just a sweet guy who suffers from epilepsy.. you are a friend who cares .. who shares the most difficult times of his life.. so others will not feel alone..
God Bless you, dear Alfie.. we consider you a member of our family.. and we love you as one..please take care.. we are here for you.. 💜💙
I am glad you are recovering well hugs to you and praying for you always brother
Keep your head up brother. My doctors put me on 1000 mg Keppra and 150 mg Lamotrigine when I left the hospital the last time. I’m still glad you’re making music and working, I’m doing the same. The memory, brain fog, anxiety and all the side effects will eventually go away just takes patience for your body to adapt to. Stay healthy and well brother . Thank for the update videos!
Thank you so much brother means a lot and I feel for you really does take a lot of patience and strength to fight through the side effects of the meds and constant anxiety about when it’s going to happen next I try and put that to the side by making music and keeping myself and my brain occupied and I hope the best for you and hope you stay safe and healthy and no problem mate nobody should go through this alone 💜💙💯🙏
We were watching this again.. as RUclips put it on .. and we listened to you talking about work.. and that some guys were giving you dirty looks and remarks.. those really hurt .. even though they may not know about epilepsy.. and that you suffer from it.. it still hurts.. and it’s awful when it happens in public.. those stares are so painful.. 💜💜
The worst experience we ever had was when my husband .. we were dating then..suffered a seizure at the library.. we were 15 and he had been having these all his life.. we knew what to do.. and the librarian helped by getting most people away.. it was what was called grand mal then.. after it.. while my poor guy was in the recovery stage.. some girl who did not understand came up to me and said a bunch of not nice things.. I ignored her as I was trying to help my guy., she persisted.. ending with.. I see you are wearing his ring.. you’re not gonna marry him are you.. I gave her a if looks could kill look and she gave up and walked off a bit from us..
The librarian finally asked her to leave .. and that’s when the tears came..
People are cruel.. and ignorance is often why.. that is why what you do is so important.. to let people know what is true.. and what to do..
Every time we watch these brings memories to the forefront.. and every time we watch you suffering through this.. we thank you .. because you are making life easier.. safer.. and better for every one of us who so needs it to be.. you help more than you know.. and we appreciate you so much..💜💜
And yes.. I DID marry my beautiful guy.. loved him all my life.. still do ..
We love you Alfie.. thank you for doing this.. especially from those like me from the opposite side of the fence.. caring for those we love 💜💙
Hey man, thanks for sharing this with us. I really appreciate it.
I'm glad I get to know you. I am learning how epilepsy goes beyond only the seizures. Never realized how terrible it is for someone who suffers from it.
I can't explain, but I really sympathize with you. I think just because you're such a friendly guy. Your sadness and struggle touch me very much.
My prayers are with you.
Thanks for everything. Bey 😊🤜🏼🙏🏼
Thank you so much it really is more than just seizures both mentally and physically hence why I show the focal seizures too as they take it out of you enough mentally and emotionally, nobody should go through this alone it’s demoralising thank you so much for your support means the world 💜
@@alfiesepilepsychannel Thnx for your response. Take care mate 😊
Four months ago we commented on this video.. from that day to this you have suffered much Alfie..
Still .. you do not give up.. you get up each day… and you do your best..
Still.. you go to the neurologist.. you stand up for yourself.. you say enough is enough.. and you make change happen..
Still … Your road is not easy.. you are a man of courage and strength.. you persevere..
Still … you make the most beautiful and inspiring music.. day after day you work hard doing this..
So.. four months have passed.. you are here.. you are fighting.. and you are forging onwards and upwards .. still..
And we are all here to support you.. to hug you.. to pray for you.. to love you.. still..
Nothing is ever gonna change that Alfie.. you will be loved.. forever💜💙🙏
Thank you so much means the world💜💜xxx
@@alfiesepilepsychannel Always you mean the world to us Alfie.. always you are loved💜💙xxx
Feel better soon prayers for you
I think your Amazing Alfie make me wo mad when said people look at you funny its not your fault you have seizures i think your such lovely person stay stong and just keep being you from Kerrie 💜
My step dad recently crashed a car due to a focal seizure. It had been well over a year since his previous seizure so he had the medical clearance to be driving but that didn’t stop the traffic controller from judging him for it. People who don’t know anything about the illness always seem to assume the worst and don’t realize that epilepsy is incredibly complicated and different for everyone
I feel for you and your dad it’s so unpredictable and that’s exactly why I made this channel to educate people who don’t know about epilepsy or the side effects of everyday life and for people who are in the same situation to know they’re not alone and to show what it looks like I know some are hard to watch but I’m just so curious to what happens after going unconscious and want to see it and what it looks like and a load of people with epilepsy or seizures have that same question. Nobody should go through this alone 💜🙏💯
Hey dude. Got diagnosed with seizures recently after 2 years with of undiagnosed focal seizures that turned into full T/C ones. Lost my previous job too. Medics believe mines caused by fatigue. On lamotragine too. Sucks big time. Family total freak when I have one. Great to hear about your new job. X
I feel for you it really does suck man constantly worrying about when it’s going to strike again and thank you so much for your support means the world and just know you’re not alone 💜💜
you beautiful boy, you don't have to take what the bad world says to heart. You are a normal person just like everyone else.
Im so sorry you're going through this. My daughter has epilepsy and fatigue can trigger her seizures. She had a sleep study done and has Narcolepsy and hypersomnia. Its tough hang in there. Maybe need a sleep study? Also low blood sugar. Praying sweetheart for you.
Also what’s the work you’re doing now? How have they accommodated your condition?
I understand what you are going through Alf😊
I don’t have Epilepsy but I live with type one diabetes and low blood sugars are scary and stressful especially when it happens in public, one of the things that helped reduce the stress a little bit is wearing a medical ID, it makes me feel safer because if something happened people will know that I’m diabetic and I need help, or when I’m too low and can’t explain what’s going on and what kind of help I need I can just show them my bracelet. I didn’t know how much helpful it would be with the stress and anxiety until I started wearing it, so having one might help you as well. Wish you all the best 💜
Hope you feel better Wish I couldbelp
what beautiful blue eyes you have. They are wonderful. ☺
One time I was at church and when we was about to leave this woman fainted she has diabetes and she didn’t eat anything in the morning but my dad he one time fainted to at crunch and my dad lefed me so 😢 he didn’t watch me grow up I was 5 when he lefed and now I’m 15 my birthday is in July 11th I will be 16 I hope he comes down here to see me! 😭🙏
hope you feel better，hug
Have the seizures and symptoms of epilepsy changed at all over time for you or is it pretty much the same as when you first started having seizures?
My seizures and symptoms have been the same since the start pretty much and I valet cars cleaning inside and out and they have said to me if I ever have the auras or have a seizure before work just chill out as it will make me seize by stressing and stuff the bosses brother has epilepsy so they fully understand 🙏💜
I’m so sick today my head hurts and I’m coughing and my throat hurts 😢
Hey Alfi what are you doing are you better?
Please change the battery in your smoke detector. Smoke detectors save lives.
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How are you feeling today ❤❤❤❤
Alfie don't you get sleepy before the crisis?
I suffer in public to look lost and absent. People don't understand laugh imitate 😕 🥺
A former schoolmate tells me to be careful that I say you're beautiful but comment on focal seizures with absence 😒
I get a really scary strange panic feeling mixed with crazy anxiety about it happening and when it starts to take me into a full seizure I start either laughing or crying which people really misunderstand hence why I’m uploading these videos to show people that not everything is what it seems thank you so much for your support 💜💜
@@alfiesepilepsychannel he takes me at a certain time with great sleepiness or squeezes me painfully in his fingers, hands, legs, certain areas and struggles, I don't know why, but I don't want to fall asleep during the day. I don't fall to the ground, I just stare blankly, absentmindedly bowing my head.
i don't know anything when i do this people laugh imitating it annoys me
@@Jen999yes he is a handsome boy with blue eyes and it is not his fault that he has these fits 😑
@@Jen999people laugh they mock they don't understand 😢😢
@@Jen999Alfie needs a girl to be by his side. To help him when he has crises to hug him warmly 🙂
😍😍😍😍😍😍😍😍🥰🥰🥰🥰
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