I want to say thank you. I've been having a very tough day today, obsessing and going down a rabbit hole googling symptoms to the point I worked myself up into fight or flight, shaking and panicking. This video has put my mind to rest this evening. I'm sure I will still have bouts of this terrible anxiety but this is a step in the right direction.
Yes, I found this VERY helpful. I like your logic "no clinical weakness, there is no lump, then you don't have ALS". This one sentence makes so much sense. I appreciate you taking the time to address this issue from a personal point of view.
Me at 12am watching this video thinking I have ALS. This video helped me so much. I’ve been dealing with anxiety my whole life and it’s just a on going process.
Thank you so much for sharing this. I am going through the exact same fear and it is absolutely devastating. I can’t tell you how much relief this brings me.
THANK YOU, I have been spiraling with multiple things. My grandmother did die of ALS but it wasn't genetic she was nearly 80. You're right I need to stop feeding the monster. You rock.
Im 24 and have never had anxiety issues until last year when I developed really aggressive health anxiety. Been doing good but on a bit of a blip at the moment. Your channel is honestly fantastic and has helped me continue functioning as a normal person again 😂
I’ve been struggling with health anxiety since November. I had a lot of symptoms that would last a month. I had dizziness, headaches, i convinced myself i had HIV, a brain tumor, etc. But now, for a month, i’ve been experiencing muscle twitches that are very fast and not repetitive, also I cannot see them, just feel them. It all started when my right thumb twitched and I felt weakness in my arms. It passed, but then, I started feeling these internal twitches and feeling a weird tightness in my right hand and wrist, muscle tension all over my body. I went through A LOT since November and i am hoping all of this is because of stress, the fear is really making my life a living hell everyday. I am 20 years old, and I am desperate!!!!
Thank you, I’m very much down the ALS rabbit hole at the moment. Very similar to your own experience and it’s terrifying. Health anxiety is truly a real, and crippling thing that I’ve never experienced before. Your videos are a massive help, great to see you doing so well and pioneering a path to help people and make a living in the process. Thank you again!!
same here, lips twitches, legs, everywhere; i actually went to a neurologist and he said not to worry about anything as long as you dont have any weakness. i did brain mri as well it was clear so i guess anxiety mimics all the illnesses that we are scared of@@EternalAlana2001
I appreciate your videos so much, thank you for making another one like this. I've been twitching for 6 months everywhere and these videos always make me feel so much better
Have been struggling with this for awhile and had been listening to your channel for the past week. Thank you so much for the amazing advice and reassurance. ❤
Thank God I found your channel as of lately I find my self twitching everywhere and had stopped for a couple of days then it comes back but for tends to be very small and in arms, legs, face. I started staring at my tounge and it just kills me inside being a hypochondriac!
Thanks for your videos on twitching, I have had anxiety ever since my wife passed of aggressive cancer, now I just never saw it coming and here we are. My family always noticed it, the irritability the angry responses and mood changes. These last few weeks though have been tough, had at least two anxiety attacks what with the twitches . Started on my right calf, then my left and now get random twitches all over but no weakness or anything. Your videos are now my go to videos to be calmed down again, sorry for going on but again just thank you, and also to some of the people commenting because some of your comments help too. ❤
Dear, I am writing to you from Italy. It can't be a coincidence, God guided me to your video. After a strong psychophysical stress my legs started to fasciculate ... since then I don't live anymore. I have suffered from anxious depression in the past and now I am falling back into the abyss. In a week I will see my doctor again and I hope to live again. Thank you ❤️
Bless you! I have anxiety too, and for almost 3 weeks my legs have started doing the same + mild cramping in the calves sometimes, or in the front of the legs, hard to explain. Tingling, burning and just strange sensations. It's definitely an attack of the enemy, who comes to kill, steal and destroy! Don't let him! Jesus loves you! 🙏🕊️❤️😊
Thank you so much! Your explanation put me at ease. I have twitching in my left calf, and tongue. I feel allot better after you talked about clinical weakness.
Thank you. I’ve been down the rabbit hole myself and this helps. I have epilepsy and it and the meds I take to cause twitching and I never thought about it until I read about a hockey player dying from ALS and when I read about it my anxiety kicked and I now believed I had ALS because I read everything about it and kept feeding the monster. Anxiety is horrible thing to suffer with, even when you know your ok, you still keep having what if doubts and it’s hard to stay strong sometimes but you have too
Thank you, your story sounds so similar to mine with the symptoms you experienced. My dad had the disease so I'm super paranoid since I had twitching after his diagnosis. It's truly terrible
I can’t thank you enough for making this video. I’ve been having same symptoms as you and my health anxiety is so bad because of worrying about ALS that I’ve been in the darkest of days. Watching your this video and some of your other videos is helping me realize there’s a way out of the darkness. Thank you from the bottom of my heart
I have an Excel file with 185 lines, each line an entry of a place were I was twitching since 2002. Some lasted two days and others lasted 10 months. Some areas were repeaters, some only happened in that specific area once. It’s all meaningless. The more I focused on them the more I twitched. Listen to this video and don’t waste your time worrying about twitches. I’m still twitching 21 years later and still going strong.
Thank you so so much for this video. I have a Vitamin B12 and D deficiency that has given me some nasty neuro issues since July of this year. Started twitching everywhere randomly since September. I've had an EEG, EMG, brain and spine MRI and all came back clear and my stupid OCD was like "well, what if?" because my throat will feel right or my muscles will feel "heavy" or I cramp easily and I would go on the awful google information dive. I will watch this video when I'm really struggling. Thank you again
Same exact thing and tests (except the spine, just the brain mri). I’m anemic with iron tho not B12 and D. So glad to see this comment. Still so scary as someone who has it in the family. Once you see it first hand it scars you for life
Thank you for this. I’m having terrible twitches, almost everywhere and I feel like I’m weak, but I’m not actually. I need to address my mental health which deep down I believe is causing 99% of any symptoms that I have.
Thank you for this. I’m sorry you’ve dealt with all of this. I watched my beloved father waste away from this horrible disease and now I worry about it striking myself, my brother, or my children. Whenever I feel any weakness or twitching I panic. I know familial ALS is rare but I still worry.
going through this a the moment and some of the things that have helped or give slight relief; -Breathe and go into your heart. -Friends who would love if you reached out. -Being in the NOW -Movement - get up and walk around -Giving. Go offer some love to someone. -Morning Heart Meditation -Exercise -Therapy -Medication Cherelle - these talks are very inspiring - thank you
If you have gone through any of this and have not had a chance to attend one of Cherelle's sessions or workshops do yourself a favor and do so. She is amazing. I have been meeting with her and it has already made a huge difference for myself and my family. Thank you Cherelle for all you do.
I started ALLLLLLL the way back in 2006 with twitches all over my body (tongue and all). I was only 20 at the time and this was before social media! I convinced myself I had the first diagnosis that popped up on my computer screen - that was of course, ALS. They did have health forums back then but they were obviously no help. To this day, I still twitch, but I now see the pattern & they are far worse when I’m anxious. They honestly don’t even bother me these days. I’m so used to them & I know they are harmless and sooooo common. You’ll get there too, guys. The odds are FAR in your favour. Hugs 🤗
@@xEunoiax oh, they were constant back then! They are still with me (although have eased, a lot) but they don’t bother me anymore. I understand them; know they are harmless and so my anxiety around them has eased. It’s easy to fall into a vicious cycle with twitches, which perpetuate and fuel them.
@@vanessai405yess I love to hear you’re doing much better!! And thank you for this comment because I’ve been SO anxious about it like every waking hour which is making it worse like you said. I’ve even convinced myself that my legs feel weak and I’ve just been stressing my mind and body for months now it’s getting overwhelming but I’m learning to just be present in life and stop worrying so much because it really makes life feel shitty for no reason.
@@xEunoiax You are so very welcome! I understand you and I hear you! I’m a 37 year old woman and I feel like I wasted a huge chunk of my life worrying about this. Practicing presence, meditation, yoga and delving into eastern philosophical wisdom was so very helpful for me 🕉️☯️. There is another person on RUclips called “The OCD guy” and he is super helpful and relevant to us as well as health anxiety sufferers. All the best to you ❤️.
Still struggling with this fear. I get the symptoms and they scare the crap out of me. You seem to give me hope. Can’t wait to work together girl! You don’t even know!
Thank you so much... it's remarkable; what you said is EXACTLY what I've been doing but your advice makes so much sense. I was literally crying a bit because you are so reassuring (then I laughed when you said 'boob' ;) ) and then back to weeping as you continued your clearly worded explanations and solutions :') Thank you.
Googling Eye twitching and vibrations that I’ve been experiencing for 3 weeks have brought me down a dark dark path. Here I am constantly searching ALS symptoms. From experiencing muscle twitching to random jerks, convinced I have this disease. Meanwhile I’m at the gym every night pushing heavy weight. I needed this video. Why? Because I have started questioning my mortality, how I could never live with the disease, thinking of ways of how I would have to end it. All over… eye twitching. The anxiety, stress and depression have made things 20x worse for me. Health anxiety is a real thing and google is the gasoline for the fire. We need to stop doing this to ourselves. We are hurting our mind, body and souls.
I’ve had a pec spasm for 7 months and was convinced it’s been ALS.. these videos give me a huge relief. I still have full strength in my limbs so I’m thinking I’ll be alright. Thanks for your videos!
I have spasm near between my chest and shoulder non stop for 10 days and going still. I had twitching many times in various spots but I managed to stop them by stretching the muscle. But I can't stretch this muscle, it's like above my armpit below my collar bone, and it's going on and on, freaking the hell out of me and I am down the rabbit hole again.
I appreciate this video so much. I'm 31 Male, caucasian Male. I have 100% visual atrophy of my left leg, HOWEVER, I have a confirmed a diagnosed herniated disk that shows this, further more this leg had clinical strength test from a physio not long after, very clear nerve and muscle damage from my sciatica. I broke up with my ex recently 2 months ago, I was going through the stresses of worrying about my liver. I am an alcoholic of 12-10 years, in the last 3 I went absolutely mental. One day while my ex was behind me in my bed, I was about 5 beers in and I was COVERED in itching and pin pricks and needles. Few days pass same symptoms, constant, and my nerve damaged leg starts kicking off, twitching more than it did when I had my last spell of sciatica. A month and a few weeks pass I start feeling really down, my muscles feel heavy my damaged leg is going crazy 24/7 twitching spasms and cramps, I google (worst idea ever) (potential MDN / ALS) I go hooooooly shiiiiiiit, my already stress filled life ramps up by 2000x. Some nights no sleep and symptoms got worse by 100x over the nights. The twitching hasn't completely stopped, but I'm calmer. I accepted that I have health anxiety, I kept trying to play games to take my mind off that wouldn't work but I noticed when I would sit down by the telly with my mother and talk all the symptoms would alleviate, that doesn't happen with ALS or / MDN, it's forever. Like you said about clinical weakness that was key in me learning that this isn't this super rare disease, even on my atrophied leg (from sciatica), I did self-tests as I knew before it's alot weaker than my right leg but I could calf raise without difficulty, raise my toes, raise my heel and hold balance on this particular beaten up leg for over 20s
Just got out of the doc and she said the same. its severe anxiety that i need to learn to manage . Meditation and therapy seems to be the key@@meeepmeep7295
Hypochondria is so terrible. I don’t remember when it started showing up for me, but I’ve been aware of it now for at least four years. :( it got worse when I injured my knee.
Ive been twitching non stop 24/7 for over 4 years.. in every muscle.. sometimes i feel weak, i focus on every move my body makes. Im hyper focussed on everything. And honestly its destroyed my life.. try to not let the anxiety get you to that point. As i type this i feel every twitch, pain, light headed, then the panic starts and the cycle continues
My cousin passed away from ALS and it was heartbreaking. But you are correct, it did not start with a twitch. The weakness and unable to lift the leg was first. The twitching did come later but only after much worse symptoms.
@@Steve-si8hx fast ! Very fast . It's not like your limb just stops working over night but once a limb is denetvated you feel the weakness in the matter of a day . I was a body builder so I knew instantly something was off . I had good strong work outs then one morning I went out to breakfast my shoulder started to twitch and then the next morning my whole body . Later that day I went to the gym to do arms and triceps and I could feel in my right arm it wasn't right .so if you have twitching for more then a month with absolutely no weakness I'd say you have absolutely nothing to worry about. That person got all pissed off that I made that comment when actually you guys who have been twitching for months or years have no weakness you should feel great that I said that . Twitching alone is absolutely zero it's jack shit . Weakness with twitching is the scary thing you should worry about .
Twitching can also be a sign of MS or Lyme disease plus so many other things. Thanks for your video as I have been worrying about ALS due to issues I’m having as I struggle to phrase words sometimes. I’ve had radiotherapy and the drs think that’s the culprit of my health issues.
GOD BLESS YOU ...IM HAVING THE WEAKNESS IN MY LEGGS WORSE IN MY RIGHT LEG ..MY LEGGS FEEL TIGHT STIFFNESS ...SO HARD TO TURN OVER IN BED I HURT MY SKIN HURTS ....
I’ve had a twitch in the arch of my left foot for almost nine months now. I think I’m on top of the anxiety and I’m doing better and then will have a bad day where the twitch is nonstop for hours and each passing moment feels like a death toll. I hate it so much. Thank you for the reminders. I needed it badly today
@@KyzerGB yes. It feels like the muscles are quivering even if it’s not a full on twitch. I recently started cutting out all caffeine from my died and I have noticed and improvement but it hasn’t gone away entirely.
@@KyzerGB the only thing I was on that was different was a low dose of lexapro. I was on it three months. The month I weaned off of it, the twitching started
@@everbejoyful This could be the reason why. I've been on amitriptyline and citalopram. But have been on amitriptyline for few years now, As Dr's always think that's the answer . 😠 Have a look into glutathione iv which can help rid toxins out system when the body can't because its all out of wack .
I’ve had twitches, tremors and headaches for the last 4 months but the strength is still there whilst in the gym, so I haven’t felt anxious for a few weeks now yet still get all of these symptoms everyday but I guess it just takes time for the subconscious to catch up.
I currently fear that I developed peripheral neuropathy from an antibiotic that may cause this in very, very rare cases. I read this and my anxiety sprialed out of control. I stopped taking the antibiotic but I now experience tingling, pins and needles and all that in my hands. I am just now opening up to the idea that this may „just“ be from the constant panicking and hyperfocus on my hands. I don‘t even remember what my normal hands feel like, and it has only been a week. I have a long history of health anxiety, conversion disorder and depression. I am gonna see a neurologist next week. But if my nerves turn out objectively fine, I hope to let it go. Thank you for doing those vids, they help me through the current tough days❤
I've been having muscle twitches for 5 months now, sometimes I feel odd muscles hard etc... life has been hell. I don't recall having any anxiety before.
Im 36, and have had muscle twitches for 7-8 months now off and on…ive gone down the rabbit hole a hundred times. It’s worse when im just sitting still (but that’s the only time I really notice it). It’s so frustrating. But I’ve had no other symptoms. Just random fasciculations all over at different times. It’s scary. I’m very active and have little kids and I just worry myself to death and can’t ever stop thinking about not being able to raise them. I was a pretty heavy drinker for a couple years (2020-2022-covid times). I quit drinking. My wife’s dad died in October of 2023, she was stressed and we stayed up late one night drinking (I drank way too much) and the onset of fasciculations started the next day and have been off and on ever since. I haven’t drank since, but it’s worried me so much. I am a high anxiety/anxious person and always have been without the best coping mechanisms(work more, work harder, workout more/harder, ect). I’ll just keep waiting and seeing if things get worse or better. They don’t affect my life, but they do cause more anxiety. I just stay busy and ignore them the most I can, but laying in bed at night and feeling them starts the cascade of worry all over, over and over again. Idk. Just wanna raise my kids and be there for them.
I have been suffering from health anxiety for almost 6 months...I jump from one thing to another every time...one of them twitching...there were moments when there was many twitching happened...but when I jump to my other symptoms, I noticed twitching stopped!!! So, I keep on telling myself that if that twitching was serious, it will happen everytime, if it stops when my mind diverted to another thing, then its definitely my anxiety is what causing twitching...
Thanks for the helping words. I guess I have health anxiety. Even if it is mild I google stuff too much for no good reason and visit the doctor for small things
I Have a awful health anxiety and OCD (male 28) and I'm im the bulbar Als rabbit hole .. I read about it and after a week I have started to slurre many words, No one have heard it when they speak to me, but! I have it recorded when I do slurre, so I really are slurring my words. I also started stuttering. After the first slurre I got so hyperaware of my speech. I have never had any problems with my speech, my speech is my biggest gift in my life so when something is off with it, I know for sure something is really wrong. During this time, I also remember my tongue feeling fatigue. I do not slurre all the time it's coming and going. I’ve also developed in the last 2-3 days a scalloped tounge and burning sensation on my tounge (never had this before), fasiculations all over my body, mostly on my left buttcheek, it also feels like I have lost the coordination of my tounge and my tounge is always touching my teeth while I’m speaking, I never had braces and I have straight teeth. And today I have bit my tounge like 15 times meanwhile I'm speaking ..
So to my question, is this the bulbar onset of ALS? Because how can it be possible for me to slurre my words for 17 days with just hyperawareness and health anxiety, it should not be possible right?
Great video’s. Last november I was hospitalized with atrial fibrillation at the age of 35. Far too young for such a rythm disorder. Scary. From there it went downwards. Panic attacks at night when my heart goes mad. Since months i’m having twitching, tingeling and numbness in my body. My sister has MS, so i’m worried that I have that as well and that is the reason of my heartproblems. MS can literally affect everything in the body. been down the ALS rabit hole, but I have heartproblems as well and ALS does’nt affect the heart, so that’s somewhat of a relief…. Next week I have an appointment with a neurologist. The docter says it’s stress. That’s possible, but I’ve experienced no stress for the last two months and the symptoms don’t go away. Making me really insecure.
Follow-up. The check-up with the neurologist was fine. No weird reflexes. She thinks anxiety/stress. Within 6 weeks I’ll get an MRI and EMG to rule things out. MS isn’t a hereditary disease, but my chances of getting it is about 40x larger because of my sister has it (say 3-4%). All was fine at her first appointments with a neurologist as well. Her symptoms were worse. Especially the insane fatigue that is specific to MS and “walking on clouds”. Luckily I don’t have that symptoms, so I have good faith that it’s just my brain messing with me.
When i get really anxious i can barely talk, my tongue get pretty heavy and swallowing can get pretty heavy. Out of all the symptoms i have had, the new ones where pretty scary such as fatigue, twitching mainly clafs, paresthesya(pins and needles) hands and feet
have health anxiety and A.L.S is where my fear is focused, now I have muscle twitching all over, in my lip, my calves, my finger jerks and so on, I lift weights, work out with total gym and box with a bag, als is supposed to make you weak and I am not getting weak, I have lived with anxiety my whole life, I am also an army vet, I have benign essential tremor diagnosed a few years ago, I was evaluated a few years ago for als from a doctor who was an expert in the disease and he said I do not have it and I met the widow husband of someone who just died of als so you see where this is going, I was also diagnosed with pre diabetes so I have gone kind of keto and have been drinking decaf coffee to stay warm in the winter so I think I have an electrolyte imbalance or a little dehydration which I am correcting now with drinks, I would love to here your thoughts and thanks for this video
Before I found out I actually had Lyme disease, ALS was in my mind of course. I had twitching and leg weakness. I wish I would’ve found this back then. It would’ve saved me a lot of tears and anxiety
Hey there! I really appreciate this support video. I've been having twitching in the face, calves, arms, feet etc it's getting worse. It's probably not ALS but I've also got a horrible face rash currently that's red, hearing loss that's coming off and on with ringing in the ears where I can barely hear, nausea off and on, horrible headaches etc. especially in the morning I did some research after suffering badly for awhile now, and apparently CHRONIC LYME DISEASE can cause muscle twitching which can be mistaken for ALS sometimes in people. This could be the case in my case, and if it is, well, the bad news is I'm having problems, but the good news it's probably not from ALS . That being said, my symptoms are serious, and if it's Lyme Disease, that's also serious and needs treatment, but at least it can be treated. People need to be aware or Lyme disease too. It almost killed Avril Lavigne even, it's common (way more common thsn ALS) and the symptoms are horrible. In any case, worried about my health which seems to be deteriorating, and I'm worried about symptoms which appear to be bad, but this video is reassuring that it's probably not ALS.
@@LidoBombs2 Feeling better overall, but the twitching is frequent and literally EVERYWHERE! Face, neck, hands, feet, calf muscles, arm muscles, you name it. I'm getting EMG testing in a couple weeks. It's very scary, but I haven't noticed weekness at this point. Had an MRI too and there's white matter congruent with migraines though it COULD be MS in my case as white matter in the T2 receptor sites can be migraines or MS and hard to differentiate (and I've had migraines my whole life). Too early to tell.... Obviously very scared, but it has been happening for a couple months plus now and I went hiking 6 miles a couple days ago, so I don't think it's ALS .... Eh As horrible as MS is I'd rather have that then ALS obviously. MS CAN also cause spasms like this off and on but it usually has other symptoms. Not everyone with MS gets spasms either but many people do. The thing is I've had some of these other symptoms unfortunately like flashing lights at night, and uncontrollable eye movements, especially when I wake up. It's sort of like the spasms, but my eyes will move everywhere uncontrollably for a few minutes. Obviously I'm getting EMG testing and seeing a neurologist.... Eh still scared crapless, but at least I keep reminding myself I hiked 6 miles the other day. That being said the twitching/fasciculations drive me nuts.
@@torbawden8856 No fun! Lots of shocks and stabs. In my case a needle in the neck even. I've gone through worse things, and thankfully it only took like 90 minutes, but it's definitely not enjoyable. That being said, it was well worth it. In my case I'm experiencing weakness and fasiculations/twitching... So I may have serious health concerns still, but it's great to know that it's almost certainly not a MND motor neuron disease like ALS. The other thing to note, my weakness is more, "It's getting difficult and causes fatigue to do ABC action.". With ALS it's more, "I can't do ABC no matter how hard I try.". One is a form of physical weakness versus clinical weakness. Clinical weakness with ALS comes with I can't that spreads... Based on what the doctor told me. MS still really sucks too. Eh.... I had an MRI and white matter was found in the frontal lobe areas. This can be caused by migraines which I've had my whole life and it can be caused by MS...... It's too early to tell, but I'm almost, 36 which is one of the common ages to start developing MS whereas ALS is even more rare at 36. How old are you is the first question? If you have fasiculations everywhere, that CAN be a sign of MS too though generally it isn't, but with some people (as it might be in my case) it could be the doctor told me. The other thing is I get them everywhere. I've also got other symptoms though just for reference. Uncontrollable eye movements at times with both eyes, especially in the mornings. Horrible headaches, weird flashing lights at night, and dizziness, especially when the head goes back or after lying down (vertigo). All of these symptoms tend to wax and wane which is a sign of MS too. There are remissions and then symptoms like this can hit you bad. Not saying you have MS or ALS though.... obviously if you're having fasicikations like this I'd do the EMG testing and be done with it so you can hopefully move on from the ALS worries etc. It's an extremely low risk test that has been around for many decades now! It probably doesn't hurt to check for signs of MND just to be safe in any case of spasms/twitching that can't be explained and is persistent. If you're NOT getting weakness with your fasiculations, it's almost certainly NOT ALS. I'm not a doctor, but that's what I understand from what I've read. Where are you getting fasciculations and what other symptoms if any are you having?
Same here been to the doctor twice says everything is fine but can’t get it out of my mind. Not sleeping appetite off and now I’ve got this post nasal drip going on which apparently is a symptom. Just a consuming rabbit hole.
at least you are brave enouhh to go to the doctors. I sm so anxious that I don‘t even want to go. I wake up every morning terrified not knowing if I am crazy anxious and therefore have all these symptoms or if I really have ALS. Can you explain what that nasal drip thing is? So far haven‘t heard about that one. At least I know I am not alone with my fears.😢
@@alexib2070 You are not alone I wake up every morning the same way. The post nasal is having to clear your throat often I’ve researched it could be anxiety related but when you’re down the ALS rabbit hole and read one thing about a certain symptom then it becomes a fixation. I’m here to talk to anytime we are both going through the same thing. Are you twitching?
@@captainbeyond7469Thanks for the reply. I have to often clear my throat. Slmetimes it‘s more anf sometimes less. I have muscle fasciculations all day, calves upper legs and arms. I don‘t think I have weakness in my muscles but really I don‘t know anymore. How about you? Why do you still think you have it?
@@alexib2070 Mine started at the beginning of February with an eye twitch which I still have also twitching in my calves and the soles of my feet. Doctor attributes it to anxiety I’m having a hard time believing because I’ve read that ALS can take up to a year to really show itself.
Hi im going through it right now im weak in my kegs now for 2 months and started twitching 2 months as well my leg weakness is really making ne nervous googling symptoms and it says als i convinced my self but last month i went to my dr he took a regular test in his office and said he doesn't think i have als but in my mind i convinced myself I have it im making my self sick over this but this video is helping
So basically with als the twitches follow after clinical weakness? My calves have been twitching for a week now driving me crazy! Glad I found your video
I have the exact same symptoms, even the swallowing. I also decided I wouldn’t want to continue my life if I did have it. At 24 I have gotten a nerve conduction and EMG and they came back normal. Even after a second visit at the neurologist who said I do not have it, a trip to the rheumatologist today who asked if anyone besides my grandma (who died of ALS) had it and reignited my fears. I cry about it every day. After seeing it first hand, it’s absolutely terrifying
Im currently in this hell. I've never had health anxiety but began twitching last year and the first thing that comes up in Google is ALS. After cutting down on coffee the twitches slowly vanish. A few months ago I developed an ankle injury and it's Just just hanging on. Now Im more anxious than ever. I wish the anxiety would just stop.
I had twitching first on right thumb and dr DID susoect als but emg was normal. She still insisted it could be als and I should do emg again in several months. That was 6 years ago. I also had twitched in both thumbs many times and I can even trigger them! I also had them in both quads, both triceps, on tongue(!!!!!!), face, stomach and lots of places. Although it happened many times I am STILL scared I have it. Especially when I see and feel it on tongue which is the scariest. But it hapoens on and off for years now. It's horrible amxiety that never stops.
Interesting that your doctor would jump to that conclusion so fast. Doesn’t seem consistent in how neurologist tackle problems. Or, was this your primary who thought this?
@@EricStorm23 it was neurologist. She poked my hands and they were twitching and she concluded that "doesn't look good". She literally said she saw such twitches in ms or als. I was horrified. Later it was discovered that I had extensive tendonitia of all tendons in both arms and that is why it was twitching so badly. And mg deficiency. Dr shouldn't give such devastating diagnosis so easily.
@@biljam972 I agree. That should not be on the table for twitching alone. I’m sorry but that’s a bad neuro. Also, you only need 1 EMG. No such thing as early EMG once symptoms begin. No need to repeat. Sorry you went through that.
Mine comes with my ledt arm feeling fatigue faster and burning faster which gets me in a "the weakness is setting in" zone nevermind ive probably already been flexing subconsciously and using my left to do heavy lifting to see if I'm getting weaker. Thank you so much for this
Hello, your video is very helpful. i don't know if my story can help , last year( June 2022) i went through this horrible journey, it all started with my cpk a bit high i checked on google and i don't know how i came accros this disease call ALS. I have never heard about this before. after two days of research on google i noticed the twitching everywhere, calf, tongue fingers face, back, nose lips everywhere. ( while typing now it is twitching in my right leg) i searched a lot on the internet regarding this disease i was obsessed by this disease and i was sure that i got it. i've done a Full MRI, cerebral scan and a lot of tests which was normal, then i decided to do my first EMG i was in the waiting area waiting for my tern for the emg, i got twitching everywhere and during the test not even 1 twitch. the doctor said everything is normal, after 3 weeks with more twitching on my back and legs i decided to go for a second emg and same, while waiting in the corridor it was twitching like crazy and during the test zero twitch ( this was in august 2022) after some time everything was back to normal since last month where my twitching started again in my tongue i felt like the muscle of my tongue is weak and cannot even swallow properly with a pain on the upper back up to my right tricep tendon, i have an appointment with neurologist again tomorrow to check, and again i am very stressed and my anxiety is horrible. i hope i don't have this disease. i am afraid of this disease and again obsessed i also cannot even understand why
I am currently dealing with this!!! I started having calf and foot cramps a month ago and twitching in my thumb and small finger of my right hand. It’s SO stressful!!! Doing a lot of praying and listen to worship music to clear my mind!!!
Amazing to hear! I'm going on almost 3 weeks not. Exactly your symptoms! I've been so scared and I'm a believer in Christ too! I'm alone with two small kids, and I'm all they have, so need to be strong for them... Thank you for this comment, and may God bless you richly and keep you, in Jesus name I pray 🙏🕊️🙏😊@@cherylcampbell693
been having some muscle twitching in my right shoulder for the past 2 days. on and off never goes completely away. my anxiety is going through the roof. im scared of MS and ALS.
Thank you for this video. I have twitches mostly in my right hand and there is a postural tremor in the fingers in a certain position, too. But there is no weakness. Can I calm down now?
I want to say thank you. I've been having a very tough day today, obsessing and going down a rabbit hole googling symptoms to the point I worked myself up into fight or flight, shaking and panicking. This video has put my mind to rest this evening. I'm sure I will still have bouts of this terrible anxiety but this is a step in the right direction.
Yes, I found this VERY helpful. I like your logic "no clinical weakness, there is no lump, then you don't have ALS". This one sentence makes so much sense. I appreciate you taking the time to address this issue from a personal point of view.
I’ve been having eye twitching for 5 months now. Went to google and am convinced I have ALS now 😭 I’m glad I found your video
There are lots of us.
Same 😢
Eye twitches are literally the most common twitch. It’s definitely not ALS.
Me at 12am watching this video thinking I have ALS. This video helped me so much. I’ve been dealing with anxiety my whole life and it’s just a on going process.
Health anxiety is literally one of the worst things for your health 😂 which is ironic.
I’m convinced my muscle twitch is from my anxiety. Been happening for 6 years.
A lot of people need to really hear this.
twitches?
Thank you so much for sharing this. I am going through the exact same fear and it is absolutely devastating. I can’t tell you how much relief this brings me.
THANK YOU, I have been spiraling with multiple things. My grandmother did die of ALS but it wasn't genetic she was nearly 80. You're right I need to stop feeding the monster. You rock.
How do you know its not genetic case? My grandpa died from it too so you know how horrible my worries are
Im 24 and have never had anxiety issues until last year when I developed really aggressive health anxiety. Been doing good but on a bit of a blip at the moment. Your channel is honestly fantastic and has helped me continue functioning as a normal person again 😂
I’ve been struggling with health anxiety since November. I had a lot of symptoms that would last a month. I had dizziness, headaches, i convinced myself i had HIV, a brain tumor, etc. But now, for a month, i’ve been experiencing muscle twitches that are very fast and not repetitive, also I cannot see them, just feel them. It all started when my right thumb twitched and I felt weakness in my arms. It passed, but then, I started feeling these internal twitches and feeling a weird tightness in my right hand and wrist, muscle tension all over my body. I went through A LOT since November and i am hoping all of this is because of stress, the fear is really making my life a living hell everyday. I am 20 years old, and I am desperate!!!!
I relate to this so much as a young person. Been experiencing similar. It’s so hard
Thank you, I’m very much down the ALS rabbit hole at the moment. Very similar to your own experience and it’s terrifying. Health anxiety is truly a real, and crippling thing that I’ve never experienced before. Your videos are a massive help, great to see you doing so well and pioneering a path to help people and make a living in the process. Thank you again!!
I’m also going down this hole. Started maybe about a month ago or less. How are you doing?
It’s constantly on my mind as well, everyday I’ll ruminate on it, horrendous
I am down the hole as well after 1.5 months of twitching
@@chelseagardner8634I’m currently in the ALS hole
same here, lips twitches, legs, everywhere; i actually went to a neurologist and he said not to worry about anything as long as you dont have any weakness. i did brain mri as well it was clear so i guess anxiety mimics all the illnesses that we are scared of@@EternalAlana2001
I appreciate your videos so much, thank you for making another one like this. I've been twitching for 6 months everywhere and these videos always make me feel so much better
I just watched both of your videos, and wanted to thank you so much for making these.
Thank you from Italy. Much needed video. A true blessing
thank you sm for your youtube channel. just your titles remind me of my ways i’m trying to heal. ❤
I needed to hear this so much. Thank you so much for this!
This channel is an absolute blessing to so so many. Thank you Cherelle!!
Thank you for all your help. It means the world to me and I’m sure everyone else.
I really appreciate your videos. I have been dealing with extreme health anxiety for the Pat few days and this helped me so much!
We are not alone!!! Thanks for your sound advice Cherelle 😊
When I see your videos I feel positive vibes Thank you sister ❤
Have been struggling with this for awhile and had been listening to your channel for the past week. Thank you so much for the amazing advice and reassurance. ❤
Thank God I found your channel as of lately I find my self twitching everywhere and had stopped for a couple of days then it comes back but for tends to be very small and in arms, legs, face. I started staring at my tounge and it just kills me inside being a hypochondriac!
Thank you so much. Glad I found your channel. You have given me so much good information. Cheers from North Bay Ontario Canada.
Thanks for your videos on twitching, I have had anxiety ever since my wife passed of aggressive cancer, now I just never saw it coming and here we are. My family always noticed it, the irritability the angry responses and mood changes. These last few weeks though have been tough, had at least two anxiety attacks what with the twitches . Started on my right calf, then my left and now get random twitches all over but no weakness or anything. Your videos are now my go to videos to be calmed down again, sorry for going on but again just thank you, and also to some of the people commenting because some of your comments help too. ❤
Still find your fear of ALS videos about twitching therapeutic, remember when I started with BFS over a year ago and needed to hear this so much 🥰
Thank you. It makes a lot of sense and I appreciate you helping others by sharing your own experience. I feel way less freaked out.
Dear, I am writing to you from Italy. It can't be a coincidence, God guided me to your video. After a strong psychophysical stress my legs started to fasciculate ... since then I don't live anymore. I have suffered from anxious depression in the past and now I am falling back into the abyss. In a week I will see my doctor again and I hope to live again. Thank you ❤️
Bless you!
I have anxiety too, and for almost 3 weeks my legs have started doing the same + mild cramping in the calves sometimes, or in the front of the legs, hard to explain. Tingling, burning and just strange sensations.
It's definitely an attack of the enemy, who comes to kill, steal and destroy! Don't let him!
Jesus loves you! 🙏🕊️❤️😊
@@Malokala Of course, God and the universe love us. I hug you ❤️
Thank you so much! Your explanation put me at ease. I have twitching in my left calf, and tongue. I feel allot better after you talked about clinical weakness.
Thank you. I never comment on RUclips. I'm 34 been going through this for 8 months. I needed to hear this.
Thank you. I’ve been down the rabbit hole myself and this helps. I have epilepsy and it and the meds I take to cause twitching and I never thought about it until I read about a hockey player dying from ALS and when I read about it my anxiety kicked and I now believed I had ALS because I read everything about it and kept feeding the monster. Anxiety is horrible thing to suffer with, even when you know your ok, you still keep having what if doubts and it’s hard to stay strong sometimes but you have too
Thank you, your story sounds so similar to mine with the symptoms you experienced.
My dad had the disease so I'm super paranoid since I had twitching after his diagnosis.
It's truly terrible
I can’t thank you enough for making this video. I’ve been having same symptoms as you and my health anxiety is so bad because of worrying about ALS that I’ve been in the darkest of days. Watching your this video and some of your other videos is helping me realize there’s a way out of the darkness. Thank you from the bottom of my heart
Thank you for your videos. I’ve been twitching for 5 months now and I honestly think your videos are a Godsend.
R u still twitching? I have been for 2months.. so far doctors are saying it’s anxiety
Thank you so so so much! I feel better now. ❤
I have an Excel file with 185 lines, each line an entry of a place were I was twitching since 2002. Some lasted two days and others lasted 10 months. Some areas were repeaters, some only happened in that specific area once. It’s all meaningless. The more I focused on them the more I twitched. Listen to this video and don’t waste your time worrying about twitches. I’m still twitching 21 years later and still going strong.
Do you get twitches in your biceps too??
@@chelseagardner8634 many times
How many times in a day did you twitch?
@@romilsaraf7665 some days all day long
Did you get the other symptoms too like times of cramping sensations, burning, fatigue, tightness that takes long To away?
Thank you so so much for this video. I have a Vitamin B12 and D deficiency that has given me some nasty neuro issues since July of this year. Started twitching everywhere randomly since September. I've had an EEG, EMG, brain and spine MRI and all came back clear and my stupid OCD was like "well, what if?" because my throat will feel right or my muscles will feel "heavy" or I cramp easily and I would go on the awful google information dive. I will watch this video when I'm really struggling. Thank you again
Do you feel twitches in your head nerves as well and like warm blood rushing down from your brain to your neck?
@@zahraaslam5550❤
Same exact thing and tests (except the spine, just the brain mri). I’m anemic with iron tho not B12 and D. So glad to see this comment. Still so scary as someone who has it in the family. Once you see it first hand it scars you for life
Thank you for this ❤
Thank you for this. I’m having terrible twitches, almost everywhere and I feel like I’m weak, but I’m not actually. I need to address my mental health which deep down I believe is causing 99% of any symptoms that I have.
Thank you for this. I’m sorry you’ve dealt with all of this. I watched my beloved father waste away from this horrible disease and now I worry about it striking myself, my brother, or my children. Whenever I feel any weakness or twitching I panic. I know familial ALS is rare but I still worry.
going through this a the moment and some of the things that have helped or give slight relief;
-Breathe and go into your heart.
-Friends who would love if you reached out.
-Being in the NOW
-Movement - get up and walk around
-Giving. Go offer some love to someone.
-Morning Heart Meditation
-Exercise
-Therapy
-Medication
Cherelle - these talks are very inspiring - thank you
If you have gone through any of this and have not had a chance to attend one of Cherelle's sessions or workshops do yourself a favor and do so. She is amazing. I have been meeting with her and it has already made a huge difference for myself and my family. Thank you Cherelle for all you do.
I started ALLLLLLL the way back in 2006 with twitches all over my body (tongue and all). I was only 20 at the time and this was before social media! I convinced myself I had the first diagnosis that popped up on my computer screen - that was of course, ALS. They did have health forums back then but they were obviously no help. To this day, I still twitch, but I now see the pattern & they are far worse when I’m anxious. They honestly don’t even bother me these days. I’m so used to them & I know they are harmless and sooooo common. You’ll get there too, guys. The odds are FAR in your favour. Hugs 🤗
Were the twitches constant all day sometimes?
@@xEunoiax oh, they were constant back then! They are still with me (although have eased, a lot) but they don’t bother me anymore. I understand them; know they are harmless and so my anxiety around them has eased. It’s easy to fall into a vicious cycle with twitches, which perpetuate and fuel them.
@@vanessai405yess I love to hear you’re doing much better!! And thank you for this comment because I’ve been SO anxious about it like every waking hour which is making it worse like you said. I’ve even convinced myself that my legs feel weak and I’ve just been stressing my mind and body for months now it’s getting overwhelming but I’m learning to just be present in life and stop worrying so much because it really makes life feel shitty for no reason.
@@xEunoiax You are so very welcome! I understand you and I hear you! I’m a 37 year old woman and I feel like I wasted a huge chunk of my life worrying about this.
Practicing presence, meditation, yoga and delving into eastern philosophical wisdom was so very helpful for me 🕉️☯️.
There is another person on RUclips called “The OCD guy” and he is super helpful and relevant to us as well as health anxiety sufferers.
All the best to you ❤️.
I hope so. Going through this now and again!!!
I needed this thank you
Still struggling with this fear. I get the symptoms and they scare the crap out of me. You seem to give me hope. Can’t wait to work together girl! You don’t even know!
Can't wait to help you tackle this Health Anxiety!!
Thank you so much... it's remarkable; what you said is EXACTLY what I've been doing but your advice makes so much sense. I was literally crying a bit because you are so reassuring (then I laughed when you said 'boob' ;) ) and then back to weeping as you continued your clearly worded explanations and solutions :') Thank you.
Googling Eye twitching and vibrations that I’ve been experiencing for 3 weeks have brought me down a dark dark path. Here I am constantly searching ALS symptoms. From experiencing muscle twitching to random jerks, convinced I have this disease. Meanwhile I’m at the gym every night pushing heavy weight. I needed this video. Why? Because I have started questioning my mortality, how I could never live with the disease, thinking of ways of how I would have to end it. All over… eye twitching. The anxiety, stress and depression have made things 20x worse for me. Health anxiety is a real thing and google is the gasoline for the fire. We need to stop doing this to ourselves. We are hurting our mind, body and souls.
THANK YOU!! THANK YOU!! THANK YOU!!
This has helped me a bit. I’ve had twitches everywhere lately!
I’ve had a pec spasm for 7 months and was convinced it’s been ALS.. these videos give me a huge relief. I still have full strength in my limbs so I’m thinking I’ll be alright. Thanks for your videos!
I have spasm near between my chest and shoulder non stop for 10 days and going still. I had twitching many times in various spots but I managed to stop them by stretching the muscle. But I can't stretch this muscle, it's like above my armpit below my collar bone, and it's going on and on, freaking the hell out of me and I am down the rabbit hole again.
You're a saint, y'know?
Many thanks.
I appreciate this video so much.
I'm 31 Male, caucasian Male.
I have 100% visual atrophy of my left leg, HOWEVER, I have a confirmed a diagnosed herniated disk that shows this, further more this leg had clinical strength test from a physio not long after, very clear nerve and muscle damage from my sciatica.
I broke up with my ex recently 2 months ago, I was going through the stresses of worrying about my liver. I am an alcoholic of 12-10 years, in the last 3 I went absolutely mental. One day while my ex was behind me in my bed, I was about 5 beers in and I was COVERED in itching and pin pricks and needles.
Few days pass same symptoms, constant, and my nerve damaged leg starts kicking off, twitching more than it did when I had my last spell of sciatica.
A month and a few weeks pass I start feeling really down, my muscles feel heavy my damaged leg is going crazy 24/7 twitching spasms and cramps, I google (worst idea ever) (potential MDN / ALS) I go hooooooly shiiiiiiit, my already stress filled life ramps up by 2000x. Some nights no sleep and symptoms got worse by 100x over the nights.
The twitching hasn't completely stopped, but I'm calmer. I accepted that I have health anxiety, I kept trying to play games to take my mind off that wouldn't work but I noticed when I would sit down by the telly with my mother and talk all the symptoms would alleviate, that doesn't happen with ALS or / MDN, it's forever.
Like you said about clinical weakness that was key in me learning that this isn't this super rare disease, even on my atrophied leg (from sciatica), I did self-tests as I knew before it's alot weaker than my right leg but I could calf raise without difficulty, raise my toes, raise my heel and hold balance on this particular beaten up leg for over 20s
I needed to hear this, been having twitching for weeks. Still going to the gym strong big relief
I have the same , im going to see a neurologist next week but im reassured myself knowing im still "strong".
@@lohrilicious just saw one last week, Doctor said it was BFS. Just breathe and keep pushin'. hope you get similar news and you're okay. #stillstrong
Just got out of the doc and she said the same. its severe anxiety that i need to learn to manage . Meditation and therapy seems to be the key@@meeepmeep7295
Aww man YOU HIT IT DEAD ON..... 🙏🏾💯🙏🏾
Amazing video. Thank you
Thank you so much ❤️
Hypochondria is so terrible. I don’t remember when it started showing up for me, but I’ve been aware of it now for at least four years. :( it got worse when I injured my knee.
Ive been twitching non stop 24/7 for over 4 years.. in every muscle.. sometimes i feel weak, i focus on every move my body makes. Im hyper focussed on everything. And honestly its destroyed my life.. try to not let the anxiety get you to that point. As i type this i feel every twitch, pain, light headed, then the panic starts and the cycle continues
My cousin passed away from ALS and it was heartbreaking. But you are correct, it did not start with a twitch. The weakness and unable to lift the leg was first. The twitching did come later but only after much worse symptoms.
Noooot true ! Mine absolutely did start with twitching. So idk why people think it doesn't start with twitching. Mine started with twitching
@@jayg-lg2ot how long was twitching before weekness? Sorry to hear you have to deal with that terrible disease
@@Steve-si8hx fast ! Very fast . It's not like your limb just stops working over night but once a limb is denetvated you feel the weakness in the matter of a day . I was a body builder so I knew instantly something was off . I had good strong work outs then one morning I went out to breakfast my shoulder started to twitch and then the next morning my whole body . Later that day I went to the gym to do arms and triceps and I could feel in my right arm it wasn't right .so if you have twitching for more then a month with absolutely no weakness I'd say you have absolutely nothing to worry about. That person got all pissed off that I made that comment when actually you guys who have been twitching for months or years have no weakness you should feel great that I said that . Twitching alone is absolutely zero it's jack shit . Weakness with twitching is the scary thing you should worry about .
How do you feel now ? Did you get a second opinion doctors make mistakes
@@phillipavianne982 currently going through second opinion as we speak
An ex football player from the valleys has been diagnosed,A good guy,a family man ex Cardiff pro.God bless him and his family hes a true gentleman.
U helped me a lot, really ❤
Twitching can also be a sign of MS or Lyme disease plus so many other things. Thanks for your video as I have been worrying about ALS due to issues I’m having as I struggle to phrase words sometimes. I’ve had radiotherapy and the drs think that’s the culprit of my health issues.
GOD BLESS YOU ...IM HAVING THE WEAKNESS IN MY LEGGS WORSE IN MY RIGHT LEG ..MY LEGGS FEEL TIGHT STIFFNESS ...SO HARD TO TURN OVER IN BED I HURT MY SKIN HURTS ....
Thank you for the wake-up call!
Thank you for this video
I’ve had a twitch in the arch of my left foot for almost nine months now. I think I’m on top of the anxiety and I’m doing better and then will have a bad day where the twitch is nonstop for hours and each passing moment feels like a death toll. I hate it so much. Thank you for the reminders. I needed it badly today
Me too now. Do you also get a vibration with it around areas like ankles and under soles of feet ?
@@KyzerGB yes. It feels like the muscles are quivering even if it’s not a full on twitch. I recently started cutting out all caffeine from my died and I have noticed and improvement but it hasn’t gone away entirely.
@@everbejoyful Did the sensations come on after taking anything, like antibiotics, covid jabs etc ?
@@KyzerGB the only thing I was on that was different was a low dose of lexapro. I was on it three months. The month I weaned off of it, the twitching started
@@everbejoyful This could be the reason why. I've been on amitriptyline and citalopram. But have been on amitriptyline for few years now, As Dr's always think that's the answer . 😠 Have a look into glutathione iv which can help rid toxins out system when the body can't because its all out of wack .
Woo you are so pretty!
I’ve had twitches, tremors and headaches for the last 4 months but the strength is still there whilst in the gym, so I haven’t felt anxious for a few weeks now yet still get all of these symptoms everyday but I guess it just takes time for the subconscious to catch up.
what is twitching?
It can take a few months or longer for the brain to catch up and realize the symptoms aren't dangerous. Keep working at it!
@@Robin-uu6eg really ?
@@vocalsbymohsin google it, lazy bum
you are gold
Thanks for what you do. Health anxiety is so debilitating.
I currently fear that I developed peripheral neuropathy from an antibiotic that may cause this in very, very rare cases. I read this and my anxiety sprialed out of control. I stopped taking the antibiotic but I now experience tingling, pins and needles and all that in my hands.
I am just now opening up to the idea that this may „just“ be from the constant panicking and hyperfocus on my hands. I don‘t even remember what my normal hands feel like, and it has only been a week.
I have a long history of health anxiety, conversion disorder and depression.
I am gonna see a neurologist next week. But if my nerves turn out objectively fine, I hope to let it go.
Thank you for doing those vids, they help me through the current tough days❤
Me too. Mine was ciprofloxacin and have all the same. In my feet now under them and around ankles . 😔
Which antibiotic was it?
Thank you so much
I've been having muscle twitches for 5 months now, sometimes I feel odd muscles hard etc... life has been hell. I don't recall having any anxiety before.
Im 36, and have had muscle twitches for 7-8 months now off and on…ive gone down the rabbit hole a hundred times. It’s worse when im just sitting still (but that’s the only time I really notice it). It’s so frustrating. But I’ve had no other symptoms. Just random fasciculations all over at different times. It’s scary. I’m very active and have little kids and I just worry myself to death and can’t ever stop thinking about not being able to raise them.
I was a pretty heavy drinker for a couple years (2020-2022-covid times). I quit drinking.
My wife’s dad died in October of 2023, she was stressed and we stayed up late one night drinking (I drank way too much) and the onset of fasciculations started the next day and have been off and on ever since. I haven’t drank since, but it’s worried me so much.
I am a high anxiety/anxious person and always have been without the best coping mechanisms(work more, work harder, workout more/harder, ect).
I’ll just keep waiting and seeing if things get worse or better. They don’t affect my life, but they do cause more anxiety. I just stay busy and ignore them the most I can, but laying in bed at night and feeling them starts the cascade of worry all over, over and over again.
Idk. Just wanna raise my kids and be there for them.
thank you so so much
I have been suffering from health anxiety for almost 6 months...I jump from one thing to another every time...one of them twitching...there were moments when there was many twitching happened...but when I jump to my other symptoms, I noticed twitching stopped!!! So, I keep on telling myself that if that twitching was serious, it will happen everytime, if it stops when my mind diverted to another thing, then its definitely my anxiety is what causing twitching...
Thanks for the helping words. I guess I have health anxiety. Even if it is mild I google stuff too much for no good reason and visit the doctor for small things
I Have a awful health anxiety and OCD (male 28) and I'm im the bulbar Als rabbit hole .. I read about it and after a week I have started to slurre many words, No one have heard it when they speak to me, but! I have it recorded when I do slurre, so I really are slurring my words. I also started stuttering.
After the first slurre I got so hyperaware of my speech. I have never had any problems with my speech, my speech is my biggest gift in my life so when something is off with it, I know for sure something is really wrong. During this time, I also remember my tongue feeling fatigue. I do not slurre all the time it's coming and going.
I’ve also developed in the last 2-3 days a scalloped tounge and burning sensation on my tounge (never had this before), fasiculations all over my body, mostly on my left buttcheek, it also feels like I have lost the coordination of my tounge and my tounge is always touching my teeth while I’m speaking, I never had braces and I have straight teeth. And today I have bit my tounge like 15 times meanwhile I'm speaking ..
So to my question, is this the bulbar onset of ALS? Because how can it be possible for me to slurre my words for 17 days with just hyperawareness and health anxiety, it should not be possible right?
Great video’s. Last november I was hospitalized with atrial fibrillation at the age of 35. Far too young for such a rythm disorder. Scary. From there it went downwards. Panic attacks at night when my heart goes mad. Since months i’m having twitching, tingeling and numbness in my body. My sister has MS, so i’m worried that I have that as well and that is the reason of my heartproblems. MS can literally affect everything in the body. been down the ALS rabit hole, but I have heartproblems as well and ALS does’nt affect the heart, so that’s somewhat of a relief…. Next week I have an appointment with a neurologist. The docter says it’s stress. That’s possible, but I’ve experienced no stress for the last two months and the symptoms don’t go away. Making me really insecure.
You just said you’re worried about have MS, and then say you’ve had no stress. Worrying about having MS sounds like stress to me.
Follow-up. The check-up with the neurologist was fine. No weird reflexes. She thinks anxiety/stress. Within 6 weeks I’ll get an MRI and EMG to rule things out. MS isn’t a hereditary disease, but my chances of getting it is about 40x larger because of my sister has it (say 3-4%). All was fine at her first appointments with a neurologist as well. Her symptoms were worse. Especially the insane fatigue that is specific to MS and “walking on clouds”. Luckily I don’t have that symptoms, so I have good faith that it’s just my brain messing with me.
@Frank 87 keep us posted when emg results come back. Hope and pray its all clear. 🙏
When i get really anxious i can barely talk, my tongue get pretty heavy and swallowing can get pretty heavy. Out of all the symptoms i have had, the new ones where pretty scary such as fatigue, twitching mainly clafs, paresthesya(pins and needles) hands and feet
have health anxiety and A.L.S is where my fear is focused, now I have muscle twitching all over, in my lip, my calves, my finger jerks and so on, I lift weights, work out with total gym and box with a bag, als is supposed to make you weak and I am not getting weak, I have lived with anxiety my whole life, I am also an army vet, I have benign essential tremor diagnosed a few years ago, I was evaluated a few years ago for als from a doctor who was an expert in the disease and he said I do not have it and I met the widow husband of someone who just died of als so you see where this is going, I was also diagnosed with pre diabetes so I have gone kind of keto and have been drinking decaf coffee to stay warm in the winter so I think I have an electrolyte imbalance or a little dehydration which I am correcting now with drinks, I would love to here your thoughts and thanks for this video
Wow. Amen. God bless.
Before I found out I actually had Lyme disease, ALS was in my mind of course. I had twitching and leg weakness. I wish I would’ve found this back then. It would’ve saved me a lot of tears and anxiety
Going through this at the moment, twitching all over body. Genuinely terrified
You are a angel I needed this
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Hey there! I really appreciate this support video. I've been having twitching in the face, calves, arms, feet etc it's getting worse. It's probably not ALS but I've also got a horrible face rash currently that's red, hearing loss that's coming off and on with ringing in the ears where I can barely hear, nausea off and on, horrible headaches etc. especially in the morning
I did some research after suffering badly for awhile now, and apparently CHRONIC LYME DISEASE can cause muscle twitching which can be mistaken for ALS sometimes in people.
This could be the case in my case, and if it is, well, the bad news is I'm having problems, but the good news it's probably not from ALS . That being said, my symptoms are serious, and if it's Lyme Disease, that's also serious and needs treatment, but at least it can be treated.
People need to be aware or Lyme disease too. It almost killed Avril Lavigne even, it's common (way more common thsn ALS) and the symptoms are horrible.
In any case, worried about my health which seems to be deteriorating, and I'm worried about symptoms which appear to be bad, but this video is reassuring that it's probably not ALS.
How r u doing?? I have been twitching first week of September
@@LidoBombs2 Feeling better overall, but the twitching is frequent and literally EVERYWHERE! Face, neck, hands, feet, calf muscles, arm muscles, you name it.
I'm getting EMG testing in a couple weeks. It's very scary, but I haven't noticed weekness at this point. Had an MRI too and there's white matter congruent with migraines though it COULD be MS in my case as white matter in the T2 receptor sites can be migraines or MS and hard to differentiate (and I've had migraines my whole life).
Too early to tell.... Obviously very scared, but it has been happening for a couple months plus now and I went hiking 6 miles a couple days ago, so I don't think it's ALS .... Eh
As horrible as MS is I'd rather have that then ALS obviously. MS CAN also cause spasms like this off and on but it usually has other symptoms. Not everyone with MS gets spasms either but many people do.
The thing is I've had some of these other symptoms unfortunately like flashing lights at night, and uncontrollable eye movements, especially when I wake up.
It's sort of like the spasms, but my eyes will move everywhere uncontrollably for a few minutes. Obviously I'm getting EMG testing and seeing a neurologist.... Eh still scared crapless, but at least I keep reminding myself I hiked 6 miles the other day.
That being said the twitching/fasciculations drive me nuts.
How was the emg testing?
@@torbawden8856 No fun! Lots of shocks and stabs. In my case a needle in the neck even.
I've gone through worse things, and thankfully it only took like 90 minutes, but it's definitely not enjoyable. That being said, it was well worth it.
In my case I'm experiencing weakness and fasiculations/twitching... So I may have serious health concerns still, but it's great to know that it's almost certainly not a MND motor neuron disease like ALS.
The other thing to note, my weakness is more, "It's getting difficult and causes fatigue to do ABC action.". With ALS it's more, "I can't do ABC no matter how hard I try.".
One is a form of physical weakness versus clinical weakness. Clinical weakness with ALS comes with I can't that spreads... Based on what the doctor told me.
MS still really sucks too. Eh.... I had an MRI and white matter was found in the frontal lobe areas. This can be caused by migraines which I've had my whole life and it can be caused by MS...... It's too early to tell, but I'm almost, 36 which is one of the common ages to start developing MS whereas ALS is even more rare at 36. How old are you is the first question?
If you have fasiculations everywhere, that CAN be a sign of MS too though generally it isn't, but with some people (as it might be in my case) it could be the doctor told me.
The other thing is I get them everywhere. I've also got other symptoms though just for reference. Uncontrollable eye movements at times with both eyes, especially in the mornings. Horrible headaches, weird flashing lights at night, and dizziness, especially when the head goes back or after lying down (vertigo).
All of these symptoms tend to wax and wane which is a sign of MS too. There are remissions and then symptoms like this can hit you bad.
Not saying you have MS or ALS though.... obviously if you're having fasicikations like this I'd do the EMG testing and be done with it so you can hopefully move on from the ALS worries etc. It's an extremely low risk test that has been around for many decades now! It probably doesn't hurt to check for signs of MND just to be safe in any case of spasms/twitching that can't be explained and is persistent.
If you're NOT getting weakness with your fasiculations, it's almost certainly NOT ALS. I'm not a doctor, but that's what I understand from what I've read. Where are you getting fasciculations and what other symptoms if any are you having?
@@SkepticTalkhow did your EMG test go
I felt so fear ridden this morning going down that ALS rabbit hole and this video helped me so much I could cry
Same here been to the doctor twice says everything is fine but can’t get it out of my mind. Not sleeping appetite off and now I’ve got this post nasal drip going on which apparently is a symptom. Just a consuming rabbit hole.
at least you are brave enouhh to go to the doctors. I sm so anxious that I don‘t even want to go. I wake up every morning terrified not knowing if I am crazy anxious and therefore have all these symptoms or if I really have ALS.
Can you explain what that nasal drip thing is? So far haven‘t heard about that one. At least I know I am not alone with my fears.😢
@@alexib2070 You are not alone I wake up every morning the same way. The post nasal is having to clear your throat often I’ve researched it could be anxiety related but when you’re down the ALS rabbit hole and read one thing about a certain symptom then it becomes a fixation. I’m here to talk to anytime we are both going through the same thing. Are you twitching?
@@captainbeyond7469Thanks for the reply.
I have to often clear my throat. Slmetimes it‘s more anf sometimes less.
I have muscle fasciculations all day, calves upper legs and arms.
I don‘t think I have weakness in my muscles but really I don‘t know anymore.
How about you? Why do you still think you have it?
@@alexib2070 Mine started at the beginning of February with an eye twitch which I still have also twitching in my calves and the soles of my feet. Doctor attributes it to anxiety I’m having a hard time believing because I’ve read that ALS can take up to a year to really show itself.
Hi im going through it right now im weak in my kegs now for 2 months and started twitching 2 months as well my leg weakness is really making ne nervous googling symptoms and it says als i convinced my self but last month i went to my dr he took a regular test in his office and said he doesn't think i have als but in my mind i convinced myself I have it im making my self sick over this but this video is helping
my dad had it and recently passed away, so its a fear of mine but im starting to feel better after medication (anti-depressants)
So basically with als the twitches follow after clinical weakness? My calves have been twitching for a week now driving me crazy! Glad I found your video
Thank you
I have the exact same symptoms, even the swallowing. I also decided I wouldn’t want to continue my life if I did have it. At 24 I have gotten a nerve conduction and EMG and they came back normal. Even after a second visit at the neurologist who said I do not have it, a trip to the rheumatologist today who asked if anyone besides my grandma (who died of ALS) had it and reignited my fears. I cry about it every day. After seeing it first hand, it’s absolutely terrifying
Do you think a 3 seconds vibration inside your ear left/right may be a symptom of MS? I’ve had this 5 times over a month happening to me.
thank you
Im currently in this hell. I've never had health anxiety but began twitching last year and the first thing that comes up in Google is ALS. After cutting down on coffee the twitches slowly vanish. A few months ago I developed an ankle injury and it's Just just hanging on. Now Im more anxious than ever. I wish the anxiety would just stop.
I had twitching first on right thumb and dr DID susoect als but emg was normal. She still insisted it could be als and I should do emg again in several months. That was 6 years ago. I also had twitched in both thumbs many times and I can even trigger them! I also had them in both quads, both triceps, on tongue(!!!!!!), face, stomach and lots of places. Although it happened many times I am STILL scared I have it. Especially when I see and feel it on tongue which is the scariest. But it hapoens on and off for years now. It's horrible amxiety that never stops.
Interesting that your doctor would jump to that conclusion so fast. Doesn’t seem consistent in how neurologist tackle problems. Or, was this your primary who thought this?
@@EricStorm23 it was neurologist. She poked my hands and they were twitching and she concluded that "doesn't look good". She literally said she saw such twitches in ms or als. I was horrified. Later it was discovered that I had extensive tendonitia of all tendons in both arms and that is why it was twitching so badly. And mg deficiency. Dr shouldn't give such devastating diagnosis so easily.
@@biljam972 I agree. That should not be on the table for twitching alone. I’m sorry but that’s a bad neuro. Also, you only need 1 EMG. No such thing as early EMG once symptoms begin. No need to repeat. Sorry you went through that.
Mine comes with my ledt arm feeling fatigue faster and burning faster which gets me in a "the weakness is setting in" zone nevermind ive probably already been flexing subconsciously and using my left to do heavy lifting to see if I'm getting weaker. Thank you so much for this
Did you have post nasal drip also? I’ve heard that’s a symptom also I’m down the rabbit hole currently. Thanks
Hello, your video is very helpful.
i don't know if my story can help , last year( June 2022) i went through this horrible journey, it all started with my cpk a bit high i checked on google and i don't know how i came accros this disease call ALS.
I have never heard about this before. after two days of research on google i noticed the twitching everywhere, calf, tongue fingers face, back, nose lips everywhere. ( while typing now it is twitching in my right leg)
i searched a lot on the internet regarding this disease i was obsessed by this disease and i was sure that i got it.
i've done a Full MRI, cerebral scan and a lot of tests which was normal, then i decided to do my first EMG
i was in the waiting area waiting for my tern for the emg, i got twitching everywhere and during the test not even 1 twitch. the doctor said everything is normal, after 3 weeks with more twitching on my back and legs i decided to go for a second emg and same, while waiting in the corridor it was twitching like crazy and during the test zero twitch ( this was in august 2022)
after some time everything was back to normal since last month where my twitching started again in my tongue i felt like the muscle of my tongue is weak and cannot even swallow properly with a pain on the upper back up to my right tricep tendon, i have an appointment with neurologist again tomorrow to check, and again i am very stressed and my anxiety is horrible.
i hope i don't have this disease. i am afraid of this disease and again obsessed i also cannot even understand why
I am currently dealing with this!!! I started having calf and foot cramps a month ago and twitching in my thumb and small finger of my right hand. It’s SO stressful!!! Doing a lot of praying and listen to worship music to clear my mind!!!
How are you?
How are u now? My symptoms are exactly like yours!
@@laurenhill9115 Hey there, I am fine now. All symptoms are gone. I think it was related to anxiety. Hope you feel better soon!
Amazing to hear! I'm going on almost 3 weeks not. Exactly your symptoms! I've been so scared and I'm a believer in Christ too! I'm alone with two small kids, and I'm all they have, so need to be strong for them...
Thank you for this comment, and may God bless you richly and keep you, in Jesus name I pray 🙏🕊️🙏😊@@cherylcampbell693
been having some muscle twitching in my right shoulder for the past 2 days. on and off never goes completely away. my anxiety is going through the roof. im scared of MS and ALS.
Thank you for this video. I have twitches mostly in my right hand and there is a postural tremor in the fingers in a certain position, too. But there is no weakness. Can I calm down now?
Yes