I am experiencing similar problems for 3 years now, I have literally gone from doctor to doctor without getting a proper diagnosis. When I tell people about my issues they always blame stress and underestimate the impact of symptoms on my day to day life. It is so nice to connect with a community that is able to relate to this. Big thanks for sharing!
Investigate gastrointestinal Beriberi - acute Thiamine deficiency. Thiamine (B1) is crucial for Nervous System functioning, & it is the Nervous System that controls the digestion. Many of us are extremely deficient. Elliot Overton (EONutrition on here) has lots of videos on Thiamine deficiency & all the issues it can trigger, including digestive. It’s helped me. I prefer it as Benfotiamine. I also take ginger & artichoke extracts. Thiamine deficiency is a big driver of Dysautonomia, POTS, & other Nervous System Disfunction.
That's me last 4 years now.. My family not believing me was the worst part More fluid in between meals and smaller food plus running helped alot I hope no one experience what i have been going through
I literally feel your pain, girlfriend! hEDS, POTS, and Gastroparesis here! 41 years old and just finding out now what the heck is wrong with me! Thank you for sharing. The best part of getting a diagnosis is being able to connect with others who "feel your pain" because it is such an isolating condition. God bless ya sister!
Same here PoTs/Dys and gastoparies along with a host of other issies and 41yrs old to. I think the gastoparies causes SIBo as good sits too long. Feel beter if fast but being severely underweight and looking disgustinly thin makes it difficult to fast.
Thank you so much for this information. My wife suffers from gastroparesis and we came across this video a couple months ago and got some Betaine HCI the next day. She hasn't had a problem in 2 months now so thank you so much.
@@deekap8387 she's doing a lot better, she only takes it once or twice a week. She's a little frustrated at that fact that she's went so long not being regular now that she is she always grossed out🤣🤣🤣🤣🤣
@@iam007derf9 thanks for the reply. Yes I have been suffering a lot for the past 50 plus years as well. Drs told me it’s idiopathic just no cause- and due to that probably I just got diagnosed as type 2 diabetes. I am very thin with no meat on my body from Gastroparesis. I can’t even lose any weight from my body to reduce the sugar. I might try Betain HCL before starting metformin. Bec I could see that the day my sugar is high are the days my gut has issues. I have been reading a lot abt HCL for the past couple of years but my drs scared me saying I will end up getting ulcers and was so scared to start. Now I feel a little better reading your comment. Thank so much for sharing that. God bless!
@@iam007derf9how was your wife diagnosed with this and how do you get Betaine HCI? Is it a supplement that you buy? How much does she take? What were her symptoms? How long did she suffer before getting better? Sorry for so many questions but I’ve suffered for a year now and have asked ppl many questions on this subject and other stomach disorders but no one will hardly write me back. Thank you for reading this. I’m desperately looking for help. I’ve had a colonoscopy/endoscopy and all they said was I have GERD but it’s more than GERD! I’ve lost over 40 lbs bc of barely eating for so long and PPI’s prescribed for GERD do not work and just make me feel sicker to take. 🤦🏼♀️
@@Debbie-Savings not really sure about the details of her diagnosis but we buy that stuff off Amazon and the price ranges from 15-50 per bottle depending on the brand.
I am literally crying right now. I can’t believe so many others understand what I am dealing with. The bloating is so annoying. I’m quit tiny, so my distention is noticeable. I completely stopped leaving my house other than work. I consistently get asked when I’m due, do I know what I’m having, etc. That said, I would still take that over the pain any day. I have had every test you can think of. I not only deal with gastroparesis, I just won’t have bowel movements at all. I once went 28 days. I’m constantly in the hospital. I just want a normal G.I. system like everyone else. Nobody can find a reason for any of this.
For some reason, I've had good results from artichokes in the jar. Some work better than others. I went to an Italian restaurant once and I had 1 piece in a dish and it literally cleaned me out.
I've had gastroparesis go over 21 years and no one unless they've been through it for that length of time I truly understand how it affects every aspect of your life in a negative way not even close
I totally understand what you are saying.i have suffered for years...no one really knows how it effects every decision you make unless you are struggling with this.i have tried so many things I have lost count.
I have had gastroparesis for about 3 years now. What really helps me is regulargly doing cardio exercise (I now run 6 days a week). I don't know if it psychological but I can totally say that it helps me with creating appetite and reduce the nausea. And coffee after food also helped because it sped up the digestion.
My doctor saying that the damage come from when I had a C-section and caused some type of problem which cut off my pH balance in the stomach. And there was a doctor. She knew what I had and she said she just have to control your pH balance by eating certain foods.
I agreed with you. As you know, the exercise increase the digestive system and every meal that I have or in between I make sure I drink at least 6 to 8 glasses of water a day.When a person has gastroparesis, they don’t have a proper pH level, I massaged my stomach in a circular way about 27 times and stated it helps to digest and wakes up the stomach. And he told me to stay away from greasy food.
I’m an older lady and a former nurse. I just wanted to tell you that this video helped me a lot. You are adorable. I hope you are doing better. Thank you for sharing this information.
I had covid. Then mono, then lost 30 lbs. and it was 6 months until I had any improvements. Then caught covid again after sinus surgery and it triggered the gastro and every single thing you said was my entire life. My jaw dropped when hearing this. I sent your video to so many people close to me just to say like hey! I’m not alone! I’m not the only one. I’ve felt so lost the past year while dealing with that flare without knowing and now am battling pots in full force and I am so ready to get through this. Thank you so much for putting my thoughts into words and speaking about it on a platform. Your videos are awesome you’re awesome. Keep being you! Thank you. ❤️🤍
Me too ! I'm so self conscious of it that I wear x large shirts to hide it . I have a gj feeding tube. If I don't vent my G port I look 8 months preggo ! Thanks for posting this video I needed the positivity of it
@@IzzyKDNA / hey sweety ! How you doing ? I m very glad for you that you got over your illness ! I ve few things that i wanna to tell you about my health ! Recently like a week ago ? I got constipated and my stomach felt bloated , i couldn t digest what was inside my stomach nor vommit it ! So i had to go to hospital asap for an emergency . I remember that day i lost my apetite , felt dizzy , bloated as if i m pregnant ! Doctor examined my blood pressure and it was fine , my heard rate also was fine too so he took me for an X Ray and this was the worst part for me cause i got so scared fore the result ! Lots of negative thought came to my mind untill he came back to me and told me that i have constipation therefore he recommended me to take some of the laxative and fiber pills ! And now there is a slight a tiny bit of improvement but i still have stomach bloating when i eat so i can eat regularly anymore ! I focus mainly on fruits and veggies as doc told me and i try tp drink lots of water i even skipped my favorite almond milk and decided to go for tea for my breakfast instead ! What do you think of my condition ?
@@meaganlaplant3363 / oh my God its so hard i can tell how hard and miserable it is ! I hope you get well soon and be back to your normal life i wish it to you from the bottom of my heart cause i know how it feels like
Thank you so much for sharing your experience!! My mom was diagnosed with EDS in her fifties, and it is quite a learning curve trying to find information related to it. The best info I've found is through the experiences of other people, most doctors don't seem to be educated on this.
Most doctors don't seem to be educated on a lot of things. This includes EDS, gastroparesis, etc. It's quite sad, disturbing, frustrating, etc., but I guess we've got to just deal with the lack of info/knowledge that plagues many in the healthcare industry. :(
Omg! I have all these symptoms and havent been diagnosed. I was diagnosed with IBS and chronic constipation. Thank you for sharing. I cried because I feel like someone out there can relate! 🙏😩
Chronic constipation is definitely a symptom. My daughter is struggling with gastroparesis and it's breaking my heart. Her nausea and constant vomiting is so hard for her and hard to see. I hope that you find relief and are diagnosed properly for whatever your ailments are. Good luck!!!!
I want to try digestive enzymes again but years ago I tried them and it caused pain. Like something was eating my stomach pain. I can't find anything on why this may be. It's good to learn about protein. I ate a lot last night and woke at 5 am vomiting. This is a terrible disease so thank you for the ideas.
the end of this video- this is why i love your channel!🥺 hearing from you and all these other people that it IS real, it’s not just in my head. other people have these problems. connecting with other people who relate can make the worst days feel a little better i’m so glad you do this, thank you from the bottom of my heart. i hope you start to get even more recognition for all that you do
Just commenting to help get this video recommended to people, it's SO helpful and even though I don't have gastroparesis but other stomach and bowel illnesses, I'm definitely going to try and get some of the things (let's just pray that they're available in my country or that there's similar stuff). I've been trying to find something that helps my nausea for so long but nothing's helped so far
WOW! 22, confirmed HSD'er, suspected hEDS'er, literally have been in and out of the doctor for gastro issues. Shocked to see this come up!! Thanks for the video x
as someone diagnosed with celiac disease in 2009 it's really good to see videos about people talking about their experiences with stomachs and intestinal issues and the things that come along with it.
I've had gastroparesis for 9 years. It's been a lot of trial and error. Betain HCL burned soooo bad when I tried it, never again. Tums was my saving grace for so long but then my calcium levels were high. My doc put me on Creon (digestive enzymes) and that made a world of difference.
Thank you so much for your comment just wondering if you are based in the US or Canada I’m thinking about asking my doctor for the Creon digestive enzymes that you mentione, can you buy it over-the-counter or you need a prescription? Thank you, and God bless you.
I got diagnosed with Gastroparesis in Summer 2017, and am so thankful that you make such informative health videos!!! Great for raising awareness to this condition, thank you thank you! 🙏🏼 Also SO thankful to hear you’re feeling so much better!!
I look pregnant with protein or grains. Betain HCL is great, but even greater is organic apple cider vinegar 1/2 teaspoon in warm water first thing in the morning.
@@user-ij5rq8hx1cdrink slippery elm or aloe Vera to counter the inflammation, it kills and coat that stomach wall and helps heals ulcers. It is coated and slime that acts like your stomach lining. Look it and do research how magical this slippery elms and aloe Vera.
@@bees.3140 your stomach is just weak, you need to coat it with slippery elm to heal it. You probably have gastritis, apple cider vinegar helps acidify your stomach which helps digest foods faster and boost your metabolism. Breaks down proteins and fats.
@@keithjay4944 I have gastroperisis and take a vinegar supplement but it’s hard to tell what works and doesn’t when you have a flare up just started taking Betain hcl with pepsin 🙏
Omg thank you so much for this video! 😩🙏🏼💖 I’ve had Gastroparesis and neuropathy due to my diabetes since 2018, but I’m barely researching more about my new conditions, it helps a lot to know I’m not alone in this, and all the help and advice you’re sharing, so thank you! I’m definitely going to try all these. 🙏🏼😊
I just happen to have some HCL on hand. I will start with this. I am happy you mentioned the Dr told you to increase your dosage of the HCL. I never would have taken 6 or 8 xapsules per meal. Already my stomach muscle are relaxing within just ten .minutes of taking it. . I will get the enzymes next. Thank you so much for making this video. Your story has helped me tremendously already.
Did the retained help or cure you? Or the enzymes since the have the Betaine included? If so what dose did it take you and are you still having to take anything for the Gastroperesis? Thanks so much
I really like how you draw out the timeline for your symptoms! That's really helpful. I noticed my gastroparesis got better since my doctor increased my Midodrine. It is so weird! :-) But whatever, as long as it's getting better, it works for me
This is incredibly relatable. I was dx'd with collagen gastritis related to celiac (and I'm also an EDSer, so, fun) after several long-term flareups where I'd lose a significant amount of weight in a short amount of time and only subsist on liquids, dietary changes, enzymes and stomach meds and managing my autonomic symptoms has been doing wonders. (I'm back to cramming 2 - 3K calories and being sporty, again!)--really neat to see that I'm not alone in conquering severe GI symptoms.
@@Rls_0523 starting totally from scratch with drinking liquids with supplements, then eating eggs, then working up slowly to light but nutrient-packed foods until I can eat "normally"--I still have bad days/weeks and relapses/flare-ups, but I have much longer stretches of being able to eat comfortably.
@@vampirebottom thank you! I did that for a year, with liquids only for the first few months. That was before this swelling started though, so guess I'll have to try it again. I barely eat as is bc of the pain and swelling plus I can't taste anything, so it won't bother me doing just liquids. My Dr won't like the weight loss this time though.
Hello can I speak with you about this. What kind of juices and liquids for example? Can I give my phone number on here? I am getting desperate and severe low weight. Please and thank you
Love this video Izzy, yeah my gastroparesis started mild and has gone crazy in the last few years in part thanks to having my gallbladder removed (according to my doctors). The bloating is annoying, but the nausea and pain just bug me sometimes until I quit food for a bit and just do fluids for a while. Thank you so much for all you do.
Its so weird how you talked about protien hurting you. It hurts me too! Im almost vegetarian because of it and i didnt realize it until you said something. Zebra here. 💙
Thank you so much for posting this!! I was recently diagnosed with gastroparesis and gastritis. I felt as if no one understood. I was so sick all the time. The doctor prescribed the meds that you mentioned in ur video. I have seen a little improvement. You have made feel like I'm not alone. Thanks again! God bless you. I pray that you continue to feel better. Happy belated birthday 🎉🧁
You're so young. God bless your little heart. Well my condition just developed. I'm 64 and its so terrible. However, thank you so much for your educational video. You're such a sweetheart. God bless you †
OMG you just helped me so much. I have every single symptom you did and I just dont talk about it...well until I cant hide it anymore. I am going to make a doctors appointment. Thank you so much!
This definitely made me feel a little less alone. I went completely gluten and dairy free along with an acid friendly diet and nothing helped. I've been dealing with what I thought was Gerd for almost 4 years. I'm 18 now and I've recently got diagnosed with partial gastric paresis. The doctor I am going to also suspects that I have pots, and possibly Ehlers Danlos syndrome. The worst thing right now is either the upper stomach pain or the severe acid reflux. I feel so lost right now, I've bounced from acid reflux medications, anti nausea medicine (dissolvable Zofran works miracles for me). Just since I've been to college getting sick and the nausea has been worse. I notice that bread is easier to eat, and doesn't give me as bad acid reflux. Any sort of liquid makes me feel full after only a couple sips, but coffee helps with the nausea. I had an appendectomy in March of last year and it seems that since then everything just went downhill since then. I hope this might be useful to someone? I am so proud of anyone dealing with this at any age. I know for me it's been a rough trip, and I can only imagine how it is for others. Just keep your head up and don't let any doctor tel you how you are feeling. You are not crazy, and we will get this figured out.
In the beginning, I had a journal for the food that I have eaten and if there’s any reaction. It is usually a pH imbalance; a normal pH in our stomach is 7.5. Gastro paresis patient has very low pH level. So what I do I drink a lot of water and I take fennels capsules three time a day and it’s a herbs. I always have a salad with oil and vinegar, and it helps my stomach. The reason is the vinegar helps regulate my pH balance. And I have surgery to repair. And massage your stomach in a circular fashion about 27 times. The reason is, it helps to digest your food . Try ginger tea that helps a lot with me. Take the tea at night it will help you. These are remedies.
Hi what area of your stomach hurts? I have gastroparesis too and am about to undergo tests for a pain in my abdomen. I never thought about it being related to gastroparesis
Bread helps me too. I use my heating pad all the time. I take Dexilant for acid reflux/GERD. It is normally once a day but now I have to take it twice a day. I have a lot of nausea and abdominal pain, upper as well as on the left side. I also have chronic pancreatitis. The two together are crazy. I don’t throw up. I feel like I need to and would feel better if I did. I have extreme amount of food allergies now which limits a lot of foods available to me. I am overweight and it seems my body retains the weight. Even with smaller portions and with limited things to eat, I still seem to gain or not lose. That seems strange to me. The abdominal pain gets excruciating at times and bloating. My Dr said I am a complicated case. How rewarding is that? She says what works for most people doesn’t work for me. I know I am tired of worrying about what and if I eat if it will make me sick or that I have missed out on something because of being sick. Sorry so long. It is nice to know we are not alone in this fight.
I've had gastroparesis my whole life. I used to be insanely skinny, like ribs show easily when I lifted my shirt. But the bloat i'd have reminded me of the National Geographic photos of distended bellies.
Sorry for to many questions Elizabeth, but i am suffering of gastroparesis and you experience could help me. Has your gastroparesis ended? And if yes you have done something like surgery etc... or it solved by it's one. P. S.: how many years did I you had gastroparesis?
This was very helpful, thanks for posting! It’s crazy reading the comments and seeing how many people have the same combination of issues: boating and gastroparesis, POTS and EDS, but if you talk to doctors they act like they’ve never heard of any thing like it… and yet I keep finding more people with the same symptoms as me! What the heck!
Yep, I’ve been dealing with this since I was a child. It’s so uncomfortable all around but really sucks when it comes to clothes because you feel so much bigger than you actually are.
Exactly, in the early morning when the bloating subsides before eating I have a regular stomach circumference but as soon as I eat anything it starts ballooning. I have endured this long enough now to find better ways of eating. I already noticed foods in the slow cooker are much easier for me to digest and I know now why. I guess I will have to stop eating large meals too, because the bloating is literally painful.
I've gad gastroparesis symptoms for a while and what ive found very helpful to me has been few things: * Ginger juice. I drink it before every meal. Just one or two big gulps or a big shot. I also may drink a lil bit after if it's a heavier meal * I take digestive supplements like peppermint, fennel seeds, cayenne, licorice root, etc. * Prune juice. I drink a cup at night before i go to sleep. This helps me have a good bowl movement when i wake up in the morning which gives me more energy throughout the day. Also in my morning routine, i drink 1 or 2 bottles of water and a can of coconut water, all which help my bowl movement tremendously. * Exercise. It doesn't have to be strenuous. But moving my body in some kind of way "consistently" has been very beneficial to my symptoms from going to the gym to simply walking at least 30 minutes 4 to 5 days a week or walking right after a meal. This is what i do daily. I'm still not at full health but im in a way better place than I was from when i first started dealing with these issues. Also early on in this journey, i tried alternative methods like electro acupuncture and the chiropractor. Both which helped but can be a lil pricey depending on your budget. Massage therapy is great too. Finding your routine and staying consistent is the key. I hope this helps some one. Stay strong 💪🏾🙏🏾
Really interesting video. I find gastroparesis so hard to deal with. The pain, bloating and nausea can just be so overwhelming and having to eat just makes it worse. Was interested to hear you talk about your POTS getting worse around the time you started taking Duloxetine. I’m on Duloxetine at the moment, but my POTS specialist wants me off it as he says it’s like POTS in a pill (in that it makes POTS symptoms so much worse!) I had no idea when I started taking it, so now need to gradually come off it. It’s really good to hear your gastroparesis has improved. Mine seems to be manageable for a while, then it gets really bad for a while and then becomes more manageable again, so it’s always a bit unpredictable xx
oh wait I might not have been super clear lol. My gp started getting better around the time I took my duloxetine. but it's interesting to hear that your doc said it could make it worse! I hope going off the duloxetine can give you some relief
OH LAWD. i have severe depression and anxiety from chronic illness. i also have POTS and was recently put on duloxotine to help my anxiety 😭😭 i was wondering why i couldn’t get out of bed as easily anymore. thank you for sharing
@Izzy Komblau ... If your Drs had their act together they'd know that low stomach acid, GORD (reflux) and Gastroparisis are l8nked. Betaine HCL helps restore the ability to digest your food easier. Most Drs really don't understand the links to all of these gastric issues.
THIS IS SO HELPFUL. Also feel you on the clothing thing.... some lady literally asked me if I was pregnant because of my bloat.... its a funny joke between friends but holy when someone you've never met says it it sure hits different.
I haven’t left my house without simethicone for at least 17 years. I prefer the chewables in case I find myself in a painful situation without any water to sippy capsule. And I only found out about two weeks ago that one of my diagnoses is Gastro paresis. For anyone wondering, simethicone is the primary ingredient in gas x; And it’s also used in those infant drops for colic.
For those suffering from this, something that really helps me and keeps my symptoms completely gone is acupuncture. I tried everything, prescriptions that do not helps and sometimes make it even worse, HCL and Enzymes, which help reducing the time I feel bloated, but don't bring a complete solution. I tried different types of pre and probiotics, which also help, cause the food not processed correctly ends up in the intestine and it starts creating other sort of imbalances. Tried Matcha teas, different stress control pills. Everything seems to help a bit, but nothing cures it. Until I tried Chinese acupuncture (Chinese, not korean, not japanese, the techniques differ). I was skeptical at first, but tried so much shit that why not try this also? The day following my first session I felt like a balloon just popped. I was gassing out, farting like crazy. That continued for like three days. Next week, another session, I started feeling that my lower esophageal sphincter was now closing better, so reflux was getting better, and less inflammation. I did four session. After the 4th session I was like new. I mean it, I felt like I hadn't' felt for years. So I stopped doing it, and slowly the symptoms came back. Two months later, full symptoms back. So I went again and had two sessions, and feeling almost 100% again. I am planning on doing one session every other week to keep me going. All I can say is that whatever nerves terminal those little needles stimulate, it works.
Happy birthday!!!🎈🎉🎁 And thank you so so much for this video! I'm currently going through a lot with my Gastroparesis and it's honestly so hard, but watching this was honestly so comforting. Thank you so much! Sending you so much love! 💕💕💕
Compazine is really old medication, I didn't know they were still available, ty for letting us know. I've had same issues my entire life. Nexium 24 and Tums help a bit as far as GERD and vomit issue due to the gastroparesis/ibs-c and the only thing that kicks my severe nausea is Zofran 8mg, 2 to 3 times per day. The 4mg Zofran do absolutely nothing nor does Phenergan help at all. Meclizine, over the counter, surprisingly helped the nausea sometimes although it's for motion sickness, not nausea caused by other issues, still, one may try it since it's OTC. It's odd, I had Mono/nucleosis in the 7th grade, 40 years ago, constant digestive and exhausted and asthma ever since. This little tidbit, regarding Mono you spoke of was extremely helpful to me, thanks very much. Be safe with side effects with all the meds. I am allergic to many meds so I wish you the best with it all. God bless.
I have suffered horrible bloating for 10years. My first gastric empty showed nothing, but then I got worse. I was finally diagnosed nov 2020 and met with a specialist at the digestive clinic in Cleveland. I did the smart pill and the pill stayed in my stomach for 21 hours. I was told no medicine would help me. On May 11th I am getting the POP procedure to widen the opening where food empties into your intestines. Weight gain is my issue. I just get so distended and I don’t throw up and I feel sick as hell. Great videos. Keep passing on your knowledge.
this makes me feel sm better, I’m in sm pain and it feels like nobody cares abt what i’m going through and nobody can help me, so thank uu very much :)
Just wanted to comment that although I don't have gastroparesis or any of your medical issues I still love watching your channel because I relate so much on a general chronic illness level. Like sometimes just knowing that someone else is dealing with the major BS that chronic illness brings into your life makes me feel less crazy and alone. Also, HAPPY BIRTHDAY fellow pisces queen!
You are a life saver, thank God for sharing. I took a chance on the products you tried and it was a miracle cure !!!! I was sooooo sick for years and in a few days I felt soooooo much better . I lost weight and now can eat almost anything. Thank you soooooooooooo much.
I know this sounds crazy, so feel free to look it up, but HCL increases stomach acid to help with digestion and tums/any anti-acid medication does exactly that… they are acid neutralizers. So 1) no point in taking them together or in close proximity for sure and 2) anti-acids can actually create bigger problems down the road. If I’m having heartburn after eating, I take the HCL because it means my stomach isn’t handling the food well and needs acid, if it gets worse you can neutralize it by drinking a very small spoon (like 1/4 tsp) of baking soda in a glass of water. I avoid any anti-acids like the plague but do whatever your doctor says (although imo they hand out omeprazole like candy). If you’re having heartburn and you haven’t eaten in a long time (many hours), I’d take an antacid and get with my doc. That can be a sign of stomach ulcers, serious GERD, hiatal hernia or even a heart attack Also, gosh, eating raw fruits or vegetables isn’t a great idea, unless they are in a smoothie and even then I wouldn’t overdo them. The raw fiber is hard to digest for a normal stomach. A low residue (low fiber) diet would help, and also meat is very hard to digest. Plant sources may be easier for ya (soy, pea protein, etc). I’ve been having problems for a few years and thought it was related to my hypothyroidism, but it’s progressed and I have “stretchy” or bendy joints all my life, but it turned into almost like arthritis. I still pop, bend, stretch and my big joints are very (oh my god) unstable so I started searching after all the tests came up negative for anything RA/arthritis related. Both the hEDS or classical fit me, so I’m getting genetically tested soon to know wtf is going on. I’ve been told I have sojourns, possible arthritis (besides pain, no proof of this at all, even the blood markers and inflammation don’t point to it), possible MS, possible, possible, possible, etc. nothing fits, the blood exams don’t show sh!t, but EDS does. Everything fits…. even way back to my childhood. Things I thought were normal …well, turns out they weren’t. I’m hoping the genetic tests show something, so my husband will stop acting like I’m a hypochondriac (I’m not. I’d love for all this to *go away* ) Thanks for the videos you do!
Still have a tube but I reccomend that if your doctor okays solids to try and keep your stomach moving. I am got a lot of shit from people in alone because it didn't make sense in to the public but we it changed my on quality of my life slowly overtime. The stomach is a muscle and if you don't use it you lose it. I am have never wanted to have a tube but it became necessary. Slow improvements with venting but my pain symptoms are the most long lasting with non plant based which is not the best for everyone but the only formula I tolerate is a plant based.(Kate Farms) It varies so much because of everyone's betting levels of emptying and paralyzed / gut immobility. I still have dysphagia and other movement issues and cant take oral daily meds I still use ginger chews and lemon ginger tea. 😌 This is such a good video.
YES such a similar story of slowly getting better with small actions. NO doctor did anything for my delayed emptying yet i was living on ensure and still throwing even that up with extreme bloating. Treating POTS helped. Treating MCAS helped more. Removing my low-functioning gallbladder made ALL the difference. I am so much better now. My bloat was just like yours and I was checked for cdiff multiple times
Izzy, you are such a doll. Thank you so much for being so candid about your struggles with gastroparesis 14:09 . I am a nurse but I learned so much from you. You gave me hope that I can deal with this minster of a condition. I’m at the point where I can only have liquids. Can you recommend a meal replacement. So many of them have horrible and unhealthy ingredients, or they cause more bloat. Doctors have been useless in helping me.
I’m currently working on creating a DIY elemental diet. One of the first things I would suggest (which no one mentions) is start taking an amino acid supplement. If you’re not digesting food properly it stands to reason that could lead to protein deficiency. Without protein, the body can’t repair tissues. Amino acids will give the body the building blocks it needs to create tissues without the digestive challenge of breaking down proteins in the diet.
Wow. I am in the process of being diagnosed (meet all diagnostic criteria for h-EDS... and waiting for genetic testing results), but my daughter (7) is showing signs of gastroparesis and I swear that the main reason I was led to figuring out my own diagnosis was so that I could better help my children. She won’t eat any protein, she says it hurts her stomach. Lately she eats very little and just had a two day episode of nausea and stomach pain with vomiting... and I don’t think it is a stomach bug. She eats fruit and carbs and nothing else. It breaks my heart, but I am so grateful to come across this so I can at least have some knowledge and not delay helping her any way I can. Thank you so much for sharing. I really appreciate your videos and insight. I am 42 and finally figuring out what is wrong with me and my siblings and my mom and my aunts... it is a wild journey.
Happy Birthday! Tums: yes they work, but better in the long term for me is Goli Gummies. I take one or two with each meal. After a few weeks, I don't need Tums. Otherwise, I take Tums every night.
I don’t have Gastroparesis, but I get nauseated quite often and the one thing that I have found that helps is nauzene! So I highly recommend it and it is over the counter so you don’t need a prescription or anything!!
I bloat so bad that people think I'm pregnant, and I hate it. I've actually gotten into arguments with people who convinced themselves I was pregnant. I finally had to ask them how on earth I could be pregnant when I haven't been with a man in YEARS. Also, cloths is so annoying I have to argue with people because I'm not " that big" but I can't wear "my size" of pants because it hurts. There's not much I can do about it.
For me, my upper stomach right above the rib cage gets super hard and distended and so uncomfortable. I had to cut out meat for most meals as well as potatoes. Just cutting those things out have helped me so much 😌
Me too ! I'm so self conscious of bloating that I wear x large shirts to hide it . I have a gj feeding tube If I don't vent my G port I look 8 months preggo ! Thanks for posting this video I needed the positivity of it. I have EDS Mito MCAS and gastreoparisis GI DYSMOTILITY and PSEUDO obstruction. Love your vids . Happy late Birthday
I have EDS and although I’ve never been diagnosed with gastroparesis, I do know my stomach acid is low and my naturopathic doctor did prescribe a digestive enzyme that also has HCL in it. However I’ve stopped taking it because I I’ve had strange symptoms since using it. I feel like maybe it’s an ulcer but to get into see a doctor during Covid is impossible. I’m hoping by not taking the enzyme it will eventually subside, this weird pain in my back that’s gone on a long time Tums will decrease your stomach acid so not good to take them even though it’s nice to have the instant relief with heartburn! Enjoyed your video!
To those of you who posted something similar to... "once I got my POTS, MCAS, or dysautonomia under control, my GP got better", could you please share the treatments and/or medications that improved these conditions for you? My wife has severe GP, and we may have to consider such options. Thank you!
I’ve been dealing with stomach issues for at least 10 years now and have seen a few GI doctors and they just can’t diagnose me with anything but the symptoms you described I definitely relate to big time (especially the nausea and vomiting and lack of appetite and even how it gradually got worse and worse over the years) so this might def be something I want to talk to my doc about so thank you for informing me!
I take enzymes, gas X, ginger candy, and acid reducing medicine for my gastroparesis too. I found all these things through trial and error as well. I avoid most of the foods mentioned too! For real! Just recently I was diagnosed with benign joint hypermobility syndrome and my doctor explained to me that because it's a connective tissue problem it CAUSES gastroparesis and stomach sensitivity too. I'm glad that I'm not alone in this. I have a friend who has EDS specifically and all these problems too. I really hope more awareness can be spread about the connection in these areas. It's such a rare issue in relation to joint hypermobility syndrome but I think it could be increasing more in recent years because I certainly know two other people with these problems.
@@void________ joint hypermobility, more commonly known as "double jointed." For some reason it can cause slowed digestion because the tissue isn't firm enough to process correctly.
I am diagnosed with functional dyspepsia since i cant get the gastric emptying study where I live. Currently in a flare up. this video came at the right time
Hello my name is Juanita I was diagnosed with diebtic gastroparesis a few days ago . I was scared because of some videos I had seen but I'm finding out that I am not alone in dealing with this. I'm glad to know that there beautiful women out there like u that are helping by putting videos out there like this I want to thank u for the suggestions that could or may help me cause I'm dealing with a lot of pain in my upper abdominal so I understand be strong and be filled with courage 😊 ❤
Sounds like all the symptoms I’m experiencing except for the nausea and vomiting. If I eat red meat or a lot of protein I’m absolutely done. Worst stomach pain ever. I’m just now in the process of getting it diagnosed. Thanks for the video!
I don't have gastroparesis, however I do have fairly constant IBS and food sensitivities. I was so intrigued by your experience getting worse after mono, because my issues started within a couple of months of a pretty intense experience of mono (I was hospitalised). Would love to hear more of your thoughts on the relationship between mono and your gut issues, I'm starting to hear this from others as well.
Jamie, I am now 59, but when I was 16 I came down with a horrific case of Mono. Ended up in the ER. The doctors and my parents were convinced I has Strep Throat. Nope. Mono. This was late August. I had my wisdom teeth pulled about 4 months later and my dentist was shocked at how bruised I had gotten. Then in March, my parents were called in to meet with my Counselor from my High School. They thought I has started taking drugs or something else was wrong,as my grades were dropping and I looked pale and was falling asleep in class. Long story short, I still had mono. Later in life I had chronic sinusitis for nearly 2 1/2 years straight. I was having digestive issues at 17. Found out I had Endometriosis. Later I got Shingles at a very early age of 42, months later I was still exhausted so they told me I had Post Herpetic Fatigue that I could possibly have for life. Next a horrible car accident which left me with Type 1 Brittle Diabetes which took them a year to figure out, as my liver was jaundiced and my gallbladder was filled with stones so I ended up in the ER and was told I had Diabetes. Five years later finally they figured out that at I had ...... Gastroparesis. It was no wonder my sugars had a mind of their own. So ALL of this could have contributed to the GP. I now keep my diet very simple which is easy as I am pretty close to home most days. I simply have a Protein Drink, a Protein bar which I break in half and eat mid-morning and mid-afternoon and a Smoothie with Protein Powder for my early dinner. For my nighttime munchies I allow myself to eat some Jumbo 🌻 Sunflower seeds. My boyfriend does not know how I can manage on so little. He does know though that for me Less is More, so he eats what he can and I do my own thing. I had not known how much he missed our meals together. So this also affects our loves ones and it just broke my heart when he actually thanked me for getting up to share a bowl of soup with him for dinner one night. It truly IS a game changer. So best of luck with your journey and may you find the foods which do work well for your body. I can warn you that if you do start to feel better and think you can eat like you used to please do so with caution. I would miss my salads, so I thought I had reached a safety zone, nope. Back in bed with horrific belly cramps and unable to eat at all for 2 weeks. Just broth. I have also become a vegan and stay away from gluten. So I hope this helps. Sorry for the lengthy reply, but I just felt the need to let you know you are so not alone. Stick with Izzy as her site is one of the top 3 I go to about GP issues. She is so good at sharing the information and her stories are so spot on. We are all so lucky to have her postings!! She is a delight!!
Jamie, it is my pleasure. I was lucky enough to have a grandmother in my younger years of life who raised me from 5 years old until 10. Then when I was 16 she moved back to be closer to me. When she found out about my having had mono for 8 months she moved me into her home and became my miraculous nutritionist for the next 3-4 weeks. She was a big fan of Mother Nature being a cure for just about everything. She put together some sort of drink in a blender and even sent me to the Nurse’s office for my Lunchtime smoothie each day. I know it was not the best tasting smoothie but I knew to trust my grandmother. I do remember she went to our local Natural Food store in town and bought all of the ingredients right there (we were lucky indeed). She also asked the school to let me go to the nurses office each afternoon for a rest period when I would otherwise be doing my Physical Exercise class. She believed body, mind and spirit had to be well rested, nourished and relaxed in order to heal completely. Well, in four weeks I took another blood test and the Mono was gone, and my doctor was rather surprised that I had finally recovered so quickly. My grandmother explained her nutritional drink she gave me each day, etc. and he was perplexed at first, yet then he said, “Whatever works!! Besides, you my young gal ARE looking so much like the gal we know, so keep it up”!! My grandmother was oh so happy. So much so she wanted me to stay with her until the end of my senior year as I was currently a Junior and was in need of making up a lot of schoolwork. However, my dad and his new wife wanted me at home with them. My health had been a challenge since I was very young. I believe my traumatic childhood played a big part in this as my mother was not healthy enough to take care of her children (I was the youngest of three) and so my dad divorced her and got custody of us. Those three years without a healthy role model who could take care of me I believe left it’s mark on me in many ways. Over time I have even had doctors ask me, did you suffer trauma as a child?? Yes, why are you asking? “Well, sometimes trauma can age the body and your body is no longer healing as fast as it used to when you were younger”. So my intuition was confirmed. Over the years I have found acupuncture to be one of my favorite resources for healing when I could afford it. I truly believe that if we can find balance in our healing between the East and Western cultures we have a better chance at getting well. So may you find the path that works best for you and as it seems you are already doing it, keep listening to your gut. The gut and mind are truly connected in oh so many ways. Also, I was taught to ask my inner self for answers while sleeping. Often times I was delighted with hearing what the next best choice was for me. You may have heard the saying, when the student is ready the teacher shows up. Best wishes for the best of answers!!
Hmmm, I found it super interesting that you were using products that lowered your stomach acid (TUMS) & then switched to a product that brought it back up (Betaine HCL). Sometimes acid reflux is caused by low stomach acid (sometimes high stomach acid) & TUMS or other products commonly used by doctors to treat acid reflux LOWER your acid even further. Although they help relieve symptoms for awhile (even as they further imbalance your acid production). So maybe you were dealing with low stomach acid when the acid reflux first started showing up, & then had to use a lot of Betaine HCL to bring your stomach acid levels back up after.
@@aprilmartian5837 Yes, Fibercon tablets, Zofran, Bentyl. I also take Omeprezole and Align Probiotic for other digestive issues. A special diet. I had a procedure for my bladder as a result I had to stop taking Oxybutynin for overactive bladder. As a result my symptoms improved significantly. An unintended benefit to my overall health, wellness and quality of life especially gastroparesis.
@@dottyd76 Oh that's awesome. I wrote the medicines down to see if I can research it and benefit from it. I love to hear that someone's doing better, it gives me hope because sometimes it can be horrible to live with. Thanks for taking the time to respond back. Hope you have an amazing weekend! 💕
Just diagnosed February 1. Between your channel and another about gastroparesis i have learned alot! Thank you so much for posting this. Im new to this and didn't know what to do and you have helped. I couldn't take it today and ate what i wanted. Well still in the easy to digest range BUT i have bloating. Heating pads are my friend now zofran. I feel like ill never have pizza or a cheeseburger again. Or starbucks caffeine makes me sick so so does meat anymore this is a tricky ailment.
3 minutes in and im already in tears. i was diagnosed with gastroparesis in 2020 and it’s only gotten worse since. i’ve been to multiples doctors and none have managed to help me yet… im in debt with medical bills, yet my symptoms are worse by the week. i feel stuck and depressed and sick. im nauseous 24/7 every waking minute. im bloated most of the time. i have stomach pain 24/7. please, if anyone has any specific kind of doctor to go see, please comment. im currently trying to go on disability, since it’s hard to hold a job, when i constantly have to call of from being sick.
Thank you JN & Izzy💚 That gives me hope! I’m going to talk to my dr FIRST & start the process to see if I can try to take this product. Hopefully it will work for me. If not, I still will not give up.
i had a similar situation, i was recently diagnosed with gastroparesis and had an upper scope and botox injected to speed up my digestion, it has helped TREMENDOUSLY!!! I've had so many improvement almost instantly, including my insomnia! I've suddenly been able to sleep at a reasonable hour and get up before noon! which has been very difficult my whole life:)
My stomach was bloating really bad in that region too. It would eventually go down but hurt and felt super stretched. I've been on a modified low FODMAP diet for the past few months. I learned the trigger foods I've mostly been avoiding for years. My dr did prescribe a medication to jump start my stomach when it decides to stop. I had chemo and radiation as a child and I blame that and damage to the Vegas nerve/muscles
I'm really new to this gastroparesis thing. I was diagnosed with in October of this year(2023). I was diagnosed with colon cancer last year in August. Did chemotherapy. The Dr said it was caused by diabetes but I really do believe that the chemotherapy had something to do with it too.
Very informational, unfortunately my 2nd cousin at age 3 was diagnosed and my aunt. However I knew nothing about this until now watching your videos. Idk but it seems jewish decent are more prone to stomach issues. Positive vibes!
Being active, bile salts, betaine hydrochloride but number one is Vitamin B1. Stay away from carbs and sugars will also help. No vaping, no weed. ACV will also help with heartburn and GERD. But I can’t stress enough that Vitamin B1 will help tremendously and 3-4x the daily amount. Many of the issues you speak of here including pots are all often due to vitamin B1 deficiency.
Happy birthday!! My bloating looks just like that too and I can gain 5 inches around my waist when I'm bloated. It even seems to extend up into my ribs..I mostly deal with it by avoiding the foods that seem to cause it. Which does leave me on a limited diet, but I do believe it has improved a lot too. Each time I was eating, especially with protein, I would drink the juice of a half lemon in water. Did that for many months and now I don't need the lemon juice. I also take a digestive enzymes called Ultra Digest from Gluten Free Society. I'm avoiding all grains and eat only fresh whole foods. Oh and my Pots symptoms seemed to have gone away once I stopped eating eggs and all dairy. It took a few months though. Both were skyhigh on the IgG test, along with flax and a bunch of other things. From what I read food sensitivities can go away but it can take years... Before I couldn't eat beef without getting severely bloated and now I can. Airborne reactions are a much bigger issue for me these days. And I've seen to have gotten more sensitive since the shutdown. I think I have MCAS but no idea how to get that diagnosed! Believe it's linked to my autism and hypermobility. Even my toes are hypermobile! And here I had thought that was normal.
you are literally the mirror image of me with all of my symptoms and even the food intolerances wtf its so weird. i have had issues with terrible doctors not knowing why my stomach was having issues and me having pots symptoms but also my sister has ehlers danlos but they wont listen to me after even my kids have hypermobility as well as me.
I'm a type 1 diabetic with gastroparesis and the biggest help for me is I drink home brewed kombucha daily and eat a spoonful of homemade sauerkraut a day along with other fermented vegetables. Getting my gut flora back on track has helped me the most. But I can only truly eat a few solid meals a week, anything more and I get sick as shit.
@Make Money With Kiesha Best thing I can say is to go onto a liquid diet and then start introducing solids back in slowly to see what foods are easiest to pass. Ensure is a good thing to keep around or some sort of meal replacement shake to make sure he's getting at least the daily needed vitamins and minerals for those times when the gut is messed up and things arent wanting to pass. Everybody is different so some things will effect your partner more than others. I also fast 1 day a week to help to allow things to eventually pass. It's not fun and can cause lots of discomfort but it is manageable with some self control.
HAPPY BIRTHDAY IZZY!!! This video was really interesting! I am so glad you have improved, I remember watching videos when your GP was a lot worse, and I am so glad you are seeing improvements!
Were you ever tested/treated for MCAS? The food sensitivities you describe sound so much like that, and I’m pretty sure I have gastroparesis and MCAS, on top of hEDS and POTS. Very glad you’re better now!
Happy Belated birthday Izzy❣️🎂🎈🎁 God bless gas-x that’s for sure, it’s the gift that keeps on giving! Lol so glad to hear you are feeling better with your Gastroparesis and hope it stays that way! 👏🏼👏🏼 stay well xoxo💜💟
Happy Birthday! I hope that your dreams and wishes come true? My entire life has had a very hard time eating lots of foods and as a kid, I use to have family and friends who use to tell me that I was a picky eater. I have never really been able to eat things like salads many different types of vegetables and fruits. I am very limited when it comes to things like mayo mustard and many different types of spreads etc. When I ate things like this I would get sick to my stomach very easily and sometimes things like smell of these things can get me sick. I can't eat things like a fresh-cut tomato or many different sauces. I can't drink tomato juice but I have had very stripped down smiled spaghetti sauce and I can handle that but if there are things like onion peppers celery cucumbers etc in it I can't eat it. When I go to a restaurant and the waitstaff ask me what I can't eat it is much harder to give them a list than them tell me what is in the food and I would have to let them know if I can or can't eat it. I thought that gastroparesis was something that couldn't go away?
Getting the ball rolling on a hEDS diagnosis but I know I also have POTS and gastroparesis, thanks for this video it will definitely help in the meantime :)
I’m in the process of getting diagnosed with gastroparesis.. my life has kinda sucked these past many months. I really really hope my condition will be able to improve, but rn it’s just gradually getting worse and has been for quite a while :/ I’m eating as much as I can manage but I’m so underweight and I just keep losing more. It’s just so hard and there’s nothing I can do. I was actually supposed to go to away college but couldn’t cuz of my illnesses. I’m alone so much of the time and no one around me really understands what I’m going through. I just feel like I’m missing out on so much. I really wish I could just be a normal teen :((
hey you're not alone. I am in the exact same situation. And i've never heard anyone describe it in a way where I've related completely. I am also in the process, hopefully both us can get some treatment soon
This video officially made me not feel alone. My life is horrible because of this crap. Thank you for making this video and reaching out to others.
Big hug to you. You are not alone. We’re in this together I totally feel your pain. Stay positive and it WILL get better ❤️🩹
@tiggerandpoohi202 Have you got any better? (((Big Hugs)))❤️
Lmmlmlmmmmmmmmmmm?
I am experiencing similar problems for 3 years now, I have literally gone from doctor to doctor without getting a proper diagnosis. When I tell people about my issues they always blame stress and underestimate the impact of symptoms on my day to day life. It is so nice to connect with a community that is able to relate to this. Big thanks for sharing!
because the medical people are corrupt i hear this so many times
Investigate gastrointestinal Beriberi - acute Thiamine deficiency. Thiamine (B1) is crucial for Nervous System functioning, & it is the Nervous System that controls the digestion. Many of us are extremely deficient. Elliot Overton (EONutrition on here) has lots of videos on Thiamine deficiency & all the issues it can trigger, including digestive.
It’s helped me. I prefer it as Benfotiamine. I also take ginger & artichoke extracts.
Thiamine deficiency is a big driver of Dysautonomia, POTS, & other Nervous System Disfunction.
Same
That's me last 4 years now..
My family not believing me was the worst part
More fluid in between meals and smaller food plus running helped alot
I hope no one experience what i have been going through
Same for over 2 years now. Due to methadone & I’m trying so hard to get off . Drs DGAF
I literally feel your pain, girlfriend! hEDS, POTS, and Gastroparesis here! 41 years old and just finding out now what the heck is wrong with me! Thank you for sharing. The best part of getting a diagnosis is being able to connect with others who "feel your pain" because it is such an isolating condition. God bless ya sister!
Have you gotten checked for mitochondrial disease by any chance? POTS,HEDS and Gastroparesis is very common in Mito patients.
@Penny are you okay 💖
@Penny God bless you Penny you are loved :)💛💛💛
How are you doing now? Any improvements?
Same here PoTs/Dys and gastoparies along with a host of other issies and 41yrs old to. I think the gastoparies causes SIBo as good sits too long. Feel beter if fast but being severely underweight and looking disgustinly thin makes it difficult to fast.
Thank you so much for this information. My wife suffers from gastroparesis and we came across this video a couple months ago and got some Betaine HCI the next day. She hasn't had a problem in 2 months now so thank you so much.
How is your wife doing now? How many tablets was she taking? Reply is appreciated.
@@deekap8387 she's doing a lot better, she only takes it once or twice a week. She's a little frustrated at that fact that she's went so long not being regular now that she is she always grossed out🤣🤣🤣🤣🤣
@@iam007derf9 thanks for the reply. Yes I have been suffering a lot for the past 50 plus years as well. Drs told me it’s idiopathic just no cause- and due to that probably I just got diagnosed as type 2 diabetes. I am very thin with no meat on my body from Gastroparesis. I can’t even lose any weight from my body to reduce the sugar. I might try Betain HCL before starting metformin. Bec I could see that the day my sugar is high are the days my gut has issues. I have been reading a lot abt HCL for the past couple of years but my drs scared me saying I will end up getting ulcers and was so scared to start. Now I feel a little better reading your comment. Thank so much for sharing that. God bless!
@@iam007derf9how was your wife diagnosed with this and how do you get Betaine HCI? Is it a supplement that you buy? How much does she take? What were her symptoms? How long did she suffer before getting better? Sorry for so many questions but I’ve suffered for a year now and have asked ppl many questions on this subject and other stomach disorders but no one will hardly write me back. Thank you for reading this. I’m desperately looking for help. I’ve had a colonoscopy/endoscopy and all they said was I have GERD but it’s more than GERD! I’ve lost over 40 lbs bc of barely eating for so long and PPI’s prescribed for GERD do not work and just make me feel sicker to take. 🤦🏼♀️
@@Debbie-Savings not really sure about the details of her diagnosis but we buy that stuff off Amazon and the price ranges from 15-50 per bottle depending on the brand.
I am literally crying right now. I can’t believe so many others understand what I am dealing with. The bloating is so annoying. I’m quit tiny, so my distention is noticeable. I completely stopped leaving my house other than work. I consistently get asked when I’m due, do I know what I’m having, etc. That said, I would still take that over the pain any day. I have had every test you can think of. I not only deal with gastroparesis, I just won’t have bowel movements at all. I once went 28 days. I’m constantly in the hospital. I just want a normal G.I. system like everyone else. Nobody can find a reason for any of this.
Are you on probiotics? What meds are you on ?
Hey have you tried getting a stool test for parasites? For me, a salmonella infection that was in my body for a year at least caused gastroparesis :(
I'm so sorry I know the feeling.. did you suffer also from shortness of breath
@@tennisislove1 dang!! Were you better after treatment?
For some reason, I've had good results from artichokes in the jar. Some work better than others. I went to an Italian restaurant once and I had 1 piece in a dish and it literally cleaned me out.
I've had gastroparesis go over 21 years and no one unless they've been through it for that length of time I truly understand how it affects every aspect of your life in a negative way not even close
How do you manage it? What works for you?
I totally understand what you are saying.i have suffered for years...no one really knows how it effects every decision you make unless you are struggling with this.i have tried so many things I have lost count.
I have had gastroparesis for about 3 years now. What really helps me is regulargly doing cardio exercise (I now run 6 days a week). I don't know if it psychological but I can totally say that it helps me with creating appetite and reduce the nausea. And coffee after food also helped because it sped up the digestion.
My doctor saying that the damage come from when I had a C-section and caused some type of problem which cut off my pH balance in the stomach. And there was a doctor. She knew what I had and she said she just have to control your pH balance by eating certain foods.
That makes me SO HAPPY to hear about the coffee thing lol
I agreed with you. As you know, the exercise increase the digestive system and every meal that I have or in between I make sure I drink at least 6 to 8 glasses of water a day.When a person has gastroparesis, they don’t have a proper pH level, I massaged my stomach in a circular way about 27 times and stated it helps to digest and wakes up the stomach. And he told me to stay away from greasy food.
Regular coffee with cream or what?
What caused your gastroperis
I’m an older lady and a former nurse. I just wanted to tell you that this video helped me a lot. You are adorable. I hope you are doing better. Thank you for sharing this information.
I had covid. Then mono, then lost 30 lbs. and it was 6 months until I had any improvements. Then caught covid again after sinus surgery and it triggered the gastro and every single thing you said was my entire life. My jaw dropped when hearing this. I sent your video to so many people close to me just to say like hey! I’m not alone! I’m not the only one. I’ve felt so lost the past year while dealing with that flare without knowing and now am battling pots in full force and I am so ready to get through this. Thank you so much for putting my thoughts into words and speaking about it on a platform. Your videos are awesome you’re awesome. Keep being you! Thank you. ❤️🤍
I totally relate to the bloating thing! I hate looking pregnant :(
yeah it really is not the best look sometimes hahaha
Me too ! I'm so self conscious of it that I wear x large shirts to hide it . I have a gj feeding tube. If I don't vent my G port I look 8 months preggo ! Thanks for posting this video I needed the positivity of it
@@IzzyKDNA / hey sweety ! How you doing ? I m very glad for you that you got over your illness !
I ve few things that i wanna to tell you about my health !
Recently like a week ago ? I got constipated and my stomach felt bloated , i couldn t digest what was inside my stomach nor vommit it ! So i had to go to hospital asap for an emergency . I remember that day i lost my apetite , felt dizzy , bloated as if i m pregnant !
Doctor examined my blood pressure and it was fine , my heard rate also was fine too so he took me for an X Ray and this was the worst part for me cause i got so scared fore the result ! Lots of negative thought came to my mind untill he came back to me and told me that i have constipation therefore he recommended me to take some of the laxative and fiber pills !
And now there is a slight a tiny bit of improvement but i still have stomach bloating when i eat so i can eat regularly anymore ! I focus mainly on fruits and veggies as doc told me and i try tp drink lots of water i even skipped my favorite almond milk and decided to go for tea for my breakfast instead !
What do you think of my condition ?
@@meaganlaplant3363 / oh my God its so hard i can tell how hard and miserable it is ! I hope you get well soon and be back to your normal life i wish it to you from the bottom of my heart cause i know how it feels like
Ya I’m really uncomfortable and I guess gasx in the am bc stores are all closed right now. Thank you for sharing.!
my bloat looks just like that i swear you can see my actual stomach pushing out
You can see my belly blow up too, just like watching a balloon 🎈.
Me too!
YES DEFINITELY you can see fhe definition of the organ
Yep me too
Mee too what I do now
Thank you so much for sharing your experience!! My mom was diagnosed with EDS in her fifties, and it is quite a learning curve trying to find information related to it. The best info I've found is through the experiences of other people, most doctors don't seem to be educated on this.
Most doctors don't seem to be educated on a lot of things. This includes EDS, gastroparesis, etc. It's quite sad, disturbing, frustrating, etc., but I guess we've got to just deal with the lack of info/knowledge that plagues many in the healthcare industry. :(
Omg! I have all these symptoms and havent been diagnosed. I was diagnosed with IBS and chronic constipation. Thank you for sharing. I cried because I feel like someone out there can relate! 🙏😩
Chronic constipation is definitely a symptom. My daughter is struggling with gastroparesis and it's breaking my heart. Her nausea and constant vomiting is so hard for her and hard to see. I hope that you find relief and are diagnosed properly for whatever your ailments are. Good luck!!!!
I was also diagnosed with IBS and chronic constipation 3 years ago. Last week I was officially diagnosed with gastroparesis.
How are you now? I have similar symptoms.. it's horrible
I was tested for gastropsresis but I think the lady didn't do the test right. I have all these symptoms.
I want to try digestive enzymes again but years ago I tried them and it caused pain. Like something was eating my stomach pain. I can't find anything on why this may be.
It's good to learn about protein. I ate a lot last night and woke at 5 am vomiting. This is a terrible disease so thank you for the ideas.
the end of this video- this is why i love your channel!🥺 hearing from you and all these other people that it IS real, it’s not just in my head. other people have these problems. connecting with other people who relate can make the worst days feel a little better
i’m so glad you do this, thank you from the bottom of my heart. i hope you start to get even more recognition for all that you do
Thank you so much!! It means so much to me that others can relate to me and that we can all connect online
What are your symptoms?
I just got diagnosed with gastroparesis and am def in my symptoms today. Big needed this. 🖤
Crystal Saltrelli has great information and books as well
How are you feeling now?
Gastroparesis is caused by thiamine deficiency
@@hrishikeshkulat1637 sorry sir where did you get this information from?
Thiamine b1
The more I watch the better this gets. I'm so glad I found this.
Just commenting to help get this video recommended to people, it's SO helpful and even though I don't have gastroparesis but other stomach and bowel illnesses, I'm definitely going to try and get some of the things (let's just pray that they're available in my country or that there's similar stuff). I've been trying to find something that helps my nausea for so long but nothing's helped so far
Have you tried medical marijuana? If that’s legal where you are?
WOW! 22, confirmed HSD'er, suspected hEDS'er, literally have been in and out of the doctor for gastro issues. Shocked to see this come up!! Thanks for the video x
as someone diagnosed with celiac disease in 2009 it's really good to see videos about people talking about their experiences with stomachs and intestinal issues and the things that come along with it.
Do you also struggle with GP?
I've had gastroparesis for 9 years. It's been a lot of trial and error. Betain HCL burned soooo bad when I tried it, never again. Tums was my saving grace for so long but then my calcium levels were high. My doc put me on Creon (digestive enzymes) and that made a world of difference.
Thank you so much for your comment just wondering if you are based in the US or Canada I’m thinking about asking my doctor for the Creon digestive enzymes that you mentione, can you buy it over-the-counter or you need a prescription?
Thank you, and God bless you.
I got diagnosed with Gastroparesis in Summer 2017, and am so thankful that you make such informative health videos!!! Great for raising awareness to this condition, thank you thank you! 🙏🏼 Also SO thankful to hear you’re feeling so much better!!
How are you now? I am currently dealing with slow gastric emptying
I look pregnant with protein or grains. Betain HCL is great, but even greater is organic apple cider vinegar 1/2 teaspoon in warm water first thing in the morning.
be careful not to get gastritis because of the acids in vinegar
@@user-ij5rq8hx1cdrink slippery elm or aloe Vera to counter the inflammation, it kills and coat that stomach wall and helps heals ulcers. It is coated and slime that acts like your stomach lining. Look it and do research how magical this slippery elms and aloe Vera.
Vinegar slows the emptying process so be careful I took some and was in pain for days
@@bees.3140 your stomach is just weak, you need to coat it with slippery elm to heal it. You probably have gastritis, apple cider vinegar helps acidify your stomach which helps digest foods faster and boost your metabolism. Breaks down proteins and fats.
@@keithjay4944 I have gastroperisis and take a vinegar supplement but it’s hard to tell what works and doesn’t when you have a flare up just started taking Betain hcl with pepsin 🙏
Omg thank you so much for this video! 😩🙏🏼💖 I’ve had Gastroparesis and neuropathy due to my diabetes since 2018, but I’m barely researching more about my new conditions, it helps a lot to know I’m not alone in this, and all the help and advice you’re sharing, so thank you! I’m definitely going to try all these. 🙏🏼😊
Hello, I know I am super late, but did you find anything to work? Also I am so sorry, my husband deals with this everyday and it kills me 😞
Hi! What's your age when you contracted diabetes? And did you also encounter other digestive issues such as constipation?
I just happen to have some HCL on hand. I will start with this. I am happy you mentioned the Dr told you to increase your dosage of the HCL. I never would have taken 6 or 8 xapsules per meal. Already my stomach muscle are relaxing within just ten .minutes of taking it. . I will get the enzymes next. Thank you so much for making this video. Your story has helped me tremendously already.
Did the retained help or cure you? Or the enzymes since the have the Betaine included? If so what dose did it take you and are you still having to take anything for the Gastroperesis? Thanks so much
I really like how you draw out the timeline for your symptoms! That's really helpful. I noticed my gastroparesis got better since my doctor increased my Midodrine. It is so weird! :-) But whatever, as long as it's getting better, it works for me
This is incredibly relatable. I was dx'd with collagen gastritis related to celiac (and I'm also an EDSer, so, fun) after several long-term flareups where I'd lose a significant amount of weight in a short amount of time and only subsist on liquids, dietary changes, enzymes and stomach meds and managing my autonomic symptoms has been doing wonders. (I'm back to cramming 2 - 3K calories and being sporty, again!)--really neat to see that I'm not alone in conquering severe GI symptoms.
How were you able to fix it? I've been having it for 2 years and my doctors haven't been able to figure out anything to help. It's very painful.
@@Rls_0523 starting totally from scratch with drinking liquids with supplements, then eating eggs, then working up slowly to light but nutrient-packed foods until I can eat "normally"--I still have bad days/weeks and relapses/flare-ups, but I have much longer stretches of being able to eat comfortably.
@@vampirebottom thank you! I did that for a year, with liquids only for the first few months. That was before this swelling started though, so guess I'll have to try it again. I barely eat as is bc of the pain and swelling plus I can't taste anything, so it won't bother me doing just liquids. My Dr won't like the weight loss this time though.
Hello can I speak with you about this. What kind of juices and liquids for example? Can I give my phone number on here? I am getting desperate and severe low weight. Please and thank you
Love this video Izzy, yeah my gastroparesis started mild and has gone crazy in the last few years in part thanks to having my gallbladder removed (according to my doctors). The bloating is annoying, but the nausea and pain just bug me sometimes until I quit food for a bit and just do fluids for a while. Thank you so much for all you do.
Hello, I had intestinal paralysis when the gallbladder was removed. I visited more than one doctor and did not find a solution
I find drinking slim fast helps me.
Hi! I hope you have kinder days ahead.
What were the initial symptoms you exhibited that led you to consult a doctor?
@@user-ho5dx7dq1chow are you doing now? Have you improved yet?
What fluids work for you friend? Shakes? Juices? Thank you very much
Its so weird how you talked about protien hurting you. It hurts me too! Im almost vegetarian because of it and i didnt realize it until you said something. Zebra here. 💙
Thank you so much for posting this!! I was recently diagnosed with gastroparesis and gastritis. I felt as if no one understood. I was so sick all the time. The doctor prescribed the meds that you mentioned in ur video. I have seen a little improvement. You have made feel like I'm not alone. Thanks again! God bless you. I pray that you continue to feel better. Happy belated birthday 🎉🧁
Any updates? How are you feeling now ?
Have been dealing with both for 33 years. I have my good and bad days.
You're so young. God bless your little heart. Well my condition just developed. I'm 64 and its so terrible. However, thank you so much for your educational video. You're such a sweetheart. God bless you †
OMG you just helped me so much. I have every single symptom you did and I just dont talk about it...well until I cant hide it anymore. I am going to make a doctors appointment. Thank you so much!
I’m a real bloater
Have to eat tiny meals
Thank you for all your help
Hugs
Me too! I am going for a pop procedure may 11th. It widens the opening to your intestines. Hope you feel better
This definitely made me feel a little less alone. I went completely gluten and dairy free along with an acid friendly diet and nothing helped. I've been dealing with what I thought was Gerd for almost 4 years. I'm 18 now and I've recently got diagnosed with partial gastric paresis. The doctor I am going to also suspects that I have pots, and possibly Ehlers Danlos syndrome.
The worst thing right now is either the upper stomach pain or the severe acid reflux. I feel so lost right now, I've bounced from acid reflux medications, anti nausea medicine (dissolvable Zofran works miracles for me). Just since I've been to college getting sick and the nausea has been worse.
I notice that bread is easier to eat, and doesn't give me as bad acid reflux. Any sort of liquid makes me feel full after only a couple sips, but coffee helps with the nausea. I had an appendectomy in March of last year and it seems that since then everything just went downhill since then.
I hope this might be useful to someone? I am so proud of anyone dealing with this at any age. I know for me it's been a rough trip, and I can only imagine how it is for others. Just keep your head up and don't let any doctor tel you how you are feeling. You are not crazy, and we will get this figured out.
In the beginning, I had a journal for the food that I have eaten and if there’s any reaction. It is usually a pH imbalance; a normal pH in our stomach is 7.5. Gastro paresis patient has very low pH level. So what I do I drink a lot of water and I take fennels capsules three time a day and it’s a herbs. I always have a salad with oil and vinegar, and it helps my stomach. The reason is the vinegar helps regulate my pH balance. And I have surgery to repair. And massage your stomach in a circular fashion about 27 times. The reason is, it helps to digest your food . Try ginger tea that helps a lot with me. Take the tea at night it will help you. These are remedies.
Hi what area of your stomach hurts? I have gastroparesis too and am about to undergo tests for a pain in my abdomen. I never thought about it being related to gastroparesis
Bread helps me too. I use my heating pad all the time. I take Dexilant for acid reflux/GERD. It is normally once a day but now I have to take it twice a day. I have a lot of nausea and abdominal pain, upper as well as on the left side. I also have chronic pancreatitis. The two together are crazy. I don’t throw up. I feel like I need to and would feel better if I did. I have extreme amount of food allergies now which limits a lot of foods available to me. I am overweight and it seems my body retains the weight. Even with smaller portions and with limited things to eat, I still seem to gain or not lose. That seems strange to me. The abdominal pain gets excruciating at times and bloating. My Dr said I am a complicated case. How rewarding is that? She says what works for most people doesn’t work for me. I know I am tired of worrying about what and if I eat if it will make me sick or that I have missed out on something because of being sick. Sorry so long. It is nice to know we are not alone in this fight.
I've had gastroparesis my whole life. I used to be insanely skinny, like ribs show easily when I lifted my shirt. But the bloat i'd have reminded me of the National Geographic photos of distended bellies.
Sorry for to many questions Elizabeth, but i am suffering of gastroparesis and you experience could help me. Has your gastroparesis ended? And if yes you have done something like surgery etc... or it solved by it's one.
P. S.: how many years did I you had gastroparesis?
How did u put weight on?
Happy Birthday! Hope you have a great day! We all love you
Thank you so much!!!!!
This was very helpful, thanks for posting! It’s crazy reading the comments and seeing how many people have the same combination of issues: boating and gastroparesis, POTS and EDS, but if you talk to doctors they act like they’ve never heard of any thing like it… and yet I keep finding more people with the same symptoms as me! What the heck!
Yep, I’ve been dealing with this since I was a child. It’s so uncomfortable all around but really sucks when it comes to clothes because you feel so much bigger than you actually are.
Legit! When I was at my lowest weight it never felt like it because I was so bloated the entire time lol
Exactly, in the early morning when the bloating subsides before eating I have a regular stomach circumference but as soon as I eat anything it starts ballooning. I have endured this long enough now to find better ways of eating. I already noticed foods in the slow cooker are much easier for me to digest and I know now why. I guess I will have to stop eating large meals too, because the bloating is literally painful.
I've gad gastroparesis symptoms for a while and what ive found very helpful to me has been few things:
* Ginger juice. I drink it before every meal. Just one or two big gulps or a big shot. I also may drink a lil bit after if it's a heavier meal
* I take digestive supplements like peppermint, fennel seeds, cayenne, licorice root, etc.
* Prune juice. I drink a cup at night before i go to sleep. This helps me have a good bowl movement when i wake up in the morning which gives me more energy throughout the day. Also in my morning routine, i drink 1 or 2 bottles of water and a can of coconut water, all which help my bowl movement tremendously.
* Exercise. It doesn't have to be strenuous. But moving my body in some kind of way "consistently" has been very beneficial to my symptoms from going to the gym to simply walking at least 30 minutes 4 to 5 days a week or walking right after a meal.
This is what i do daily. I'm still not at full health but im in a way better place than I was from when i first started dealing with these issues. Also early on in this journey, i tried alternative methods like electro acupuncture and the chiropractor. Both which helped but can be a lil pricey depending on your budget. Massage therapy is great too. Finding your routine and staying consistent is the key. I hope this helps some one. Stay strong 💪🏾🙏🏾
Really interesting video. I find gastroparesis so hard to deal with. The pain, bloating and nausea can just be so overwhelming and having to eat just makes it worse. Was interested to hear you talk about your POTS getting worse around the time you started taking Duloxetine. I’m on Duloxetine at the moment, but my POTS specialist wants me off it as he says it’s like POTS in a pill (in that it makes POTS symptoms so much worse!) I had no idea when I started taking it, so now need to gradually come off it. It’s really good to hear your gastroparesis has improved. Mine seems to be manageable for a while, then it gets really bad for a while and then becomes more manageable again, so it’s always a bit unpredictable xx
oh wait I might not have been super clear lol. My gp started getting better around the time I took my duloxetine. but it's interesting to hear that your doc said it could make it worse! I hope going off the duloxetine can give you some relief
OH LAWD. i have severe depression and anxiety from chronic illness. i also have POTS and was recently put on duloxotine to help my anxiety 😭😭 i was wondering why i couldn’t get out of bed as easily anymore. thank you for sharing
@@IzzyKDNAso what do you think actually made your GP better then? Thanks so much
My syptoms are so so bad and I don’t have a doctor that wants to help, I am so glad I was able to see this!!!
BETAIN IS amazing !!! Lots and lots of videos on it to help with many stomach issues. Very worth researching and taking
@Izzy Komblau ... If your Drs had their act together they'd know that low stomach acid, GORD (reflux) and Gastroparisis are l8nked. Betaine HCL helps restore the ability to digest your food easier. Most Drs really don't understand the links to all of these gastric issues.
Happy birthday!! I'm in the process of diagnosis right now and your videos have helped me feel way less alone:)
@Tara King it's a process and it sucks, but we survive and grow and learn so much:)
THIS IS SO HELPFUL. Also feel you on the clothing thing.... some lady literally asked me if I was pregnant because of my bloat.... its a funny joke between friends but holy when someone you've never met says it it sure hits different.
yes omg it hits SO differently if someone you don't know says something like it.
Yes, it makes shopping for clothing extremely uncomfortable.
And then I think, oh gosh this bloating makes me like two sizes bigger.
Excellent video!!! Thanks for jumping right in 👍🏽
I haven’t left my house without simethicone for at least 17 years. I prefer the chewables in case I find myself in a painful situation without any water to sippy capsule. And I only found out about two weeks ago that one of my diagnoses is Gastro paresis.
For anyone wondering, simethicone is the primary ingredient in gas x; And it’s also used in those infant drops for colic.
For those suffering from this, something that really helps me and keeps my symptoms completely gone is acupuncture. I tried everything, prescriptions that do not helps and sometimes make it even worse, HCL and Enzymes, which help reducing the time I feel bloated, but don't bring a complete solution. I tried different types of pre and probiotics, which also help, cause the food not processed correctly ends up in the intestine and it starts creating other sort of imbalances. Tried Matcha teas, different stress control pills. Everything seems to help a bit, but nothing cures it.
Until I tried Chinese acupuncture (Chinese, not korean, not japanese, the techniques differ). I was skeptical at first, but tried so much shit that why not try this also?
The day following my first session I felt like a balloon just popped. I was gassing out, farting like crazy. That continued for like three days. Next week, another session, I started feeling that my lower esophageal sphincter was now closing better, so reflux was getting better, and less inflammation.
I did four session. After the 4th session I was like new. I mean it, I felt like I hadn't' felt for years. So I stopped doing it, and slowly the symptoms came back. Two months later, full symptoms back. So I went again and had two sessions, and feeling almost 100% again. I am planning on doing one session every other week to keep me going. All I can say is that whatever nerves terminal those little needles stimulate, it works.
Happy birthday!!!🎈🎉🎁 And thank you so so much for this video! I'm currently going through a lot with my Gastroparesis and it's honestly so hard, but watching this was honestly so comforting. Thank you so much! Sending you so much love! 💕💕💕
Compazine is really old medication, I didn't know they were still available, ty for letting us know. I've had same issues my entire life. Nexium 24 and Tums help a bit as far as GERD and vomit issue due to the gastroparesis/ibs-c and the only thing that kicks my severe nausea is Zofran 8mg, 2 to 3 times per day. The 4mg Zofran do absolutely nothing nor does Phenergan help at all. Meclizine, over the counter, surprisingly helped the nausea sometimes although it's for motion sickness, not nausea caused by other issues, still, one may try it since it's OTC. It's odd, I had Mono/nucleosis in the 7th grade, 40 years ago, constant digestive and exhausted and asthma ever since. This little tidbit, regarding Mono you spoke of was extremely helpful to me, thanks very much. Be safe with side effects with all the meds. I am allergic to many meds so I wish you the best with it all. God bless.
I have suffered horrible bloating for 10years. My first gastric empty showed nothing, but then I got worse. I was finally diagnosed nov 2020 and met with a specialist at the digestive clinic in Cleveland. I did the smart pill and the pill stayed in my stomach for 21 hours. I was told no medicine would help me. On May 11th I am getting the POP procedure to widen the opening where food empties into your intestines. Weight gain is my issue. I just get so distended and I don’t throw up and I feel sick as hell. Great videos. Keep passing on your knowledge.
Any results or updates on if that surgery is helping now?
Any update?
this makes me feel sm better, I’m in sm pain and it feels like nobody cares abt what i’m going through and nobody can help me, so thank uu very much :)
Just wanted to comment that although I don't have gastroparesis or any of your medical issues I still love watching your channel because I relate so much on a general chronic illness level. Like sometimes just knowing that someone else is dealing with the major BS that chronic illness brings into your life makes me feel less crazy and alone. Also, HAPPY BIRTHDAY fellow pisces queen!
You are a life saver, thank God for sharing. I took a chance on the products you tried and it was a miracle cure !!!! I was sooooo sick for years and in a few days I felt soooooo much better . I lost weight and now can eat almost anything. Thank you soooooooooooo much.
Which med worked?
Happy Birthday have a wonderful day 🎉
THANK YOU!!!!
I know this sounds crazy, so feel free to look it up, but HCL increases stomach acid to help with digestion and tums/any anti-acid medication does exactly that… they are acid neutralizers. So 1) no point in taking them together or in close proximity for sure and 2) anti-acids can actually create bigger problems down the road.
If I’m having heartburn after eating, I take the HCL because it means my stomach isn’t handling the food well and needs acid, if it gets worse you can neutralize it by drinking a very small spoon (like 1/4 tsp) of baking soda in a glass of water. I avoid any anti-acids like the plague but do whatever your doctor says (although imo they hand out omeprazole like candy). If you’re having heartburn and you haven’t eaten in a long time (many hours), I’d take an antacid and get with my doc. That can be a sign of stomach ulcers, serious GERD, hiatal hernia or even a heart attack
Also, gosh, eating raw fruits or vegetables isn’t a great idea, unless they are in a smoothie and even then I wouldn’t overdo them. The raw fiber is hard to digest for a normal stomach. A low residue (low fiber) diet would help, and also meat is very hard to digest. Plant sources may be easier for ya (soy, pea protein, etc).
I’ve been having problems for a few years and thought it was related to my hypothyroidism, but it’s progressed and I have “stretchy” or bendy joints all my life, but it turned into almost like arthritis. I still pop, bend, stretch and my big joints are very (oh my god) unstable so I started searching after all the tests came up negative for anything RA/arthritis related. Both the hEDS or classical fit me, so I’m getting genetically tested soon to know wtf is going on. I’ve been told I have sojourns, possible arthritis (besides pain, no proof of this at all, even the blood markers and inflammation don’t point to it), possible MS, possible, possible, possible, etc. nothing fits, the blood exams don’t show sh!t, but EDS does. Everything fits…. even way back to my childhood. Things I thought were normal …well, turns out they weren’t.
I’m hoping the genetic tests show something, so my husband will stop acting like I’m a hypochondriac (I’m not. I’d love for all this to *go away* )
Thanks for the videos you do!
Yeah I'd never take them together because it wouldn't make sense. Not sure if I said something in here that made you think that :)
So many differing views on meds and foods. Not sure where to start😢😢. Ive been listening to Dr Aviv and says total opposite😢
Still have a tube but I reccomend that if your doctor okays solids to try and keep your stomach moving. I am got a lot of shit from people in alone because it didn't make sense in to the public but we it changed my on quality of my life slowly overtime. The stomach is a muscle and if you don't use it you lose it. I am have never wanted to have a tube but it became necessary. Slow improvements with venting but my pain symptoms are the most long lasting with non plant based which is not the best for everyone but the only formula I tolerate is a plant based.(Kate Farms) It varies so much because of everyone's betting levels of emptying and paralyzed / gut immobility. I still have dysphagia and other movement issues and cant take oral daily meds I still use ginger chews and lemon ginger tea. 😌 This is such a good video.
YES such a similar story of slowly getting better with small actions. NO doctor did anything for my delayed emptying yet i was living on ensure and still throwing even that up with extreme bloating. Treating POTS helped. Treating MCAS helped more. Removing my low-functioning gallbladder made ALL the difference. I am so much better now. My bloat was just like yours and I was checked for cdiff multiple times
I’m so happy to hear these small actions and treating your mcas and pots helped!!!
Izzy, you are such a doll. Thank you so much for being so candid about your struggles with gastroparesis 14:09 . I am a nurse but I learned so much from you. You gave me hope that I can deal with this minster of a condition. I’m at the point where I can only have liquids. Can you recommend a meal replacement. So many of them have horrible and unhealthy ingredients, or they cause more bloat. Doctors have been useless in helping me.
I’m currently working on creating a DIY elemental diet. One of the first things I would suggest (which no one mentions) is start taking an amino acid supplement. If you’re not digesting food properly it stands to reason that could lead to protein deficiency. Without protein, the body can’t repair tissues. Amino acids will give the body the building blocks it needs to create tissues without the digestive challenge of breaking down proteins in the diet.
هل خزل المعده يسبب خروج طعام غير مهضوم مع البراز
Thank you so much❤❤❤ my boyfriend is suffering I hope this will help him. Peace, love and blessings to you.
Wow. I am in the process of being diagnosed (meet all diagnostic criteria for h-EDS... and waiting for genetic testing results), but my daughter (7) is showing signs of gastroparesis and I swear that the main reason I was led to figuring out my own diagnosis was so that I could better help my children. She won’t eat any protein, she says it hurts her stomach. Lately she eats very little and just had a two day episode of nausea and stomach pain with vomiting... and I don’t think it is a stomach bug. She eats fruit and carbs and nothing else. It breaks my heart, but I am so grateful to come across this so I can at least have some knowledge and not delay helping her any way I can. Thank you so much for sharing. I really appreciate your videos and insight. I am 42 and finally figuring out what is wrong with me and my siblings and my mom and my aunts... it is a wild journey.
Happy Birthday! Tums: yes they work, but better in the long term for me is Goli Gummies. I take one or two with each meal. After a few weeks, I don't need Tums. Otherwise, I take Tums every night.
I'm so glad you found something that helps!!
Using Tums all the time can cause kidney stones. Alka-seltzer (gold is asprin-free) works well, as well as Picot
Sounds like low stomach acid
I don’t have Gastroparesis, but I get nauseated quite often and the one thing that I have found that helps is nauzene! So I highly recommend it and it is over the counter so you don’t need a prescription or anything!!
HCL and digestion enzymes worked well for me, pro biotics
I bloat so bad that people think I'm pregnant, and I hate it. I've actually gotten into arguments with people who convinced themselves I was pregnant. I finally had to ask them how on earth I could be pregnant when I haven't been with a man in YEARS. Also, cloths is so annoying I have to argue with people because I'm not " that big" but I can't wear "my size" of pants because it hurts. There's not much I can do about it.
I’m glad RUclips recommended your channel.
I guessed you might be a fellow EDSer from your description of your gastroparesis! Zebra 🦓 power. ❤
For me, my upper stomach right above the rib cage gets super hard and distended and so uncomfortable. I had to cut out meat for most meals as well as potatoes. Just cutting those things out have helped me so much 😌
Sorry for your pain. Do you know if you have a hiatal hernia?
Me too ! I'm so self conscious of bloating that I wear x large shirts to hide it . I have a gj feeding tube If I don't vent my G port I look 8 months preggo ! Thanks for posting this video I needed the positivity of it. I have EDS Mito MCAS and gastreoparisis GI DYSMOTILITY and PSEUDO obstruction. Love your vids . Happy late Birthday
I have EDS and although I’ve never been diagnosed with gastroparesis, I do know my stomach acid is low and my naturopathic doctor did prescribe a digestive enzyme that also has HCL in it. However I’ve stopped taking it because I I’ve had strange symptoms since using it. I feel like maybe it’s an ulcer but to get into see a doctor during Covid is impossible. I’m hoping by not taking the enzyme it will eventually subside, this weird pain in my back that’s gone on a long time
Tums will decrease your stomach acid so not good to take them even though it’s nice to have the instant relief with heartburn!
Enjoyed your video!
To those of you who posted something similar to... "once I got my POTS, MCAS, or dysautonomia under control, my GP got better", could you please share the treatments and/or medications that improved these conditions for you? My wife has severe GP, and we may have to consider such options. Thank you!
How did you get your dysautomia better?
@@user-rl6od6io6h Hi. My wife never had dysautonomia, just very severe gastroparesis. And , sadly, she still has it worse than ever.
I’ve been dealing with stomach issues for at least 10 years now and have seen a few GI doctors and they just can’t diagnose me with anything but the symptoms you described I definitely relate to big time (especially the nausea and vomiting and lack of appetite and even how it gradually got worse and worse over the years) so this might def be something I want to talk to my doc about so thank you for informing me!
Use this medicine pantreprazole gastro resistence and Domperidone DSR capsule
@@debiagungte2091 thank u! I’ll definitely look into it
Any update? How are you.
I take enzymes, gas X, ginger candy, and acid reducing medicine for my gastroparesis too. I found all these things through trial and error as well. I avoid most of the foods mentioned too! For real! Just recently I was diagnosed with benign joint hypermobility syndrome and my doctor explained to me that because it's a connective tissue problem it CAUSES gastroparesis and stomach sensitivity too. I'm glad that I'm not alone in this. I have a friend who has EDS specifically and all these problems too. I really hope more awareness can be spread about the connection in these areas. It's such a rare issue in relation to joint hypermobility syndrome but I think it could be increasing more in recent years because I certainly know two other people with these problems.
It's HYPERmobility not HYPO? Isn't it low mobility?
@@void________ joint hypermobility, more commonly known as "double jointed." For some reason it can cause slowed digestion because the tissue isn't firm enough to process correctly.
@@moesisterson Oh wow! Gotta look up how that's related. Thanks. Never heard of such a thing.
Thanks! It's so cool to know it CAN get better. Most helpful for me was taking low dose naltrexone.
I am diagnosed with functional dyspepsia since i cant get the gastric emptying study where I live. Currently in a flare up. this video came at the right time
Gas x has been a miracle worker for my husband’s symptoms. Gastroparesis is such a terrible thing to deal with every day.
That's so sad.
I'm dealing with it myself 37 just figuring this stuff out, I pray your husband's situation improves.
Hello my name is Juanita I was diagnosed with diebtic gastroparesis a few days ago . I was scared because of some videos I had seen but I'm finding out that I am not alone in dealing with this. I'm glad to know that there beautiful women out there like u that are helping by putting videos out there like this I want to thank u for the suggestions that could or may help me cause I'm dealing with a lot of pain in my upper abdominal so I understand be strong and be filled with courage 😊 ❤
Sounds like all the symptoms I’m experiencing except for the nausea and vomiting. If I eat red meat or a lot of protein I’m absolutely done. Worst stomach pain ever. I’m just now in the process of getting it diagnosed. Thanks for the video!
I don't have gastroparesis, however I do have fairly constant IBS and food sensitivities. I was so intrigued by your experience getting worse after mono, because my issues started within a couple of months of a pretty intense experience of mono (I was hospitalised). Would love to hear more of your thoughts on the relationship between mono and your gut issues, I'm starting to hear this from others as well.
Jamie, I am now 59, but when I was 16 I came down with a horrific case of Mono. Ended up in the ER. The doctors and my parents were convinced I has Strep Throat. Nope. Mono. This was late August. I had my wisdom teeth pulled about 4 months later and my dentist was shocked at how bruised I had gotten. Then in March, my parents were called in to meet with my Counselor from my High School. They thought I has started taking drugs or something else was wrong,as my grades were dropping and I looked pale and was falling asleep in class. Long story short, I still had mono. Later in life I had chronic sinusitis for nearly 2 1/2 years straight. I was having digestive issues at 17. Found out I had Endometriosis. Later I got Shingles at a very early age of 42, months later I was still exhausted so they told me I had Post Herpetic Fatigue that I could possibly have for life. Next a horrible car accident which left me with Type 1 Brittle Diabetes which took them a year to figure out, as my liver was jaundiced and my gallbladder was filled with stones so I ended up in the ER and was told I had Diabetes. Five years later finally they figured out that at I had ...... Gastroparesis. It was no wonder my sugars had a mind of their own. So ALL of this could have contributed to the GP. I now keep my diet very simple which is easy as I am pretty close to home most days. I simply have a Protein Drink, a Protein bar which I break in half and eat mid-morning and mid-afternoon and a Smoothie with Protein Powder for my early dinner. For my nighttime munchies I allow myself to eat some Jumbo 🌻 Sunflower seeds. My boyfriend does not know how I can manage on so little. He does know though that for me Less is More, so he eats what he can and I do my own thing. I had not known how much he missed our meals together. So this also affects our loves ones and it just broke my heart when he actually thanked me for getting up to share a bowl of soup with him for dinner one night. It truly IS a game changer. So best of luck with your journey and may you find the foods which do work well for your body. I can warn you that if you do start to feel better and think you can eat like you used to please do so with caution. I would miss my salads, so I thought I had reached a safety zone, nope. Back in bed with horrific belly cramps and unable to eat at all for 2 weeks. Just broth. I have also become a vegan and stay away from gluten. So I hope this helps. Sorry for the lengthy reply, but I just felt the need to let you know you are so not alone. Stick with Izzy as her site is one of the top 3 I go to about GP issues. She is so good at sharing the information and her stories are so spot on. We are all so lucky to have her postings!! She is a delight!!
@@gastrogal5353 thank you for sharing your story and your encouragement :)
Jamie, it is my pleasure. I was lucky enough to have a grandmother in my younger years of life who raised me from 5 years old until 10. Then when I was 16 she moved back to be closer to me. When she found out about my having had mono for 8 months she moved me into her home and became my miraculous nutritionist for the next 3-4 weeks. She was a big fan of Mother Nature being a cure for just about everything. She put together some sort of drink in a blender and even sent me to the Nurse’s office for my Lunchtime smoothie each day. I know it was not the best tasting smoothie but I knew to trust my grandmother. I do remember she went to our local Natural Food store in town and bought all of the ingredients right there (we were lucky indeed). She also asked the school to let me go to the nurses office each afternoon for a rest period when I would otherwise be doing my Physical Exercise class. She believed body, mind and spirit had to be well rested, nourished and relaxed in order to heal completely. Well, in four weeks I took another blood test and the Mono was gone, and my doctor was rather surprised that I had finally recovered so quickly. My grandmother explained her nutritional drink she gave me each day, etc. and he was perplexed at first, yet then he said, “Whatever works!! Besides, you my young gal ARE looking so much like the gal we know, so keep it up”!! My grandmother was oh so happy. So much so she wanted me to stay with her until the end of my senior year as I was currently a Junior and was in need of making up a lot of schoolwork. However, my dad and his new wife wanted me at home with them. My health had been a challenge since I was very young. I believe my traumatic childhood played a big part in this as my mother was not healthy enough to take care of her children (I was the youngest of three) and so my dad divorced her and got custody of us. Those three years without a healthy role model who could take care of me I believe left it’s mark on me in many ways. Over time I have even had doctors ask me, did you suffer trauma as a child?? Yes, why are you asking? “Well, sometimes trauma can age the body and your body is no longer healing as fast as it used to when you were younger”. So my intuition was confirmed. Over the years I have found acupuncture to be one of my favorite resources for healing when I could afford it. I truly believe that if we can find balance in our healing between the East and Western cultures we have a better chance at getting well. So may you find the path that works best for you and as it seems you are already doing it, keep listening to your gut. The gut and mind are truly connected in oh so many ways. Also, I was taught to ask my inner self for answers while sleeping. Often times I was delighted with hearing what the next best choice was for me. You may have heard the saying, when the student is ready the teacher shows up. Best wishes for the best of answers!!
Yup same here, problems started after mono aswell
Hmmm, I found it super interesting that you were using products that lowered your stomach acid (TUMS) & then switched to a product that brought it back up (Betaine HCL). Sometimes acid reflux is caused by low stomach acid (sometimes high stomach acid) & TUMS or other products commonly used by doctors to treat acid reflux LOWER your acid even further. Although they help relieve symptoms for awhile (even as they further imbalance your acid production). So maybe you were dealing with low stomach acid when the acid reflux first started showing up, & then had to use a lot of Betaine HCL to bring your stomach acid levels back up after.
Yep I really think this is what helped her. It’s helped sooo many people. ❤❤❤
Thank you so much for sharing your experience! I just had a gastric emptying test this morning that revealed "delayed digestive emptying."
Did the doctor prescribe you something for that? Are you feeling any better or about the same?
@@aprilmartian5837 Yes, Fibercon tablets, Zofran, Bentyl. I also take Omeprezole and Align Probiotic for other digestive issues. A special diet. I had a procedure for my bladder as a result I had to stop taking Oxybutynin for overactive bladder. As a result my symptoms improved significantly. An unintended benefit to my overall health, wellness and quality of life especially gastroparesis.
@@dottyd76 Oh that's awesome. I wrote the medicines down to see if I can research it and benefit from it. I love to hear that someone's doing better, it gives me hope because sometimes it can be horrible to live with. Thanks for taking the time to respond back. Hope you have an amazing weekend! 💕
Please let me know if the medicine is helping. Are you taking the supplements mentioned here?
Just diagnosed February 1. Between your channel and another about gastroparesis i have learned alot! Thank you so much for posting this. Im new to this and didn't know what to do and you have helped.
I couldn't take it today and ate what i wanted. Well still in the easy to digest range BUT i have bloating. Heating pads are my friend now zofran.
I feel like ill never have pizza or a cheeseburger again. Or starbucks caffeine makes me sick so so does meat anymore this is a tricky ailment.
it can be so hard to follow such a strict diet, and i too have eaten things I KNOW i definitely shouldn't and then feel sick.
3 minutes in and im already in tears. i was diagnosed with gastroparesis in 2020 and it’s only gotten worse since. i’ve been to multiples doctors and none have managed to help me yet… im in debt with medical bills, yet my symptoms are worse by the week. i feel stuck and depressed and sick.
im nauseous 24/7 every waking minute. im bloated most of the time. i have stomach pain 24/7.
please, if anyone has any specific kind of doctor to go see, please comment. im currently trying to go on disability, since it’s hard to hold a job, when i constantly have to call of from being sick.
Did you try the HCl or even apple cider vinegar just to see if it helps any?
My daughter started mestinon a year ago and has not thrown up in 11 months !
omg that's so amazing!!!! I'm so happy for her
Thank you JN & Izzy💚
That gives me hope!
I’m going to talk to my dr FIRST & start the process to see if I can try to take this product. Hopefully it will work for me. If not, I still will not give up.
i had a similar situation, i was recently diagnosed with gastroparesis and had an upper scope and botox injected to speed up my digestion, it has helped TREMENDOUSLY!!! I've had so many improvement almost instantly, including my insomnia! I've suddenly been able to sleep at a reasonable hour and get up before noon! which has been very difficult my whole life:)
ahhh im so happy botox helped you! I've heard good things from others
@@IzzyKDNA thank you!! it is definitely recommended from me! and happy birthday ❤️
@@brooklyne3344 sorry Brooklyn, how do you feel now?
You are more informative than some physicians, thank you so much
My stomach was bloating really bad in that region too. It would eventually go down but hurt and felt super stretched. I've been on a modified low FODMAP diet for the past few months. I learned the trigger foods I've mostly been avoiding for years. My dr did prescribe a medication to jump start my stomach when it decides to stop. I had chemo and radiation as a child and I blame that and damage to the Vegas nerve/muscles
I'm really new to this gastroparesis thing. I was diagnosed with in October of this year(2023). I was diagnosed with colon cancer last year in August. Did chemotherapy. The Dr said it was caused by diabetes but I really do believe that the chemotherapy had something to do with it too.
Wow, this is an amazing video. I will keep this video for a friend who is in the hospital and he has a PEG. Thanks.
Very informational, unfortunately my 2nd cousin at age 3 was diagnosed and my aunt. However I knew nothing about this until now watching your videos. Idk but it seems jewish decent are more prone to stomach issues. Positive vibes!
Being active, bile salts, betaine hydrochloride but number one is Vitamin B1. Stay away from carbs and sugars will also help. No vaping, no weed. ACV will also help with heartburn and GERD. But I can’t stress enough that Vitamin B1 will help tremendously and 3-4x the daily amount.
Many of the issues you speak of here including pots are all often due to vitamin B1 deficiency.
What were ur symptoms before taking b1 and how has it helped you and also what brand and kind ur taking please share 😊
POTS isn't due to a vitamin B1 deficiency, that is misinformation. B1 deficiency can cause dizziness, but that isn't the same as POTS.
@@shaimaya1117Get a blood test to check for a deficiency first, if you aren't deficient taking 3x times the daily dose could be dangerous
Happy birthday!!
My bloating looks just like that too and I can gain 5 inches around my waist when I'm bloated. It even seems to extend up into my ribs..I mostly deal with it by avoiding the foods that seem to cause it. Which does leave me on a limited diet, but I do believe it has improved a lot too. Each time I was eating, especially with protein, I would drink the juice of a half lemon in water. Did that for many months and now I don't need the lemon juice. I also take a digestive enzymes called Ultra Digest from Gluten Free Society. I'm avoiding all grains and eat only fresh whole foods. Oh and my Pots symptoms seemed to have gone away once I stopped eating eggs and all dairy. It took a few months though. Both were skyhigh on the IgG test, along with flax and a bunch of other things. From what I read food sensitivities can go away but it can take years... Before I couldn't eat beef without getting severely bloated and now I can.
Airborne reactions are a much bigger issue for me these days. And I've seen to have gotten more sensitive since the shutdown. I think I have MCAS but no idea how to get that diagnosed! Believe it's linked to my autism and hypermobility. Even my toes are hypermobile! And here I had thought that was normal.
you are literally the mirror image of me with all of my symptoms and even the food intolerances wtf its so weird. i have had issues with terrible doctors not knowing why my stomach was having issues and me having pots symptoms but also my sister has ehlers danlos but they wont listen to me after even my kids have hypermobility as well as me.
I'm a type 1 diabetic with gastroparesis and the biggest help for me is I drink home brewed kombucha daily and eat a spoonful of homemade sauerkraut a day along with other fermented vegetables. Getting my gut flora back on track has helped me the most. But I can only truly eat a few solid meals a week, anything more and I get sick as shit.
@Make Money With Kiesha Best thing I can say is to go onto a liquid diet and then start introducing solids back in slowly to see what foods are easiest to pass. Ensure is a good thing to keep around or some sort of meal replacement shake to make sure he's getting at least the daily needed vitamins and minerals for those times when the gut is messed up and things arent wanting to pass. Everybody is different so some things will effect your partner more than others. I also fast 1 day a week to help to allow things to eventually pass. It's not fun and can cause lots of discomfort but it is manageable with some self control.
@@danecope7243 thank you so much ❤️
Happy birthday, Izzy! 🎈🎈🎈 I'm glad to hear that you're doing better with one of your symptoms/comorbidities!
Thank you!! 😊
HAPPY BIRTHDAY IZZY!!!
This video was really interesting! I am so glad you have improved, I remember watching videos when your GP was a lot worse, and I am so glad you are seeing improvements!
Thank you so much!!
I just got diagnosed and this is helpful so thank you
Were you ever tested/treated for MCAS? The food sensitivities you describe sound so much like that, and I’m pretty sure I have gastroparesis and MCAS, on top of hEDS and POTS. Very glad you’re better now!
Happy birthday Izzy! Hope you have an awesome year, love learning from you.
Happy Belated birthday Izzy❣️🎂🎈🎁 God bless gas-x that’s for sure, it’s the gift that keeps on giving! Lol so glad to hear you are feeling better with your Gastroparesis and hope it stays that way! 👏🏼👏🏼 stay well xoxo💜💟
I use gaviscon and pantaprosole, they work pretty good
I have lost about 40 pounds so far, any idea for help
Happy Birthday! I hope that your dreams and wishes come true?
My entire life has had a very hard time eating lots of foods and as a kid, I use to have family and friends who use to tell me that I was a picky eater. I have never really been able to eat things like salads many different types of vegetables and fruits. I am very limited when it comes to things like mayo mustard and many different types of spreads etc. When I ate things like this I would get sick to my stomach very easily and sometimes things like smell of these things can get me sick. I can't eat things like a fresh-cut tomato or many different sauces. I can't drink tomato juice but I have had very stripped down smiled spaghetti sauce and I can handle that but if there are things like onion peppers celery cucumbers etc in it I can't eat it. When I go to a restaurant and the waitstaff ask me what I can't eat it is much harder to give them a list than them tell me what is in the food and I would have to let them know if I can or can't eat it.
I thought that gastroparesis was something that couldn't go away?
Getting the ball rolling on a hEDS diagnosis but I know I also have POTS and gastroparesis, thanks for this video it will definitely help in the meantime :)
I’m in the process of getting diagnosed with gastroparesis.. my life has kinda sucked these past many months. I really really hope my condition will be able to improve, but rn it’s just gradually getting worse and has been for quite a while :/ I’m eating as much as I can manage but I’m so underweight and I just keep losing more. It’s just so hard and there’s nothing I can do. I was actually supposed to go to away college but couldn’t cuz of my illnesses. I’m alone so much of the time and no one around me really understands what I’m going through. I just feel like I’m missing out on so much. I really wish I could just be a normal teen :((
hey you're not alone. I am in the exact same situation. And i've never heard anyone describe it in a way where I've related completely. I am also in the process, hopefully both us can get some treatment soon