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I have had MS for about 23 years. I have been on 3 DMT and all three of those drugs I've had bad severe bad reactions. I have been off of medications for the last 4 years. Been feeling wonderful. I eat well and exercise 5 days a week and do strength training 3 days a week. Went to my neurologist for a check-up who decided to give me an MRI. It was a new lesion found and he wants me to start a new drug. I dont want to but I'm feeling pressure to do so. I walk well and stay very active. But we do have choices and should be respected about our decision. I just turned 60

Thanks for the tips❤

Thank you!! So informative and real!!! This helped me make my decision with meds! ❤😊

Saw a video where when you took the New Year's dose in 2023 you brought up more of what you ate. Was listening to hear if anything didn't mix well with those times.

Thank you for this video and such good references in your videos. 🎉🌻🩷

Thank you! Like to hear about what you ate. 🍽️ Hopefully what you remember having eaten since this video can be mentioned also if you ever get time. Thanks for "Information about protein on something is protecting gut." 🩷

Thank you. You are clear on every thing. I can relate with you.

ThankYou for posting I'm on day 7 of year 2 and fatigue, left leg pain and sneezing 😂😢❤

This is the most relevant video I have seen covering the psychological part of this disorder. Thank you ❤

The world needs more people like BE. She has wonderful beliefs and standards that she clearly lives by ... I am working on balance exercises, which will help me to get seated on the Alinker. I can hardly wait to get mine. I have MS.

Thanks very much this video.

Thank you for sharing your experience with Mavenclad.

I was on modafinil for a couple years before i began to question if it was actually making me more anxious. Ive always wondered if i had a touch adhd or of my inability to concentrate, prioritize, focus, finish tasks, etc was from my MS. About a month ago my nurse practitioner put me on vyvanse and i stopped the modafinil. Wow... It had been a life changer! For once i am not anxious, i can get things done (though i have a lonnng way to go with cleaning and decluttering my house) and theres the nice benefit of losing weight, which also makes me feel physically better! I also was used to taking naps during the day but i am glad that i can power through and not have to nap. Im just praying that this continues to work well for me. Thanks for this video and for sharing your experiences. 😊

This happens to a lot of people. Not just those with MS. Stress, heavy liftng, cold water immersion, and strong coughing are just some of the causes. Michael Mosely has had one after cold water swimming. It can reoccur. I have had 2 in 2 years. It can take a month to recover but no long term issues apart from no memory during the time the TGA lasted.

Sounds similar to my niece's epileptic panic attacks

I had my first baby at 39 yrs of age.

Nine years diagnosed and taking injections; 12 years since my left arm went entirely numb, but not yet diagnosed. Sadly, I've had vertigo since February 2013 and have had it ever since. Ive had chronic fatigue since getting over mono in 1994, but I don't know if that is connected to MS, but definitely annoying! I don't know what I'd do if I had to deal with foot drop or dragging a leg, but at least I know about it from you & others with MS, should it occur. Hoping Mavenclad continues to keep things calm for you. Blessings to you!

Hi there! I've watched all your videos and can't remember if I commented or not, but I really want to go on Mavenclad, although Rebif has kept me "stable" for 8+ years. Keep fighting!

I'll pray for you! You seem so sweet

You answered my question 😂 im going to try the water method

Mavenclad was ur 1st medicine or U hand any before ?

I am just about to start my second year of Mavenclad. Feeling a bit nervous. I too had a few very overwhelming episodes of vertigo with hospital visits and drips. I couldn't walk up even 6 stairs without being exhausted. Its taken a long long time to get a diagnosis. I felt very frustrated all those years, not understanding what was happening to me. Love your videos, revisit them a lot and appreciate them so much. You are my go to when I feel a bit down. You have lifted my spirits a lot with your valuable information and help. Thankyou so much.

Very informative video. I was on Tecfidera between 2021 - 2022 and I developed a new lesion and I switched to Mavenclad. The side effects were too hard to bare, and this year I started Ocrevus. So far I am doing better, and my fatigue can still be a burden but nowhere close to what I had to go through when I was on Mavenclad.

Thanks for sharing. I will be starting Mavenclad tomorrow. How long did it take for your immune system to climb back to normal and did you use supplements?

Get the highest efficacy medication you possibly can

i started vumerity a few weeks ago and stopped them iyou explained exactly how i felt i think i dont want meds they made me feel worse im glad i saw your vid thanks

Just got dx a few weeks ago. Thanks for the video

13 years 😊 Best wishes

22 years

Just subscribed. Diognosed few weeks ago, waiting to speak to ms nurse to discuss mavenclad. Thank you for telling us your experiences as it makes it a little less scary.

Hello...I was diagnosed with rrms 30 yrs ago...I am 70 yrs old!! Fatigue has always been a major part of my ms journey?..I tried Modafinil 2 yrs ago & take it every day. It has made a significant difference in my day. I did not have any side effects at all. The only problem is that the benefit wains over time & I needed increase dosage. Another helpful little tip are cbd gummies.....I understand some might not go for that but I am willing to do everything possible!

Thank you so much for the Video, today is my day one with mavenclad and your Video helps me with my fear of taking it❤

Great video. Currently, I have a problem: Because of the recent problems with MS, and issues with my balance, I no longer feel comfortable attempting to re-enter the workforce. Plus: I was diagnosed while unemployed, unable to find a regular job, and now this; slow, subtle disease progression, but with no therapy, and no money to pay for medication to treat this problem. Question: What can I do?

I view pain( pins and needles under my feet) as my best friend. I try to live my life still work an 8 hr job . I started using a cane which i hate( most times i am embarassed. Have had ms since in my 20s now i am in my 40s. I hear people say ms is an awful disease, my best friend who died of stomach cancer would tell me he wishes he had ms. To me i wish there were no illnesses.

Hello, tomorrow I start with the first cycle, I am very nervous but your comments are helping me. Thank you very much. Greetings from Argentina.

Congratulations on being able to stay stable. Attitude and lifestyle are even more important than medications. I am so glad that you are able to partner effectively with your doctors. Sharing your experience is invaluable to others making these types of decisions.

I feel like I'm losing it. I'm married and my husband is a wonderful person and caretaker. I have lost countless people. I haven't seen my Mother in five years. I am sorry for taking your time. I used to be so happy and fun.🐽🐽

I am so sorry for not having enough energy to type. I'm 67 and I'm going through so much pain. but I am being monitored and I take 3 pain pills per day! I'm suffering with MS and Depression

DITTO

Number 1 for me would be a partner always makes a big difference in getting around 🙏💜

You want to consider "smouldering" MS. There may be no new lesions or symptoms, but it is likely progressing anyway. Itll just be a shame to find yourself disabled years later with disability that may have been prevented with medication. There are over 20 disease modifying medications now, so its likely one will be useful without bad side effects.

Heat is the bane of my existence! I’m basically housebound bc of it, but I do have a UV proof umbrella to provide my own shade!! Really helps just to get to a door from the car and vice versa. I became cold intolerant a few years ago. It’s just painful-esp in winter. Even with the a/c on, I keep my blanky nearby year round! But also sleep with a fan 365/24/7!! Now if I could MAKE myself exercise. I have such good intentions but by the time I’m thru w other things, I’m too exhausted to do anything. Plus, it makes me HOT!!

Is it normal to show a lot of fatigue during treatment

Hello, my father is taking it now, but he appeared to be very tired. Is it normal?

Thank you for sharing your experience. I have been experiencing very similar symptoms, my left side of face, left hand and entire left leg are numb with pain. My doctor has sent me for MRI of brain and thoracic and lumbar spine.. but nothing found. I suppose that is a good thing, but it still leaves me with the numbness and pain. When I hear your story and some others I can 💯 percent relate, however no lesions on MRI must rule MS out.

I have had 3 episodes of this. Each episode lasted less than 24 hours. My neurologist confirms that this is part of my MS.

when the medicine is worse than the disease?? i find myself feeling skeptical about big pharma products, when they start giving the drugs away... perhaps i'm a little paranoid, but i will stick to my home grown, balanced-hybrid cannabis... safe and effective! greatest thing Trudeau government ever did for healthcare in Canada!!

What's about ALS patient?they use medicine or not??

Thanks for sharing. I’m talking with my doctor today about this treatment.

Not doing well. Its kicking my butt So New and frustrating. Walking is not good haven't walked without assistive devices. Hope ampura will work. Just started my 2nd bottle of ampura.