great video! i am not chronically ill but i can relate to a lot of what you've talked about with exhaustion and health feeling like a somewhat "impossible" journey. i wish you lots of luck going forward
as a girl who got half of her uterus literally yeeted out of her at 16 due to endometriosis, now a distraught and still exhausted 19year old - this couldn't have hit closer to home. wishing you a lot of health peace beautiful human from main youtube page, we chronic illness people are truly never alone:')
My heart yearns for younger you & me - whilst now manageable for me this year, I know too well how quickly that can change. I hope you join me on this journey; to help & inspire other chronically ill people is my ultimate goal - I believe in you and your words mean so much to me
I used to be sporty and run regularly then got ill in my late 20s and still don’t have a proper diagnosis. Im disabled due to a dislocation of my pelvis and scoliosis which affects my legs and arms and gives me chronic pain and has stopped me exercising as I get injuries due to overstretching of my muscles. I agree with you that lots of the healthy eating and sports related instagram pages are not inclusive for disabled / chronically ill people. As you mention you get injuries a lot it might be worth looking into whether you have ehlers danlos syndrome as that can cause injuries and its also common to have endometriosis and pcos with EDS.
I just looked it up and I don't think I have that - you have to have flexible joints and skin etc I have nothing of the sort haha. But interesting to know it exists! I also have scoliosis, so you get the struggle
@@miacaven some people dont have the stretchy skin and have very stiff joints instead of flexible. I think it is quite underdiagnosed and there are 13 types of eds. It mainly affects women but thats not say you have it or don’t. Just thought I would mention it in case you get any more symptoms later. I was also looking into it for myself as my elbows are hyperextended and I used to be very flexible until I got the pelvis dislocation and scoliosis but I haven’t been able to get an overall diagnosis from the gp for all of my symptoms so far :( Anyway I wish you the best of health as is possible for you at the moment. Take care x
great video! i am not chronically ill but i can relate to a lot of what you've talked about with exhaustion and health feeling like a somewhat "impossible" journey. i wish you lots of luck going forward
Thank you! And likewise!
as a girl who got half of her uterus literally yeeted out of her at 16 due to endometriosis, now a distraught and still exhausted 19year old - this couldn't have hit closer to home. wishing you a lot of health peace beautiful human from main youtube page, we chronic illness people are truly never alone:')
My heart yearns for younger you & me - whilst now manageable for me this year, I know too well how quickly that can change. I hope you join me on this journey; to help & inspire other chronically ill people is my ultimate goal - I believe in you and your words mean so much to me
I used to be sporty and run regularly then got ill in my late 20s and still don’t have a proper diagnosis. Im disabled due to a dislocation of my pelvis and scoliosis which affects my legs and arms and gives me chronic pain and has stopped me exercising as I get injuries due to overstretching of my muscles.
I agree with you that lots of the healthy eating and sports related instagram pages are not inclusive for disabled / chronically ill people.
As you mention you get injuries a lot it might be worth looking into whether you have ehlers danlos syndrome as that can cause injuries and its also common to have endometriosis and pcos with EDS.
I just looked it up and I don't think I have that - you have to have flexible joints and skin etc I have nothing of the sort haha. But interesting to know it exists! I also have scoliosis, so you get the struggle
@@miacaven some people dont have the stretchy skin and have very stiff joints instead of flexible. I think it is quite underdiagnosed and there are 13 types of eds. It mainly affects women but thats not say you have it or don’t. Just thought I would mention it in case you get any more symptoms later.
I was also looking into it for myself as my elbows are hyperextended and I used to be very flexible until I got the pelvis dislocation and scoliosis but I haven’t been able to get an overall
diagnosis from the gp for all of my symptoms so far :(
Anyway I wish you the best of health as is possible for you at the moment. Take care x