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Could you do a video on getting the chair? 42k just sounds crazy.

I've always wished there could be a wheelchair that could lower the seat down to ground level similar to the lift function on many powerchairs. No idea how that would work though!

Wow that chair-locking mechanism was awesome. Way easier than strapping on hooks. Good golly. Your vehicle is amazing and I'm so glad you finally got it. Independence!! 🎉

The turtle tail!!! 🐢 😍😍😍

Congrats on the new job! And the fun accessories :)

Also, gotta constantly do the calculations in advance for how many spoons I'm going to lose and how many pain forks I'm going to gain from any activity I need to do. Thank you for mentioning all the interception / body maintenance forks that are physical stressors. Also "stick a fork in me I'm done" - no please don't. 😂

Looks like a big enough yard to crawl around in anyways. I’m not in a wheel chair but if I was. I would never let it stop me from being me. I had battle buddy get shot and can’t walk again. He came home and started working out what he could and now he’s in the Olympics playing wheel chair basket ball etc. He still goes swimming with us. We go running in the mornings he’s right there rolling along. I remember at first we would always try and help him with everything. Now, we just let him do him. Guess we all had some adjustments to make right? We were only doin it out of carrying and protecting but we realized it held him back from being him. Do you boo boo, let the haters hate. I know I could use more sun myself regardless how I get it!

Yes share!

So please share how you finally got up

Hello ❤ thank you soooo much for your words... I live in France in a fairly mountainous environment. There are quite a few paths with stones or for example just yesterday I went for a very nice little walk (which got me stoned) and at one point there was a big root that you had to step over to get through. I don't know how I'll manage with a wheelchair? and I'm afraid I won't be able to take any more nature walks...? I am afraid of that...

How did you get so wise? I needed to hear this this week.

hi. i love your videos. as a retail employee, as well as a home depot employee, you can always ask for a manager to send you someone to assist you WHILE shopping. As soon as you go into any retail location you can ask management, and they WILL send an associate to help you shop. if you dont want to, totally understandable. i am unsure if you knew that but its totally possible. great video!! if for some reason they say they can't help in that way, you will get yourself the biggest shopping credit of your life awarded to you because that would be awful customer service.

Yaaayy🎉

Want to buy and import in Pakistan please share details

“Even if the person is faking how does it affect you” correct.

I think I’m young and pretty. I was born with cerebral palsy 😂

Uber and Lyft are the worst in terms of denying access. I never know what to do… I usually just give up. Any suggestions?

Hey there! I have cerebral palsy and use a manual wheelchair and a service dog May I just request all folks who use a service dog to NOT have an ID or documentation. Even voluntary identification is harmful to real users of service dogs and can result in denied access. Especially if someone before you used a scam online type registry it really harms all service dog users because you nailed it. THERE IS NO Registry. None. So the more folks use identification papers or cards it harms all of us who have legitimate service dogs. Also I would say petting a service dog puts me in a very vulnerable position. I need my dog to stay focused or I can get hurt. She’s super cute but when she’s not working that’s a perfect time to say hi and pet her. I really love your videos. You’re so much fun to listen to and I enjoy your videos so much. ❤ Sending love :)

I’m a full time wheelchair user and I can’t walk. There was a period when I could walk a little bit. But fifteen minutes per block? Not functioning well. Sarcasm alert here: I know able bodied people who take a subway train from 23rd Street to 125th Street. They can walk, so why do they need to take a train?

Gurl. No way you didn’t know how to edit. What. You nailed it chica. So proud of you. Don’t know you but very proud of you

My god you’re such a joy to listen to. I could listen to you all day every day. ❤

I live on 400 dollars each month. Im so poor and also brown buddy in a chair. I was born with cerebral palsy. My friend pays rent other wise I’d still be homeless. I was homeless from 15 to 28 years old. I can’t afford Netflix other wise I would watch. I grew up in an institution roughly translated as the home for the incurable in third world conditions. I’m so ignorant on the disability rights movement but since coming to the USA every day life has improved. The ada protects me as a manual wheelchair user and service dog user. My biggest question to you would be What concretely do we have left to do. What are the top things you think we can legislate further? I want to get to work on your list in my community now. For example the train stop that takes me into Boston isn’t wheelchair accessible. How do we challenge that with current laws? Thank you for explaining and taking the time and effort to educate us. Sending love and good vibes your way. ❤

I’m down to hang out chica! Thanks for your video and effort and time!❤

Thank you for your video and explanations. I appreciate the time and effort you put into this. Have a lovely day hun ❤

You’re a pleasure to listen to. Thank you.

Soooo spoon theory using forks 🫡

I get how frustrating working with folk rehab can be. I work with state services for the blind in Minnesota and since I’m adult, it’s pretty much vocal rehab and if you don’t use their services within two years, there goes your case.

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Love your vibe

I’ll keep an eye out for land by marshes near us ❤

I’ve never been more convinced that I am, in fact… a potato.

I know my visually impaired friends don’t drive, but would pump the gas if I ever needed them to. I’ve been wondering if the pump itself could be automated through buttons to start/stop the flow because squeezing the mechanism is extremely difficult with low mobility hands…

Not sure! I dislike touchscreens popping up everywhere, pumping petrol in the cold sucks enough already, taking your gloves off is extra annoyance. And that tap-to-pay point is in such a strange spot!

Hello, your problem was YOU DID NOT LOOK TOWARD TOYOTA'S BEST MINIVAN OF THE WORLD - TOYOTA SIENNA 2021 FORWARD. NO ONE SHOULD LOOK ANYWHERE OTHER THAN TOYOTA 👍

Sniper no sniping!! 😂

So happy for you!

These delays have got to be deliberate. This is more than just incompetence and inadequate staffing. This is intentional procedural delay to wear folks with disabilities out, so they will just give up and go away. In the meantime, our government gives free benefits away to non- citizens, who don't have to document anything. How does any American, regardless of their political persuasion, think that any of this is good and right?

I feel like you could have made it over the bridge. But if you didn't make it, things would be so bad that's its definitely not worth the risk. Aaron cam to the rescue!

I TOO HAVE HAD PEOPLE ASK TO PRAY, I DO NOT NEED SYMPATHY.

BTW your nails look great ;D

Be careful, sometimes air in the tank can cause the gas to burp out!

God bless.you in Jesus name.

Cool glad u got a van “your van” 🎉

As I commented on one of your other videos, the brokenness of the system is not accidental. It was designed that way, to make sure all but the most determined get discouraged and give up. Private insurers have huge departments devoted to denying claims. Public agencies achieve the same results through simple incompetence.

That's a great looking van. So glad you finally got it. What a saga! Just a couple of observations from someone who's been through a similar process (in case it helps other viewers). (1) I went with VMI, because their vans have a separate battery backup for the ramp, in case the main battery dies. Braun didn't offer this when I bought mine. (2) That low-effort braking system is something I could really use, but I'm uncomfortable with the big hunk of metal sitting right in front of the knee. I know my legs aren't much use, but I still don't relish the idea of smashing my kneecap to a pulp in a front-end collision. Still, the DME industry is so backward and amateurish that I doubt anyone else makes anything safer. (3) VMI configurations generally have a bit more space in the back, making maneuvering bigger chairs easier. (4) You probably weren't given the option, but a retracting pin on the bottom of your chair would preserve your ground clearance. Before I got one, I bent the pin on uneven ground and curbs a couple of times, than found I couldn't secure the chair to the van. A retracting pin solved this problem.

Fellow FSHDer here. My experience navigating the Kafkaesque world of disability "assistance" services has taught me two things. (1) Delays aren't failures of the process; they ARE the process. They are intentional, intended to make all but the most determined give up and go away. (2) Very few senior decision-makers in these agencies are disabled. They therefore have little understanding of our needs and think we should be grateful for whatever crumbs they toss our way.

😂

You find the best audio for fun 😂

Y’all pick on me for keeping things, but YAAAY! Look at you rocking’ my 80’s blazer ♥️