Etanercept for Stroke Recovery: Fact or Fiction?
HTML-код
- Опубликовано: 27 авг 2021
- In this episode of I CARE FOR YOUR BRAIN with Dr. Sullivan, board certified neuropsychologist Dr. Karen D. Sulivan discusses the latest research on Etanercept for stroke recovery. Lear more at www.icfyb.com or follow us on Facebook at icareforyourbrain
![Sean Rii, Karyon, Sharzkii - Taungule [My Love] (Official Music Video)](http://i.ytimg.com/vi/eJoMuypbSzQ/mqdefault.jpg)
I must say that as a Nurse who has worked with Post Stroke patients for many years I do know that the Neurological Society has a lot to lose if this injection works ...there is a ton of money to be made for rehabilitation of post stroke patients. Let's do a National study to prove whether or not this drug actually works, and let's do it soon!!!
You are sooo correct! Thanks for speaking out.
So sad that some people think it's great to benefit from others' suffering.
@@hikari8858 well said
@@kelseymathias3881 Yes well thats big Pharma for you . They make no money if you are healthy. They are evil and care nothing for health . only illness .
Indeed
Why not see if this drug works
Seems sensible
Man, if the placebo effect can eradicate 99% of stroke symptoms we need more placebo effect!
This was a great overview of this subject I only recently learned about. But while "placebo effect" is of course always a valid concern, have difficulty understanding how one could "placebo effect" themselves out of the effects of a stroke, especially to the tune of 4 out of 5.
"Placebo effect" is like "instinct" - terms the scientific community uses when they're too embarrassed to say "we don't understand this at all".
Placebo effect is real & it’s proof that our bodies can cure themselves. But it seems to be used as an excuse here.
@@fredziffle5219 No, I don't buy that. Again, it's used as a replacement for "what is going on, we have no idea". It's not some mystical "effect" - it's healing going on that doesn't fit into Western ideas. Just because our doctors have no clue what's happening doesn't mean something ISN'T happening, or that the mind is just "talking itself into" healing. We have way too much of a tendency to leap to magical thinking whenever our limited view of the universe can't cope with whatever's going on.
I don't care if Sugar Water does the trick, I need my Daughter to be able to walk again. Not one mention of any patient being harmed by this injection. At the worst it has no effect so how bad is that? My brother was a high level manager in a hospital for over 30 years. They told him that they wanted to keep all disease chronic but treatable in the United States. They don't want a stroke recovery. That doesn't make money. Keeping everybody sick does.
This invoking of the Dreaded Placebo Effect is like a deus ex machina at the end of a Greek Tragedy, a frankly incredible plot device that doesn't really "solve" the issues raised in the body of the play. When did the placebo effect become a conversation stopper, especially when it is only mentioned, with the right amount of genuflection, as though that's Enough Said. I am not convinced that the Double Blind Study or the medical establishment have stopped a certain, probably large amount of medical predation on us poor peasants in the Great American Unwashed. John Benson, MD Physiologist Gilbert Ling and others have formulated calm, scathing critiques of the soft ugly underbelly of the vaunted Peer Review System.
I just came from Florida and I got the shot and and my limping on my left leg is no longer limping and I walk better than before. I really think that if I get one shot I will be better. This July 7th this year 2022
Good luck! Glad you were able to get the shot.
Thank you so much for letting us all know! Great hearing from someone who has actually gone through the procedure. You are very encouraging!
@@lanfordmims5080 thanks for this. I did it cause I nothing to lose and I'm already like this and I went in faith 🙏
@@debbieescobar6267 thanks for this I went with faith and I believe in power of God
@@SelenaGomaz2011 what did the Dr charge if you don’t mind me asking, also was the total cost for one shot or two?
you aren't going to get placebo effect with a person that cannot walk and is then able to walk right away
How after over 10 years now, has the medical community not seriously looked into this?
bad for business
Dishonesty? Greed?
@@ChristianBang34 Yep. Akin.
fear ..fear for their money , they dont give a sht about the suffering
The love of money is the root of all evil ?💰
This was virtually an informercial for the medical establishment. While Dr. Sullivan concentrated her criticisms on the "bias" of the proponents of the treatment, her entire presentation was completely biased in favor of the orthodox medical view. Her argument that successful outcomes were only a placebo effect is highly unlikely, given that there are thousands of drug trials done for all manner of illnesses every year. If the placebo effect was so strong as to get an 80% success rate in this trial, why doesn't the same effect apply to the countless other trials in which the outcomes are poor? Are not the recipients of those novel medications as eager to get well as the ones in this study? And her skepticism based on the fact the reported outcomes were so dramatic seems rather desperate. If you remove the CAUSE of a patient's symptoms, the symptoms WILL resolve.
Established treatment for diseases is an industry, comprised of medical professionals, drug companies and rehabilitation centers. There is a whole lot to lose if suddenly what you do to help is seen as not working nearly as well as something new. The fear of damage to one's business and prestige can make those concerned VERY resistant to a revolutionary treatment that might threaten those interests. Dr. Sullivan kept saying that we need better trials. Fine. Then get going and see to it there ARE better trials. Otherwise, it's just excuse-making.
Everything in I'd risk and all medicine that we take have risk to why not to take a risk in this shot, I did it and walking better and before and after it I'm taking therapy to get much better improved
I wonder how is Linda Lumbra doing in 2022? She received treatment for her stroke in 2014.
@@SelenaGomaz2011 best wishes!
After vaccines scam science all scientists should just shut up . The general scientific community has no credibility anymore
If it is that effective the FDA would approve it or at least request the drug company do the proper trials. If it truly has promise, this could make billions of dollars and someone would invest the resources. It's been more than a decade since these miracles happened
This would not be the first time that a drug that was created for one illness was found to be more effective for another. I do understand your skepticism, but I've seen the videos and find it hard to believe that they were faked-
But you don’t see the ones that don’t work.
@@ericrupert2687 the doctor who performance this treatment said it clearly : 1 in 5 have some type of improvement
@@giovannamoro8564 where did you see that? It was my understanding that 85% of people treated had “some” improvement. I don’t remember where I got that idea though.
@@ericrupert2687 in the " 60 minutes documentary".
In 60 minutes he said 1/5 DONT have response, which means 80% DO!
I know someone who had this treatment and recovered very well after 2 years of stroke.
This lecture popped up next after a 60 Minutes report on the FL MD treating stroke patients. I would recommend if you haven't seen it please watch it. Placebo effect? When a woman couldnt speak functionally and mobilize as well gets the injection and had immediate results which shocked but overjoyed her family. She is back to her prestroke self. Idk as someone with a strong family stroke history and a RN I am thrilled to have stumbled upon that 60 min show just in case. I also know that most mainstream medicine doesn't believe in anything but allopathic treatment. If homeopathy works again it's placebo effect. Well I'm sure my limping sweet Sheltie had no knowledge of what I was giving him the day I put a homeopathic remedy under his tongue only to find him no longer limping upon my return home. Rimidyl nor aspirin had stopped his pain or limp. Aamof I adopted him because of his limp from ASPCA because no one would.
I get research and their doubleblind studies but if I'm critically ill I want the real deal not a sugar pill.😳
I saw the 60 min video as well. The saddest part of all of this is that the "powers that be" wouldn't allow this study unless able to bury ut; profit is far too important to them. The frustration and pain countless have been and go through is unimaginable, but I'm grateful for those who (especially nurses and animal rescuers) give of themselvesfor others.....thank you!!!!
I hope you fur baby is doing better; you're both in my prayers....
How do you know she is back to her pre-stroke self? Tia
Agree 100%
@@gzman1 SHE and her daughters claim THAT. Se subsequent family interviews.
@@davidresley1848 There are over 120 videos on his website.
Thank you for the informative and well presented research and opinion. 22 month out from massive hemmorrhagic stroke in June of '21. I gotsooo lucky considering the scope/size! Am I, who lost my job and now live with hemiparesis, willing to prisk $5k on an 80% chance I might be able to go back to work and use my shop again? I sure am.
Did you get injected with entarcept? How did it go?
AS MUCH AS I WOULD HAVE LIKED TO AVOID THIS MISERY. I HAD A STOKE. LOST. SO DAMN MUCH. IF THIS THING WORS I WILL WALK TO FLORIDA
Senior stroke victims don't have 10-20 years for youall to decide whether approved or not. If it brought the quality of life back to the way it was even for just a few years, I say YES! Unless there is something better for stroke patients. It is a drug that has been approved, so I would take it ...if I was a stroke patient.
Terrible thing to say to people that are hurting and in a lot of pain from strokes. If this is their last option, you make them lose hope and to talk about money...what a shame.
I agree.. my son is going for this treatment and with no other options and Dr's that all either want to prescribe tons of meds to only see thier love ones like a zombie /drugged day in and day out ... this Dr would probably consider this stroke treatment if she were in many of our situation.. smh..
@@RICKDLF1 My doctors have said there is nothing they can do. They have given me pain meds but they don’t work. What else can be done other than take a chance of this working or suffer the rest of my life without knowing this may have helped or not? I’ll take the chance and get the treatment.
@@RICKDLF1 please post your results from this treatment I want to give it a try, but my wife thinks it’s a sham dueto the drs shady history so I get no support to go. I live in Houston which has great medical hospitals and neurologist plus top medical schools. My question is why haven’ they done a good clinical trial here or any US school or hospital!? Probably because big pharma
would dry up their funds.
I would really like to hear from those who have had this treatment and has it still been effective years after the treatment. So TSRremodeling please share your results ASAP. I had a hemorrhagic stroke(also known as a brain bleed). I’ve been toTIRR twice without any great results and was released because I wasn’t improving fast or good enough to continue. I’ve now gone from being handicapped to almost being an invalid. If this treatment would give me just 10% improvement I’d be thrilled ! I will continue to pray every day till I hear back from you. God bless and I hope you get fantastic results
@@RICKDLF1 just checking to see if you have been to Florida for the perispinal injection and how did everything go? Looking forward to your reply.
I'm a thalamic stroke survivor and someone who has had the etanercept shot. My pain did come back but it did work. It was like taking meds with no side effects. They were up front with me and said some people get the pain back again. Nothing in life is 100% but you never know unless you try.
This treatment has been in the medical domain for 15 years and has gone through the VERY type of clinical trials mentioned here .AND there have been THREE PHASES of the clinical trials with several articles validating the perispinal injection of etanercept treatment efficacy AND STILL the "Good Ol' Boys" network at the AAN , fearing a reduction in THEIR "stroke treatment" billings CONTINUES to withhold their acceptance and endorsement of this TREATMENT over their use of expensive "rehabilitation programs".
Not to mention they’ve started a study in Australia so the people don’t have to travel to the states. He trained the physicians so the study could begin. How is t there moving faster toward approval when study showed over 90% helping to some degree. I’m in the medical field and trust me it is most definitely about money! See what they’ve done toward cancer and Dr Burzynski. Tried to lock the man up then stole his invention. What if there was this type of treatment for dialysis? Can you imagine all the money that would be lost if one or two shots restored function? They’d find someone just like this to repress it just as they did with high dose iv vitamin c for COVID. Do studies using a mere fraction of the strength that works and conclude it doesn’t work and more studies need to be done. Luckily a colleague of mine is director of a major hospital in Florida and when they utilized this protocol no deaths, fewer patients on ventilators and shorter stays in hospital. It’s very sad to have medical professionals push this maritime for big pharma. She is on the wrong side of history
Where can I get info of the clinical trials?
When we allow drug companies do their own tests and publish their own results without having a 3rd party repeat the tests, you think the claims made by drug companies about the effectiveness of their drugs are not biased?
Last time I checked it was $8000 for 1 shot. Not doable for most stroke survivors who have limited financial resources because they are disabled. They could make it more affordable but they choose to money grab instead. If they really wanted to help people, they would make it more accessible to thosd who really need it. I would like to get it but simply can't afford the pricetag. If it was something I developed and I truely cared about peoples suffering, I would make it a nonprofit and get to as many people as I could.
Nonprofit? In a perfect world, certainly, but ours is a fallen world. Consider this, for the past 28-months, hospitals have been reimbursed, by the federal government, to administer Remdesivir to hospitalized COVID-19 patients at a cost of $2,340 for a five day treatment, a drug whose proponents never claimed it saved any lives, a drug that must be monitored for liver and kidney damage according to the FDA. So the obvious question to ask in all of these situations is, cui bono?
In this video, she claimed it was very expensive to produce. I’m with you, though. It’s all about money.
I have watched the videos of this drug being administered to stroke patients and its incredibly positive effects on their ability to walk and to talk again, and I really do not believe that this has anything to do with a placebo effect. With regard to the financing, I have two comments 1) the cost of the injection itself can often be covered at least in part by donations 2) the cost of the journey for people having to travel to the US from Europe or Australia or elsewhere is prohibitive, and I am therefore asking myself why there are no franchised clinics in Europe, Australia etc ??? Comments welcome !!!
Well they only do 1 treatment a day.
They did create a nonprofit because of the number of people helped. Sadly It’s in Austrailia and they’re trying to create one in New Zealand and Austria. Now why can’t we? The US only generates 25% of the World’s gdp annually. We have some of the best medical care on the planet but access to that care is null. At the very least this should be available to any and all veterans.
As some from a family of health professionals, a pharma scientist who works in drug discovery and other facets of care value chain, I understand your points. But as someone whose father also a health practioner has had stroke for years now, I really want to try this treatment on him.
On a side note, if the placebo effect is so profound and can help get results in difficult cases then it should be accepted and used from a scientific point of view
The fact that THEY so desperately want you to believe it doesn't work leads me to believe it does.
As a 1990 TBI survivor, in 2000 I was in a trial for the use of Donepezil (Aricept) for brain injury. The benefits happened immediately. The same was true with Vioxx (cox 2 inhibitor). It was hours within my starting that I felt a marked improvement. After 20 years, I developed unbearable muscle spasms with the Aricept, and had to quit. Vioxx was rushed off the marked after a few people overdosed on it. I loath the phama companies and the doktors who push their wares. We are a society where the doktors and drug makers are not held responsible for their monstrous behavior. It's all about profit, not our health.
Vioxx was killing people with heart attacks
Does anyone know if there is another clinical trial of perispinal entanercept going to take place I’m aware of the 1st taking place at Griffith University in Australia, I have been hoping one would soon take place in the USA.
@@ericrupert2687 I took vioxx for years. YOURS is a generalization and MOSTLY inaccurate.
Does anyone knows where we can has this injection other than USA because visa is not easy to get.
For anyone who is interested, there are a bunch of updates on patients who had this treatment here on RUclips. Look up “Institute of Neurological Recovery”.
Is that the practice of Dr Tobanic?
@@nicolaxoxo1 yes. I am sure they are complete unbiased.
Has she talked to a solitary person who has actually had success with this drug? My friend had a horrible debilitating stroke many years ago. Now recently had great and immediate success with this drug.
Can you tell me more? I am researching for a friend.
More n more the world realize how evil n greedy the medical business have been
Are you talking about the covid vaccines "SCIENCE"? Or the " depression caused by chemical imbalance "SCIENCE" ? AND MANY MANY MORE !
@@giovannamoro8564 Vaccines work. 250,000 anti vax Republicans have died so far.
@@happyliving1922 let me rephrase that for you , 250,000 very ill persons died . Covid doesn't kill healthy people .
@@giovannamoro8564 They would have lived with the vaccine.
@@happyliving1922 can you prove it?
I would definitely do this drug if I had a stroke.
A couple of points I’d like to clear up 1) my understanding of the peri spinal approach to delivering Etanercept into the Cerebral spinal space does not involve injecting the medication into the spinal column, but instead injecting into the external venous plexus which drains into the cerebral spinal space. The injection is much safer and relatively simple. Am I correct on this understanding? 2) I think it is inappropriate to dismiss observational results, for most of human history it has been just this approach that has led to wonderful advances in health care. No approach is trouble free and hundreds of meds approved through so called well designed clinical trials have approved meds that harmful or useless. If there is hope for this treatment for stroke symptoms, the US medical system needs to get busy.
You are correct
Correct - it isn’t injected into the spinal fluid.
I've now witnessed 4 different Stroke victims that received immediate results from this injection 💉 Not only could they walk unassisted...their speech returned at varying degrees!! Watching their expressions of total excitement return was magical ✨ This may not work for everyone who has had a stroke BUT ....even if it helped JUST one is a true BLESSING 🙌 🙏 The sad reality is that pharma along with medical Doctors that have a huge investment in physio and post stroke programs which make up alot of extra income will STOP this wonder drug to continue simply because of GREED
Correct. There is far more money in treating/managing a condition than in curing it. If I was unlucky enough to suffer a stroke I would be on a plane to the Florida clinic in a heartbeat.
Thank you for your affirmations here. I am scheduled for a treatment in less than 3 weeks. I am SO hopeful it will work for me.
@@amym4999 let us know Amy, my step mother had a stroke and is looking into this
@@gzman1 had my first treatment Monday. Almost instantaneously felt less pins and needles and pain. The side effects are not completely gone, but lessened. I have to remind myself this is a “treatment” and not an instant cure. Needs a little time. I can see why a second dose would be better - that is scheduled for next week. Stay tuned!
Feel VERY fortunate and grateful to live close and get this procedure done.
Hope more people can experience relief.
@@amym4999 please let us know how your treatment worked! God Bless you
Did you have any positive results at all ?
While Im all about we are all entitled to an opinion... what else is the option? My husband had a stroke 2 years ago... and is in constant pain, spasms, difficult speech and just trying to walk is a major issue. Its painful to watch,,,, and even harder on him. So if there is ANY hope of this working.. im in, as long as we can figure out cost.
Results speak for themselves!
Yes, not everyone gets results ... not even a tingle.
Yes they do. I'm going to Florida as soon as I get some money. Akin.
I called yesterday. It's $8500 for the treatment in Florida. Plus travel expenses.
Yeah, that's the drawback. However, given my stroke, I'll go to Florida just as soon as I get the money💵💵💵💵💵👍🏼👍🏼👍🏼👍🏼👍🏼!!!!! Akin.
I love your cadence and enthusiasm but I have to mention that I was concerned with a intimation that ' we didn't have much, we even desperately used a cancer drug to help with the symptoms of arthritis...' More often than one would think, some drugs designed and focused to be used for a specific aliment actually can and do work for other situations. And because the WHO lists 5 conditions it is confident a drug can help with, we shouldn't close the mind to understand how the body works with those drugs and that the drug can have other uses. Thinking this simplistically would lead to a computer prescribing medications.
"American Neurological Society did a "big old literature search" (literature review)" -What - of course a lit review is sloppy research - And yet they want to P-R-O-V-E the results - if the science community wants to check into it, then do it. So if there is concern and there seems to be observations that need to be investigated, then, investigate.
I really like your channel but this could have been summed up in three minutes... "This drug is not scientifically proven for strokes but seems to have overwhelming and hence suspicious positive results when used for stroke 'cures'."
I was confused about the last part of the show: If you or a loved one suffered a stroke or other brain injury, would you try this as part of a search for improvement? - Of course we would have to consider the other situations like infection etc.
When someone can present something so cold as this lady, is sure that she never had a close family, friend fighting with all these stroke challenges.And how caregivers suffer seeing their husband/wife in these conditions.
Dr. Sullivan, I just found your channel and thanks for your review. I get that more proper studies need to be done. Why are we not doing it? I think this is significant. It will enhance rehabilitation and recovery for survivors. Since it’s off label use, you wouldn’t have a family member try it if they are in the same situation as stroke survivors?
I saw his video from 7 years ago. But they gave no info. I'm so excited to hear more about this!
I was on Enbrel/Etanercept for 22 years. When I started on it in 1999 for RA, I had a dramatic improvement within 45 minutes and was able to run up and down stairs, alternating feet, within 3 hours, something I was unable to do for a couple years. Call it placebo effect, call it whatever.. it worked and worked well for many years (I had been on methotrexate and hydroxychloroquine with no improvement). At age 26, I was getting close to a wheelchair. It was a miracle drug, and I only stopped it about 6 months ago, when it was no longer effective enough. I 100% believe it can work extremely quickly, but I also don’t think that’s a typical response.
Now what is your condition?
Are you Okay or Same condition before Taking Etanercept?
Yes care to share..
Same here, but I would say dramatic improvement of my AS within a few days of my first shot. Changed my life after 20 of excruciating pain. Still pain free now. I also started on Enbrel in 1998.
YOU probably, as I did , took YOUR Enbrel orally. THIS is a VERY DIFFERENT administration of the drug which circumvents the BLOOD BRAIN Barrier and counteracts the detrimental effects of TUMOR NECROSIS FACTOR IMMEDIATELY triggering the reversal of stroke damaged brain cells.
@@davidresley1848 Enbrel is not an oral medication.
Doc, can the scientific community pursue more clinical trials? The state? Academe? Humanity needs more pursuing this direction, if it is what will bring this alleged cure into the mainstream and be accessible to both rich, middle class, financially challenged.
We live in a world with huge industrial interests. The medical industry is one of those gargantuan interests. To research and do clinical trials with double blind studies to find out that this drug actually works would be to destroy the very industrial complex that is doing the investigation. Why would any industry, any company, any wealthy complex choose to destroy itself when it makes so much money in the first place? If we had socialized medicine (where the peoples’ interests were in fact a priority,) where money was not the bottom line, and doctors weren’t multimillionaires, we would know very quickly whether or not this drug is in fact efficacious.
I wonder if it’s available in Cuba. Even considering its faults, Cuba has a fantastic medical and med research system. I haven’t looked into it, but medical tourism, and certainly for this drug and procedure, would certainly be a boost to their economy.
Please stop knocking this treatment . It works. The cost is small for the relief it gives. Just the pain subsidence and the lessening of fatigue the improvement of eyesight. All things that most people don't realise how much impact these have on your life after stroke. Big pharma don't want this treatment to come out. The industry makes billions on stroke treatments
Thank god this doctor won't sell out but continues to help patients. Don't downplay the trials at Griffiths University in Australia. They are experiencing wonderful results and unlike USA we will have treatment paid for by the government.
Thank God I live in Australia but some of my stroke friends have gone to USA and say it was definitely worth it.
Trust me, I know this drug is a miracle. Akin.
@ 01:58 (see it) the drug was patented 1989 - then at 22:45 (watch it) that point is muted one because that Doctor in Florida didn’t invent a new drug he only showed the world a new use and way of existing drug. The pharmaceutical company that holds the patent (if any) are making their money regardless 05:41 since it is almost impossible for generic drug manufacturers won’t even try to manufacture it. With that in, the Dr’’ treatment is one time shot and not a monthly treatment. The pharmaceuticals make money if the procedure was monthly procedure, and not one and done. The stroke care is huge industry and I think the pharmaceutical companies aren’t happy with that Florida Doctor. With his new method of Stroke Recovery treatment, he might be taking too much business away from them. Just saying!
Great review! I have nephew with a spinal stroke, RA/infection that lead to his spinal stroke. He’s a child. I’m hoping new treatments arrive. I work as a nurse and strokes are nightmares.
After how many vaccines did this stroke happen ? young children do not have strokes they are brought on by vaccines.
My mom had a stroke and was not recovering enough to be able to speak clearly or walk. I suggested to my sister, who is a multi millionaire, to do this treatment. One out of five chance for recovery compared to 0% is pretty good odds. My sister did not respond and my mom lived a pitiful year and one half before she died....demoralized. i just told my son, who is a Dr., that I would choose to take the one in five chance compared to 0% chance.....placebo or not! I do not care how the cure happens.....I would rather take the chance than live in a prolonged prison of misery until my death. Whether it is "proven" by medical standards or not. Logic tells me this more than $$$$$ motivated, and funded studies. Dr. I strongly disagree with your logic, and if it were you or someone you loved, would choose to rot away or let your loved on rot away when there are no medical cures and be "RIGHT" or would you take any chance or hope for recovery, .....placebo or not?
Agree. I am NOT a multimillionaire, but if my father wants the treatment, I will gladly pay for him to try. I can't take money with me.
So sorry for your loss and I agree completely with getting the shot. A small chance at recovery is better than no chance at all. Living this way is not living!
Very, very well said
It's a stated 4 out of 5 chance of positive treatment, not 1 out of 5!
Placebo effect or not, what other drug or treatment has an 80% success rate?
Exactly. Also, I don't believe for one second this is a "placebo effect". Akin.
My issue with this whole thing is, a possible treatment is tantalizingly close yet out of reach for several years to decades! Why not put together legitimate trials? The very folks that have the ability(especially the funding…)to legitimately test and verify expansive use beyond the drug’s original purpose must need to have some skin in the game to care.
Maybe with the new law allowing compassionate use they can try this medicine for strokes.
If I could have significant improvement of my deficits poststroke or lose all that time locked in a study where I didn't get the treatment it's a no brainer for me. I only want the real medicine and enjoy my life.
more than likely they want years of study so they can increase the cost of the drug even though drug is already out there they just want to use it for something completely different use
Watch the Berzenski movies and see why the Big Pharma Corporations suppress effective cancer cures. They want to preserve a $300 Billion Oncology business.
I have found several small studies from 2021 that disagree with this assessment.
Yes let’s spend 10 years doing more trials 🙈🙈
EXACTLY.
Perispinal Etanercept is extremely good for post stroke patients. The only concern is the cost. Why the cost gotta be so high🤔🤔🤔🤔🤔????? I had a hemorrhagic stroke August 27, 2022 Saturday. Even though I've made some recoveries, since December of last year, I still don't have full arm movement in my right arm and hand, and my right foot shows dropped foot. Perispinal Etanercept can easily help me, but I have no money to cover the cost. Had the money, I'll go to Florida immediately!!!!! Akin.
It does work.
Even controlling inflammation in your body that’s off the chart is a plus. Inflammation can cause a host of other ailments.
@@amym4999 I know it most definitely work for stroke recovery. I just hate the price got to be so high..... Akin.
That’s why they call all these drug companies big pharma. They only care about getting richer. It should not cost so much. They rather keep people on disability so we depend on the government. Our crooked government
You are not going to get a hospital in the US that has rehab units to do a double blind placebo controlled trials if it came out with positive results their rehab units would lose thousands of dollars every month! Employees would have to be let go! It’s all about the $$$$ !
I appreciate your view on this message . I am very interested in this medication. I have to be patient and wait for more research on this medication. Thanks for sharing your thought on it.🙏
I have had a stroke and just heard about the treatment in Florida ,thank you for asking the same questions I have, and giving your opinions . Thank you very much.
"He CLAIMS he can get it into the brain by injecting it into the spine." She's a neurologist, what the heck! If you inject it into the cerebral spinal fluid it crosses the blood brain barrier. Key words here being spinal fluid (not blood) and cerebral, the brain. She knows this. Who does she work for?
Only certain sized proteins can cross?? Wondering
I didn't like that innuendo either. If there is a reason to doubt that the drug enters the brain, she should explain why.
He doesn’t inject into the spine or the cerebral spinal fluid.
It’s a perispinal injection technique. I have researched this for over 5 years after seeing the 60 minutes report. They cleared my daughters dad for this but sadly his family think it’s a gimmick and would not help me when I came up with half the money and forwarded the paperwork to them. Look at trials at Griffith University in Australia. How the heck are they moving faster for their citizens and a doctor here invented and trined them to do the procedure? All participants had some degree of effectiveness. Many with TBI injuries and a mother of a son with such injury was pivotal in using her life savings to get the trial approved by starting g a non profit to help others. That’s not just a placebo affect. It doesn’t return all to 100% pre-stroke but even being pain free or having some degree of independence is worth it for many. I’m sorry to hear about the person that wasn’t helped. It’s unfortunate and would make me a non believer as well had I not poured over the actual medical information on nih.
@@ericrupert2687 he does you nitwit
I don’t understand the medical fields reluctance to immediately do tests. All you have to do is interview the hundreds of ppl Tobinick has already treated. If I had a stroke I’d be going to see him.
A proper study has to show a ton of things, such as: effectiveness, side effects, "may cause"..., warnings, ... plus age range groups for each one of these must be tested. Then, another age & sex duplicate group will get the placebo.
As much data must be gathered from the results as possible because unfortunately, we live in a very litigious society.
me too
Stroke survivor thanks you forthis video!
LOL, yet another instance of a term being used in place of "we don't understand what's going on". This time it's "placebo effect", something scientists can't explain, can't pinpoint, and yet insist exists simply because they don't want to accept that things could be more complicated than they want to admit. Always use skepticism when confronted with these buzzwords, folks.
It's actually 8500 for the first shot plus a 1000 consultation fee. I'm from the Caribbean and stroke is a death sentence in my country of Trinidad.
That is insanely expensive.
@@Mila_Brearey yup
You know for stroke patients, you are not going to give him a sugar pill and say it is Etanercept, knowing that for stroke patient, placebo effect really is non-existent.
And when you're done tearing up Dr.Tobanic, tell us WHY the FDA took N_AcytlCysteine (NAC) off of the vitamin shelf.
PS..I've got 3 awesome bottles!
NAC what does this do?
@@garywalling4341 google
Top 9 Benefits of NAC (N-Acetyl Cysteine)
Yeah , you're right ! It happened during pandemic 's lockdowns , it went unnoticed
@@giovannamoro8564 some of us did notice.
I suffered a right Thalamic stroke 5/26/2021. I have been in Severe Central Post Stroke Pain. 24/7.
I am more than willing to have this treatment. I have to be almost unconscious to not be in agony. All the Medications do is mess with my other bodily functions. I am very interested in this treatment. If I am able to have it I will be glad to review it for you!!!
Did u get a chance to do the tx yet?
@@nataliepapolis July 11 is my appt.
@@nataliepapolis I don't know how I will survive Florida in July as I have a very narrow tolerable temp range. Stroke seems to have messed up my thermostat too.😁
Did the treatment work for you?
Who cares as long as the victim is cured
I'm watching this March 17, 2023. Since the recording of this video has there been any feedback from patients who have received this therapy? I am a 62 yo man who had a stroke in June 2019, and I am seriously considering this in the coming months.
Mark, have you tried it yet?
@@hombreisla Not yet. I've been trying to work out the logistics. But I am anxious. I will definitely post a review.
@@markbrezzell2923 Did you take it any further?
Dr. Sullivan , If you had a stroke, would you try?? You have the money to do!
We all know that FDA has our best interest in mind. I’m glad they make sure all drugs are 100% safe and effective before allowing anyone to take them…oh wait.
Yeah, you had to catch yourself to make sure you're not lying. Akin.
FDA doesn’t have the patients best interest
It has the best interest for the pharmaceutical companies
I have aphasia and I will go to Boca Raton, Florida for INR from moyamoya disease. I will go in two months on October 21, 2022.
I am going 10/3!!!
I have a drop foot and I can’t use my hands anymore. After the shot., I move my shoulders and arms freely. Before the shot, I had pain in my shoulders and arms. After the shot, I had speech problems in a third grade level. Before the shot I had speech problems and a first grade level.
@@davidkim7350 did you have just one treatment? Are you scheduled for another? What I saw was a continued improvement after the second shot (now two weeks).
Lingering things are still there - some numbness and pain, but it’s greatly lessened in intensity after treatment. Second shot helped more. Just trying to identify the changes - but so hard to notice them all because they are so subtle. But I do notice them.
I will get my second shot November 10.
@@davidkim7350 how is your improvement after second shot
Are there any studies on this application for strokes or alzheimers disease? I find it hard to believe that over 700 patients have a need for this drug to succeed to fake these results.
DR. ED TOBINIK’S METHOD IS NO FAKE MEDICINE! IT ISN’T A HOAX,
AND ON THE CONTRARY!!!
THE AUSTRALIAN GOVERNMENT DID A ROBUST AND VIGOROUS TESTING AND THEY APPROVED USING DR. TOBINIK’S LIKE OUR FDA OVER HERE;
ONLY IN AMERICA, THE AMERICAN INSTITUTE OF NEUROLOGY DOCTORS CLAIMED DR. TOBINIK IS SELLING SNAKE OIL, IN HIS ATTEMPT TO DEFRAUD PATIENTS WHY???
MONEY!!! MONEY!!! MONEY!! THE ROOT OF ALL EVIL🤣🤣🤣
FROM THE AMERICAN ASSOCIATION OF NEUROLOGICAL SCIENCES, PERSPECTIVE,
THE MILLIONS OF DOLLARS RECEIVED BY THEM FOR STROKE RESEARCH WOULD CEASE, AND THEIR YEARLY PAYMENTS RECEIVED WOULD DWINDLE AND DRY UP!!!
SO, THEIR POSITION IS THE STROKE PATIENTS AND THOSE AFFLICTED BY IT MUST GO TO HELL; IN OTHER WORDS, THEY CARED LESS!
ARE THESE DOCTORS WHO HAVE TAKEN AN OATH TO HELP HUMANITY, OR A BUNCH OF DEMONS IN EHITE SUITS PRETENDING TO BE DOCTORS AND PHYSICIANS?😀😀😀
THEY ARE IN IT, JUST FOR THE MONEY, AND DON’T CARE A RAT’S ASS RE:THE PLIGHT AND WELLBEING OF STROKE AFFLICTED PERSONS!
WHY ELSEE WOULD THEY NOT CHOOSE TO INVESTIGATE, CONDUCT A THOROUGH RESEARCH, VISIT BOCA RATON, FLORIDA AT DR ED TOBINIK’S MEDICAL PRACTICE, SCRUTINIZE EVERY BIT OF PATIENT DATA, RUN TESTS AND MAKE PROPER DETERMINATION BY TALKING TO SOME OF THE TREATED PATIENTS LIKE THEIR AUSTRALIAN COUNTERPARTS DID???
THE LURE OF $$MILLIONS POURING IN ANNUALLY FROM DONORS AND THE GOVERNMENT FOR STROKE RESEARCH IS TOO OVER-POWERING
AND TANTALIZING!
THUS THEY ARBITRARILY DISMISSED IT AS FAKE MEDICINE AND AMPLE TREATMENT… THE BREAKTHROUGH IS TOO GOOD TO BE TRUE, BUT IT WORKS!!!
MAY GOD HAVE MERCY ON THESE WAYWARD DOCTORS GRASPING FOR MONEY, AND DENYING STROKE PATIENTS A CURE.
AS OF THIS WRITING, NO INSURANCE IS ACCEPTED BY DR TOBINIK’S CLINIC.
THE COST IS $6,000 PER PATIENT!!!
THE MATTER IS BEFORE CONGRESS AND HOPEFULLY THEY’LL ACT ACCORDINGLY AS AUSTRALIA HAS DONE, AND FIND A WAY TO MAKE DR. TOBINIK’S BREAKTHROUGH FOR STROKE TREATMENT AFFORDABLE FOR ALL AMERICAN STROKE AFFLICTED PATIENTS!!!
RESPECTFULLY…
Dr, It takes many people to take care of stroke people, the cost is high. If I had a stroke I would try!!!
Delay,delay,delay . If YOU had a stroke would you not be willing to do almost anything to get better ? Let whomever wants to try it, try it. I got spinal injections for pain even after surgery. Didn't work . I didn't get My money back! So what's the difference ?
Placebo effect doesn’t work on aphasia, mobility deficit or chronic pain.
Nope. Sure doesn't. Akin.
Healthcare is primarily profit-care. Drug & pharma companies, pharmacies, hospitals, research houses, scientists and scholars, doctors, medical universities are all part of an interconnected profit oriented value chain of industries that runs on exploitation of knowledge, suffering, hope, greed in the name of cure, treatment, therapy, medical attention, operation etc. They do save lives, work hard to improve quality of life, but definitely for a price tag whilst safeguarding their own interests at all times!
PS: Loved the comment section really where logic, rational and sense prevailed!
if people have been effected for say 3 years or so and they made a full recovery or almost recovery how can it be a placebo effect....
That's the same question I asked. I've come to the conclusion this is not placebo. Akin.
It does no good to compare patients' response to such a drug, due to their unique conditions; hence using the recorded behavior of the patient prior to the injection and post; certainly is legitimate science. Using a blind on the same patient is absurd so this is a situation where the average rate of recovery can only be judged with enough patients, and if it's harmless, it would be worth it to sponsor such a trial. Get a grant. Or you could just LEAVE THEM ALONE AND SEE HOW THEY DO. There is a desperate community of competition among those in the field of new medicine, where all the big money is. Exclusive games are played, and in Costa Rica at least a good deal of misogyny exists in all medical fields.
thank you Dr. I am a stroke patient (2 years ago) cosidering the treatment. Your video was very useful to me.
Intanacept is only $42.50 for 25 ml here in Australia and has been approved here for years and used for arthritis and other auto immune disease . Why is it so expensive in USA.
Shamefull that this is the way of modern medicine. Karma is a bitch wait and see greedy doctors
Seems it might be less expensive to fly to Oz to get the shot....just a thought.
Because pharmaceutical companies buy our politicians to vote for higher costs.
But will the tablet pass the brain blood barrier?
@@moonshinemagic1771 yes
Thank you for posting and sharing!
How is Linda Lumbra doing in 2022? She received treatment for her stroke in 2014.
I couldn’t find her, but if you look up “Institute of Neurological Recovery”, you can find many updates on other patients.
@@jackieruiz3645 Thank you
@@jackieruiz3645 I sent an email to INR last week inquiring about Linda, but haven't received a replay. It occurs to me that because of HIPAA, they might not be able to release any updates. At any rate, I hope she continues to be well and happy.
@@kelseymathias3881 That makes perfect sense. Thanks for trying.
I have family a distant cousin who works in the pharmaceutical industry who is now in his seventies and his wife had a stroke a few years ago and was given a medical miracle drug which prevented her from having any post stroke symptoms such as paralyzation or sluggishness brain fog and she is 100% well why could there not be another drug that would do the same thing
The Alzheimer's trial is probably not relevant since the drug crosses the BBB so poorly. The pain trial is interesting but pain is a very subjective endpoint. The point about the immediate result being non-physiologic is very well made. Etanercept and other immunomodulatory drugs do work that rapidly in other autoimmune disorders. I appreciate your review of this subject. Thank you.
It's funny how the drug reaction is fast in other conditions but it's thought that it can't work this fast in his work.
Many thanks doctor! Cardioembolic CVA survivor here. Interested in anything that would limit the incredible suffering.
Could this help someone with cerebellum Ataxia ?
From my understanding, it will. Akin.
My Niece had this Treatment today in Florida . No Results 😫
$8,500. Later she was invited back for a second after a new payment is made.
$8,500 ! And wanted more! I am so sorry for you!
That’s outrageous! I was thinking of going to Fl. He’s a leach, a blood sucker! No way I’ll go now
Soon he’ll be asking $12,000 a shot! He just lost me as a patient. We need more large clinical trials. The AAN should start a clinical trial or get Medicare do a trial so they can prove it’s true or a scam. With nearly 800,00 strokes in just the US each year If it works, think of all the money Medicare would save from paying for hospital costs and rehab The for the cof a good clinical trial cost theymean you have to remember there are approximately 800,000 strokes each year the money Medicare would save just the first year would probably pay for a good clinical trial!
Assuming the studies on the drug were terrible, that doesn't prove the drug doesn't work. We just need more data. A placebo of a level 7 pain being reduced to a level 5 pain makes sense, but complete stroke recovery has never been documented in placebo tests either.
Logically, we need more tests on extreme placebo effects before using the placebo argument.
These arguments would have been a lot more persuasive to me before I watched the medical industry corrupt the process.over COVID. At this point? I would be very likely to give this a shot if I was not improving otherwise. I no longer tryst the medical establishment over-all.
Thank you.
Thank you for the review, but I do have questions. For one, how many people were enrolled in the double-blind study? I agree that the results seem to be too good to be true and deserve scrutiny. But I don't understand your dismissing the results as being likely placebo, since the very purpose of a double-blind study design is to control for that possibility.
It's a shame that the doctor who has been doing this seems determined to act like such a quack. It appears that he is careless with data and cherry-picking results, when he could easily be publishing an observational study that could be the basis for a larger and more definitive one. Even if the results were 30% instead of 90%, I suspect many stroke patients who have hit a plateau would happily take those odds.
I don't think there are any grand conspiracies here shutting out a promising treatment, but I do wish we had better data, with quantifiable measures and follow-up over the course of months.
This video is now almost a year old. The Queensland study she mentions at Griffith University is accepting (Australian) people for a larger second trial of the drug. I don't know what it would take to extend the trial to other countries, but the results of the first trials were encouraging and I would hope there would be interest in continuing and elaborating on the study. Rather than complain about how poor the data is, why not support getting good data?
I think the doctor knows that the novelty of his treatment is what keeps his business afloat. If he were to do an observational study, and the results proved to be promising, other clinics and hospitals would begin treating stroke patients with entanercept. People would no longer fly to HIS clinic in Florida if the treatment became widely available.
We’ll stated, thank you
@@cumguzzler7445 Imagine if you were a Nuerologist and someone threatened to find a cure for stroke. You would say anything to shut them down!
@@cumguzzler7445 yes, you just always consider financial incentives as bias.
Why don't all these Dr's who are complaining about it do the proper tests to see if this drug is really working. There's too much money to be made on both sides for a proper study not to be done.
Far too much liability involved to guess how he’s injecting the medication. He has trained physicians however and they have made comments on RUclips as to its effectiveness. Yes it is expensive bc it is not covered. Last I called in early 2022 it was $1000 prior to arriving but they did inform me that loved one was a good candidate rather than waste our time. Submitted info post COVID so perhaps this is why we had to upload information instead of going there first.
I feel this was very fair, balanced, and informative. Thank you! After 2 and a half years since this was posted has there been any real scientific studies by the NIH or others you could follow up on for this? I am trying to discover more but not finding much. I hope there are trials on going for a solution that appears this effective and simple. If nothing else just showing that the delivery mechanism gets around the BBB would be well worth the time and money to study it I would think.
Dr. Sullivan how could we get a clinical trial for the perispinal entanercept procedure done in the US ?
Well why dont you organize a clinical trial....what if you are wrong and this drug can help 100s of thousands of people
The Australian study on this sounded positive. If the Australian study isn't considered extensive enough, how much would it cost to run a study that is more extensive? How many people would be considered a good sample in a study?
It depends on what you consider "extensive". You didn't provide the criteria used in the Australian study. The number of people is just a small part of of a long checklist.
Here’s the review of the Australian study, which sounds positive IMHO !
ruclips.net/video/6uuY4REUNAo/видео.htmlsi=RrxZMN3V8ayMmG0b
Go ahead and do the study. See how long it takes. In the meantime, we’re going in for treatment.
Amen. Just as soon as I have the money, I'm going for the treatment. Akin.
How about perispinal etanercept injection and complete pain reduction? Result last for years?? Again it is not true?
I understand the need for randomized double blind studies. What is never clear with miracle cures is why no such studies have been conducted. What do critics give as reason not to conduct the studies?
Probably because small, much less expensive, studies have not been promising is my guess. Clinical trials are very pricey and you usually need to show the sponsor some promising data to get funding.
I quibble. You say scientists would say “this is due to placebo effect.” I believe what scientists would say is “we don’t know what happened based upon this experimental design and these data.” Could be placebo effect, could be drug effect, could be something else entirely.
I listened to the mainstreamers for COVID related advice but the naysayers seem to have had a point; what with all the "inexplicable" deaths and other adverse events.
I think the doctor in Australia is onto something
Is placebo available and how much is it?
My son had great results from this - we had it done in Florida with Dr Tobinick in January and April 2024. The gains have remained as well.
right to try? if standard medical says they can do nothing for you?
Could you please doctor tell me if i can tell a neurologist to give me the injection into the spinal fluid as i am MD my self because to come to USA is visa hustle take time I am stroke survivor is there any extra percussion while we give the injection is there other drug should be mixed with such xylocane ??
Griffin University in Australia is doing the study.
Well do the testing to see if it’s legitimate instead of just talking about it, she can do the studies instead of just talking about testing! At least the Florida doctor is trying to help. What is she doing besides talking about it.
That's exactly what I was thinking too. They 've had more of a decade to research on it .....clowns
Exactly!!!!
@@giovannamoro8564 My point, exactly. Akin.
The person with a stroke , is not working, by the time the clinical trial is over , the stroke person will be broke, or dead, I would try if I had a stroke
DR The Clinical trial is on ! In AU.
What is the base ingredient of this med?
Also, I believe that the type, location and amount of swelling will affect the outcome of this medicine.
It was obvious that the two other patients were not going to be automatically cured because of their overall redness and swollen bodies. Whereas the teacher had no obvious physical swelling or redness. I do believe the doctor is aware of this situation in his patients. Probably why he agreed to be filmed with her.
I do feel that the nurses' reaction was a bit weird.
Probably SERRAPEPTASE!
Which has been used in Japan since the 1960s. Ever notice there's very little alzheimers in Japan???!!
@@8675-__ the Japanese don't normally spray chemicals on lawns nor use chemical fertilizer.
Lots of kelp and other seafood high in zinc, salts,
Did you see the video where a phisician, head of a department of a major hospital , brought his mother in to have the injection? Watch it , it's very interesting.
@@giovannamoro8564 can you post the link who took his mom for the injection...
@@highlanderthegreat i would love to do it but I don't remember which one it is among the many videos i saw . I remember it was from 2 years ago and If i don't mistake the title started with the word phisician .....at the end of the video you can read the infos about this doctor that brought his mother and the results are excellent.
why isn't it covered bi insurance the drug costs $400, it seems greed and brand loyalty ruining the medical business!
March 2016, I had a Heart Attack and a Massive Stroke with Temporary Left Side Paralysis, and I am 95% back, but the Stroke reduced my Peripheral Vision, so I cannot get a driver's license to drive, So the doctor in Florida intrigued me, but I'm a bit apprehensive because don't have $8 grand