🏥 MY FIRST DOSE OF THE NEW VERTEX MEDICATION | THIS COULD BE LIFE CHANGING 💊

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  • Опубликовано: 1 янв 2025

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  • @thefreylife
    @thefreylife  5 лет назад +470

    I can hardly believe this day is here!

    • @unlisted3035
      @unlisted3035 5 лет назад +12

      The Frey Life I am so happy for you!

    • @TraumaSurvivorCynthia
      @TraumaSurvivorCynthia 5 лет назад +8

      Love you!❤🤗🌹
      Please pray🙏 for me because tomorrow I have a lower lumbar MRI with contrast at Lower Umpqua Hospital and see an Orthopedic Surgeon on Tuesday in Portland at OHSU!🏨😘

    • @laurencliver6452
      @laurencliver6452 5 лет назад +8

      So excited for you!!

    • @jayh40515
      @jayh40515 5 лет назад +8

      We are all rooting for you both! One step at a time....!

    • @agnieszkajaniak5619
      @agnieszkajaniak5619 5 лет назад +6

      The very best of luck, Mary!

  • @HydeandSeeker
    @HydeandSeeker 5 лет назад +206

    "I've gotten through 100% of my bad days so far." -Mary. Love that!

    • @amylamy01
      @amylamy01 5 лет назад +5

      This needs to be put on a shirt!!

    • @lexiwagner4541
      @lexiwagner4541 5 лет назад +1

      I actually said something similar to this when someone i knew was suicidal, and they realized they could get through it. Seems obvious, but it is poweful

    • @HydeandSeeker
      @HydeandSeeker 5 лет назад

      @@lexiwagner4541 Totally agree. It's a good reminder.

    • @boofaith98
      @boofaith98 5 лет назад

      I need that on a shirt

    • @kimberlymasslock3669
      @kimberlymasslock3669 5 лет назад +1

      Getting through 100% is better than the alternative.

  • @wendylawton8274
    @wendylawton8274 5 лет назад +192

    I've asked my husband to come watch this because we've been praying for you each evening and he prays without having ever been "introduced" to you, but this vlog gives us clear prayer points-- an easier morning, no discernible side effects, less mucous, fewer IV sessions, and most importantly-- feeling better. May it be so.

  • @SCJ7100
    @SCJ7100 5 лет назад +176

    Mary: *swallows pill*
    Peter: "Do you feel better?"
    Above all else, you two have taught me to smile and laugh through tears. I love and appreciate you, you are in my prayers. 💖

    • @thefreylife
      @thefreylife  5 лет назад +4

      SCJ7100 thank you for your continued prayers!

  • @Its_me--Boo_Radley
    @Its_me--Boo_Radley 5 лет назад +176

    The tears came to my eyes when you took that first pill! Feeling better in 72 hours! Oh Mary, I sure hope you experience that miracle! 💜

  • @hannahsmith8002
    @hannahsmith8002 5 лет назад +61

    This is so motivating to see - I graduated this week and am starting my PhD at Oxford's Medical Sciences division on one of the teams that's related to this new medication, and seeing how much of an impact this can have really helps to make all that I went through to get my undergrad done (I'm a wheelchair user from some chronic illnesses and so it took a while...) really worth it

    • @heatherosborn8279
      @heatherosborn8279 5 лет назад +2

      Hannah Smith Congratulations! God bless you!

    • @thefreylife
      @thefreylife  5 лет назад +2

      Hannah that's so exciting!! Way to go!

  • @Trekkifulshay
    @Trekkifulshay 5 лет назад +69

    We're hoping and praying my daughter when she turns 12 can start this medication. I've heard such good things about the results of the study. We're hopeful.

    • @LymeStealsGodHeals
      @LymeStealsGodHeals 5 лет назад +3

      Trekkifulshay just said a prayer for your daughter. God bless you.

    • @lauranorwar
      @lauranorwar 4 года назад

      I’ll pray too!! How old is she now?

  • @meganfridenmaker7774
    @meganfridenmaker7774 5 лет назад +149

    Just started watching and I'm already tearing up. This is incredible ❤️

  • @rebeccawilson6512
    @rebeccawilson6512 5 лет назад +52

    My Mom's best friend, she had a son who had cf. This was back in the 70s and 80s, he lived until the age of 12. He, at his young age, said he wanted to help do what could for the cure of cf.
    As he lived, he did trials and then he said he wanted to donate from his body whatever scientists needed to see what could help the research of potential helpful means for cf patients then and in the future.
    I pray for you, Mary and all of those who have cf, that this pill will help you and many others.

    • @flj7
      @flj7 5 лет назад

      Do you know if he ended up donating his body for research?

    • @rebeccawilson6512
      @rebeccawilson6512 5 лет назад +1

      No, he didnt. I believe his liver and lungs but I was very young when he passed away and don't know if other organs were donated to science.

    • @thefreylife
      @thefreylife  5 лет назад +3

      Rebecca what a brave and generous little boy! And thank you for your continued prayers!

    • @rebeccawilson6512
      @rebeccawilson6512 5 лет назад +4

      He truly was! I only remember bits and pieces then of course I was about him as he was in life; my fave memory, he put me on his shoulders (I was 3 or 4 and he was 9 or 10) and took my brother's hand to take us to the park. It sticks with me to this day.
      I appreciate that memory and him giving it to me so much because I now know he did something that would eventually stress out his body.
      I never saw much of him because he was in the hospital a lot. But he wash a blessing and I will never forget him.

  • @janessapitts6736
    @janessapitts6736 3 года назад +4

    And here you are, two years later- running towards parenthood!
    😍
    How GREAT is OUR God????!!!

  • @rdg3288
    @rdg3288 5 лет назад +79

    I wish I could give this video a million likes! My eyes are filled with tears, I have goosebumps, I just am so happy for you. AHHHHH!! Mary, we love you here and I know everyone is sharing in this VERY joyful moment.

  • @antonhinds5341
    @antonhinds5341 5 лет назад +68

    Congratulations Mary go into this with an open mind and know that God has you I can't think of a more deserving person

  • @bethanyhollis8699
    @bethanyhollis8699 3 года назад +8

    Seeing the new vlogs with getting the babies room together makes this episode THAT MUCH MORE EMOTIONAL!! God had continued to bless you two!!

  • @sharibrown1668
    @sharibrown1668 3 года назад +6

    Cried when I watched 2 yrs ago... And crying rewatching today knowing the miracle that has occurred 💜

  • @lins918
    @lins918 5 лет назад +80

    Prayers for you, Peter and Ollie. Best wishes for this medication.
    We're all in this life together. 💖

  • @lisai176
    @lisai176 5 лет назад +3

    I screamed out loud, "Oh my goodness, she got her medication!!" Everyone looked at me.
    We are all in that open palm, together, with you and we will trust and pray.

  • @I_am_Knowledge
    @I_am_Knowledge 5 лет назад +36

    The title really surprised me!! Praying for you guys, can't believe this day finally came. Crying hopeful tears 💜

  • @natalieprice2201
    @natalieprice2201 5 лет назад +28

    This medication has helped my sister (she was on trial) so so so much and I’m praying it does the same for you!💓💓💓

    • @thefreylife
      @thefreylife  5 лет назад +2

      Thanks Natalie! And I'm so glad to hear it helped your sister so much!!

  • @lizzieb1318
    @lizzieb1318 5 лет назад +45

    This is incredible!
    I'm a high school student, and I had work experience just a few weeks ago at vertex pharmaceuticals, where they mentioned this therapy
    It's so amazing to see this for me, as I've followed you lovely people for many years!
    So ispiring for me in my studies and career
    Prayers for you two and Mary's health as ever :)

  • @julesvibe
    @julesvibe 5 лет назад +3

    “I’ve gotten through 100% percent of my bad days.” Simple but powerful sentence. Blessings.

  • @bumpybackroads1581
    @bumpybackroads1581 5 лет назад +21

    so if it slows down mucus production, it could potentially allow for longer periods between antibiotics and less frequent sinus surgeries.

  • @rosabellle
    @rosabellle 5 лет назад +2

    how are mary's eyes so good at crying? she is just so beautiful even with the tears! it's so sweet

  • @juliethiel5678
    @juliethiel5678 5 лет назад +25

    What a monumental day for "The Frey Life"!! So excited that you have the opportunity to use this drug and can certainly empathize with your mixed feelings!! God's will be done. Hugs and prayers!!

  • @sandihester
    @sandihester 5 лет назад

    Oh Mary, I haven't even finished the video - got to the part about the 72 hours could feel better and I just teared up and asked the Lord "please have mercy and do this Father!". Praying friend!

  • @TeddyBear1287
    @TeddyBear1287 5 лет назад +15

    Just the title of this video made my heart skip a beat! Love you Mary and Peter!

  • @NolaPie
    @NolaPie 5 лет назад +18

    2 seconds in and I thought my video was tripping. 😂😂😂 I’m so excited for you Mary.

  • @perucat5045
    @perucat5045 5 лет назад +13

    Well... there is not a dry eye in my house this evening. You are an inspiration. Im waiting for drugs to help me that are in the final testing stage so I totally get where you are at . God bless you . xxx

  • @JeriAnnHenson
    @JeriAnnHenson 2 года назад

    Here we are 3years in and your life has changed so very much. What a beautiful blessing!

  • @justaplainmom4395
    @justaplainmom4395 5 лет назад +7

    I wish you the best of luck. Back in 2017 I got a life saving treatment for myself. I am thankful for it every day.

    • @thefreylife
      @thefreylife  5 лет назад

      Jo Ann I'm so glad to hear you got that treatment!

  • @lovelystar1620
    @lovelystar1620 5 лет назад +2

    Hi Mary, I am crying with you and sending love and prayers all the way from the UK. I am a cancer Survivor and i am with you every step of the way. The lord is with you and won't let you down. X

  • @kiairalynnmoffat235
    @kiairalynnmoffat235 5 лет назад +13

    We're In it together Cyster! I'm waiting until the FDA approved it then when I turn twelve in January

    • @sorchaoreilly2633
      @sorchaoreilly2633 5 лет назад

      Best of luck! I hope you'll be eligible and that it will work really well for you 😊❤️

    • @lauranorwar
      @lauranorwar 4 года назад

      Prayers for you! Keep us posted!

  • @shirlthomas3330
    @shirlthomas3330 5 лет назад

    Peter must be the best man and husband in the world. He completely supports her in everything, he is so unselfish and kind.

  • @barbgedling6279
    @barbgedling6279 5 лет назад +24

    This is so exciting to see you finally you get to try this medication. I cried when you cried Mary. Send hugs and lots of prayers to you and peter and Ollie boy. Love you all!!!🙏🙏🙏🙏❤️❤️❤️❤️

  • @rebeccawebb1668
    @rebeccawebb1668 5 лет назад

    Oh my goodness. My mom and I are both sitting here crying in front of our TV, overjoyed that this day has finally come, a day you so deserve Mary!

  • @jasminsamuels2494
    @jasminsamuels2494 5 лет назад +10

    I am so flipping happy for you. Im paying it works not just for you but for everyone with cystic fibrosis. I cant wait to watch your progress

    • @sorchaoreilly2633
      @sorchaoreilly2633 5 лет назад

      There are so many different CF mutations and each requires a different type of this kind of medication. So this will only work for her type or maybe a small group of types. The drugs Orkambi and Kalydeco already exist for certain other types and have been so helpful for many people. It's great to see these drugs being developed but for people with rarer mutations of CF, there's far less chance of drugs being developed but I do hope there is miraculous treatment available suitable for everyone with CF some day! 😊❤️

    • @thefreylife
      @thefreylife  5 лет назад

      Thank you Jasmin!!

  • @suziecarr1566
    @suziecarr1566 4 года назад

    Omg that "you're crying too?" Was so sweet sounding yet so simple .

  • @raissahille
    @raissahille 5 лет назад +20

    OH MY GOD!!! I'm so happy for you!!
    I've been wathing you guys for 3 years now and I was sooo looking forward for this!
    God bless you Mary!!

    • @kathleenwaldrop7320
      @kathleenwaldrop7320 5 лет назад +1

      What a happy surprise I got when seeing the title of your vlog. Thank you for sharing this incredible event!

  • @nikimitchell1403
    @nikimitchell1403 5 лет назад +1

    Brought tears to my eyes and joy in my heart. So happy for you. I love the comment Mary made, “I have survived 100% of the days so far” God bless

  • @brenna3743
    @brenna3743 5 лет назад +21

    I’m crying too. I pray it works. I love you guys so much. Keep up the good fight. 🙏🏻💟

  • @megchilcott
    @megchilcott 5 лет назад

    My son began Kalydeco at age 2 (he was approved on his 2nd birthday). A year in, he had normal liver function for the first time in his life. Two years after beginning it he has begun to have mild to moderate production of pancreatic enzymes. I am anxious to see if in another year he will no longer need pancreatic enzymes! I'm so happy for you, Mary. I am praying this medication will have no side effects and will do a miracle in your body! Praise God from Whom all blessings flow...

  • @korra.s
    @korra.s 5 лет назад +34

    I'm so happy, you're amazing. You're hard work is unbelievable.

  • @ctla65
    @ctla65 5 лет назад

    OH MY!! The day has finally come!! ....all the emotions! Not only there but here too! We cry, laugh, hope, and pray with you that this is a step toward feeling better! ❤

  • @carolemouallem2558
    @carolemouallem2558 5 лет назад +3

    Tears of joy for you! Prayers definitely being said. I wish you the best possible outcome from this new medicine. Power of prayer never ceases to amaze me.

  • @beverlysettle1084
    @beverlysettle1084 5 лет назад +1

    Oh Mary, I am so hopeful that this new medication is helpful and provides you with relief and a more comfortable life quality. I am praying. Love you all in the Grey Life!!!💝

  • @TatteredAndTornPages
    @TatteredAndTornPages 5 лет назад +6

    I cannot believe how much unconventional love I have for all 3 of these people. (Yes, ollie is a people) I've been with this family since their plane ride to Scotland.
    My heart is singing rejoice in the Lord. And I love you all, so so much.
    Yup, I'm balllllling♡
    Happy Sabbath everyone!♡
    Mary, good luck my love, I'm praying hard with intercession prayer.

    • @sorchaoreilly2633
      @sorchaoreilly2633 5 лет назад

      Do you mean Scotland? I don't think they've ever been to my country.
      Praying hard too! 😊🙏🙏❤️❤️

    • @TatteredAndTornPages
      @TatteredAndTornPages 5 лет назад

      @@sorchaoreilly2633 yup, Scotland ♡

  • @ashleylyon84
    @ashleylyon84 5 лет назад

    I love that phrase you said Mary: "I've gotten through 100% of my bad days". I'm going to remember that to help me through my bad days. Good luck with this new medication! I pray that it gives you success and I send you all the strength to get through any side-effects that occur. You got this!

  • @sophiepalmer-doran344
    @sophiepalmer-doran344 5 лет назад +12

    hi mary peter and olie i am so happy to hear you are allowed to take this med i hope your lungs behave aw peter you were crying too i am crossing my fingers and toes

  • @MsTitanic99
    @MsTitanic99 5 лет назад

    Goose bumps on goose bumps, so happy for you that you were approved for this new med. How great is our God? Beautiful home, beautiful marriage, beautiful people and beautiful Ollie!!

  • @michaelahaney
    @michaelahaney 5 лет назад +7

    Congratulations Mary and Peter! You got this Mary!

  • @samramey449
    @samramey449 5 лет назад

    Finally , I'm in tears I know what it's like to have an illness praying for positive vibes, ur a woman who is so strong thank u for helping me not feel alone

  • @Jennerator74
    @Jennerator74 5 лет назад +12

    Praying this is a life changer in a GREAT and AMAZING way! ❤️❤️❤️

  • @stephannielyman7704
    @stephannielyman7704 5 лет назад

    Mary I know your excitement . Years ago My husband was in a trial study for botulism toxin injections for a rare neurological problem . It gave him years of relief and was thankful for that.

  • @cottontailcameo
    @cottontailcameo 5 лет назад +5

    So HAPPY that you have one more tool in your tool box, and God willing it could be a tool that lessens your need for some of your other tools!!!!!! We are so blessed to live during a time where science is making great gains in treating major chronic medical conditions!!!!!!🤗🥰

  • @aprilgriffin9218
    @aprilgriffin9218 5 лет назад

    I add my faith with all of The Frey Life Family who is praying with you.

  • @annettequinn2471
    @annettequinn2471 5 лет назад +51

    I am so excited for you!! I cannot wait for my team to call me that they have it as well for me to finally give it a try. Prayers for little if any side effects 💜💜💜💜

  • @susanjohns8902
    @susanjohns8902 5 лет назад

    Praying for good results. As a retired nurse, I worked with many CF patients in my early nursing days. You are very inspirational and you are in God's hands, but in all of our prayers!

  • @crzyswmr
    @crzyswmr 5 лет назад +6

    Thank you so much for sharing your journey and allowing people to get a glimpse of your life. What a gift. Praying for this new season and the joy in the midst of it all. There is light in every day!

    • @thefreylife
      @thefreylife  5 лет назад

      crzyswmr thank you for your continued prayers!

  • @CiaraofLir
    @CiaraofLir 5 лет назад

    Fantastic news Mary and Peter. I have my fingers and toes crossed that this drug is a success for ye. I started Symdeko 6 weeks ago with modest hopes as my lung function is not great but within 1 week I noticed a discernible difference! My cough and my mucus has reduced significantly, I no longer gag and throw up in the morning and my energy levels are unrecognizable. It’s like I’ve gotten my life back.
    The new triple therapy you are starting sounds like it can yield even more exciting results. Symdeko has not improved my lung function numbers but I hold out hope for the new drug. I am so very grateful for the improvements I have gotten. I know that I am one of the lucky ones. I never take for granted one pill. I remember all my CF friends and fallen soldiers that did not make it to today to benefit from this development in medicine. I am forever grateful xx

  • @cyanidexsunset
    @cyanidexsunset 5 лет назад +10

    I’m so excited for you, happy hopeful tears right along with you! Here’s to seeing where this new journey takes you, praying for the absolute best and sending so much love ♥️♥️♥️

  • @curtisbemis6640
    @curtisbemis6640 3 года назад

    First they move to North Carolina and now 2 or 3 years later they are adopting a baby . Peter is one of the most amazing people I have ever met . He's a pastor which I respect so much, and the love he has for Mary is unconditionally literally. Wish them all the best with the new life they have been given by christ and they deserve every bit of it. God bless the frey family

  • @throughtheeyesofachild61_45
    @throughtheeyesofachild61_45 5 лет назад +5

    Oh mary sweetheart I’m crying with you. This is super awesome, I wish you all the very best with this new trial. And can i just say peter has got to be the best husband and career of all time. He’s just amazing; your both amazing. All my love from the uk 🇬🇧❤️🙏🏻
    Big hugs to Ollie too 💙💙🐾 🐕

  • @bailsalg8403
    @bailsalg8403 5 лет назад

    Watching this again 3+ months later, after seeing the incredible transformation that you have experienced Mary, has been so uplifting and encouraging to my heart. I feel so blessed by Jesus to watch this journey unfold and to know that changes are coming and improvements are happening. Wowowowowowowow. What a cool thing to see.

  • @traceywatson2092
    @traceywatson2092 5 лет назад +28

    Today we celebrate God, Mary, Peter and the gift of Hope. 🙏🏻❤️🙏🏻

  • @AmberCanaan727
    @AmberCanaan727 5 лет назад

    Oh Mary, I pray that this works way better than any doctor could even imagine!! I pray for no negative side effects and so much health and happiness for you and Peter! You deserve all the happiness in the world and so many good days!

  • @CappyMoon369
    @CappyMoon369 5 лет назад +9

    Oh my goodness this is such a beautiful surprise !!!!😊 I have been reading about this for the last week and was just hoping and praying you would be able to take this medication!!! Ohhh I'm crying with you !!! 😭

  • @sherryturner8729
    @sherryturner8729 5 лет назад

    Praying for you Mary. Thank you Jesus for letting Mary be part of this trial. I know God is able to go beyond what that medication can even do. Praying your Life improves 100%.

  • @kpratt6685
    @kpratt6685 5 лет назад +18

    I started 2 new-to-me meds today too. Fingers crossed for the both of us! 🤞🤞

  • @mrst4946
    @mrst4946 5 лет назад +2

    MARY I have finished watching now and I am BAWLING 😭 I am praying that this new med makes a huge improvement for your health and quality of life. My best friend died of CF four years ago. Shortly after that I found your channel and I have been watching ever since. My friend Anna never got her chance to try these treatments, I am so glad you have got this chance. It could very well change your life and I am praying and keeping everything crossed❤️

    • @thefreylife
      @thefreylife  5 лет назад +1

      Thank you Sarah! And I'm so sorry to hear about your loss!

  • @haileyhudson4157
    @haileyhudson4157 4 года назад +3

    Makes me so happy to watch this now ❤️

  • @joleneblake9906
    @joleneblake9906 5 лет назад

    I’m so sad that your leaving Massachusetts mary. You and peter have been my strength all of these years. You’ve helped me through the loss of my mother.

  • @chroniclyfekb8342
    @chroniclyfekb8342 5 лет назад +10

    I’ve heard so many amazing statistics on that medicine. I am praying 🙏🏻 hard that this pill gives you amazing results too. ❤️

  • @brittySS
    @brittySS 2 года назад

    Re-watching this Feb 7th 2022. So surreal how far you have come and that you've now been blessed with a beautiful baby boy! God bless The Frey Life!
    You have helped so many others with your positivity through chronic illness and your ability to love the Lord & spread his word always.

  • @PlanningWithCatherineElizabeth
    @PlanningWithCatherineElizabeth 5 лет назад +5

    I am crying for you Mary...omg
    Sending LOTS and LOTS of prayers that this works for you...
    LOTS and LOTS of love to BOTH of you from New York💕

  • @chrismarczuk3951
    @chrismarczuk3951 5 лет назад

    Mary just let you know I was laughing with my brother 5 minutes before I started reading this. I am crying with you and Peter because I am so happy . You are both in my prayers daily.

  • @HannahJoy333
    @HannahJoy333 5 лет назад +5

    Thank God you’ve been given this opportunity! I’m so grateful 💜.

  • @LilianaLopez-mk5qh
    @LilianaLopez-mk5qh 5 лет назад

    Tears came to my eyes!!! Im happy and glad you got the opportunity of a trial.... Praying and exited for good news....

  • @terrisangels4499
    @terrisangels4499 5 лет назад +4

    CONGRATULATIONS Mary!!!
    Can't wait to see what happens. Prayers for you my darling. So happy for you both.

  • @carolynlong9148
    @carolynlong9148 4 года назад

    I wanted to return to this video as a year in review. So many good things happened after the video. To see the changes is wonderful. The not knowing is hard and time will tell and time has told its story. Not just for Mary but for all of us with who have or are suffering from a chronic disease.

  • @brittbratt1103
    @brittbratt1103 5 лет назад +8

    So excited for you! I'm crying within a few minutes of watching this!❤❤

  • @ZensGem87
    @ZensGem87 5 лет назад +1

    So happy for you Mary! My family and I continually pray for you and your family. It is wonderful to see you be given a beam of hope, as you are definitely a beacon of hope for many of us.

  • @carolynlyfordsullivan1377
    @carolynlyfordsullivan1377 5 лет назад +9

    Love you guys . I have to mention something . My dad has serious heat disease . It all started at 49 yrs. he is 90 now.Due to the effectiveness of new medications. I don't need to go into detail . His life expectantly initially wasn't all that great.
    Due to all the changes in medicine my dad is a very active 90 year old man . He is going on vacation tomorrow to visit family in Maine .
    My dad still has the same heart condition but the changes in medicine have left him a heathy 90 year old😀

    • @thefreylife
      @thefreylife  5 лет назад +2

      Carolyn that's so great to hear about your dad!!

    • @carolynlyfordsullivan1377
      @carolynlyfordsullivan1377 5 лет назад +2

      @@thefreylife It is amazing what medicine can do . My dad also did everything he could do to help . I never dreamed he would live to be ninety . He is very active . I have so much hope for you guys . When my dad was 49 he couldn't walk from the car into a store . He had so much heart pain . At ninety he exercises everyday . My dad is a practicing Christened . Reads scripture daily . I have said this before . You guys are in GOD's hands and HE won't drop you .

  • @oky_890
    @oky_890 5 лет назад

    Praying for Mary Frey and everyone else too, alot of people need our prayers and don't give up on praying to God .

  • @franlats0705
    @franlats0705 5 лет назад +4

    I am so happy for you guys, I'm tearing up like mad. I will be thinking of you and sending positive thoughts your way xxx

  • @diannewi
    @diannewi 5 лет назад

    I'm subscribed and watch your videos all the time. This one really hit me. Many years ago my aunt adopted a tiny baby and a month or so later he was diagnosed with CF. His name was Robbie. He died as an infant, there were no treatments then, no knowledge of the enzymes needed for his nutrition. It broke my aunt's heart completely. The adoption wasn't even final, he died that quickly. This video brought back such memories of my cousin Robbie, a little boy I never got to see. I fervently hope this new medication will change your life for the better. Love to both of you from New Mexico.

  • @explaincauseidontgetit3294
    @explaincauseidontgetit3294 5 лет назад +7

    We have the CF gene in our family. I have some research to do on this medication!!

  • @terriehumphries6028
    @terriehumphries6028 5 лет назад

    I started crying the minute you started talking. I am praying this saves your life. I look forward to your videos and when I have an Asthma attack, I can here your theme song and I am reminded about faith and perservering. God be with you as you embark on this new drug. Praying no side affecks, no allergies.

  • @2listening1
    @2listening1 5 лет назад +5

    Oh my GOSH Mary!!! I'm so happy for you! I thought you weren't going to get it until September at the earliest!! :D

  • @XmirijamX
    @XmirijamX 5 лет назад

    Goosebumps on my skin, tears in my eyes and a big smile on my mouth and I laugh with you guys and cry of happiness for you Mary! Followed you for 4 years now I belive, seen the decline and I'm so happy this could possibly change so much!! Big hugs

  • @TheTiffanyfrench
    @TheTiffanyfrench 5 лет назад +5

    I hope so very much that this works for you both. The live you both have for each other is incredible.

  • @traceywong2678
    @traceywong2678 5 лет назад

    I've just said a huge prayer for this medication to work for you. You inspire me every day with your positive outlook on life and I can't thank you enough. Take care, sweetie.

  • @sarahd139
    @sarahd139 5 лет назад +8

    Its incredible🥳 I'm so happy for you guys 😊

  • @samtrujillojr
    @samtrujillojr 5 лет назад

    I pray this is the first step of many for a new beginning.

  • @yarntaxi2176
    @yarntaxi2176 5 лет назад +8

    Sending you best wishes and hope for this new pill venture..hope the pill works wonders for your lungs....congratulations on your new home👍💕❤️

  • @beckyedmonds4078
    @beckyedmonds4078 3 года назад

    This popped up in my feed in 2021 and just noting....it did totally change the trajectory of your health! What a miracle.

  • @Noobers202
    @Noobers202 5 лет назад +31

    This sounds so wrong but you guys crying is so precious 😭😭💕♥️ best of luck to the both of you, from all the way in Minnesota ♥️💕💜💗

    • @rheagalarneau1366
      @rheagalarneau1366 5 лет назад +1

      Laniyah Thornton Best state ever.

    • @Noobers202
      @Noobers202 5 лет назад

      @@rheagalarneau1366 when me and my family moved from a place that wasn't so nice (Cleveland Ohio) we were so confused on why everyone was being so nice😂 it's also very pretty here 🤗

  • @tabithawagnon9558
    @tabithawagnon9558 5 лет назад

    I’m sitting here crying happy tears for you. One of my best friends has CF and watching her fight daily is heart wrenching. Prayers that this new drug helps you.

  • @geraldinebayliss1154
    @geraldinebayliss1154 5 лет назад +5

    I really hope this medication helps you lead a more normal life. I’ll be praying for you. Love and hugs from the U.K. xxxx

  • @amyspeers8012
    @amyspeers8012 5 лет назад

    I am a pediatric nurse. Years ago-like almost 30 years ago-I worked on the research floor at The Children’s Hospital in Boston. We were working with kids with CF who were on trials with DNAse. What an exciting time for you! Lots of love from France.

  • @arciafrench993
    @arciafrench993 5 лет назад +3

    Prayers and hugs to you Peter and Ollie boy.

  • @kiwicraner2538
    @kiwicraner2538 5 лет назад

    All I can think of is how beautiful this hope is. We've watched you health decline for a while and with the reality of transplant in your near future, I'm sure you were desperately needing this dose of hope. Especially today, with the two terrible shootings that just happened, I see this and it gives me hope. Mary, I will keep you in my prayers. 💗💗💗 Wishing you both all the best!