Hello, your story was really courageous. I was diagnosed with MS in :96, I was 19 years old. I didn't know what MS was back then, and I figured life was over. Well, I'm 41 now, and yes my MS has progressed, but I continue to strive in life. I am a senior at a CSU and I will be receiving my bachelor degree at the end of spring. Continue to just take it one day at a time 👌
I just stumbled onto your video after crying because my 19 year old daughter is about to have her second MRI and spinal tap to confirm MS diagnosis. I appreciate you posting this video more than you can imagine because you obviously are doing so well now with your treatment. Please know that I will add you to my prayers. May you continue to be symptom free!
Diagnosed at 18 and started having symptoms at 17, my right hand and leg would go numb, I also did morning announcements at my school and would slur and my mouth would go numb. I'm now 20 and about to graduate nursing school! I've been on copaxone for 2 years and it's done wonders! I hate the uncertainty of this disease but, Don't let it control your life, it's a bump in the road!
I have the symptoms in high school as well and no one‘s been able to give me answers. It seems I have a relapse I’ve recorded it now have a pacemaker misdiagnosed. And now waiting on the Mayo clinic to decide what I’m dealing with. It’s scary because he said it’s worse than MS but what can be worse than that? I need answers.
Irish Tequila I’m sorry you’re going through the not knowing. Everybody ms is not the same. I know this from experience. I have a cousin with ms and she’s been paralyzed from waist down since her 20’s. I’m in my early 40’s and I’m not in a wheelchair. I had my first symptom when I was 15 and I was diagnosed at 26.Yes, I have my good and bad days. I hope everything works out for the best in your case.
I had all your same symptoms and was just diagnosed after being in the hospital. I'm so glad I came across your video!!! Thank you, I hope you're doing well!
Thank you so much for having the courage to talk about your onset of MS. The global MS community REALLY needs a WHOLE LOT MORE younger people to represent younger MS patients! Its a BIG THING Izzy.
Thank you so much for this comment! I agree that we need more younger people talking about this issue and so that is why I decided to talk about it, despite wanting to hide from the issue MS is much bigger than just me and my fears. Looking back, I think what would have helped me an incredible amount at the start of my MS journey would have been a younger person talking about their experience as I felt so alone and felt that this was not meant to happen to someone of my age. But actually there is a growing number of younger people getting diagnosed with MS and many who have been diagnosed even younger than me! The more information out there about MS the better in my opinion and if this video helps people in any way then that is my goal achieved :).
I was diagnosed 49 years ago ..I could tell you I had the very same symptoms you had. I was in hospital 6 weeks maybe longer when I was home a few months I lost my eye sight! I was scared to death. I could go on and on. I really believe in the power of pray. I am happy to say I've taken very high doses of steroids many times had 3 healthy boys and today I've advanced to secondary progressive MS. I still walk I see. I do have symptoms but I'm good. They did not have medication when I was diagnosed. I refuse today. I'm really good. I think you will be good too. Just have a positive attitude, mind over matter. I'll keep you in my prays. God Bless you, Karen
I'm so sorry you had to ever go through all of this so quickly and drastically! I can't imagine how lost you must of felt but sharing this story will really encourage people to be aware of how mentally damaging it is to a person as it was mental health week last week! People are dealing with the same conditions you are and don't ever feel alone, being this brave to share your story is such a huge step in the right direction, thank you!! Keep doing you! You've an amazing personality
I feel bad that you had to experience all that at such a young age. I was diagnosed with RRMS in 2013 and was 30+ years at the time (I actually had had MS already in my twenties too, but mostly with cognitive syptoms and didn't get a diagnosis back then). My symptoms in 2013 were a lot like yours: they came on really quickly and were dramatic. I was so scared and had to be in the hospital for weeks. For me also the medication appointment was some kind of a psychological breaking point. However, all my horrible symptoms went away and nowadays the only symptoms I have are occasional fatigue and some cognitive symptoms (which I've had for a long time), and it's been 4 years without relapses already! So MS is a really unpredictable disease - sometimes in a good way. I'm a Christian and found Jesus as the source of inner peace. Thank you for sharing your story, you are very elaborate and lively.
Thank you for your comment! So amazing to hear how well you are doing :) MS is such an unpredictable disease which I think makes it so hard to cope with as you truly do not know what is around the corner, but that is life I guess! I take each day as it comes, which I'm sure is the same as you, and it is thanks to MS that I know how strong we can actually be when we need to be.
You are so brave, it's hard to know what to say but felt like I wanted to comment - we went to Uni at the same time for a while and met a couple of times. It's so good that you're talking about this and I can't imagine going through it. Your positivity is amazing and will no doubt inspire others! George x
Thank you so much George :) nice to see your channel is doing really well! Wish you great success with it in the future, and thank you for your comment x
Perfectly explained! I have the same issues with my right arm and right leg. Hope you stay in remission and get to enjoy some strengthening in the weaker areas.
Hello! Thanks SO much for having the courage to talk about your symptoms. I'm 21 and have been undiagnosed since last July with an abundance of neuro symptoms. At times I can't walk due to numbness, dizziness, and the feeling like I'll black out. Few weeks later, I'm fine. I've seen about 3 neuros and they've all scratched their heads, which eventually led me to look up symptoms myself (I agree, I shouldn't do it. It's just so hard NOT to at this point). It's leaning right now towards MS, the beginning of epilepsy, or some weird case I don't want to think about. I'm about to see another neurologist and run more tests Friday. It's nice to know I'm not alone in this struggle. Anxiety is horrible. I know at one point I too felt like I had a brain tumor or was going to die. I was sure of it. I even wrote a will in my phone. It's calmed a lot now, but I still can't help but think that this is somehow going to be a disease that kills me. I can't imagine what you've gone through, staying in the hospital for so long. We're supposed to be young adults--getting careers, starting families, worrying about student loans (well in the US, anyway). Not worrying about permanent diseases. I hope you continue to get better and the medicine continues to help. If you'd ever like to stay in touch or talk to a random stranger about it, I'm also an author, JLRigby. You can follow me on twitter @jlrigby. Or just look at my website, jlrigby.com. I'm real, promise. 😬 My real name's Jennifer. Thank you again! :)
Hi, thank you so much for your comment! Wow it must be so frustrating and scary to not know what is going on, I remember at the start the fear of the unknown was awful so I can't imagine what it must be like to have that fear for an extended period of time :(. I hope you get to the bottom of it soon! It is a horrible age for it to happen to us (if you do end up with a diagnosis), it's an age when life is just meant to begin - not be set back. Just continue taking each day as it comes and I truly hope you get some answers soon.
Izzy MS I just wanted to say I'm so sorry that you're going through all of this, please please go to you tube and look for kyani MS testimonials, I don't work for them or anything, but I've watched a 70 yr old man I work with go from bed ridden to working in the oil field with me.. this stuff is amazing, I have all kinds of health issues and so I just started the program and I am noticing a difference in just 2 days..
frudlemax Yeah, they don’t want to go for the spinal tap until they’ve looked at everything else. With me they were looking at all kinds of auto-immune stuff and when they finally did the tap they were like “there it is”.
Hi Izzy, I want to say thank you for talking about your experience, I've only very recently been diagnosed with MS and find that the most valuable advice comes from people who have been in my shoes. Similarly I'm only 21 and my symptoms came totally out of the blue and dramatically in what should've been the best few months of my life. I'm feeling really positive about the future thanks to the abundance of help online, so keep spreading your story, because it might make someone feel less alone and make a big difference to how they cope x
Hearing you talk about your experience in a&e and with the doctors is literally like you are describing my first day in hospital. And the MRI too, exact same situation.
Oh my goodness and the lumbar puncture 😞 the pain shooting down my legs when he brushed against nerves was horrific, I couldn't stop crying afterwards just remembering it
Thank you so much for your comment! I too hope that by sharing my story it helps people feel less alone as I felt completely alone when I had my first attack and first got diagnosed x
Hi I just came across this video and I love it, it really hits home with me. I was diagnosed the day after I turned 21 this past April when I lost my peripheral vision. It was technically my 3rd relapse in the last year but I didn't recognize the signs until it effected my vision. I remember getting my MRI's done as well with the needle and all that but I am so sorry yours went the way it did. Your experience did not sound easy but I'm glad you're now on a medication and you haven't had any relapses since! xx wish you all the best, thank you for sharing your story
Hey Amy thank you so much for your message. Yes I have had no more relapses which I am over the moon about and I hope you have not had any either. Hope you are doing well :) x
Dr. Terry Wahls was dependent on a tilt-recline wheelchair for four years until she reclaimed her health using a diet and lifestyle program she designed specifically to -she now pedals her bike to work each day
@@stanger963 if you don't have any food or water, after 3 days you start producing stem cells. Old Russian research from Chernobyl victims. Got that from Coll Robinson.
Thanks for sharing your story. I have MS also (diagnosed at 29). Your ms journey had a horrific start, but the positive from what I see, is that you have a diagnosis. Although not what anyone wants to hear, at least it's a point. I was scared through my MRI process and unfortunately was in mine for an hr. I can relate to the experience of being isolated and being terrified. Although I knew what an MRI was, you are left alone with the unknown. That's terrifying. Mine was aggressive MS and is RRMS. I required six months of physio to get my balance and basically my life back and I am on Tysabri with no relapses since for the last 23 months. Why am I telling you this? Because I wanted to share that having MS is terrible, but there will be days that you will forget that you have it, or it won't be at the major forefront. I hope with your ms journey that you will get to a place of acceptance and then positive mindset and that you won't your mind won't let MS win and take over. Fight the good fight. You will go through shock, trauma, angry at yourself, depression of why me, maybe acceptance and then reluctance, to hope, and then to an eff you MS and the positivity in your battle. Thinking of you today (all the way from Australia) and glad I stumbled upon your video. Amazing strength in sharing what you shared xx thank you.
what a beautiful brave lady you are ,you are helping so many my friend has been diagnosed with ms too all the love and heartfelt wishes you are an inspiration.
Super strong of you Izzy. I was recently diagnosed with transverse myelitis so I know some of what you are going through. Listening to your story helped me a lot because it sounded so much like my own! The MRIs were awful (especially as I’m 6,4 and about 20 stone of meaty man), the lumbar puncture(s) were literally the worst pain I’ve ever endured (had to have it done twice, first 3 attempts of the first procedure failed 🤯). My symptoms have not yet gone away and perhaps may never go away. But there is a whole community of people that suffer with neurological illnesses, we are not alone. Izzy or anyone with a that’s going through something similar, please do reach out to me if you want to talk. We’re stronger together 💪🏻
Hey love, my name is Isabel and I was diagnosed at 16. I really loved this video and I clearly do understand how you feel to have something you love crash down all at once. With the amount of treatments I go through I still get worst but people like us have to stay strong. We can all beat this stupid disease just have to stand strong together and strong.
Hey Lovely, my name is Hannah and I was Diagnosed at 24 (now 27) I love this video and I want to try and create a group or something for young/newly diagnosed people with MS.. so we can all be in this together.. when I was first diagnosed I didn't have anyone to talk to who was my age.. so I'd love to create something for us all.. I hope you're feeling okay today and have a good weekend. thank you so much for this video xxx
Maddie Muse I feel that way too. I'd be interested in talking with people my age that deal with the same problems. if either of you have any ideas on how to communicate let me know.
Yeah except I don't have a Facebook account... I know I know hahaha. I do have a Google + account though and am in a MS group on there. If you know how to contact me other than through RUclips comments hit me up and let me know.
hey guys. well I'm in the process of setting something up.. I think it would be great and would really help people just to vent if not anything else.. I know I have really struggled finding people my age to talk too.. a Google+ account sounds good Daniel.. and Facebook Group.. I'm trying to think of something that can be accessable to every young person living with MS.. I'll keep you both updated :-)
Hey! I am a week away from a one year anniversary of being diagnosed with MS (same symptoms as yours that ended in hemiparalysis). I had chemo and a stem cell transplant which put me into full remission. I have regained full function and am back to my old activities. My docs in Chicago assured me that theres a 99% chance of never having another flare. I know that the same treatment is available in Sheffield. Best of luck to you!
I wanted to say thank you so so much for sharing your story and journey. I recently went through something similar, And felt so alone because I hadn't heard anyone elseWith an attack similar or is bad to mine.I was hospitalized in January after becoming paralyzed and Blind.I spent four months in the hospitalAnd I'm still relearning how to walk.Your courage,And you sharing your story and recovery has been such a huge source of inspiration and motivation to me. Especially you sharing how you went from being unable to walk,To participating in the marathon.That is absolutely amazing and it gives me so much hope.Again, thank you for sharing and I wish you all the best
Thank you very much for sharing this. As a youngster (21) it is really nice to hear someone else close to my age talk about this issue in a way that I can relate to. It's nice to hear someone who knows how it feels to go through this stuff because they've *actually been through it* and that makes a world of difference to someone like me. *Life story summary alert*: When I was 4 I was diagnosed with a brain tumour (made me giggle when you talked about it) which was thankfully benign. I spent a fair amount of time in hospital because of it but it was successfully removed a few months after my 5th birthday (I think). I don't remember much of it, although some certain things like side effects of very strong steroids (incontinence as a 5 year old, don't even ask ugh), strong headaches and lots of laying down, but I feel like this experience was quite hard on my family. Fast forward to last year and I was diagnosed with RRMS the same as you, although my neurologist didn't put a label of "aggressive" even though it clearly is, and had very typical MS symptoms for about 3 years prior to the diagnosis also (slurred speach, pains, vertigo etc). Unfortunately for the last 14 months I've been in a "relapse" that hasn't at all ended but either gets *much* worse for months at a time or just operates at "normal" meaning I have cognitive issues, muscle weakness and all the other little MS issues - but that's the *best* case unfortunately. Due to all of this I'm thinking that it will be increasingly unlikely for me to be able to complete university (which is such a hard thing to come to terms with) and now I'm on a journey to find my place in all of this and to deal with my MS. I found it particularly funny when you mentioned your story about your MRI scan. I imagine I must have felt like that when I had my first MRI scan (I must have been 4) but since then I imagine I've probably had close to 50+ MRI scans in total and I actually find the scans to be relaxing. I never ask for music to be played through my headphones - something the radiologists find strange - as I actually find the sounds of the machine soothing - something they find even stranger. I have had 3 lumbar punctures in my life, two when I was very young and one about 2 years ago relating to my MS. I don't remember the ones when I was young, but my mum says they were horrible, but I remember this last one being one of the worst things ever. The nurse must have screwed something up as it sent the same electric shock feelings you spoke of down my left leg for ages and it took her like 5 tries before she gave up and passed it on to the doctor (who did it first try, thankfully). I just realised I typed a crap load (for the second time - I refreshed the page by mistake) and anyone who actually bothers to read this I wish to say A) wow you must be as bored as me and B) thank you for taking the time to read this. If you are in my position or are a little uncertain of what's to come I hope maybe this helps you to realise there are others who are in this situation too and you are never alone.
Thankyou for this. Ive been experiencing very similar stuff and i can't get in the mri. ..it's beyond terrifying. That drops cage over my face. ...no. just no! !! I hope you stay well and keep making videos. You are very calming to watch and listen to.
Thank you so much for sharing your story. I've been dealing with similar symptoms for a year. I'm going into a neurologist specialist in June. The hardest part is the waiting and the unknown certainties.
I'm studying to be a nurse practitioner. Hearing you go through this has given me an added motivation to push myself to learn as much as I can through my education, so that I can be more enabled to help people such as yourself
They will not teach you how to solve people's problems, trust me. You have to learn by reading the right books and RUclips. Start learn what vitamin c can do. Dr Thomas Levy. Thank you
your so beautiful. I can feel your pain. I was diagnosed at 18yrs old, I have over 7 lesions on my brain in critical areas. I have rrms now I been hospitalized twice the same symptoms as yours just opposite side.. and just hearing your story I related so much your are strong. positive vibes positive mind, positive life. even when it gets hard . ♡
You are amazingly brave. I wish you all the strength in the world to deal with this. I made the mistake of trying to diagnose myself from the Internet for leg & arm weakness, and balance problems. Turned out it was simply a herniated cervical disc that presses on my spinal cord. Now I'm constantly under slight dizziness but apart from that nothing. For a week though I really thought I had MS and ever since I've been very sensitive to this situation. If you ever need to go through an MRI scan again, maybe this would help: Do some research and see how the machine functions. It will help you remove the veil of "big weird machine" that causes stress and see it like what it really is: Just a big magnet with a fast on-off switch and a sensor that takes readings.
D: I'm sorry beautiful!!! I'm sure you already know but just recently they are making great strides in a cure for MS. I wish you the best you could ever have.
Hi Izzy, thank you for this video, I'm sorry you have been going through this. I was diagnosed at 23, when my son was 8 months old. Just like you I was feeling at my best before my symptoms came on. I all of a sudden one night before dinner, started feeling dizzy, and then my left arm and leg went numb and I really struggled to get around. I went to the local hospital after about a week of feeling like that. They did a CT Scan and found quite a large Cyst in my brain, and they told me I had to go straight to the big hospital in the city because the cyst would have to be removed. I was shitting myself, knowing I would have to have brain surgery. It was after several MRI's and weeks in hospital that they found the lesions and damage in my brain, and soon diagnosed me with MS, I started on Tysabri immediately, and now have Infusions monthly. The cyst ended up being a colloid cyst, so it was non cancerous. Still had to be removed, but it didn't have to be as immediate. I went back to hospital to get it taken out about 1 and a half months of being home. I had lots of complications, 1 brain surgery turned into 3. I was left with a permanent VP Shunt in my brain. So now I'm just adjusting to life like you, it's such a big kick in the face. I hope they find a cure soon. Thank you for helping to raise awareness ❤️
Wow you have really been though it! Can't imagine what that was like as well as caring for a baby at home, must have been ridiculously tough. Thank you so much for your message Amy and I hope you are doing well :)
Oh gosh! You can't imagine how much I laughed at this video, I had exactly the same experience that you have but the way you described it, it cracked me up! Love you 😘 I'm the new subscriber ❤
Dear Izzy. I also have MS. My heart goes out to you. You are so brave to post this video. I will not suggest any treatments. Treatments are between you and your doctor. My doctor once told me that MS is like a 300 lb gorrila it decides what to do breaking things or sitting still. MS can reveal what someone is as a person. Your post shows what a lovely person that you are. Please hang in there. I will hope and pray that it goes better for you. sincerely John B.
Thank you for sharing this video. You really are brave 🙂 it's nice that people share these experiences... everyone is so different on how they experience their symptoms. I was diagnosed at 20 years old... have had good and bad days ... but life still goes on. Stay strong x
This was such a lovely comment, thank you so much :). Enough time has passed now for me and I have started to heal and come to terms with my diagnosis and what happened to me. So reflecting on things with a happy head is like looking at things through a new set of eyes! I feel so positive about my future and the future of MS research as in the space of 20 years MS treatment has gone from nothing, to many disease modifying therapies which gives newly diagnosed people like me hope and time! Time to wait for a cure to be found :)
The future looks very positive indeed for everyone! Anti-Lingo-1 may also be a good catch for repair. I would say that this generation is the luckiest when it comes to MS research! It's hard to believe that not long ago, patients were told that they had to live with it. That won't be an answer anymore! I really think that while the disease is complex, it's not impossible to solve, especially because the inflammation is isolated to the brain and spinal cord. A future drug or treatment could be even better at targeting the inflammation, while another will be great at repairing the damage. Maybe we will live in a world where once a year, everyone gets stem cell infusions? Very exciting to think about :)
U don't realise how strong u r, all those test, anxiety and not knowing must have been horrendous, but u did it, u have proven to yourself that u r more resiliant than u thought, all u can do now is don't look to far ahead and take 1 day at a time, keep up this positve outlook, so proud❤❤❤❤❤
You're sharing your experience in such a comic way, although all the crap you've been through. You're making me feel a little bit better about what I have ahead. "This is just to see if your brain is bleeding" with that face... I couldn't help but laugh out loud.
So sorry that this has happened to you,Izzy. It is sad irony that when people make changes to improve their life this can then happen. I am a lot older than you - 45 - though been told I don't look it,I suffer from helicobacter and am getting tested for vitamin b12 deficiency - as pernicious anaemia runs in my family - but have found over the years that I have been getting pins and needles sensations,numbness in my legs at times and at times pains when swallowing.I did have vertigo before so could be this,but have found myself walking and kind of almost fallling to the side (but have had ear infections before). I mentioned this to the doctor today and he said if it only happened once it is not an issue but several months ago I was walking down the road and I did not trip but my legs just gave way under me. This happened to me before when out hillwalking but I was very tired and I do have dyspraxia mind.
i got diagnosed at 18 (intermediate) and on my 10th year anniversary i was classified as chronic. it's robbed much of my life but it's also opened my eyes to another side of life.
I was diagnosed with MS last June. They told me I have aggressive RRMS as well. I have aleady failed my first DMT, gilenya. They are now talking about putting me onto Ocrevus. I was 28 when I was diagnosed, but probably had symptoms for 5 years prior. Unfortunetly I am no stranger to crohnic disease as MS is my second disease. Although I did have the same break down as you did. I definetly went though the 5 stages of grief after they told me. When they first uttered the words MS it petrified me, just the night before they were talking stroke. The only people I knew with it were quadripeligics, nd i hadlost the ability to move my right leg. I have sense learned that not everyone will progress the same, some people may not see any added disability. Science has come a long way and they are getting closer to the answers we all need.
I My name is Emil and I also have Secondary Progressive MS. I also was also diagnosed with MS when I was 22,today I am 50.Please do not give up on hope because there is hope out there, a new drug called OCREVUS might help us....you are also very pretty. ...good luck.
Hi Izzy, my names John. I'm 21 and from the U.K. as well. I have been diagnosed with MS as well and it's really refreshing watching you're video from the perspective of a young person. Stay positive! It's great to see how open you are with the disease and I would love to discuss possible collabs if thats something you'd be interested in? Thanks. John :)
Going through this at the moment. I have my follow up appointment tomorrow. Thankfully i was only in the hospital for 6 days.... you are beautiful and strong :)
I was 19 when I found out I had MS, actually had my 20th birthday in the hospital. My first symptoms showed up when I was around 15 years old and I just ignored it as eye problems. I should not have done that, because it was horrible and scarey when It finally hit. My story is pretty similar to yours, I wish you the best of health and happiness. I'm 24 now, and not much better but keeping my head held high.
hello my name is Nicole i was diagnosis at the age of 18. i had signs of it when i was 16 after a really bad car accident. i then noticing signs of weakness of my left leg but they said i had a pinch nerve so that was it. at 18 i lost my vision in one eye completely and went to hospital and just told me to go to see a eye dr. which was crazy. but i finally got it back. but still had bad signs of weakness in my left leg. so i was 18 dealing with this and ii noticed when i was walking exercise and my balance was going off and one day woke up to have to drag my left leg everybody thought it was a. stroke i was in jail at the time to which was even harder well they didnt believe me but eventually took me to the hospital and all they found was a bolding disk and back to jail i went. they put in a small room with 2 other girls that had medical issues. i noticed that i was not able to control my bawls and then the right leg started to go out. they hand me crutches to walk which I was like how can i use these if i cant move my legs. they just kept screaming at me that i was faking it the nurses were. one of the drs did the touch your nose with your eyes close and they were holding me up and i went backwards with my eyes being shut. i couldn't urine for weeks just a little bit even though i had to really bad. they gave me a wheel chair in a bigger room by myself which was still hard to move around and pick myself up. a nurse and 2 guards came in and said shower time and wanted me to walk into the shower i said i cant. i cant walk and they said their is a shower chair i said i cant walk to the shower chair so they pulled out a camera and said so u r refusing to take one i looked in the camera and said i cant and i am scared. next thing i know i had one guard grab two of my hands and the other one grab my feet and threw me in my cell so hard i peed every where. i heard a girl in the lobby and told her to call my. aunt and tell her what just happened well she did but they come running in and made her get off the phone and unlocked my door and asked y i peed everywhere i said bc u threw me. well next thing i know they are being extra nice helping into the shower brushing my hair and said i was going back to the hospital when i got their i had a female officer by my bedside and when they undressed me she saids omg u have so many bruises all over your body bc of them . well i got the mri done and spinal tap done and dr came in and said u have ms which i just thought so medicine would get rid of it. but had to stay in hospital for a month with alot of steroids and moved to Rebuildtaion. where i was there for a month. i had some many melts down. i have been on so many ms medicines since then but in 2015 i went paralyzed from waist down and had to to get 8000 mg of iv steroids and Rebuildtaion again to learn how to walk again. i have progressive ms pretty bad. but I. have my daughter that i have to keep fighting for. words of advice dont stop fighting. sorry my story was so long i guess it bc i dont have any friends due to my ms. stay strong and keep fighting ms.
girl I have the same disease as you I mean MS you made me laugh like never before you made a joke of that disease you are exposing it or showing it in a comedian way
Izzy you are not alone. I'm 23 and have MS as well. I'm from Russia! You look wonderful and I'm happy that you full of positive energy. Your story motivates me. Thank you a lot!
God i love this video, she is so honest and true to what it is like. I was diagnosed with PPMS 18 months ago at the age of 47. It is so scary when your going through it. Well done Izzy :)
Here I thought I was over my diagnosis from almost a year ago, but your story made me tear up... It is hard, isn't it? I'm so sorry to hear that you had such a traumatic diagnosing process, but so happy to see how well you've improved since then!
I hope you are doing ok. Not seen any more videos from you recently. I know it's not the same but I have CP and Epilepsy from 6 weeks old from a stroke. I'm 38 now and things are definitely much more challenging but this is not about me. I just wanted to say how strong and positive you are. You are an inspiration to anyone. Including me. X
Hey, I uploaded another video recently :). Thank you for sharing your struggles, I hope you are keeping well. Thank you so much - I am a firm believer that positivity is key!
Izzy MS im watching your new video. It's good to see that you seem well. Yes positivity is the key. I bough my self a mobility scooter last week. It was not a easy decision to make but it has got me out of the house a lot more than I would before. And I had to laugh when the birds and planes were making noise in your video 😁
Izzy MS really good news to hear that you are gonna make more videos. The diet ones sound amazing. You have giving me inspiration to make a video. Although I have cerebral palsy. I'm one of the lucky ones who's speech hasn't really been affected by it. But the whole of my right side has been affected. I do have epilepsy but I have it under control at the moment. I wish you the best of luck in December on your 2nd part of treatment. It's my birthday on the 3rd of December and I will be 39 eeeeeekk!!! Haha. But I'm planning on having a party of something. I font normally have parties but the older I get. The more I think , why the hell not 😁. Anyway good luck and I will keep in touch now and again and I am telling my friends who have disabilitys and ms to go and watch your videos as it raises awareness :)
Very brave account of a wholly distressing series of events. An awful lot for such a young woman to process. My daughter has highly active relapsing remitting MS also. Watching this illustrates to me vividly what she has also had to endure.
I also was diagnosed when I was 22. I am now 28 and the first time ive even watched a video was just now because Ive always been terrified and didn't know how to deal with it. I thank you for posting this video. It helped me greatly and helped me not feel so alone and helped with my fright. thank you again!
My MRI lasted 3 and a half hours . Brain, c spine, thoracic spine and lumbar spine then with contrast. They had to stop and sedate me . I had level 10 pain after and was given IV pain meds.
I've had MS for about ten years now and it is a very difficult and unpredictable disease! I think you seem to be dealing with it relatively well! If you ever need an ear, I am willing to chat! I don't have many MS friends at all so it would be nice to have someone to talk to about it! Well wishes! xo Donnie
I relate so much part where you talk about how you felt you didn’t have control of your body and had issues with coordination. I’ve been having tingling, numbness and paralysis in my legs that come and go for a year now, but recently my arms have started getting numb and tingly as well. Then a few days ago I started experiencing weakness in my limbs and trouble walking. I don’t feel like I have control of my legs and I sort of shuffle because it’s difficult to pick up my feet while walking. I really think this is MS but I also really hope it isn’t.
also this is totally what happened to me!! I completely understand how you're feeling! I also hate hospitals! (obviously they're amazing for what they do.. ) if you ever need to have an MRI again.. ask for a blind fold that really helped me :) you're so brave xx
I was diagnosed at 43. I am a huge hypochondriac, always have been. I thought for sure it was stroke or brain tumor. So, it wasn't pretty... I was almost relieved when they said it wasn't a tumor nor stroke, but possibly MS. I had had a friend who passed away from it at 37, and had sung at her funeral 5 years previous. But, she had it for 17 years, and medicine wasn't like it is now, so it gave me hope. Been doing great, and hope to stay like that. You are an inspiration and a hell of a lot braver than I could ever be. I've subbed to you. God bless you for your story. Nice to know I'm not alone. Thank you so much!
I am a doctor and I applaud you for telling your story, its brilliant how you make all details courageously!! I hope all patients are spirited like you darling and i know that MS is a progressive yet you will see period of remission of you stay positive with the illness
Hi Isobel, thanks so much for your story. You are an inspiration. I was just diagnosed one week ago at 28. I had optic neuritis. My mum(50) and my brother who is 32 also have MS so 3 of us in my family have it. I was terrified at first but I am beginning to accept it now. I am a professional guitarist so I was particularly worried that I would one day not be able to play again. The medications are quite good though today and people like you are only helping to create awareness for MS. Thank you again and I wish you all the best.
Thank you for sharing your story! I've been first diagnosed at 20, over 6 years ago & have had a relapse three years ago, where I was completely paralysed on my left side. I stayed in hospital for a month & in a rehab for two more months, but I almost made a full recovery by now. It really helps seeing how others can get through the same thing & being such a great & positive person. I wish you all the best! :)
Your video and the comments are full of powerful stories! Thank you for sharing it with the rest of us! Let’s all together try and raise awareness on multiple sclerosis. #NeuroaspisforMS
I have an aggressive type too, was diagnosed when I was 25( got blind on 1eye - It recovered in a month). I'm 29 now and it's still so hard to accept this MRs, pills, treatments... all the time .. and try to have a normal life ... especially if you are an ambitious person... Btw, thanks for making this video, it helps me a lot to see that I'm not the only one. Kisses From Spain ! :)
Thank you so much for sharing your MS journey. I was diagnosed about 5 days ago but I'd been suffering weakness and such for about a year. It's wonderful to hear and read other people's stories. It helps me remember I am not alone and we CAN do this.
I am on the same path as you although I got my diagnosis in my 40's. My MRI looked like a blizzard... I am Canadian so blizzard describes it perfectly for me and my friends. I rode my bike to my diagnosis meeting. Tons of tears. Hang in there and live your life the best you can!!! I really miss running!!
Amazing & scary story. My first major episode was similar. I have relapsing MA... I hope you’re much better now since this video was 2017 and is now 2019
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Hello, your story was really courageous. I was diagnosed with MS in :96, I was 19 years old. I didn't know what MS was back then, and I figured life was over. Well, I'm 41 now, and yes my MS has progressed, but I continue to strive in life. I am a senior at a CSU and I will be receiving my bachelor degree at the end of spring. Continue to just take it one day at a time 👌
Hope you are doing ok!
I just stumbled onto your video after crying because my 19 year old daughter is about to have her second MRI and spinal tap to confirm MS diagnosis. I appreciate you posting this video more than you can imagine because you obviously are doing so well now with your treatment. Please know that I will add you to my prayers. May you continue to be symptom free!
Hope you are doing ok
Diagnosed at 18 and started having symptoms at 17, my right hand and leg would go numb, I also did morning announcements at my school and would slur and my mouth would go numb. I'm now 20 and about to graduate nursing school! I've been on copaxone for 2 years and it's done wonders! I hate the uncertainty of this disease but, Don't let it control your life, it's a bump in the road!
I have the symptoms in high school as well and no one‘s been able to give me answers. It seems I have a relapse I’ve recorded it now have a pacemaker misdiagnosed. And now waiting on the Mayo clinic to decide what I’m dealing with. It’s scary because he said it’s worse than MS but what can be worse than that? I need answers.
Irish Tequila I’m sorry you’re going through the not knowing. Everybody ms is not the same. I know this from experience. I have a cousin with ms and she’s been paralyzed from waist down since her 20’s. I’m in my early 40’s and I’m not in a wheelchair. I had my first symptom when I was 15 and I was diagnosed at 26.Yes, I have my good and bad days. I hope everything works out for the best in your case.
Did you end up finding out what was wrong?
@@IrishTequilawatching July 2023
@@vonne2003crazy it hits young people
6 weeks in the hospital ! if you lived in the USA that would cost you 2 million dollars ...
I had all your same symptoms and was just diagnosed after being in the hospital. I'm so glad I came across your video!!! Thank you, I hope you're doing well!
Thank you so much for having the courage to talk about your onset of MS. The global MS community REALLY needs a WHOLE LOT MORE younger people to represent younger MS patients! Its a BIG THING Izzy.
Thank you so much for this comment! I agree that we need more younger people talking about this issue and so that is why I decided to talk about it, despite wanting to hide from the issue MS is much bigger than just me and my fears. Looking back, I think what would have helped me an incredible amount at the start of my MS journey would have been a younger person talking about their experience as I felt so alone and felt that this was not meant to happen to someone of my age. But actually there is a growing number of younger people getting diagnosed with MS and many who have been diagnosed even younger than me! The more information out there about MS the better in my opinion and if this video helps people in any way then that is my goal achieved :).
I was diagnosed 49 years ago ..I could tell you I had the very same symptoms you had. I was in hospital 6 weeks maybe longer
when I was home a few months I lost my eye sight! I was scared to death. I could go on and on.
I really believe in the power of pray. I am happy to say I've taken very high doses of steroids many times had 3 healthy boys
and today I've advanced to secondary progressive MS. I still walk I see. I do have symptoms but I'm good. They did not have medication when I was diagnosed. I refuse today. I'm really good. I think you will be good too. Just have a positive attitude, mind over matter. I'll keep you in my prays. God Bless you, Karen
You got your eye sight back right??
So encouraging to hear.
I'm so sorry you had to ever go through all of this so quickly and drastically! I can't imagine how lost you must of felt but sharing this story will really encourage people to be aware of how mentally damaging it is to a person as it was mental health week last week! People are dealing with the same conditions you are and don't ever feel alone, being this brave to share your story is such a huge step in the right direction, thank you!! Keep doing you! You've an amazing personality
I’m 22 too and being diagnosed with MS. It’s just very frustrating to know that you have an incurable disease at such a young age...
I feel bad that you had to experience all that at such a young age. I was diagnosed with RRMS in 2013 and was 30+ years at the time (I actually had had MS already in my twenties too, but mostly with cognitive syptoms and didn't get a diagnosis back then). My symptoms in 2013 were a lot like yours: they came on really quickly and were dramatic. I was so scared and had to be in the hospital for weeks. For me also the medication appointment was some kind of a psychological breaking point. However, all my horrible symptoms went away and nowadays the only symptoms I have are occasional fatigue and some cognitive symptoms (which I've had for a long time), and it's been 4 years without relapses already! So MS is a really unpredictable disease - sometimes in a good way. I'm a Christian and found Jesus as the source of inner peace. Thank you for sharing your story, you are very elaborate and lively.
Thank you for your comment! So amazing to hear how well you are doing :) MS is such an unpredictable disease which I think makes it so hard to cope with as you truly do not know what is around the corner, but that is life I guess! I take each day as it comes, which I'm sure is the same as you, and it is thanks to MS that I know how strong we can actually be when we need to be.
Izzy MS ..look into Serrapeptase .. Proteolytic Enzyme
Johanna040713 Amen Jesus is our peace and healer!
Izzy MS amen
Thank you for sharing. Lots of peaceful thoughts your way this beautiful day. Stay strong to you and all of us with MS.
You are so brave, it's hard to know what to say but felt like I wanted to comment - we went to Uni at the same time for a while and met a couple of times. It's so good that you're talking about this and I can't imagine going through it. Your positivity is amazing and will no doubt inspire others! George x
Thank you so much George :) nice to see your channel is doing really well! Wish you great success with it in the future, and thank you for your comment x
Thank you very much! Looking forward to future videos from you x
Perfectly explained! I have the same issues with my right arm and right leg. Hope you stay in remission and get to enjoy some strengthening in the weaker areas.
Hello! Thanks SO much for having the courage to talk about your symptoms. I'm 21 and have been undiagnosed since last July with an abundance of neuro symptoms. At times I can't walk due to numbness, dizziness, and the feeling like I'll black out. Few weeks later, I'm fine. I've seen about 3 neuros and they've all scratched their heads, which eventually led me to look up symptoms myself (I agree, I shouldn't do it. It's just so hard NOT to at this point). It's leaning right now towards MS, the beginning of epilepsy, or some weird case I don't want to think about. I'm about to see another neurologist and run more tests Friday.
It's nice to know I'm not alone in this struggle. Anxiety is horrible. I know at one point I too felt like I had a brain tumor or was going to die. I was sure of it. I even wrote a will in my phone. It's calmed a lot now, but I still can't help but think that this is somehow going to be a disease that kills me.
I can't imagine what you've gone through, staying in the hospital for so long. We're supposed to be young adults--getting careers, starting families, worrying about student loans (well in the US, anyway). Not worrying about permanent diseases.
I hope you continue to get better and the medicine continues to help. If you'd ever like to stay in touch or talk to a random stranger about it, I'm also an author, JLRigby. You can follow me on twitter @jlrigby. Or just look at my website, jlrigby.com. I'm real, promise. 😬 My real name's Jennifer.
Thank you again! :)
Hi, thank you so much for your comment! Wow it must be so frustrating and scary to not know what is going on, I remember at the start the fear of the unknown was awful so I can't imagine what it must be like to have that fear for an extended period of time :(. I hope you get to the bottom of it soon! It is a horrible age for it to happen to us (if you do end up with a diagnosis), it's an age when life is just meant to begin - not be set back. Just continue taking each day as it comes and I truly hope you get some answers soon.
frudlemax Please research lyme symptoms
Don't have it. Already checked that a year ago.
Izzy MS I just wanted to say I'm so sorry that you're going through all of this, please please go to you tube and look for kyani MS testimonials, I don't work for them or anything, but I've watched a 70 yr old man I work with go from bed ridden to working in the oil field with me.. this stuff is amazing, I have all kinds of health issues and so I just started the program and I am noticing a difference in just 2 days..
frudlemax
Yeah, they don’t want to go for the spinal tap until they’ve looked at everything else. With me they were looking at all kinds of auto-immune stuff and when they finally did the tap they were like “there it is”.
I also have MS. Stay strong 💪 💖 💪
TaijuannaJaye I also have ms I would really like to meet others with it where do I get this
I hv MS too. it's absolutely horrible but I pray everone with ms will live a life they dreamed of 🙏
Hemp CBD oil will cure your MS.
Definitely start using medical marihuana, cbd oil, etc.. This helped me soo much!
try this ruclips.net/video/v6Oxs-v9CY4/видео.html
You did such an excellent job of describing this MRI. I am so sorry I was diagnosed at 24. Christine
Thank you :) hope you are doing ok xx
Diagnosed at 25 very recently good to know there are so many people out there for support
Hi Izzy, I want to say thank you for talking about your experience, I've only very recently been diagnosed with MS and find that the most valuable advice comes from people who have been in my shoes. Similarly I'm only 21 and my symptoms came totally out of the blue and dramatically in what should've been the best few months of my life. I'm feeling really positive about the future thanks to the abundance of help online, so keep spreading your story, because it might make someone feel less alone and make a big difference to how they cope x
Hearing you talk about your experience in a&e and with the doctors is literally like you are describing my first day in hospital. And the MRI too, exact same situation.
Oh my goodness and the lumbar puncture 😞 the pain shooting down my legs when he brushed against nerves was horrific, I couldn't stop crying afterwards just remembering it
Thank you so much for your comment! I too hope that by sharing my story it helps people feel less alone as I felt completely alone when I had my first attack and first got diagnosed x
Thanks for sharing Izzy! I can't imagine it was easy. I don't know what brought me here but I am happy that I stayed to watch and listen.
You sparkle, never lose that shine, it is a crazy, frightening disease and your positive energy and attitude will not let MS have you......
Hi I just came across this video and I love it, it really hits home with me. I was diagnosed the day after I turned 21 this past April when I lost my peripheral vision. It was technically my 3rd relapse in the last year but I didn't recognize the signs until it effected my vision. I remember getting my MRI's done as well with the needle and all that but I am so sorry yours went the way it did. Your experience did not sound easy but I'm glad you're now on a medication and you haven't had any relapses since!
xx wish you all the best,
thank you for sharing your story
Hey Amy thank you so much for your message. Yes I have had no more relapses which I am over the moon about and I hope you have not had any either. Hope you are doing well :) x
Much love and appreciation for sharing your story and for helping others understand what MS is about.
Dr. Terry Wahls was dependent on a tilt-recline wheelchair for four
years until she reclaimed her health using a diet and lifestyle program
she designed specifically to -she now pedals her bike to work each day
crazy story. hopefully they hurry up with the stem cell transplant studies so we can get cured.
Mason Oliver my step dad had a stem cell transplant a year ago (hsct) for his MS and he's doing amazing! It's happening, the future looks positive :)
Dry fasting, 3 to 7 days at a time, stem cells galore
Louis H What about water fasting?
@@louish3010 what do you mean?
@@stanger963 if you don't have any food or water, after 3 days you start producing stem cells. Old Russian research from Chernobyl victims. Got that from Coll Robinson.
Thanks for sharing your story. I have MS also (diagnosed at 29). Your ms journey had a horrific start, but the positive from what I see, is that you have a diagnosis. Although not what anyone wants to hear, at least it's a point.
I was scared through my MRI process and unfortunately was in mine for an hr. I can relate to the experience of being isolated and being terrified. Although I knew what an MRI was, you are left alone with the unknown. That's terrifying.
Mine was aggressive MS and is RRMS. I required six months of physio to get my balance and basically my life back and I am on Tysabri with no relapses since for the last 23 months.
Why am I telling you this? Because I wanted to share that having MS is terrible, but there will be days that you will forget that you have it, or it won't be at the major forefront. I hope with your ms journey that you will get to a place of acceptance and then positive mindset and that you won't your mind won't let MS win and take over. Fight the good fight.
You will go through shock, trauma, angry at yourself, depression of why me, maybe acceptance and then reluctance, to hope, and then to an eff you MS and the positivity in your battle.
Thinking of you today (all the way from Australia) and glad I stumbled upon your video. Amazing strength in sharing what you shared xx thank you.
Charis C I needed this right now. Thanks.
You had an mri of brain and neck only?
what a beautiful brave lady you are ,you are helping so many my friend has been diagnosed with ms too all the love and heartfelt wishes you are an inspiration.
Super strong of you Izzy. I was recently diagnosed with transverse myelitis so I know some of what you are going through. Listening to your story helped me a lot because it sounded so much like my own! The MRIs were awful (especially as I’m 6,4 and about 20 stone of meaty man), the lumbar puncture(s) were literally the worst pain I’ve ever endured (had to have it done twice, first 3 attempts of the first procedure failed 🤯). My symptoms have not yet gone away and perhaps may never go away. But there is a whole community of people that suffer with neurological illnesses, we are not alone. Izzy or anyone with a that’s going through something similar, please do reach out to me if you want to talk. We’re stronger together 💪🏻
Hey love, my name is Isabel and I was diagnosed at 16. I really loved this video and I clearly do understand how you feel to have something you love crash down all at once. With the amount of treatments I go through I still get worst but people like us have to stay strong. We can all beat this stupid disease just have to stand strong together and strong.
Hey Isabel (great name), gosh getting diagnosed at 16 must have been awful! I hope you are keeping well :) and yes, we all have to stay strong x
Hey Lovely, my name is Hannah and I was Diagnosed at 24 (now 27) I love this video and I want to try and create a group or something for young/newly diagnosed people with MS.. so we can all be in this together.. when I was first diagnosed I didn't have anyone to talk to who was my age.. so I'd love to create something for us all.. I hope you're feeling okay today and have a good weekend. thank you so much for this video xxx
Hannah Smith This would be amazing!! I don't have anyone who understands even slightly xx
Maddie Muse I feel that way too. I'd be interested in talking with people my age that deal with the same problems. if either of you have any ideas on how to communicate let me know.
Daniel we could start a private facebook group maybe. Gives people the chance to post what they like somewhere away from friends and family
Yeah except I don't have a Facebook account... I know I know hahaha. I do have a Google + account though and am in a MS group on there. If you know how to contact me other than through RUclips comments hit me up and let me know.
hey guys. well I'm in the process of setting something up.. I think it would be great and would really help people just to vent if not anything else.. I know I have really struggled finding people my age to talk too.. a Google+ account sounds good Daniel.. and Facebook Group.. I'm trying to think of something that can be accessable to every young person living with MS.. I'll keep you both updated :-)
Hey! I am a week away from a one year anniversary of being diagnosed with MS (same symptoms as yours that ended in hemiparalysis). I had chemo and a stem cell transplant which put me into full remission. I have regained full function and am back to my old activities. My docs in Chicago assured me that theres a 99% chance of never having another flare. I know that the same treatment is available in Sheffield. Best of luck to you!
wow thank you for sharing this :)
You're a great storyteller!
I'm glad RUclips recommend this video to me. It's a relief to hear someone else has gone through what I'm going through right now 🙏
I wanted to say thank you so so much for sharing your story and journey. I recently went through something similar, And felt so alone because I hadn't heard anyone elseWith an attack similar or is bad to mine.I was hospitalized in January after becoming paralyzed and Blind.I spent four months in the hospitalAnd I'm still relearning how to walk.Your courage,And you sharing your story and recovery has been such a huge source of inspiration and motivation to me. Especially you sharing how you went from being unable to walk,To participating in the marathon.That is absolutely amazing and it gives me so much hope.Again, thank you for sharing and I wish you all the best
Thank you very much for sharing this. As a youngster (21) it is really nice to hear someone else close to my age talk about this issue in a way that I can relate to. It's nice to hear someone who knows how it feels to go through this stuff because they've *actually been through it* and that makes a world of difference to someone like me. *Life story summary alert*:
When I was 4 I was diagnosed with a brain tumour (made me giggle when you talked about it) which was thankfully benign. I spent a fair amount of time in hospital because of it but it was successfully removed a few months after my 5th birthday (I think). I don't remember much of it, although some certain things like side effects of very strong steroids (incontinence as a 5 year old, don't even ask ugh), strong headaches and lots of laying down, but I feel like this experience was quite hard on my family. Fast forward to last year and I was diagnosed with RRMS the same as you, although my neurologist didn't put a label of "aggressive" even though it clearly is, and had very typical MS symptoms for about 3 years prior to the diagnosis also (slurred speach, pains, vertigo etc). Unfortunately for the last 14 months I've been in a "relapse" that hasn't at all ended but either gets *much* worse for months at a time or just operates at "normal" meaning I have cognitive issues, muscle weakness and all the other little MS issues - but that's the *best* case unfortunately. Due to all of this I'm thinking that it will be increasingly unlikely for me to be able to complete university (which is such a hard thing to come to terms with) and now I'm on a journey to find my place in all of this and to deal with my MS.
I found it particularly funny when you mentioned your story about your MRI scan. I imagine I must have felt like that when I had my first MRI scan (I must have been 4) but since then I imagine I've probably had close to 50+ MRI scans in total and I actually find the scans to be relaxing. I never ask for music to be played through my headphones - something the radiologists find strange - as I actually find the sounds of the machine soothing - something they find even stranger. I have had 3 lumbar punctures in my life, two when I was very young and one about 2 years ago relating to my MS. I don't remember the ones when I was young, but my mum says they were horrible, but I remember this last one being one of the worst things ever. The nurse must have screwed something up as it sent the same electric shock feelings you spoke of down my left leg for ages and it took her like 5 tries before she gave up and passed it on to the doctor (who did it first try, thankfully).
I just realised I typed a crap load (for the second time - I refreshed the page by mistake) and anyone who actually bothers to read this I wish to say A) wow you must be as bored as me and B) thank you for taking the time to read this. If you are in my position or are a little uncertain of what's to come I hope maybe this helps you to realise there are others who are in this situation too and you are never alone.
I got diagnosed with MS 2 weeks ago. Just wanted to share and feel a bit of a relief :)
I was diagnosed with MS Nov 18. Still waiting to go on treatment. Love this video. Xxxxx
Thankyou for this. Ive been experiencing very similar stuff and i can't get in the mri. ..it's beyond terrifying. That drops cage over my face. ...no. just no! !! I hope you stay well and keep making videos. You are very calming to watch and listen to.
Thankyou for sharing your story, it helps people like me to understand. I hope you never have any another symptoms and carry on staying strong xx
Thank you so much for sharing your story. I've been dealing with similar symptoms for a year. I'm going into a neurologist specialist in June. The hardest part is the waiting and the unknown certainties.
Waiting is so hard - it is hard to cope with the fear of the unknown! Keep staying positive and I hope your meeting with the neurologist went well :)
Hey Books, any updates ?
Izzy MS hi. I found out July 2019 that I have late stage Lyme Disease. Sending lots of love
@@allisoneuph1 what symptoms did you have ? and how it was diagnosed ?
I'm studying to be a nurse practitioner. Hearing you go through this has given me an added motivation to push myself to learn as much as I can through my education, so that I can be more enabled to help people such as yourself
They will not teach you how to solve people's problems, trust me. You have to learn by reading the right books and RUclips. Start learn what vitamin c can do. Dr Thomas Levy. Thank you
your so beautiful.
I can feel your pain.
I was diagnosed at 18yrs old,
I have over 7 lesions on my brain
in critical areas. I have rrms now I been hospitalized twice the same symptoms as yours just opposite side.. and just hearing your story I related so much your are strong. positive vibes positive mind, positive life. even when it gets hard . ♡
4 1/2 years diagnosed.
You are amazingly brave. I wish you all the strength in the world to deal with this.
I made the mistake of trying to diagnose myself from the Internet for leg & arm weakness, and balance problems. Turned out it was simply a herniated cervical disc that presses on my spinal cord. Now I'm constantly under slight dizziness but apart from that nothing. For a week though I really thought I had MS and ever since I've been very sensitive to this situation.
If you ever need to go through an MRI scan again, maybe this would help: Do some research and see how the machine functions. It will help you remove the veil of "big weird machine" that causes stress and see it like what it really is: Just a big magnet with a fast on-off switch and a sensor that takes readings.
D: I'm sorry beautiful!!! I'm sure you already know but just recently they are making great strides in a cure for MS. I wish you the best you could ever have.
You are so incredibly brave. Thank you for sharing. I am studying Biomedicine and watching your video is so helpful to my understanding.Thank you xx
Hi Izzy, thank you for this video, I'm sorry you have been going through this. I was diagnosed at 23, when my son was 8 months old. Just like you I was feeling at my best before my symptoms came on.
I all of a sudden one night before dinner, started feeling dizzy, and then my left arm and leg went numb and I really struggled to get around. I went to the local hospital after about a week of feeling like that. They did a CT Scan and found quite a large Cyst in my brain, and they told me I had to go straight to the big hospital in the city because the cyst would have to be removed.
I was shitting myself, knowing I would have to have brain surgery. It was after several MRI's and weeks in hospital that they found the lesions and damage in my brain, and soon diagnosed me with MS, I started on Tysabri immediately, and now have Infusions monthly.
The cyst ended up being a colloid cyst, so it was non cancerous. Still had to be removed, but it didn't have to be as immediate. I went back to hospital to get it taken out about 1 and a half months of being home. I had lots of complications, 1 brain surgery turned into 3. I was left with a permanent VP Shunt in my brain.
So now I'm just adjusting to life like you, it's such a big kick in the face. I hope they find a cure soon. Thank you for helping to raise awareness ❤️
Wow you have really been though it! Can't imagine what that was like as well as caring for a baby at home, must have been ridiculously tough. Thank you so much for your message Amy and I hope you are doing well :)
Oh gosh! You can't imagine how much I laughed at this video, I had exactly the same experience that you have but the way you described it, it cracked me up! Love you 😘 I'm the new subscriber ❤
I'm 34, but was diagnosed at 20. Exact same experience. So I feel you. It's surreal.
Great video. You're being really good and brave. I've had MS since the age of 7 or 8 or possibly even earlier ( I'm 42 now ) .
Thank you so much for sharing your story. ♡♡♡
I have remitting relapsing and it sounds very familiar. Thank you Izzy.
Dear Izzy. I also have MS. My heart goes out to you. You are so brave to post this video. I will not suggest any treatments. Treatments are between you and your doctor. My doctor once told me that MS is like a 300 lb gorrila it decides what to do breaking things or sitting still. MS can reveal what someone is as a person. Your post shows what a lovely person that you are. Please hang in there. I will hope and pray that it goes better for you.
sincerely John B.
At 57, I have M.S. for 35 years. You are spot on in describing this disease. You are a beautiful young lady and a wonderful spokesperson.
Thank you for sharing this video. You really are brave 🙂 it's nice that people share these experiences... everyone is so different on how they experience their symptoms. I was diagnosed at 20 years old... have had good and bad days ... but life still goes on.
Stay strong x
Im seeing a neurologist in a few weeks. Thanks for the video, you made me laugh and I know what to expect.
hey david, what was your updates ??
You are so brave! I'm so proud of you!
This was such a lovely comment, thank you so much :). Enough time has passed now for me and I have started to heal and come to terms with my diagnosis and what happened to me. So reflecting on things with a happy head is like looking at things through a new set of eyes! I feel so positive about my future and the future of MS research as in the space of 20 years MS treatment has gone from nothing, to many disease modifying therapies which gives newly diagnosed people like me hope and time! Time to wait for a cure to be found :)
The future looks very positive indeed for everyone! Anti-Lingo-1 may also be a good catch for repair. I would say that this generation is the luckiest when it comes to MS research! It's hard to believe that not long ago, patients were told that they had to live with it. That won't be an answer anymore! I really think that while the disease is complex, it's not impossible to solve, especially because the inflammation is isolated to the brain and spinal cord. A future drug or treatment could be even better at targeting the inflammation, while another will be great at repairing the damage. Maybe we will live in a world where once a year, everyone gets stem cell infusions? Very exciting to think about :)
Lula Alder I like your comment. Very positive!
U don't realise how strong u r, all those test, anxiety and not knowing must have been horrendous, but u did it, u have proven to yourself that u r more resiliant than u thought, all u can do now is don't look to far ahead and take 1 day at a time, keep up this positve outlook, so proud❤❤❤❤❤
I do also face MS for 13 years,almost for for the half of my life!!God bless you and stay strong!!
Thank you for this video. My friend was just diagnosed with MS (she's 18) and while this is a very scary thing, your video gave me some hope. ❤️
I had a very similar experience when I was 18 (I'm 19 now) so this video really helps me to deal with everything! Thank you so much xx
Except my right side was paralyzed 😅 and the worst thing for me was that I couldn't pee and I had to wear a catheter for a few weeks. Which hurts 😰
@@julievb6243 that's scary ! how are you now Julie ?
Bahaa Muhsen i’m finally doing better after i got HSCT (chemo) last year
@@julievb6243 chemo ??... because of what ??...
Bc of ms, it’s called hsct and it’s used when the ms is very sever and medicine doesn’t work
You are wonderful. Thank you for sharing your story, gives me and a lot of people hope. Thank you.
You're sharing your experience in such a comic way, although all the crap you've been through. You're making me feel a little bit better about what I have ahead. "This is just to see if your brain is bleeding" with that face... I couldn't help but laugh out loud.
So sorry that this has happened to you,Izzy. It is sad irony that when people make changes to improve their life this can then happen.
I am a lot older than you - 45 - though been told I don't look it,I suffer from helicobacter and am getting tested for vitamin b12 deficiency - as pernicious anaemia runs in my family - but have found over the years that I have been getting pins and needles sensations,numbness in my legs at times and at times pains when swallowing.I did have vertigo before so could be this,but have found myself walking and kind of almost fallling to the side (but have had ear infections before). I mentioned this to the doctor today and he said if it only happened once it is not an issue but several months ago I was walking down the road and I did not trip but my legs just gave way under me. This happened to me before when out hillwalking but I was very tired and I do have dyspraxia mind.
youre the best, listening to your story all the way from the US!!
I admire your courage in all this
i got diagnosed at 18 (intermediate) and on my 10th year anniversary i was classified as chronic. it's robbed much of my life but it's also opened my eyes to another side of life.
I was diagnosed with MS last June. They told me I have aggressive RRMS as well. I have aleady failed my first DMT, gilenya. They are now talking about putting me onto Ocrevus. I was 28 when I was diagnosed, but probably had symptoms for 5 years prior. Unfortunetly I am no stranger to crohnic disease as MS is my second disease. Although I did have the same break down as you did. I definetly went though the 5 stages of grief after they told me. When they first uttered the words MS it petrified me, just the night before they were talking stroke. The only people I knew with it were quadripeligics, nd i hadlost the ability to move my right leg. I have sense learned that not everyone will progress the same, some people may not see any added disability. Science has come a long way and they are getting closer to the answers we all need.
Izzy, I'm glad you are doing well, I was diagnosed with MS AND I don't my hand or my speech back, so consider yourself very lucky...
Bless you, I wish you all the health in the world. I do feel lucky to have fully recovered and hope you will too x
wow with an illness like that, and with this spirit , you're just amazing :(
I
My name is Emil and I also have Secondary Progressive MS. I also was also diagnosed with MS when I was 22,today I am 50.Please do not give up on hope because there is hope out there, a new drug called OCREVUS might help us....you are also very pretty. ...good luck.
Hi Izzy, my names John. I'm 21 and from the U.K. as well. I have been diagnosed with MS as well and it's really refreshing watching you're video from the perspective of a young person. Stay positive! It's great to see how open you are with the disease and I would love to discuss possible collabs if thats something you'd be interested in? Thanks.
John :)
Thank you so much for sharing your story. We are all here for you please reach out to me if you need someone to talk to.
Going through this at the moment. I have my follow up appointment tomorrow. Thankfully i was only in the hospital for 6 days.... you are beautiful and strong :)
I was 19 when I found out I had MS, actually had my 20th birthday in the hospital. My first symptoms showed up when I was around 15 years old and I just ignored it as eye problems. I should not have done that, because it was horrible and scarey when It finally hit. My story is pretty similar to yours, I wish you the best of health and happiness.
I'm 24 now, and not much better but keeping my head held high.
hello my name is Nicole i was diagnosis at the age of 18. i had signs of it when i was 16 after a really bad car accident. i then noticing signs of weakness of my left leg but they said i had a pinch nerve so that was it. at 18 i lost my vision in one eye completely and went to hospital and just told me to go to see a eye dr. which was crazy. but i finally got it back. but still had bad signs of weakness in my left leg. so i was 18 dealing with this and ii noticed when i was walking exercise and my balance was going off and one day woke up to have to drag my left leg everybody thought it was a. stroke i was in jail at the time to which was even harder well they didnt believe me but eventually took me to the hospital and all they found was a bolding disk and back to jail i went. they put in a small room with 2 other girls that had medical issues. i noticed that i was not able to control my bawls and then the right leg started to go out. they hand me crutches to walk which I was like how can i use these if i cant move my legs. they just kept screaming at me that i was faking it the nurses were. one of the drs did the touch your nose with your eyes close and they were holding me up and i went backwards with my eyes being shut. i couldn't urine for weeks just a little bit even though i had to really bad. they gave me a wheel chair in a bigger room by myself which was still hard to move around and pick myself up. a nurse and 2 guards came in and said shower time and wanted me to walk into the shower i said i cant. i cant walk and they said their is a shower chair i said i cant walk to the shower chair so they pulled out a camera and said so u r refusing to take one i looked in the camera and said i cant and i am scared. next thing i know i had one guard grab two of my hands and the other one grab my feet and threw me in my cell so hard i peed every where. i heard a girl in the lobby and told her to call my. aunt and tell her what just happened well she did but they come running in and made her get off the phone and unlocked my door and asked y i peed everywhere i said bc u threw me. well next thing i know they are being extra nice helping into the shower brushing my hair and said i was going back to the hospital when i got their i had a female officer by my bedside and when they undressed me she saids omg u have so many bruises all over your body bc of them . well i got the mri done and spinal tap done and dr came in and said u have ms which i just thought so medicine would get rid of it. but had to stay in hospital for a month with alot of steroids and moved to Rebuildtaion. where i was there for a month. i had some many melts down. i have been on so many ms medicines since then but in 2015 i went paralyzed from waist down and had to to get 8000 mg of iv steroids and Rebuildtaion again to learn how to walk again. i have progressive ms pretty bad. but I. have my daughter that i have to keep fighting for. words of advice dont stop fighting. sorry my story was so long i guess it bc i dont have any friends due to my ms. stay strong and keep fighting ms.
thank you for sharing your story, stay strong x :)
girl I have the same disease as you I mean MS you made me laugh like never before you made a joke of that disease you are exposing it or showing it in a comedian way
Izzy you are not alone. I'm 23 and have MS as well. I'm from Russia! You look wonderful and I'm happy that you full of positive energy. Your story motivates me. Thank you a lot!
And it is important that you share your story, especially with people who understand you, and that's what we are with the same sickness.
You have really been through so much. My boyfriend has MS and was diagnosed in his 20's. I will pray for you.
God i love this video, she is so honest and true to what it is like. I was diagnosed with PPMS 18 months ago at the age of 47. It is so scary when your going through it. Well done Izzy :)
Here I thought I was over my diagnosis from almost a year ago, but your story made me tear up... It is hard, isn't it? I'm so sorry to hear that you had such a traumatic diagnosing process, but so happy to see how well you've improved since then!
I hope you are doing ok. Not seen any more videos from you recently. I know it's not the same but I have CP and Epilepsy from 6 weeks old from a stroke. I'm 38 now and things are definitely much more challenging but this is not about me. I just wanted to say how strong and positive you are. You are an inspiration to anyone. Including me. X
Hey, I uploaded another video recently :). Thank you for sharing your struggles, I hope you are keeping well. Thank you so much - I am a firm believer that positivity is key!
Izzy MS im watching your new video. It's good to see that you seem well. Yes positivity is the key. I bough my self a mobility scooter last week. It was not a easy decision to make but it has got me out of the house a lot more than I would before. And I had to laugh when the birds and planes were making noise in your video 😁
Hey Jay, must have not been an easy decision but glad it is giving you more freedom and getting you outside more. Haha! They were pretty annoying...
Izzy MS really good news to hear that you are gonna make more videos. The diet ones sound amazing. You have giving me inspiration to make a video. Although I have cerebral palsy. I'm one of the lucky ones who's speech hasn't really been affected by it. But the whole of my right side has been affected. I do have epilepsy but I have it under control at the moment. I wish you the best of luck in December on your 2nd part of treatment. It's my birthday on the 3rd of December and I will be 39 eeeeeekk!!! Haha. But I'm planning on having a party of something. I font normally have parties but the older I get. The more I think , why the hell not 😁. Anyway good luck and I will keep in touch now and again and I am telling my friends who have disabilitys and ms to go and watch your videos as it raises awareness :)
Very brave account of a wholly distressing series of events. An awful lot for such a young woman to process. My daughter has highly active relapsing remitting MS also. Watching this illustrates to me vividly what she has also had to endure.
You are actually quite lucky in the sense that you got a quick diagnosis. It can take years to get an accurate diagnosis. Glad they found out quickly.
I also was diagnosed when I was 22. I am now 28 and the first time ive even watched a video was just now because Ive always been terrified and didn't know how to deal with it. I thank you for posting this video. It helped me greatly and helped me not feel so alone and helped with my fright. thank you again!
My MRI lasted 3 and a half hours .
Brain, c spine, thoracic spine and lumbar spine then with contrast.
They had to stop and sedate me .
I had level 10 pain after and was given IV pain meds.
Did you had lesions in all of this areas? Or in brain and neck only?
I've had MS for about ten years now and it is a very difficult and unpredictable disease! I think you seem to be dealing with it relatively well! If you ever need an ear, I am willing to chat! I don't have many MS friends at all so it would be nice to have someone to talk to about it!
Well wishes!
xo Donnie
I relate so much part where you talk about how you felt you didn’t have control of your body and had issues with coordination. I’ve been having tingling, numbness and paralysis in my legs that come and go for a year now, but recently my arms have started getting numb and tingly as well. Then a few days ago I started experiencing weakness in my limbs and trouble walking. I don’t feel like I have control of my legs and I sort of shuffle because it’s difficult to pick up my feet while walking. I really think this is MS but I also really hope it isn’t.
also this is totally what happened to me!! I completely understand how you're feeling! I also hate hospitals! (obviously they're amazing for what they do.. ) if you ever need to have an MRI again.. ask for a blind fold that really helped me :) you're so brave xx
I'm praying for you sweetie. Thanks for sharing this had been very helpful for me. God bless!
I was diagnosed at 43. I am a huge hypochondriac, always have been. I thought for sure it was stroke or brain tumor. So, it wasn't pretty... I was almost relieved when they said it wasn't a tumor nor stroke, but possibly MS. I had had a friend who passed away from it at 37, and had sung at her funeral 5 years previous. But, she had it for 17 years, and medicine wasn't like it is now, so it gave me hope. Been doing great, and hope to stay like that. You are an inspiration and a hell of a lot braver than I could ever be. I've subbed to you. God bless you for your story. Nice to know I'm not alone. Thank you so much!
You are so strong and beautiful. Thank you for this video, you give me hope with my MS.
I am a doctor and I applaud you for telling your story, its brilliant how you make all details courageously!! I hope all patients are spirited like you darling and i know that MS is a progressive yet you will see period of remission of you stay positive with the illness
Hi Isobel, thanks so much for your story. You are an inspiration. I was just diagnosed one week ago at 28. I had optic neuritis. My mum(50) and my brother who is 32 also have MS so 3 of us in my family have it. I was terrified at first but I am beginning to accept it now. I am a professional guitarist so I was particularly worried that I would one day not be able to play again. The medications are quite good though today and people like you are only helping to create awareness for MS. Thank you again and I wish you all the best.
Thank you for sharing your story! I've been first diagnosed at 20, over 6 years ago & have had a relapse three years ago, where I was completely paralysed on my left side. I stayed in hospital for a month & in a rehab for two more months, but I almost made a full recovery by now. It really helps seeing how others can get through the same thing & being such a great & positive person. I wish you all the best! :)
Your video and the comments are full of powerful stories! Thank you for sharing it with the rest of us! Let’s all together try and raise awareness on multiple sclerosis. #NeuroaspisforMS
So your journey begins but allow us to join you to ride the ups and downs together ;)
I have an aggressive type too, was diagnosed when I was 25( got blind on 1eye - It recovered in a month). I'm 29 now and it's still so hard to accept this MRs, pills, treatments... all the time .. and try to have a normal life ... especially if you are an ambitious person... Btw, thanks for making this video, it helps me a lot to see that I'm not the only one. Kisses From Spain ! :)
Recovered ?
Thank you for sharing your story. I have worsening of Multiple sclerosis and I was diagnosed and admitted on February 5, 2018 and I'm 22 years old now
Thank you so much for sharing your MS journey. I was diagnosed about 5 days ago but I'd been suffering weakness and such for about a year. It's wonderful to hear and read other people's stories. It helps me remember I am not alone and we CAN do this.
I am on the same path as you although I got my diagnosis in my 40's. My MRI looked like a blizzard... I am Canadian so blizzard describes it perfectly for me and my friends. I rode my bike to my diagnosis meeting. Tons of tears. Hang in there and live your life the best you can!!! I really miss running!!
this video was part of my biology course on the nervous system, thank you for sharing your story
Amazing & scary story. My first major episode was similar. I have relapsing MA... I hope you’re much better now since this video was 2017 and is now 2019