My MS Story - Part 3 - Avoiding Suicide While Living with Multiple Sclerosis
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- Опубликовано: 22 июн 2019
- In this video, I share how very early in my diagnosis of MS, I wanted to die. In fact I felt like I was dying. The fatigue was unbearable. I thought I'd never be able to work again.
Then, I made a choice to find my way out of the darkness and take steps towards loving myself as I was with MS and Fatigue. At that time I was very isolated and living alone. Hear more about how I slowly turned my life around. I still have fatigue today and am able to continue moving forward with my life.
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I literally felt the same dying experience. I learned a grief coping technique. It's not for everyone. I meditated my self through my own death and how the world would be after. Than an inner voice say" your not going anywhere yet". I hang on to that liberating feeling for when I get overwhelmed. It's called surrender !!)
Powerful share Sandra. Thank you for watching the video and taking the time to write a comment 😀
This is the most relevant video I have seen covering the psychological part of this disorder. Thank you ❤
Thank you for watching this video and sharing your comment. I've now been living with MS for almost 14 years diagnosed and I'm doing much better mentally.
I view pain( pins and needles under my feet) as my best friend. I try to live my life still work an 8 hr job . I started using a cane which i hate( most times i am embarassed. Have had ms since in my 20s now i am in my 40s. I hear people say ms is an awful disease, my best friend who died of stomach cancer would tell me he wishes he had ms. To me i wish there were no illnesses.
Hi Shawn thank you for sharing you thoughts and experience. It's understandable you would rather live without an illness. I hear you. 💚 What if you started to view the cane as your best friend now?
I am so sorry for not having enough energy to type. I'm 67 and I'm going through so much pain. but I am being monitored and I take 3 pain pills per day! I'm suffering with MS and Depression
Thank you for taking the time to type even though you do not have enough energy. Pain makes managing like more challenging. I admire you for your effort. 💜
That's quite an intense story ... good to hear and good to know you've made it through the struggles!
Yes. I'm grateful that I took charge of my life and my destiny. Thanks for your message.
I feel like I'm losing it. I'm married and my husband is a wonderful person and caretaker. I have lost countless people. I haven't seen my Mother in five years. I am sorry for taking your time. I used to be so happy and fun.🐽🐽
What do you mean you are losing it? I'm glad to hear your husband is a wonderful persona ND caretaker. That is so important to living your best life possible with MS. The grief of losing your own abilities and not feeling able to see others you care about can be heartbreaking. Sending you lots off love as you navigate the ups and downs of your emotions dealing with day to day life. You matter and you are important.
Thank you for making this content. Very grateful for other's validation of MS experience. It's difficult to explain to friends and family about daily psychological struggles
@@KR-ie5rg So true that it is hard to difficult to communicate or explain your experience of living with MS to friends and family. That's why I developed the Feeling Understood Masterclass. www.womenthrivingwithms.com/offers/FbooZZa3
This is an inspiration to me, I was diagnosed 2yrs ago and really struggling. At the very peak of my career many demands- I’m learning to adjust and finding my new norm. Thank you and sending blessings.
You are brave it takes courage to let go of an old like and accept a new normal. 💜
My ex was just diagnosed with MS.
How are you doing and how are they doing. It can be such a shock.
@@WomenThrivingwithMS She needs a spinal cord MRI to be 100% sure of the diagnosis. I'm worried about her because over the past few years she's battled not 1 but 2 types of cancers (successfully) & has coped with depression all her life. She often talks about suicide & now that she finds it physically hard to get around I'm afraid those feelings of wanting to die will get worse.
@@cindyssk37 I can really hear how worried you are about your wife. Both of you have been threw so much. It must be heartbreaking to find out after her journey with cancer that now she is likely having to deal with another diagnosis. My heart goes out to both of you.
I can only speak from my own experience and am not a trained expert or therapist. I was told by my neurologist that it many of her patients experienced grief after being diagnosed for up to three years. This was me. Even after 6 years with MS there was grief there that I didn't know was hiding. Does your wife have the support of a therapist? I know that made a big difference for me.
Also, I felt very isolated and alone. Even if you are there for her, she may benefit from others who are going through what she is right now. People who love with MS.
You wife is a remarkable women and I imagine must be resilient to have made it threw two cancer diagnoses. Hopefully once she is diagnosed with MS. You and your wife can get support from other women who have been able to move forward in this struggle.
If your wife is talking about suicide take this seriously and help her get support. The MS society has resources and cousellor who she can talk to one to one might be the best place to start. She doesn't need to have a diagnosis for you to reach out to the MS society for support. Many are not diagnosed with MS for right away so act now on getting her the support she needs.
Also know that you are both incredibly resilient to have managed to deal with so much. Let me know how it goes. I'm glad you reached out because that is the first step to getting help.
@@WomenThrivingwithMS I really appreciate you taking the time to write back to me but I'd just like to clarify one thing. The woman I referred to is NOT my wife. She is my ex & our past relationship was a toxic & very unhealthy one. I would rather not be in communication with her but am helping her because she has no one else. After everything that's happened I feel as if I'm the person feeling truly helpless, alone, & without the proper resources to cope.
@@cindyssk37 thank you for clarifying. I realized after I replied that you said ex and I could not edit my comments. I experienced a toxic relationship too. So sorry to hear that you have gone through this. I hope you are able to use the resources I recommended and that she can get support from other places so that you can do what is best for you.
DITTO
Thank you for watching the video and commenting.