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nice shop...I am going in for surgery in 4 days////liked your video journey ...Thanks a lot! (HA HA i was also told that I got kidney stones as well...oh well pt 2

Hello , are you able to swallow properly now ? Im waiting for my next surgery to fix my esophagus

I am going in for this surgery in 2 weeks....thanks for the info.

Women have epidurals every day. We also end up with neglected and undiagnosed cancers as we’re told it’s anxiety, depression and hypochondria. And if we educate ourselves online even via nih and medical studies… we receive placating, gas lighting and are told to stay away from “Dr Google .” Meanwhile, in my life…. it was my online researched that saved my childrens’ lives….. Seattle children’s hospital gave me kudos on this after 10 years traveling country. Now…. trying to muster up strength to advocate for myself. I’ve lost weight and gained pants size meanwhile being jacked around by medical “professionals.” US system is screwed up and even still favors males. Just posting here and now in case it helps someone. 💜

Did you tried Psyllium?

How are you doing terry

listen....as a side sleeper, i understand "i truly cant sleep any other way" but i still dont think its impossible, maybe this works out for you but i think maybe the healthiest option would be the proper sleeping position, maybe abit upright too to prevent the reflux

My surgery, same but mostly robotic, is 7/29. Your posts give me hope!!

Micro Aspiration is the most disruptive and exhausting after surgery. I'm post surgery for 14 years. I have an electric bed too. The problem is at some point, I will roll on my side or slide down where the acid rolls up and into my lungs.

What a fabulously objective, down to earth and helpful video. Thank you so much. My post-op issue is possibly more with dumping than reflux but still need to keep an eye on it. Like yourself I was relatively(!) young for the procedure so have a long time to make sure I don’t let the long term effects accumulate and do damage… Hope you did have some takers for your Zoom. Many thanks and warm wishes from UK

I found another winner for the frothy acids. Try drinking fu brick tea or golden flower tea from china. It really makes a huge difference. Tastes a lot like mushroom and is easy to drink and enjoyable.

My doctors suggested not to eat dairy products because they have lactose. There are several free lactose in the market you can eat with no problems

About to have chemo and hopefully surgery for the same thing. Your videos have been a great help.

Hello friend I know what you are going through. I have had esophagus cancer, it's been 10 years now when I was 69. It's the most aggressive cancer if not Caught early it can be fatal. Yes eating is still a problem like you I can't eat big meals only little and often. Acid yes I know it's horrible feeling choking being sick eyes streaming nose running. Luckily doesn't happen now. I raised my bed by 6 inches to stop acid flowing back up into my throat like you said it burns. I can sleep on my back as long as I put plenty of pillows around me for support to stop me rolling in bed. I sympathise with you and your condition, I only have problems gaining weight I'm only 10 stone now from being 13 stone. I've tried protein powder and shakes,my Doctor prescribed me a protein drink twice a day, problem I think is I can't absorb food to store in my body. Well I wish you good luck for the future take care. Bryan whitehouse

That sounds frightening

Hello how are you now???

Hello! After my surgery, I was quickly back on my feet and was able to leave the hospital after about a week. I am now in my fifth year post-operation and supposedly cancer-free. However, my digestion of food has changed significantly, leading to frequent bloating and diarrhea. The symptoms of Dumping Syndrome, which often occur after diarrhea, are quite annoying, but it's all better than being dead. I can eat everything I want in moderation; it's just a question of whether I can tolerate it. It is important to sleep with your upper body elevated after the surgery because otherwise, the remaining stomach acid can flow into your throat and possibly your windpipe, which is very, very unpleasant.

9:00 thanks for sharing your journey. May God be with you during this difficult time 💕.

Would you get this operation if you esophagus got no cancer but is closed and only option to get off feeding tube is this major surgery you did ? Or would you just live your life without eating or drinking to avoid this surgery and complications and risk ? I’m in a situation.

Really admire you for caring enough to produce this video series.

Quite possibly my upcoming destiny. I’m grateful for someone so caring to do these videos to help others in the same rotten boat. Don’t know at present my stage hoping not too late. I’m 67 otherwise decent health.

What you're getting, is a "stomaphagus". My husband had this cancer and this surgery, and chemo and rad treatments. He was stage 3 when it was found. He lived 2 years exactly from the day of diagnosis. I wish better for you, and hope you have a great journey to health.

I am 34 years old and was diagnosed with stage 4 stomach cancer. Do not qualify for the surgery thank goodness. No more treatment for me. 12 rounds of chemo is more than enough.

Are you alive i m also going to do surgery so thanks for this video

I cant go write and left well

Terry how are you doing? My husband had the surgery 4 days ago minimally invasive robotic. Quite a bit of pain even with epidural but each day hopefully he will get better.

Where does the food go without a stomach and esophagus? Could you explain that? Does the food you eat go straight into your intestines without the esophagus and stomach? I’m so sorry that you went through that tragic experience? Wishing you the best of luck for a long happy prosperous life !! GOD BLESS YOU . I live with a chronic incurable intestinal illness called Crohn’s Disease so i’m no stranger to intestinal illnesses . Diagnosed when i was 17 in 1993. Have undergone several intestinal surgeries and have been living with a permanent ileostomy when i was 18 i’ve learned to live with my condition. Thank you so much for sharing your story !!! Do you have problems absorbing food ? and is malnutrition a problem for you?

Thank you so much for your posts...I just had an Ivor Lewis robotic assisted esophogectomy this week and your tips really prepared me. Godspeed ❤

Lumpy porridge is the best way I found to explain the 💩 form.

It is the third day after the operation. He is on life support at the moment. How does words describe the hell we go through. Life support scare me so much😢

How were you diagnosed?

Thanks for helping me understand how lm gonna be feeling soon. I wish I could talk to you more

My brother has this type of cancer and he just had surgery. It went well and he’s still got a long road but we’re all hopeful. God be with you brother.

Thank you for starting up your video's especially as you went through the whole process. I am at the satge of getting tested and finally diagnosed for what I feel is the same thing. I have trouble swallowing food, sorry not swallowing food but it getting into my stomach as I feel it sitting at the top of my stomach like a lump or plug. If I keep eating it just gets full of food and I can't get anything down then. I have had this for maybe a month or so, so hopefully I have caught it soon enough for a good outcome. I am in the process of researching absolutely everything and anything on this subject. I like to know exactly what is going on at all times when my body is concerned. I also seem to be burping or getting small amounts of gas coming up after eating. I can get liquids down easily but solid thick foods are a different issue all together. Even a chocolate bar will get stuck. Sorry to go on but your videos are the best out there and give me hope etc to get through this. I'm 65 and in somewhat good shape health wise other than this. Again thank you .

Hello from a seven year survivor of both esophagectomy and stomach removal! Glad to see your still doing ok ! Comment if you wish !

12 years this September since my major operation for oesophageal cancer.

Thank you. My husband is going through this...surgery in a month. I am so scared of losing him. These videos are my saving grace. Thank you. Thank you. Thank you

My husband had this op 12 years ago. A whole new normal. He still has the cough. Not as badly.. he was in hospital for 27 days.. keep getting better.. Judy

if there is a group for chat iam inn .... let me know plz so i send you my number

hi there ...i had the same surgery 2 years back and suffered acid reflux for quite sometime and now i sleep with 4 pillows i guess iam doing well my advise to you ...if you take some sleeping pill and try on your back for couple of days i guess you will get used to it ...good luck

My mother had same problem ,surgery over for 3 months, my mother feels obstruct at throat what we do

Thank you for your videos. They are very insightful. Good luck to you, I hope that with the help from God and the good doctors, you will be able to live a long life.

Thanks for posting this channel. I was diagnosed last year around April with T2 esophageal Adenacarcinoma. Your channel was the only one I watched prior to surgery. Worst thing someone can do is Google their diagnosis and figure out what to do. I had surgery (Esophagectomy) in June. No chemo or radiation. I had my esophagus stretched twice since. No complications except for aspirating in my lungs. Sleep on my back with an adjustable bed. I have resorted to a neck brace to keep my head up. In the past week I have aspirated 3 x’s. Not fun. I am eating a cup of shredded wheat as I type. Hope it works. Before I had surgery your videos really helped me keep it together & brought me through where I am today. So thank you. Keep up the videos when you can. 👍

Hi Terry just wondering if you still doing zoom meeting thank you for the video

Hi I m from india and also suffering frm same disease Surgery done before 1 month i just want to know how are you now???

Wish you all the best brother. Stay strong 💪🏼

I’m 36 years old now, I was 20 when I started having problems eating, I was pretty fit and healthy, always slept on my side lol. I was diagnosed with achalasia, was told I was going to have key hole surgery to cut open the bottom of my esophagus where it joined my stomach because it had basically closed up. They told me I’d be in there 1/2 nights. Was in there 6 weeks. Nearly died. Was put in a medically induced coma. Was on a ventilator. They had to do an emergency esophagectomy. Was nil by mouth for about 4 weeks. Couldn’t get out of bed for about 3/4 weeks. They damaged my left lung during the surgery. Now I have chronic lung disease, can’t get my weight above 11stone. Can’t eat much at all. Can’t sleep for shit. But I’m still here I suppose and I’ve gone on to have 3 more beautiful babies

Hello there mister. I don't think you are aware how inspiring and comforting your videos are. Thank you for sharing your journey. Im happy you are alive and well and i hope you will be alive and well for long time to come. Definitely make an update video every now and then maybe 2 or 3 times a year

My husband is 5 years out and he's has the exact symptoms as you. But he is still working in the coal mines and is on 2nd shift, which makes it hard on him not eating before he goes to bed and I definitely will buy the mini wheat but he has found that eating the fruit Welch's gummies that helps him alot..He was wanting to ask you about your energy levels. That is alot of his problem. He is very interested keeping in touch and sharing our stories. Maybe together we can help each other out.. He has had problems with swallowing and for a year we where going to get his esophagus dilated at least 2 to 3 times a year..

My husband is 5 years in after his esophagus removal and we are definitely interested in joining your chat room