My Multiple Sclerosis Diagnosis Story || Relapsing Remitting MS || How I Found Out that I Have MS
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- Опубликовано: 19 июл 2023
- Hi guys! This video serves as a mini life update. I just wanted to let you all know a little bit about what has been going on while I have been away from RUclips. I am excited about my return and I hope you all are too! My hope is that this video can bring some comfort and positivity to those going through similar journeys or just a tough time in general. Love you guys!
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![Multiple Sclerosis Diagnostic Criteria [Neurologist Explains]](http://i.ytimg.com/vi/Ixns85V95-Y/mqdefault.jpg)
My girlfriend got struck by this disease right after her final exams. She's only 20 years. It's close to a year now and she's had to live with pain including everyone around her. It was first her left leg and today, she's feeling heaviness and numbness in her right leg and hands also. She's yet to receive treatment for the first time. I hope she recovers. I type this wit so much tears😭
Hi April. First I want to say I’m so sorry to hear you’re going through so much stuff right now. It’s hard to juggle a career with motherhood at the best of times, but throw in a diagnosis of MS and all the crap that it brings takes the stress to another level altogether. I know how you’re feeling, I was diagnosed with MS at 21 and I also had an Optic Neuritis. Back then in the late ‘80’s there was no “medicine” available, you just had steroids for an exacerbation. I’ve been lucky that I’ve only had about five exacerbations in nearly 40 years, but in the last two years things have gone downhill. I’ve gone from RRMS to Secondary Progressive MS and my cognitive function has gone downhill in a big way. I get your “forgetfulness”, that’s become a permanent way of life for me and IT HURTS, because I’ve always had a high IQ and I’m also very independent. It is what it is though and like you said, there are a lot of people out there who have it worse than I do. I try to keep thinking encouraging things but it’s so hard sometimes, especially as I’m on my own now with no family. One thing I wanted to say to you is please do keep up the treatment, that will make a huge difference by stopping the MS and your lesions, which will set you up for a good outcome in the future. There has been huge progress in trying to find a cure and it will definitely happen in your lifetime, so be a good girl and take your medicine, your future self will love you for it. Keep your head up and keep pushing through the pain. You’re a strong person, you got this girl. Take care and much love and hugs to you from Shelley in Australia 🙏👏❤️
Thank you for taking the time to watch my video and leave such a thoughtful comment. I appreciate your kind words. I am so sorry to hear about the progression you have been experiencing. Sending love and light your way ✨God bless you!
I one hundred percent know how you feel. We look normal but in actuality, we are fighting every day to get moving. People ask how are you not feeling well you look fine. Your labs are fine but, were sick. It can change from day to day. One day it's drying your hair sitting on the floor. You can't stand it because the fatigue is terrible. You go shopping and come home it takes hours to put your groceries away. The next you have energy and you do too much and then it hits again. It's hard to explain. I however know that God knows and He will help me. He will be there every step of the way.
It can be such a confusing and challenging thing to navigate. Most days I don’t have the words to really describe how I feel, but God is able and He will lead us as we journey through this! Blessings to you! Thank you for watching!
@@aprilgene God bless you too.❤
@bubblybernice4863 thank you 🤍🙏🏽
Hope you're doing ok. Sending lots of love to you. 🧡
Thank you so much! I am doing well, I hope the same for you 🙏🏽
Good evening,
I watched your video and was touched and amazed how beautiful you are to share your problem. My daughter was diagnosed 2 months ago with M. S. She has had many puzzling symptoms but was told the first episode was a mild stroke and secondly the next episode was belsy palsy. This has been over a period of a few years. She would fall while walking and severe health. The last episode was 2 months ago and she fell. Very bad problems happened. Flat on her face on the street and black eyes, scraped face, top teeth through bottom lip, boken ribs , broken left wrist and severely damaged knees. They took her to hospital and she has lesions on her brain and spine. She is 60 years old and it took so long to diagnose her. They saw the lesions on her brain during the previous incidents but didn't test further. Now she had to go through 2 rounds of vaccinations and then they will start her on some type of infusions. I cannot go to her because I am scheduled for knee replacement surgery. My huge problem is I live in Canada and she lives in Switzerland. We are so far apart. I hope I'll be able to travel after my surgery heals.
This is such a long comment but I wanted to fill you in on the background. How VERY BRAVE YOU ARE TO HELP INFORM OTHER. You are a wonderful inspiration. May God bless you and guide you throughout everything.
Thank you for your support to me.
Doreen.
Continually praying for you sis! Prayer changes things! Continue having faith and continue with your doctors advice! You look good!
Thank you so much! Yes prayer indeed changes EVERYTHING. I appreciate your love and support 🙏🏽🤍
Hi April! I first want to say, I’m so sorry you have MS. I too have MS. I’ve had MS for 24 years. I was 22 when I too had ocular neuritis, like you described. I too experienced multiple relapses. I feel the need to share this with you.
Always remember to give yourself grace. Live in the now and try not to dwell on MS in the future. I’m here to tell you MS has a mind of its own. Listen to your body. My biggest advice is to stay on the best DMT that you feel comfortable taking, because MS is always lurking in the background. Always make a list of symptoms and questions, before seeing your Neurologist. Unfortunately, very few people will ever understand your MS, except others that have it. Always,be your own best advocate. I still struggle to remember that everything is not MS….
Thanks for sharing your diagnosis story. It will be one you tell over and over and that’s okay.
Lots of love
Mandy
Sending lots of love 🧡
@@livingwithms right back at you 🧡
My fiancé was just diagnosed last week with MS and it’s definitely taken a mental toll on him. Physically right now he is fine just recovering from the double vision on the left eye but it’s more of the mental aspect that right now has been hard on him he’s only 32 and is worried about how this will affect him when we do plan to have a family. He starts treatment Sunday. Right now I’m just trying to learn more about MS and how to better support him through these season he is going through. Thank you for sharing your story with MS it’s been insightful and gives me hope for my partner. Wishing you all the best in your journey with MS and every other aspect of your life ❤
I am wishing you and your partner the absolute best! I pray that he will have a long and fulfilling life of joy! I am grateful that my story could resonate with you both and offer some source of hope 🤍
So glad you’re back on RUclips! I’m so encouraged by your vulnerability and I am praying so heavily for you. Love you 🥰
Thank you, I am glad to be back! Love you too 💕
You are an Angel. Thank you sharing your story. I’ve watched lots of diagnosis videos since receiving my diagnosis a few months ago and I must say that yours resonates with me the most. Not only because I have similar signs and symptoms (inflamed, swollen optic nerve, went to a neuro- optomologist , electric shocks, etc.) but also because I haven’t seen a lot of stories from people that look like us. Sending you so much love, healing and clarity on your journey and I pray that you are feeling okay. ❤
You are so sweet! Thank you so much! Same to you! Take good care of yourself and never be afraid to invest in your well-being (whatever that may look like for you!) 🙏🏽❤️
Hang in there! I received my SPMS diagnosis 5 months ago and I haven’t made an on screen YT video since. After watching yours, I’m feeling maybe it’s time to restart my channel. I started my DMT (Mayzent) 4 months ago. Honestly feel better and move better. I hope you see positive results with your DMT. Best wishes, Steve
Wow! I am so happy to hear that this video was able to inspire you to reignite your journey on RUclips! I am rooting for you and wishing you the best regarding your health as well. Thank you for watching Steve!
Sorry about your diagnosis 🧡 there is such a supportive online community I hope will be helpful for you💪🏻
Thank you! That is my hope as well 😊
Sorry to hear of you SP diagnosis. Hope you're doing ok. Sending lots of love! 🧡
so sorry you got this journey ahead of you 🧡 everyone’s journey is different but I didn’t start DMTs until after 8 yrs of diagnosis. if I could do it again, I think I would have taken it sooner. You’re young and strong!!💪🏻💪🏻🧡 glad you are back online😊
Thank you so much! I appreciate your support 🙏🏽❤️ Hoping for continued strength for you as well! This journey is not for the faint of heart lol
Sending lots of love to you
I was diagnosed with MS 1 month ago and I can relate so much, thank you for this video and please know, you are not alone ❤
Thank YOU for your kindness and for watching! I am so happy to hear that this could be an encouragement to you! 🤍
So sorry you are going through this. Just know you are not alone. There's an amazing group of people and we're all here with you, every step of the way. 🧡
I appreciate your support and kind words! It means so much, truly!
April - May God do a mighty work in your treatment and healing process. I have a friend who has MS. Let me know if you’d like me to put you in touch with her. Just know I’ll be praying. God is going to use this affliction as a great ministry opportunity. 🙏🏾
Thank you so much! I appreciate your prayers and support ❤️🥹
Just got to the point in your video where you mentioned forgetfulness and I can’t agree with you more! Ironically, I was going to commend you on your ability to track and your timeline of events because my memory and brain fog could never!
Haha I did have to write some points down to remember for the video! So sweet though, thank you!
Bless you, my dear! I found you looking for other MS stories. I was diagnosed a few weeks ago after 10 month long journey of fear of confusion. It's called a snowflake disease because it's different for everyone. I would encourage getting on a disease modifying therapy because I just found out at 51 but they suspect I've had it for decades. Mine hid behide several diseases I have. If I had started earlier maybe I would not fall as much as I do. Maybe I could still drive(i cannot focus enough and my proprioception is off). Maybe I could carry my grandsons around. I'm starting a dmt - zeposia as soon as they finish all my bloodwork and such.
There is a neurologist- Aaron Boster that has a yt channel. He has great info!!!
Sorry if this is scattered, commenting while at work.
Best of all to you, and look forward to fighting with you!!!
Wow, I am glad you found this video and that it left a positive impact on you! I pray that you find peace and courage through this journey! I believe I have watched a few of his videos, really great! Thank you for sharing and sending my best to you as well! We will get through this! 🙏🏽✨
our story is very similar. I was diagnosed this month after years of struggling. Thanks for sharing your story!
Love your video first time seeing you .... I've had ms since I was 23 my mom got diagnosed when I was 14 and both my older sisters have ms .... your not alone ... it's so hard and your not lazy or bad cuz others have it worse...... you matter your struggles matter and are real ... never give up
Thank you for the encouragement! You matter as well! I’m so sorry to hear about you and your family members also going through it, but it sounds like you have a support system of people you can walk through this with!
It's great to hear your story, even if it has lots of challenges in there ... hang in there!
Thank you so much! You as well, it is a journey!
I just found your channel, April. Thank you for your honesty. I can relate to what you’re feeling, I was diagnosed with MS in 2020.
I’d love to be part of an MS support community on You Tube.
sending you lots of healing light
Thank you for telling your story
❤️
May God heal you completely if it be his will! You will most definitely be in my prayers.
Thank you so much! 🤍🙏🏽
Thank you very much, I will make my video soon
Thanks for this :)
Thanks for watching! I’m glad it could help. 😊
Thank you for sharing. God Bless You 🙏🏽
Thank you so much! God bless you too 🙏🏽
I understand your story, I know ms is a terrible disease,I will be praying for you🙏🙏
Could you please post an update of how you are doing and what is your treatment? Thank you!! ❤
I sure will! I have been trying to figure out what kind of MS related videos to incorporate in my channel since my main content is a lot different. I would love to do an update video. Thank you for the suggestion/request! 😊
Stem cell therapy might be your go to. Consider it.
Thank you for sharing 🤗 l’m a fellow 27yo black girl patient, from France who would love other videos on the subject 😊. If I may, are you on a particular diet ? On top of the meds I mean.
Also, treatment, exercise (notably cardio), good diet (Mediterranean or MIND diet, a variant), intermittent fasting, meditation/stress relief techniques and good sleep is what I’ve read can help (to help prevent relapses, or improve remyelination). Maybe they’ll find a cure some day, so much progress has been done. Have a great day on your side of the globe ! Je t’envoie plein de bonnes ondes 😊
Thank you for watching! I am grateful you could resonate with this video. I am actually on the Wahl’s Protocol Diet in conjunction with my treatment and supplements recommended by my doctor. I would encourage you to research for yourself before jumping into any specific diet but I feel it is great so far!
Also, are there any specific videos relating to MS you would love to see?
Thank you for your answer, for how long have you been on the wahls protocol ? Is it hard ?
I would be interested in content about what you do to manage it
I’ve only been on the diet for about 2+ months now. It can be challenging, as are most things that require discipline and consistency, but it is manageable for sure. I will be sure to film some videos on how I am managing MS. Thank you for the request!
@@aprilgene Thank you
Hi April- I am wishing you much strength & peace as you/we navigate this beast!
I was diagnosed 1-1/2 years ago in Kisempta. So far so good. Medicine helps your future self:) check out Dr Arron Boster & Dr Brandon Beaber! Great neuro’s
I love this smoothie: cut up parsley & grapes & a fresh lemon & mix- so good!
Love from Colo
Take good care of yourself ( not easy w/ a little one)
*MR OBALAR* ON RUclips CURED ME TOTALLY ❤😍❤
crazy..I've experienced all of these but my MRI came up normal couple years ago. I started having numbness recently and my doctor wants another MRI to specifically look for MS. Praying for answers!
I pray that you get the answers you need to navigate through this comfortably and that God gives you strength and peace to make the best decisions for you!