Cheryl Hile: 53x marathon runner with multiple sclerosis

Topics mentioned in this episode:
A marathon runner told to start resting after an MS diagnosis.
‘I was afraid because I didn’t know what would happen to me so I just kept going’.
Symptoms vs. Marathon running.
Cheryls initial symptoms were painful and strong. She was told by her neurologist to wear an arm cuff to help with electric shock pain. Unsurprisingly it didn’t help.
I was given no information about MS at the time of diagnosis. I didn’t know anything about it. I didn’t know it was a central nervous system thing.
Despite the MRI showing multiple lesions in my brain but the doctor told her that he couldn’t diagnose her because there was a lack of clinical evidence.
Everything I read online was so negative. My husband would find me at 3am googling MS in tears.
When I started running again I started noticing problems with my foot. I realised it was a symptom called drop foot. Cheryl went to see her doctor and she told her to ‘lower her expectations’.
Cheryl shows us her Ankle-foot-orthotic (AFO) (take a look on youtube) which helps her run with drop foot.
Cheryl takes us through her best and worst marathons of all time.
Running with her husband by her side, he’s there to stop her drifting off and to open water bottles.
Cheryl Hile wants to encourage as many people with MS as possible to join her in her races to prove you can still do anything despite an MS diagnosis.
In the last race she did, she got
(contact details for Run A Myelin my shoes)
I fell in love with running because of Cheryl Hile.Cheryl showed me it was possible. It’s pretty much free, you get outdoors, it minimises anxiety and depression.
My family and friends couldn’t understand that because you can run one day, you can’t necessarily do anything else the next day.
How to deal with receiving hate messages.
Learning to run when you have the most energy during the day and prioritising your health. People don’t understand that chronic illness conditions fluctuate.
The worst thing someone can say to someone else with chronic fatigue… ‘I’m tired too.’
Having to leave the job you love because of the diagnosis and when other people are covering up your mistakes due to brain fog, it was time to leave.
How Cheryl Hile keeps going alongside marathon running.
Cheryl Hile shares her tips on how to get into running. Grab a calendar and start gamifying running.
I got started with running via the Couch to 5k app. I did it at lunchtime on weekdays so that there was nobody around.
Questions from our ENabled warriors facebook group.
The big question of the episode: How do you manage the potty stops during the marathon?!
Find out the weirdest thing Cheryl Hile has ever done… Warning, it’s pretty gross and involves snails.
Get in touch with Cheryl:
www.cherylhile.com
MS Connection blog mention: www.msconnecti...
Cheryl's blog:
www.cherylhile...
Facebook: / pink.orbea
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