Restless Leg Syndrome: Triggers, Home Remedies and Treatment | Andy Berkowski, MD
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- Опубликовано: 13 окт 2024
- To learn more about restless leg syndrome, please visit cle.clinic/3t7HyHC
Restless leg syndrome can sometimes feel like a baffling disorder. After all, it’s characterized by the strong urge to move your limbs while trying to sleep. In this episode, sleep expert Andy Berkowski, MD, discusses common triggers and what you can do when it strikes. He also explains what home remedies work and when it’s time to seek an expert’s help in managing this condition.
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I started taking Magnesium glycinate 325mg, 10mg of Melatonin and sometimes add in a THC/CBD/CBN gummy or tincture. This combo has allowed me to get at least 5-6hrs of rest at night. Prayers to all who suffer, this is an extremely frustrating syndrome!
J'ai été guérie de multiples fibromes par le Dr Eseigbe sur you tube dont j'ai souffert pendant tant d'années et après tant d'opérations. vous pouvez également obtenir de l'aide de sa part, quel que soit le problème, je sais qu'il a une solution *.
I’ve used all three but Not altogether. I used 40 mg of melatonin and I take a gummy every night and that’s not holding me so I need to go to all three I guess.
@@zombieninja559 you can get herbs treatment from Dr Eseigbe on RUclips channel to be healthy my dear friend
Melatonin can make symptoms worse for some people! 🤔🤔🤔🤔
CBD does help along with vitamins D 3 K-D B12 Magnesium. But pain I use Tramadol and Ibuprofen. and it works.
Just listened to this video.
Have had restless leg syndrome since a child . Am now 78 and have learned that magnesium threonate which is the least likely form to cause loose stools, works very well.
Each night awaken with the need to move the legs and get up and take 3 1000mg capsules.
It works well - back in bed after 10 minutes or so begin to get sleepy and fall asleep again.
Some nights it happens again so follow the same routine.
Am very grateful for this remedy and sleep very well most nights using it.
Have learned over the years as he suggested not to use alcohol or caffeine which helps alot.
Also not to get overtired as this always brings it on - am very tired and then suddenly wide awake with restless legs.
Hope this helps someone.
I appreciate your sharing this! Thank you.
Thank you, your advice helped a lot xx
This is the best way I can describe what it feels like. The feeling of "losing your stomach" when going down,forward on a ferris wheel. That sensation that may make some ppl quiver as they feel their stomach feel quivery on the ferris wheel ,going down. THAT is the sensation in the legs. If anyone can relate to that "losing the stomach sensation" If anyone else can relate to this analogy please share
Same goes for me, like when u feel excited and you have "butterflies" in your belly its equivalent feeling on my legs... Its really hard to sleep and it feels like i need something heavy to press on my calves so that I won't feel it.
I don't generally feel like pins & needles nor the "static" feeling when u sit on ur legs for so long.
Yes totally relate
I feel the same thing. I hit my legs in frustration just so i would feel the pain more than the sensation.
For me it feels like the kind of pain/sensation you get in the nerves around your teeth when you bite into something really cold or really hard but in your legs.
Yes!!! Exactly. It feels like my legs are going to puke. It's new for me. I'm not diagnosed. It's the freakiest feeling. I noticed mine hit like a freight train just MINUTES after eating sugar (my homemade BBQ and seafood sauces).
I've had RLS for about 15yrs & can say if I'm on the 4-5th night of this awful syndrome - sometimes it can make you feel suicidal. I take Sifrol on a high dose but over time it has become ineffectual. My Mother & Aunts all had it. Just feels like torture. Best wishes from Australia 🇦🇺 ❤
Also in Australia. I've had this, but didn't know what it was, since I was a child, I am now 75. My Mum and Grandma also suffered dreadfully with RLS. Grandma had no meds, she passed away in mid 80s. Mum took Sifrol until she passed away at 90 and I have also been on this for years. I am very active, swim and exercise. I find that if I don't take the Sifrol around 6pm I will be up walking half the night. It doesn't stop it though and in the last year I've begun to have it in my arms. I drink a lot of tea although last cup at 3.30. I have had a small issue of low iron but that corrected next blood test. After listening to this Dr I think I will reduce my Sifrol and see what happens. Would hate this to continue to escalate into the future. It isn't pleasant to be walking around on preferably cold tiles, kicking and tensing to try to stop the sensation it is, I agree, sometimes suicidal thoughts with it occurring so often and so fiercely. I also unconsciously move my feet around a lot, my husband tells me, when I am sitting on the sofa or in bed of a morning having a cuppa. Perhaps this is natures way of helping! Good luck with your RLS.
You must go to a reputable doctor. I’ve has it for 53 years. Also watch your diet. Alcohol, sugar, salt, night shade vegetables (can be the worst for you) and anything fermented.
My sympathies towards you & fam…I’ve been on this train for 9 years…have you tried a combination of Ropinirole 5mgs and B1 100iu?
Jennifer, I have had it for 20 yrs. I deeply empathize with what you say. It takes courage to openly talk about 'suicidal thoughts'... been there, many times. I have been taking Ropinirole 2mg since 2005. My movements got **crazy** in 2018. I even had to quit my job. July through Sept 2018 were the worst months. I have seen about five neurologists, had about five sleep tests done. Iron levels checked (I'm ok but sill take iron sulphate + citric acid (2x500mg)) for better absorption. I have tried Mirapex, no change. Combination of Ropinirol with Gabapentin (help,, sort of, but abandoned for other meds>>), oxycodone (5mg starter, up to 10 mg; helps a lot but knock me down cold. Blessing and a curse, but since I don't work I can deal with this). Tried codeine for a month or so, similar to oxicodone. Yesterday my neurologist (very nice guy, others I fired, bunch of incompetents) suggested to try a combination of Ropinirol with Methadone. Plan is to taper Ropinirole out with increasing levels of Methadone. Then if all works well, taper Methadone away and see how this works. Looking forward for this 2 month experiment. Hoping you the best. Hugs. Take care.
The. (Ropinol) unsure of spelling made mine much worse. Started happening at 3 or so in the pm instead of just at night. Also caused me to swell up. All went back to nights intermittently when I got off that terrible stuff.
I don’t “feel” anything, I just can’t not move. I can’t stop myself, almost like a reflex.
I know the feeling...it's horrible!
Me too!! I refer to it as twitching
Try buying magnesium. Also walking during the day. I don’t like talking too many drugs nor giving my folks any. Honestly, they just help but they have a lot of side effects.
What medication are you taking , is it not Gout ?
@@adamcenteno6155 did you consult a doctor before taking magnesium
Dr. Berkowski, thank you for describing airlines as torture chambers for people with RLS! This is the very first doctor who is able to explain RLS in detail. I've suffered with RLS for 30+ years. My primary doctor just brushed it away when I mentioned it. I'm being told that physical activity relieves RLS but that has not been the case for me; it makes sense now! According to Dr. Berkowski there's a "sweet spot" for activity levels depending on each individual. My activity has been too intense so I have to find that sweet spot. Thanks so much for this video.
My advice is to see a doctor.
I feel your discomfort I have walked in circles for up to two hours at times
I have had restless legs for over 30 years, about 12 years ago I went to the mid-west for my Mom's funeral, I am petrified of planes, so on the way back home I took the Greyhound. My legs acted up big time. A young person about 18 years old was sitting across from me. I looked over at her an noticed her legs were moving a lot. I asked her if she had restless legs, she said yes, and looked like she was about to cry. My heart went out to her.
I had RLS driving me crazy, magnesium for a week and it was gone.
My RLS just started a few months ago ……seemingly out of the blue. But I lost my dog to cancer not too long ago. We walked a couple miles in a day all over the place. And I have sciatica for which I get injections….very helpful. But when my sciatica is flaring I’m not inclined to go out and walk. Think a combination of lack of activity and grief has slowed me down. The exercises for sciatica seem to help with the RLS as well. And I’ve started taking a calcium magnesium supplement about two hours before bed. So far so good. And I would get another doctor. Your suffering is his job to treat not brush away. Good health to you my friend 🦋
Plane journeys are a nightmare, I wore flight socks once and before the flight took off I already had them removed, I spent a four hour flight standing pacing at the exit door. Restless legs is a horrific syndrome which I have endured for 40yrs with no relief despite all the drugs and supplements. Sleep is a luxury for me so I am grateful for the 2 nights I do get. The endless tiredness and sleepiness is dragging me down and leaves me with no energy. I still hold hope for something new coming on the market to help me .... if not me then for others who suffer from this condition.
I feel your pain. I found Kratom about 8 years ago and that works well for me but its getting to the point where I have to spend a large amount of money on it per week and taking it gives me sleep but its not great sleep quality so Im still suffering from not getting great sleep and potential health side effects from taking so much for so long. It is indeed an awful condition that I wouldnt wish upon anyone. Im sorry for your suffering and I will keep you in my prayers.
Currently up at 1:30 AM suffering from a particularly bad "episode". I feel it in my legs, arms, up my back, and even in the face - it's an absolutely hellish experience. It hasn't been quite this bad in a long time, I think I'd forgotten just how painful it could get. Bleh.
It’s 3am n I’m still up coz of rls. I’ve taken Sifrol tablet, iron, magnesium tablet and 2 osteomol as there’s pain in knee as well. When I walk around it goes away, but when I slide down it comes back. I’ve soaked 4 times tonight but still pain n restless sensation keeps going back. My eyes are sleepy but my legs won’t let me sleep. It’s frustrating.
I was put on Rigogotine patches recently and they worked to begin with then I would have nights were they didn't have any effect and one night was suffering from 16.00 hrs till 23.00 hrs and just put on another patch taking me on an overdose level ... I'm now allergic to them and back on pramipexole.
My advice is to see a doctor.
@@veronicalucas8961 My advise is Take a tablet of Super Vitamin B Complex from Spring Valley. $ 6.00 at Walmart. Works great!
@@cattnipp My doctor prescribed Gabapentin which causes suicidal thoughts! I gave him a piece of my mind for sure!!!
This is so true about the over the counter sleep aids and how they make it worse!!( this is debilitating I pray for anyone going thru this!!🙏
Try elevating your legs when you're in bed..
Thank you for your prayers
The intensity of the sensation varies a lot. When it's bad for me, it feels as if my body is trying to turn itself inside out. Like intense anxious energy is rampaging under my skin. It's the build-up of a shiver that stretches on, never actually shivering. You need to move your legs or body in the same vein as needing to sneeze or shiver.
So this is it, finally I have an answer. It affects my whole body for sure. I feel like I'm gonna crawl out of my skin.
You described it perfectly for me.
My advice is to see a doctor.
Glad I found this. I have restless WRIST syndrome. Get it very very minutely in my legs, but oh boy my wrists suffer. I have the constant urge to shake my wrists, an uncontrollable spasm so to speak. Feels like my wrists are constantly itching/tingling/forced to move. I only get it at night and briefly after waking up. Doesn't happen all month, maybe only a week out of a calender month. Wouldn't wish this syndrome on anyone. I'm a 32 year old male and it's reduced me to tears with how frustrating and sleep deprived it makes you. A very underrated disorder, if you don't have it, count your blessings.
My husband has had it for a long time. His dad and siblings have it. He has to take medication twice a day to keep symptoms under control all day and night. I keep telling him it is worse with things he eats. He is also unable to eat some things that cause him to feel bad or get welts.
I experience it this syndrome since I was a kid, it was very desperate, anxiety, I remember to pour cold water in a tub and stay inside for at least 30 minutes. As time passed by I experienced randomly but since this pandemic started I started experiencing every day, my sleeping habits change drastically.
The treatment sounds worse than the disease! I drink a glass of water and take about 800 mg of magnesium. It helps both RLS & cramping which is horribly painful. If you tak mg every night before bed it helps you sleep. So does Zinc. Zinc lets your body manufacture melatonin which is the sleep hormone.
@@SandyCheeks63564 ohh, will try it, thanks
J'ai été guérie de multiples fibromes par le Dr Eseigbe sur you tube dont j'ai souffert pendant tant d'années et après tant d'opérations. vous pouvez également obtenir de l'aide de sa part, quel que soit le problème, je sais qu'il a une solution *.
I have found that cold helps a little bit also as I will lie in bed on a freezing night and have the window wide open by my head. I might try having a cold shower in the summer just before going to bed.
Wow idk how the cold can help you both, because the cold makes mine worse 😮
Actually even cold air makes mine worse too. 😢
This video is EXCELLENT and he's right in line with my own doctor. I'm 46, experienced my first RLS symptoms when I was barely a teen, and it increased when I started needing allergy meds and anti-anxiety meds. I'm now on Gabapentin and it's managed with that. This is an excellent video to share with family etc if you need help experiencing what you're dealing with, or even if RLS is just new to you and you want more info. Everything I would have wanted him to touch on, he did. Very well done!
He missed mentioning that melatonin is not good for rls, lots of people in the comment section think taking it helps. I know cuz taking it long term actually brought on my rls
@@Vgallo melatonin doesn’t do anything
@@Vgallohmm 🤔
@Taradian Gabapentin doesn't help me with the RLS. Glad it works for you 😒
Gabapentin helped me for 1 month on 100 ml. Now RLS is coming back : \
Wow.. Very impressed. Very few doctors understand the whole picture and how to treat issues ethically. This guy seems like the real deal! This video helped me understand my particular RSL case and also helped me figure out how to fix it. Great video.
Can’t fix it, all my life, I am scared to go anywhere or fly longer than hour. Taking ramipex, don’t help anymore . Just exhausting
Same for me it does run in families my sister had it and thyroid Diabities. We need blood test for B12 active. Very few medical people understand this not researched enough. What a brilliant Doctor well done for your honesty 🙏😇🙏
I have suffered or many years nightly.I have had every type of medication prescribed. The latest medication is Clonazepam. I started taking a 1mg tablet at night. This did not really improve my systems. My Doctor increased the dosage to 2mg per night this immediately stopped the movement of my legs and I thought he had found the answer. After two nights of taking the 2mg my moods changed causing my family to become concerned. I listed all the differences I was experiencing and my Doctor has reduced it now to 1mg for one week and he will be looking into starting from the first medication I had years ago and work through the list as I become immune to each then trying the next on the list. We will see how how this activity works. I have looked at cutting off my legs in the past but this is is not the way to answer the problem.
My rls is my legs start kicking while I’m relaxing into sleep I end up crying on knees n elbows trying to sleep is exhausting even when on ropirole I still get it I try stretching hamstrings or lying on stomach at least you can’t kick much on your stomach and almost impossible to fall asleep it steals your sleep quality beyond belief.
I feel your pain....
Please try acupressure therapy. Surely it yields good result.
How many sleep studies have you had? You need to find out exactly what is going on in your brain and the rest of your body. There are ways to treat it. My father found that 400 mg of vitamin D a day helped him with his RL syndrome that’s just managed to help him.
Also going for a walk 2 hours before bed will help as well. Get your family doctor to refer you to a sleep clinic with sleep studies and specialist. You will likely need at least 3 studies. A diagnostic one, one once your specialist has diagnosed the problems and provided treatment. To see if the treatment is working, maybe more if adjustments are needed. Then you will need one to confirm that the treatment is working properly. It took about 6 studies at the University Network Western division.
The sleep study lasts from about 5 pm to the next day. The investigation and data take about 3 weeks to compose into a report. You then see the sleep specialist again and he tells you the results and what is needed to treat you. After you are established on the doctor’s treatment. You will need another study to see how the treatment works. Altogether it took 6 sleep studies under the same clinic and doctor for them to be satisfied with my treatment. My case was severe.
yep , mines really bad cuz detoxing from opiates, like 1 to two hrs of sleep on a gud nite, and i stopped my meds 18 days ago, its torture, i cant think or even move about normally cuz so exausted, its the worse torture, theres no mercy
I agree I think the psychological part of it is almost worse than the actual feelings in your legs. Like there's something about being up at 6am when you haven't slept a wink all night because of your RLS and having to just sit with the sensation in your legs knowing that nothing you do can make it stop thats so psychologically draining. Like your brain is just telling you over and over and over that you just have to move your legs and feeling will go away, but you know that as soon as you stop, it will start right up again.
I inherited mine from my father. Have had it since I was a child. I am so done with it!
I've had it since maybe 11 years old .
I have had this since I was 16. Over 20 years. I have found sugar to be a HUGE trigger. If I eat any type of sweets later in the day, especially dessert, my RLS is really bad.
I found that tonic water, black organic cherry juice and medical grade cbd oil all help alleviate this. Along with cutting g back on sugar.
I will try to take iron supplies again, as well as est more iron rich foods.
I found out accidentally, that eating sugar creates it in me!
If I stay off sugar, it goes away! So now I stay off all sugar and other toxins.
Sodium nitrate (ham, bacon,) all preservatives and processed foods! Coffee too.
I am on no medication, painkillers etc. I am 70.
Fresh food, home cooked only! Yep it helps me. I am so happy again!
I wonder what other people have found out?
Dr. Berkowski is so knowledgeable. He is definitely on top of his game. Great in depth explanation. Very impressive.
I be sleep and my legs start jerking and I wake up.
If you simply cannot sleep with RLS, one tip i've used and found great is to kneel beside the bed, and lay your torso down on the bed as usual. You'll need an understanding partner of course because it looks weird, and a high bed isn't ideal either, but when your RLS is really fizzing, sleeping in a kneeling position is really great. At very least, it gets you into "sleep mode" and you can climb into bed then and sleep uninhibited. Try it...
I love your description of 'fizzing' sensation - very accurate! Best wishes from Australia 🇦🇺 ❤
Get Super Vitamin B-Complex from Walmart $ 6.00 for one hundred tablets;; you can take it in the morning; don't drink more than one cup of tea or coffee!
I do something similar when it gets worse… I bend in a child pose.. like kneeling and bringing my head in front of my knees and sleep like that.. after sometimes legs become little numb but after 1-2 minutes it will be normal and you will be able to sleep without pain or uneasiness
Concur this helps me too!
@@bhavyasrivastava8072 so do you mean the yoga "childs pose"? and how long do you sleep in that position? Cannot imagine being able to sleep like that. I have a zero gravity chair and it can offer relief by interrupting the cycle when its wild, laying in the lowest position for about 20 minutes I calm down, but any relief seems so tentative.
You are both very responsible doctors you've said nothing to alarm anybody. Thanks for this informative video.
I think I have this - maybe less severe - and isn’t constant but I have been in desperate situations needing to move my legs. It probably looks insane as I shuffle about or stretching my legs weirdly… but it can be unbearable. It is like an ache that isn’t painful just like a building up of anxiety.
That's it! I feel like my legs are suffering from anxiety. It's the weirdest sensation.
Sounds exactly like you have RLS. Try drinking a good quality tonic water with quinine as I was prescribed quinine in hospital when I had knee replacement. It may help if you haven't got a severe case of it. I have it so bad that I told my GP this week that I'm actually thinking of having my legs amputated as they have told me that there is no more options medication wise..... A friend has suggested that prescription cannabis might help but trying to persuade a GP to do this might be impossible. If anyone has tried cannabis ( medicinal) for this condition Is be interested to know if it has helped.
If I get it during the day I sit in a rocking chair as this helps enormously.
My advice is to see a doctor.
@@janetschwartz1790 7 people in my family have restless legs. My 50 year old son mostly had it in his arms, he said when he smoked pot it made his symptoms worse. I read a story about a lady that had her legs amputated, she said even after her legs were no longer there she had what a doctor called phantom symptoms. I think what probably happened is that because it stems from the brain and runs through our body that the restlessness would be in a persons stomach after their legs were amputated. I have thought about doing the same thing but wont after reading her story.
For others suffering from RLS, I want to share what works for me quite effectively. When RLS flares up, I get out of bed and do around 50 squats until my hamstrings are burning. The idea is to "burn" the RLS out. Often, I only have to do this once per night. My symptoms are not pain but a building tingling or tickling sensation in my thighs. It builds until I can't stand it anymore and have to move my legs to relieve it. I do not getting automatic kicking impulses. My father and brother also get RLS, so there is the genetic factor.
RLS is periodic for me. I can go weeks or months without it. I suspect diet and certain foods or lack thereof have a strong influence on it. Perhaps I get certain key minerals through certain foods. I typically eat low-carb but I have noticed that I usually do not get RLS if I eat significantly more carbs (ie - holidays and vacations). This is obviously not conducive to weight loss, but an interesting correlation. Maybe its not the carbs but increased activity during holidays and vacations? Being a whiskey and cigar lover, I do have someone elevated nicotine and alcohol intake. I often smoke a cigar and a pour of whiskey in the evening. I have been experiencing RLS the past six months while being unemployed and, thus, having a much more sedentary lifestyle, so phyiscal activity on a daily basis seems to also be a key factor. I really hopes this helps someone!
Squats work for me too. Sometimes I must repeat it during the night. Carbs work as well but I too have a low carb diet. Some other stuffs that seems to help but without certainty: low screen time, theanine, tyrosine, iron bisglycidate.
I’ve noticed my symptoms are triggered by caffeine, anxiety and inactivity. It is an unintentional, rhythmic movement involving lower back, hip, knees and ankles - almost like bicycling. Walking and massage helps and my electric blanket. I have noticed this since a teen and am now post menopausal and still have it. As long as I don’t get a muscle cramp, I am generally able to fall back to sleep even with the continued involuntary movement.
In my case my feet are very hot, I used ice cold pad and rise up my legs for 30 minutes but it is very difficult go to sleep, every day I start falling asleep around 4 in the morning but since I need to wake at 7 it is very painful
Sounds crazy, but if you get leg cramps, pinch the skin above your upper lip and below the nose. Wife read it somewhere (Face Book??) It has worked for me 3 out of 3 times!!
I had restless legs syndrome, began in my early 20-s, maybe once a week. By my late 20-s, increased to almost every day, in the evenings, hard to fall asleep. I remember going to the movies, I could not sit in that tight chair for the full movie, I had to move my restless legs, or stand & walk about, couple times I just left the building, I could not sit still for 1-hour & a half. About 8 years ago I went to a Homeopathic doctor with my arm, I could not move my arm, pain, strained & torn tendons. He helped me, 90٪ improvement. Anyways, I mentioned to him about my Restless Legs. He told me not enough magnesium, and told me to get Natural (organic) Magnesium plus Calcium in powder form to mix in water. Human body has difficulty absorbing magnesium by itself, the process needs Calcium for good absorption. (Told me strictly NOT to buy Synthetic, or anything in capsules. MUST BE in FLUID FORM, powder dissolved in water ONLY). So, he showed me a good brand "CALM" - Natural (Organic) Magnesium plus Calcium in Powder Form. Bought it, next time when legs began feeling restless, I mixed 2 spoons of powder into boiling distilled water, cooled it down with ice & drank the mix. The feeling of Restless Legs passed within minutes. After 20 years of thinking that this was some kind of genetic illness, I got help. Finally, the syndrome although less frequent, still persisted, but I had a temporary Cure, I was Happy, I took powder with me camping & on longer trips just in case. Then in 2015 I decided to do a Dry Fast, to cleanse toxins out of my body, do a major cleanse. I did a 7-day Dry Fast, I lost about 15kg during process. Since the Fast, had it happen maybe once per 2 month period, then I drank the magnesium-calcium mix and problem gone. In the last 8 years I really cleaned up my diet. And What I noticed is that when I have a day overeating on bad, toxic food, then in the late evening I feel Restless Legs. But this time I am Well prepared. 👍 Wish you Best of Health
Also, Low magnesium is the cause of muscle cramps.
J'ai été guérie de multiples fibromes par le Dr Eseigbe sur you tube dont j'ai souffert pendant tant d'années et après tant d'opérations. vous pouvez également obtenir de l'aide de sa part, quel que soit le problème, je sais qu'il a une solution *.
i weight down my feet with two pillows ,avoid winè and chocolat before sleep. Using a lot of garlic honey and lemons a.m and p.m.,plus enough meat and seafood for iron.
I get it in both arms and legs at same time and this description of not being able to to describe the feeling has kept me from seeing a doctor for it. I’ve mentioned it years ago and doctor brushed it off so I just let it go . I go long periods without issue but than it’s just exhausting when it does hit. After seeing this video I may speak to my doctor if episodes begin to occur more frequently again. Thanks for info
Bro check the reddit for rls
My pain is undescribable too,it seems at first like a painful varicocelle though nothing very visible. As if It is deep in my bones and ascending to my buttocks🤔😪😪
What you describe is called Willis-Ekbom Syndrome. Hope this helps you seek treatment.
Yea I get it in my arms as well smh.
J'ai été guérie de multiples fibromes par le Dr Eseigbe sur you tube dont j'ai souffert pendant tant d'années et après tant d'opérations. vous pouvez également obtenir de l'aide de sa part, quel que soit le problème, je sais qu'il a une solution *.
This happens to me when my body wants me to sleep (being tired combined with sitting still) but I try to stay awake. If I stay "relaxing" but resist sleeping, eventually it reaches a point where it takes revenge and doesn't let me sleep when I finally try. Remedy for me is staying active or sleeping once I feel tired.
I think this describes what brings it on for me, too, at least some of the time. This is why I dread airplane flights longer than a couple hours. Basically any time my body wants to sleep and I don’t get to go to bed. It’s not really pain for me as much as just not being able to NOT move my legs. If I don’t move them, it builds up to where I have to move them.
Great video from an extremely knowledgeable physician.
Have had it for over 23 years. Usually one leg will "jerk" every 10 seconds and it is beyond frustrating. Had it every night, movie theaters and those lovely plane rides. Fortunately, I take ropinirole and it works within a half hour. Never got any worse so I feel blessed. Feel really bad for those who suffer with other body parts. It is mentally exhausting to deal with the movements.
Take Super Vitamin B-Complex; 100 tablets $ 6.00 at Walmart; just 1 tabletxday!
25 years ago RLS was up to my arms. When I went off wheat & dairy completely in my diet, ALL symptoms went away within the week. IGG/A reaction to dairy & wheat. Before I learned that, calcium lactate was very helpful (until it suddenly stopped working). It has returned as I have developed other food sensitivities. It isn’t nearly as bad as it was. Now, what helps within 20-30 minutes is a homeopathic dissolvable tab by Hylands called Restful Legs. Best wishes for you all!
Acupuncture does wonders for restless leg! It has helped me tremendously. My restless leg is barely there anymore. My Licensed Acupuncturist saved my life!
Can you share type of acupuncture? Is it Japanese or traditional? I am just about to make appt for acupuncture and hope it works. How long taking treatment before showing any effect? Tx
I’ve found my anti-anxiety meds caused a lot of restless leg. I think that acidic foods also provoke it as well. Makes me want to chop my legs off some nights. Horrible 🤯
I hope we find a way out of Rls. I will let u know if anything helps. U too! Let me know. I'm still doing more research and tests.
@@cindy1274 I'm going thru it the worst wit rls rn any suggestions???
@@cindy1274 can u help me???
@@cindy1274 hey hey hey....how did your research ended up?? Do you found anything helpful
@@bigbank8272 try an iron supplement and a potassium supplement. It really helped control the jerking and allows me to sleep. I am not saying that it cures it but if you need to get a nights sleep then try it. Low dose methadone is a great treatment.
This robs me of sleep almost every night. Drives me CRAZY!
For me RLS is like an achy itchy feeling along nerves. I was first diagnosed in college and prescribed quinine, which made a mess out of my stomach. At the time I thought it was because of drinking gallons of iced tea while studying. I was getting a lot of exercise walking to classes.
Glad to hear the discussion especially that common over the counter drugs exasperate the problem.
Not having listened to your whole program yet (I’m enjoying it very well). Having delt with RLS most of my life in the legs (calves and knees both legs). I’m 71 now and I definitely find it gets worst as I get older and the one connection I can make is as we get older the less active we become. That seems to be one key factor. Getting the legs moving, blood flowing, nerves firing. It is also interesting that when the mind is occupied it is less felt (not all the time but it is noticeable. Meanwhile while trying to sleep, as the RLS feeling comes on that’s all you can think of till you move the limb or just plain get up out of bed. I do realize we can all have a wide spectrum of symptoms but the one thing in common is it’s down right uncomfortable and one must move that limb or area. Thank you for you research, keep up the great work.
It feels as if you were kneeling down and your legs went dead . As you stand up your legs feel like this just before they get better.
My daughter described it like this and I agree.
yes
J'ai été guérie de multiples fibromes par le Dr Eseigbe sur you tube dont j'ai souffert pendant tant d'années et après tant d'opérations. vous pouvez également obtenir de l'aide de sa part, quel que soit le problème, je sais qu'il a une solution *.
Sometimes it hurts and I wish that was talked about more. It seems like it’s often made light of. It’s more than just being restless. I feel pain. Both in my arms and legs
Nella, , I have had it for 20 yrs. I have even had 'suicidal thoughts'. My RLS used to be 'painless' until 2018. For pain, my neurologist recommended Oxycodone (5mg to start) and also tried Codeine. Gabapentin also helped for pain for a while (about a year or so). I have been taking Ropinirole 2mg since 2005. My movements got *crazy* in 2018. I even had to quit my job. July through Sept 2018 were the worst months. I have seen about five neurologists, had about five sleep tests done. Iron levels checked (I'm ok but sill take iron sulphate + citric acid (2x500mg)) for better absorption. I have tried Mirapex, no change. Combination of Ropinirol with Gabapentin (help,, sort of, but abandoned for other meds>>), oxycodone (5mg starter, up to 10 mg; helps a lot but knocks me down cold. Blessing and a curse, but since I don't work I can deal with this). Tried codeine for a month or so, similar to oxicodone. Yesterday my neurologist (very nice guy, others I fired, bunch of incompetents) suggested to try a combination of Ropinirol with Methadone. Plan is to taper Ropinirole out with increasing levels of Methadone. Then if all works well, taper Methadone away and see how this works. Looking forward for this 2 month experiment. Hoping you the best. Hugs. Take care
I put an absorbine jr (menthol pain relief) patch on my back just above my tailbone and I get almost instant relief.
i am.going to try this.
i find that when i am in a car or a plane and must remain confined, if i wiggle my lower back, the urge to move my legs subsides for as long as i am moving my back
@@shannonlucille7477 so did the patch work?
I have had this literally all my life. When I was a young child I would start crying and all my mother knew to do was an aspirin and soaking in a hot tub of water. This was a relief that still works. And if we were going on a long car trip I would always take aspirin before leaving home to prevent the misery from starting. I'm 70 yr old now and it still gives me problems.
PS: my son also has it in his arms very severely. I also have it in my arms but not as often as my legs.
I'm same age now. My mom would rub my legs when little on long car rides. Nice when moms believe you even when the pediatrician didnt.
I have been trying to get off of Ambien, which I have used for years. I switched to otc sleep medicine and I have recently been suffering from restless legs. Now I know why. Thank you! This is an easy fix.
I have the same issue. I started taking Doxylamine it caused my legs to be painful and restless. I went back to ambien.
@@carr964 Ambien does calm the legs down. My doctor just won’t let me have it anymore. :(
My husband bought me a weighted blanket. I fold it about 4 times and place it in my legs at night. It helps reduce the feeling for me by at least 50%. Not all the way but for me anything that can help, I will use.
Wow that's AMAZING I can't wait 2try it I'm so desperate for anything that can help!
I wanted to try but it's far too hot here. I only have a sheet to cover myself.
My advice is to see a doctor.
Yes, weighted blankets help a lot but it's too hot for them in summer.
I am using compression bandages.. u can wrap around these as tight as you like.. it instantly helps relieve the pain or uneasiness for me… hope it will help everyone suffering from this…
I’ve had this problem my whole life magnesium works the best. And yes, this issue is insanity. It makes you crazy at night because you’re exhausted yet your body will not allow you to sleep.
This is a great explanation of the condition. I have suffered restless legs for decades and it is really hard to people to explain and for people to understand. It is like a low-level long-lasting torture. It is the worst when I am woken up in the middle of the night. The thing that has worked before for me is a stationary bike but not always. No medications helped.
I’m 47 and have had RLS at least since high school. I describe it as a tickling sensation in the muscles. Mostly in the hamstrings, quads and glutes. Sometimes I feel it in my back and my arms. There nights it takes me almost 3 hours to be able to sleep.
Have you tried medication? For milder cases, gabapentin (Neurontin) or pregablin (Lyrica) can be helpful.
@@B_Bodziak Gabapentin was poison for me.- I take B vitamin complex in the morning and works wonders! We're all different however!
My advice is to see a doctor.
@@cattnipp I wasn’t asking for advice. I have seen many doctors about this. I’m just sharing my experience.
@@JS-iy4zb If you are suffering from this you should consult a doctor.
Literally experiencing this right now. And his description of what it feels like is exactly right. Hard to describe, no pain, but im getting this nerve ache all over my legs. This is the second night it has happened and its keeping me from having a good sleep. I do find taking Tylenol helps get rid of it, but I don't want to take that every night. Im 24 years old. I did take this week off of working out because I was sick (working out starts again tonight 5x a week). The fact that I want to walk around to relieve pain is right.. I swear I have this.. I just don't want this forever :'(
Side note: I noticed this after I had take out fried rice at a viet pho place. Probably has MSG in it.. I googled MSG, and it can cause numbing or pain or tickly feelings in your body... can last up to 72 hours. I noticed it right after I ate the fried rice. Took a nap, the feeling went away.. later that night i had it again for leftovers, and right away i got the feeling again...........
Mine didn't bother me anymore until I got covid and now it's impossible!
Am
Am having the same issue also I’m feed up
@@magnefuruholmen4174
The Dr put me on seroquil, 1 hour before bed and I take 2 1/2 pills, 100 mg, also gabapentin 1 hrs before bed and it helps a lot!!
@Sigrid Moehlis
I understand, brain fog is usually my every day for some reason! Of course it could be because of the crap going on in my life! I pray you will have better days and much love to you!
I have severe restless leg syndrome and this has helped me so far: going for walks daily, iron, B vitamins, cold showers, magnesium, wim hof method, ashwagandha, weighted blanket, cooling my legs, stretching and massages, meditation, improving Co2 tolerance to overall reduce stress levels and improve sleep, exercise, sunbathing, don't sit for longer than 30 minutes (get up and move and stretch), if you consume caffeine then only drink it in the first 3 hours after waking up and not past that, remove ALL lights 2 hours before sleep to increase melatonin production (only very dim lights are okay), brainwave entrainment device (can put the brain into a calm state by altering brainwaves), a segmented sleep schedule can also help a lot
My advice is to see a doctor.
I think these steps will help much more than doctor toxic medicine! Thanks
Did you catch that in the beginning? He said, "long car rides where you're not driving"...."not driving" is key!!! He was specific about it (driving vs. not driving) for a reason. Why? In my 40 years of coping with both severe and intractable RLS/PLMD....I have learned that for me, yes, being a passenger in a car or plane, going to movies, trying to take a nap...are all triggers.....HOWEVER, when my brain remains FOCUSED on a particular mental, visual, or auditory task, (sometimes all three are required) the feeling causing the need to move voluntarily (or involuntarily, if PLMD) ... stops, at least until you end the task or until you are able to fall asleep without symptoms. For me, the onset of sleep is delayed 8 to 10 hours EVERY night. In the beginning, it was only 2-3 hours, but remember, it's a progressive disease. It progresses not only into other areas of the body, but in the duration and intensity. RLS can also be accompanied by PLMD...involuntary 'jerking' movement. I hope that everyone who suffers from this torture finds a medication that works for them. None work for me any more and that's how I had to learn other ways to cope....to add and change the stimuli I mentioned, as necessary, to keep the feeling/movement at bay. I wish you much luck!!
Sadly, I also have it when driving-it can b so bad I have to pull over and get out of the car...
Greetings from sunny SW Florida. I have had restless legs syndrome/Willis-Ekbom disease since birth. Dr Hanson (RIP) finally found a regime of meds to assist me. It is very painful and happens more during stress. Thanks for this. Much appreciated. Blessings to all
What medication and regime do you use. I am from New Zealand and I tried lots of meds- nothing really works
@@inesevitola5081 ropinirole and pramipexole
J'ai été guérie de multiples fibromes par le Dr Eseigbe sur you tube dont j'ai souffert pendant tant d'années et après tant d'opérations. vous pouvez également obtenir de l'aide de sa part, quel que soit le problème, je sais qu'il a une solution *.
I've been symptom free for over a year. For ages, been doing progressive relaxation to sleep, starting with toes. During the time I was taking a meditation class, noticed that when I relaxed the jaw muscles, it changed the crawling sensation in my legs. Subdued it but didn't stop it. Started relaxing jaw and facial muscles before sleep, trained myself to relax those while half asleep, and also during the day. Biggest difference was when I noticed sleeping on a pillow was putting severe pressure on those muscles. So I started sleeping with pillow above ear, rest of face suspended and not touching anything. The symptoms kept subsiding and stopped. This took somewhere between 1-2 months.
Anyone who has been kept up at night for 4 to 6 hours with restless leg, has had the time and motivation to try out multitudes of remedies. This guy basically has one suggestion. He needs to be more helpful than that. Enough to make someone cry with hopelessness in the middle of the night.
Really hot herbal tea, compression leggings, walking, heating pad, vibrating tools, Magnesium in multiple forms, restless leg pills from the drug store are the basic ones that have worked at various times for me.
I be!I'd be the only cure is asking God to heal. I am still praying for a miracle because I am worn out physically. My restless legs have now moved up to my arms on occasion. Oh for a good night's rest.
I can so relate!😊
With me I feel a disturbing tickling inside of my bones, inside of my chest and legs. I've had it since I was little and it's so annoying when you don't know how to fix it. Yesterday I tried getting up and jumping around, thankfully that helped.
YES that the sorta sensation I have with my legs same I had when I was a kids I would hit my legs or try to stretch
I had restless legs syndrome, began in my early 20-s, maybe once a week. By my late 20-s, increased to almost every day, in the evenings, hard to fall asleep. I remember going to the movies, I could not sit in that tight chair for the full movie, I had to move my restless legs, or stand & walk about, couple times I just left the building, I could not sit still for 1-hour & a half. About 8 years ago I went to a Homeopathic doctor with my arm, I could not move my arm, pain, strained & torn tendons. He helped me, 90٪ improvement. Anyways, I mentioned to him about my Restless Legs. He told me not enough magnesium, and told me to get Natural (organic) Magnesium plus Calcium in powder form to mix in water. Human body has difficulty absorbing magnesium by itself, the process needs Calcium for good absorption. (Told me strictly NOT to buy Synthetic, or anything in capsules. MUST BE in FLUID FORM, powder dissolved in water ONLY). So, he showed me a good brand "CALM" - Natural (Organic) Magnesium plus Calcium in Powder Form. Bought it, next time when legs began feeling restless, I mixed 2 spoons of powder into boiling distilled water, cooled it down with ice & drank the mix. The feeling of Restless Legs passed within minutes. After 20 years of thinking that this was some kind of genetic illness, I got help. Finally, the syndrome although less frequent, still persisted, but I had a temporary Cure, I was Happy, I took powder with me camping & on longer trips just in case. Then in 2015 I decided to do a Dry Fast, to cleanse toxins out of my body, do a major cleanse. I did a 7-day Dry Fast, I lost about 15kg during process. Since the Fast, had it happen maybe once per 2 month period, then I drank the magnesium-calcium mix and problem gone. In the last 8 years I really cleaned up my diet. And What I noticed is that when I have a day overeating on bad, toxic food, then in the late evening I feel Restless Legs. But this time I am Well prepared. 👍 Wish you Best of Health
I had the same thing-- like bugs crawling under my skin. You might want to get your iron levels checked... low iron levels are known to cause rls. The itchy feeling basically went away after my iron was restored.
J'ai été guérie de multiples fibromes par le Dr Eseigbe sur you tube dont j'ai souffert pendant tant d'années et après tant d'opérations. vous pouvez également obtenir de l'aide de sa part, quel que soit le problème, je sais qu'il a une solution *.
That's what it feels like for me, bugs crawling under my skin. But I can see my calf muscles twitching like there is an alien under my skin pushing up on my legs. Is it normal to see these movements as well?
Very useful video. Thanks. I get it every night to a greater or lesser extent. It’s particularly bad in the soles of my feet and in the palms of my hands. The best way I can describe it is as if something is crawling beneath your skin. It comes on as soon as I start to get tired and can be very unpleasant. When I move my feet or put pressure on the skin it stops.
Exactly like mine, it's comforting to know I'm not the only one. 😊
Thank you so much for this comprehensive explanation of RLS. Very helpful.
Very informative podcast. This doctor is really well versed on the topic of RLS. I’ve suffered with this condition for years. Seems to get aggravated with dehydration. When I haven’t had enough water during the day or too much wine. Simple thing like Drinking a glass of water does help. Long flights and watching a movie in a theatre is something that bothers me because of this condition I have to deal with
I am suffering with this RLS since I was teenager now I am 27 with more horrible symtomps it causes me insomnia or sleep disorder. Actually, I really need help this time and this video helps me so much thank you for that. I wish I could have doctor like this to advice me to finally eliminate this syndrome. In Thailand I couldn't find someone who really can understand this RLS.
Heat is definitely a trigger for me. I moved to a basement apartment which is freezing and for 6 months never had a bout of it to the point that I forgot I had the syndrome. Today we has our first day of heat outside, and POW, it returned with a vengeance, the creeping crawling driving me up the wall. Only cooling off in my suite gave me any relief.
Could your symptoms reoccurred b/c of mineral depletion from sweating?
I’ve just moved to a tropical climate, 100x worse. I think because I’m sweating the minerals out.
Many years ago, I went to a neurologist about my RLS, and just gave up being bounced around here and there with no results. My RLS just happens at night when unpredictably anytime when sleeping, just want to die. RLS feels like something running up and down my right leg mostly. Glad to come upon this video and some of the comments I read here that I must try.
I've suffered since I was a preteen and my father did also. As an adult I got diagnosed with small fiber neuropathy and have read that there is a correlation between the two disorders. Mine comes on when I get sleepy and then keeps me awake. It is like a restless pain in legs. It is miserable, absolutely miserable.
My advice is to see a doctor.
@@cattnipp Thanks I have and we've tried different meds. Nothing has helped much. The doctor said my neuropathy makes it worse.
@@Meggie-may Oh no. Sorry to hear that. Maybe there will be more medical progress soon.
@@cattnipp Thanks so much. 😊 I sure hope so.
@@Meggie-may I know the RLS is a big problem - just when you're trying to rest your legs start mini-convulsions.
it’s actually so painful, my triggers are moving my ankle around. it’s from my ankle to my calf sometimes it reaches my wrist and arms. it is painful for me to the point where i’m crying at 4 am. I can’t not move them just because i’m so desperate to relieve the pain
It feels exactly the same for me!
Same here. Can’t believe there’s no cure for this
I am going through the same pain.I am up and it is 3:56 a.m..I am suffering from RLS it is shooting from my ankle up to my knees and calves and hamstrings and butt area arohnd growing area and if squeezes my muscles and my thighs and knees are irritated and I do not want to be around any body.I just want sleep and help ...
I'm so sorry. I'm getting a taste of this RLS. Its not fun.
@@beckyngreene its so painful I stay busy the whole entire day.and the second I go to sleep and get comfortable BAM!!!RLS shoots up my thigh to my hamstrings ankles calves and knee it irritates tingles feels like a million needles in my legs and my legs cannot stop moving at times just to get some comfort I rock my legs or feet/ankle back and forth.smh
A very informative interview. Thank you. As a chronic sufferer of both rls and plm it is great to hear someone so informative even if there isn't any magic bullets.
Have you found any relief in the last two years since you wrote that comment?
My restless leg symptoms seem to originate at the base of my spine/tailbone. If I take something (usually a sneaker) and lay with it under my tailbone it helps neutralize that feeling. I’ve also had someone stand on my tailbone, which sounds strange but I feel it all the way down my legs like a huge scratching of that itch. Just make sure they get off your back SLOWLY and not quickly, trust me
After paying close attention to my body over the years. I’ve found that eating after 7:30 p.m. always triggers restless legs and keeps me tossing and turning until 5 or so in the morning. I only get RL if I eat after 7:30 p.m. I don’t understand it but that’s my conclusion. I’m up right now with RL because I ate after 7:30 tonight 😩😩😩😩😩😩. This really sucks.
J'ai été guérie de multiples fibromes par le Dr Eseigbe sur you tube dont j'ai souffert pendant tant d'années et après tant d'opérations. vous pouvez également obtenir de l'aide de sa part, quel que soit le problème, je sais qu'il a une solution *.
I have had this since my 30's, worsened now in my 60''s. Its hit a peak when my doctor changed my anti depresant from Cymbalta to Buprion. My next call is to my Doc to change it back.
weighted blanket help greatly in making me sleep.
I should probably check into this.
@@jrc19901 Yes you should. Absolutely 💯. I can tell you it works. I wouldn't say it works for someone going through the initial opiate withdrawal like the first couple weeks, but totally helpful for PAWS
mine made it worse
@@Userraw674 yeah everything works at first it seems, and then the monster overcomes your new tactics
I agree, i do that everytjme i feel those sensations
I have suffered from this for years. About 10 years ago I was at my pulmonologist office for something unrelated and I happen to mention to him what my legs feel like and how often it happened at night. He chuckled a little bit, took out his prescription pad and said take this is called Mirapex. He said his wife also suffered from this. I started taking Mirapex 25 mg and it works like a charm. It literally takes it away every time. I only took it when I started feeling symptoms but through the years I take 50 mg now and I take it every night before bed, it literally completely takes away the symptoms every single time I don't know what causes it actually nobody does I try to figure out what I do on different days and see if there's any common denominator, but to this day I've never come up with one. My mother has suffered with this for years, but she would not take medication from it until recently. At 90 years old she decided to try it and she started crying two days later because it took the symptoms away. Although I didn't know my grandfather, my mother said he suffered from the same thing so obviously there is some genetic component to it if I didn't have Mirapex, I don't know what I would do, I really don't. If you suffer from restless leg syndrome, haven't tried Mirapex I strongly strongly suggest you do literally a lifesaver.
The way I describe it is, when your leg falls asleep.. you have that intense tingle feeling when you move it or touch it? So, not that tingle feeling, but the unbearable sensation that the tingle causes. Like if you keep the leg that's asleep still, not moving it so the tingle doesn't happen, it's the building sensation that you feel. Or when someone is scratching your back, and they just keep scratching in the same spot and it starts to feel really aggitating and makes you squirm.. that feeling, just more intense. And when having an episode, the periods in between the need to move constantly, you just cannot get confortable... like you just walked 10 miles, and you just want to sit, but when you do, it doesnt feel good, it just makes it more apparent.
I describe it like this exactly. It also kind of feels like hitting your “funny bone” or like someone is tickling the inside of your leg.
I had restless legs syndrome, began in my early 20-s, maybe once a week. By my late 20-s, increased to almost every day, in the evenings, hard to fall asleep. I remember going to the movies, I could not sit in that tight chair for the full movie, I had to move my restless legs, or stand & walk about, couple times I just left the building, I could not sit still for 1-hour & a half. About 8 years ago I went to a Homeopathic doctor with my arm, I could not move my arm, pain, strained & torn tendons. He helped me, 90٪ improvement. Anyways, I mentioned to him about my Restless Legs. He told me not enough magnesium, and told me to get Natural (organic) Magnesium plus Calcium in powder form to mix in water. Human body has difficulty absorbing magnesium by itself, the process needs Calcium for good absorption. (Told me strictly NOT to buy Synthetic, or anything in capsules. MUST BE in FLUID FORM, powder dissolved in water ONLY). So, he showed me a good brand "CALM" - Natural (Organic) Magnesium plus Calcium in Powder Form. Bought it, next time when legs began feeling restless, I mixed 2 spoons of powder into boiling distilled water, cooled it down with ice & drank the mix. The feeling of Restless Legs passed within minutes. After 20 years of thinking that this was some kind of genetic illness, I got help. Finally, the syndrome although less frequent, still persisted, but I had a temporary Cure, I was Happy, I took powder with me camping & on longer trips just in case. Then in 2015 I decided to do a Dry Fast, to cleanse toxins out of my body, do a major cleanse. I did a 7-day Dry Fast, I lost about 15kg during process. Since the Fast, had it happen maybe once per 2 month period, then I drank the magnesium-calcium mix and problem gone. In the last 8 years I really cleaned up my diet. And What I noticed is that when I have a day overeating on bad, toxic food, then in the late evening I feel Restless Legs. But this time I am Well prepared. 👍 Wish you Best of Health
@@mariuszbryla7198 Magnesium definitely helps, but like you said, not all supplements help. I've never tried the powder, so I'll pick some up! I recently learned that Iron deficiency can be a cause, so supplements can help. I took one slow release iron and it did help alot. I think I'll just take like 1 a week and try to incorperate more iron rich stuff into my diet.. but It did help when I had my most recent episode.
Exactly how my legs feel. Have had rls for 30 yrs. started on quinine, which was then banned. Now on ropierole, clonzapam and just started on gabapenten. Nothing works, have to get up and walk. Seems like food high in protein trigger rls.
I've had rls for around 40 years. It has now become extremely unbearable. Some things used to help - magnesium, deep freeze gel, weighted blanket, propping up legs, bending legs as far back as possible, TENS machine but now nothing helps at all. I am so very tired. I feel like bawling my eyes out.
One of the best parts of this video is the prominently displayed Y-Wing bomber from Star Wars in Dr Berkowski's office. :)
I spent most of the video wondering if that’s what it was 😂
I had RLS for decades, recently my GP prescribed Appese, or ropinirole 0.5 containing hydrochloride 0.5.
Wow! The first night I took this tiny tablet I had NO problem with RLS. I have just finished a packet of 28 tablets and not one hint of RLS. It was like magic. It remains to be seen if this keeps up forever, but so far, really incredible.
So interesting learning about the iron piece. My doctors have said I had solid iron levels but I’ve had low iron symptoms for a long time including RLS. I didn’t realize brain iron levels can be lower than blood iron levels. I noticed that when I avoid certain foods that make me bloated, my RLS and shortness of breathe start to go away. Maybe it’s because I’m absorbing my nutrients better. Food for thought, pun intended ;)
Same problem to me
Can you help by sharing more details pls
@@sab8702 I think ur stress and dopamine levels effect ur a lot too. All my symptoms have started to go away after I passed kind of a stressful period of my life. I think we underestimate how stress can effect the body. Meditation and patience and focusing on being happy from the right things has helped me a lot
My husband has severe issues with RLS. I am so grateful for this video that highlights some of the things that may be making it worse. So far, nothing has actually worked FOR him, but it appears that some of the treatments that have been recommended may actually be working AGAINST him! I am also grateful to know that we need to be working with a sleep specialist instead of a neurologist. He just had a home sleep study, so maybe that's a good starting point to calm his RLS. Of all his many health issues, the RLS is the most agonizing to him. THANK YOU, Dr. Berkowski! May God bless the work you do!
For recalcitrant RLS, ask for methadone. It works at a lower dose than other opiods and lasts 18 hrs, so no more waking every 4 hrs. Definitely go to large well known sleep practice (I go to John Hopkins, MD). They have more clout to prescribe opiods even in states with strict opiod laws.
Answered all my questions 🙏 thank you for the detailed discussion of RLS.
Thank you for publishing this video.
I’m experiencing this in my final trimester of pregnancy, I think. Getting my legs rubbed seems to be the best remedy.
I massage my wife's legs with oil and it seems to help. but what helps even more if i help her stretch her legs while she is laying on her back
@@Top3Moments Search YT for: Restless Legs Syndrome Relief (RLS) - Ask Doctor Jo. Series of exercises - also use of roller bar: like a rolling pin with knobs. I had one and felt so desperate I tried it - sort of short circuits things.
I kick at night from it I feel bad for my husband. I have had this since 12 years old. The only thing stops this is if I go to bed earlier and not kept up.Some medications trigger this also If I stay up late and get tired I have it come on. My mother has this as well.
I will look into low iron. This man has this down so well. He knows exactly what he is talking about!
Thankyou for your video so I can share.
My brother and I both have this. He mentioned years ago to drink a glass of milk. which worked fairly well. I tried skim milk and that did not work at all. I tried drinking some half and half and that worked amazing. I literally feel waves of relaxation in my legs when drinking half and half. I have no idea how or why this works.
but geez so fattening, who can continue to do that and not get obese, and then you have other problems. Wonder if its calcium related?
@@ooohlaa13 consuming fat doesn't make you fat, but that's an entirely different conversation.
This has been so useful and the best thing I’ve watched on RSL thank you
Iv had this problem since I was 17 and pregnant with my first baby. That's when it first started. I'm 43, I can go around 3 or 4 months without issue but then BOOM itll hit me one night and once it starts itll hang around for a week or 2 every single night and then just as it came, it goes away. Till a few months and it happens all over again. It's pretty painful for me sometime in the sense that its SUCH an uncomfortable feeling I have to tense my leg or arm muscles and move them. I'll get up walk around a bit ,then try to get back in bed and nope, it happens again and its like this all night long. I'll be just absolutely exhausted during the day. I am anemic so maybe that's the reason for my RLS however, I havnt always had problems with anemia yet have always had RLS symptoms. I don't take my iron pills as I should so I'm taking them right now because this is just absolutely unbearable now. I'm sick and literally tired of this RLS.
Feels like a tiny surging electric shock that explodes at different points within the muscle then feels like a tickling into a numbing feeling cascading down the the leg. You have no control of the kick. Going through a bout now. Had since a kid. Very random. Thanks for the home remedy tips. God bless.
YES omg benadryl makes it MUCH WORSE for me. Also another over the counter med that makes my RLS worse is Tylenol PM
I Heard of Tylenol, What is the British Name for it Please ? Paracetamol,? or ???
This condition is not a joke. I have been up many nights with a very uncomfortable sensation having to constantly move my legs and oftentimes my arms, too. I often describe it as almost a tick for lack of a better term. It feels as though I am forced to move my legs and arms in order to provide a temporary relief and the uncomfortable sensation usually comes back seconds later forcing me to move again. The thing he said about a plane being a torture chamber is absolutely true. Long flights are very stressful and uncomfortable.
It feels like nerves being fired over and over to move… Tingles. IMO it is painful. I guess the best thing I can compare it to is imagine a light shocking that just makes your muscle spasm.. over and over and over again in your legs. Yeah we control the movement but it’s to alleviate the nerve shock signals basically is what it feels like.
J'ai été guérie de multiples fibromes par le Dr Eseigbe sur you tube dont j'ai souffert pendant tant d'années et après tant d'opérations. vous pouvez également obtenir de l'aide de sa part, quel que soit le problème, je sais qu'il a une solution *.
This is the best description for how my restless legs feel.
So you can see your leg spasm? I thought I was the only one
I get restless legs and arms. Usually at the same time.
And flying absolutely sucks. I can figure within 10 minutes on a plane and I'm miserable.
I do push-ups and knee bends constantly.
It's 6:35 am now and I went to bed at midnight. Still up.
This is every night for me. If I get 3 straight hours sleep that's great.
Sufferred this condition for over ten years, then without any medication, it just burned itself out. Been free for for the past 30 years
Did you Take any Medication while having it ?
For me I can actually sleep fine. I just feel restless legs particularly after eating, so it’s *the absolute worst at school when I’m forced to sit.* I think I prevent it at night by eating dinner early, at around 3pm and then fasting after that. Also I always walk or workout for 2-3 hours right before bed 😂 I’ve been doing all this for years without realizing RLS was a real condition! I just thought I had insane energy, but sometimes my brain can feel exhausted and sleepy but the rest of my body is still screaming to move so that always confused me
What a great doctor. Wish others were more concerned about long term effects of drugs.
Unfortunately, I have been on drugs for most of my life, due to being born 2.5 months early and suffering from various issues because of it. Have also had concussions which adds to the mild CP and other things. I was born with some brain injury and all of this has effects on my life.
My grandma and great-grandma had it, but they didn't know what it was. They just called it "jumping legs". It skipped my mom, but I got it. It feels like a constant buzzing in my arms and legs. I also had really painful growing pains in my legs as a kid, and they say that it's related. Iron, magnesium, and a low dose of gabapentin make it tolerable.
I sometimes get an extremely uncomfortable urge to stretch my right leg when im lying down at night, and I've always wondered what it is. It only ever happens at night when im lying in bed too, which is why I think it may be mild RLS. I'm fairly sure I have an iron deficiency and I do also drink coffee late at night too. It's really a hard sensation to describe. It's not painful or anything, infact I'd describe it more as a sensation of over-excitement that a child, or a dog may feel when you see them freak out uncontrollably. It feels more like an adrenaline rush that I get specifically behind my right kneecap. It's an uncontrollable feeling to stretch and tense my leg. It doesn't usually stop me from falling asleep, and it's always gone by the morning.
Sounds exactly like RLS.
Thank you for this talk...I wonder why magnesium wasn't mentioned?...it definitely helps...I take it internally before bed and also topically as a gel which really helps...RSL is horrible...I hope everyone finds relief from this strange condition 💚
I've tried both topical and internal magnisium and neither help.
What kind of magnesium do you take
@@aileendowns2554 schluessler magnesium tissue salts internally and nature's way magnesium gel with Arnica 👍 these def make all the difference for me...esp the internal one...if I don't have a couple of tabs in the evening just before bed I get awful restless legs...legs up the wall for 20 mins before bed is also hugely helpful...good luck
💚💚💚
I take one (1) Requip(Ropinirole) tab at 4pm, 8pm, and 11pm. Sometimes that isn't enough. I have started taking magnesium and it seems to help.
I find magnesium does help. Melatonin too.
For me…I “HAVE” to get up when sitting, like when watching a movie. I say, “I need to run around the house!” or I “HAVE” to rock when going to sleep because I CANNOT just lay there still or unaware, I often thump my leg/foot on the bed while sleeping - until my hubby wakes me up! Poor guy! I dread being elderly and confined to a bed and can’t move! This was excellent information for me! My blood iron is 40. Very low. I’ve been working on it. Now I know for sure I needed iron supplements!
I literally followed what my doctor said & took 2 magnesium pills and about 15 mins later I felt sleepy & the spasms and throbbing fuzzy feeling in my feet went away!! This was day 1 so hoping this continues bc this is new to me and so annoying. Falling asleep is always difficult 😞 p.s I also stretched my legs and massaged a lil.
what kind of magnesium did you take?
@@tanvikapoor7399 got it at Walmart, the spring valley brand, high absorption, chelated blend. Honestly, it was what I saw & bought lol. It’s working so I’ll continue it. My dr told me to continue for 2 months then she’ll do a follow up. Let know if you try it out
Just an update bc it’s been 2 weeks. I completely stopped having the leg sensations at night & still take the magnesium every night. The Dr told me to continue for 3 months. I see Also feel so much more energy & less brain fog.
@@Angelskris333 thanks for posting this. I am desperate and will try this right now as I have some magnesium oxide and it is 4am. Maybe I will get some slee ppl tonight.
@@Ds_Drums Hi its been a few weeks and so far it's still been helping me and some nights I forget and have no problem of feel it mildly. I fall asleep a lot faster but wake up like 4 am but its bc I've been stressed at work etc. I also take 2 oregano oil pills for joint pain but I'm sure it's the magnesium that is healing the leg problem. Let me know hiw it works
I had cupping done on the back of my legs and it really helped. That was 2 years ago and it’s recently started coming back
What is cupping?
I have had RLS almost all of my adult life (senior now), have been taking Ropinirole for about 2 years, really helped me, but I do find I need to take more of it, get my meds adjusted every 8 months or so. I take 1 mg now, but going up to 1.5 mg, Will have to ask my Dr about those other meds that were first line when I see him again.
I've taken 2mg at nite for many yrs.
I take requip and have for years I am up to 4 a day now
When I was about 3 years old, I was sleeping with my mom in her bed one night. I remember her shaking her feet and leg back and forth. I asked her why she kept moving or something like that. She explained to me that shaking 1 or both feet back and forth helped her to fall asleep. I then started copying her at the age of 3 that very night. I'm 33 now. I don't like to sway my feet at night to help sleep because it keeps me awake. I have epilepsy and one of my major triggers (if not the only one really) is lack of sleep. I have very bad insomnia. Sometimes at night I get an urge to move my legs. I cannot fall asleep on my back because I'm afraid of having a seizure in my sleep and choking. So I pretty much have to sleep on my side. I end up turning back and forth every 10-60 minutes or so, trying to get comfortable. After a while my leg and hip areas begin to hurt. It's causing me to stay in bed for up to 12 hours with only getting about 4 hours of sleep that is so broken up that I believe it is causing mental health issues. This all started because I was mimicking something my mom did, and I'm wondering if we teach ourselves these things some way or another and then it becomes a physical problem; mind/matter=reality kind of thing. Nothing seems to help me either. I have tried SO many herbal remedies, I have tried drugs, I have tried alcohol, I have tried hot baths, I have tried all kinds of things and it doesn't seem to help. Even if I do fall asleep, 4 hours later I wake up before the sun comes up and toss and turn another few hours or so. It's really driving me insane and I do not have money, a job, or disability status. I don't know what to do anymore.
This condition is nothing but endless torture.
I did not watch this video so I don't know what was said. But....my dr. friend told me to try magnesium. I did research and figured it can't hurt, so I gave it a try on Sunday and added it to my vitamins. I have had full nights sleep ever since. My husband is thrilled also because he is getting a full nights sleep as well. I highly suggest anyone who suffers from this pesky condition to try the magnesium!
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You got this!!! 😊
I had restless legs syndrome, began in my early 20-s, maybe once a week. By my late 20-s, increased to almost every day, in the evenings, hard to fall asleep. I remember going to the movies, I could not sit in that tight chair for the full movie, I had to move my restless legs, or stand & walk about, couple times I just left the building, I could not sit still for 1-hour & a half. About 8 years ago I went to a Homeopathic doctor with my arm, I could not move my arm, pain, strained & torn tendons. He helped me, 90٪ improvement. Anyways, I mentioned to him about my Restless Legs. He told me not enough magnesium, and told me to get Natural (organic) Magnesium plus Calcium in powder form to mix in water. Human body has difficulty absorbing magnesium by itself, the process needs Calcium for good absorption. (Told me strictly NOT to buy Synthetic, or anything in capsules. MUST BE in FLUID FORM, powder dissolved in water ONLY). So, he showed me a good brand "CALM" - Natural (Organic) Magnesium plus Calcium in Powder Form. Bought it, next time when legs began feeling restless, I mixed 2 spoons of powder into boiling distilled water, cooled it down with ice & drank the mix. The feeling of Restless Legs passed within minutes. After 20 years of thinking that this was some kind of genetic illness, I got help. Finally, the syndrome although less frequent, still persisted, but I had a temporary Cure, I was Happy, I took powder with me camping & on longer trips just in case. Then in 2015 I decided to do a Dry Fast, to cleanse toxins out of my body, do a major cleanse. I did a 7-day Dry Fast, I lost about 15kg during process. Since the Fast, had it happen maybe once per 2 month period, then I drank the magnesium-calcium mix and problem gone. In the last 8 years I really cleaned up my diet. And What I noticed is that when I have a day overeating on bad, toxic food, then in the late evening I feel Restless Legs. But this time I am Well prepared. 👍 Wish you Best of Health
@@mariuszbryla7198 May try the calcium too! Thanks!
@Sigrid Moehlis Hi, 1 tablet, 250 mg.
@Sigrid Moehlis Hi, 1 tablet, 250 mg.
I just started curcumin, magnesium malate and PL299v probiotic. I'm so tired of RLS. I pray this will work.
I have a different theory about rls.
I have experienced it after heavy leg workout due to muscle tightness. During pregnancy as the weight shifts legs get tight as well to keep the body / pelvis balanced. Tight leg & glute muscles = rls. My solution to this is deep whole leg massage, including claves and front of lower legs, quads, harmstrings, glutes and above glutes.
It makes sense that stress & anxiety can trigger it because when we are stressed or anxious we tighten up.
He addresses that as muscle cramping
I have that too, and this video finally clarified for me that it is not RLS. I suspected that for many years, but couldn't find any mention anywhere of the kind of cramping I have, so finally thought it must be RLS. Now I know it is a whole different problem -- in the muscle, as he says, not in the brain like RLS. So now I need to find info on this type of cramping.
J'ai été guérie de multiples fibromes par le Dr Eseigbe sur you tube dont j'ai souffert pendant tant d'années et après tant d'opérations. vous pouvez également obtenir de l'aide de sa part, quel que soit le problème, je sais qu'il a une solution *.
My advice is to see a doctor.
My doctor prescribed me Levocarb, a Parkinson’s medication. Works great. Also THC oil works, I took a few drops before bed and as long as I was taking it I never took anything else, it did take over a month to work but it literally wiped out the RLS completely. I had to go off it cause it was affecting my memory, but I’d love to be able to use it. I now get it in my arms too which is as aggravating as my legs
Help! I’m 52 and recently started experiencing what I’m thinking is RLS. The sensation in both my legs keeps me from sleeping. I move my legs around to find a cool spot but even that does not help. Or is this something else altogether?
Same problem here . I’m only 23
@@jshaka3769 Try magnesium....it worked right away for me that night!
Did you find a solution?
I had restless legs syndrome, began in my early 20-s, maybe once a week. By my late 20-s, increased to almost every day, in the evenings, hard to fall asleep. I remember going to the movies, I could not sit in that tight chair for the full movie, I had to move my restless legs, or stand & walk about, couple times I just left the building, I could not sit still for 1-hour & a half. About 8 years ago I went to a Homeopathic doctor with my arm, I could not move my arm, pain, strained & torn tendons. He helped me, 90٪ improvement. Anyways, I mentioned to him about my Restless Legs. He told me not enough magnesium, and told me to get Natural (organic) Magnesium plus Calcium in powder form to mix in water. Human body has difficulty absorbing magnesium by itself, the process needs Calcium for good absorption. (Told me strictly NOT to buy Synthetic, or anything in capsules. MUST BE in FLUID FORM, powder dissolved in water ONLY). So, he showed me a good brand "CALM" - Natural (Organic) Magnesium plus Calcium in Powder Form. Bought it, next time when legs began feeling restless, I mixed 2 spoons of powder into boiling distilled water, cooled it down with ice & drank the mix. The feeling of Restless Legs passed within minutes. After 20 years of thinking that this was some kind of genetic illness, I got help. Finally, the syndrome although less frequent, still persisted, but I had a temporary Cure, I was Happy, I took powder with me camping & on longer trips just in case. Then in 2015 I decided to do a Dry Fast, to cleanse toxins out of my body, do a major cleanse. I did a 7-day Dry Fast, I lost about 15kg during process. Since the Fast, had it happen maybe once per 2 month period, then I drank the magnesium-calcium mix and problem gone. In the last 8 years I really cleaned up my diet. And What I noticed is that when I have a day overeating on bad, toxic food, then in the late evening I feel Restless Legs. But this time I am Well prepared. 👍 Wish you Best of Health
During my pregnancy I couldn't take much and was active all day with no issues. As soon as i sat on our vouch at home it would start. I have a Tens unit that shoots little currents to the muscle and would stick that to my leg on low and go to sleep. It had a 15 minute timer and that helped alot. You can get a decent one from Amazon. Please ask a doc before use if you have a ticker just in case
I’ve suffered for about 5 years and it always happens in my feet rather than my legs. Cannabis always gave me immediate relief, but I am a newly sober alcoholic in recovery and I gave up all intoxicants. Back to the suffering in my feet again 😩
I'd be interested if prescription cannabis has been tried on people with this condition
It worked wonders for me.
@@maceejohnston8104 I asked my GP if I could have CBD on prescription and she said no as it hadn't been through all the necessary trials. I said ....what like the trials they had for he covid vaccines ?
I'd of thought that since people had been smoking pot since god knows how long that that would of been a good head start on any trials .
I've not really heard of anyone having " intake of cannabis" on their death certificate "
RLS always hits me when after dinner, im trying to relax and watch TV/movie. Drives me absolutely crazy@
I am post menopausal and have restless leg syndrome, as well as neuropathy. It seems to lessen when I use vitamin B1, potassium and magnesium.
Yes I am amazed how much it’s helping after only 3 days 💜