My journey getting diagnosed with HKPP | Documentary Clip | "I Never Fake It: A Medical Odyssey"

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  • Опубликовано: 8 фев 2025
  • Experience Monica's journey as she goes from confronting puzzling symptoms of weakness to her eventual diagnosis. But her story doesn't end there, check out the full documentary available right here:
    #PeriodicParalysis #TemporaryParalized #PPA
    Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicpa...
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    #PPA #NotFaking #paralyzed

Комментарии • 4

  • @tammylain7754
    @tammylain7754 11 месяцев назад +2

    ha ha I bet it was Jakob levitt's video- that is exactly how I found out too- My husband and just watched and cried- finally found it. What your story does not mention is the label of crazy most of us get- for years- I have read up to 95% of PP patients get a psychiatric diagnose before finding out the have PP, yet somehow you avoided that. Nice to hear.

  • @tammylain7754
    @tammylain7754 11 месяцев назад

    Thank you!!!

  • @kirgise88
    @kirgise88 10 месяцев назад +1

    Well, later it turned out that she actually has the very opposite of Hypo: she has Hyperkalemic periodic paralysis... It was close but very wrong to be treated with potassium though. :-(

  • @shelbycox2948
    @shelbycox2948 8 месяцев назад +1

    I thought I was crazy. 😭