FINAL Dennis PPA Video KEVEYIS 08 01 2023

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  • Опубликовано: 8 сен 2024
  • Dennis's Experience as a Patient Access Manager (PAM)
    When Dennis experienced his first episode of full-body paralysis at 14 years old, receiving a diagnosis of primary periodic paralysis (#PPP) didn’t surprise him. After all, his great-grandmother, grandfather, and father lived with the disease. What Dennis didn’t know was whether he would pass #PPP along to his children who never once presented symptoms.
    With the close support and guidance of Xeris CareConnection™ and its Patient Access Managers (PAMs), Dennis’ choice to pursue #genetictesting would help him discover answers to questions he’s wondered about ever since his diagnosis.
    Dennis’ journey and his commitment to giving back to the community through the Xeris PPP Mentor Connect Program, inspires us all. Hear how his experience with PPP and giving back to others has kept him going.
    To learn more about Xeris CareConnection™ or to connect with someone like Dennis through the PPP Mentor Connect program, visit bit.ly/3WVwBJe
    #Sponsored
    #PeriodicParalysis #TemporaryParalized #PPA
    Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicpa...
    We'd love to hear from you. Comment below on your experience with PP or with questions about the condition.
    You can also donate at
    www.periodicpa...
    Your donation will help with Dr. Cannon's genetic research or a list of other extremely helpful options. The great thing is you can decide how you want your donation to be used.
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    #PPA #NotFaking #paralyzed
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Комментарии • 4

  • @zbigwojciechowski7575
    @zbigwojciechowski7575 Месяц назад +1

    I think I have it as well..Woke up at 3am couldn't move my legs hardly at all..Lasted about 14 hrs..My potassium was 2.2..4 pills and 2 bags of potassium at the hospital was able to stand..scary..A lot of praying today..

  • @keithharmon2056
    @keithharmon2056 Год назад +3

    God bless. I have it also. You are not alone. 🙏