Haemochromatosis with Dr Humphrey Pullon

We are very pleased to bring you this week’s webinar: Haemochromatosis with Dr Humphrey Pullon.
Dr Pullon gives us a very thorough and clear outline of haemochromatosis with some very helpful practical advice. Dr Pullon is an experienced Haematologist with a special interest in haematological malignancies, including lymphoma and autologous bone marrow transplantation. He also has 10 years’ experience working on the ultra rare, life-threatening blood disease, Paroxysmal Nocturnal Haemoglobinuria (PNH).
As part of his Waikato DHB responsibilities, Dr Pullon has served the Waikato and Lakes populations via Waikato Hospital and the Rotorua Hospital Haematology Outreach Clinic since 1992. He has also been involved with community laboratory work in Hamilton since 1994.
The opinions expressed in the comments on this video are those of the individual typing them and not necessarily of Leukaemia & Blood Cancer New Zealand. Comments deemed offensive will be deleted.

[@virginiamoore4977]

lovely accent ... easy on the ears Dr Pullon

[@accountabilityisadmirable]

I have 2 copies of C282Y. 36F. Living in the northwest UK & life is a struggle living with GH, the constant fatigue is unbearable, seems there's not much research & doctors often Google my illness when I try to get help. I'm starting to loose faith in ever living a somewhat normal life. I get venesection & that's pretty much it. They've said there's no available medication I can have to help. The extreme tiredness is seriously affecting my mental health although I try so hard to be positive. Please help anything , any advice would be very appreciated. Thanku

[@lorenzotrevisan6592]

I have the same mutation as you, just got diagnosed today. Stay strong.....

[@peggysheerin-hamill4860]

what if your tibc is low, ferritin normal , and rbc low?

[@samnang7ross]

Hi I just found out I have heamochromasis 2 days ago on 25/06/2021 the result came back 1103ug/l what is your recommendation for me to do ?

[@robin-jewsbury]

You say 1 in 200 are carriers. No, its 1 in 200 are Homozygous C282Y. It's 1 in 12 who are carriers. See this table checkiron.com/ci/affect-us.png