It all makes sense now... | Athlete with Coeliac
HTML-код
- Опубликовано: 1 окт 2024
- After years of dealing with various health issues and mystery injuries - Lucy's recent health diagnosis finally made sense of it all... Coeliac disease could be the root cause of all her issues.
More information about coeliac disease:
• Celiac Disease | Clini...
It’s coeliac awareness month! Check your symptoms here:
www.coeliac.or...
Comment below if you are dealing with anything similar and have any tips or advice!
Join our Zwift Club and stay tuned for group rides:
www.zwift.com/...
Be part of the team! We would love to see you out there at races and training in our merch...
shopteamcharle...
Subscribe and turn on notifications to be the first to know when a new video drops!
.................
Produced by: Holly Charles
/ hollycharlesphotography_
Find us on instagram:
/ lucycharles93
/ reecebarclaytri
/ lola_and_pickle
/ hollycharlesphotography_
X:
/ lucyannecharles
/ reece_barclay
TikTok:
/ lucycharlesbarclay
www.lucycharle...
#TeamCharlesBarclay #celiacdisease
All your competitors will be like “great, Lucy is going to be even better now 😂”
Best wishes Lucy, love that you are always so positive 🫶🏻
Fellow Celiac here, diagnosed in 2008. The best advice I can give is to watch the ingredients on seasoning blends. The words 'and other natural flavors' can mean hidden gluten containing ingredients. I found that out the hard way after starting a GF diet and using Lowry's Season Salt on my chicken. You're going to feel much better very, very soon so I'm glad you found the source!
Came here from Natacha's channel! Welcome to the fold. I'm 32 and was diagnosed when I was 1. The level of knowledge around it was very different back then haha. My symptoms are vomiting, the 💩, mouth ulcers, and more, so it was pretty obvious something was wrong. My brother was also diagnosed in his mid-20s. I'm in the UK too and labelling on food is great here. Gluten is pesky and is in a lot of foods you wouldn't expect, but once you get used to checking labels and asking at restaurants, it will get easier. I've come across stuff like packs of rice and lentils with a "may contain gluten" warning. So you've gotta check everything, even if it feels silly. Best of luck!
I have been living with celiac disease my entire life, for 25 years, and have been active in sports, previously playing soccer and now competing in Age Group Triathlon at a very ambitious level. I suffered a stress fracture in my midfoot because I wasn't strictly adhering to my diet for a while. It's crucial to maintain a 100% gluten-free diet, based on my experience. You can bake a lot yourself, but it takes some time to get used to the different flours; it's more challenging than using wheat. I have the "luck" of having had this condition all my life and am so accustomed to it that it doesn't bother me if someone next to me eats pizza, or if we stop at a bakery during a group bike ride and I can't eat anything. Sometimes it's tough, but it is definitely worth it to stick to a 100% gluten-free diet.
My wife and daughter both have Celiac disease. Funny enough my daughter, age 7, and I just watched your “Rise of a Champion”. I was excited to share that you have the same disease as her. I am hoping she sees this as something that is not a hinderance in life.
Firstly, Holly Charles TAKE A BOW! That transition when she was explaining the tests she had done in 2021 to the clip from 2021 was impeccable! I genuinely didn’t even notice, and had to go back to re watch it!😂😂😂 lastly, glad you have got to the bottom of things and wish you all the best for what’s to come 😊
Actual! That was so clean!
Hi Lucy! I also went for many years with those same issues and was finally diagnosed 7 years ago at age 40. It took a lifetime of joint pain, migraines, eczema and other ailments to get here. I finally found a doctor who listened and got me the tests I need. I was a triathlete for many years and as you age you will need to watch things even more. I have grade 3/4 arthritis in all of my lower limb joints and other orthopedic injuries. It is a hallmark of the disease unfortunately. The best advice I can give you is to ask ask ask. Servers at restaurants don’t get it. People in general still try to tell me I can have a little bit. They really don’t hear you when you say “is it gluten free?” It is incredibly hard to avoid gluten while traveling or with language barriers. I always have “safe” snacks because I could not risk a celiac attack leading into a race. Once you are all healed and totally gluten free a celiac attack can really set you back for training. You have an advantage of a team. Nutritionists. Physios. So that will help. But even my shampoo had gluten in it. My face lotion had gluten in it. All slowly poisoning me and I didn’t even realize it. Check everything. Ask questions. And just know it’s a journey. When you are racing do not trust the nutrition provided and as a pro you likely won’t have to worry but as an age grouper I could not have the broth late in my run. I could not eat the commingled snacks provided. I could not eat the power bars they give you. It’s everywhere. Best of luck on your journey. Cheers to finally healing up. Can’t wait to keep watching you WIN! ❤🎉
Celiac can present with a lot of different symptoms ranging from mild to severe, glad she saw her doctor and was formally evaluated/diagnosed. She explains the immune response well
I have a non-celiac gluten intolerance, it could be worse, but it's certainly not easy. I've been off gluten for 12+ years and I feel so much better. I treated giving up some of the foods as a grieving process. There's so much more available in terms of gluten free alternatives now (pastas, breads, pizzas, etc) that it's not as hard as it used to be. For a while, I viewed it as a fun challenge to come up with new recipes and foods to eat, almost as if I was on a cooking show. Most of the shift to gluten free is mental, and with you having so much mental toughness from being an athlete I have no doubt you'll be fine!
A solid diagnosis must be a relief to you.
It’s amazing how you’ve been performing at such excellence all this time. Your mental fortitude must be so strong, but glad you don’t have to suffer unnecessarily now.
My only advice it would be that rice is KING. I’ve never done tests but I always get bloated with pasta and processed bread. So I’ve found myself always relying on rice for the past 7 years and there’s nothing but just gains 🍚👑
Very interesting video. My wife has had similar health problems. Could I ask, is there is a family history of any one with similar symptoms. I have heard that it can be hereditary but going back years I wonder if you have family that have had the symptoms but not diagnosed.
The poster of your achievements in lanzarote Airport needs updating.
Regards
Ian.
Coeliac hybrid training girly here! You’ll feel so much better in a few short months!
A couple of supplemental things that really helped me in the short to medium term was to get an iron infusion done at my local hospital and b12 shots by my local pharmacist. Obviously it’s much harder to absorb those orally when your intestinal lining has been damaged, so it is worth getting it injected whilst you’re still healing your small intestine
Is that possible as a professional athlete? Genuine question?
My wife was diagnosed coeliac when she was 28 after years of issues, and like you say, when she looks back when she was younger the signs were all there too. Thank you for sharing your story, it all helps get awareness out there.
Wow, its so wild you have gone so long without a diagnosis, all while competiting at the top of the field. I'm sorry you are stuck with a crummy diagnosis, but happy you have clarity and a path forward! So excited to see you put the last piece in the puzzle. Let's go 2024!
Great to see you’ve had insight into your health and wellbeing. I was diagnosed 3 years ago and it has taken the past few years to really get balance back with my sensitivities and intolerances. In Australia we have a Coeliac Australia association that has created an app with a detailed list of additives or ingredients you can use as a quick reference when first navigating the shopping aisles. All the best on this next step! I’m excited to see you become resilient and stronger with this new challenge.
Wow thank you for sharing. I just became a triathlete a year ago and I suffered with bloating, tiredness, lower back and hip pains, my menstrual cycle is normal. I thought it was due to myself being a single mom full time job and part time graduate student. I slept at accurate hours. Hmm your video really hits me, I need to check on that w my doctor or/and at least trying to get rid of gluten and see if I feel any better.
Thank you for sharing! Best of luck rest of ur season! I’m a fan! Also congratulations on well deserved Kona World Champions!
Hope you are ok Lucy! I’ve been a coeliac since i was 8 and now 25, the free from food in the Uk is getting so good now! You got this! Take care xx
Do you have any recommendations? Recent celiac as of three months ago!
@@thomassummers249 hi thomas been a coeliac for years i recomend you try schar products and steer clear of the breads they have lots of crap in them like xanthum gum . if you want bread make your own relatively easy using gluten free flour, hope this helps watch out for chips in pubs or when out as they can be coated w breadcrumbs .
My daughter is a huge fan and learns a lot from you, I appreciate the honesty for junior female athletes who look up to you and learn so much. Showing the process and your evolution is very interesting
Hi Lucy! I've been living with celiacs disease for 12 years now. Biggest thing to look out for is all of the foods you wouldn't think gluten would be in such as sauces, soy sauce, soups, sweets..anything that might have thickeners. I'd recommend always reading the labels of pre packaged food and always ask at restaurants if a dish could have anything with wheat in it! It can seem very daunting at first but overtime it just becomes a natural process to read labels and ask :)
just a friendly reminder for off-season - there's gluten free pizza out there and it still tastes like pizza
Lucy, check out hidden sugar alcohols in food. I found out that even the xylitol in toothpaste, mouth wash and gums can be a big problem. Thanks for sharing.
Have had to be GF for 15 years now. Hang in there. It’s really hard at first but it does get easier. For flour, I use a one for one blend so you can just use the same amount as regular flour. Makes baking much easier. I also tend to carry around GF and oat free bars as it’s hard to just stop and get food when you are out. For meals at someone else’s house I also tell them to not do anything special, I can always find something to eat that they made or I just bring my own food and eat it with others. Never want anyone to feel like they ah e to try and figure out my diet restrictions. I just come prepared and let them know just to make whatever they planned to make so it’s not a burden on them. Lots more GF foods now than when I had to start. It does just become so normal once you find your replacement foods. ALWAYS read ingredients though. Gluten is sneaky. Good luck.
There's me thinking that celiac disease has a very, very bad reaction that you can't overlook. It's an ..intolerace, yes, but celiac is serious and you can't just run.. with it
Coeliac is not an intolerance or allergy. It is an autoimmune disease
it’s an autoimmune disease but yes you’re so right you can’t really look past it. i was diagnosed after complaining about bloating and stomach pain and feeling lousy for over 15 years my obgyn was the first doctor that too me seriously and we figured out it was celiacs. crazy how much life changed. I still feel lousy but much better
Although Celiac Disease can be seen as a setback, I'm SO happy that you found the actual problem and can move forward with a solution!! I suffered from multiple digestive disorders and finally removed gluten from my diet seven years ago, seeing a HUGE positive shift in my overall health. Can't wait to see how much more you progress and heal now that you know what to do!! Keep doing what you do, I'm a huge fan!!
It’s cool to see how this diagnosis became a sort of “aha” moment as if this was the last piece of the puzzle. Very glad to see you are approaching this with stride. This should also be a reminder for everyone else watching to pay attention to how your body feels and let your doctor know if something doesn’t seem right.
Hey Lucy, wishing you all the very best for continuing now in this sport as you know what might have limited you a bit in the past :) I don't know about the others but if I can make a content "wish"; I'd love to hear you talking a little bit about training as a women. I think quite a lot of female athletes/ sports persons would love about your tips and tricks here, whether you train with your cycle, whether you prefer to have a natural one or no cycle at all and how you deal with it while racing. Thank you so much for all of your valuable RUclips content and also a massive thank you to Holly, as she is the one taking and editing all your videos. :)
Celiac here you will feel like new person! I got diagnosed at 40 and I recovered so much quicker and felt 100x better. I also haven't had stress fracture since! Takes bit practice w travel with food but I raced all over with mini rice cooker and plug in pan and food shoved in my luggage!
Sorry you have had to deal w this. But, we might just see a whole new Lucy soon!!! That’s exciting!! I don’t have celiac but eating too many processed foods really bugs me & doesn’t make me feel nourished even if I’ve eaten a lot & feel full, so i try to eat whole real foods most of the time :)
I have celiac disease! I was diagnosed in 2017 (22 years old). It took me over a year to get the diagnosis after losing weight, bloating, lethargy, and terrible headaches. In a weird way I was so grateful for the diagnosis because I always knew that there was something a little "off" about how my body was feeling. I am so glad you figured it out, I truly think you will feel better than you ever have in your life. One tip from me: read every label, dont ever assume! Gluten hides in the weirdest places. Love following your journey!
When you went on a diet did you go low carb? Did you cut out all bread and pasta? If so, it's possible you don't have Celiac Disease. Instead you are just gluten sensitive since you body quit making the enzyme to help digest gluten. That's what happened to me. Celiac Disease is an autoimmune disease. That a pretty substantial problem to have.
@@jefflippincott2973 yes I 100% have celiac disease. I was diagnosed by a blood test, and then a subsequent scope. Thanks for your questioning though.
That means per example when you feed during a race with gels they are not working well with your body? I know that with the gropu of your blood some foods can be heavier for your body. But If you know the problems is a good thing. All my best wishes to you. Keep pushing.
Would love to see a day in the life of eating with coeliac to see how you manage it as an athlete, as gluten containing products are often a massive part of an endurance athlete’s diet
Yeah. That probably would make for a good video if it is sound. However, it would probably be better for Lucy to write a book on the subject in order to capitalize (money) on her new little niche she's going to develop.
Fantastic video! So informative and honest. No doubt it'll reach someone who has dealt with similar issues for unknown reasons ❤
Thanks for the update, probably will help others that suffer from the same problems. I'm sure you'l be performing even better than you already did now that you know how to adjust your nutrition. You immune system regulates so much that you all need performing at top level in your races.
"celiac disease" I should watch the video, but to think you became a world champion who was sick is very impressive. I mean to me just completing a triathlon seems like an impossible task and to see you do so well has been impressive. I started following you after I saw one of your recovery videos back when you basically couldn't train because you hurt yourself. I know that is vague given how many times you have now hurt yourself but it seemed to be the first one. I wish you the best in getting yourself feeling better and I would say doing better but being as good as you are might be a big ask. However, I hope you can go out and kick some ass and feel good doing it.
Was Lucy sick, or just handicapped? I'll go with handicapped.
Thanks for the update and sharing with us!
You got this!
Always inspiring.
You will be great! It does sucks, however, its manageable :) My wife has been living with Ceoliec for the last 10 years or so. It is not great, to the point of cross contamination at the restaurants where they cook GF food on the same surfaces or areas, my wife would get super sick:( But with some adjustments it is ok...And, GF products are a bit more expensive but you will be just fine! GOOD LUCK!
The food intolerance test she got a few years back, those are complete nonsense. But since it called for cutting out basically all foods, it probably accidentally hit on avoiding gluten, which looks like it was an actual problem. Hopefully you can feel better and not have to cut out so many foods now!
I deal with a similar set of symptoms also a few neuro symptoms that also can effect my spine. Been wanting to get tested for this for a while. Celiac can cause a lot of issues beyond gut symptoms. Which I didn't realize till more recently. Glad you found a diagnosis. It's and opportunity to feel better
Yep, I personally didnt struggle a lot with my stomach (like I had the shits in the mornings but so does everyone who drinks coffe and is addicted to nicotine I assumed). However I lost a lot of weight in a short time period, felt nausea all the time and brain fog (which I thought was from anxiety). I went in to the dr bc I thought I had psychological issues like depression and anxiety, but luckily my dr caught the signs of celiac disease without me mentioning stomach issues.
Thanks Lucy.
Same here, I've been sensitive to gluten and dairy for a pretty damn long period of time now and it took some time to figure that out.
in my case my body developed a thyroid condition as well (under active thyroid/ hypothyroidism) which obviously affect your life drastically.
I really hope now, lots of brands will start develop dairy free and gluten free food for people like us.
good luck champ. poor women field, you gonna smash them now HAHA
All the best for you, fingers crossed that this diagnosis will help you improving and pays off all the work you are doing.
dealing with this diagnosis already for 7 years now the most important things are: 1. always check the ingredients 2. only eat properly gluten free noted oat as oat can be contamined as well ; 3. eating out can get problematic however just always ask. Chefs can deal with it and can adjust the meal you wish to eat. i.e. meat without breading etc. However cross contamination is a huge topic anyways. Additionally: gluten free meat is normally higher in kalories, so if you have a strict diet related to calories please consider this. HOWEVER I find that gluten free food is normally healthier (i.e. pasta or bread) as they contain rice or quinoa instead of white flour.
But you will figure out and it will make a huge difference! Fingers crossed
Celiac disease is an autoimmune disease. And gluten is one of the main triggers. And you were correct saying that if you have it you almost always are born with it. But there is a similar condition called Gluten Sensitive. The symptoms are similar to those of Celiac Disease. But it is NOT an autoimmune disease. Since you say you have not had terrible symptoms and you have gotten to or are approaching age 30 without a Celiac Disease diagnosis, it doesn't seem like you have Celiac Disease. More than likely you are merely being plagued by Gluten Sensitivity.
There is some enzyme the body produces that is needed so you can pass gluten through your system. If you stop eating gluten for a while the body stops producing that enzyme. Once you don't have the enzyme you are stuck. The enzyme never comes back.
This is similar to the lactose intolerance problem a lot of people have. There is an enzyme the body produces so you can pass lactose through your digestive system. Go without milk for a while and your body might stop producing that enzyme. And it won't come back.
I'm gluten sensitive. I don't have celiac disease. I'm sure happy I'm not lactose intolerant because I eat dairy as a substitute for wheat barley and rye.
Complex carbs are important for your sport so you can try millet ,buck wheat ,rice , sorghum flour in your diet . All these are gluten free and even more nutritious than wheat and barley 😃
If you are going to stick with grains, then I suggest you go with oats.
The thing is: lot of people tend to overlook it and live like “I don’t have that” -> my wife discovered the same here with 36 years and she is living way better now with proper diet ❤❤
It does get easier Lucy, as it becomes 2nd nature. Not sure what you get in the UK, but in Oz, Barilla have a great gluten free Pasta.
I have to admit, I do cook almost all of my meals to stay on top of being gluten intolerant as well as other intolerances. Which means always having a kitchen when traveling.
Watch out for soya sauce it has gluten!! Also watch out for stocks and sauces they can have gluten as fillers. There’s lots out there and you’ll do just fine, it’s just finding your footing in the beginning. There’s a blog that gives really good recipes that make being coeliac a little less depressing at times. It’s called my gluten free guide. I was diagnosed in college and it was super difficult in the beginning. As a kid I’d sprain my wrists and ankles all the time which for sure in hindsight was a sign of inflammation. I haven’t twisted or sprained anything in so long 😄
Thank you for sharing your experience. I also have this problem with gluten, stopping eating foods with gluten also completely changed my mind and body.
Hmmm, wonder how good you would feel if you stop eating life,,,I mean, one could say eating a pizza is bad, and truthfully I think it depends on what you put on it, one could say life is about balance, and I feel if a human eats tons and tons and tons of life, it throws their life balance off,,,like if you want the life God's to care about your life, best to respect life, other day, it rained, and I picked snails off the trail, and like doing tons of squats, great for stretching, and do feel, maybe what you eat, is like the greatest test on earth, and will say if you pass this test, you become, happy and younger everyday:)
Kinda crazy you were able to perform at such an extraordinary level with untreadted celiac disease! Hopefully training and competing will go even better in a couple of months when your indestine has healed ❤
Good to be able to address this for a lifestyle and interetsed to hear that you are going to 'mend' the lower intestine. Have you done any work yet on how this will impact your event nutrition? Assuming this isn't the number 1 priority at the moment, but I'm sure you are working on it
My son has celiac. In the begining the chance was hard but today its completly normal. Nowadays there are a lot of gf options and we developed many yummy recepies
Lucy you're super motivated & careful and im sure you have great medical/nutritional support to help you on your journey x
Try RED BRIDGE BEER as your totally gluten free beer...
Fellow Celiac'er here as well. Diagnosed over 20 years ago myself. Everyone is different, but just be careful of the AG1 (and any of those greens drinks that contain barley grass). They claim to be gluten free and I was fine for a bit while drinking them but I think each batch is not tested the same. I had an awful reaction to it randomly one day after drinking it and never picked it up again.
AG1 has barley in it and they say it’s gluten free. How can it?
Welcome to the club ❤ it’s not always an easy process but I hope you feel better with a diagnosis! The adjustment period definitely takes time so meet yourself with grace. There are so many gluten free options out there! Schar has great gluten free products including bread. For training, honey stinger has certified gluten free waffles, gels, and gummies that have helped me! Thanks for sharing your story - the celiac community is here for you!
I take that as very good news, once you have that clarity this problem will be solved one way or another and it will be a closed door. Just imagine how strong you are being a champion and one of the best triathletes in the world these years alongside this condition, it's like driving a car with the handbrake pulled, it's truly amazing, you are remarkable! I wish you could just be who you already are, but this time without the handbrake, that will be enough.
Go on an API diet, heal your gut. Get some good peptides for intestine repair.
Well to the club. Got diagnosed 8 years ago. You’ll soon get used to it, there plenty of stuff available now.
I am also lactose intolerant and that is quite common if you are Coeliac. I use to have the odd ice cream but always feel rubbish so I don’t bother now unless it’s lactose free.
I use OTE bars on the bike as they are gluten free and pretty tasty. Sometime limited choice of cakes at the cycling cafe stops but there are some good ones about. The Blue Egg cafe near Braintree has a good selection.
Leon is great for picking up lunch when you’re out and about in London.
I keep my diet pretty simple and try to stick unprocessed simple foods with gluten free pasta a couple of times a week but tend to have more rice.
Eating out can be a pain as you have to ask for the special menu. Some places are good but I have been into some big chains that don’t have anything I can eat other than a salad.
Gluten free sandwich’s on the got a pretty rubbish M&S have the best option but have reduced their range since Covid.
One thing now you have cut out gluten although your reaction to eating any might be worse. I used to just get stomach pain and bloating. Now if I accidentally eat some I am physically sick within 3 hours. I think it’s because I have no tolerance to it anymore.
You will feel loads better after a couple of months.
Wish you all the best for this years racing and always happy to give any advice but I’m sure you will get loads.
P.S. you videos have got really good over the past year. Love hearing how you are getting on.
I have it too. You are going to be even stronger and faster now that you have taken it out because of your Celiac. There gluten hidden in so many things be careful like ....soy sauce for example. Be careful with quinoa too
How fantastic you have figured this out.
You are incredible 😊you look like an angel and fights like a lion 🤩 keep on fighting and you will win 🥇 Hawaii one more time
Hey, med student and fellow celiac here! You did a great job explaining the disease! Thank you so much for bringing awareness! It was my experience that when you eat gluten regularly before getting diagnosed you feel quite crappy, but when you stop and then start again, you suddenly feel REALLY crappy. Also, in Germany we call celiac disease a chameleon, because it can present in so many ways like depression, joint pain and severe itch, so getting tested might make sense even with not GI-related symptoms.
Also, in Germany is is recommended to screen direct relatives via a simple blood test as there is a certain genetic component to celiac disease.
I wish you the best of luck on your celiac journey and the upcoming competitions!
Very interesting Lucy, I wish you a whole natural food recovery.
I once visited a Leading London based allergist, Dr. Adrian Morris, a good guy.
This was 10 years ago. I had a bloating issue... he told me I was one of the healthiest chaps he'd had in (charming man) but my microbiome was out.. this was all new to me then and boy did I realise how ignorant I'd become...
I was advised to get some Acidophilus tablets. Investigating this I discovered the jury was out on them, lacking conclusive evidence for improvement...
But what was helpful and proven was to get on to what I now call 'a Gods food diet'... Eating a wholefood based wide broad range of different foods... REAL food that is not mass produced... no chemicals, no antibiotics... no rubbish.
For example, I'll shop for Organic, non gmo, pasture raised organic eggs, (not easy to get) not just free range but pasture raised.... cutting out all corporate foods... that's the line I took and take now...
Try getting wild caught Salmon in the UK, not so easy.... the food being sold now is poison.
Don't allow your mind to be jacked any more with corporate toxic 'non nutritionally dense' foods...
What we have eaten over the last 50 years we never ate in 50'000 years!
People now need a revolution in their diets not more band aids!
So the game is on, eat a wide cross range of natural full organic non gmo foods.
GOD'S FOODS
Spend more, reap more...
If it's in a packet, box or carton don't touch it...
That's tough as an athlete... try this... when you're off the course, eat LIKE THAT - Real Food.
These corporates don't have your interests at heart... it's just the bottom line for them.
Good luck in Kona!
PS: Also have a veg patch!
After a little bit of study someone with gluten sensitivity can avoid gluten when eating out without much difficulty. The more simple the dish, then the more likelihood there won't be any gluten. Many dishes say in their description that they are breaded. So you know to avoid those dishes. Many dishes say they have a creamy sauce. If so, the sauce probably had flour (wheat) in it, so you know to avoid those dishes.
Don't expect a restaurant to have a big selection of gluten free meals. And don't expect the gluten free meals to be all that appetizing. But you will get by.
I got caught with a flare up once when I purchased chicken salad at a grocery store deli I typically did not frequent. Unfortunately that chicken salad was made with a seasoning that had gluten in it. Up until that point I though all chicken salads were gluten free. But no no no they are not. You have to pay attention to labels and ask the server at restaurants to check with the cook about gluten.
Some eateries distinguish between medical gluten sensitivity and personal gluten sensitivity. That threw me for a loop when I first heard it.
And another interesting tidbit concerns oats. Oats do not have gluten in them. It's only wheat, barley and rye. But Oats are processed in mills where wheat, barley and rye are processed. So unless the oats are processed in mills JUST FOR OATS, they will be contaminated with bits from the grains that have gluten. And oats processed that way are very expensive because of the special care given them. As a result, I skip oats now for two reasons: 1. processed food and 1. expensive.
Lucy, as an athlete with three children all of us with CD, strong genetics, life is easier. It's crazy for me to think with your historical symptoms it took you this long, but it's never too late. Regarding fractures, our daughter at 8 years old had the same unexplained fracture history. Come to find out she had osteopenia. I would think they'd do a bone scan to evaluate you to rule out for you. You are going to feel so much better on so many levels. Enjoy the life of reading labels and asking "do you use gluten (wheat, barley or rye) with that." 😂 The life of a celiac!
Been Celiac since 2008 (37 now), and I've noticed that gluten labeling on products has improved a LOT in the last couple years. You can also find some good GF substitutes, like flour to make some familiar staples with a little creativity. King Arthur's is a great brand for that. Good luck!
Mind you might be worth eating more food you prepare..... if gluten might even be in your Gels..... or Pizzas
Hi, registered dietitian here. Would recommend signing up to Coeliac UK for extra advice and their directory for gluten free products in supermarkets in the UK. You obviously travel a lot so printing out some info copied into other languages to show at restaurants/ hotels etc and checking ahead of time can be helpful. Also assume you’ve been offered a dietitian referral by your GP / have access to a dietitian but if not ask for that! Look forward to seeing you continue to smash it :)
I've also been diagnosed, just a few months ago. It's a challenge, not so much at home, there are loads of good GF options but when you eat out it's sometimes hard to find a GF menu. You'll feel 100x better for the changes you make. Good luck.
My wife was diagnosed in 2014 following an acutely stressful period. She was 34. She does believe there was underlying causation.
We deep cleaned the house. The fog lifted, the bloating subsided. The aches relinquished. Her energy improved. Took a holiday and she tried one mouthful off the top of my cheesecake… there must have been a crumb under it. Her reaction was both ends for 72 hours. Far more severe than any pre diagnosis reaction. Her first (& thankfully most severe case of “being Glutened”. The following 3-4 years her immune system was incredible, she couldn’t catch a cold if she tried. We asked restaurants prior to eating, what cross contamination controls do you have as she’s coeliac. Italian restaurants were very good. Chains such as carluccios or Zizzi and Puzza Express. She loves Thai food and her favourite Vietnamese. These days there are locals that can do it but the chain Pho is great (maybe post race or when not got intensity scheduled the following day).
Treat wise (unsure on dairy) dark chocolate is a favourite with G&B’s and Tony’s. For travel Huel is GF and although not perfect at 400cals with protein and no added sugar is a great fail safe if there is nothing to eat during travel. I have no diagnosis but after living GF at home for 6month found I can feel it when I eat so I micro doses. These days with kids in the house things are messy but she is incredible at negotiating that and we rarely have “ gluten incidents”
She lives a full and successful life. The speed at which you can mentally/emotionally adapt (maybe after great success will be different as you wont revert to previous celebratory foods) is key. It is different but you’ll be better - which is bad news for others!!!
I have also like you say after Kona the same symptoms also after bing races. I tested two months like vegan and no gluten I I feeling fantastic. I think o make also the test to see if I am milk intolerance or gluten or both. Not like you, my periods in my all life was no regular. Viel Glück 🍀 and have 1 in t100
My wife received the diagnosis 3 years ago - the diagnosis changed everything to the better.
It is more work to find restaurants with glutenfree food, but the quality of the food is normally much better.
Some people told us that she would increase weight after completely recovering her stomach. This was not the case.
I was diagnosed in 2019 at age 55. I was having some subtle symptoms that became obvious after my diagnosis, but what initially tipped my doctor off was pretty severe anemia. I was on iron supplements for awhile, and am now maintaining normal levels without it. One positive I guess is being able to run faster in my 50's. Eating gluten free while at home is pretty easy, but it's still a bit of a pain while traveling. I'm getting better at it, though.
Good that you have a clear diagnosis and can make the appropriate adjustments. I was diagnosed celiac about 20 years ago. Many helpful comments already posted.
A must for me is a GF seasoning from The
Alaskan Seasoning Company; specifically the following, which can be ordered online:
“Gold Rush Seasoning Salt. This blend was our very first creation over 30 years ago used in our restaurants as the best go-to all-purpose seasoning. The Goldrush fine-grind blend is a must in your kitchen to bring easy and savory flavors to your home cooking.”
My mom was diagnosed with Celiac disease back in the mid-90s when almost no one even knew what it was. She was literally dying from malnutrition because her body wasn't getting the nutrients from the food she was eating. She was 5'10" and weighed about 100lbs and folks thought she had an eating disorder.
Thankfully her health improved once she cut every last bit of gluten from her diet but there wasn't much available back then in for GF folks as far as options for pasta, bread, snacks, pizza, etc., at grocery stores and restaurants. Meat and veggies were her life until she figured out how to make stuff at home. And this was before the Internet was around and anything like it is today. She was a pioneer! 😄 She's done well over the years and has never been tempted to 'cheat' because she knows what it could do to her.
Good luck with your recovery. You will absolutely feel loads better once your gut heals. 😊
Hello Lucy, I wish you all the best getting this challenge under control. This will boost your perfomance ever further after you managed to exchange all gluten with other products. I am sure after you suceeded with your new way of eating, you willinvestigate how eggs will now work out for you. You mentioned in one of the previous videos, that you are not allowed to eat your loved eggs anymore, but Reese still is allowed and you need to watch. 🙂
Hi! I was born with diary allergies and found out that I had a intolerants for gluten at 20 years old. And I just wont to say, if your doctors haven’t told you about it yet, that gluten and legumes is so close in DNA that one with celiac shouldn’t eat it. If I don’t remember wrong its called cross allergy’s, So its really important to keep in mind.😶🌫
I was also born with deadly allergic to legumes, still the same 26 year later, and the only dairy alternative that I can have is “ris milk”. Oatley is not sent gluten free. And I cant have the alternatives that are legumes based. 😮💨
So if you feel defied, so did I. Sadly a lot of gluten free products have legumes in them, or dairy. 😭I have found ways and other great alternetivs!🤯
Am not trying to rain on your pared or anything, just tell you as some one who is 6 years in it and have a lot off friends that cant have gluten. ( most of them cant have diary ather bc of cross allergy's)
Best of luck on your rood to a health body and tummy!
Have had celiac since I was a child, diagnosed in 1995. What an adventure my parents had back then to be able to feed me. So many more options these days. Best advice is read labels on everything. You will get faster at the grocery store once you figure out a new routine. Luckily fruits and veggies are free game and you can eat all you want. There are pastas made from corn or rice. Or sub the pasta for rice as a complex carb. For your sweet tooth there are lots of GF recipes you can find online. Getting a good texture for foods is the biggest challenge but you will find recipes you like. A lot of trial and error but you will get it figured out sooner than you think you will. To eat out at new restaurants I tend to check out the nutrition and allergy info online before getting to the restaurant.
A good friend of mine has Celiac's disease and though sometimes she still struggles, it is something with which she has been doing really well. She's represented my country in international rowing competitions and will likely join the national team next olympic cycle, and her celiac's doesn't hold her back from doing so!
So no advice, but it may be nice to have some reassurance!
Also, watch out with oats, because there can be gluten in some oats due to them being produced in facilities where other gluten-containing products are produced.
Whole food plant based diet (not vegan, vegan is a different thing). This diet is the fuel for athletes. Especially athletes who want to imrprove and extend their career. Tons of science on it! It's the way to go. Inflamation is bad enough for everyone who failes to cut certain foods (meat, dairy, sugar, refined carbs) but for someone with an auto immune disease it's especially important to eliminate the foods that increase inflamation, accelerate aging and interfere with instead of increasing recovery!
Hi Lucy, with adjustments you'll do better than ever. I've got NCGS and have had joint pain from non gluten grains like Oats, Millet and Amaranth, so you may want to go completely grain free for a while... a great resource is Dr Osborne who wrote no grain no pain.
Rice is a grain and it is fine to consume when you have gluten sensitivity. No need to cut it out of your diet if you are gluten sensitive.
Absolutely wild that you became the Ironman world champion not even knowing you had celiac!
The typical substitute most people with a sensitivity to gluten do is to increase their intake of sugar. This is especially true for athletes because they need lots of calorie intake to be able to train and perform. Pre-diagnosis the calories typically came from bread and pasta. Both usually are made from wheat. And wheat has lots of gluten in it. They need to keep in mind that consuming too much sugar is a problem. Think of metabolic syndrome, pre-diabetes, diabetes, fatty liver disease, arteriosclerosis, heart disease, stroke, and cancer.
Coeliac here. 5 years diagnosed. You’ll be better than ever in 6 months. And…. You’ll possibly gain weight as your body starts to absorb nutrients more efficiently
Wow… first off you are always so smiley and energetic so we would have never known. Sorry you went through all that! And secondly, what a scary prospect for your competitors that you’ll take off like a rocket now - as a spectator I’m so excited to see it. And just to think of the incredible longevity I hope you’ll have in this sport, even more exciting 😊
As a coeliac all I can say is be vigilant. As your intestines heal, you’ll actually become more intolerant of gluten, to the point where it can make you violently ill. It will depend on the damage and how much repair actually occurs. Look after yourself.
I remember Djokovic found out that he was gluten intolerant. The change after that was incredible
Hey. Beginning of the rest of your life, a life where you will feel so much better. I was diagnosed as an adult too. My advice would make a novel but I’d start with-be really careful of barley as malt as it’s in LOADS of things you wouldn’t think of. Check if you’re definitely ok with oats as some coeliacs can’t eat even gluten free oats as they can’t tolerate the protein in them. There are certain brands that are way superior for bread and stuff but making your own in a machine or by hand is easy and makes the best bread. Some prepared gluten free food has a lot of crap in to make it palatable so where possible cook from scratch (sure you only eat that kind of food anyway).
These days the options are SO much better than they used to be and you just have to be bold and not embarrassed about asking the questions in restaurants.
Oh yeah that’s the other thing-because lots of people don’t eat gluten out of choice or are intolerant but not coeliac make sure you tell restaurants that you are actually coeliac as they are much more careful in the kitchen.
Good luck Lucy. There are so many ways you will feel better k hope and just THINK how fast you’ll be now! Maybe worth your sister getting checked as it can run in families. ❤
Hey, I went through a similar experience. I was diagnosed with Celiac disease and had to switch to a super strict diet. After about 6 weeks of being on the new diet, I felt like a superhero. Everything in my life became significantly easier, like training, academics, and even socializing. My tip for you is to go through all the sauces and spices you use, as they might contain gluten and can be overlooked during the transition period.
I'm stoked to see you taking on a Celiac diet. It's gonna make you a total superhero!
I had a similar story and had to cut out gluten and diary products completely. It took a long time to get to that though, (not until I was 34 before I finally completely gave it up and stopped eating out before I saw most of my symptoms go away. Unfortunately the more you eat out and purchase things with many ingredients instead of whole foods you run the risk of having issues. I've switched to making most meals at home now and have finally been able to start training again after years where I was just grinding myself down by doing any amount of exercise. Glad to hear you listened to your body and got to the bottom of it! It's much better on the other side and in spite of what so many people think about how horrible it is not eating gluten I actually find many of the foods are so much better because you're not just eating filled/junk foods.
Lucy!! I’m another triathlete with celiac and I’ve only been getting faster without gluten. It’s on my annoying at birthday parties. Welcome to the club!!!
About 4 years ago I was having problems with gluten as well. It was just making me feel terrible. So I went to RUclips to see if I could find a cure. I read that a tablespoon of extra virgin olive oil in the morning right after you wake up and about a hour before breakfast would help. So I thought what do I got to lose and gave it a try. About 4 or 5 days later I started feeling better. After I finished the bottle of olive oil I slowly started eating a slice of toast or pizza without problems. Nowadays I’m eating pretty much the way I want.
I really don’t know if it was the olive oil or if the body healed itself but I always keep olive oil on hand
I'm asymptomatic celiac. I had no idea I had celiac disease until I had a bone density test. I had osteoporosis in my spine. After a host of tests, the doctor checked for celiac. I was put on bone density meds and went gluten free. My bone density is coming back. Once you get the diet figured out, it's not a big deal. Just have to be cautious when dining out.
Hi Lucy, have suffered similarly over the years and am mindful of eating anything that is processed and or wheat-based and or gluten. I don’t have much to add apart from bakers sourdough bread (not from the supermarket, as this is made slightly differently and may cause issues) seems to not cause me any issues. Also anything with yeast has sometimes been problematic. Hope that helps in some way.
I was diagnosed a little over a year ago after having small clues for years that some digestive issue was going on and was mostly managing it, but then a sudden increase in symptoms when I was 32 kind of out of the blue. I relate to it being a shock but also making sense! If you miss good pizza, making it with the Caputo gf pizza flour is a game changer :)
Thanks for all the insights and explaining! Especially mentioning that your period is regular. RED-S is such an important topic in women's sports
Happy to hear you now know what has been bugging you. Good luck!
Amazing by the way how much you have achieved despite your condition and injuries. 💪👏
Hi team, I have a daughter with coeliac and strongly recommend getting your own toaster and panini press etc so no cross contamination as even crumbs can be detrimental for you. Gluten free wraps are much better than sandwiches on the go but be very careful of nuts and dried fruits or anything that says "made in the same factory or conveyor belt as gluten products". There are several other names for gluten that are hiding in moisturisers/shampoos etc so just buy what says gluten free, it's easier. Good luck!
Im so glad you got a diagnosis, and one that can be managed by diet. Managing other people and travel are the hardest - but you have a great team around you so I hope you have an easy journey and I look forward to seeing your performance gains!! Also, thank you for sharing, I am sure you will help a whole bunch of athletes get a diagnosis and improve their quality of life too!
Finding it is the hard part, I've been diagnosed 2 years ago, my life changed so much since then. It's not that hard once you get used to just checking everything beforehand. Stay strong!
Knowledge is power! Fantastic that you were able to get to the root of your issues with the help of the right tech and experts. Look forward to more amazing performances in 2024!