HARD DAYS WITH A SPECIAL NEEDS CHILD Angelman syndrome
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- Опубликовано: 19 дек 2019
- A little update on Griffin and how things have been going lately. Also, we make Christmas cookies! Please subscribe to watch our family grow!
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Emily and Will Wallace
P.O. Box 323
Auburn, NY 13021
We are a big family of eight with Mom(Emily), Dad(Will), and our six kids, Harrison, Wyn, Griffin, Sawyer, Posey, and Lindy.
#GrowingFamily #GriffinUpdate #YouAreWonderful
Oh how Dad and I wish we lived closer to help you and Will. It breaks my heart to see you so emotional, always remember you can call me. Griffin couldn’t ask for more hard working parents to help him. God blessed you with a beautiful family. We love you please always remember that ❤️❤️🥰
Great grandparents also. You give both Emily and will lots of love and support. Love reading about this lovely family. I had four children two of each and never had the patience that this family show. Must b tough when Griffin is pretty hard work. Griffen is such a smiley wee man. Wish I lived nearer to lend a hand. Blessings to you all. Merry Christmas from New Zealand
Remember Emily, the days are long but the years are short. I am so happy that you enjoy your one on one times with your babies... Posey is such a joy; funny, cute but such a joy!
As far as Griffin knocking down the TV; find a way to tether it to the wall or just mount it (if it’s a flat screen).
Posey's "uh-hu" and "muum" is THE sweetest thing ever
Have you ever thought of mounting your tv on the wall? Bless you and your family, and Merry Christmas!!
Forget correction...move the TV or fix it to the wall so he can’t push it over. Practicality to save your sanity. 💖
Posey is SUCH a ham!! I love her! She’s the only one of your little ones I remember that rolls her tongue isn’t she?! I think I heard Lindy do it a time or two as well but I could be mistaken. When you were doing her hair I thought ‘yep! She’s going to be a hairdresser one day!’ so it made me laugh when you said the same as she was combing your hair, cutie!
Take each day as it comes Emily. Know you’ve got all of our love & support behind you on this rollercoaster of a journey. It’s lovely to hear you’ve found a physical therapist for Griffin though, & from experience with my own disabilities, when a medical professional is willing to listen / learn & take a genuine interest in your story, that’s a VERY good sign!!!
Sending you all all my love. I’m sure they’ll be a video before but in case I don’t say it then.. I hope you all have a truly wonderful Christmas. ❤️💕 xx
Don’t forget you’re wonderful as well!you are a great mom and Griffin is blessed to have such supportive parents.
How wonderful u are and Will of course! I can’t imagine how your days are cause I don’t know. But I wish u could just see what everyone sees in You&Will. Amazing parents ‼️ Merry Christmas 🎄❤️
Having parents with memory & communication issues, I can identify with the frustration of repeating the same thing over & over. But you're doing an awesome job, Mama Bear! You will get there one step at a time. You've got this! And remember to celebrate the little victories along the way.
Emily, I want to wrap you in a big bear hug....please hang in there....you are a super super mommy! You are doing the best for your family and that is all that matters! ❤️❤️❤️
You got this everyday is a new day prayers! Posie with the cookie was adorable.
I’m so sorry it’s so hard. You two are amazing and wonderful.
Oh Emily .... I think I see “help me” when I see your eyes and expressions.... my heart races and chest feels tight just watching your videos and what your days & nights must be like .... I truly feel for you and will Pray for you .... please do whatever you need to do for you & your health so you can handle all on your plate .... I cannot begin to imagine what you must feel & go through... if you have any available help to free up time for your well being , find it and use it sweetie .... any Aunts & Uncles / Grandparents who will take some for overnights or the weekend ?? Praying for you & Will ... one breath at a time is all anyone can do .... {hugs} ❤️❤️❤️❤️❤️❤️❤️❤️
Posey is an absolute cutie patootie!!! She melts my heart!!! I know you having a rough time Emily but your family is beautiful and amazing and so blessed!! Happy Holidays guys! Love from Cape Town South Africa 💜💙🇿🇦
is thereany kind of school Griffin could attend a couple times a week> that would give u a little break Posey is so smart! Merry Christmas to u all!
OH my, I love this one. I do feel for you and snowshoe I could make it better. Looks like so much fun making those cookies. Yum! Love how Posie ate her cookie!
Hi Emily and Will.
My daughter has a congenital heart defect. At birth she also had some issues with breathing, and they aren't sure if she will have future complications from that. I appreciate so much how raw and real you are. Your feelings of love and frustration and fear regarding sweet Griffin are so relatable to me. I appreciate everything you do.
My daughter shows some signs of Angelman Syndrome though we are unsure if it is that or related to her complications at birth. She was barely breathing when she was born (similar to Sawyer how you described it) and I had postpartum hemorrhage (similar to you). I just relate so much to your story.
Love Ann and Oakley.
Hey I feel for you I also had 6 and one boy with bipola and adhd. They are all aged 20 - 29 now 3 boys 3 girls now i have 6 grandchildren 2 boys 4 girls and counting 😅 I remember how exhausting and continual the housework was even keeping on top of the washing is a challenge the kids seem to be right behind you undoing all your work when you do the housework it goes on and on and on and all the crying and fights nappies baths feeding sicknesses broken sleeps and not listening to us and dinner time is stressful until they are all in bed then the mornings argh school mornings what a mission its so busy tiring feels like your climbing and uphill battle but then its all finished they all leave one after the othe next minute your suddenly a grandparent and THAT is when you reap your rewards you actually can enjoy them without the stress of 24/7 non stop disfunctional chaos. Its all worth it then you fully see how hard and rewarding being a parent truly is😍 keep going you will look back one day and go whoa that went quick!!!!
I'm gonna try your Christmas Cookie idea with my son so we can leave them for Santa on Christmas Eve! All of your kiddos are adorable! I know we're not supposed to have favorites, but Posey just melts my heart these days! Lindie's smile though! And Sawyer's "goodbye!" Sweet! I can only imagine how hard it is on you going through this season of Griffin's life right now. Your family is in my prayers. Thanks for sharing your struggles with us. Hugs from West Texas!
Posey is such a sweet little thing! I can't get over how beautiful all the little ladies are and how handsome the boys are! They are doing something right :)
❤️❤️❤️❤️ you are an amazing momma, and you got this bad days and all, you are strong and you and will are an amazing team.
Emily, I wish I could be there to help out. You rock!
Emily my daughter is bi polar. I went through a lot of rough times but it’s hard to hang in there. She’s now 35 and still has a rough time. I loss my two sons one at age 24 and the other one at 30. Now I just loss my feoncee at age 54. Live isn’t easy but we are strong. At least we try our hardest. Hang in there. Love you guys
Emily you can try apply for care giving benefits so you can work alittle lesser.☺Many hugs to you ❤❤
You are strong! You got this. You will get through this one way or another. I have struggles with my little girl who is 3 1/2 Not like your son but she does have her medical problems. She has so many food allergies that could kill her so quick if I don't stay on top of it all... Plus sickness induced asthma... That she almost died from in April... Because of the absolutely horrible hospital here. Sorry for the run on sentences, my whole point was to show you you aren't alone in this journey called life An that everything will turn out okay in the end. Baby steps an slow breaths an you will get where you are trying to go. But always remember he loves you An you an Will are his everything. He is a special little boy!
God Bless you Momma! Give yourself Grace, you have a lot going on. Do what you can, try not to sweat the small stuff. I can only imagine what you are going through. May God give you grace to survive each day.
Merry Christmas to Emily & Will and all 6 Beautiful gifts from God💖💖💖💖💖💖💖💖
First ,you both are doing a great job.life with special needs is hard.keep searching for ways to correct Griffin.I truly feel your pain.I wish you could move close to me and I could help.Please know I am praying for you and the family.Merry Christmas .
Beautiful family!! Wonderful parents... this will not last forever and believe it or not you will miss these times or most of them at least...your beautiful!
Merry Christmas. I hope santa brings u a kitchen aid stand mixer for Christmas.
Making cookies is hard enough with the help of 6 children but they probably really enjoyed it and you never know what their memories will be. It just might be the best one for them. What we do for love. I can only imagine how hard it is for you to wrap your brain around Griffin's problems. He seems like such a sweetheart and I'm sure he is but the fact that on many occasions you know he's not "getting it". It breaks your heart but as someone who worked with special needs children my whole career, I want you to know when he meets a milestone you've worked on forever, you will be so proud. It really is bittersweet but you are a great mom and you are going to make it just fine. Love watching your family. Hang in there.
You are the most beautiful person ever and you are a good mom with your kids I know it is hard but you can get through it I know you can get through it
Remember Emily you are doing a good job I love your family ❤❤
This too will pass Keep up your great and its ok to cry
Emily you are so wonderful. Would you all ever consider moving to a warmer part of the country? Just thinking it would be so amazing to have nice weather and a back yard where your kids could run free. I know that moving is not a simple task especially when you have 6 kids and you have extended family in your current location. You're doing amazing, always praying from your crew :)
Nothing wrong with crying. You and Will are great parents, but it has to be very hard. Praying for you.
"It's for the kids!" 🤣 I feel ya. But you are super mom... I only have 2. Lol All of your kids are gorgeous! Wyn makes me sad that I don't have a girl 😆 She is just too cute! And Posey... I still love that tongue roll sound she has always made! She is adorable! If I saw you having a hard day... I'd have to give you a big hug! You are awesome, Momma! You are rocking this mom thing! I hope you & the family have a very Merry Christmas! 💜💜💜
I pray for you @ Will y'all are Amazing parents,,never ever forget that💖 take one day at a time,,I sending you a biggest hug ever💖😀 Merry Christmas to you and your Beautiful family ❣️💕💕💕💕💕❤️❤️❣️❣️
Hang in there. Your a great mom!
Emily, my daughter passed in 2004 and she had microcephaly. Eventually she was in a group home where she could get better care than she did with us. You may find this mean but you may want to look into this in the future. The mental health of the rest of the family may depend on it and Griffin may be having a hard time with too much stimuli with all his siblings in close quarters. Group homes are so much better than they once were. I would hate to see you lose the quality life with your other children trying to pretend you can deal with everything. I tried to do it too. It did not work. My marriage broke up and I ended up taking care of things by myself except on weekends. Know I care and I do not mean to be mean. It is reality that never goes away.
To each their own and I’m sure you mean well but I think it’s highly disrespectful to tell someone to put their sweet baby in a group home. I have a 15 month old “special needs” baby and I’d never in a million years put him anywhere. He’s my baby, my son, my life and he’s part of the family just as much as anyone else. I know there is different circumstances but IMO Griffin isn’t anywhere close to that.
@@jnhartling87 I asked her to consider her options if she feels she cannot live her life this way until old age. I am not telling her to do anything. I bet you do not have five other children close in age either or suffered from depression like Emily has. Get back with me when you are doing the same thing for your child when your child is 30 or 40 years old. Emilys posts in the past sounded like she was about to call it quits with her family in the past because of the stress. This stress does not go away and siblings are affected by parents moods as time goes by.
I’m not about to argue with you. I just don’t think it was a right thing to say. I’m not saying it’s wrong or right for someone to do - you do what’s best for you and your family and I’m not here to judge what that is. However, don’t assume how many kids, what I’ve been through etc. You have no idea the shoes I’ve walked the last 15 months of my sons life and continue to daily. However, I’m his mom and that’s what moms do. Happy holidays!!
I wish for you Emily 24 hours of just being alone. Sometimes we all need a day and a night. I will tell Santa when I see him. The best gift your entire family can give you.
Big Hug Emily, wish I could do more for you. I used to be a teaching assistant in a room with 7 children with varying exceptionalities very similar to Griffins. Yes, over and over with the same corrections/disciplines and their smile like they when they did it again they were proud of it and looking for attention, even if negative attention. But we still love them. Believe me, Emily, they grow out of it. Patience and seeking out the positives like "Posey brushing your hair" and "Sawyer coming for a hug" and all those special "Lindy smiles" and the hugs from Will and all the good stuff and sweetness from Wyn and Harrison - all those "tugs at your heartstrings" work, keep remembering them........cuz "They're All Wonderful" too, and so are you! :-)
Please know that you are not alone. December is a hard, hard month for my Angel, with all the sensory input and change in routines, her behaviour is off the charts and sleep is almost non existent. It feels like Groundhog Day in my house 😢.
Please check out Autism Discussion Page on Facebook (My Angel doesn’t have autism but she has behaviours & respond similarly to someone with autism), the page has recently been discussing different discipline techniques (look back over the last couple of days), there are some really helpful suggestions. Hope it helps a little. X
what kind of cookies was those they look good
Be honest...how often do you pull out the camera with it turned off just to get everyone in a better mood?
Love from Nova Scotia xoxox
I’m from NS as well but living in Ontario 🥰
“The Little Engine That Could”.
Oh my goodness I want one of those cookies
I just want to give you a big hug. I have 3 grandsons with autism and it is soooo hard at times. The screaming can get on my nerves. But they are a blessing too. So I totally understand.
Melodie Thornock my 4 year old daughter is autistic and the screaming is SO hard some days!
No, YOU’RE wonderful. If I win the lottery, I am buying you a Kitchen Aid mixer. I honestly don’t know how you cook/bake for a family of eight without one!
Love you 😍
The tongue roll reminds me of a wookie sound.
💖💖
I love Pokemon
My son has Tourette's syndrome and from 8 to 16 it was HELL! He is now 39, married, and has two stepchildren. I only had two children and my daughter has no problems. Thank God!!!! Hang in there. I would jump off a bridge if I had more than two. You guys must really love a large family.
Oh Emily, I want to hug you right now. You need a Kitchen Aid!! Maybe Santa will bring you one.
Adidasilor fetele mele acasă și totul este al meu totul și a lu i Kovacs samule Anca Crișan domnsa asaria va bag an pușcărie pe viata
Omg I laughed and laughed over your kitchen mess 😂
Don’t worry you’re not alone!