What is Crohn's Disease?! - MY STORY - Sally Boebally
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- Опубликовано: 1 авг 2024
- Watch my latest video on Crohn’s Disease here:
• I had bowel surgery - ...
I was diagnosed with Crohn's Disease in 2009, back then I didn't even know what it was. I felt alone and I had nobody to explain to me what was happening to my body. This year i'm doing my bit to raise some awareness, tell my story, and try to help remove some of the stigma around IBD. If you are newly diagnosed you are not alone! Reach out to me if you have any questions or just need someone to talk to.
Special thank you to Musgrove Park Hospital and their staff for allowing me to film myself over these past 12 months.
USEFUL LINKS:
Crohn's and Colitis UK: www.crohnsandcolitis.org.uk/a...
Another great Crohn's video from Kevin Heimbach: • I HAVE CROHN'S DISEASE...
REACH OUT:
Twitter: @Sallyboeballyy
Instagram: @Sallyboebally 
Развлечения
Guys I have made another video about Crohn’s disease! You can watch it here:
ruclips.net/video/ozS-dDBhdlo/видео.html 🥰
I am 70 years old and have had Crohns for 60 years. I am so proud of all you young people. I am sure will see a cure in the next few years. Hang in, I understand am pulling for all of you.
How did you manage for so long with this disease? Even 1 year is difficult sometimes
Hi, I’m am currently 11 years old and I have been diagnosed with Crohn’s disease. I really needed to hear that there was someone going through the same thing. Thank you. I am currently having a flare...... not fun. But this helped me 🥰😪
Slime with me!! Let’s go !! So glad I could help! Sorry to hear you’re going through a rough patch. Keep your head high! X
Sally Boebally thank u!!
Me too😭
It saddens my heart to hear about children w this horrid disease. Yes, I had minor problems w undiagnosed Crohn's. 4 mos ago I was diagnosed after a heart attack n on life support 5 days. Yes, this is a very unusual way to have started for Crohn's testing, but I'm 67 yrs old! And when I think of children, I cannot hold the tears back. I pray for the parent's heartbreak of there is nothing they can do. I pray for children like my son who's 50yr old n watches his mother suffer n there is nothing they can do. Yes my child, us adult who suffer weep n pray for the children. We know ur pain. Prayers, sweet child.
Me also suffering from chrohn's disease.. what is the best treatment.. plz tell me..
I have this as well and am not ashamed to see I’ve shit myself on numerous occasions , so embarrassing but you have to laugh at yourself :)
Sarah Grant thank you for the comment ☺️ I’ve been lucky, that hasn’t happened to me yet but I’m sure it will!! Well done for having such a great attitude xx
Hey there, I was just reading your post, about crohns and colitis disease I’ve just started a natural supplement that has been helping me so much it also help my cousine with colitis crohns disease I Can send you more info? if you are interested email me chjulien2001@yahoo.com for more info
EMMA didn't watch the video
I’ve been struggling with these symptoms for years. I have shit myself multiple times, including last night. I’m struggling so much with doctors. When I go in they see a healthy young girl. These are hitting out of no where and I lay on the floor in pain. I vomit and shit all over myself. I’m at a loss
It can be embarrassing sometimes. I spent 10 years being embarrassed about my Crohn’s Disease
The amount of times I've heard "you don't look sick to me" or "you look fine to me" is unreal. I've spoke about it on my video I just shared about my story
The Grumbling Gut good on you for sharing your story :) best of luck, your channel looks great!
@@SallyBoebally thank you so much 😊
Only times I ever get any compassion or sympathy is when my stomach distends in multiple spots. Where I look like I'm in late term pregnancy and I normally have a 6 pack. Its just amazing how many people choose to remain ignorant to it and tell you to "quit faking being sick". Or "what?!? Your not coming into work today because you have a tummy ache"?? Just the audacity. If they only knew we never would catch ourselves faking a sickness if anything we become pros at faking we're doing well because we don't want the attention or to feel pity or an inconvenience to those around us. I had been fighting Crohn's for 2 years undiagnosed had gone to the ER during a extremely bad flare-up where I wasn't able to go to the bathroom for 8 days and my stomach was distended to the point that I had to sleep sitting up right and walked like a hunchback which is how the majority of my flare-up are these days. But after doing the contrast CT they had told me I'm more than likely has colitis or a slim chance of ulcerative colitis so being an idiot of a man that was too tough I need medical assistance I fought it White Knuckle for the next year-and-a-half until it's got the point where I was Rapid Cycling with flare-ups having extreme symptoms for weeks at a time and then maybe a couple weeks off and then right back to it with vengeance. So finally at the EGD colonoscopy and endoscopic contrast MRI done to confirm 100% that I have Crohn's and it's progressed to the point since I never sought treatment that my entire small bowel system is infected and inflamed right now along with inflammation and polyps in my large intestine and colon. My doctors wanted me on Humira immediately for concern that id need surgery soon if not but since its a new diagnosis and humira cost 8000 per dose insurance made me start at the tier 1 meds like budesonide, pentasa and ondansetrin. Non of which seem like they've gave me any relief whatsoever if anything it feels worse somedays
So for now stories of success, relief and manageability are what is keeping me going during these trying times where I feel devoid of Hope. So thank you for the strength hope and courage
Just got diagnosed, cron’s gang 🤙🏾
KEW LEAKS welcome! Let me know if you need any support! First rule of the gang though - it’s ‘Crohns’ not ‘Crons’ ☺️ haha
yep! lmao got diagnosed almost 2 months ago
me too!!! today!!!
@@Xavier-bg4dp please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
My daughter was recently diagnosed with Crohn’s. I don’t think her friends and some family understand what she is going through. Calista is 17 and struggling a bit at the moment yet getting better. She lost nearly 20lbs before someone finally listened to us and tested her. Thanks for your courage and posting this. I will forward your channel to her. ❤️
Jason Temple sorry to hear Calista is going through a tough time. I promise it gets easier! It’s definitely hard for people to understand, it’s more than just an upset tummy that’s for sure. If she ever needs a chat I am always here :)
@@SallyBoebally that's lovely 👍
It made me cry and I'm not feeling lonely thank you 💜
Diagnosed with Crohns at 23 tried all kind of pills didn't work. At 33 took remicade therapy and it's been in remission since I'm now 48. In the beginning I stayed away from all foods that irrated my stomach, then slowly reintroduced them back in my diet. Some I've permanently stayed away from. Hope this helps someone.
Late reply lol but I’m getting on remicade in a week, what was it like the first few weeks or months? So happy it works for you
@@jerry5882 takes awhile for your body to adjust. I had night sweats and would vomit sometimes in the beginning. Now no side effects.
“Smile because you’re diseased” hahahahaha!! This is so relatable! I have had Crohn’s since I was 15 and have also started to show signs of arthritis. Super sucky - but it is what it is. Positive attitude has def saved my life! Love this and love you ❤️❤️
Bookish Linguist thank you for the kind comment ☺️ positivity is the best medicine! X
Omg I had just been diagnosed with chrohns disease last month and I’m only 13 but the good thing is now they’re looking for a treatment for me😌💍🙏🏽
All the best finding medication that works for you. Keep a food diary and avoid foods that are unkind to your gut. Take care of yourself.
So strong of you to be going through all that and yet have a positive attitude. You are an inspiration:)
Sheron Silva thank you that’s so kind of you to say :)
I am twelve and was diagnosed with a severe case of Crohn's. I am on humira and am doing MUCH better. Thank you for sharing your experience.
please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
@@harleyadam8787 i am so happy he is doing better. I am doing good with humira but this doctor sounds amazing and i hope he can help many other families.
I was diagnosed last year and I just had the guts this year to tell my story, my story is on my RUclips page (not looking for clout) just want people to know that they are not alone.❤️❤️
Thank you for this post. I was diagnosed with crohns at the age of 10. I am 31 years old now. I’m currently having a flare up. It has been years since I’ve had one this bad. But thank again for this video. Very encouraging that I’m not in this alone.
I just found your channel, and I am so glad that I did! I'm going through a pretty bad flare up right now. It is great to see others that understand what it's like to be sick, but look healthy on the outside. Thank you for sharing your story!
Tracie Thompson thanks so much for your lovely comment. I hope your flare is under control soon :( xx
your attitude in handling this disease is so admirable. I'm inspired by this. New to this.
Thank you for your kind words :) I hope this video was helpful
Hello everyone and Sally!!! My names Carla Head and I’m a 44 years old young lady who has been living with Crohns Disease since I was 17,which was in1993. I was a senior in high school. I’ve had Crohns for 27 years now. I’ve underwent many major abdominal surgeries,the first one included removing my entire colon so I’ve been living with a permanent ileostomy since I was 18. I have no large intestine and I’m also missing 2 feet of my terminal ileum which was severely diseased with the Crohns. I live in the US and IBD is a worldwide disease-not just the US. I just stumbled across your video and thought I’d watch you,Sally. Thank you so much for sharing your story Sally ? Where
in Australia do you live? My names Carla Head and I’m on Facebook,so please send me a friend request and I’d really LOVE to talk to you !! You’re a beautiful young lady and I’m always looking for new Crohns Disease friends. Hope you’re currently doing well and I’ll watch more of your videos and I’m definitely subscribing!!! Good day mate
Thank you Sally for sharing your story, You brought a smile to my face. I was diagnosed at age 11 with UC. everyday is a challenge, but the good days are a blessing i cherish dearly! Just seeing your positivity makes me want to fight harder! Thank you 🙏🏻
Danica Mashburn thank you for your lovely comment ☺️ I have down days of course but it’s so important to be positive. Keep smiling 🥰 xx
Thank you for this video. I was diagnosed 10 years ago. I’ve been recently going through the hardest flare up I’ve ever had & it’s been tough. Sending you love ❤️
Kristi Locke sorry to hear this! I was feeling the worst I ever have in December and I’ve come through the other side - hang in there! xz
Hi Sally, thank you for posting this video about your Crohn's journey. I had bowel surgery a week ago confirming my Crohn's disease. I hope you are doing well 💗
Hello, I hope you found this video helpful. I have made another video about my surgery in case that helps. Get well soon!
You’ve made my day. I’ve been misdiagnosed since I was 17, which is was my first colonoscopy and I was severely misdiagnosed. I am now 37 and will finally get my second Colonoscopy. You made me laugh so much with your set acts.
Thanks for this video, I am a male in my mid 50s I was diagnosed when I was 20 but only after there was significant damage from years of inflammation, unexplained fevers and infections- I required 2 bowel resections over the years and several other surgeries one of which almost killed me due to complications with the op, I have alway been embarrassed and reluctant to talk about my Crohn’s but it’s people like you that make more accepting of my condition.
Thanks again and Wish for the best of health for you.
I have crohns too and it’s horrible, I was eleven when I was diagnosed and I went through 12 weeks of liquid feeding, a session of steroids and pain, pain, pain. I’ve had 4 flare ups in two years. I got bullied because I didn’t grow for ages and I was way smaller and less developed (boobs, periods etc.) I started a medication called azathioprine and it has honestly saved my life. I haven’t had a flare up in nine months and I am growing perfectly and healthy!!!
Grace McMillan I have crohns to. Not fun
I was diagnosed with colitis last year, but still this video was very helpful and supportive! It’s nice to know others are dealing with it too! Keep your head up! 😀 thanks for spreading a positive message!
Paloma Thomas thanks for the comment! It definitely feels better knowing your not alone. There were things I didn’t know either too I looked into it for the video ☺️ I’m having my first infusion of Stelara right this minute so wish me luck!
Sally Boebally good luck!
Was diagnosed with Crohn's at 27 it has been challenging to say the least they can't seem to help me I been on remicaide,humira, entviyo and now stalara which doc said in my case has a 10 percent chance of working. I'm very frustrated. I have had both hips replaced and knee replacement because the steroids have destroyed my bones. Yet here I am still alive and telling my story but thank you for telling yours I have enjoyed it and your very beautiful and most importantly positive.
Konnichiwa:) My girlfriend has been diagnosed Crohn’s disease. She’s from oz and is still 21. When I was watching the video, you remind me of her whole time as she’s been through days like you did. You helped me to understand the disease more than just knowing the symptoms and to understand how I should address it with her from now on. Arigato Gozaimasu!
Keigo Ishizaka I’m so glad I was able to help you understand :) it’s a bit of a tricky subject sometimes and I imagine it’s hard for my partner to understand me sometimes too. All you can do is try support her as best you can. All the best!
I just got diagnosed with Crohn’s disease about 4 weeks ago and now i am on the liquid diet before any medication. This is still very new to me and i have an ng tube in. I have missed so much school which isn’t good and i’m missing out on a lot of plans with friends who i’ve started to drift from a lot which isn’t good :(( thankyou for this video love watching and knowing other people are going through the same things ❤️❤️❤️
Natasha Ann thanks for your comment, sorry to hear you have been struggling! I hope things improve for you soon ❤️ stay strong!
Thank you for sharing your story and having a positive outlook!
Taylor Nicole thanks for watching! ❤️
Thank you for the video. I was just diagnosed after a couple years of struggling with symptoms and being dismissed by doctors. Glad to know there are others out there.
Good to hear you have a diagnosis! All the best and hope you’re able to find some treatment that works for you :)
I have had Crohn's disease since 2003. The hardest part short of the pain is the inability to make definite plans to do anything no matter how important the plans are. Even family who see me go through what I go through for almost 17 years have a hard time grasping the concept of what I go through on a daily basis. Misery doesn't cover how I feel most of the time. Now I will say I have had a good year so I'm thankful for that! Thank you for making this video! You look gorgeous healthy and have a great attitude towards life! 👍
Brian Pennington hi Brian, sorry to hear you have had a rough time! I’m in a similar boat today actually, but I’m usually quite lucky I think. Having a positive attitude is the best ammo you can have! All the best to you ☺️
you go girl! well explained! and i couldnt help but smile when you were saying smile :D MISS YOUR FACE XX
Imagibbo thanks pal! I’m glad it made you smile ❤️❤️
Thank you for this. I was just recently diagnosed with Crohn’s.
Thank you so much for this video, I’m from Adelaide and having a colonoscopy and endoscopy in a few weeks. I suspect I have Crohns and have felt so alone, I’m literally sitting here sobbing because I feel like someone finally understands what I’m going through.
RetroSparklesx hello! Nice to hear from somebody from my home town - I was born in Adelaide ☺️ so sorry to hear you have been having a hard time. I promise you are not alone! There is such a community of us now, especially on Instagram if you want to follow me there. I can recommend some other people too that you could follow. All the best to you, you will get through it ❤️
great video! :) I was also diagnosed in 2009 (age 20)! it has been a real rollercoaster since then, recently started my channel to talk openly about it after such a long time hiding it! 'it can just hit you in the face' SO true!
and that wallpaper paste water...!
TheCrohnsVlog well done you for starting your channel! It’s so easy to hide this kind of illness but I’ve found being open and honest about it is the best policy and actually it’s quite therapeutic. I hope you’re well and you’re getting some good treatment :)
Thank you! :)
Thank you so much for making this video ❤️ you made me feel a lot better about this
Treble Clef so glad to hear it’s made you feel better :)
the exact thing happened to me! I was in Vietnam about a month ago and was really unwell everyday for the whole trip and when I came back all my tests to see what it was- came back saying I had a parasite (loads of people have it and get no symptoms ever) so when the medication for that didn't work I was pretty sad. I found out I had crohn's about a week ago and im currently having a pretty bad flare up but im really trying to keep my head up and keep going on with life even when all I want to do is sleep and stay inside. this video helped me so much. thankyou! xx
Claire Fitzgibbon hi Claire, sorry to hear you have been having a hard time :( it’s good to hear you have received a diagnosis, that’s the first step towards remission 💪🏼 there is an amazing community on Instagram especially, so if you need any support don’t hesitate to contact me there ☺️💜 I’m always up for a chat! xx
Great Video please keep up with the videos.. You share a lot of knowledge on the subject
You are such a beautiful and positive young lady. Very inspirational video!!
KayRicks 0517 thank you, that’s very kind :)
Hi Sally, My younger Sister has just been diagnosed with Crohn’s disease. my older brother also has it. He is very distant and doesn’t talk much about his journey with Crohn’s disease. I’m going to help change my sister for her health and it would be great if you could give us an update on videos on how you are going. Loved your video xx
Devaki Bult thank you for watching and for your comment :) it’s great what you want to be there for your siblings. I actually had surgery a couple of weeks ago to treat Crohn’s disease and I’m vlogging everything, that video will be up in a few weeks so look out for it! X
Thank you , my 22 year old son has just been diagnosed with crohn's today and I'm trying to educate myself so I can be as supportive as I can , you helped me understand what this is and what he will go through , all the best :)
Nokharma Im glad you were able to find my video! Crohn’s is definitely manageable and it’s great your son has had a diagnosis. He’s lucky to have someone like you looking for videos like mine! My parents were an excellent support for me when I was diagnosed :) if you have any questions please let me know and I’ll do my best to help
thank you for this wonderfull video, I wish you long, long remission, I' ll pray for you!! You are so brave and cool girl!
I hope you found the video useful 😊
I just got diagnosed with crohns, after i started haveing symptoms 5 years ago. Im just soo over the moon i got diagnosed and im not crazy. It sucks but knowing what i have is just crazy weight of my shoulders. Just started my meds and havent delt better!
Wud love some more crohns videos!
Was diagnosed two years ago at age 12!
louise 3 thank you for watching! I will definitely post more videos :)
My son is 29 and he wanted to go to E.R yesterday! the Drs. gave him a paper saying A Possible Crohns. They want him to go to a GI. Dr. He did get a prescription meds from ER.Thank you for your talking about your Story.
A GI is the best person to see :) I just did a story on my Instagram talking all about colonoscopies - this is a procedure he may need for diagnosis. I hope my content has helped in some way x
Thank you so much for making this video. It really helped me.
Johanna Ainsworth this is so lovely to hear ❤️ I’m so glad I could help x
Thank you! Just diagnosed
I got diagnosed with Crohn’s disease may 2018. I had just turned 21. I was so sick in January and lost so much weight. Not on medication at the moment dealing with it holistically at the moment. Thanks for telling your story! Stay strong.
Rhiannon sings wow so only a couple months ago! Good luck with your holistic approach, I hope it works for you :) x
Sally Boebally been on entocourt since June and in a few weeks my gI wants to taper me off then and see how I do. I made it a year holistic before the symptoms got bad again. I also have been getting iron infusions that have been helping. Obviously have my days but I love going to the gym! Follow me on Instagram so we can chat o followed you!
It’s almost the end of 2020 and why did I just found out the existence of this video?!?! 😭 I was diagnosed for Crohn’s on 2017 (16 years old) and I swear I could truly relate to every single one bit of it 😂 Aww you know what Sally, you inspire me to give much more awareness to the public ☺️ I’m living in Southeast Asia (Malaysia specifically) where IBD is rare and has a very low prevalence rate of people having it. Anyways, keep on and stay strong with Crohn’s 😜 Sending you loads of love from Malaysia 🇲🇾 💗
Hello!!!! I’m so pleased to hear such a lovely reaction to my video ❤️ I’m so glad you have found it to be helpful. It’s not easy being open but it is really great to raise awareness - so I’m encouraging you to if you can! All the best and Merry Christmas from the UK 🥰❤️👍🏼
I was diagnosed this week and this video really helped thank you
Hello, I’m glad this has helped :) all the best!
Your funny and summed up this whole joyous experience nicely
I loved this so much thank you for making this its was so helpful
you are so brave and positive
Sofiko Gulitashvili thank you for your kind words :) x
this video was so helpful and gave me hope when I feel alone 💖
Lucy Lucy oh I’m so glad!! Don’t feel alone, we’re in this together! If you ever want to chat I’m always here :)
Sally Boebally thank you so much!I haven't been diagnosed yet but have a colonoscopy and endoscopy scheduled tomorrow,I'm very nervous and emotional.
Lucy Lucy don’t be nervous, that’s a really good test to see what’s going on inside, one of the best ones. I always ask for sedation because it makes me feel less anxious, but you can have gas and air too if you like (if you’re in the UK?). I hope it goes well for you! Let me know how you go? :) x
I just love how accurate your MRI imitation was. I can say I'm familiar to it too 😅
Haha thank you! It’s one of my talents 😂
Lol I thought the same thing
Respect for posting this video
Mark Woodward thank you ☺️ new Crohns video coming very soon!
@@SallyBoebally My doctors have found ulcers in my colon which could be early signs of crohn's so it was a good video to listen to.
Mark Woodward sorry to hear you haven’t been well. Hopefully now you have a diagnosis they can give you some treatment so you can feel better :) I’m glad my video helped!
Been since age 9, now in my 40s. Most recent research is showing that IBD is most likely a systematic spectrum disease because of the complexity. Hugs. The struggles are real.
How are you now on meds have surgery or not?
I'm glad you're ok. ☺
I'm so happy that I found this video & your channel 💖 I just got diagnosed last week and i'm so confused & scared but your video made me feel way much better 💖💖💖💖
Thank you
We are superheros 💪
Hana Mohamed I’m so glad I could help :) don’t be scared we are strong! Message me on Instagram if you ever need anything, I’m always happy to chat at there is a great support network over there :)
Stronnnng girl I also have cron's but the probleme I take no medecint because I live in a bad city if you don't have to much money you can not go to the doctor or buy a medicint so i have paines in my legs in my back and nick... but i have my son my wife my parents who help me to stay strong this is the importent thing whene you have cron's. Stay strong happy forgot the stresse and healthy foooood god blesse you all
Can I just say, you nailed the MRI sounds 👏🏻👏🏻👏🏻😂😂😂
You are so adorable and beautiful. Thank you for sharing your story, I learn a lot without any boredom because you're so funny and entertaining...and most importantly (for me, who's still learning English), you talked very clearly and easy to understand (I usually have trouble catching Aussie's and British accents). ❤❤❤ Hope you stay healthy and happy and have a beautiful life. Cheers from Indonesia. ❤❤❤
*Lady Voldemort* oh my goodness what a beautiful comment! I’m so glad my video was useful to you and that you enjoyed watching :) thank you for the well wishes and all the best! Xx
Hey sally thank you for this video. I have had several test done and I am in so much pain right now. All test I have taken have came back negative and at this point I feel like I’m going crazy cause nobody understands how I feel.
When I was 13 in August of 2018 I experienced a lot of the symptoms of crohns and I was on holiday too. The doctors told me it was just food poisoning and I'd be fine in a couple of days. They gave me buscopan and nothing worked. Later on they began to investigate me for a form of IBD. They did blood tests and samples and even a scope. My scope was last week and they found ulsers and inflamation. So yeah I have crohns. I have started a modulen diet and can't eat food or drink juice for 8 weeks. I'm 14 and it's all really scary. All I want is to be able to sit with my friends at lunch and eat food normally.
God bless you. Autoimunity is so tough, but many of us live through it. I hope that science advanves fast and brings us a cure 🙏
please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
Thanks for sharing.. currently going through the process of finding out if I have Chrons. Your video game me hope that if I do have it, it will be okay 🥰
I’ve not been diagnosed yet. But the hospital said they’re 90% sure that it’s Crohns. They just need the confirmation. My next text is the pill can test.
I’m so sick at the moment, I’m in a lot of pain. I’m alway tired, no matter how much sleep I’ve had. I feel so alone. I live with my mum and she’s excellent about it. But I keep her awak some nights because I’m constantly flushing the chain ect, I feel guilty someday because I don’t even have energy to clean ect. So I feel my mum also suffers.
I’m glad I found your video, because i can relate to it so much.
Leanne sorry to hear you’re going through a rough time. Once the doctors diagnose they can start treating you so fingers crossed soon they will make some decisions for you xx
This vidioe helped me soo much glad to know I'm not alone😌💕💕
I’m so glad it’s been useful 😊
I just cry all the time and pray for ppl w/out healthcare suffering. Just sad
Omg me too. You should see some of the comments I receive, it’s heartbreaking 😔
Thanks so much for this and showing the injection. Really helps me if I'm diagnosed as terrified of needles.
Hello :) I’m glad I could help. Honestly I used to be terrified of needles and now they don’t phase me at all! It’s something you will get used to I promise :)
yeah luckily got over the dentist stuff the the point I fall asleep sometimes so hope that will happen if I'm diagnosed. All the best to ya@@SallyBoebally
Having diarrhea right now. Worse flare up in a while, feel like I am dying. Asshole is on fire, it's piling up like cat litter and my stomach is in knots, on fire. I'm alternating from sweating to being freezing. I've been so tired all day, I knew this was coming.
It's the feeling of being week and my joints that gets me and then having to go to work 😴
I too have Crohn’s disease I got diagnosed last year I am in waiting for a colonoscopy which I am not looking forward to I used to be a size 16 now I am a size 12 I find stress can be a factor for me so I have taken up adult colouring to combat this I also smoke as well which I find also helps to combat stress it is good to find others like me who have this disease I feel often that people often don’t understand the disease especially those I work with
i was diagnosed june 2018. i was having some issues for a solid 6 months. i kept telling my doctor and she kept saying i was making it up in my head. then suddenly i couldn’t walk or eat or stay awake. i was rushed to hospital and they held me there for 3 days. then i left still no clue what was happening and i developed large welts on my legs. my potassium dropped dangerously low and i nearly died may 24th 2018. i now get infusions every 6-8 weeks :$
I have been living with crowns for over 10 years i have a very small part of my bowel left now and spent 5 months 2 weeks and 3 days
Thanks for sharing and for the info. :)
Mikethamanc thank you for watching :)
Iv had this for 20yrs. And it doesn't get any easier.
Thanks for the vid, my daughter was just diagnosed with Crohn's.
No worries. I hope it helped! :)
@@SallyBoebally 💜
Your dress is lovely!!! Hope you are okay💛
Carlie Faith thank you for watching! The top is Asos from last summer! I love it! ☺️ I’ll be okay hopefully in a couple months 🤷🏼♀️🤞🏼 xx
@@SallyBoebally I am pretty miserable with what I think is chron's. But doctors don't believe me. Story of my life. Can I share my symptoms with you? I know you're not a doctor but someone that has gone through it will have some pointers too.
Struggling with this for the last 17 years and cause of the shit support I had initially it has gotten a lot worse, I go bathroom over 10 times a day. Going back again to do another colonoscopy and sample taken from me. It has tremendously affected my life, I can not go anywhere public without know if there is a toilet open.
You look beautiful. Looking at you, one can not tell you have chrons. God bless you.
I pray there is a breakthrough that helps you.
I have Constant pain in our stomach and the doctor thought I might be lactose intolerant but they said that I have to get test done to see why I have all these problems to me I know that I’m not lactose intolerant I just hope that I do find out what is wrong so I can get better 🙏
So glad to have come across this, and thank you. My 12yo was just diagnosed. What do you all say to those folks who say that CD can be treated or "cured" with diet alone? and yep, we "looooooove" diarrhea!! 😫
I’m glad you found my video too! I hope it was useful. Diet can help with symptoms but I wouldn’t say it can be cured - there is no cure for Crohn’s unfortunately. There are great treatment options though and I think a combination of the right medicines and good lifestyle choices can really work well :) all the best!
My wife had chronic Crohn's flare ups for years, to a point they were going to remove parts her bowel. She was on alsorts of meds including horrible immune suppressants. Sativa Cbd oil/paste and a clean anti-inflammatory diet (low carb, no processed food) changed everything almost overnight. Within a year, she was off all medication and has been ever since. Even her consultant says there's no need for her book anymore further appointments now.
@@DABOXASH thank you! Very helpful to know. I am a fan of CBD and certainly looking into making sure I can decrease inflammatory foods in the diet. Glad your wife is doing well!
Omg the sounds you made of your immune system LMFAO,yup my Graves disease was just like that, autoimmune diseases are so bizzare
I have Crohn's disease also. I am on humira. The sounds you made of the MRI are so accurate I started laughing really hard now my stomach hurts. You forgot tapping and beeping.
Haha sorry about that! I’m glad you enjoyed the video, hope you found it useful :)
@@SallyBoebally wow you're respond quickly! I actually binge watch/listen to these types of videos when I have some free time because every story is so unique
In NSW we get anaesthesia too when having the colonoscopy thank GOD. I’ve had 2 so far.. all I ate for 3 days was always salmon and potatoes without skin..... I feel you. Stay strong
Omg your video, I just finished it now and wow. The most informative video I’ve found so far. Beautiful inside out.
Ma Fl thank you! :) I’m glad you found it useful. Gotta stay positive - that’s the number 1!
You make such a good case, for US!
Clifton Lindsey thank you ☺️
I feel so alone at times. I "look" normal but, I'm in so much misery.
Do you have the electric waves through-out your body, like a cuddle fish?
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Clifton Lindsey I completely understand. I suppose we just need to remember that people are used to people looking a certain way when they’re not feeling well. I just try and educate people on the illness and try explain it. This is the reason I made the video. I hope things get better for you xx
I have Colitis been haveing it for years 😐😔
I was just diagnosed with this today 😞
Sorry I missed your comment! I see you left this comment a year ago! How are you feeling now about your diagnosis? x
Just been diagnosed in July
Was diagnosed with crohn's disease almost two years ago. Sometimes i feel completely normal n sometimes the hard things begin. diarrhoea n tummy gurgling n acidity r d signs i get. But my dctr told me not to worry aa my crohn's is in a initial condition n d basic medication for ibd worked really well. Now I m thinking of using enema kit. What say guys?
I was diagnosed at 2 and now I’m 10
For me i also have partial seizures and high blood pressure...I was diagnosed with Crohn's when I was 20 and was getting symptoms 6 months before my 20th bday. Had it for 14 now. Used to be on Humira and those painful stomach injection for 11 years until I stopped doing it regularly and my antibodies refused the medication. The Dr. Wanted me to take Remicade but I refused as I have venephobia and don't want to take biologics. I haven't been on meds for a year so far and just had a colonoscopy & endoscopy. Everything seemed to be clean and normal. The only thing that scares me is that I had an MRI last December and inflammation showed in my small intestines...2 months ago I took blood work and everything was normal even my inflammation levels. So I'm not sure if I need to take meds as I'm thinking of taking Stelera injections. I definitely do get symptoms depending what I eat and have fatigue almost daily. When I wake up I usually have to be in bed for 2-3hrs until the tiredness goes away. I'd recommend Vitamin D3, Turmeric, Ginger, antioxidants, cucumbers, grapes. Would not recommend Fast foods, or Restaurant foods that serve heavy amounts of grease. Get your organic foods from Farmers Market, or the fields...better to grow your fruits and vegetables if there is space. Go to bed a little bit hungry and consume wine a few times weekly if 21 or depending on your country laws.
I suffer and am so pleased you have the courage to talk about it and every single thing you have said on this video is me ...the only differance is i am a man ...
who are ya who are ya so glad you liked the video and can relate. All the best! :)
@@SallyBoebally yes i can very much
@@SallyBoebally I am Hospital next week yet more tests .
Ohh I’m sorry to hear that, I hope it all goes okay! X
@@SallyBoebally Thank you x
I think I may have it. If I do get diagnosed with this it's probably the end of my life, I already have two serious illnesses and I certainly do not have a positive outlook on life.
Dont take it very seriously.even i m suffering from crohn's disease, allergic rhinitis.my gallbladder has been removed a yr ago.life is also nt good for me. I dnt feel healthy even for a single day. Still i m doing my works,job everything. Dnt he disheartened. Stay happy
Even I am suffering from CD from past 8 years..very frustrated..very few support groups or forums where we CD patients can share information with..
Hello, I would avoid forums as I find them very negative. I think Instagram is the best place to find fellow IBD warriors :)
I am 13 and it took me a year before I figured out I had Crohn’s, you explain this SO MELL 😂😂😂😂, I haven’t been cut open yet “Knock on wood”
Well*
Hii
U look fab 😊
I am also diagnosed with chrons disease and I am very stressed just wanted to know does it gets cured ?
Zaiqa thank you for watching. Sorry I hear you’re having a hard time. There is no cure for Crohn’s disease at the moment, hopefully one day there will be!
I am curious, when people say 'bleeding' what amount of bleeding are you talking about? Spotting when you wipe or obvious rectal bleeding with bowel movements?
Danielle lee for me bleeding is when I get up and the toilet is full of blood. In saying that, when blood hits water it usually looks a lot worse than it is. Also I’m told if it’s bright red that’s normally an indication it’s not serious(unlike black/red tarry stools) :) I don’t get bleeding often at all, normally only once a year or so!
Im now in the hospital and they are scheduling a colonoscopy for monday
Carissa Hendricks sorry to hear that but good luck I hope it all goes well x
My girlfriend has crohns and she was thinking about staying off her infusion and doing it a more natural way. What do you or anyone else think of that idea?
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