My Diagnosis Story with Rheumatoid Arthritis

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  • Опубликовано: 1 сен 2021
  • Hi Everyone,
    Welcome to LifeWithRA+! Subscribe and follow me as I share my story and journey in my life with Rheumatoid Arthritis. Today I'll be talking about when I was diagnosed and what it was like for me when I found out. If you or someone you know has been diagnosed with Rheumatoid Arthritis please feel free to share with me what it was like for you when you found out. I'd love to hear your story so we can relate to one another as we are all fighting a similar battle. Stay tuned for my next video as we'll be talking about holistic health care.
    xoxo,
    Nicole
    DISCLAIMER
    I am not a Doctor or a Health Care Practitioner. This is my personal story and things I have done for myself and everybody is different when it comes to medications and remedies. If you have any questions in regards to your health please speak to and ask your Rheumatologist or Primary Doctor.
    #LifeWithRA #RheumatoidArthritis #ArthritisAwareness #RA #MedicalFreedom #MentalHealthAwareness #MomwithRA #Inflammation #LeakyGutSyndrome #NaturalHealth #HealthyLifestyle #ChronisIllness #AutoImmuneDisease #HipReplacement #Infertility #WomensHealth #InvisibleIllness #MS #Lupus #Psoriasis #Fatigue #Disability #Anxiety #Depression #Allergy #IBS #HolisticHealth #NaturalRemedies #Vegetarian #Vegan #Health

Комментарии • 175

  • @sharoncraver186
    @sharoncraver186 2 года назад +76

    My RA attacks my whole body! There have been times that I can’t walk, even brushing my teeth hurts my hands. Good luck on your journey.

    • @lifewithra
      @lifewithra  2 года назад +8

      Yea, those days are tough. Can’t make a fist or simply grasp on to anything. I hope you’re feeling better🤍

    • @kaylove8706
      @kaylove8706 11 месяцев назад +2

      Same 😢

    • @MJ-gj6mj
      @MJ-gj6mj 10 месяцев назад +6

      Hwo long did it take for you to get a diagnosis?? I am living in pain and stiffness and inflammation constantly being treated as individual things not a whole body approach.

    • @sharoncraver186
      @sharoncraver186 10 месяцев назад +5

      @@MJ-gj6mj it was a couple months. I was going to the doctor and they weren’t doing anything until finally they did bloodwork and saw I was ANA positive. Even then it took a while to get an appointment for a rheumatologist, my husband finally had to call an ambulance one day the pain was so bad and I couldn’t even get to the bathroom. The ER doctor sped up my rheumatologist appointment.

    • @sharoncraver186
      @sharoncraver186 10 месяцев назад +3

      Keep going to doctors until you get the help you need! Good luck ❤️

  • @lovelyroserulloda9187
    @lovelyroserulloda9187 3 месяца назад +4

    I teared up a bit when you got to the part of getting your RA diagnosis, then your phonecall with your mom right after. I recently got diagnosed with, not just one, but 2 auto-immune diseases, RA and lupus. I was also by myself when I got the diagnoses. TBH, I still can't wrap my head around these conditions, so I've been watching videos like this the past few days.
    Oh, and like you, I seem to experience pain on the right side of my body first, but then the left side follows a day or so after.
    Praying for the best for all of us!

  • @MJ-gj6mj
    @MJ-gj6mj 10 месяцев назад +7

    The fact that they gave the referral for a rheumatologist! That is truly the struggle. I am going through the same with my knee and it's not the first of joint pain at all. GP gave me Vitamin D supplements for my stiffness. That was after 3 visits with visible swelling, redness. I've seen orthopedic Drs. who don't seem to care unless surgery is needed. It's so hard and 6 weeks rest time repeatedly is very hard financially not being able to report to work and not declared any disability either. The extra therapies to help with pain are all costly. We have to do better for people who may have this painful disease. Years going byband nothing is geting done. 💔

  • @nancygee3137
    @nancygee3137 11 месяцев назад +15

    My RA is the reason I didn't have kids. I didn't do well with plaqunil so I ended up on methorexate. You are forbidden to have children on it. Now I am suicidal because I lost my job and didn't have kids. My life has no meaning, I am very lonely and I lost my job. I got depressed after I lost my job, now its been 22 years, I am 53 now on disability..It was suppose to be work comp so no one offered me another med. I gave up on kids. Now my dad is turning 87 and I will be homeless when he dies. There are other meds that allow you to get pregnant. Make sure you explore your options on having children before it's too late. For me not having children was a big deal. OH ok you have child already . Thats good.

    • @Michael-mh4vr
      @Michael-mh4vr 4 месяца назад +1

      I wish you great healing. Prayers have effect. Prayer for helpm you need medication. Very important. Pray to your ancestors if you can!

    • @maryd8813
      @maryd8813 2 месяца назад +5

      Jesus is all you need to get you through this life. Please believe and have faith in the One who can save you. This life on earth is so short, but heaven is for eternity. I'll pray for you. God bless. 🙏

  • @vanwyke1
    @vanwyke1 Год назад +11

    Impressive and accurate account of this insidious disease. Your prognosis is very good with your positive attitude, willingness to try other types of treatments, and the future prospect of newer medicines and treatment through science. I certainly wish you well as your journey improves. Take Care.

  • @DannyPacheco-to4fi
    @DannyPacheco-to4fi 5 месяцев назад +6

    39 years old and was just diagnosed. It impacts my entire body. Anyone else also of degeration of the spine /hypertrophy with no evidence of physical trauma? Whats crazy is ive alwys been healthy ..never even a broken bone..athletic...and then it just hit me.

    • @detrearicks5080
      @detrearicks5080 3 месяца назад +1

      I’m 40 and suspect that I will be getting a diagnosis soon. Both of my hands and wrist are killing me so bad right now. I literally have been in tears all day and I’m doing talk to text but I can’t type. Best wishes to you. I own a cleaning business and have had to step out of the field 😢

    • @teddyxruxpin
      @teddyxruxpin 3 месяца назад +1

      ​@@detrearicks5080it can be caused or triggered by a viral infection.
      A common cold can trigger your body to have this reaction.

  • @RoseBro87
    @RoseBro87 2 года назад +5

    Wow ….
    I didn’t know exactly what you had …
    Sorry cousin..
    I’m so happy you got the help you needed. Thank you for sharing your story you are strong love you..! You inspire me ❤️

  • @callmedelirium
    @callmedelirium 3 месяца назад +2

    I got my diagnosis just yesterday... It has been years of looking for medical care to deal with my pain without getting a diagnosis or getting to treat my pain... Thank you for your video, I'm trying to understand what it is really like and other people's experiences :)

  • @amyc.peters1064
    @amyc.peters1064 8 месяцев назад +5

    Shout out to your mom, and both of you, for being persistent with the drs visits to get the diagnosis

  • @tonygee5810
    @tonygee5810 Год назад +15

    Your experience at the rheumatologist was almost a carbon copy of mine. I am checking out these RUclips videos right now as I am currently suffering again. I am a few years ahead of you. Mine started about 6 years ago and it was all of my major joints. Horrible, totally debilitating. I had 3 steroid injections and then started on methotrexate. Went back to work. I was doing ok. Moved to Thailand. Continued with methotrexate
    In conjunction with the doctor, decided to try and wean off the drugs. (Tried previously and failed !) This time it worked and I had three years with no drugs or pain ! Then this January it came back and I am struggling to get it under control. This is where I am now. Been back on Methotrexate for two weeks now. Thing is, it's a bit different this time. I didn't have pain in my hands first time around. This time my hands are extremely painful.
    Good luck to everyone on here !

    • @cynthiaarrowsmith5709
      @cynthiaarrowsmith5709 7 месяцев назад +2

      RA doesn’t just go away. The meds are forever

    • @Poppin_Robin
      @Poppin_Robin 5 месяцев назад

      @tonygee5810 Your hand pain is coming from the folic acid.

    • @teddyxruxpin
      @teddyxruxpin 3 месяца назад

      ​@@Poppin_Robinlike mthfr gene?

    • @khinnanoo
      @khinnanoo 2 месяца назад +1

      I got diagnosed two weeks ago and my doctor told me I can not stop take methotrexate.. So am here dreading of relying on z drug for the rrstvof my life..I am 57 yr old

  • @AILEEN_MARTINEZ123
    @AILEEN_MARTINEZ123 Год назад +2

    Your video was very informative and I appreciate you sharing your RA experience. Thank you 😄

  • @KDFOXSCI
    @KDFOXSCI 2 месяца назад +1

    Thank you for sharing! This helps a lot! 🙏🏼

  • @resmisingh3762
    @resmisingh3762 Год назад +15

    I have Rheumatoid arthritis since I was born. So far I'm ok with stiffness. Glad your sharing your story

  • @elisewilson9486
    @elisewilson9486 2 года назад +9

    I am so happy that you test positive for the RH Factor. I have had ALL the systems of RA since I was about twenty years old. I have never tested positive for the RA factor so they will not put me on a treatment plan. I have been in pain daily since I was about 27 years old. This is when the burning system started in my knees during a flair up. At this point both knees are bone on bone, but they will not replace my knees because I cannot straighten either of my knees. I have arthritis in every joint of my body. I have degenerative arthritis in my knees and lower back. I am just so glad you tested positive, and they listen to you. I do not want any other person to be my age(only 52) and have the body of a ninety year old. I think more channels like this need to be out there to inform the public that not on RA patients with test positive for the RA factor.

    • @amytaylor9596
      @amytaylor9596 2 года назад +3

      Omg I have the same problem Elise! I’ve been telling the dr for two years I think I have rheumatoid arthritis. My knuckles and fingers swell, fingers get red, shoulders swell, throbbing pain. Knee, and now it’s in my right foot. Just saw the dr again Thursday because I thought I had fractured it. When he saw the rash on my arm he finally said this may be ra. Before they always just told me fibromyalgia. He took another blood test Thursday and I’m waiting on results. It’s very frustrating. In the meantime I’m struggling and barely walking.

    • @-living4jesus4ever-
      @-living4jesus4ever- Год назад +7

      This is actually called seronegative RA now. 😢

    • @MJ-gj6mj
      @MJ-gj6mj 10 месяцев назад +1

      Wow😮 Please, please share your story with others. There are so many of us suffering and feeling isolated by the healthcare system. If more people knew about this, maybe we can push for better screening protocols and treatments designed with the preservation of our joints, not the 6 week rest period AFTER the pain flares.

  • @theblushingrose_
    @theblushingrose_ 2 года назад +3

    Thank you for sharing your story !!

  • @TechLuvnMomma
    @TechLuvnMomma 5 месяцев назад +1

    Your experience of finding out and fluid removal was exactly what I went thru 😔 that was years ago and I'm still struggling to find a doctor who will listen fully and find meds that work for me 😔 I wish you and all luck with their journey of finding what helps you.

  • @Camotisho
    @Camotisho 2 года назад +2

    Thank you for your video, it was very helpful!

  • @mrswray
    @mrswray 2 года назад +11

    I have stills disease which deals with rheumatoid arthritis all over the body as part of the symptoms. I was diagnosed at 17. Good luck with your journey love, it’s difficult being so young dealing with something mostly elderly people have but you can do this and there’s lots of support out there! And on a side note I could not stop staring at your hair. It looks so healthy!

    • @lifewithra
      @lifewithra  2 года назад +3

      Thank you for your sweet comment and for watching 🤍 I hope you’re doing well. I had just gotten my hair done not too long before this video so that’s probably why it still looks fresh 😂

  • @lisandrahaynes7631
    @lisandrahaynes7631 2 года назад +1

    Thank you for sharing!

  • @Leescraftyside82
    @Leescraftyside82 Год назад +14

    Mine started in my right index finger and my doctor thought it was tendinitis because I couldn’t straighten my finger. Then it spread to my wrists and other fingers, then shoulders, knees and then feet. It started when I was 38, diagnosed at 40. Best of luck in your journey! Hugs!

    • @-living4jesus4ever-
      @-living4jesus4ever- Год назад

      This sounds like my story. I’m 39 and I woke up one day, and I felt like I had plantar fasciitis. Never a couple months later, my shoulders feet, right hand couple of fingers, etc are so sore in the morning. What have you found to be helpful? I don’t want to do medicine so I’m eating autoimmune Paleo and I want to try low dose naltrexone.

    • @GimmeTheScoop
      @GimmeTheScoop 5 месяцев назад +1

      I was diagnosed this year. Symptoms started right before I turned 40. One day I just woke up with pain and swelling in a couple of fingers. Spread to the side of my palm. Now both hands have a couple fingers affected and spread to a a couple of toes and knee. Sucks waking up with pain everyday and fingers n toes are starting to look slightly crooked. After being diagnosed I’ve been taking methotrexate once a wk. seems to help some days but most days I still have some sort of swollenness and pain somewhere. I don’t want to be on medication forever but if it slows the progression then I need to do it. I’ve also watched docs on RUclips say that intermittent fasting is the most effective so trying this as well. I’m also still taking prednisone 10mg most days 😩 I know that has long term negative effects on health but it’s so effective with reducing the swelling. I have also found that cardio and working out seems to help so I have been forcing myself daily even though I wake up stiff n all 😢. I’ve always worked out daily on a regular basis for years, so that’s not hard, but the eating part..eliminating gluten, sugars and other foods that don’t help has proven so challenging but I need to do this along with fasting. Good luck to all. It sucks having this chronic disease when you’ve never had health issues previously.

    • @Leescraftyside82
      @Leescraftyside82 5 месяцев назад

      @@-living4jesus4ever- I take hydroxychloroquine and enbrel shots. Mine is severe and was taking over pretty fast. I stopped drinking soda and try to stay away from complex carbs. I’m trying not to “add fuel to the fire” so to speak. Each person is different. But this helps me. Hope you find what works for you ❤️

    • @-living4jesus4ever-
      @-living4jesus4ever- 5 месяцев назад

      i started doing kale green smoothies, tested positive for lyme disease ahd have been treating it with herbal tinctures, etc and really believe what I thought was RA is actually lyme disease! this is worth people looking into!@@Leescraftyside82

    • @neemambeyu9869
      @neemambeyu9869 Месяц назад

      @Leescraftyside82 , I am 39, diagnosed 3 years ago. My doc has suggested starting me on hydroxychloroquine. How has the experience with the drug been for you?

  • @evalasting50
    @evalasting50 Год назад +6

    Mine started with a flu for five months and my doctor saw my swollen hands and diagnosed RA --pain in groin as well

  • @courtneyklim516
    @courtneyklim516 2 года назад +1

    Thank you for the porting this video

  • @gloriabonnifield9740
    @gloriabonnifield9740 Год назад +10

    I’m sorry you have this terrible illness I have been dealing with it for over 40 years. I’m glad that now they have better medicine for RA back when I was diagnosed they only had prednisone, Motrin and a lot of drugs they were testing so along with the pain I felt like a Guinea pig being used to test the drugs. Unfortunately nothing worked and my illness got worse by the time I was 29 I had it all over my body and was forced to go on disability. At this stage I take Cbd oil plus medicine to relive pain. If I told you my complete story we would be here all day so I’ll end. Good luck with your fight against this terrible illness. 😀❤️.

    • @tsekokatse2118
      @tsekokatse2118 Год назад

      Does it lead to physical deformation and less mobility?
      I was diagnosed last month at 22 years old

    • @irenemchugh
      @irenemchugh 2 месяца назад

      Thankfully there are loads of good treatments for RA now …….These will prevent deterioration of joints and loss of mobility .

  • @natashahutheram2078
    @natashahutheram2078 Год назад +8

    I was diagnosised in sept 2022 but I have it only in all my fingers n wrist n the pain is toooo painful. My morning are the worst it takes half the morning to get moving .....I hate this pain coz it just slows me down

  • @meyouandpugh6349
    @meyouandpugh6349 2 года назад +5

    Mine seems so random it was my left shoulder but then both knees and right wrist. I totally know what you mean when you say your hip needs to pop I constantly feel relief by popping or clicking my shoulder x

  • @promisetia8175
    @promisetia8175 9 месяцев назад +10

    I was diagnosed with rheumatoid arthritis last month, I'm still trying to accept it and learn how to live with it.

    • @sk55559
      @sk55559 9 месяцев назад +2

      More power to you....God bless us all❤🙏

    • @dawnmckenzie3314
      @dawnmckenzie3314 7 месяцев назад +4

      Take it easy. I was diagnosed in April 2023. It got really bad recently terrible flare. I pray you will be able to manage it.🙏🏽

  • @amandaalicajic3957
    @amandaalicajic3957 9 месяцев назад +3

    ❤thanks for sharing

  • @tlhop8374
    @tlhop8374 Год назад +4

    Aw! I’m so sorry you had to be inundated with that all at once and so young. Thank you for sharing. And ❤️s to your momma bear. My momma is the exact same. I am awaiting my lab results for RA. I already have had Hashimoto’s for many years. None of the AIs are no picnic. Thank God I have an amazing naturopathic md who is one the ball. May you be blessed and healed on your continued journey. 🙏❤️

  • @florastewart7957
    @florastewart7957 6 месяцев назад +4

    Oh honey! I wish I could give you a warm hug, a cup of bone broth and a massage therapist. My daughter is waking up stiff like an elderly woman. I pray for you both

  • @bluemoon472
    @bluemoon472 7 месяцев назад +3

    Has anybody had chills when a flare hit, freezing cold coming out of your bones type cold? That & swollen lymph nodes in neck & groin with a red rash going up along face? This happened all at once w a scary pain (way worse than the usual achey pain & stiffness). It’s been almost a week & it’s lessening but boy did it scare me.

  • @jackelynvillamil8287
    @jackelynvillamil8287 2 года назад +1

    Hi Nicole!
    Thank you so much for sharing your story and for creating this platform. The part where you told your mom really got to me. I was diagnosed with RA three years after you, in 2013 - I was 17. At the time, I didn’t really fully understand, it was a lot to process but I remember my mom crying too!
    I was prescribed methotrexate but never took it so my rheumatologist switched me to Enbrel and I’ve been on it ever since. It’s similar to Humira, I take a shot ever 2 weeks. I’m managing ok, some days are harder than others but you’ve just got to keep pushing through.
    I hope you’re doing well!

  • @jennmcg4068
    @jennmcg4068 2 года назад +8

    My left side was affected first, then it started to spread throughout my whole body! I’m glad you were able to get a diagnosis quickly and start your medicine to help you! It took me 3 years to finally find out what was wrong with me! 😕

    • @lifewithra
      @lifewithra  2 года назад +2

      Oh wow I’m sorry to hear that. How frustrating that must have been. I’ve heard a lot of other people’s diagnosis stories and it seems like that was “common” for them too. I hope you found the right help you needed. Thanks for watching!

    • @jennmcg4068
      @jennmcg4068 2 года назад

      @@lifewithra Thanks dear! I really enjoyed your video! ❤️

    • @ShayariWithAshish
      @ShayariWithAshish 2 года назад

      I m suffering also from rhumetic arthritis last 21 years. Frst my left hip joint starting, then slowly slowly all body effects, n my all joints fix now, m treatment many doctors. Now m treatment rhumotologist doctor last 3 years. My pain some relief, but my chest fell my slow n vry uncommon. My suggestion heart specialist . ECG normal. But m again not fell good.
      So many tests and medicines cost so much in the treatment of the doctor, no one can love about this, I have also been on practice because I am unable to do any such work, I am living somehow at home If any one can help me some kindly contact me please consult

  • @rindrr
    @rindrr Год назад +3

    We're not sure what kind of arthritis I have but it's seeming I might have RA. I can't say for certain yet. I was born with arthritis in my hands and man brushing/showering can be so so hard.

  • @dianacubias4584
    @dianacubias4584 Год назад +2

    Yes I had the same experience all the pain was on one side (right )

  • @mantra4ia
    @mantra4ia 4 месяца назад +1

    So I'm in the middle of a particularly painful multi-joint flare up of what I've always lived with as "polyathralgia" since my late 20s from my experience with the healthcare system. I'm now in my mid thirties. But something you said triggered me, and that was you talking about flare-ups before and during your menstrual cycle. That's been my experience with my polyathralgia. If I wanted to bring up getting tested for RA, do you remember what the test/markers they were checking for were called that you went through? And do you know if you have to be tested during a "bad day flare" or any time?

  • @sylviegamboa106
    @sylviegamboa106 7 месяцев назад +2

    Its so sad this happens to anyone and so sad people are so unaware of this. It doesn't mean your old it has nothing to do with age it happens to us young people too...its so unfair. I've been dealing with the symptoms since high school it runs in my family. I got this due to genetics only. It runs in my family. Sad. I got this just for being born in my bloodline? Theres so much unfair with this and I'm so sorry your going thru this and anyone who is ... God bless you all. I know its hard. I'm both angry and sad because its unfair. Ive had ptsd all my life been thru alot could barely handle my ptsd and now this? Got a positive test for autoimmune both lupus and RA run in my family so it could be either. The pain is so awful.

  • @khinnanoo
    @khinnanoo 2 месяца назад

    I was diagnosed with R/A two.weeks ago ..my doctor also told me I might have ostero arthritis in my knee too.
    My blood result shows positive for R/A and have bone spur only both knee ( xray).
    Am 57 years old and quite a healthy person with no problem .I had a shingles ( very bad one) in 2022 and the doctor believe that probably trigger the R/A.
    Would very much like to know more about living with R/A ..
    Thanks

  • @amberjones9850
    @amberjones9850 9 месяцев назад +3

    Did running and the new exercise regimen cause a flare which led to diagnosis? Did you have any symptoms prior?

  • @user-iw9lc1wj2z
    @user-iw9lc1wj2z 8 месяцев назад +2

    Now i am 17 years old.
    I have rheumatoid arthritis. I have been suffering from this disease for 3 years.still i have this.disease🙂

  • @lissarojas9331
    @lissarojas9331 Год назад

    Mine started on my left side and when it flares it starts on the right and over time goes to my right

  • @nosy6778
    @nosy6778 2 месяца назад

    For about 2 years, I would have cases where I'm in pain and could not walk. I will see a doctor and will be told there is nothing wrong with me. It moved from feet to the hands bathing myself was the struggle. My ring finger started swelling up. I went to Google trying to figure out what was wrong with me, when I saw RA I suspected I was suffering from it. I decided to see a specialist and they confirmed it was indeed a RA.

  • @LostCatFindersDrippingSprings
    @LostCatFindersDrippingSprings 6 месяцев назад

    What is the Drink you mentioned at the end that you make a pitcher of?

  • @brth7085
    @brth7085 9 месяцев назад +2

    How are you doing now lady? Any natural ways to treat it? I’m so scared of being long term on Biologics 😣

  • @TheMsky
    @TheMsky 8 месяцев назад +1

    This is exactly my story

    • @ItsMeJen30
      @ItsMeJen30 6 месяцев назад

      Same here 😢

  • @jenniferknowles2023
    @jenniferknowles2023 Год назад +6

    I haven't been diagnosed yet, but I have arthritis in all my joints, except my ankles at this point. I even have it in my toes. When I was at work today, on my feet for probably about 4 hours at that point, and my toes started aching. All I have to say is that I can deal with a lot of pain, but not in my toes! 😳

    • @ItsMeJen30
      @ItsMeJen30 6 месяцев назад

      Same here . I’m waiting on my blood results still

  • @anayajaiswal1291
    @anayajaiswal1291 Год назад +1

    My mother is going through same exactly same she has rheumatoid arthritis since 15 years when she was 19 years of age and today her condition is very critical she need 2 surgeries to replace her hip because of wearing off and due to excessive walking or work she has severe pain in every joint . Any medicine doesn't suits her . Starting it was methotrexate but it doesn't suited her they switched to injection of methotrexate but it worsen her condition of vomiting nausea swelling where it was injected and .then they switched to another injection given every 6 months but today her every organ is destroyed and she suffers a lot . No medicine suits her . She has very less platelet and has blood count . She needs surgery but hadn't been able to due to circumstances

    • @lifewithra
      @lifewithra  Год назад +3

      I’m so sorry to hear this! I pray your mom and her doctor finds a medicine that suits her and she can get some type of relief. There’s nothing worse than being in pain and nothing can ease it. Please don’t lose faith, I’ve met people who’ve had bad reactions or medicines that didn’t work for them and eventually they were able to find something that worked for them. Don’t give up and keep pushing for new medications. Wishing your mom the best and hope to hear when she’s found some relief.🤍

  • @superstacyrenee1
    @superstacyrenee1 9 месяцев назад

    Mine started at 11 yrs old. Had fluid in my knees also. I seemed to outgrow it for years. Had problems with hips at 48 and now having chronic hip pain for 6 months. Terrible sleep too.😢

    • @janellelechner4679
      @janellelechner4679 3 месяца назад

      Oh dear... diagnosed at age 11... I can't imagine 😢

  • @evalasting50
    @evalasting50 Год назад +2

    Had a recent flare and some days i havent got the energy to brush my teeth -- dreadful

  • @mariamaholani3676
    @mariamaholani3676 6 месяцев назад

    Living with RA for thirteen years now 😢

  • @poopydoopy6684
    @poopydoopy6684 11 месяцев назад

    How old were you when diagnosed and what was your RF

  • @lexibeltran3663
    @lexibeltran3663 2 года назад +1

    ❤️❤️❤️

  • @stephaniemontoya3970
    @stephaniemontoya3970 2 года назад +2

    Weird! My right side was affected first too

  • @ItsMeJen30
    @ItsMeJen30 6 месяцев назад

    I am being tested for auto immune disease. Waiting for results actually

  • @esthersissoko1478
    @esthersissoko1478 3 месяца назад

    Do you get much swelling in your joints

  • @valeriepinon8489
    @valeriepinon8489 2 года назад +10

    Hey girl my mame is valerie and i suffer from RA and fibermalgia and i got diagnosed when i was 21 and now im 36 but i started with my arms and now its all over i had a shoulder and rotaorcuff sugery and now i need knee and both anckles surgery im all bad always in pain cant walk dragg my feel and im basically disabled just wanted toshare my story

    • @lifewithra
      @lifewithra  2 года назад +2

      Thank you for sharing and thank you for watching! How do your shoulders feel now that they’ve been replaced? RA is the pits and on top of that fibromyalgia.. I hope you get some type of relief soon.🤍

    • @valeriepinon8489
      @valeriepinon8489 2 года назад +1

      My shoulder is much better i can move it now less pain but it didnt stay the same and im going to therapy twice a week .but im on infusions orencia now and it helps get it every 4 weeks .and i also have a bad knee they drain every so often and it is painful so i know what you feel i been wanting to meet someone to talk about RA who also has RA but ur welcome i would love to share everything with people who had RA.i just been threw so much but thank god i have my mom she helps me so much and im a single mother of 3 teen boys so they help me too but it really messed up my life no more dancing no more heels i cant even wear any shoes they hurt my feet and i get bad flear ups so i rather stay home this sickness really affected my life 💉😢🙏

    • @lifewithra
      @lifewithra  2 года назад +2

      @@valeriepinon8489 that’s good that it helps but I know it’s nothing compared to the life we had before. (That I vaguely remember) I like to hear other’s stories cuz it makes me feel like I’m not alone, but hate that we have to go through this. RA is definitely life changing and filled with adjustments. I too miss heels, I can wear a platform or a short chunky heel but my knees and ankles are sore the next day. Glad you have support from your family.

    • @marycooper7423
      @marycooper7423 2 года назад

      @@valeriepinon8489I was diagnosed in 2016 @ 31. Very similar experience with my body as yours, as well as I have two teenage boys. My RA has in the last yr. been under as much control as my body will allow with the occasional flares. To which can be pretty severe. Can you image here I'm 19 weeks pregnant 5yrs going on 6 yrs later with my 3rd son 😊. I haven't been one of the lucky ones that went into remission. I actually just got over a flare up, however over all still very excited to be welcoming a new life. With all I've already been through I consider it a silver lining. Anyhow just wanted to share that with you as your sharing inspired me. Best wishes with you, your family, and your health.

    • @marycooper7423
      @marycooper7423 2 года назад +1

      @@tamekadouglas1060The average age of diagnosis for RA is between 27 and 31 ( I believe). However you can be born with it. That's what made my outlook about being diagnosed with RA at 31 a little easier to process. I couldn't fathom me having to deal with it AND the ups and downs of developing too. I got 31 beautiful years without it🤷. Then again I TRULY believe that God won't put more on you then you care bare. With the first episode of anything it's the worst. Going through the unknown when it comes to your health is hard. You are hoping for the best yet trying to somehow prepare yourself for the worst. So I understand your logic of thinking being that you are going through what seems to be the initial lost/betrayal of your health... It's not a death sentence though and you can thrive once you receive a diagnosis. You're already doing the right thing by paying attention to your body and acknowledging something needs attention, just take it one day at a time KNOWLEDGE will be your power.

  • @lexyjackson5405
    @lexyjackson5405 Месяц назад

    Almost every joint on the right side of my body is aching every day but I never get pain on the left side of my body. I thought I was the only one!

    • @alokverma2735
      @alokverma2735 25 дней назад

      Lycopodium 200
      One dose of 4 pills weekly,
      Homoeopathic medicine

  • @shawnalamm148
    @shawnalamm148 20 дней назад

    My RA had me convinced I had bone cancer! Pain in every bone of my body. Normal xrays, high CCP RF-.

  • @nottoday.c
    @nottoday.c 7 месяцев назад

    Whats a flare i was diagnosed with RA..and sjogrens. I have pain only in hands.pain on scale daily is 1to 10 ...its 3...i lost weight n n hair lost.they want me on 400 mg.plaqueni...hellllp

  • @jadeitejunkie
    @jadeitejunkie 3 месяца назад

    I have RA and the only thing that has helped it in 13 years is the lion diet. I was a vegan for many years and that was a horrible decision. Plants and seed oil were what was causing my severe pain.

  • @valeriepinon8489
    @valeriepinon8489 2 года назад +1

    And in june i just had a shoulder replacement because my RA is attaching all my joints i am in pain everyday

  • @yolandaramirez4649
    @yolandaramirez4649 2 года назад +3

    I have arthritis in my spine! Does the cortisone shot help?

    • @lifewithra
      @lifewithra  2 года назад +3

      Hi I’m sorry to hear that. Yes cortisone shots do help but they’re not recommended all the time. Thank you for all your sweet comments and for watching! I hope you’re feeling well!💕

    • @MJ-gj6mj
      @MJ-gj6mj 10 месяцев назад +1

      If you have diabetes they definitely won't be the first choice for you.

  • @leaguebrosinc
    @leaguebrosinc Месяц назад

    Amazing Video. Know I'm a bit late but....... I (28yr old M) was diagnosed about 2 years ago. Got Covid from work and it lasted about a month. When I went back to work my knees starting aching really bad every day. After working for about two weeks with the pain, my leg finally gave out. Didn't have Insurance from the place I was working and was told by the hospital that this issue may take a while to get fixed. I ended up quitting my job just so I could get decent health insurance. When I finally got insurance and seen a doctor(who was awesome) he ran some labs and found that I have RA. Turns out COVID can bring out lingering genetic diseases that may have remained dormant otherwise. Anyway it's been two years and I have taken all the meds and so far nothing has worked. Currently on Kevzara and hoping for remission soon. Also in case anyone reading this has Severe RA and wondering if disability is an option....Just get a lawyer.

    • @vinlago
      @vinlago Месяц назад

      Get a lawyer and hunker down for a long wait. Better yet get a govt or union job and if available private disability insurance and work as long as you possibly can. Disability is not about a diagnosis. It's about whether an administrative law judge thinks you can perform any task they can invent regardless of whether in reality it's feasible or financially survivable.

  • @trell488
    @trell488 3 месяца назад

    Does anyone get prescribed any pain pills my doc wont give me any

    • @jadeitejunkie
      @jadeitejunkie 3 месяца назад

      You don't want any since they are highly addictive. Look into the keto diet.

  • @nedwotherspoon438
    @nedwotherspoon438 7 месяцев назад +1

    What's the bet that when she became vegetarian she also upped her consumption of wheat, flour, sugar...to keep her energy levels up

  • @purelightfreespirit696
    @purelightfreespirit696 Год назад +3

    How long did it take for you to get a diagnosis? It took about 6 months for the ra doctor to diagnosis me

    • @jessv6319
      @jessv6319 Год назад +2

      Why did it take 6 months to diagnose? Wondering bc I went to see a PCP today for all these same symptoms (joint pain, swelling, feels like the flu for a few days) and he immediately dismissed me as too young and said must be vitamin deficiency or diabetes. I got my labs taken but I'm worried he's not going to check for RA.

    • @MJ-gj6mj
      @MJ-gj6mj 10 месяцев назад +2

      ​@@jessv6319What happened for you? My doctor gave me Vitamin D pills?! I can't get taken seriously 😒

    • @ItsMeJen30
      @ItsMeJen30 6 месяцев назад

      @@MJ-gj6mjsame here. Dr finally ordered blood work. Waiting on them now

  • @luticiasmall817
    @luticiasmall817 Год назад +1

    I just found out that I have RA rehumatoid arthritis n now I noticed how both my hands be in pain like rite now my right hand is in pain rite now lower back rite hip n lower back n left hip n both my feet be hurting n tailbone to n now my arm hurts my shoulders hurt to so I'm just waiting for the rehumatoidligist to call me to make a appointment n I have type 2 diabetes high blood pressure n now this lord help me

    • @MJ-gj6mj
      @MJ-gj6mj 10 месяцев назад +1

      Feeling the same. Feel much more older than my age, very stiff. Also have a few other conditions which are autoimmune. But still, no referral for a rheumatologist.

    • @luticiasmall817
      @luticiasmall817 10 месяцев назад +1

      @@MJ-gj6mj really I went n saw a rehmatiodligist wast of time for me so now mite go to urgent care Friday

    • @luticiasmall817
      @luticiasmall817 10 месяцев назад +1

      Remember when I said that I found out that I had rehumatoid arthritis well when I saw the rehumatoidligist in Shreveport she told me that I didn't have rheumatoid arthritis I told that my doctor nurse call me back n told I had RA well I checked ur labs that they sent me n she said that I didn't have it but that I mite have degenerated arthritis mite why I be having pains in my lower back n rite hip n lower back n left hip and tailbone pain n still get pains in my hands to n my knees n feet I don't know what to do

    • @MJ-gj6mj
      @MJ-gj6mj 10 месяцев назад +2

      @@luticiasmall817 What a pain (literally). I just did the whole urgent care thing. I atleast want a paper trail for my pains. I would say keep going in places bc maybe you'll find a person that will be able to actually help you.

    • @luticiasmall817
      @luticiasmall817 10 месяцев назад +1

      @@MJ-gj6mj thank u

  • @adamreid2799
    @adamreid2799 2 года назад +8

    Where you vaccinated prior to your rheumatoid attack. Alot of people are looking back to when rheumatoid turned on in their system and it was 6 months to a 1 year after a vaccine. Sometimes a common Flu vaccine but other vaccines have been the cooperate also.

    • @sylviaa4974
      @sylviaa4974 Год назад +1

      Yes mine came after heb b injection for nursing so I only had the one and never have had another vaccine ever I went in remission 2017 but now back after losing Mt son going back on metroxrate

    • @MJ-gj6mj
      @MJ-gj6mj 10 месяцев назад +1

      Yes I was vaccinated and it was Covid series. About 3 months after until present things have just been getting worse and worse. I don't know if there was any connection.

    • @adamreid2799
      @adamreid2799 10 месяцев назад

      @MJ-gj6mj definitely a connection. You need to change your diet completely. If it was the covid vaccine, there are detoxs.

    • @timestax
      @timestax 8 месяцев назад

      @adamreid2799, mine got really bad about 6 weeks ago. My DIL died July 15. I'm sure there is a connection. 23:23

  • @evalasting50
    @evalasting50 Год назад +3

    So now i have an electric tooth brush

  • @dinnudinesh3169
    @dinnudinesh3169 9 месяцев назад

    Hii, im an Indian.
    Im 25 now.
    I have joint pains in my hands, wrist, fingers, knees and ankles.
    I have pain in my lower back too..
    I have pins amd needle sensation in hand fingers.
    I tested negative in RA factor, but diagnosed with little elevated uric acid and deficiency in vit D and vit B12.
    Is this RA, or just vit deficiency..
    Please help me out.

    • @manishajaswal1577
      @manishajaswal1577 9 месяцев назад +1

      How r u now? There is one seronegative arthritis also where RA always negative

    • @sk55559
      @sk55559 9 месяцев назад

      I have uric acid disease

    • @dinnudinesh3169
      @dinnudinesh3169 9 месяцев назад

      @@manishajaswal1577 hello, pains are still persistent, but less intensity. Need to consult a rheumatologist

    • @manishajaswal1577
      @manishajaswal1577 9 месяцев назад

      @@sk55559 what are the symptoms?

    • @manishajaswal1577
      @manishajaswal1577 9 месяцев назад

      @@dinnudinesh3169 how are you now?

  • @DontBeMadBeHappy
    @DontBeMadBeHappy 6 месяцев назад

    Both of my sides was affected

  • @riggingcranetips7393
    @riggingcranetips7393 2 года назад +15

    Anyone get it after the vaccine

    • @ebefl
      @ebefl Год назад

      Yes. Literally everyone who got it since 2021 got it “after” the vaccine😂

    • @MJ-gj6mj
      @MJ-gj6mj 10 месяцев назад +4

      I don't want to get political at all here but honestly the last couple years have been the most pain ever. It seems like the flares are more and more present and I'm 99% sure I am suffering from this.

    • @bmcdonald7303
      @bmcdonald7303 8 месяцев назад +1

      I’ve had severe pain and excessive bleeding which caused me to have a hysterectomy. All of this started after I took the vaccine. I took the vaccine to keep my job and retire in three years. Now I feel like I may not make it to retirement.

    • @UnCannyValley67
      @UnCannyValley67 7 месяцев назад +1

      Possibly. I have seen a correlation btw the 6th booster (also had flu vaccine the same day), and some type of arthritis. but I cannot conclude causation just yet. Too soon.

  • @sashaf7
    @sashaf7 7 месяцев назад +1

    I have RA & it's whole body

  • @johnsack6819
    @johnsack6819 2 года назад +5

    Try an elimination diet

  • @alionasviridova5315
    @alionasviridova5315 Месяц назад

    You can have a million shots that won't fix anything. Once you have it, you'll have it for life.

  • @susanvanrooyen1654
    @susanvanrooyen1654 Год назад

    Wil you send me

  • @sevastianaf.3004
    @sevastianaf.3004 2 года назад

    My right side is effected more…😅

    • @lifewithra
      @lifewithra  2 года назад

      Isn’t it crazy how it works.. I hope you’re doing well!

    • @ItsMeJen30
      @ItsMeJen30 6 месяцев назад

      My left was lol

  • @samruthaa57
    @samruthaa57 8 месяцев назад +2

    I am 14 I was diagnose RA 4 month before I have so much pain i can't sleep at night difficulty going to school 😞 take so much pain killer but i don't work 😢 my leg is hurt so much any advice for me

  • @mickefy682
    @mickefy682 2 года назад +6

    I hate kneedles. 🦵