One of my earliest memories was my grandfather who had Crohn’s, but they didn’t know what it was in and even in the 60s we would drive back to West Virginia, where he was and there were several times where he almost died. And they didn’t really know how to treat what he had other than removing part of his intestines, and by the time he died, he had hardly any of his intestines left. So it’s amazing to see how far things have come as far as treatment and yet how far there is to go. Still I am so thankful for the organizations who have dedicated themselves to really do research and try to help us. So many my friends always ask if I’m better yet, and they don’t really get that there’s no cure and that everybody is so different and their symptoms are different. Hopefully one day there will be a cure.
It must have been incredibly difficult for your grandfather as it was a different world back then. Most likely difficult to meet others like him and, because it still wasn't understood too well by doctors, hard to understand it himself. It would have been very tough. I am so thankful for the advancements today but they have so much further to go and they can't stop until they have found a cure. It is exactly as you said, people ask if you are better, like it will just disappear. Mason's favorite is when he is told "maybe you will grow out of it!". How we wish it were that simple!
One of my earliest memories was my grandfather who had Crohn’s, but they didn’t know what it was in and even in the 60s we would drive back to West Virginia, where he was and there were several times where he almost died. And they didn’t really know how to treat what he had other than removing part of his intestines, and by the time he died, he had hardly any of his intestines left. So it’s amazing to see how far things have come as far as treatment and yet how far there is to go. Still I am so thankful for the organizations who have dedicated themselves to really do research and try to help us. So many my friends always ask if I’m better yet, and they don’t really get that there’s no cure and that everybody is so different and their symptoms are different. Hopefully one day there will be a cure.
It must have been incredibly difficult for your grandfather as it was a different world back then. Most likely difficult to meet others like him and, because it still wasn't understood too well by doctors, hard to understand it himself. It would have been very tough. I am so thankful for the advancements today but they have so much further to go and they can't stop until they have found a cure. It is exactly as you said, people ask if you are better, like it will just disappear. Mason's favorite is when he is told "maybe you will grow out of it!". How we wish it were that simple!