Living Well with Parkinson's: A Conversation with Brian Grant and Davis Phinney
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- Опубликовано: 26 июл 2024
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Brian Grant had a long and successful 12-year career in basketball. In 2008, at age 36, Brian was diagnosed with Parkinson's. Davis Phinney was an Olympic Bronze medalist and Tour de France stage winner who claimed the most victories of any cyclist in American history. In 2000, at age 40, Davis was diagnosed with Parkinson’s. Since being diagnosed, both of these athletes have made it their mission to do everything they can to thrive not just survive with Parkinson's, and inspire others to do the same.
In this genuine, inspiring, and relatable conversation, Brian and Davis talk about their experiences as athletes receiving a Parkinson's diagnosis, their difficulties in accepting the physical and mental challenges that have occurred with the progression of their Parkinson's, and how and why they are passionate about living well with Parkinson's each and every day.
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One of the best uses of my time that I can recall., Please take the hour to watch and listen to three of our PD community that gets it! Thank-you, Sonia, Davis and Brian, for taking the time to share,
Thanks for your comment. We agree: this is a truly exceptional group!
2 of the most remarkable men i know of! their stories and personal lessons help me so very much. i've watched this 3 times already--hear something new and different--and helpful!--each time! REAL TRUTH, not toxic positivity!!!!
Worked as a fitness instructor and in health and leisure for years then diagnosed with ypod. I so get the grieving process and still having that push all the way mentality. Also some people just don't get it. When I explain I feel like they think I'm moaning. Then I go bk in my shell reduce exercise etc. In spite of what others may think say or do. I won't give up the battle. Gotta keep Going. Keep moving even when I definitely do not.
Inspiring guys!
When you loose the trust in doctors who contradict each other because YOPD has some unique symptoms it is hard to keep mentally positive. Even when sinemet is at first a gift and relief, doctors contradicting each other cause the depressive aspect of YOPD worse.because as an individual , you want to have a team on your side but you find yourself medically alone. I do have one neurologist that doesn’t question, but treats me as person. Dystonia was my primary symptom and as a college athlete and a woman mourning the loss of my body without consistent medical support, it forced me into a corner. Live or let depression, chemical and mental, eat me alive. Doctors have lost the ability to see people. I still struggle each day.
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Can you get a parkinson nurse or a case lead manager ( help link on different parkinsons matters. I'm not sure if they have them in your area but ask you neurologist. They maybe able to help. x
O fully agree with you. I have lost faith in medical doctors. I am in Canada, and when we are fortunate enough to have an appointment with a doctor, we only have 10 minutes .
My best childhood friend, who, since we've been adults and have gone our own separate ways, has parkinson's disease, l recently found out. I feel devistated, and so sorry that she has this condition. Instead of sending her a yearly birthday card, l am going to phone her once a week, maybe more often l'll decide after awhile. There's only so much you can talk about, and l don't want to make her feel uncomfortable. I'm phoning her on Sunday evenings. Suzi Q.