Its Been a Rough Few Months | Chronic Illness Vlog
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- Опубликовано: 4 окт 2024
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Twitter: / survivingasmom
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I'm a SAHM of 4 boys, living with a chronic illness. I also have a special needs child who suffers with ADHD, anxiety and High Functioning Autism.
My name is Meredith (aka Meri) and I'm a stay at home mom of 4 boys (including twins). I also suffer from an autoimmune disease called Sjogren's Syndrome, which makes each day a little more challenging.
Like most of you out there, I'm just a regular (crazy) chic trying to survive as a mom. I'm far from perfect, but I do my best to get through each day while keeping everyone alive. I also share what works for me for managing the day to day madness of being a family of 6.
Please feel free to leave me feedback. I love to hear from everyone!
Don't forget to follow me on Twitter @SurvivingasMom
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❤️ hugs ❤️
Always nice to see an update from you.
Your presence and your realness soothes me greatly when I’m suffering like now. I just binge watch your videos as I’m laying here and then I don’t feel so alone. You’re an Amazing woman and Mama! Wondering how house hunting is going and praying you are feeling well enough to get through all you need to do. Remember to rest often. (Of course you’ll remember you have no choice in the matter)
Hey meri I am 23 and live in Australia, I have an auto immune disease called ankylosing spondylitis, fibromyalgia and have autism, I find you to be one of the most honast, informative, caring humans on RUclips, I was starting to get worried that you haven't posted in a while, but I too have been house bound, since September, my brain function plummeted over these months.. so good to see you may be feeling even just that bit more like you !! Keep being you, because you bring comfort and happiness to your viewers ❤🌷 best of luck on this journey, you are not alone
I live alone and have everything that includes taking care of my home
I wish my family would understand. They quit inviting me to holidays, everything. I have a son, and he's now sick. He thinks he has cfs, but I think it's Sjogrens, so he can't help me. It's awful being alone and then having sister's that think
(I don't look sick)?
I've thought about giving up, but I'm still here
I think it’s incredibly brave to be so candid and vulnerable in sharing what you are going through. Wishing you all the best and continued success with your channel.
Hope you continue to improve.
I was just finally diagnosed with Sjogren's. No wonder why our symptoms always sound so similar, besides a few things. Hope you continue to feel better.
I’m glad you are feeling a little better. I kind of know what you are going thru, as since I had surgery 6 weeks ago, the only way I get out is for doctors appointments and food runs. Naps are getting to be more and more of my days. Feel better.
Why not take a vacation in Baltimore while you go to the doctor. The clinic at the sjogrens center is awesome. Its like a spa. And the whole staff is so nice. I hope all goes well
Hello Meredith - Good to hear and see you. You keep yourself busy, which is great. Keep doing you. Best regards. Jesus is Love
I am so glad you are feeling well. Wishing you best always and praying for full recovery. He can make miracles happen. I know we take the little things in life for granted. I am thankful to enjoy what we can. Take care.
You look amazing! Thank you for the video, for sharing. Hugs. You are not alone.
So glad to see a video from you... I hope you continue to improve.
So nice to see you. I hope things keep going in a positive direction. xxx
Meri, I have the same exact situation with my legs. I see a neuromuscular Dr hopefully soon but my neurologist says same thing, its Sjogren's. Glad you made an update 😊.. Enjoy the spring
Story of my life... I swear its the weather, going from hibernation to major inflamation but I can deal with the RA and nice weather, thx for the share
I can totally relate sadly.
I'm sure you have tried everything under the sun to help. Have you noticed if cutting out grains and sugar if it's helped you?
I have Sjogrens too. Cutting out grains and sugar helps with the joint pain but my eyes and skin still get dry and irritated.
Hope you have more better days than bad. Praying for you ✝ 💗
id rather be in your shoes than be alone with no family, at least you have people that love you, think about theres always someone that has it worse i live in hell. so be thankfull. believe me you dont wanna live my life.
So glad to see a video from you .
Hope your flare gets the flock outta here! I ve been in a flare too. Hoping to be better off by May as I have a Florida vacation reserved already and hoping coronavirus is not gonn be so bad when the weather warms up a bit.
Hoping the best for you . :)
Love the scarf. If my hair thins more I will definitely try out scarves.
The walking probs could be from peripheral neuropathy
Tell us what things worked for you. I function way better in summer. Gluten and sugar knock me out. My doggie died, which was awful.
Hope when you see this message you’re having a feeling good day! Since you mentioned your interest in Buddhism I thought I’d mention this book I found very helpful from another chronic disease sufferer. It’s called “How to be Sick” by Toni Bernhardt. I think you’ll really find it beneficial. Wish I had you when my boys were young, your videos are very helpful and beneficial. I was curious if you’re still following a gluten, dairy free lifestyle and if it’s helped you with your symptoms. Take good care 💖
We are very much in the same shape. Why are we feel ing so sick? What exactly causes the tiredness?
Any hairloss hair remedy ? I started losing my hair 4 years prior to official diagnosis. To this day i am still not sure it’s due Sjogren. On Plaquenil for 3 months. Still losing so much hair, willl have to cut it short. I am upset. This hair loss is relentless. I have done everything for 4 years, bloodwork, supplements… my vitamin b is a bit low but Not to a point that it would cause so much hair loss. Don’t know what to do, who to see. Rheumatologist says Sjogren doesn’t really cause hairloss. 😞
What is going on …..?
My Primary Sjogren's triggered last year. It has all been neurological. Most likely triggered from a viral infection.
I have been to Mayo Clinic and John's Hopkins after the Cleveland clinic treated me horrible!!
All they will tell you is that you need to be on IVIG, Plaquenil and an immune suppressant.
My Functional medicine Dr. Who is a board certified chiropractic neurologist is who I recommend in the meantime. Peter Kan. He will run a blood test called Neural Zoomer. It will look for antibodies.
There are limited options!! I completely understand what you are going through.
If this were my situation, I would never get another vaccine.
Don't go to Mayo. They are a bit strange. Johns Hopkins I hear is good. Many, many Rheumatology Departments are staffed by insincere, difficult Doctors. I eventually gave up on the huge University Hospital that I was going to. I then found a private practitioner, who started IVIG. I am now much better. At the University Hospital, I threatened to sue & they became much nicer.
You should share your P.O. Box if you have one! Your followers may want to send you surprises 😊
que vidio meldar
Please keep going. You scared me.
Did you ask your neuro about Myasthenia Gravis?
🙏🙏🥰💞💜🦋
Like I posted in your previous video, you need to try alternative treatments. Modern medicine failed us.