MY MOMENT OF REALIZATION! 😱
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- Опубликовано: 27 ноя 2024
- Vlog 8.5.19 - Starting the vertex medication, I had a realization...
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Haha- this goes to show I was in happy shock at my appointment on Friday- I didn’t even remember what I had said 🤣
4 mins and you already have over 500 views wow....big hugs
Mary be careful with that ladybug thing. There is a beetle that burrows in the roof of your dogs mouth look it up
Mary, does that mean you cough less?
The Frey Life Thank you for putting a smile on my lips on a hard day 💕🙏
looking a lot more energetic Mary.. thank God
If nothing else......the medication is giving you ENERGY Mary!!!!! ❤️❤️❤️❤️
Julie Akkerman I noticed this too. 😊
Mary is so full of energy its nice to see
im wondering if its cos parts of the vlog are much faster than others???
Linda Marsh Bmx I was just thinking that.
It's so heartwarming to see how much hope is bubbling up in Mary. She seems more herself than she has in a year or two. Gah, my heart!
Mary looks so happy and actually has energy! I love seeing this
Call me crazy....but doesn't Mary seem a bit more "peppy" in this video? Perhaps it is just wishful thinking but even her breathing? Might ba a good day or maybe.....? 🤔😊🤩
Wow, off the chart energy Mary! Something's changing within perchance? Your mood is so 'up and at em'. Great, keep going. So much to look forward to.
I was told by my doctors that the first few days on the new medication are spent clearing your lungs of mucus, like a purge.
I think it's making Mary hyper and full of energy 😁 good to see that.
Okay dumb comment...lol. Your mom and your sister found your snuggie/flying squirrel outfit at a church sale. I am watching The Frey Life from the beginning, and when you got back from Scotland, staying with your mom with Peter still there, they gave you this hilarious looking (I am so freaking jealous, I seriously want one- have chronic illness myself) outfit. I literally watched this video yesterday. So yep, that is where they got it. Now you know...Thank you for your inspiring ongoing story and videos giving me a fun pastime to get through my own hard times!
Love how she is full of energy!!!!
My jaw dropped at the ring holder shot! I did not expect that at all. hahaha AHH
Another great way to butter corn on the cob is to put a pad of butter on a slice of bread (or a bun or biscuit if you are having those with dinner) and use the butter on the slice of bread to butter the corn cob!! You get perfectly buttered corn on the cob, buttered bread, and the best part is that it keeps your hands clean!!
Oh to have a dog as calm as Ollie boy! 😂❤️
So lovely to watch this years later when you have Elijah 💛 I've been here for so long watching us and seeing your entire journey with trikafta and years before it, now you can go upstairs almost running and no coughing or shortness of breath!! And with a baby!!!
Feeling sick with a cold and all I can think of is Mary and I feel yuck but you teach me to look for small things to be grateful for to help me through.I know your strength shows us all how good God is.
A slow transition down will be easier all around. Keep taking carfulls of randomness when you go down to visit and it won't feel like starting house from scratch 💕
Once my baby is born in November I start this medication! Super nervous and excited to see what it does, I have the 3rd rarest genotype for cf, I’m the youngest out of 12 with the same genes and have always been told because of that I could never use this medicine but we’ll see!
Esmeralda Setzer were you able to qualify for the frug? Are you breastfeeding and does that effect using it?
Prawns have a different anatomy than shrimp. They are much larger than shrimp but virtually taste the same. I’m so excited for you Mary I can’t stand it. Praying for complete success with the new medication. 😊💗🙏
Mia thank you for your continued prayers!
What a wonderful dinner. Shrimp on the bbq is something us Aussies have on the bar b during our summertime. Your dinner reminded us of our very warm Queensland summers.
Oh how i miss grapefruit....but loving my kidney transplant!😃
You can't have grapefruit after a kidney transplant?! I haven't heard that before
Don't know if it's the excitement of what the med can do causing the excitement, or the med itself (Albuterol and Prednisone do it for me), but it's so great to see Mary so happy and excited. 🙂 Praying it's the med you've been waiting for to help. ❤️
From my lips to Gods ears... let this medicine continue to work and a miracle in the making!! God bless you two!! sending hugs and healing prayers! 🙏🏼💙💐
I groomed dogs for over 22 years, standard poodles were a big job! I did fluffed out hand scissored all over. I like it when you feel good enough to cook with Peter!
I see higher energy and sweet smiles!!! And so funny...! Praying it is working!!! LOVE your birds and seeing Ollie shaved.. sweet pup
Sooo good to see Mary in a crazy mood The pill is working.
Love you guys
Brenda Fredrick
Hanford Ca
"By small and simple things are great things come to pass"- Alma 37
Keep pressing forward! 💕
Mary, I'm so Happy for you that you are able to try this new med. I pray heaps of Great results on it sweets!! Blessings Peter and Mary💜
I’m so excited for you both-a new house and vertex drugs-one or the other,-or both seems to be giving you more energy Mary!!! I’m continuing to pray for no/minimal side effects!!
Corn grilled with the husk on is perfect! My late husband's "secret method:?" lol Hand buttering is great too because you get a little salt...
MICHELLE ROSS my grandmother used to put a pad of butter on a piece of bread and then use that to spread the butter on the corn. You not only get perfectly butters corn but also a buttered piece of bread!!! If we had rolls or biscuits with dinner she would use them instead of the bread!!
Squirrel🐿 & 🐦 birdies🐤 & Ollie🐆 Oh My🤷♀️
I’m so glad to see you so full of energy Hopefully the darker mucus is just a purging phase during this time. I hope your body adjust and that this medicine works for you and sending well wishes your way!
Mary and Peter thank-you for sharing your lives with all of us!!! I enjoy your videos and I learn alot!! You both are awesome!!! Hugs!
Amanda thanks for joining us! :)
@@thefreylife you are welcome. I have a disorder that is very rare where i am one in a million now, it's not chemical disorder but it does cause other things like chronic pain, insomnia, and so on so I appreciate when others share!
I hope to meet you guys one day and it may be weird to hug a stranger, but I will give you both the biggest hug. Your such an inspiration!!
Good idea to journal symptoms so you will know for sure.....trying to be patient waiting for my docs to call that they have it in clinic.....God thinks
I still need work on that virtue LOL 😎
Lol i hear ya! 😁
Prayers for ur dr to have it n for it to help a ton!! 💜🌻
I was SO HOPEFUL & OPTIMISTIC that the title meant you were experiencing some noticeable/measurable improvement from the vertex. I hope there are several other who not have heard of the medication will talk to their team because of you. You ALSO are advancing the treatment of CF by sharing all o the info you get to everyone,
Well Miss Mary/or I should say Mrs. You’ve definitely been given a bout of energy this day. This is phase (1). Phase (2) will be ....waking up one morning soon, feeling great, and you begin to feel better and better each and every day...Love it! Go get-em girl!!
I agree with the other folks; you do seem to have a higher energy level - keep up the good work new medication !!!
I dehusk the corn and then slather it in seasoned butter and wrap each cob in tin foil, shiny side out. Then I cook them on the barbecue or even in the oven during the winter. So tasty!
I was really confused when Peter said that Mary was going to shave their sheep, I was like "why didn't they let us know that they got a sheep"😂😂😂 anyways Ollie looks like a whole new dog😍😍😍
😂😂😂
Love your channel! I giggled when Mary was making sounds of the squirrel eating 😂... Praying for you friend!
You two do eat well, you seem to focus both on attractive, and varied foods. I love that you cook and clean together.
Mary,
You are acting more excited than I’ve ever seen you act. I’m hoping that’s a good sign.
You guys are so upbeat and funny today. I was beginning to think they gave Mary a funny pill. 😂😀👋
I so hope that you are feeling well on this new medicine...you seem energetic today !! Just hoping and praying for you both !
I can't wait to see if this medication helps you in any way. I'll be praying for you, Mary.
Peter, what kind of retreat or weekend thing is it that you have to write messages for? How many? I pray that the writing and speaking goes well for you.
Mary talking about food made me wish I had some shrimp and corn made up. I've never had homemade pickles, but they sound delicious.
Love you guys.
note to self dont eat a salad while watching mary show off her red "squirel" outfit I almost choke on my food laughing so hard. When you jumping up showing off the feet... DONT FORGET TO LAUGH EVERYDAY!!!'
I would love to have your energy that you had in this video, Mary. It's good to see :) I'm preparing both mentally and physically to my surgery at the end of August - the removal of bladder stones - so I'm horribly anxious, but at the same time I'm looking forward to it, because I'm starting to have some pain, so it's the right time to get rid of those little buggers! ;)
regardless of the new med I'm glad she was feeling so energetic that day, hope things get even better. ❤
Mary and the Squirrl eating noise. Made me laugh and her snuggle. 😂 love watching you all when I need emcouragment.💜
Mary...love seeing you with all the energy you have and just so peppy! I hope this medication is helping and continues to be such a positive thing in your life. Love you all and enjoy your videos so much!
I love seeing Mary so silly and excited. You both look like a lot of stress has been ‘lightened ‘...and Mary, your laugh is contagious! 🙏💟🥳🥳
Wow, Mary! That shirt makes your eyes look so blue! Also - I learned from the tv show The Kitchen, that you should put your shrimp on 2 parallel skewers so they don't twist when you turn them.
Mary that red get up took me over the edge in laughter. I WILL be showing that clip to my husband tonight!
mary it will be nice to see you get new lungs. you are young and beautiful and deserve to live a good long life!
Sometimes it’s so nice when you don’t talk medical so much in your vid and we get to just see you as the fun funny loving caring awesome Gal that you are! 🥰 love all three of ya!
I love grapefruit! I used to be on a med that I have to very seriously avoid it. It was sad but it’s not too hard especially if the med is helping.
So far so good, Mary! I’m hoping and praying that the Vertex is working for you! xxxxxxxxxxxx
Hi Mary, You should put Oliver’s fur clippings outside for the birds. They can use for their nests (probably too late for this year) but also good for colder weather.
@Dominique Bastien she does. Probably why she trimmed him outside. Besides the weather is nice.
Mary, you are radiating joy in this vlog. It listed my spirit on a hard day. 💜
Keeping my fingers crossed 🤞 for you Mary that the new medicine starts to work and you get to move into your new beautiful home soon ❤️
In the months leading up to my transplant, I ate so much grapefruit that I even had a special spoon! With prograf pomegranate is also a no go. Totally worth it.
So happy to see Mary with some energy today! Hope this medication really does help you!
Good night beautiful couple you both have such a beautiful heart how you share your life events your food looks so delicious my mouth waters I feel like your my family from a distance I love how you groom Ollie you seem like a pro Hi Peter and Ollie god bless always 🙏🙏🙏❤❤❤🌷🌷🌷
This video brought smiles to my face today that I sure needed. Having some emotionally hard days with my health. As always 🙏🏻 for you and Peter!!
Ollie you are such a good boy while getting groomed! Not at all like my beagle girl. 🤣
Surprise on the grapefruit water! Small price to pay if it does all you hope. 😉 You three always bring a smile to my day❣️😊 As always, love and hugs from Alabama❣️❣️❣️💕💕💕
You're very energetic! I love it! It's nice to see you bursting with energy!
I love your choice of music that you include in your videos. You always choose such fun and positive music for all aspects of your videos. Plus I love that you seem to be doing okay so far on your triple combo drug so far
Ollie looks so handsome with his new haircut!
You're going to have to adjust your definition of BBQ before you move to NC. That's shrimp on the grill!
Oh yes! And in NC, there are two or three types of barbecue, and they are practically rivals: east coast, central, and ... I'm not sure. Maybe just those two? The east coast NC BBQ is amazing. Most of a mustard base, but not overwwhhelmingly so. It's really very good.
Shrimp... mmm, sounds amazing.
😂😂😂
Lol “throw some shrimp on the barbie”, your Aussie accent is hilarious. Oh I’m Australian 🇦🇺.
Praying the med helps so much! 💜💜
Mary, I really do hope this medication helps you! I know there is no cure for CF. I have Lupus and there is no cure for it either but when a medication comes along that helps. It is a good 😊 thing!
@Nancie Blackburn I pray that as well. I have Lupus and diseases that have manifested from it. Prayers for you🙏
Darlene Haley my prayers go out to you! I wish for you pain free days and many spoons!
@@nancieblackburn3176 I've seen that word "spoons" online support groups what does it mean?
Darlene Haley it refers to the spoon theory. I don't know if I can explain it right but I will try. Life with disabilities is very taxing. Pretend your life depends on how many spoons you have. For everything you do you give up a spoon. When you run out of spoons, you won't/can't do anything more. I apologize for the lousy explanation (I am just not very good at explaining). If you get a chance google Spoon Theory!!! I wish for you many spoons'
Darlene Haley Newoutlooklife has a very good video on RUclips that explains The Spoon Theory! Check it out!
Fingers & toes crossed for new medication success! ❤️❤️❤️❤️❤️❤️
Mary, you look amazing today!😊
Mary is slightly unusually happy, LOL, nice to see.
I don't know if it's the way you recorded but I notice less intense coughing and you sound so good plus the energy so happy for u already
Mary, you seem like you feel better. Hope the vertex works
The grapefruit interaction only applies to grapefruit juice. The flavor compounds used in no-calorie seltzer drinks are derived from grapefruit oil and there are no known interactions between the derivative and any drug. Also, many "natural grapefruit flavors" are actually derived from oranges and have no grapefruit origin whatsoever.
I'm so excited you are on the new medication :)
My husband doesn't like grapefruit but was disappointed to find he couldn't have Sunny Delight anymore. Yep it has grapefruit juice in it. He can't have it because of heart medication. Something to do with affecting the kidneys.
We're just waiting and hoping our girls can get the new med soon..
I have a blue one I call my "peguino suit" because I kind of feel like I waddle like a penguin in it!😜😋😂🤣
Mary, try the orange vanilla Polar Water. So good. And when you move, Publix sells a line of organic called Greenwise. They have an orange flavor sparkling water. I'm not a big orange fan but these two are really good.
I loved seeing you enjoying yourself and being so funny today Mary. Happy times ahead xxx
love this....take it one week at a time! Also my big hope, is that this will really help you to be stronger..Fall is lovely in New England if you are still here. If not North Carolina also has "seasons", my friends that live there love living there!
I wonder if that dark mucus might increase cause it is working.
Kayla Barnes that’s what I was wondering. almost like when you have a herxheimer reaction,
it would make sense if it is cuz of the medication working cuz its clearing it all out
You made me sing along Topens a bag then you made me laugh out loud with that red onesie. LOLOLOL
Omg Mary you look so alive 🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻....we’ll keep 🙏🏻 for u!!!! 😘
maybe it's one of those meds where things have to get worse before they get better!! You seem like you have so much more energy, and I really hope that this med works for you!!!! ps Ollie looks great with the new hair cut!!
I have 2 of those ‘flying squirrel snuggie’! My dad got them for me 2 years in a row for Christmas. I think he forgot he had already bought me one the year before. We call it my Mary Poppins Penguin Snuggie. Hehe! My husband things it is the funniest thing when I walk up & downstairs while wearing the Snuggie. Hahaha!!
Wow Mary either you have had a lot of caffeine or you are having an energy side effect. Praying hard for it to be working x
You have the most beautiful birds at your feeders 🥰
Your energy seems to be up! Praying for you in Idaho!
Anyone else look away and miss the shot of Ollie at the end and rewind because I HAVE to see his cute face? 😂
I’ve been watching your Scotland vlogs. Loving “kinder time” but missing Ollie.
I believe it’s helping 💜
I too cannot have Grapefruit. I grew up loving it, and over the years I've been placed on certain medications for my Heart that forbid consumption of Grapefruit (Fruit/Juice/Flavoring). It's definitely hard, because I absolutely love Grapefruit, and it's juice. It's a small price to pay for health though. My favorite are the Red Grapefruits, sweeter and the deep red/Ruby Red is beautiful.
I still love my Tangerines/Oranges/Nectarines/Peaches!!!
Try putting Ollie’s fur in a mesh bag to see if the birds use it to build their nests🕊🦜
That is a wonderful idea!! 🕊🕊🕊
Mona Morgan the birds used to go mad for my late golden retrievers fur when I brushed her! So sweet to see, they just gathered it from the ground.
She looks and seems like shes feeling better already! They said 72 hours and it's been that long. Maybe shes going to have a success story! She seems like shes spunkier and more upbeat than normal!