Living with Lupus: From A Sick Child to Thriving Woman
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- Опубликовано: 5 сен 2024
- Host: Ursula Mariani │IG: shortest.link/...
Co-host: Sibonganjalo Botha │ FB: shortest.link/...
Guest: Atlehang Maseko | LinkedIn: shorturl.at/tJfmp
Technical Director & Videographer: Given Masilela │ IG: shortest.link/...
Producer: Sibonganjalo Bonga Botha │ FB: shortest.link/...
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I was diagnosed at age 35 and I was simply called a sickly child. I was diagnosed during the lockdown so am always grateful for covid-19. It is a hard journey and you have to keep calm . The medication is super expensive , i am still have flare up and i am grateful for the diagnosis because now i know what is it. I have two kids and that was best time because I had no issues but after birth it was back with a vengeance.
Great episode ladies!!! I am definitely one of those who feel seen. I too have lupus, not in remission yet but I will be one day. God will make it happen. I am on anti-anxiety and anti-depression medication because as a parent, I live in constant fear of not being there for my son. Thank you so much to your guest for sharing and being vulnerable with her journey with this invisible illness. Strength and love to her.!!!!
Thanx my lady & strength to you 💛 Keep fighting!
Atlehang has such a strong and positive mindset which is very admirable. There are people who walk with God and you can feel it in their aura and she's definitely one of those.
I can't imagine how challenging it is being a diagnostician since there are soooo many diseases with similar symptoms, so having to get the diagnosis correctly and timely is commendable.
Sending love to the hosts ❤
Thank you so much 🫶🏽
Such a well spoken and Jesus girl she is. Beautiful episode. Proof that God is alive. ❤
This was so uplifting. I was also at some point in my life diagnosed with an autoimmune condition called pityriasis rosea. I thank God for healing me.
Ohhh my goodness, I had the same when I was 13. First time I come across someone else who has been in that condition ❤ God heal us all
I had the pink sores tsa Pityriasis Rosea but I took the medication from my dermatologist and now I'm fine..all gone. I didn't know that it could be auto immune...mine was caused by an environmental infection. I hope yours gets better ❤
This was so informative. Our favourite Dr Google, is not so positive about this illness and to know that there is HER is just so encouraging .
The 1st time I heard of Lupus was through a very close colleague who later passed on. It's such a cruel and sneaky sickness and thank you to a fellow Pretorian sister for sharing her story with us. When we know better, we can respond better. Wishing her great health and thank you to the TCC team for another great show.
Hi Ursula
I was diagnosed with Lupus in August 2020.It was so hard still is though. I was misdiagnosed my doctor told my mother I was HIV because the medication was making me sick all the time. For the whole year of 2021 I had one of my family member looking after me, feeding, bathing and taking me to the loo. I felt so useless, I hated myself. I'm a mother of 2 boys and I couldn't work for 3 years.Only this year I'm starting to believe in myself but it's hard to get a job because when they ask you why were you not working the past 3 years and you telling them that you've been sick they become skeptical to even hire you
I was diagnosed in 2010 and it almost took the whole year to get the correct diagnosis. I was misdiagnosed and given incorrect medication which made things worse. This condition is painful, everything ached, when I could not longer eat my family had to do something, go to someone, take me to this church amd have this church elder come see me until finally I was admitted. I don't understand why some doctors have this thing about HIV because I remember this one doctor tell my mom I had HIV just by looking at me. Mind you my GP already did an HIV test and she's tested me for everything at that point.
Many moons later, my specialist has been talking about me being in remission now and I'm just waiting for my dose to be lowered. I've not had a flare up in years which is awesome.
Being in your 20's and having family members help bath you, dress you and even help take you to the loo; and feed you sometimes makes you feel helpless. Honestly it's a lot, you're lucky if doctors pick it up early and get you on treatment
Im glad you haven’t had a flare in a long time. You’ll be fine! 🫶🏽
I was diagnosed at 30 in 2017. Mine was detected early and my physician and I were able to find the most suitable treatment for me after a few tries, I am grateful. My flare ups are triggered by high levels of stress. Well, with me, the treatment came with high blood pressure and diabetes. All under control and taking each day as it comes. Living positively with Lupus 😊
I love your attitude towards it, exactly how I am managing it.
She's so strong 🥹🥺❤
This has been a fruitful week, two episodes from TCC in one week.❤❤I am full.😊
Hearing such stories makes me realize that people are going through it all out there and l pray that God heals us all and makes us kind of one another. Shout out to you ladies for such a great work.
I'm 32 struggling from lupus , it's alot, i would like to thank my dermatologist alot, but then he referred me to rheumatology at government hospital it's a mess, blood test after blood still not getting the results it's alot, while suffering from alot, it's a mess...
Hi. I am the same age. Please share what made you go to the dermatologist in the first place?
Hi Ursula. This is a brilliant interview but very confusing in the beginning because it is like you are interviewing Bonga because you are starting off by saying that you are hanging with her. I almost didn't continue watching as I thought I was watching a wrong interview. If you can, please correct that. Just a humble request
well spotted
Hi TCC fam, Giv my brother next time when there’s a lot of jargons or medical term that we wouldn’t necessarily know or have heard of before, kindly please write them on the screen. I appreciate the content. Atli thanks for your time and sharing your story ❤
❤ best conversations ever
22:05 Mara ARV vele Ursula😂😂😂
Missed the live show . Wanted to share little beat of my story
Is it me or she sounds like Bonang Matheba
Ursula mara 😂🤣😂