I am a 77 year old Scotsman and I started to get itchy blisters about 3 months ago in April 2024. After 3 months of getting no where on my own I finally made an appointment to see my doctor/GP on 4 July 2024 ! He said he suspected Bullous Pemphigoid and he took a swab and sent it to the laboratory for analysis so I hope to get a firm diagnosis soon. In the meantime I am researching to see what I kind find out about BP. Your podcast has been excellent and I identified with everything Dr Naomi said. At this early stage of my own journey I felt she gave me hope and an insight into medications that might be involved and organisations that might be useful IPPS( International P& Pemphigoid Support group) plus BP Warriors on Facebook. Many thanks again!
I don't believe it's as rare as some say. My GP said I was the second case of BP she'd seen that week. A month or two later, our dermatology dept gave me a biopsy and, a week later, I was diagnosed. I have blisters all over my body. I'm on doxycycline and nicotinamide which doesn't seem to do much. This week, I have been put on Dapsone. I hope this finally makes a difference. I already have a rare spinal injury and use a wheelchair. Constant pain and obvious facial and visible bandage dressings. Life is intolerable and I live in my bedroom 24/7.
I’m 60 and just got diagnosed with bp and yes I went through this also the itchiness was insane
I am a 77 year old Scotsman and I started to get itchy blisters about 3 months ago in April 2024. After 3 months of getting no where on my own I finally made an appointment to see my doctor/GP on 4 July 2024 ! He said he suspected Bullous Pemphigoid and he took a swab and sent it to the laboratory for analysis so I hope to get a firm diagnosis soon. In the meantime I am researching to see what I kind find out about BP. Your podcast has been excellent and I identified with everything Dr Naomi said. At this early stage of my own journey I felt she gave me hope and an insight into medications that might be involved and organisations that might be useful IPPS( International P& Pemphigoid Support group) plus BP Warriors on Facebook. Many thanks again!
I don't believe it's as rare as some say. My GP said I was the second case of BP she'd seen that week. A month or two later, our dermatology dept gave me a biopsy and, a week later, I was diagnosed.
I have blisters all over my body.
I'm on doxycycline and nicotinamide which doesn't seem to do much.
This week, I have been put on Dapsone. I hope this finally makes a difference.
I already have a rare spinal injury and use a wheelchair. Constant pain and obvious facial and visible bandage dressings. Life is intolerable and I live in my bedroom 24/7.
My mother just have BP at 85 years old