I applaud the parents for putting that much effort into brushing their teeth. I’ve seen many caregivers and even staff just refuse to brush teeth because it’s too hard
I see it a lot in our younger kiddos working with special needs where they have really expensive dental needs cause they can't tolerate the sensory input in mouths and are frequently biters so doing it is potentially dangerous. I think this family is doing amazing because that is such a challenge!!
I have a non verbal son, it was always difficult to brush his teeth but since he likes when I tickle him, I now say lets tickle your teeth clean. making it more fun & now we have no issue allowing me to "tickle" his teeth 8 yrs old no issues with any of his teeth so far luckily cause just a regular dental appointment is stressful enough cannot imagine the stress of having actual dental work done more than just a cleaning.
Yes my daughter has Down syndrome and I make this a routine plus I’m a dental assistant I see a lot of patients with special needs and there teeth 😢so yes it’s a must
Hello, my brother showcases a lot of the same behaviours as the twins in this documentary: developmental delay, walking on tiptoes, sunken face, gut issues, chronic constipation, cannot gain weight. My parents never looked into genetic testing and just accepted that he was meant to be on this earth as he was. Things only get harder as he grows older and it truly takes a village to take care of an adult child. The government helps but no one can truly give the care a family can, especially strangers. These parents are doing amazing, I commend them for the love and care they give to their children, you will be rewarded in the quality of life your children will have.
Hello Nhaila! My younger brother also has almost the same issues as the twins. We have had "diagnosises" in the past that were then taken back by the same doctors. He is now 21 this year, and both of our parents have passed away. If you would like to ever reach out and speak more with me, let me know! I want to hear more about your brother ❤️
Every parent in this video has devoted their lives to their children and they’re overcoming the stigma that still exist especially in some cultures. But these parents are so devoted to their children.
I highly respect these selfless parents for treating their children with so much love & care, not giving up hope on them. It made me tear up when they’re all so patient towards their children. Praying for the best 🙏🏻
I knew Jayden’s sister Jeslyn in primary school. We were friends and she always knew how to made people smile. I have seen her family before at school events. Bless her and her family. She was so nice. We were classmates and I really miss her
Jayden walks so well in the pool. It's amazing really. All these children have one thing in common,and IMO the most important, they have loving people looking and working with them.
I work with special needs kids by teaching them movement through Parkour. Really opens my eyes to how much we take regular things for granted such as walking and even jumping. For my spec needs kids, when they achieve milestones like being able to jump up with 2 legs, both me and their parents celebrate together and it's such a heartwarming thing to experience. These kids are a really lovely bunch, and all deserve a chance and for people in general to be more patient and less judgemental towards them. Thankful that there is more awareness created through documentaries like these.
I give these parents alot of respect. I have 1 special needs 4 year old with autism and 1 is incredibly difficult let alone 2 or 3. These parents are amazing
This brings tears to my eyes. Kudos to these parents for taking good care of their special needs children. Berat mata memandang, berat lagi bahu memikul 🙏
I love these types of segments as it highlights various life challenges every parents face, that its not always happy and stress free to every families, I applaud the parents for putting so much effort, patience and understanding on raising their children with special needs
All these parents are amazing .it must be so hard. You can feel and see the love. It must be so worrying for the parents to that they will one day be to old to look after them and who will care for the children once they are adults because strangers never can give the same live or care. I wish them happiness and peace and that one day they will get the answers that they deserve and need . Wish there were more people in the world like these amazing humans . I've got a disease where I know I won't make it to 60 and I'm 44 now and I was sat feeling sorry for myself today (was having a painfull and bad day. ). And then I watched this and thought to myself snap out of it .I'm blessed compared to these family's . At least I had 40 "normal" years and thankfully my 3 children are now all healthy and happy adults . So THANKYOU for making me realise my life is no where near as bad as I thought it was . You will have helped and educated so many people with this film and itmust have been hard letting the filmcrew into your personal life . Love and prayers from the UK xx
My son is severely intellectually impaired and is basically a 23 year old man who has the abilities of an infant ..Im exhausted and still taking care of him at home..Sometimes i want to give up but i dont ...My shoes are really hard ones to be in..God has really given me a cross to bare..
Jayden reminds me of my son, Alex, who has cerebral palsy. And Alex also hated the Happy Birthday song, too (although I think he hated balloons much, much more. Even as an adult now he still won't go near or touch a balloon). The twins at the beginning also appear to have CP (it's much more common in twins) and maybe autism. I hope the families find answers soon. Having a diagnose doesn't really change anything, but just being able to put a name to something makes it more understandable.
My eldest son was diagnosed with mild autism and it was very difficult for me to accept it or wrap my head around it. I can't imagine how it would be like to get undiagnosed condition. I have to be thankful/grateful that my son is still able to walk and be independent. My youngest son is also showing signs of autism and I'm sending him to get diagnosed soon. It's not easy dealing with special needs children especially when it's more than one. I sent both my kids to EIPIC at SPD school. I saw a lot of improvement after attending. I just hope that one day, all the parents will have an answer for the conditions of their child. 🙏
@@dreamsofturtles1828 a lot of things can cause autism it can be genetic or come from certain things such as medicines/pills that are taken during pregnancy
@@dreamsofturtles1828 have you looked at the chart showing the number of reported left-handedness over several decades? same thing with autism. There's no conspiracy, just the improvement of technology, resources and awareness to spot the signs of autism and correctly diagnose them.
i salute to all parents that really love, take care of their special need children with pure hearts, meanwhile there are also some bad parents who treat their special ones badly. i know it's not easy to deal with this. all of you are amazing..
Early intervention is so very important. There's a trend in western Europe to keep special needs children in "normal" schools and projects at any cost but while well intended, it puts these kids at an even bigger disadvantage. These kids need more for every milestone than parents can give.
*Well done CNA Insider this is a great documentary hope next can do episode on caring for adult with all sorts of mental illness and also life inside IMH*
These precious children have no control over how they were born and deserve to be treated with all love and kindness, bless the parents and caregivers who take care of their special needs children.
Semoga Allah swt mempermudahkan segala urusan Puan Norah Johari sekeluarga selalu. Amin ya rabb. May these families be blessed with strength in their faith, health and patience in facing challenges of raising these children of heaven.
May God Bless all special needs families and ease our pain and hardships ❤ We can carry this responsibility, all we need is for the general public to be more empathetic and suspend all judgements towards us and our loved ones with special needs ❤
I totally admire these family their strong will and positive mindset. I cannot fully understand in their position all time but I know the experience and see with my own eyes. We shld emphasise them. Stay strong this family May God/ Allah SWT bless you all
my heart cries and happy at the same time, with us parents, who will take care of our special kids when were gone? I had been wondering about it... IM praying that God will give long life for us to to be able to take care of our loving and special kids ;) sending air hugs to these strong parents.. you give me more courage to continue with life and take care of the special needs of my son. GODBLESS. STAY STRONG AND SAFE
I just saw your comment ❤ I had just been crying over a hard day w my two special needs children 😢 I don’t know why just reading what you wrote instantly felt your pain followed by a feeling of comfort because at that moment I felt connected like wow someone knows how I feel too thank you for sharing and God bless you what someone sharing their feelings can do for another 🙏❤️🩹🥹🫶🏻
I'm no doctor but I do work with kids with Autism Spectrum Disorder as a Behavioral Therapist in the United States, and Atira and Seana definitely exhibit signs of ASD. Again I am in no place to diagnose but they should definitely look into it and the different symptoms of ASD. Being nonverbal and also verbal, sensory issues with sounds, and delayed milestones all check the ASD symptoms.
such wonderful and loving parents...may God give you all strength...any disability, mental or physical are so overwhelming for parents...just happy to see, the children are loved and well taken care of...thank you for sharing this video
I have an uncle, who cannot speak, he only makes noises. Still he is very intelligent, he understands us. He also has to wear adult diapers, because he cannot go to the toilet. I do not know what he has, but he is dear to my heart.
These guys look so much like my family but here in the USA. We have the Fragile X gene. I'm sure some of these families do as well. It breaks my heart that not all special needs families are supported based on their needs. We need more support world wide for special needs.
God be with them✝️🙏❤️ the parents calling them not normal breaks my heart, to me they're just normal children who needs help like we all do, although in different ways.
In the USA special education school programs us the IPAD & special non verbal apps to teach students how to verbalize words - allow students to speak through the IPAD. You may want to ask your speech therapist about this form of communicating.
God bless all the parents of children with challenges. May our good God provide all of you with extra strength to soldier on. Just remember that these special people have beautiful minds though some of them cannot articulate their thoughts. May God watch them closely from above, and their undaunting efforts be valued and appreciated by ppl around rhem. God bless all of you.🎉
Wow, I REALLY thought the girls were going to come back with Angelmans syndrome, our cousin has it, and they remind me so much of our Ryan. The good news is the research was initially wrong back when it was called Puppet syndrome. My cousins were told that Ryan would be lucky to make it to his teens. He is currently 45 years old. He too has epilepsy, non verbal, has motor skill delays, he also has diabetes, high cholesterol, and blood pressure. His parents are amazing and take extremely good care of him, measuring food, counting macros, etc. They were told early on that they both carried the genes that cause Angelmans syndrome and all of their children would face the same outcome, so Ryan is an only child.
Amazing documentary! The children remind me of my disabled brother. The twins in particular seem similar to my brother who has Cri Du Chat syndrome. Their parents could test them for that if they haven't already.
I have worked with many kids of different disabilities and my guess for the birthday song is that it's too loud and he's overstimulated. I wonder if he reacts to other singing like that of different songs. The parents are all so strong I commend them! Such a difficult yet beautiful job to have.
The boys in the beginning of the video have parents tried an electric childrens tooth brush with kid flavored paste or nursing homes use a disposable tooth swab it has the tooth paste in the swab and the caregiver nurse cna just dampens it and rubs it along the persons teeth It's very soft like foam and I've seen them in pink and green colors and there's no need to rinse with them either.
Speculating whether or not the cause of the children’s disability is caused by inbreeding is extremely rude and just goes to show how uninformed you all are. First of all, this documentary is based in Singapore, a first world country where inbreeding is extremely rare. Second of all, I see many comments saying that it’s common for Muslims to promote inbreeding. That is false, and what you’re doing is just simply reinforcing negative/harmful stereotypes based on outdated (cultural, not religious) beliefs. Disabilities have various causes. Yes, inbreeding does increase the chances of genetic conditions, but it is not always the case. A simple Google search will tell you that there are many other reasons why genetic conditions like these occur. Instead of speculating about whether or not the parents are related, shouldn’t we be focusing on promoting understanding and acceptance towards these families and individuals?
I was very worried about my brother as some people are against enforced habit making such as holding your child by force and brushing, but I also think it's a good thing to put a strong effort to develop some good habits even if it is hard for both the children and parents
I am also a special care kids got ADHD and Asperger by genetic (only diagnosed when I was P3) and only able to speak and control and not letting my saliva to flow out of my mouth at 5
My brother has MSUD. And he acts the same as the twins. Same facial features. Same walking in tip toes. Same sensitivity to noises, he even slaps his hands the same way. He had seizures and epilepsy as a baby and that led them to test him and they found the genetic issue. Is a mutation in one of 3 genes. And that doesn't let the process of certain lipids which lead to accumulated lactic acid in brain.
I always wondered what happens after or when parents pass away or can no longer care for them??? What then? Will any agency or family member do as much as the parents?? Will they taken care of with as much love?
In the UK the government will look after them. Even when parents are still around the government helps - they have centers and house for them. I have actually worked for one and they get weekly allowances all depending of their capability. Some of them who are able gets a house of course all safety measures are given and a support worker would go check on them everyday.
@nada touma The percentage is much smaller than 50%. People who have children with ASD have a small percentage of having children again with it. Genetic testing determines the cause of it and usually it's not genetics. Truth is one in five boys that are born have ASD... which means just about anyone can have a child with ASD.
you could just try to adopt a child if you want to have a normal child. Or if it is companionship you need, it is good to just adopt a cat. Because cats are really cute. And I think that you will already have your hands full with taking care of 1 special needs kid, I think it is hard to have more children. A cat is lower maintainance than a child, but still provide a lot of play and companionship. It's a risk and reward thing, so don't start crying about depression if you selfishly decide to have more biological children and mess up.
Please Understand I believe brushing his teeth may be extremely painful for him / looking at his body language and the way he reacts/ He can't put this into words / I completely understand how important it is for his health to regularly brush his teeth / Maybe partial or complete tooth extraction may be helpful I understand that may bring a different challenge / but he may have great or extreme tooth gum sensitivity You seem to be extremely loving parents / with great strength and patience
My son has Koolen-de vries syndrome he looks a lot like the twins. My son was a twin but the twin did not survive. My understanding is their is less than 1,000 with this Syndrome in the world.
![Felix "Unfair" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/Oswujxm2Ag0/mqdefault.jpg)
Watch Part 2 of Undiagnosed here: ruclips.net/video/F74OvIBn5po/видео.html
Im dealing with this as well with multiple children.....
I applaud the parents for putting that much effort into brushing their teeth. I’ve seen many caregivers and even staff just refuse to brush teeth because it’s too hard
I see it a lot in our younger kiddos working with special needs where they have really expensive dental needs cause they can't tolerate the sensory input in mouths and are frequently biters so doing it is potentially dangerous. I think this family is doing amazing because that is such a challenge!!
I have to brush my son's teeth who is also 4 and autistic. I always worry I don't get them good enough but I try
I have a non verbal son, it was always difficult to brush his teeth but since he likes when I tickle him, I now say lets tickle your teeth clean. making it more fun & now we have no issue allowing me to "tickle" his teeth 8 yrs old no issues with any of his teeth so far luckily cause just a regular dental appointment is stressful enough cannot imagine the stress of having actual dental work done more than just a cleaning.
Yes my daughter has Down syndrome and I make this a routine plus I’m a dental assistant I see a lot of patients with special needs and there teeth 😢so yes it’s a must
That’s stupid. Brushing my dog teeth is hard af but i still do it. So for PEOPLE?? Do your job as a parent/caregiver
Hello, my brother showcases a lot of the same behaviours as the twins in this documentary: developmental delay, walking on tiptoes, sunken face, gut issues, chronic constipation, cannot gain weight. My parents never looked into genetic testing and just accepted that he was meant to be on this earth as he was. Things only get harder as he grows older and it truly takes a village to take care of an adult child. The government helps but no one can truly give the care a family can, especially strangers. These parents are doing amazing, I commend them for the love and care they give to their children, you will be rewarded in the quality of life your children will have.
Autism.
👍👌💯🌻
Have you ruled out autism?
Hello Nhaila! My younger brother also has almost the same issues as the twins. We have had "diagnosises" in the past that were then taken back by the same doctors. He is now 21 this year, and both of our parents have passed away. If you would like to ever reach out and speak more with me, let me know! I want to hear more about your brother ❤️
That is love in all it's hardest moments.
Every parent in this video has devoted their lives to their children and they’re overcoming the stigma that still exist especially in some cultures. But these parents are so devoted to their children.
It seems to me that the majority of these special children are blessed with special parents.The parents are incredible❤
I highly respect these selfless parents for treating their children with so much love & care, not giving up hope on them. It made me tear up when they’re all so patient towards their children. Praying for the best 🙏🏻
I knew Jayden’s sister Jeslyn in primary school. We were friends and she always knew how to made people smile. I have seen her family before at school events. Bless her and her family. She was so nice. We were classmates and I really miss her
Jayden walks so well in the pool. It's amazing really. All these children have one thing in common,and IMO the most important, they have loving people looking and working with them.
Lies again? Special Agent National Service
@@NazriBhuh???
I wish the world was chock full of the kind of people this family is. What calm intelligence.
These children are very lucky to have such loving and selfless parents.
That's should be regarded as normal parenting. Tragic that it's regarded as special.
I work with special needs kids by teaching them movement through Parkour. Really opens my eyes to how much we take regular things for granted such as walking and even jumping. For my spec needs kids, when they achieve milestones like being able to jump up with 2 legs, both me and their parents celebrate together and it's such a heartwarming thing to experience. These kids are a really lovely bunch, and all deserve a chance and for people in general to be more patient and less judgemental towards them. Thankful that there is more awareness created through documentaries like these.
I give these parents alot of respect. I have 1 special needs 4 year old with autism and 1 is incredibly difficult let alone 2 or 3. These parents are amazing
*a lot
This brings tears to my eyes. Kudos to these parents for taking good care of their special needs children. Berat mata memandang, berat lagi bahu memikul 🙏
I love these types of segments as it highlights various life challenges every parents face, that its not always happy and stress free to every families, I applaud the parents for putting so much effort, patience and understanding on raising their children with special needs
All these parents are amazing .it must be so hard. You can feel and see the love. It must be so worrying for the parents to that they will one day be to old to look after them and who will care for the children once they are adults because strangers never can give the same live or care. I wish them happiness and peace and that one day they will get the answers that they deserve and need . Wish there were more people in the world like these amazing humans . I've got a disease where I know I won't make it to 60 and I'm 44 now and I was sat feeling sorry for myself today (was having a painfull and bad day. ). And then I watched this and thought to myself snap out of it .I'm blessed compared to these family's . At least I had 40 "normal" years and thankfully my 3 children are now all healthy and happy adults . So THANKYOU for making me realise my life is no where near as bad as I thought it was . You will have helped and educated so many people with this film and itmust have been hard letting the filmcrew into your personal life . Love and prayers from the UK xx
My son is severely intellectually impaired and is basically a 23 year old man who has the abilities of an infant ..Im exhausted and still taking care of him at home..Sometimes i want to give up but i dont ...My shoes are really hard ones to be in..God has really given me a cross to bare..
I have you and your son in my prayers I hope things get less stressful and he learns the most from you🙏🏾
Being a care giver is really tough. U guys are doing a great job.
I just caught myself smiling when he was able to brush his own teeth!!
Prayers for all the parents here and may all the kids show progress and strength.
Jayden reminds me of my son, Alex, who has cerebral palsy. And Alex also hated the Happy Birthday song, too (although I think he hated balloons much, much more. Even as an adult now he still won't go near or touch a balloon). The twins at the beginning also appear to have CP (it's much more common in twins) and maybe autism. I hope the families find answers soon. Having a diagnose doesn't really change anything, but just being able to put a name to something makes it more understandable.
Some really competent and dedicated parents here. It's heartening to see special needs kids in the care of such devoted parents
Bless these kind and loving parents
My eldest son was diagnosed with mild autism and it was very difficult for me to accept it or wrap my head around it. I can't imagine how it would be like to get undiagnosed condition. I have to be thankful/grateful that my son is still able to walk and be independent. My youngest son is also showing signs of autism and I'm sending him to get diagnosed soon. It's not easy dealing with special needs children especially when it's more than one. I sent both my kids to EIPIC at SPD school. I saw a lot of improvement after attending. I just hope that one day, all the parents will have an answer for the conditions of their child. 🙏
I know so many people with autistic kids now its crazy. What is going on? So many ! I wish you all the best on a difficult road. 🙏🏽
@@dreamsofturtles1828 a lot of things can cause autism it can be genetic or come from certain things such as medicines/pills that are taken during pregnancy
@@celestea_. wow... Ur comment really helps in the suffering of the poster. Blaming the parents for the condition of their child...😅
@@bry120 autism is genetic so yes it is quite literally parents fault even if it was not their intention
@@dreamsofturtles1828 have you looked at the chart showing the number of reported left-handedness over several decades? same thing with autism. There's no conspiracy, just the improvement of technology, resources and awareness to spot the signs of autism and correctly diagnose them.
i salute to all parents that really love, take care of their special need children with pure hearts, meanwhile there are also some bad parents who treat their special ones badly. i know it's not easy to deal with this. all of you are amazing..
Thank you for always letting us learn something new and not take things for granted in life.. great program❤
God bless these parents. I hope they can get some help so they can have breaks. So hard being on 24/7.
Can't wait for the next episode. I pray to each family to finally have the answers they've been looking for
Without parents we r zero..🎉🎉❤❤
*So much respect to the parents and may God bless this beautiful families*
Respect and salute to these great parents 💪💪💪❤❤❤
Early intervention is so very important. There's a trend in western Europe to keep special needs children in "normal" schools and projects at any cost but while well intended, it puts these kids at an even bigger disadvantage. These kids need more for every milestone than parents can give.
Bless those sweet parents and their children .
these parents are so amazing and loving
*Well done CNA Insider this is a great documentary hope next can do episode on caring for adult with all sorts of mental illness and also life inside IMH*
These parents are so strong!!!
God bless these devoted families.
wow! This video spreads so much awareness. Also respect to the parents
These precious children have no control over how they were born and deserve to be treated with all love and kindness, bless the parents and caregivers who take care of their special needs children.
Semoga Allah swt mempermudahkan segala urusan Puan Norah Johari sekeluarga selalu. Amin ya rabb.
May these families be blessed with strength in their faith, health and patience in facing challenges of raising these children of heaven.
why only pray for one family ?
@@martinh619 can’t you read?
@@martinh619 in her msg she already wish may these family..: perhaps you missed it
May God Bless all special needs families and ease our pain and hardships ❤ We can carry this responsibility, all we need is for the general public to be more empathetic and suspend all judgements towards us and our loved ones with special needs ❤
I totally admire these family their strong will and positive mindset.
I cannot fully understand in their position all time but I know the experience and see with my own eyes.
We shld emphasise them. Stay strong this family May God/ Allah SWT bless you all
my heart cries and happy at the same time, with us parents, who will take care of our special kids when were gone? I had been wondering about it... IM praying that God will give long life for us to to be able to take care of our loving and special kids ;) sending air hugs to these strong parents.. you give me more courage to continue with life and take care of the special needs of my son. GODBLESS. STAY STRONG AND SAFE
As someone with no children, I found myself just praying for these poor babies (and parents) life is hard enough.❤
They are really good parents
They took good care of them
Being parents is a very hard task... God Bless All the Parents in the world... 😊
😪 people have no idea how hard this is makes you cry yourself to self every night
I just saw your comment ❤
I had just been crying over a hard day w my two special needs children 😢
I don’t know why just reading what you wrote instantly felt your pain followed by a feeling of comfort because at that moment I felt connected like wow someone knows how I feel too thank you for sharing and God bless you what someone sharing their feelings can do for another 🙏❤️🩹🥹🫶🏻
I respect the parents to still show love and stay strong for their family.
I'm no doctor but I do work with kids with Autism Spectrum Disorder as a Behavioral Therapist in the United States, and Atira and Seana definitely exhibit signs of ASD. Again I am in no place to diagnose but they should definitely look into it and the different symptoms of ASD. Being nonverbal and also verbal, sensory issues with sounds, and delayed milestones all check the ASD symptoms.
Such a loving family .. God bless you all.
such wonderful and loving parents...may God give you all strength...any disability, mental or physical are so overwhelming for parents...just happy to see, the children are loved and well taken care of...thank you for sharing this video
God bless these parents! I hope they find a solution for this syndrome in the future so these kids can have a life. 😢
Would love to see a part 2!
ruclips.net/video/F74OvIBn5po/видео.html
Salute to the parents...
Great job to the parents and caregivers coming forth to share their stories! Can learn a lot through their experiences. :)
Mashallah may allah bless this family tremendously
I have an uncle, who cannot speak, he only makes noises.
Still he is very intelligent, he understands us.
He also has to wear adult diapers, because he cannot go to the toilet.
I do not know what he has, but he is dear to my heart.
I am glad you research also.
Best of luck to all the families taking it one day at a time 🧡
Got to think that these parents must be living in survival mode constantly.
I have a brother who is special child. It's very tough but at the same time fulfilling as well to take care of those childs.
Sweet boys! They are so blessed❤
God Bess you all are doing great
Ahh so sad for these children. Much love to these families. ❤
Stay strong parents and thanks for sharing
Such beautiful families.
These guys look so much like my family but here in the USA. We have the Fragile X gene. I'm sure some of these families do as well. It breaks my heart that not all special needs families are supported based on their needs. We need more support world wide for special needs.
God be with them✝️🙏❤️ the parents calling them not normal breaks my heart, to me they're just normal children who needs help like we all do, although in different ways.
Bless your kids🙏🙏🙏
In the USA special education school programs us the IPAD & special non verbal apps to teach students how to verbalize words - allow students to speak through the IPAD. You may want to ask your speech therapist about this form of communicating.
Wonderful parents ❤
God bless all the parents of children with challenges. May our good God provide all of you with extra strength to soldier on. Just remember that these special people have beautiful minds though some of them cannot articulate their thoughts. May God watch them closely from above, and their undaunting efforts be valued and appreciated by ppl around rhem. God bless all of you.🎉
Sorry, may they be happy ❤
I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
Psalm 139
اللهم لك الحمد على النعمة ألي ربي أنعم بها علينا. قطعو قلبي بس مأجورين بإذن الله🥺🤍.
strong families 💪🏼
super inspirational
Wow, I REALLY thought the girls were going to come back with Angelmans syndrome, our cousin has it, and they remind me so much of our Ryan. The good news is the research was initially wrong back when it was called Puppet syndrome. My cousins were told that Ryan would be lucky to make it to his teens. He is currently 45 years old. He too has epilepsy, non verbal, has motor skill delays, he also has diabetes, high cholesterol, and blood pressure. His parents are amazing and take extremely good care of him, measuring food, counting macros, etc. They were told early on that they both carried the genes that cause Angelmans syndrome and all of their children would face the same outcome, so Ryan is an only child.
Salute to the parents
Beautiful family
Amazing documentary! The children remind me of my disabled brother. The twins in particular seem similar to my brother who has Cri Du Chat syndrome. Their parents could test them for that if they haven't already.
I was wondering, if they are undiagnosed, do they qualify as disabled?
Got bless these beautiful families to help them overcome the obstacles in life.
I have worked with many kids of different disabilities and my guess for the birthday song is that it's too loud and he's overstimulated. I wonder if he reacts to other singing like that of different songs. The parents are all so strong I commend them! Such a difficult yet beautiful job to have.
Stay strong!
The boys in the beginning of the video have parents tried an electric childrens tooth brush with kid flavored paste or nursing homes use a disposable tooth swab it has the tooth paste in the swab and the caregiver nurse cna just dampens it and rubs it along the persons teeth
It's very soft like foam and I've seen them in pink and green colors and there's no need to rinse with them either.
All loving families happy their children have them
no
we had the same problems proud to you better than us. hope we can better and better
May the God bless them ❤
Speculating whether or not the cause of the children’s disability is caused by inbreeding is extremely rude and just goes to show how uninformed you all are. First of all, this documentary is based in Singapore, a first world country where inbreeding is extremely rare. Second of all, I see many comments saying that it’s common for Muslims to promote inbreeding. That is false, and what you’re doing is just simply reinforcing negative/harmful stereotypes based on outdated (cultural, not religious) beliefs. Disabilities have various causes. Yes, inbreeding does increase the chances of genetic conditions, but it is not always the case. A simple Google search will tell you that there are many other reasons why genetic conditions like these occur.
Instead of speculating about whether or not the parents are related, shouldn’t we be focusing on promoting understanding and acceptance towards these families and individuals?
I find the comment about inbreeding dumb.
But you being butthurt is even funnier. LOL.
When I saw Jayden's new room without a screen on the window - ohh! that can be dangerous!
I was very worried about my brother as some people are against enforced habit making such as holding your child by force and brushing, but I also think it's a good thing to put a strong effort to develop some good habits even if it is hard for both the children and parents
I am also a special care kids got ADHD and Asperger by genetic (only diagnosed when I was P3) and only able to speak and control and not letting my saliva to flow out of my mouth at 5
My brother has MSUD. And he acts the same as the twins. Same facial features. Same walking in tip toes. Same sensitivity to noises, he even slaps his hands the same way. He had seizures and epilepsy as a baby and that led them to test him and they found the genetic issue. Is a mutation in one of 3 genes. And that doesn't let the process of certain lipids which lead to accumulated lactic acid in brain.
Diet is a big issue due to lipids not being process. But sadly cognitive delay is a part of it.
I always wondered what happens after or when parents pass away or can no longer care for them??? What then? Will any agency or family member do as much as the parents?? Will they taken care of with as much love?
Nope
In the UK the government will look after them. Even when parents are still around the government helps - they have centers and house for them. I have actually worked for one and they get weekly allowances all depending of their capability. Some of them who are able gets a house of course all safety measures are given and a support worker would go check on them everyday.
My son is of special needs. He is one of 300 kids with the syndrome. I'm worried if we have a second kid. That my child's sibling would be affected.
Maybe genetic testing can help
Usually it is over 50% chance that the other child will be too. I have an ASD kid and we stopped there.
Hey, man. Wish you strength and peace, I hope your son is well and you and your partner stay in good health.
@nada touma The percentage is much smaller than 50%. People who have children with ASD have a small percentage of having children again with it. Genetic testing determines the cause of it and usually it's not genetics. Truth is one in five boys that are born have ASD... which means just about anyone can have a child with ASD.
you could just try to adopt a child if you want to have a normal child. Or if it is companionship you need, it is good to just adopt a cat. Because cats are really cute. And I think that you will already have your hands full with taking care of 1 special needs kid, I think it is hard to have more children. A cat is lower maintainance than a child, but still provide a lot of play and companionship.
It's a risk and reward thing, so don't start crying about depression if you selfishly decide to have more biological children and mess up.
This happens all over the world, not just Singapore
Gosh this is a nightmare. I feel so bad for the family....
As time goes by, the parents will get old. Who will care for these children like how their parents took care of them?
The government
Sibling (if they want) or prolly government
What plans they have in place isn't your business
Please Understand I believe brushing his teeth may be extremely painful for him / looking at his body language and the way he reacts/ He can't put this into words / I completely understand how important it is for his health to regularly brush his teeth / Maybe partial or complete tooth extraction may be helpful I understand that may bring a different challenge / but he may have great or extreme tooth gum sensitivity You seem to be extremely loving parents / with great strength and patience
Either take it or leave it to rot ?
Is there part 2 please?
Seana and Atira’s mom probably gets abused as shown by 14:22, So we can guess where the main problem came from.
My son has Koolen-de vries syndrome he looks a lot like the twins. My son was a twin but the twin did not survive. My understanding is their is less than 1,000 with this Syndrome in the world.
Wow! Jayden may have the same syndrome.
I have a son who has special needs un diagnosed and very frustrating not to have a diagnosis
I think you have an undiagnosed retardism