Caring for a wife with dementia who keeps wandering away: Ross' story

Поделиться
HTML-код
  • Опубликовано: 15 ноя 2024

Комментарии • 72

  • @DementiaCareblazers
    @DementiaCareblazers  3 года назад +6

    What words of support and encouragement can you offer to Ross?

    • @jeanettetoelken4690
      @jeanettetoelken4690 3 года назад +3

      I'll be praying 🙏for you and your wife I am new to this my husband of 40 years has just been with alztimers I am all alone and very scared of our future

    • @donnavillareal4627
      @donnavillareal4627 3 года назад +3

      Thank you for being so open and honest sharing your story here. You are amazing and have opened my eyes and heart.

    • @hsnioshu9652
      @hsnioshu9652 3 года назад +3

      I'm taking Ross's advice to educate myself to prepare for my spouse's situation. Thank you, Ross. I know how hard it was even before your wife needs 24/7 assistance.

    • @mariahaggman7027
      @mariahaggman7027 3 года назад +3

      Thank you Ross!
      Your history touched my heart and I remembered so many times when my own brain spinned out of control. You have done so much for your wife, let yourself be proud of what you are doing and come to rest with the fact that you are truly a good husband and a careblazer.

    • @papabear2515
      @papabear2515 3 года назад +2

      What a loving, kind, brave man.

  • @carolbiggs2564
    @carolbiggs2564 3 года назад +8

    My heart is breaking for this very kind gentleman.

  • @EmbracingElevation
    @EmbracingElevation 3 года назад +21

    Wow! I knew I was going to cry, 😢 but man oh man. We are in this together! I care for my mom between two homes and just when I think I have it all figured out 💥. I'm prayful for all of Care Blazers! I thank God for those "better day" and Dr. Care Blazers herself 🙏🏾 you are a blessing to us.

  • @KamrinTheKapricornASMR
    @KamrinTheKapricornASMR 3 года назад +18

    This disease is heartbreaking and this love story is a testament to all the heartbreaking stories there are, were, and will be. My heart goes out to everyone who has a loved one with this disease. I just went through it with my dear mother in law, a few years ago. Absolutely devastating to all of us . My great grandmother had it and my only living grandparent is still living with it in a memory care facility. It truly is a cruel cruel disease and I wish I could hug every single person dealing with a loved one who is affected by it. Big hug to you Ross you are a wonderful husband and father. Love and hugs 💜💜💜

  • @jeanettetoelken4690
    @jeanettetoelken4690 3 года назад +12

    Ross my husband was diagnosed with alztimers six months ago I take care of him at home we have no family here and I had to go see my primary care doctor and get on some medication to cope I've been told by several people I need to reach out to someone but I am a very private person and don't know what to do but my faith in almighty God helps me threw each day I will be praying for all of us that are in these situations ❤

  • @carolbiggs2564
    @carolbiggs2564 3 года назад +11

    such an incredible succinct description of his and his beloved's experience. I hope he knows how good it is for us out here in careblazer land to hear his story!

  • @faithf5846
    @faithf5846 Год назад +3

    I’m holding you & your family up in prayer, for strength,direction,for God to surround your wife with his angels. I’m so sorry for you painful struggles with your beautiful wife, someday this temporary life will be finished on earth. It’s so hard when our loved ones become psychotic, or mentally ill, & we can’t reach them. 🙏. Thank God she has you in her corner you are very kind and loving

  • @jeanettetoelken4690
    @jeanettetoelken4690 3 года назад +9

    Ross I'm so sorry to hear your story I'll be praying 🙏for you and your wife you are a wonderful husband and you did everything you could please don't lose hope !

  • @tickytootoo453
    @tickytootoo453 3 года назад +4

    You are there with your wife! To be an advocate for her! You are a blessing to your wife and children! But dont forget to take care of yourself, you are needed. 💓🙏💓

    • @tracysmith245
      @tracysmith245 Год назад

      so true i have been doing everything going to work in a care home for dementia ended up with lupus now it is my turn to be a career by the looks of things do not forget about your own health i will never forget the last three years at work i was terrified of getting covid

  • @katherinekelly5380
    @katherinekelly5380 Год назад +3

    I real feel for this gentleman and his wife. Not getting help when you need it is much, much worse than admitting you are human and seeking out assistance.

  • @kathym6603
    @kathym6603 3 года назад +10

    Never think in terms of failure. The odds were greater than you thought. Your courage and good nature are exemplary. Some of the things working against you were modern diet, modern dental work, modern medical practice, lack of modern concern over chemicals and electromagnetic fields, modern failing food supply and availability of "real food" and an unawareness of how hard we have to fight for our future. My heart is struck by your story and I hope you come back again.

  • @noramonette1903
    @noramonette1903 3 года назад +6

    Thank you Ross for sharing! We are about to apply to a Memory Unit for my husband and your story has brought up some situations that I want to ask the administrator about. It was so courageous for you to share your story and so helpful to others. I hope you, your wife and family can find some peace and simple pleasures in the days and weeks to come.

  • @kristis4147
    @kristis4147 3 года назад +8

    These videos are amazing. I find something useful in every video to help with our caregiving issues , concerns, and struggles. Thank you for bringing a group of struggling people together and offering help and support. Praying for this man and his family.

  • @dulceferguson8207
    @dulceferguson8207 3 года назад +2

    Thank you for sharing your story, Ross. You are brave man with a tender heart for your wife of 52 years. Your tears are tears of compassion and love. I walk a similar journey and it is so very, very hard. It's helpful to know we are not alone and journey together. My husband is in a care home and I have not held his hand for 10 weeks as Covid complicates our lives. May God bless you for being so honest.

  • @debrasumner5186
    @debrasumner5186 Год назад +1

    Your story is heartbreaking and your strength is incredible. Thank you for sharing. I am just starting down this long unpredictable journey with my husband and pray that ai have your compassion and strength.

  • @lynn8524
    @lynn8524 Год назад +1

    Such a good interview. I appreciate his honesty and putting his story out here for so many of us who are caregivers for our loved ones.

  • @deborahsmithsimmons4839
    @deborahsmithsimmons4839 3 года назад +4

    Thanks so much for your sharing.... More than you can know.
    I feel that you're a very courageous and wonderful person for sharing some of the story of what you have come through and what you are still going through.
    I also think that you've done a great job with your wife and can truly sympathize and recognize this because my husband and I are going through the same thing and your words have offered much hope, insight and encouragement more then u know.
    Not only have you inspired me to hang in there, it makes me very happy that you are such a great person to stick with your loved one like you have and still are doing! Just keep hanging in there and God will see you through!
    Things like your testimony... and just listening to the tips from the Careblazers has been a lifesaver for me and my husband!
    Thanks again so much!
    My prayers go with you and may God continue to strengthen you and keep you, your wife and your family!

  • @kimberlymiller655
    @kimberlymiller655 Год назад +1

    You are a strong and incredible husband doing the best you can. Best wishes to you and your family and children.

  • @deborahsnyder3289
    @deborahsnyder3289 3 года назад +1

    Appreciate the honest heart of vulnerablility, Ross. Bless you!!!

  • @barbaracarr17
    @barbaracarr17 3 года назад +1

    Your anguish brings me to tears. Thank you for sharing your story about your wife's care. So sorry for the pain you and your family have experienced

  • @jimmiecox2496
    @jimmiecox2496 3 года назад +4

    Thank you Ross. You enlightened me to many things I hadn't thought of.

  • @rondaleistiko1227
    @rondaleistiko1227 Год назад +1

    I'm not weak I'm stronger than I ever thought possible. Because I have no choice but to do everything I can for my mom.

  • @sharonpinkerton8297
    @sharonpinkerton8297 Год назад +1

    SO much to deal with
    You certainly did not fail❤

  • @KiKiQuiQuiKiKi
    @KiKiQuiQuiKiKi Год назад

    I know this was incredibly painful for Ross-so much love for his wonderful wife and children. I hope he realized, in telling of his experience aloud, that he is doing everything “right.” Dementia doesn’t have an instruction manual/guide-it’s individual and can change from day to day, hour to hour, minute to minute.
    Thank you, Ross, and thank you, Dr Natali. ❤

  • @Heavyisthecrown
    @Heavyisthecrown 11 месяцев назад

    Wow what a family. Just the amount of love he has for her. And her children have for her. He is amazing. If only all of us had this much love. Clearly she is an amazing woman. I was sobbing listening to him say he was looking for her underwater 😢 omg. I can’t imagine his terror 😢 hope this family is okay ❤

  • @C1975-t7p
    @C1975-t7p 3 года назад +5

    I’m so sorry this is so difficult for you.
    I am both relieved (that we are not alone) and disturbed that it sounds like you have had the same type of communication failures and misunderstandings with both the hospital and care facility that we have had with my mom.
    It’s definitely easier said then done but try to be kind to yourself-knowing that you ARE doing everything you’re able to help both your wife and yourself manage through this.
    I appreciate your honesty, insight and willingness to share with us. I think the idea of doing a personal history for your family is really great and I am sure must be appreciated by your kids now and in the future.
    I hope you and your wife are able to find some peace.

  • @gabrielaongay1273
    @gabrielaongay1273 3 года назад +2

    Ross we do what we can with what we have at a time. Your story is so insipiring in so many ways, even if you think you don't have the patience, you do, keep visiting your wife, keep loving her. Even if she is living with this terrible disease, the human contact is important(I think). Dr. Natali, you always have the right words. Thank you Ross for sharing your journey.

  • @jjwolf1529
    @jjwolf1529 3 года назад +3

    Ross you are correct to suspect adverse side effects from all those meds. Hopefully you can reduce these significantly.

  • @lydiakinnaman3679
    @lydiakinnaman3679 Год назад +1

    Dr sir you are NOT ALONE. Many experience the same ... all fell guilt, depression all too familiar to many. Don't be hard on yourself. You and your kids stop blaming yourselves. This is what it is... only so much can be done even by the pros. God bless you and your family we are now at the point where should we put her somewhere.

  • @007nadineL
    @007nadineL Год назад +1

    Jfc am I ever glad we still have a lot of free medical care here in Canada
    THANK GAWD !!!

  • @katm5015
    @katm5015 3 года назад +1

    Thank you Dr. Natalie. Thank you so much Ross for sharing your story.

  • @tomlinn7227
    @tomlinn7227 3 года назад +3

    I understand his comment that he’s not managing. I too rarely feel as I have any control, that the world is controlling me. I spend most days trying to keep my many emotions in check. Anger, depression, loneliness, resentment, frustration. But I do say through it all, even in the middle of an emotional low, I am at peace. I didn’t cause this, I have tried so hard to have her go to the right doctors, no one has helped. I wish him well, I hope he has peace, he finds peace.

  • @Zenbee723
    @Zenbee723 3 года назад +7

    It’s a rough road, made easier when you’re prepared for the worst, and not in denial.

  • @hollywalling66
    @hollywalling66 3 года назад +3

    Thank you for sharing your journey and your very real struggles. I have a similar story with my mom in the impact of CoVid on the acceleration of her dementia. We are now struggling with her agitation and aggression in her MC facility…she’s in the behavioral health hospital now to get meds regulated. The weight of financial requirements that loom is heavy, as is the “threat” of whether or not she can stay at her MC Facility.
    I’m so sorry you are going through this.

    • @DementiaCareblazers
      @DementiaCareblazers  3 года назад

      I'm sorry to hear about your situation, Holly. Sending love to you and your mom.

  • @donnabonn1892
    @donnabonn1892 2 года назад +1

    Thanks for sharing your story.

  • @HDWorldclass
    @HDWorldclass Год назад +1

    I’m so sorry for you Ross

  • @blueminnie13
    @blueminnie13 3 года назад +1

    Thank you Ross!

  • @rondaleistiko1227
    @rondaleistiko1227 Год назад +1

    When Dad died Mom keeps looking for him in the middle of the night. I had to put her in a memory care center. She became abusive to me. She tells me he's in bed with her at night. She's visiting with all her family in her sleep and wakes up telling me how she went shopping with family that's been going for the last six months. She sleeps most of the time. But her dreams give her so much comfort. Out driving her own car and happy in her world of dreams.

  • @bobbob6591
    @bobbob6591 3 года назад +2

    I commiserate with Ross, so many things are so just what I am going through- the unpredictability and not knowing what to do

  • @maryannbarnett4588
    @maryannbarnett4588 3 года назад +1

    Totally got you. I couldn't do anything without my husband leaving.

  • @maryannhill8719
    @maryannhill8719 3 года назад +2

    Big hug

  • @EmbracingElevation
    @EmbracingElevation 3 года назад +2

    So many similarity among our loved ones that need care.

  • @cherylannhendron743
    @cherylannhendron743 2 года назад +2

    Wow... I told my kids to put me on an outgoing ice flow like the Inuit's do with their elderly. Just outrages cost.

  • @Jen195152
    @Jen195152 3 года назад +3

    These situations that this sweet man describes, is all too common!! The whole system of dementia care is broken! The U.S. better step it up, a wave of great proportions is coming!! If we don’t get it together, it will be catastrophic, financially to families, not to mention the mental toll it takes on loved ones!!

  • @bobbob6591
    @bobbob6591 3 года назад +2

    I would like to read his book

  • @kristis4147
    @kristis4147 3 года назад +2

    Serequil made me a zombie. Adamant is like Xanax. So both of those together would make me a noodle ( without AD). Toni Wombaker made RUclips videos of her mom with Alzheimer’s. They helped me more than any other videos, doctors, etc. ( beside Careblazers with Natalie) “ stages of Alzheimer’s, and alhemimers thru caregiving eyes” I think they are called. She did videos even at end of life.

  • @annehirsh
    @annehirsh 3 года назад +4

    Help? Who can even get help @that cost

  • @holdonC
    @holdonC Год назад

    He is of the generation my parents are from where therapy is taboo and not talked about.

  • @Bugsybear2
    @Bugsybear2 2 месяца назад

    I've cared for persons with dementia for years. Unfortunately, some persons become violent and almost impossible for staff to manage. No matter how much training is provided to staff. It's extremely expensive - especially when a person needs additional 1 on 1 assistance. I'm having difficulty believing that any facility would not have sat down with him and explained the disease process and the finances. Medicare does not pay for long-term custodial care so the financial responsibility is with the family or Medicaid. Every State has a Medicaid program and persons with dementia in a facility, whether it be a nursing facility or assisted living can usually be eligible for Medicaid. I find this man and his family quite a bit out of reality. It's sad for all in the family but persons need to be realistic. EVERY person should educate themselves on dementia because it will impact everyone in the long-term. It might be you next or a family member. People should discuss this topic and plan for the future.

  • @veganandlovingit
    @veganandlovingit 3 года назад +2

    Watch the movie 'I care a lot'. As a health care worker my guess is approx 80% of the professionals and support workers are sweet talking money grubber :( don't get me started on the pharmaceutical industry. Just legal drugs that feel good at first and then.... For the most part

    • @donnabonn1892
      @donnabonn1892 2 года назад

      Where can I see this movie?

    • @veganandlovingit
      @veganandlovingit 2 года назад

      @@donnabonn1892 it's still on amazon prime where I watched it

  • @Friskyhorton
    @Friskyhorton Месяц назад

    A properly run memory care, or dementia as we call it, should not need to transfer to the hospital. Its not being run correctly.

  • @Bugsybear2
    @Bugsybear2 2 месяца назад

    This guy needs a reality check and get a handle on his life. He is out of touch, a chronic complainer who doesn't want to take ownership of his life, and most facilities would gladly help him place her elsewhere or back home. A facility has to operate and his constantly complaining and whining has to make an enormous drain on the staff. It's obvious that the moderator is done with him. I can't listen to him any longer.

  • @lynn8524
    @lynn8524 Год назад +2

    Such a good interview. I appreciate his honesty and putting his story out here for so many of us who are caregivers for our loved ones.