You go ladies!!!! Kick ASS! I don't think people that have mold sensitivities get to umbrella themselves in CIRS Population. We need to be a disease not a syndrome. Insurance would have to cover. You ladies are FABULOUS FABULOUS
What a great podcast! I am probably one of the worst C.I.R.S cases out there.I have been ill with this for about 60 years now and it was only 2 years ago that my PCP attended a lecture by Dr. Heyman because he has cirs also. I have been trying to figure out what I have for the last number of decades and have been to a number of doctors and specialists, like everyone else. My PCP has left his 2 practices and has become a Shoemaker certified physician here in Utah and joined another clinic here. He knows all the other physicians involved in cirs and meets with them regularly. It took me all this time to FINALLY get to VIP. I also had a major brain injury 20 years ago and this brought cirs out even worse than what I had had before. This is scary,frightening stuff and its really touch and go on a daily basis. So, like everyone else I've been through HELL! I have spent at least a few thousand hours here on RUclips studying from all the familiar people involved in this field. I've only been on VIP 1 1/2 months with a few noticeable changes. Anyways I intend to catch up on all your other podcasts. You have a great format and you both are HIGHLY intelligent and your giving some great advice that will help many.
Wow! What a journey you have been on! We're so happy to hear you've found CIRS, a practitioner who cares, and you're on the last step! We'll be rooting for your healing and please keep us updated. Thank you so much for watching and leaving this comment! We so appreciate it. :)
I try to send everyone to this podcast to learn about CIRS. They don't like to hear me say, "you have to get out of exposure, you don't have a choice." You ladies are much nicer about it than I am. LOL I've gotten a lot of remediation done, and I'm still cleaning! But already can tell my VEGF, ADH and MMP9 levels are improving, based on how I feel. Now, I have to brave the welchol again. My last dose of that was so awful, I had to quit taking it. Hopefully, reducing the toxin load in my house will help with that.
I really like how yall make things feel do-able and also how you make the mental health of it important, not pushing going so hard on yourself all the time. It makes this feel realistic and like I can do it as long as I go slow and smart. Ty guys for all the things you do, group and public 💜
So glad to hear. We value our mental health possibly above ALL ELSE so we love to push that in others too. Good job working on that! So happy to hear we're helpful too :)
I'm in the middle of a protocol but during a pause right now as I'm working on my house and mediation however I did start off on cholestyramine regular from the pharmacy and I have a real problem with the fact that it has aspartame and dyes in it. We're trying to get better from one thing but creating or continuing to exacerbate other problems. I ended up going to a compounding pharmacy and of course paying 10 times more for a compounded form then the regular RX.
Yep, that's the trade off. Many people have healed from CIRS without the aid of carnivore, keto, or other super clean diets, so if money is tight, the "dirty" version of CSM can be good for some. Another option to look at would be welchol, which might be cleaner than the sucralose version of CSM.
I’m using TOXAPREVENT which is basically Clinoptilolite . I also use Chlorella Pryenoidosa prescribed by my practitioner to bind the mycotoxins.Could you please give your opinion as to wether these will work.Thank You.
aww, that's a bummer. You may want to ask your doctor about backing off a little on the dose to see if that helps, and just increasing more slowly. Hope you're feeling better soon!
Can you provide the name of the doctor you referenced who was not a fan of mycotoxin urine analysis tests? I could not get the full name from the transcript. Thanks!
Well with CIRS, we're not able to create antibodies to the biotoxins - that's the whole problem. The best comprehensive list of CIRS related bloodmarkers to check can be found here: www.nutritionwithjudy.com/shopping/lab-work/chronic-inflammatory-response-syndrome-cirs-testing
@@thecirsgroup I love Judy! For the record, according to Judy (I emailed with her) I tested positive for the HLA-DR gene, which I thought meant I was part of the subset that couldn’t create antibodies. But my mymycolab antibody report came back very positive. As well as all the shoemaker bloodwork. So I’m a bit confused here 🤔
@@dimitrideychak8939 Maybe try consulting an actual medical professional or functional practitioner, as opposed to all these RUclips gurus (who have zero medical training or qualifications....)
You go ladies!!!! Kick ASS! I don't think people that have mold sensitivities get to umbrella themselves in CIRS Population. We need to be a disease not a syndrome. Insurance would have to cover. You ladies are FABULOUS FABULOUS
Oooh yeah that’s a good point too. Definitions matter!
What a great podcast! I am probably one of the worst C.I.R.S cases out there.I have been ill with this for about 60 years now and it was only 2 years ago that my PCP attended a lecture by Dr. Heyman because he has cirs also. I have been trying to figure out what I have for the last number of decades and have been to a number of doctors and specialists, like everyone else. My PCP has left his 2 practices and has become a Shoemaker certified physician here in Utah and joined another clinic here. He knows all the other physicians involved in cirs and meets with them regularly. It took me all this time to FINALLY get to VIP. I also had a major brain injury 20 years ago and this brought cirs out even worse than what I had had before. This is scary,frightening stuff and its really touch and go on a daily basis. So, like everyone else I've been through HELL! I have spent at least a few thousand hours here on RUclips studying from all the familiar people involved in this field. I've only been on VIP 1 1/2 months with a few noticeable changes. Anyways I intend to catch up on all your other podcasts. You have a great format and you both are HIGHLY intelligent and your giving some great advice that will help many.
Wow! What a journey you have been on! We're so happy to hear you've found CIRS, a practitioner who cares, and you're on the last step! We'll be rooting for your healing and please keep us updated. Thank you so much for watching and leaving this comment! We so appreciate it. :)
Dexter Level of Cleaning... I love listening to you ladies...
Spot on...
😂 we do our best to keep it weird 😎
I try to send everyone to this podcast to learn about CIRS. They don't like to hear me say, "you have to get out of exposure, you don't have a choice." You ladies are much nicer about it than I am. LOL I've gotten a lot of remediation done, and I'm still cleaning! But already can tell my VEGF, ADH and MMP9 levels are improving, based on how I feel. Now, I have to brave the welchol again. My last dose of that was so awful, I had to quit taking it. Hopefully, reducing the toxin load in my house will help with that.
Fingers crossed for you friend!! 🙏🏻
No one cares about the semantics. We just want to be healed.
Yeah it’s a tricky point when the nuances can determine whether or not you are getting the correct treatment
I really like how yall make things feel do-able and also how you make the mental health of it important, not pushing going so hard on yourself all the time. It makes this feel realistic and like I can do it as long as I go slow and smart. Ty guys for all the things you do, group and public 💜
So glad to hear. We value our mental health possibly above ALL ELSE so we love to push that in others too. Good job working on that! So happy to hear we're helpful too :)
Awesome, ladies! Knocked it out of the park!
Thanks so much!!
I love the fact you talk about the cleaning
This was the push I needed to finally agree to letting go of my library and couch before we move to our new “safe” space. 😅😭
It's sad to see those things go but I hope you find health and healing in their place!
Great info as usual ladies, thank you so much!
I think it’s called se-CREET-ory diarrhea. You’re so right, grossest description ever 🤢
Oooh thank you for the heads up! But also I hope to never have to use that word again 🤢😂
I disagree with csm and welchol being the only binders that work. I did not start making progress until I started following Jill Crista’s book.
I have not seen clinical research proving the efficacy of other binders, but I am open to reading it if you do!
But noone tells what blood marker ee have to do?? Is this a secret?
Sorry, which bloodmarker are you referring to? We have a whole series on bloodmarkers if you’re interested in more info!!
This is amazing!!! Thank you
I'm in the middle of a protocol but during a pause right now as I'm working on my house and mediation however I did start off on cholestyramine regular from the pharmacy and I have a real problem with the fact that it has aspartame and dyes in it. We're trying to get better from one thing but creating or continuing to exacerbate other problems. I ended up going to a compounding pharmacy and of course paying 10 times more for a compounded form then the regular RX.
Yep, that's the trade off. Many people have healed from CIRS without the aid of carnivore, keto, or other super clean diets, so if money is tight, the "dirty" version of CSM can be good for some. Another option to look at would be welchol, which might be cleaner than the sucralose version of CSM.
I’m using TOXAPREVENT which is basically Clinoptilolite . I also use Chlorella Pryenoidosa prescribed by my practitioner to bind the mycotoxins.Could you please give your opinion as to wether these will work.Thank You.
As far as we know, the shoemaker protocol is the only clinically proven path to heal from CIRS
How can I find a CIRS certified practitioner or doctor in Edmonton, Alberta, Canada?
Providers are listed on survivingmold.com!
I have the opposite with CSM. Gives me loose BM and nausea.
aww, that's a bummer. You may want to ask your doctor about backing off a little on the dose to see if that helps, and just increasing more slowly. Hope you're feeling better soon!
My practitioner says mycobind is as effective a binder as the prescription binders but with less side effects. Is this true?
It is not, unfortunately.
Barbara are you a tree? You are giving all
The
Shade.
😂 and here I thought I was the shady one this episode - J
Can you provide the name of the doctor you referenced who was not a fan of mycotoxin urine analysis tests? I could not get the full name from the transcript. Thanks!
That would be Dr. Dorninger of Roots and Branches in Colorado!
@@thecirsgroup Thanks!
What is your position on blood antibody tests to mycotoxins?
Well with CIRS, we're not able to create antibodies to the biotoxins - that's the whole problem. The best comprehensive list of CIRS related bloodmarkers to check can be found here: www.nutritionwithjudy.com/shopping/lab-work/chronic-inflammatory-response-syndrome-cirs-testing
@@thecirsgroup I love Judy! For the record, according to Judy (I emailed with her) I tested positive for the HLA-DR gene, which I thought meant I was part of the subset that couldn’t create antibodies. But my mymycolab antibody report came back very positive. As well as all the shoemaker bloodwork. So I’m a bit confused here 🤔
@@dimitrideychak8939 Maybe try consulting an actual medical professional or functional practitioner, as opposed to all these RUclips gurus (who have zero medical training or qualifications....)