I was diagnosed, tested for ALS this year, after two and a half years of doctors. Final result came from electrical motor neuron test. I am not mad at the world, its a fallen and cursed place i love to be a part of, for now. I pray for every person who is a victim, the caregivers. There is no fairness in this world, but my Hope is in Jesus, the promises of God's Word. We should really start pulling together, not fight so much on every issue. God bless you all, love everyone.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this ALS, I'm totally in awe of what you are doing to help others who are suffering from this so - called ALS" I appreciate your hard work❤
My ALS diagnosis was also very slow. First weakness was in left arm and wrist. Doctor said arthritis. One year later I again complained it is getting worse, referred to Neurologist. Six months later saw Neurologist, he wasn't sure, sent for MRI of neck and more EMG testing. Now he is puzzled and refers me to ALS clinic for verification. Testing done and even specialist isn't sure, asked to return in 4 months. At this time it is now over 2 years since the onset of symptoms. Now diagnosed with ALS the doctor tells me that I don't qualify for new treatments because the diagnosis was over 2 years since the onset. Growl. Luckily my condition is advancing slowly. I want to thank Brooke for sharing her experiences and challenges, as this is good for all other ALS patients. Cheers to all and take care.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this ALS, I'm totally in awe of what you are doing to help others who are suffering from this so - called ALS" I appreciate your hard work😊😊
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this ALS, I'm totally in awe of what you are doing to help others who are suffering from this so - called ALS" I appreciate your hard work
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this ALS, I'm totally in awe of what you are doing to help others who are suffering from this so - called ALS" I appreciate your hard work😊
Ulcerative colitis prior to all this? 🧐 perhaps not coincidental. Hippocrates called it right 2500 years ago: “All disease begins in the gut”. Thank you for being so open and sharing the details of your health journey.
I would definitely suggest finding a doctor that specializes in lyme disease lou gehrig who the diseease was named after spent many summers in lyme Connecticut and if you watch the documentary under our skin a clinic in Washington said in the last 5 years they've not had a single als ms or Parkinson patient that didn't test positive for the bacteria
@leaveittolefty I'm really sorry to hear that and wish you The best but it should be noted that you do not need a tick bite you can get it from mosquitos and even passed down congenital at birth there also finding the poppy seed sized ones can transmit which can be very hard to spot on you it's also far more then just lyme connecticut I got it in kentucky most don't ever even recall a bite either
@@leaveittoleftyim def no doctor by any means but if it were me It would absolutely be worth ruling out these types of things, viral bacterial and parasitic infections including but definitely far from limited to lyme are extremely underdiagnosed and very damaging to the central, peripheral and autonomic nervous system so is mold and heavy metals, and I think as time moves forward were gonna see a lot of neurological conditions are linked to various infections and toxins
If this were true, why do we have people with ALS, MS, Parkinson’s etc in Australia where Lyme disease doesn’t exist? Lots of questions and not enough answers. I would rather not go down that rabbit hole but maybe someone will. 😂 And I am suspected to have MS and I have never left the country or been bit by a tick.
I was diagnosed just over two years ago at the age of 59. I really feel for those who get this at such a young age. Just one tip: Ask your neurologists if you might have "PLS" rather than ALS.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this ALS, I'm totally in awe of what you are doing to help others who are suffering from this so - called ALS" I appreciate your hard work😊😊
You might have been misdiagnosed. Have a methylmalonic acid blood test, which will show your tissue level B12. A low B12 at the tissue level is often misdiagnosed as ALS
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this ALS, I'm totally in awe of what you are doing to help others who are suffering from this so - called ALS" I appreciate your hard work
Not sure about that you might want to get a second opinion I’ve never heard or seen als present itself that way not with the patients I’ve worked with.
@@Trigger-xw9gq my darling I have tons of experience so please don’t assume that your symptoms and diagnosis aren’t typical at all! And the fact that your sitting the way you were in the video is absolutely not als sorry darling it’s not. I think maybe you need to get more educated on the terminal disease.
@@teresawilson3893 It's "you're", not "your", Einstein. But thanks for calling me darling twice in one rant, perhaps you should have been a waitress instead.
this is why im atheist, i had to watch my 77 year old nanna go through this disease, its even more horrible to see someone the same age as me go through it
I am so very sorry you had to go through that. My heart goes out to you. Please know that God has a plan to end our suffering. Revelations 21:3 & 4 gives me hope. Take care
Well most persons would say if god is love why does he allow suffering. But he has a time to end suffering isiah 33:24 soon no one will say i am sick. We cannot see oxygen i am sure you will never say it does not exist. Speak to one of jehovahs witnes to find out more. Eg gods name, most religions teach gods name is jesus. But psalms 83:18 says gods name is Jehovah he is the almighty watching you right now
I was diagnosed, tested for ALS this year, after two and a half years of doctors. Final result came from electrical motor neuron test. I am not mad at the world, its a fallen and cursed place i love to be a part of, for now. I pray for every person who is a victim, the caregivers. There is no fairness in this world, but my Hope is in Jesus, the promises of God's Word. We should really start pulling together, not fight so much on every issue. God bless you all, love everyone.
2 and half years ???? How is that possible with a disease like this...
By the way there are promising medicines on the way they say.....hang on couple more years
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this ALS, I'm totally in awe of what you are doing to help others who are suffering from this so - called ALS" I appreciate your hard work❤
Thank you for showing the world what bravery looks like i whis you the best going forward and will pray/ keep you in my thoughts
You are an incredible fighter & soooo many people, incl me, are rooting for you!!!!! 🙏🏻❤️🙏🏻❤️🙏🏻
Much love from Ireland, thanks for all you do
Brooke You are my hero! I am praying for a cure!
My ALS diagnosis was also very slow. First weakness was in left arm and wrist. Doctor said arthritis. One year later I again complained it is getting worse, referred to Neurologist. Six months later saw Neurologist, he wasn't sure, sent for MRI of neck and more EMG testing. Now he is puzzled and refers me to ALS clinic for verification. Testing done and even specialist isn't sure, asked to return in 4 months. At this time it is now over 2 years since the onset of symptoms. Now diagnosed with ALS the doctor tells me that I don't qualify for new treatments because the diagnosis was over 2 years since the onset. Growl. Luckily my condition is advancing slowly. I want to thank Brooke for sharing her experiences and challenges, as this is good for all other ALS patients. Cheers to all and take care.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this ALS, I'm totally in awe of what you are doing to help others who are suffering from this so - called ALS" I appreciate your hard work😊😊
God bless you. 🙏🏼🙏🏼
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this ALS, I'm totally in awe of what you are doing to help others who are suffering from this so - called ALS" I appreciate your hard work
Hi. How long between noticing your leg weakness and your first EMG was it? And how long between your first EMG and your next?
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this ALS, I'm totally in awe of what you are doing to help others who are suffering from this so - called ALS" I appreciate your hard work😊
Ulcerative colitis prior to all this? 🧐 perhaps not coincidental. Hippocrates called it right 2500 years ago: “All disease begins in the gut”.
Thank you for being so open and sharing the details of your health journey.
I would definitely suggest finding a doctor that specializes in lyme disease lou gehrig who the diseease was named after spent many summers in lyme Connecticut and if you watch the documentary under our skin a clinic in Washington said in the last 5 years they've not had a single als ms or Parkinson patient that didn't test positive for the bacteria
ive not had a tick bite, dont live anywhere remotely close to that area and i was diagnosed three days ago with ALS so there’s that.
@leaveittolefty I'm really sorry to hear that and wish you The best but it should be noted that you do not need a tick bite you can get it from mosquitos and even passed down congenital at birth there also finding the poppy seed sized ones can transmit which can be very hard to spot on you it's also far more then just lyme connecticut I got it in kentucky most don't ever even recall a bite either
@@leaveittoleftyim def no doctor by any means but if it were me It would absolutely be worth ruling out these types of things, viral bacterial and parasitic infections including but definitely far from limited to lyme are extremely underdiagnosed and very damaging to the central, peripheral and autonomic nervous system so is mold and heavy metals, and I think as time moves forward were gonna see a lot of neurological conditions are linked to various infections and toxins
If this were true, why do we have people with ALS, MS, Parkinson’s etc in Australia where Lyme disease doesn’t exist? Lots of questions and not enough answers. I would rather not go down that rabbit hole but maybe someone will. 😂 And I am suspected to have MS and I have never left the country or been bit by a tick.
@@iSheree i live in middle of desert with none of those risk factors and i was diagnosed with ALS last week.
Why not start with the real trigger of the ALS disease n how to mitigate this,.. before going straight to the diagnosis n the aftermath....??!!
I was diagnosed just over two years ago at the age of 59. I really feel for those who get this at such a young age. Just one tip: Ask your neurologists if you might have "PLS" rather than ALS.
?? what is PLS? i was diagnosed 3 days ago with ALS, possibly FALS when tests result
@@leaveittolefty "Primary Lateral Sclerosis"
Google ALS vs PLS.
You guys know anything about new treatment...I read they getting closer and closer ....Also with help from AI....Hang on please my friends
@@RobdeKlerk-qg6lc There's nothing yet. Although, search for some videos on Dr Matt Phillips; he recommends a Keto diet, and I have started that.
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this ALS, I'm totally in awe of what you are doing to help others who are suffering from this so - called ALS" I appreciate your hard work😊😊
Rip 😢❤❤❤
You might have been misdiagnosed. Have a methylmalonic acid blood test, which will show your tissue level B12. A low B12 at the tissue level is often misdiagnosed as ALS
You have my utmost respect Dr ubarlo and I want to appreciate you for all the glorious things you are accomplishing you are my hero I never thought there will be a way to cure this ALS, I'm totally in awe of what you are doing to help others who are suffering from this so - called ALS" I appreciate your hard work
THATS RIDICULOUS THAT IT TOOK THAT LONG TO DIAGNOSE...🙄🙄
Not sure about that you might want to get a second opinion I’ve never heard or seen als present itself that way not with the patients I’ve worked with.
Why does she have to present a certain way .whats different compared tov others?
@@elanamccullum1677 because that’s not how als typically happens I know from experience do you?
@@teresawilson3893 You obviously don't have much experience, for this is quite typical, it was for me too.
@@Trigger-xw9gq my darling I have tons of experience so please don’t assume that your symptoms and diagnosis aren’t typical at all! And the fact that your sitting the way you were in the video is absolutely not als sorry darling it’s not. I think maybe you need to get more educated on the terminal disease.
@@teresawilson3893 It's "you're", not "your", Einstein. But thanks for calling me darling twice in one rant, perhaps you should have been a waitress instead.
this is why im atheist, i had to watch my 77 year old nanna go through this disease, its even more horrible to see someone the same age as me go through it
I am so very sorry you had to go through that. My heart goes out to you. Please know that God has a plan to end our suffering. Revelations 21:3 & 4 gives me hope. Take care
@@MrCoolh20thank you but spare me of the sermon
Well most persons would say if god is love why does he allow suffering. But he has a time to end suffering isiah 33:24 soon no one will say i am sick. We cannot see oxygen i am sure you will never say it does not exist. Speak to one of jehovahs witnes to find out more. Eg gods name, most religions teach gods name is jesus. But psalms 83:18 says gods name is Jehovah he is the almighty watching you right now
@@robertbrighton9797the sermons wasnt meant for you dude
Same. F "god."