Real life special needs mom moment 
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- Опубликовано: 27 июн 2023
- This was a very hard day for me. Griffin and Sawyer were really struggling. Things are improving. Griffin is now in ABA therapy and I feel less stressed, but I really wanted to share this video with you, because these are true and real moments of what it is like to be a parent of children with severe disabilities.
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My husband and I got custody of our 2 grandchildren almost a year ago. 8 and 11. The 11 yr old is autistic. Neither child had any schooling or professional help. Neither was toilet trained. The autistic child is normally a sweetheart but when she has a meltdown, lookout! She will hit, kick, bite, cuss, and turn into something you don't recognize. It is very hard, especially at our "Nana and Pawpaw" age. yesterday was tough. I woke today with that feeling of doom. My morning devotional today was about drawing your strength from Jesus. Somedays, that is the only thing I can rely on. Bless you and your family. I understand. ❤️
I’m sorry to hear that
You will get threw it, just be strong, and never give up, let God and Jesus guide you through this journey of yours, God bless you all.
Leave them at Walmart
@@danielden805that's big time messed up. That's just messed up. It's messed up yea they need help and special needs but their still a person with feelings who wants to still live
@@danielden805that's pathetic
You're in an extreme situation and we all know you're trying your best. You are a *terrific* mum in what you're doing, and you don't have to be _any_ better, your kids will be ok even days like this..
I have high functioning autism. And I’m so sorry u have to go through this. It gets better the older they get but ur doing a great job!
You are doing a great job. I know being a special needs mom is hard. It's hard dealing with meltdown and people don't understand. My daughter is 29 and she had a meltdown at her neurology appointment. It was so bad they called security and the paramedics on her. I felt bad, there is nothing I can do to get her to stop the meltdown. Hugs from one special needs mom to another
I have a disability. It is hard and frustrating at times, I am sorry you are struggling. Everyday is a new beginning. 😌♥️🇨🇦
I see you. You are a gifted and loving mom. Your best is enough. It may not feel like it to you right now, I promise it is. Been where you are. Wish I had more then just kinds words… but I see you. 💛
I know how hard it is and vey tiring and frustrating in the summer when there is no school. Keep trying to get any help you can get. Your family is worth it! Hugs to you!
Your kids are so lucky to have you as their mom. I can feel how much you love them and care for them and fight for them when need be. You're doing your best and you're amazing! Sending hugs your way.
I Hear your cries momma. Big hugs to you and your family. My son's melt downs at night are so trying. Keep fighting keep reaching out.
Thank you for sharing your journey! You are absolutely doing your best and that is good enough. Your kids love you and know that you are trying.
I’m so sorry you are having to deal with this. Is it possible to but them in a home or facility that can provide them with a routine, they would be so much happier don’t you think? You could bring them home one or two days at a time. It really not fair that the older children are being bitten by Griffin, or hurting them in other ways. I think you whole family would be so much happier in the long run. I’m not trying to be a Karen,I’ve been your supporter since the twins were born. I hate to see you so upset and your reasons for being upset are valid. I believe you’ve done all you can mentally and physically can do.
You are such an amazing Mom/Wife. I cannot imagine the issues you are faced with constantly but pray that you will get the help that you and your kids need. The majority of the people who make comments have absolutely NO idea of your day/daily needs/daily problems. You are an incredibly strong woman but you can't ALWAYS be upbeat. I'm praying for you.
It is exhausting. I’m with you. I have 11 year old twins both with autism and one with ADHD as well. I live on the other side of the world from family and am single. Some days you have to break down, you’re human and you have needs too. Thank you for your honesty.❤️
My thoughts and prayers are with you, a great parent, and Will too!
You’re doing amazing! You’re tapping into the depths of your strength and doing so well. You are a blessing an an inspiration! You’ve got this beautiful soul 🥰 I’m so proud of you for stepping up and being such an incredible parent to these beautiful children! You’re an earth angel and you’re smashing it! Love, light and blessings to you and your family x
I understand your pain. My grandson has ADHD autism epilepsy to mention a few. Hang in there Gods got your back
I'm sorry to hear how hard it is. I hope it can get better.
ABA made a world of difference for my son…I know it’s controversial but I found that it worked better at clinic than in my house, I sat and waited at clinic, just for my sons safety and I was worried about leaving him alone while he was at clinic… I wish you all the love in the world.. you have a community standing behind you emily.. hang in there I swear it will get better♥️💙💕💕💕🥰
I wish there was an easier way to get additional help in the home, especially with a special needs child who is frequently physically violent. (Hugs!!) 💓💓💓
My 6 year old i have custody of doesn’t have special needs, but she has severe trauma from before i had her, so i understand how it can be a lot. I work most of the time, but she is terrified to be away from me, and will cry and scream for hours until she can be with me again. 6 kids is a LOT! I totally understand how that would be hard! My little girl will read like a book, and will panic if she hears any loud sounds, or yelling, even on the TV. She will startle from a dead sleep because i put my hand on her shoulder to wake her up. I do want to tell you that yes, everyday IS different, but eventually, all i can hope is that it gets easier, both for me and for my daughter. Have a wonderful day, stay strong!
Yes iam there too it's exhausting and nerve-wracking 😮😮😮😮😮😮
I'm a mom with 3 children and 2 have autism and ADHD I know it can be difficult at some times but you will get through it.
Oh sweet friend! 🤍 you are doing so good!
You are doing so AMAZING!!! And even if it may seem hard you WILL get through it I promise!!!
You are a amazing parent
Your a wonderful parent Emily...you have to do what works for you.....and its FINE to vent especially when its really tough. Have your vent, take a break and know your doing your very best. Miss you all on youtube. Love from Scotland xx
I totally get this and I'm sure so many more parents do too. You are doing great momma and so brave for sharing the real life part :) Breathe :)
You're doing amazing. ❤ It can be hard to understand you're struggles but you are doing amazing. ❤
I can't imagine for a minute how hard it is for you. I have heard u say months maybe years ago that you would never put your kids in respite. Love u Emily, but maybe it's a consideration as the twins are older and maybe harder to cope. No judgement if you do or don't. Mentally you could do with a break, as does Will and your other kids, it's a hard slog day in day out on your own. Maybe get some information, just a suggestion but honestly u have to make you as their mum number one, if u crumble, what then. Don't shoot the messenger, ❤❤
Prayers
A lot of people will tell you how to “fix” your family’s challenges. They’ll tell you “it gets better”. And it probably will. But it’s OKAY to not just blow past your feelings and how HARD it is. It’s okay to feel like things are impossible, because what your doing is incredibly challenging and frustrating. And it’s okay to take care of yourself, and ask for help. Remember that you are strong, but it’s okay to be sad, angry, exhausted, or anything else. I see how much you love your kids, and how hard you try. Remember that YOU are important too, and just like how you spend one-on-one time with them, take a little while to treat yourself. You matter, and you can’t help them if you don’t help you.
Thank you for sharing your life
It’s hard my mom dealt with me having meltdowns and struggling with autism depression and anxiety and I’m 20 years old you’re not alone miss .❤
Sending my prayers for u mom😮😮😢😢😢😢😢😢😢😢😢😢
You’re an amazing mom. It’s gonna be ok it can be stressful sometimes, but you just Gotta move on a little bit
You can so do this go girl ❤️❤️❤️ prayers are coming
I wish there was something I could do to help you. I haven’t been through this myself, but I can tell how emotionally draining this is. And it’s easy for people to make suggestions to people when they have no idea what they’re talking about. I sympathize with you, but I don’t think I really have any idea what you’re going through. All I can say is, if I could reach through this iPhone and hug you, I would. 💞
I’m sry but you’re a great human being and you are doing your best❤
Oh Emily, it's ok to have these moments...even if it's everyday! It's alot for you guys and you're doing great. I know summers are extra tough, especially for Griffin and Sawyer, but thank God they are only 1/4 of the year long! You got this girl!!😉💖
Your a real superhero ❤
I hear you, right there with you with my 5 (3 autistic). It is so hard! God bless you. I hope things get better.
I’m 14 years old and was born with Global Developmental Delay which is similar to autism and I also have low muscle tone a missing chromosome plus a duplex kidney and I also have scoliosis which gave me issues with my spine to the point I needed an operation so it’s hard for my mum and dad to take care of me but all you have to do is never be hard on yourself or your children and their needs because they trust you and know you will try your best to make their routine fit
It's fine you'll get through this no matter how hard things seemmat some times it'll get better
I can see you! 💕🙏🏻💕 I am walking your same path and its hard… Only God will give you strength 🥰
Keep going super mama. This family is lovely and im enjoying watching.
I feel you. I only have 1 kid with special needs and I still can't keep a constant routine. I see her needing one, and I still struggle. The struggle is real.
I live an hour from you and I want so bad to just hug you and tell you how strong you are. Life can be so hard and so unfair at times. My best friend was a teen mom to an angelmans boy. She did it all alone before they really knew much about it. He never walked or talked. He was silly one minute screaming the next. He never slept. Threw things in anger. It was so so hard. That boy was my buddy and my friend and I miss him everyday. But man it was hard.My friend is short and was super skinny. She used to pick up her son who was tall and in highschool and carry him on her hip all the time. I used to say how do you lift him. She would say every year he gains a few pounds. Every year I learn to lift a few more pounds. God be with you I have seen first hand how hard it is with these boys.
I wish I could hug you, I think you need a friend that can come over and just hug you and listen and tell you it's ok to cry with and remind you of how amazing and strong you are. Praying for you and sending my love and hugs from afar.❤
I wish I could be there and help you. Like give you big hugs and say everything is going to be ok sweety. Keep your head up . God bless you.
Yeah I understand. Its tough. At least you tried. As the oldest (13) to 2 siblings (9) and (1 almost 2) its hard I'm always babysitting and the baby always cries or throws fits
Your doing amazing as a mom to all of your kids. I am special needs school bus aide. I work with kids on all different levels of special needs. And some. Days I come home from work. Patience absolutely tested like no tommorow. Or stressed out. I know exactly what your dealing with. Don't loose hope your doing amazing
We don’t know how hard it is because you are doing as well as anyone could do with overwhelming challenges. It’s hard too because I think Griffin is doing as well as he can. I hope better help comes - God Bless you.
sometimes you just got to let it be and live by seconds and minutes to get through days like that
I've got 3 on the spectrum and I've had to sit in the middle of the busiest street in Edinburgh (Scottish), restraining my son so he doesn't harm himself. I know it's hard, Mama, all my love ❤
Your amazing
Em, i know autism meltdowns are stressful, but you gotta stay strong. the twins are the reason why your world is special. and you should NEVER yell at an autistic child while they're having a meltdown. but as for kids with angelman syndrome, they're like giant infants. sometimes they'll get mad. so yes, putting them in the safety bed after an episode is recommended.
I have apraxia of speech as well but i didn't know that until when i was in 7th grade
Am really sorry to hear this, am sorry you had to go through this as a mom
Madam am on my knees, I have sent you countless emails but all to know avail😭😭😭
Please as a mom to a mom this is how me and my 3kids survive, I can't find any ways to contact you. Am about to loose my channel in 3days, I have a widow mom living with stroke 😭😭😭and my kids will have to quiet school if I loose my channel please consider and kindly retract your takedown because am about to loose my channel.
I deleted your video and I promise never to do that again the $400 I earn in a month feed my kids pay their fees and my sick mom. If I loose my channel how are we surviving, I know is wrong for using your video without your consent but please forgive me and retract save my kids their daily meal and my mom her health please am begging you 😭😭😭
Jesus, please send your holy spirit comfort to this lady I have been following for awhile. Please show her just how real you and your miracles are. Amen.
Hey emily, do you think griffin could use a device like tobii dynavox I-Series? I searched it and usually they use it for kids with cerebral palsey but i was thinking it might be something griffin could use to talk to you if hes able to use it.
You are doing a great job mama. In these moments when you are unsure just breathe and remember you got this.
No tears
💞
I take back my last comment. If Sawyer has a meltdown, i would give him a weighted blanket and give him a snuggle after the meltdown. and as for Griffin, to prevent him from biting his siblings, get him a chew ring or anything that he can bite into.
Have you ever tried therapeutic riding. You are a grate mom
I'm so sorry, it is hard dealing with 6 children, let alone having special needs children. I don't know if you go to church, but if you do, talk to your minister about seeing if anyone could volunteer to help you out. I know many of us would if we lived in the same town as you.
My mom is in a support group for parents of kids with disabilities/special needs. Do you want me to ask her for the information so you can join? Or if you want to just talk to her I know she is willing to listen and relate and be a support for you because other parents have done the same for her before too
😢😢😢😢😢😢😢😢😢😢😢
You are amazing you are super does your husband help
I didn’t know all 6 kids have special needs
Hi
0:15
With all due respect this is exactly why your theory of getting teachers for summer school is as simple as paying them more money is way off the mark. You’re a few weeks in with 6 kids and a husband who’s paid by the state to be at home full time to help with the kids and you’re already done. You’re broken. We have a classroom full of kids. All with individual needs as little humans. All with individual education needs. Many with individual, often complex, medical needs. Yes we have staff in the form of aides of varying number according to a predetermined ratio but we’re responsible for managing them. We have administration requirements. We have administrators we’re accountable to. We have parents we have to work with. And it’s not a 8am-4pm Monday to Friday job. We take these little ones home with us in the form of worrying about them or trying to work out how best to meet their needs. Not to mention the out of hours parental contact, programming and preparation that we do. Teaching in general let alone children with additional needs is not a job you go into for the money in the first place so paying more isn’t an incentive for teachers to take on summer school. We need that end of school year break to decompress, allow our minds to let the little ones and all their needs go as they move onto the next teacher and to recharge our batteries, prepare our hearts, our minds, our classroom and our teaching programme for the next group of precious little humans that are coming into our care. After all they are just as deserving of every bit of ourselves that we can give them as well and to do that we need that break. Please don’t minimise how much we do for the children in our care, how much we genuinely care about them and how much we willingly give of ourselves to the children and their families by saying that having adequate staffing levels for summer school is simply about money because that’s far from the case and quite frankly an insult to those of us that are in the profession because we have a heart for children and for helping them to reach their full potential in a positive, fun, fulfilling and nurturing environment.
Have your kids all work together and change a diaper all the kids that aren’t in diapers teach them how to when you or dad aren’t around and need to have them to learn how to change one
I am sorry. You have need of respite care breaks. I am confused though. I thought Will was staying home with them being paid as a carer?
Please am so sorry about what happened, as a mom I feel for you
Please have mercy on my friends channel Licia's Health And Maternity... Please retract your complain so she can get her channel back from woman to woman and mother to mother PLEASE have mercy
Why or how does one set of parents have more than one child born autistic when being autistic is not genetic they say,I’m confused,how does one set of parents have 6 children born with all having special needs,are all these your birth children? Why don’t you have some in home health care aids? I know people that have up to 52 hours per child per week depending on there needs sure some children only get 24 hours per week but mom can use those hours for that child any way she wants ,say she has 4 children & they all get 30 hrs per week of in home health care,so a nurse comes in or a care giver comes into the home of moms hours she chooses for each child so this week she chooses 6 hrs on Mon from 3 pm after school to 9 pm so she & dad can go do some adult time & when they get home at 9 all 4 kids are all bathed & in bed for the night so I mean Monday was a great day for the parents…right? & -6 hrs from 30 now so Wednesday mom picks the same hrs 3-9 kids are bathed and in bed when parents get home… now Thursday no school it’s a snow day…mom pick 11-6 which is 7 hrs so far mom used 19 hrs this week (she has 2 in home care givers) she still has 11 to use for this week she can use them all in one day or split them up ect… why do you not get help like that ,I don’t understand it’s not for poor people or rich people it’s just for anyone with insurance,insurance pays for it, all states have this I would think,my sister was a in home health care aid for years,we used one for my mm when she got older that way us daughters did not wear our selves out,it’s really the way to go,if you know the ins & outs you can really use these things to your advantage that’s why they have them so you don’t get worn out & your children get the best care ever & you also take care of yourself,my family had a advantage by knowing a lot about the services they offer because my sister was a home aid for 15 years it’s really something you should look into ,anyways hope your days gets better 👋
But you made sure to record yourself fake crying. Quit exploiting your kids!!! Oh and the fake crying…
How do you know this? I guess you did plenty of play-acting to get attention for yourself? Life is certainly not a bed of roses for any parent, but if you don't have children with special needs, then how can we parents who do expect you to understand?
you brought this on yourself, emily.
It’s ok hope u feel better
U can do this 🩷💛🩵
Are you ok