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Periodic Paralysis Association
Добавлен 2 фев 2021
This is the official RUclips Page of the Periodic Paralysis Association (www.periodicparalysis.org)
The Periodic Paralysis Association is a Non-profit Charitable Corporation founded to foster awareness of the periodic paralyses, promote science-based information regarding this class of disorder, and champion the interests of the Periodic Paralysis Community.
WHAT IS PERIODIC PARALYSIS?
Periodic Paralysis is a group of disorders whereby patients become temporarily paralyzed due to triggers such as rest after exercise or certain foods. These disorders are part of a broader class of disorders called ion channelopathies, in which a genetic defect in a muscle ion channel results in symptoms of episodic stiffness or weakness in response to certain triggers.
Learn more at www.periodicparalysis.org/
#periodicparalysis #PPA #raredisease #muscleweakness #notfakingit #paralyzed #paralysis #neurologicaldisorder #neurogicaldisease #neuromuscular
The Periodic Paralysis Association is a Non-profit Charitable Corporation founded to foster awareness of the periodic paralyses, promote science-based information regarding this class of disorder, and champion the interests of the Periodic Paralysis Community.
WHAT IS PERIODIC PARALYSIS?
Periodic Paralysis is a group of disorders whereby patients become temporarily paralyzed due to triggers such as rest after exercise or certain foods. These disorders are part of a broader class of disorders called ion channelopathies, in which a genetic defect in a muscle ion channel results in symptoms of episodic stiffness or weakness in response to certain triggers.
Learn more at www.periodicparalysis.org/
#periodicparalysis #PPA #raredisease #muscleweakness #notfakingit #paralyzed #paralysis #neurologicaldisorder #neurogicaldisease #neuromuscular
Why Periodic Paralysis patients need this bracelet
For those with Periodic Paralysis (HKPP), a medical ID band could be a potentially life-saving purchase! Because as much as we don’t like to talk about it, accidents can happen anywhere at any time and sometimes our attacks can get so severe, we lose the ability to effectively communicate with first responders. Which is why a medical ID band is so important!
Watch the full video to see all the other reasons to buy a medical ID band, and what information is the most crucial to put on it!
#PeriodicParalysis #TemporaryParalized #PPA
Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.pe...
Watch the full video to see all the other reasons to buy a medical ID band, and what information is the most crucial to put on it!
#PeriodicParalysis #TemporaryParalized #PPA
Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.pe...
Просмотров: 149
Видео
I am more than just HKPP. I am a person. | Documentary Clip | PPA
Просмотров 18810 месяцев назад
Monica discusses how her life goes beyond HKPP, sharing love for horse-riding and other rigorous activities, defying the conventional expectations that often surround people with chronic conditions. #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website...
My journey getting diagnosed with HKPP | Documentary Clip | "I Never Fake It: A Medical Odyssey"
Просмотров 54210 месяцев назад
Experience Monica's journey as she goes from confronting puzzling symptoms of weakness to her eventual diagnosis. But her story doesn't end there, check out the full documentary available right here: #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA websit...
I Never Fake It: A Medical Odyssey | Full Documentary | PPA
Просмотров 3,8 тыс.11 месяцев назад
Experience Monica's heartfelt and inspiring story as she opens up about the journey of discovering her rare medical condition, and the science which led to her diagnosis. 3 MAIN HASTAGS GO HERE #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at w...
"I Never Fake It" Documentary TRAILER | A Medical Odyssey | PPA
Просмотров 49211 месяцев назад
Trailer for the official documentary "I Never Fake It: A Medical Odyssey." Explore one woman's journey of discovering she has a rare medical condition, and the science which led to her diagnosis. #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at...
2023 aanem annual meeting dr karen suetterlin mp4 1080p
Просмотров 212Год назад
#PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about the condition. You can also donate at www.periodicparalysis.org/donate Your ...
2023 aanem annual meeting dr stephen cannon mp4 1080p
Просмотров 152Год назад
#PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about the condition. You can also donate at www.periodicparalysis.org/donate Your ...
Giving Tuesday 2023 PPA Video
Просмотров 190Год назад
#PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about the condition. You can also donate at www.periodicparalysis.org/donate Your ...
2023 PPA Conference: Dr Chuquilin: Medication options for Primary Periodic Paralysis 002
Просмотров 505Год назад
2023 PPA Conference: Dr Chuquilin: Medication options for Primary Periodic Paralysis 002 #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with que...
2023 PPA Conference: Dr Cannon: What is Primary Periodic Paralysis 001
Просмотров 929Год назад
2023 PPA Conference: Dr Cannon: What is Primary Periodic Paralysis 001 #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about the c...
2023 PPA Conference: Anita Dharwadkar: Periodic Paralysis and Nutrition 005
Просмотров 260Год назад
2023 PPA Conference: Anita Dharwadkar: Periodic Paralysis and Nutrition 005 #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about ...
2023 PPA Conference: Dr. Harr: Navigating the World of Anesthesia Medications for Periodic Paralysis
Просмотров 268Год назад
2023 PPA Conference: Dr. Harr: Navigating the World of Anesthesia Medications for Periodic Paralysis #periodicparalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP...
2023 PPA Conference: Dr Cannon, Therapeutic Pipeline for Primary Periodic Paralysis 004
Просмотров 280Год назад
2023 PPA Conference: Dr Cannon, Therapeutic Pipeline for Primary Periodic Paralysis 004 #periodicparalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with ques...
2023 PPA Conference: Dr Cannon, Potassium and Periodic Paralysis Secondary Periodic Paralysis 003
Просмотров 518Год назад
2023 PPA Conference: Dr Cannon, Potassium and Periodic Paralysis Secondary Periodic Paralysis 003 #periodicparalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or...
2023 PPA Conference: Sandy Drenner, Mind Body Connection Fact or Fiction 006
Просмотров 211Год назад
#PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about the condition. You can also donate at www.periodicparalysis.org/donate Your ...
Kirsten and Janine PPP Mentor Connect™ and Community Impact CS 1
Просмотров 192Год назад
Kirsten and Janine PPP Mentor Connect™ and Community Impact CS 1
FINAL Dennis PPA Video KEVEYIS 08 01 2023
Просмотров 234Год назад
FINAL Dennis PPA Video KEVEYIS 08 01 2023
Vahe PAM Experience and Patient Support in PPP CS 1
Просмотров 186Год назад
Vahe PAM Experience and Patient Support in PPP CS 1
Medications and Periodic Paralysis with Dr. Chuquilin
Просмотров 1,6 тыс.Год назад
Medications and Periodic Paralysis with Dr. Chuquilin
The role genetic testing plays in diagnosing PPP -- a LIVE Webinar with Dr. Cannon
Просмотров 9412 года назад
The role genetic testing plays in diagnosing PPP a LIVE Webinar with Dr. Cannon
Most FAQ About Periodic Paralysis Part 2 | Ask The Expert Ep 08
Просмотров 1 тыс.2 года назад
Most FAQ About Periodic Paralysis Part 2 | Ask The Expert Ep 08
Most FAQ's About Periodic Paralysis | Ask The Expert Ep 07 | Part 1 of 2
Просмотров 1,1 тыс.2 года назад
Most FAQ's About Periodic Paralysis | Ask The Expert Ep 07 | Part 1 of 2
Andersen Tawil Syndrome | PPA SUMMIT 2021 Supercut #6
Просмотров 1,9 тыс.2 года назад
Andersen Tawil Syndrome | PPA SUMMIT 2021 Supercut #6
CRISPR Editing for Rare Disease, Periodic Paralysis | PPA SUMMIT 2021 Supercut #5
Просмотров 5932 года назад
CRISPR Editing for Rare Disease, Periodic Paralysis | PPA SUMMIT 2021 Supercut #5
Paramyotonia Congenita - An Expert Discussion | PPA SUMMIT 2021 Supercut #4
Просмотров 1,9 тыс.2 года назад
Paramyotonia Congenita - An Expert Discussion | PPA SUMMIT 2021 Supercut #4
Family Genetic Testing Finds SCNA4A Variant Defect | PPA SUMMIT 2021 Supercut #3
Просмотров 8522 года назад
Family Genetic Testing Finds SCNA4A Variant Defect | PPA SUMMIT 2021 Supercut #3
Safe Anesthesia for Periodic Paralysis Patients During Surgery | PPA SUMMIT 2021 Supercut #2
Просмотров 1 тыс.2 года назад
Safe Anesthesia for Periodic Paralysis Patients During Surgery | PPA SUMMIT 2021 Supercut #2
Repurposing A Drug for Preventing Attacks of Periodic Paralysis | PPA SUMMIT 2021 Supercut #1
Просмотров 9392 года назад
Repurposing A Drug for Preventing Attacks of Periodic Paralysis | PPA SUMMIT 2021 Supercut #1
Sharing | #GivingTuesday | Giving A Voice By Sharing | #GivingAVoice For Rare Diseases
Просмотров 1463 года назад
Sharing | #GivingTuesday | Giving A Voice By Sharing | #GivingAVoice For Rare Diseases