Understanding HIV-Associated Neurocognitive Disorders (HAND)

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  • Опубликовано: 11 сен 2024

Комментарии • 11

  • @TravyJsSpace
    @TravyJsSpace 2 года назад +5

    It’s been 8 years since I was diagnosed, since then I have been on 3 different meds and each time being in them they made me feel out of sorts, disconnected mentally and emotionally and a lot of times even spiritually, I felt numb. I have gone without the meds 1 year at a time between medications and found that time I was myself, free, happy and lively, when the last set of meds weren’t working, I ultimately decided to stop taking meds altogether, I am noticing HAND taking its effects on me, but I’d much rather face this head-on and accept my fate then spend 60+ years taking meds that dilute my personality, block my full potential and make me feel as though I am robotic and not in tune with my soul. Sometimes you must take time to think about what matters more, quality or quantity? Sure my quality of life is certain to decline over time, but I’d rather leave this world as I know myself to be in my heart, rather than spend many long years under a suppression of sorts, being very spiritual and connected to my faith the decision comes easy, but everyone is different, some can make sacrifices that others can’t and vice-versa, it’s all about how you feel and understand it in correlation with your own experience living with this disease, but something that must be truly and thoroughly thought through, it’s been 8 years but I have made peace with my decision, I know what I feel is right and have no regrets or second thoughts about the entirety of this situation and ultimate decision. The doctors are caring and loving however biased in their approach, like I say, it is truly a deep consideration with one’s self and understanding which sacrifices you can/cannot make, quality over quantity, personal morals and ethics, your faith and spiritual beliefs… the list goes on, in the end you must do what’s right for you to continue living authentically, happily and abundantly - regardless of ensured health decline, this disease is just the same as Cancer, it is unforgiving, brutal and savage, until a cure becomes available I will live out my days appreciating and having deep gratitude for each and everyday that passes, cherished moments with the ones I love, performing the hobbies and leisurely activities I thoroughly enjoy while I can and quite simply making every moment memorable and beautiful.

    • @ruthokpara7857
      @ruthokpara7857 Год назад

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    • @shaunb2110
      @shaunb2110 Год назад +2

      My dad is currently suffering from HAND, he has had the virus since 1992 and has been very non compliant at times with his medicine. 14 years ago he ended up with double lung (PCP) pneumonia. He spent 3 weeks on a ventilator but fully recovered. He is struggling in his home right now, progressive neuropathy, slow shuffling walk, prone to falling. His memory is very sporadic and it's getting harder to manage him while working full-time and raising my own family. He seems like he's not aware of his current condition or is in denial. He also developed a crack cocaine issue 5-8 years ago. Which just made things worse until he literally couldn't pay his bills anymore and I became his payee. Our relationship has struggled because I haven't always been able to control my emotions because of his personality. Combine that with a lot of lies and broken promises over the years makes it tough. My wife and I are doing our best to help his along though. Sometimes I wonder if the virus has taken more of a toll on him or if the meds have. Whatever the answer is to that question doesn't really matter anymore. I don't recognize him as the Dad I knew growing up. I just know that I have to be there for him. So I commend you on that decision. You're very aware of how these things can play out and are taking control of your life and are at peace with that. My dad seems to have avoided any concern with what the disease/drugs can do. It seems that I'm more aware of these things then he is. He's always saying I don't understand why this is happening. I try to explain it to him as sincere/honest as I can with what I know. I think he just keeps thinking it's going to turn around for him. It's tough to watch. At any rate, I wish you the best in the future. Thank you for being open and honest about this.