I Can't Keep Going Like This!
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- Опубликовано: 4 янв 2025
- 🎦 About This Video:
I can't keep going like this. I've been struggling to breath for over a week and most of my nights have been far from restful. I need to find a solution, but there doesn't really seem to be one available at the moment.
▶️ About This Channel:
Christmas always reminds me of my grandmother because we used to spend it with her when we were young. It's nice to be reminded of her kindness and generosity and all the good times we had together.
MY story.
I wasn't sure what that was until I was diagnosed with STAGE 4 Alveolar Soft Part Sarcoma (a SUPER rare type of cancer for which there is NO CURE).
I decided to embrace my motto of Living Out Loud and started sharing my journey in vlog format.
This is my story. Real. Raw. Unfiltered.
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#cancer #cancervlog #stage4cancer #cancerjourney #cancerstories #cancerrecovery #incurablecancer #sarcoma #tumor #inCUREable de
Get in touch with the palliative care team. You can still stay at home. Don’t go through this on your own. Sending you lots of love and light. 💙💙✨✨
I work for hospice. They could definitely help manage your symptoms. And improve your quality of life. ❤
I believe he's still in treafment.
@@JenniferCovey-sv7ol do they take patients in ad hock .Or are there talks and meetings before admission.
Hey on hospice to get the help they can provide. It is truly amazing the things they can do to help not even mentioning the support you need, we all will need, during these times.
Love and light sweet man.
Please do not choose suffering more than you need to. Please.
Coughing, pain and struggeling to breath, especially when lying down, often means fluid in the lungs. A normal complication when you have cancer in the lungs. If thats the case, they can drain it out in the hospital❤️ hope you’ll get help and relief soon!!!
Why won't you please please get the relief you do much deserve to have from all that with hospice ❤ God bless the child of him that you are ❤
I pray for all people who are sick asking for healing and there suffering and pain be relieved God bless you my friend.
I pray that you will get hospice care, Guillaume. I’m sure when you talk with your team on Monday, they will put it in place for you. Palliative care nurses are the best, I’ve heard, and I believe they can come in to see you at home. It is hard to see you suffering and we all want the best for you. Actually, call your contact nurse today and let her know. Praying for you every day. ❤🇨🇦🙏
Yes!! I hope you do this.
The pain in your chest could be from fluid in your lungs. In that case, getting them drained could provide some relief.
I watch a few people, jenny apple had lung cancer, she was on oxygen constantly, she had a portable tank and pumped in at home, she had hospice at home, there is no need for you to be suffering the way you are, that's the whole point of hospice, so you don't have to put up with all this suffering, please please look into hospice, it may help you have more time but definately you will be more comfortable and be able to rest xx
Guillaume is in Canada, is he not? Hospice care is not the same here.
G , if you don't want hospice , what about palliative care & oxygen ? I'm so sorry you're feeling so badly. Anyway, you need help, to go through this alone is not good at all
I loved Jenny R.I.P Jenny ❤❤
❤❤❤❤ Jenny was and always will be my hero@@myahowlett6995
@@caffeinatedowl220We absolutely do have hospice care in Canada.
G, this is ridiculous! Even I found help on Boxing day in the valleys of Wales!! I got ventolin, antibiotics and steroids (for the wheeze), I had worst chest infection of my life, couldn't breathe, was terrifying, and I've had many awful nights on my own cancer journey, but this was a whole new level. Get to the hospital, several comments mention fluid, you may need aspiration. Get to hospital!!! ❤
@@OfficialWelshWoman8309 My friend lives in Wales, Carmarthenshire. Her husband had to wait 10 hours in AE before being seen. He’d been having severe pains in kidneys.
Please consider hospice care (if possible), if it get's worse. You don't have to go through this alone.
If you’re not getting treatment for your cancer, you can go on hospice care and they can do a lot to make you comfortable
From Australia here. Everyone is mentioning hospice, I guess that's equivalent of palliative care here. I don't know how accessible it is there but over here they are amazing and their primary job is to keep you comfortable and as pain free as possible. You shouldn't be suffering like this. Your doctor, called General Practitioner here (not the specialist) should be networking with palliative care, counsellors and any other health care professionals that you may need. Well, that's what happens here. My thoughts and best wishes are with you ❤
Please take advice and see about hospice care.
I’m not sure what it’s like there but we also have nurses coming to the home to help and carers. Please speak to someone and get the help you need.
Wishing you peace ❤
You can brother, you're an incredibly strong person. May God ease your suffering.
Please consider hospice. My husband had the most wonderful care from those Angels on Earth. They were WONDERFUL.
He cant get further treatments if he chooses hospice. It is always treatment or hospicecare insurancewise.
Im so sorry you're struggling. I'll say a little prayer for you. ❤️❤️❤️
😢Please, please seek hospice care G. They will give you the support both mentally and physically you need at this point. Braving this awful disease on your own is too much. I beg you to reach out for help. We all love you and care sooooo much. ❤❤❤❤❤❤🤗🙏🙏🙏🙏🙏
@@OfficialWelshWoman8309He reads them he just doesn’t answer them.
I feel for you.! You may feel alone but we are all here . Just keep talking to us. I hate the suffering mankind goes through. I hate that right now YOU, the very special you, the unique once in a lifetime you, are suffering.
Sorry to hear you so sick. God give divine healing over him
I'm so sorry for your pain and discomfort. Please, please G...you are now needing hospice care. You needn't go through all this on your own. There are some wonderful trained nurses to assist you during this period of time. ❤
He cant get further treatment if he chooses hospice. It is always treatment or hospicecare insurancewise.
I am so sorry you're suffering right now. I pray that things will get easier for you & you get a little break. And thank you for sharing your experience with us. It's so important you share this journey.
This sucks. You are right. You don’t always have to optimistic. This is how you feel right now. Give yourself a break and don’t expect anything from your self ❤
Pls get the help you need. Even during the holidays there should be help available. At least here in Singapore patients arent left in the lurch like that. There is a support system set up so patients know how to access help. I cant understand how in Canada that is not the case. At least your symptoms should be alleviated.
I'm sorry you're going through this. May God help you.
Thank you for your honesty. I have stage 4 breast cancer and this helped me
Matey, I can’t understand why you’re not in hospice care. Love and light 🙏🏻❤️🇦🇺
Because he's still getting treatment for his cancer (immunotherapy).
Yes, Hospice! Please consider Hospice care-they can really help you feel more comfortable and provide support.
He cant get further treatments if he chooses hospice. It is always treatment or hospicescare insurancewise.
Palliativecare is the way to go.
@@davebohm464 Yes, good point. Palliative for sure.
its crazy to see your videos from a year ago. you looked well almost 8 months ago. My father had cancer and I lived with him until he died. For the first year you couldn't tell the difference but when he switched from radiation to chemo he changed almost overnight. god bless. hang on, he seemed to go peacefully if that helps at all.
Sorry you are going through this struggle! I’m binging on RUclips while recovering from my second hip replacement in six months. Not getting comfortable for a good night’s sleep is NOTHING compared to your situation……I choose to be uncomfortable for a better long range outcome. The hopeless, helplessness you experience is unfathomable for me to understand. Just know there are those listening & trying to hear you! ❤
I'm sorry......God be with you in this suffering.
IT'S LIKE WE HAD A TELEPATHY TODAY. I'VE BEEN THINKING THIS SINCE THE MORNING. I WAS LOOKING AT MY SLEEPING WIFE AND I FELT A BURDEN FOR HER AND MY CHILDREN,FROM THE MOMENT I CAN'T OFFER THEM ANYTHING BECAUSE I'M CONTINUOUSLY SICK AND NOTHING WILL CHANGE. WHAT'S THE POINT OF LIVING AND MAKING THEIR LIFE DIFFICULT,I STARTED CRYING AND SHOUTING I CAN'T STAND THIS SITUATION ANYMORE, IT'S A HORROR THAT FEW UNDERSTAND,I WENT TO MY PARENT'S HOUSE AND STARTED CRYING TO MY ELDERLY PARENTS, I TOLD THEM I CAN'T STAND THIS LIFE ANYMORE..THIS IS NOT LIFE BUT A HORRIBLE TORTURE,I COMPLETELY UNDERSTAND YOU.. DARK EVERYWHERE AND YOU CAN'T SEE LIGHT FROM ANYWHERE, AND THE WORST YOU HAVE NOTHING TO HOPE TO COME AND CHANGE THE SITUATION,I AM IN YOUR SHOES EVERY DAY MY BROTHER..JUST DESPAIR AND PAIN EVERY DAY
I'm praying for you ❤ look to christ Jesus ❤
🙏🙏🙏
I am so sorry, prayers sent. 🙏🙏
Prayers don't help. Not for me. Cancer came back 3xs. I'm done. Chemo,radiation does nothing. They know this. Immunotherapy is a joke. I'm going home.
@@ShirleyJackson-d9k I UNDERSTAND YOU. I AM SO SORRY FOR WHAT YOU ARE GOING THROUGH. MANY TIMES I THINK THE SAME, NOTHING HELPS ANYMORE, NO ONE UNDERSTANDS HOW MUCH I AM SUFFERING AND WHAT A HELL EVERY DAY IS, BUT I WOULD LIKE YOU TO ANSWER ME ABOUT SOMETHING YOU SAY
I hope you get your appointment soon and the doctor can help in some way. God bless you.
Hey G, hospice doesn't mean you're giving up. It can just be temporary.
He cant get further treetment if he chooses hospice. It is always treatment or hospiscare isurancewise.
@@davebohm464 He can't realistically have further treatment anyway .. his disease is too advanced.
@davebohm464 palliative treatments (like he's already having) can still be provided in hospice. The goal of the treatment he's having isn't curative at this point.
@@davebohm464 Palliative treatment is different. It's to maintain quality of life, not cure someone.
@@pm2886 yeah mother received paliative care at the last year. What i mean is hospice directly. Usualy you cant enter a hospice without signing i waiver that you dont want further treatment. Insurance companies are hard there. Paliative care on the other hand is def somthing he should seek
Oh how I wish I could give you a hug. Praying for you daily so that your journey however and whenever it ends will be peaceful. Please don’t do this alone. 🙏🏻🙏🏻🙏🏻
Prayers 🤲 for healing 🙏
So sorry you have to deal with this.
It seems as though the cancer is worsening. My mom was in hospice care for a year and a half. It does not limit you to the bed or hospital. You are free to do everything that you are doing now. They are experts with pain and comfort management.
De tout cœur avec toi.garde la foi❤
Please know that you are in my prayers 🙏🏻
Connect with hospice. It all sucks! We are with you! ❤️🐇😇
I agree , hospice G it's the only solution now.❤❤
I am so sorry, silent watcher here. I feel so guilty for moaning about my life seeing what you are going through. I wish you all the strength you need to get through this, hang in there ❤
God bless you dear good man. Are you involved in a palliative care/hospice situation? You must get help with your pain levels. I’m so sorry you are suffering to the point of exhaustion. Can you get family support to advocate for you? I’ll pray for you. You have love in your heart and your surrendering to God is a prayer of hope in its own way. I send you all the love in the universe.💜✝☮✝💜✝☮✝💜✝☮✝💜✝☮✝💜✝☮💜
Please look into hospice. They will be able to make you more comfortable as your symptoms progress. ❤
I am sorry you are suffering and hope you get some relief. I've been watching your videos only a short time so forgive the question but where is your wife in all this? Why is noone apart from god by your side in all this? Sending love and a gentle hug. X
In Nicaragua. She’s not been able to obtain a visa.
Oh right thats unfortunate. @@karyne826
@@karyne826 She doesn't need one to visit for a few weeks, obviously. Why is she REALLY not coming?
The great mystery.
@ Actually she does. You need an embassy visa to even visit Canada if you have a Nicaraguan passport. Only about 50 Countries can freely visit for up to 6 months.
I'm so sorry you are going through this, l have only just started watching your videos, my heart goes out to you, l wish l could help you, but l can't. Hugs Hugs Hugs sweetheart
Please consider hospice G, because they can help you with your breathing issues ans sleep. Love from United States.💙
Sending prayers 🙏 love and hugs
I agree with those who have been urging you to enter hospice. They're trained in death and dying. But I think you don't want to believe that you are dying, so you haven't taken advantage of the comfort and care that's available. Remember that according to your doctors, you should be decreased by now. Therefore, likely, you have been going through the dying process. That's why everything has been so much tougher for you.
Please take advantage of hospice care or ask the Lord to take you. After, you receive christ as your personal lord and savior. We never have to kill ourselves. God brought us into this life he can be asked to take us out of it.
Also, just because a person enters hospice doesn't necessarily mean they'll pass immediately. I'm from the United States. We just lost our 39th former president. President Jimmy Carter. He died at 100 years old. A age most of us will never reach. Anyway, he was in hospice for the longest time! 2 years? Or close to it. There may be people who have lived even longer.
Why suffer more than you have to??
We're all still praying for you.
You are well say,
In Canada, our health care has COMPLETELY fallen apart. To the point of people passing in the emergency room, etc. There are thousands of people just waiting for oncology appointments , specialists, and any type of aftercare. He really needs to advocate for himself ,even then, they send you on your way. We are relying on something like 30% of the 100% of the demand. It's absolutely disturbing here. There are not enough care workers. Not enough budget . The emergency room just sends you away. He has a care team but spread SOOO thin. Some people are waiting months just for a CT scan. He solely only has his palliative team, which is reduced more than half of the demand. It's happening in the UK, too. We are in a severe state of stagnation. We're lucky just to have the ones we have working now, and those health care and service providers are working double overtime. The pandemic shut things down as well, and we are COMPLETELY backlogged and with seniors' demand as well. It's literally sink or swim. We're losing our specialists to the private industry now. Canada is not what it used to be or what people think it is. 😕
To my fellow Americans, read Mandy’s post above…this is socialized medicine at its finest. I live in Hawaii and also suffer with stage 4 non small cell lung cancer, my doctors and cancer team have NEVER left me on my own suffering. For a cancer patient to be left like this, in the condition he is in, is a disgrace!
@@hawaiipommom.1306 I live in a country with even more socialised medicine than Canada .. and we also don't "leave cancer patients alone to suffer". Everything is provided, and provided as a matter of urgency. There is no "I can't get in to see a doctor because Christmas". That doesn't happen.
@@hawaiipommom.1306 yeah as long as you got the 300k for treatment they won't let you die
Guillaume, hospice! ❤
If you were on pallative care they have direct access to your doctors even during holidays
I too am so sorry for your awful cancer, pain changes everything...........incredibly hard.
I too have terminal Cancer and I believe it's in my bones of my spine and my back hurts and my head is literally in constant pain. I take nothing stronger than Aleve for the pain. My point is we are both suffering me cause I'm scared to go to the ER but you have a concrete diagnosis why don't you take hospice and see if there's anything they can do for you to make you more comfortable. You do have an option to stop your pain. Are you afraid to die cause I am but I believe in God and Jesus and I shouldn't be afraid. I know I'm saved and I have repented but I'm afraid of the minute my life ends and how it's going to feel. Please let me know what your thoughts are.
If you take some gummies you might get some quality sleep. It's the only thing that helps my husbands nausea, sleep and what I call appetite encouragement. Love from Cali
Many people feel Hospice is an end of life option, however that is not true. They truly want you to be able to graduate off hospice. They have amazing alternatives for breathing relief, anxietyand sleeping aids. We waited way to long to use hospice. It changed my husband's quality of life dramatically. There is also a palliative care. And that might be a more suitable option. Prayers to you.
When you are in a place of suffering it is hard to trust in God or anyone else for that matter so don’t fell like you are Wong by not being able to trust because when suffering like you are it is hard to try to survive at this point so it is ok , it isn’t because you don’t want to trust in God or anything it is that just you are exhausted just trying to deal with the pain , I am praying for you Yes I wish I could give you a hug and let you know we are all rooting for you, Love you❤️❤️
U have fluid in ur lungs. That will cause shortness of breath, persistent cough and chest pain. Those r text book signs and symptoms of pneumonia secondary to Lung C. If u don't wanna take the gummies, ask ur oncologist for Marinol. It's a small pearl like pill that works similarly. Often given to lung C patients. It helps w appetite, pain, anxiety and insomnia.
His cough sounds to dry to have fluid in them.
@maryann823 it depends if u hv bacterial or viral pneumonia. Also in early stages it can be dry. I just think he should get it checked out especially bc he's having shortness of breath.
Hi,i am following your struggle and fight against cancer ,you Seem to be a very tough guy,what about a Palliativ treatmeant in a Place,where you feel as fine as possible or to stay AT Home,with nurse doctors, who Support you and give you painkillers and so on ,i wish you the best ,whatever will Happen,everyone Has all rights to get Support, understanding, i will pray for you ,i am from austria ,vienna ,kindest regards ,😢😊❤Martina
Why no oxygen?
Every chest xray I've had for past two years after covid not one doctor ever told me the end of my left lung collapsed. It's flat. On top of me having dysplasia.
G, try the gummie. I had a friend that it did indeed help. Also number 1 is to keep talking to the lord. He hears you & he knows the heart and our suffering. As the Bible states that we should rejoice in our suffering because we are partaker’s of his sufferings when he was crucified. I cannot imagine rejoicing in suffering as a human. However, I trust him.
Oh G I’m so sorry. 😢
I live in the UK. There is no way a guy like you would be ''left'' like this. Shout as loud as you can to them! Its heartbreaking.
Depends where you live. The NHS/GP services In England are struggling.
@@karyne826 It seems that because they have universal health care, they do not care enough about people in his condition. In the USA he would have had a thoracentesis to drain the fluid from his lungs and his life wouldn’t be so difficult.
We have universal health care in the UK. Cancer patients aren't left like this.@andith
@@communist-pingu It seems that in Canada they do it. In the USA they wou,ld hava had taken care of the fluid accumulated in the lungs that cause him so much suffering. I am not a doctor, but I have seen other cases and it seems it is very common in people with cancer.
@@communist-pingu Depends where you are.
Im sorry, G .
I hate that you’re in so much discomfort mentally and physically! Don’t you give up though. Try the gummies. It could possibly help your anxiousness and your appetite. It should definitely relax you so that you could possibly get some much needed sleep. Know you are thought of often❤️❤️ and prayers coming your way. I hate that you’re alone so much. I wish your wife could be there with you❤️
God bless 🙏❤️ im suffering with my health issues as well and yes the past couple weeks it has been impossible to get health care from my doctor's 😢......
Are you in Canada too?
Im in Columbus Ohio
@@maryangel2701 I hope things get back to normal soon
Nice to see you again ❤
Wish you a good sleep ❤
Just thinking, why not buying a pulse oximeter that measures the oxygen in your body and based on that , depending on the result you can ask for an oxygen machine to bring home. The pulse oximeter does not cost too much, and is very useful, so you can inform the doctor that your oxygen is low.
You are excellent suggestions
That’s the question of the day. No oxygen??
@@maryann823 I am. not a doctor, but if he has problems breathing, logic says that there is not enough oxygen going into his body and his organs that need it to function. I have family members with asthma problems and oxygen always come back low and they have to go to hospital to have oxygen
@@mindy2215 What I meant and I did not relay it correctly, is that he should have an oxygen tank at home. I don’t understand why he doesn’t, if cancer is in his lungs.
Keep fighting the good fight. I'm also a cancer fighter with stage 4 esophageal cancer. I've been fighting for over 2 years now and just like you I've been documenting my journey and life.
❤
Get all the help you need
Eat the gummies, lay on the floor and receive the messages that come to you 😭💖 so sorry you’re feeling this way. I wish it was easier
Please have a hospice nurse come into your home
My cat who has cancer is getting better care palliative wise. ❤
You’re making a mistake by suffering this much in such a critical period. You should go to the hospital and get some breathing support
Seems there is no even an Oximeter in his home to see his oxygen levels. Unbelievable. From the beginning of his journey it is obvious that there is no serious intention to fight.
@@George-yr5pc He doesn't even have a scale at home to monitor his weight...
I just found your channel. I don’t know what kind of c you have. When my spouse was suffering with lung c this is what helped. Alprazolam-. Anti anxiety to relax him for breathing issues. Also sleep medication. He was on ambien. But you need something to help you sleep. Demand palliative help.
Alveolar soft part sarcoma that started in his thigh and spread to lungs, liver, and brain.
I hate going to the hospital but sometimes you have to go.
Guillaume, pray❤
If you were on hospice care you would get the help you need right away.
🙏 🙏
If you would put some people around you, you would not suffer near as much. It’s hard to feel sorry for someone who refuses to do that.
G, I am sure if you go to the ER, there will be an oncologist on duty or even a GP that could give you oxygen. I doubt they need to know your full history to give your oxygen until your team is back. You need to try. I know you said you don't have the energy. Please call the trauma unit if you can.
You might need your lungs drained. Am taken aback that hasn’t come up in the conversation with your team yet. I feel for you and pray you see better days and nights.❤
Please don’t give up. God love ❤️ you my dear. Please try to share your story with Dr.Eric Berg DC to hear what he is go to say about this please we love ❤️ you and we continue to pray 🙏🏾 for healing ❤️🩹 and speed recovery ❤️🩹 we believe OUR GOD IS A MERCYFUL GOD 🙏🏾❤️❤️❤️👑❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙👍💐
Even if you don't want hospice at least get palative care. They can get you things to ease at least some of your symptoms. You don't have to suffer honey. And being alone like you are you need professionals coming in to help you. Please call them. You won't regret it I promise.
Eat the gummies. Start with a tiny amount of mg possible and increase slowly. The point of them isn’t to get you high. They will help with your pain, sleep and appetite. You will get some relief.
I don’t know how is in Canada, but here in U. S. One time I was so sick i went to E . R. And right away they put me in the oncologist wing and my oncologist took care of me from there on. Try that, bc i know the feeling of feeling that way. Praying for you everyday.
🙏🏾🙏🏾🙏🏾
Please get some palliative care. ❤️🙏🏻
❤❤❤❤
I would contact your care team and make an appointment for Hospice care.
I'm so sorry. If you are having problems breathing. Can they give you an oxygen condensor to make you more comfortable. My husband is on oxygen 24-7 and needs it to survive. He has brain cancer and I've been a caregiver for over 14 years. You shouldn't struggle to breath. My husband is on a ventilator at night time because he gets too much CO2 in his blood. Please talk to your primary provider or go to the hosptial and they will have to get you the oxygen condensor so you can leave. Please don't suffer like this❤❤❤❤That is why your probably exhausted.
Has your doctor talked with you about palliative care?
I hope you consider it. Why suffer unnecessarily, when you have the option to use it.
Jenny Apple fought so hard to stay alive, she was on oxygen up until the end.
You could hear how difficult it was for her to breathe, so why would you want that for yourself? Look into it.
I will help you friend…what do you need?
Didn’t the Doctor prescribe oxygen for you?
I'm sorry brother drink something hot and pray it helps some I'm praying too
I'm sorry to hear about your suffering. Very frustrating.
❤️❤️❤️❤️😊
🙏🙏🙏
You need to check if you have pneumonia
I've been trying to tell him fluid in lungs will cause shortness of breath, persistent cough and chest pain. 😢😢😢
They're common symptoms of lung C!!!
@ hopefully he will go get seen about. I thought Canadian healthcare was supposed to be one of the best. Watching his videos I tend to disagree; in the USA, there’s so much he could do to help. My heart goes out to him.
🙏🏻✨🙏🏻