When I lived in Arizona, my rheumatologist diagnosed me with serum negative RA and treated me with methotrexate (I also have Sjogrens syndrome). When I moved back to MN my rheumatologist told me he thought that diagnosis was wrong and stopped treating me for RA. Now my joints are back to swelling and being painful, especially my shoulders. It's a bummer it's more difficult to get an exact and clear diagnosis. 😢
Wow, I live in MN and was diagnosed with seronegative RA 40 years ago in Mpls. Now I live in a smaller town and the rheumatologist I saw about an hour from here, two years ago, said he doesn't believe in seronegative! I know that I have Sjogren's also and it's long been thought I have Lupus (with the distinct butterfly rash). I can't afford to get transportation (I'm in a motorized wheelchair) anywhere so I will remain untreated. I wish we could talk!
Thank you for explaining each autoimmune disease in a clear distinctive manner. I appreciate your videos so much! Do you have a video on punch biopsies for diagnosis?
Been RF negative for 2+ years, had a lot of joint pain, only given HRT, not helped at all. Am in UK. Not sure if they understand seronegative RA. Irony is I've looked after my husband 20 years, he has RA. He says to me 'that's the same as me' when I have pain in a certain area. Also have OA in my hands. My hands are more deformed than his, finally been referred to a Rheumatologist. Thanks for your informative videos.
Thank you so much for this video! My mom has had signs of RA for over 30 years but was only diagnosed earlier this year with RA since her bloodwork didn‘t show signs of rheumatoid factors. She only got diagnosed because the inflammation she had this spring was so blatantly obvious, the doctors couldn‘t ignore it anymore. But yet the doctor she was referred to afterwards for continued treatment (a seasoned doctor) went „No! This can‘t be RA because there is no rheumatoid factor!“. After that she went back to her GP for treatment rather than a specialist. 🙄 I too have signs of RA and Lupus without conclusive bloodwork. I do have elevated antiimmune antibodies, but they are nonspecific. Yet the clinical symptoms are quite obvious… have been for almost 10 years, but still almost every doctor went for the typical „Young people can‘t have that, so it is all a mental health issue“ route. Now I‘m not so young anymore (41) and have suffered for about 20 years in total… Maybe now that my mom has been diagnosed and responds well to treatment, I can finally get a diagnosis too. And if doctors still go the „It can‘t be because there‘s no rheumatoid factors“ route, I have professional and reliable sources that say otherwise. Again, thank you for the videos. For the information you provide for people like me. This ist so important!
Say, are you and your Mom living in Germany?......If yes, I am experiencing similar in this country. Doctors here have NO clue what they have to do when it comes to Rheumatology!!
@@sylviadeedot4465 Yes we are in Germany. And yes doctors here have absolutely NO clue about Rheumathology. Neurologists are also pretty abysmal in their respective „field of expertise“. Everything that is not a „textbook case“ is automatically „mental health issue“. It‘s a crying shame to have a health care system that is labeled one of the best in the world and highly trained doctors… but the really good ones leave the country to do good work elsewhere and the health care system is only a nice looking facade. Plus: Medical research and studies that show a lot of new findings (e.g. concerning autoimmune diseases like MS, Fibromyalgia, genetic defects like Ehlers-Danlos-Syndrome, or Autism) don‘t seem to find their way over here, or are quite delayed. That is, studies that have been conducted a decade or so ago are not recognized in Germany even when the new findings have been proven and integrated in diagnoses and treatments in the US for years for example. Man I could go on with this rant for days…
@@sylviadeedot4465i’m in the Netherlands.. same thing and the general practitioners don’t understand all these different range of symptoms (jumps from 1 thing to another) looks at me and tries to send me to a psychologist even when I was diagnosed with hashimotos + positive on smooth muscle antibodies + positive cryoglobuline + positive lip biopsy 😔 pain + infections are also a problem of mine. But they still can’t figure it out 😢 here with lower back pain writing this while barely able to turn my body because of this pain :(( I feel for you and hope you find a good doctor soon 🙏🏻 hope they can help you feel a bit better or manage it.. ❤️
Thank you for this ❤was just diagnosed with fibromyalgia and inflammatory arthritis, concerning seronegative rheumatoid arthritis. Had no clue what this meant. My dad has PMR, so this helps me know what could* be a possibility in years, and what to watch for now. As we figure this out in time. Appreciate you!!
@@rheumatologistoncall even though there ist no swelling of the joints? Pain and severe stiffness yes, low grade fevers, glands are terribly swollen etc...haveing this almost 2 years now.....receiving No Help...this ist truely disturbing... Thank you for your informative Channel!
Thank you very much Dr.Diana for this explanation.. Please can send to me some refrences in Psoriatic arthritis to complete my PhD research my regards and appreciation to you
I was negative for regulators factor but positive for anti-ccp autobodies. After a year if hydroxychlorequin use my antibodies went down to undetectable so I stopped the hydroxychlorequin. Now a year later I’m in severe pain so going bank in.
Is there a reason I wouldn’t be officially diagnosed with RA since I have had the anti-ccp antibodies show positive before? Or only if the R factor comes back positive also?
DMARD only atack inflammation, not the underlying disease virus. I hope leading doctors are working on developing arthritis drugs 🥺. and the question: can methotrexate cause inflammation of the feet? because my feet are burning. 🥺
And I don't know what else to take so that my feet don't burn. The doctor said to take B vitamins, but that doesn't help either, curcumin, omega 3, vitamin D, zinc, magnesium and potassium.. 🥺🥺🥺
When I lived in Arizona, my rheumatologist diagnosed me with serum negative RA and treated me with methotrexate (I also have Sjogrens syndrome). When I moved back to MN my rheumatologist told me he thought that diagnosis was wrong and stopped treating me for RA. Now my joints are back to swelling and being painful, especially my shoulders. It's a bummer it's more difficult to get an exact and clear diagnosis. 😢
Wow, I live in MN and was diagnosed with seronegative RA 40 years ago in Mpls. Now I live in a smaller town and the rheumatologist I saw about an hour from here, two years ago, said he doesn't believe in seronegative! I know that I have Sjogren's also and it's long been thought I have Lupus (with the distinct butterfly rash). I can't afford to get transportation (I'm in a motorized wheelchair) anywhere so I will remain untreated. I wish we could talk!
Thank you for watching my videos and supporting my education mission!
I'm relieved to hear this. I have struggled for years with pain. As I age, it's worse. I only hope I can get a better treatment.
Thank you for watching my videos and supporting my education mission!
Thank you for explaining each autoimmune disease in a clear distinctive manner. I appreciate your videos so much! Do you have a video on punch biopsies for diagnosis?
Been RF negative for 2+ years, had a lot of joint pain, only given HRT, not helped at all. Am in UK. Not sure if they understand seronegative RA. Irony is I've looked after my husband 20 years, he has RA. He says to me 'that's the same as me' when I have pain in a certain area. Also have OA in my hands. My hands are more deformed than his, finally been referred to a Rheumatologist. Thanks for your informative videos.
Thank you 🙏🏻
Thank you so much for this video!
My mom has had signs of RA for over 30 years but was only diagnosed earlier this year with RA since her bloodwork didn‘t show signs of rheumatoid factors. She only got diagnosed because the inflammation she had this spring was so blatantly obvious, the doctors couldn‘t ignore it anymore. But yet the doctor she was referred to afterwards for continued treatment (a seasoned doctor) went „No! This can‘t be RA because there is no rheumatoid factor!“.
After that she went back to her GP for treatment rather than a specialist. 🙄
I too have signs of RA and Lupus without conclusive bloodwork. I do have elevated antiimmune antibodies, but they are nonspecific. Yet the clinical symptoms are quite obvious… have been for almost 10 years, but still almost every doctor went for the typical „Young people can‘t have that, so it is all a mental health issue“ route.
Now I‘m not so young anymore (41) and have suffered for about 20 years in total…
Maybe now that my mom has been diagnosed and responds well to treatment, I can finally get a diagnosis too.
And if doctors still go the „It can‘t be because there‘s no rheumatoid factors“ route, I have professional and reliable sources that say otherwise.
Again, thank you for the videos. For the information you provide for people like me. This ist so important!
I can so relate to all you have written!
Say, are you and your Mom living in Germany?......If yes, I am experiencing similar in this country. Doctors here have NO clue what they have to do when it comes to Rheumatology!!
@@sylviadeedot4465 Yes we are in Germany. And yes doctors here have absolutely NO clue about Rheumathology. Neurologists are also pretty abysmal in their respective „field of expertise“. Everything that is not a „textbook case“ is automatically „mental health issue“. It‘s a crying shame to have a health care system that is labeled one of the best in the world and highly trained doctors… but the really good ones leave the country to do good work elsewhere and the health care system is only a nice looking facade. Plus: Medical research and studies that show a lot of new findings (e.g. concerning autoimmune diseases like MS, Fibromyalgia, genetic defects like Ehlers-Danlos-Syndrome, or Autism) don‘t seem to find their way over here, or are quite delayed. That is, studies that have been conducted a decade or so ago are not recognized in Germany even when the new findings have been proven and integrated in diagnoses and treatments in the US for years for example.
Man I could go on with this rant for days…
Thank you for watching my videos and supporting my education mission!
@@sylviadeedot4465i’m in the Netherlands.. same thing and the general practitioners don’t understand all these different range of symptoms (jumps from 1 thing to another) looks at me and tries to send me to a psychologist even when I was diagnosed with hashimotos + positive on smooth muscle antibodies + positive cryoglobuline + positive lip biopsy 😔 pain + infections are also a problem of mine. But they still can’t figure it out 😢 here with lower back pain writing this while barely able to turn my body because of this pain :((
I feel for you and hope you find a good doctor soon 🙏🏻 hope they can help you feel a bit better or manage it..
❤️
Thank you for this ❤was just diagnosed with fibromyalgia and inflammatory arthritis, concerning seronegative rheumatoid arthritis. Had no clue what this meant. My dad has PMR, so this helps me know what could* be a possibility in years, and what to watch for now. As we figure this out in time. Appreciate you!!
Thank you!
I need to make an appointment with you SOON... you seem to listen and very intellectual 👏 🎉
Thank you!
Thank you for watching my channel!
Again thank you for your videos Doc
Glad you like them!Thank you for watching my channel!
56k Subscriber.. soon 60k Subscriber... Thank for knowledge 🙏🙏🙏❤️❤️❤️
So nice of you! Thank you!
@@rheumatologistoncall If Possible make Food for Rheumatoid arthritis 🙏🙏🙏🙏 Give Suggestions
If Possible make Food for Rheumatoid arthritis 🙏🙏🙏🙏 Give Suggestions
Please tell us about having CCP ANTI BODIES POSITIVE and RHEUMATOID FACTOR NEGATIVE ! Thank you.
That is clearly Rheumatoid arthritis with seropositive markers!
@@rheumatologistoncall even though there ist no swelling of the joints? Pain and severe stiffness yes, low grade fevers, glands are terribly swollen etc...haveing this almost 2 years now.....receiving No Help...this ist truely disturbing... Thank you for your informative Channel!
Thank you very much Dr.Diana for this explanation..
Please can send to me some refrences in Psoriatic arthritis to complete my PhD research my regards and appreciation to you
I'm glad you found the explanation helpful! I can definitely provide you with some references on Psoriatic arthritis for your PhD research.
I was negative for regulators factor but positive for anti-ccp autobodies. After a year if hydroxychlorequin use my antibodies went down to undetectable so I stopped the hydroxychlorequin. Now a year later I’m in severe pain so going bank in.
It's important to stay in touch with your healthcare provider and monitor your condition closely. Wishing you a speedy recovery!
Is there a reason I wouldn’t be officially diagnosed with RA since I have had the anti-ccp antibodies show positive before? Or only if the R factor comes back positive also?
my RA is positive but i dont have any symptoms... what will be the reason? should i go for treatment?
Just follow your symptoms! Check my videos about different causes of high rheumatoid factor
Last week asked my cases please answer me Dr.
I am unable to answer via youtube. You need a rheumatology consultation!
Thank you for watching!
DMARD only atack inflammation, not the underlying disease virus. I hope leading doctors are working on developing arthritis drugs 🥺. and the question: can methotrexate cause inflammation of the feet? because my feet are burning. 🥺
And I don't know what else to take so that my feet don't burn. The doctor said to take B vitamins, but that doesn't help either, curcumin, omega 3, vitamin D, zinc, magnesium and potassium.. 🥺🥺🥺
I have burning feet also. I'm not on meds.
Thank you for watching my channel!
If Possible make Food for Rheumatoid arthritis 🙏🙏🙏🙏 Give Suggestions
I already have done a few videos about that
@@rheumatologistoncall please Share link or Keywords to Search 🙏🙏🙏
please Share link or Keywords to Search 🙏🙏🙏
Sorry. But special food for a certain decease is ignorant!!
please Share link or Keywords to Search 🙏🙏🙏RA Food
ruclips.net/video/yEX3ZlBNm0M/видео.html
@rheumatologistoncall ruclips.net/video/IiJVRphNHfQ/видео.html
ruclips.net/video/IiJVRphNHfQ/видео.html