Managing Multiple Sclerosis: Finding the Right Balance
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- Опубликовано: 28 сен 2024
- What is the right balance with Multiple Sclerosis? If I feel well one day, is it so bad that I go over the top? How do you manage your MS? Let me know in the comments 😉
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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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⚠️ DISCLAIMER:
My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" RUclips channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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Absolutely!. Take care of the energy and life's meetings. It costs, but in any case, for me, it is worth it. Maybe I don't feel that way the days after my trip in life, but now I have great memories. And the tough recovery is forgotten. So drive
Words of wisdom 🙏🏻🧡
@@LifeofSebMS 😊🧡
Dance little sister...haha..Ternce Trent D'arby...@LifeofSebMS
Seb, you look radiant today. We love that you were able to enjoy that Friday. You will recover from that fatigue.
How good you have allowed yourself to enjoy. Not everything in your life has to be a protocol and it is ok from time to time to go out of the way to feed other areas of your life.
You are still very young and you deserve it.
Proud of you. Peace.
Thank you so much, Liliana! You are completely right. There needs to be room for some enjoyment 🙏🏻🧡
Hello, my name is Sonja, I have had MS since 2009 and I am from the Netherlands. I followed the Walls protocol for 3 years and it did indeed make me feel better, but not yet good enough, and then I Switched to overcoming MS by George Jellinek and since then I feel much better and much fitter and have been stable for years. Besides being good for yourself, it is also good for the animals And the environment. I wish you all the best for the future.
Thank you for sharing 🙏🏻🧡
Oh my gosh this was me this weekend!! Wow, Saturday I took my kids to a play place walked around with them enjoying being a young mom again, hadn't done that for ages, then a birthday dinner popped up and i was like ok cool whatever then me and my partner decided to go party dancing, another thing hadn't done in ages! Well yesterday I felt so bad I spent the whole day in bed with fatigue sore legs and a sore body and today day 2 i have been mostly in bed but boy did i have a great full fun saturday 🧡🎗
Well done sister!! 🥳🧡
So happy you had a great time!! Yes most definitely.. enjoy life!!😊
I sure did!! 🤗🧡
Put the "FU" (to MS) in FUN whenever you have the chance! 😍.
It's a shame we know we will pay the price whilst others take these moments for granted but it helps our mental health to feel "normal". So glad you had strength to enjoy your time Seb! 🧡. Love to all from CT, USA
Haha I love that! 🤗🧡
😊😊 Yesss, I loved the "FU" in fun too! FU MS! 😊😊
WOO HOO!! Seb had vacay from MS!! well done, you live in the present and enjoy a normal life!! i'm prob 4 days behind you in the Wahl's Pro,,, can see some measurable improvements ,, haven't had any party like a rock star evenings yet,, lol.. but i'm more hopeful now.. great news Seb
It would be great to go through the improvements we feel together! 🙏🏻😉
we already are!! lol really pleased you had a great night out!! @@LifeofSebMS
🤗🧡
Just want to give you my support.l following you,nor so regularly,but still😊 l admire your calmness and how you are coping with MS. I wish you all the best and keep on fighting,or as would budist monks say,not keep on fighting but keep on accepting.
Thank you so much for this comment 🥰🧡
Medically sound? No needed at all! You are sharing lifestyle tips! Keep sharing your 2 cents! And taking a night out with friends definitely falls under taking care of ourselves. So glad you had a nice night out and took the time to recover over the weekend!
Thank you so much for your blessing, sister!! 🤗🧡
I also overdid it yesterday too in walking in DC with guests from Europe. 3mi walking in 90deg Heat, humidity, and barometric pressure. Taking my Adderall but forgetting to put on my contacts (helps me with dbl vision issues). When I got home was cooked. Physical fatigue, mental Fatigue, but didn't have cog fog though. Went into AC to cool off my core temp but overshot and ended up shivering in the Smithsonian museums. Then back out in the heat to go to the restaurant. Got home. Took some canibus gummies and laid awake till after midnight and woke early to get the dog out. So we all can overdo it on occasion. Make peace with yourself and when possible be kind to yourself.
Indeed 🙏🏻🧡
Jude.. does Adderall help with fatigue?
@@pattischmitz2680
My Nuroligist prescribed it in a very low dose. I don't do very well on provigill. It has helped me. I have RRMS and had first symptoms 2009. It's now 2023.
@@jude4896 does it help with brain function as well as energy?
@pattischmitz2680 As for the brain function, you're going to need to talk with your neurologist. But I find it helping on the energy front.
In the end all we have is our memories and our friends ;-) do everything to make them and have them and always appreciate every one!
This is what it’s all about 🤗🧡
Aprovecha y no te rindas nunca...
Nunca! Jeje 😉🧡
Powerfull message Thanks
🙏🏻🧡
I concur with your evaluation of the whole experience you explain here. Radical Acceptance of your right to live life!
Yes! 🤗🧡
😇🕯 You need to include some balance, where and when you can with person centred entitlement! @@LifeofSebMS
Hi Seb I had a wedding on Friday and danced and danced it felt good.. It Monday now and I’m suffering since I woke up on Saturday.. My legs and have pain on right rib where my liver is.. Yes great night but I think I need a week of recovery and didn’t drink.. Enjoy life take it day by day.. your not alone we’re not alone 🥰
Not alone, no 🤗🧡
🙏🙏🙏❤💖💓
🙏🏻🧡
You are a very brave young man, thanks for sharing.
🤗🧡
Yeah I noticed w drcwahls diet I have had that , what I know is do stuff one day but I know I can't do back to back I gotta have a few days in between
Nooo, only once in a blue moon 😝🧡
Life is a journey, and it should be lived at full. Preserving energy by not doing things you want to, just because living "too hard" might stress the body in the future, it's not worth it. Not with a degenerative disease like MS. We shouldn't try to live "as long as possible" but instead try to enjoy all we can, while we can. That is what I think it's best for us. And this is what I should start doing instead of laying in bed all day depressed because of this diagnosis.
I totally support your choice 💪🏻🧡
Seb, Dance when you're able! This week I was self-reflecting and told myself, "I wish I would have danced more". Glad you have discovered the value of taking advantage of "good days". No regrets! Thank you for sharing your journey.
Thank you, Paul! I do think the same and I’m really thankful that I was able to enjoy it again for one night! 🤗🧡
We must weigh the possible consequences of overextending ourselves, regardless of what our physical problems are. If we decide that grabbing those days, those hours, those minutes are worth it, then they are. It's a spiritual existence here, and we have to have times of feeling joy, happiness, energy and having friends with whom to enjoy it. If we shut ourselves away all the time, life can become a drudge. Having a disability of some kind doesn't mean we must stop living. Sometimes we should just push ourselves as long as it is safe and we are enjoying it.
Absolutely 🙌🏻🧡
Isn’t there something they can give for energy? Ritalin? Ect?
Really? For now I’m getting my energy from healthy living 🙏🏻🧡
@@LifeofSebMS I totally understand.. as we should..but do you know if there’s something they can give for energy?
Hi Seb,
I love this post and happy you had some fun. It’s important to have a good day even if we suffer for it😊
I have been dizzy and nauseous and scared to leave the house because of it for 3 weeks is this normal?
Hey there, unfortunately nausea can be a symptom of MS 😞 in fact I get it randomly from time to time 🙏🏻🧡
@@LifeofSebMS 🙏💕 A ginger biscuit can help me with it and make me feel a bit better.
These moments are so precious! Enjoy them, make nice memories, so you have something to cling on when the bad times come 🍀🍀🍀🌞
My thoughts exactly! 🙏🏻🧡
Take the good day and enjoy what you’ve got. It fell right for you. It’s worth it in the end. X
Totally 🤗🧡
Hi plz answer me ms symptoms Travelling in body parts?
Yes 🙏🏻🧡
@@LifeofSebMS plz Ripley
@@LifeofSebMS plz
I don’t understand your question
@@LifeofSebMS in my body left side pins itchy bites sensation some time both side this is Ms symptoms
Please never stop making these vids. You have no idea how much you've helped me my friend. I enjoy and learn alot from your stories! 🩵
Thank you, it means so much to me to read comments like yours! 🥰🧡
@LifeofSebMS Just recently I helped my friend paint his house and because of your videos of being open with MS, I opened up to them and they were very aware of how I was feeling. Asking if I needed breaks. You help me out a lot. God bless you, buddy! I'll continue to watch your journey. 🍻
@silentneo1431 that is so good to hear 🙏🏻 cheers to openness! 🥂🧡