TIMESTAMPS: 00:00 Meet Erik + his (and his wife’s) Covid-19 infection 03:49 Erik’s scary symptoms with long Covid 07:50 How the medical community handled Erik’s long Covid condition 08:55 Erik’s thoughts during this scary experience 10:03 How the vaccine impacted Erik’s condition 12:26 The stages of Erik’s recovery & what helped 16:40 Wy Erik thinks he got long Covid despite his ‘perfect health’ and his wife did not 20:05 What Erik thought of ME/CFS when he made the connection 21:54 The top things that helped Erik go from bed-bound to mostly recovered 34:14 How it feels to be mostly recovered 35:46 How this experience has changed Erik 38:06 Erik’s message for people facing similar conditions 39:36 How to follow or reach Erik
I am a long hauler since March this year. I live in MO as well. Your story is so inspiration. I have experienced Many symptoms as you experienced. Thank you!!
@@erikhodge2298 Thank you so much. Erik. I will check on ANS program. You story give me hope. I am so glad to reach out you. I had COVID in March with mild symptoms except left side should, hip joints and muscles aches. I was getting better after a month, I relapsed when I got first Vaccine in May. I have been ill since then. Now I have CFS like syndrome, sleep program and other long hauler symptoms. It is so encouraging to know somebody recovering, I am in Springfield. I hope someday we have a community for long hauler near by to support each other.
Erik’s mom here, I have to say that Erik has come to this part of his journey changed. He had some really rough times and I was very scared for him but he is doing so so so much better now and I’m hopeful that he will eventually be back to 100%. Thank you for your part in his recovery. ❤️
Hi Jill! You have clearly raised an incredible person with Erik. I am so impressed by his strength, resilience, kindness, humility, and compassion for others. I'm so glad to hear that things are better now. Looking forward to that 100%
First covid 17th March 2020. Long covid ever since. Covid again, December 2020 and again in September 2022. Asthmatic since young child. I knew I was at high risk. 3.5 years later, I now have fibromyalgia and Costochondritis and keep going to A&E with chest pain. I've been through so many Long Covid symptoms. I know that feeling of slumping through each day from one day to the next due to fatigue. This video is very helpful thank you.
I went through all of this Jan 2021 to around August 2021. Lost 25 lbs with most all the same symptoms described in this video. I got better and was 90-95%+ recovered. I got covid again about 7 weeks ago and after 3 weeks of being fine, it is back. Not as severe but still no fun. Can't exercise. Fatigue easily. Shortness of breath spells though not constant like last time. We can get through this.
I’m very glad to hear this Jayne! At this point I’m 18 months out and I’m doing better and better so there is more hope ahead. I’ve been out biking and exercising. Slowly regaining abilities and j can’t wait for you to feel the joy of your former self coming back! It’s the best feeling and I’m hopefully for everyone to get through this!
Thanks again Raelan for including long Covid recovery in your videos! I have been suffering for 14+ months now with long Covid. Identified a lot with Erik’s experiences. I’m not as close to recovery as I’d like but I feel like I’m getting closer as I learn from others experiences. Thanks again for your channel and all you do to help and give hope ❤️
I developed “ fibromyalgia , pots, cfs” the day after I took the shot - the doctor thinks it woke up a previous bout of long covid I experienced late 2019 before there were covid tests to prove I had covid , but I know I had it .So it’s very interesting to hear that he feels his helped him to kick off his recovery , this virus is so tricky . It’s been since may 17th 2021, my symptoms are so insanely painful and doctors have helped me zero . :(
Wow Erik, I had a very similar experience to you! I had non stop shortness of breath for 3 months straight! My heart rate was also elevated for weeks! I would have intermittent chest pains as well. Went to ER several times and they found nothing. Was told I have anxiety of course. It's been almost two years now and I'm almost back to normal (I fell ill in March 2020). It was the worst three months of of my life and a gradual improvement over months. I hope that all long haulers will eventually make a full recovery.
I also got sick with covid when I was 9 weeks pregnant in March 2020 and am a long hauler. I had several ER visits and trips to my cardiologist and my ultrasound and Holter monitor all came back normal in May and June of 2020. It took me 5 months to recover from my acute covid symptoms. I had a severe chest infection and it took 5 months for the SOB to subside. I still 2 years later suffer from fatigue, vertigo, moderate to severe brain fog, PEM, POTS, and occasional SOB and a host of other physical symptoms. Still hanging in there and have every hope and belief for full recovery. I recognize My body has been thru so much trauma after having covid while carrying my son. So I am being as gentle as I can with myself and allowing rest at this time. Im just So grateful for this channel though it gives me such comfort and hope!
I have the same symptons.Did you had shortness of breath in rest too? I got 24/7 shortness of breath and i have to self direct my breath also in bed which is very exhausting. Glad you are better!
@@SongofaBeach2012 Wish you the best! I have the same symptons.Did you had shortness of breath in rest too? I got 24/7 shortness of breath and i have to self direct my breath also in bed which is very exhausting.
@@creepybastard1988 Yes, when I was sick during those three months, I was pretty much SOB 24/7, although it would ease up in the evenings sometimes. I would also wake up in the middle of the night with a racing heart.
@@SongofaBeach2012 Two years on I still have intermittent bouts of fatigue. I was doing well for a while and then recently regressed again. My stamina is not what it used to be. I hesitate to push myself because I don't like feeling that chest heaviness, but I know that it is likely the only way I will ever strengthen my heart and lungs. I know that I am capable of being more fit and active as I went on longer hikes (including uphill) just last October and did quite well.
Raelan--you have such an impact on so many people!!!! It must feel so good that you have had such an impact on Erik and other people's recovery! I wish your channel had been around when I got sick 5 years ago. I am 95% recovered from once severe CFS and Fibro (all ready recovered from POTS) and have been on healing the healing path the last couple years, but wish I had more info the first 2-3 years as maybe I wouldn't have become as sick as I did.
@@clarissericardo2313 Basically it was working on the overactive stress response every day while believing I could recover and cultivating self compassion. One of the key things is not worrying about the symptoms and getting out of fear of the symptoms and learning The Three Principles understanding was key for that (see John El Mokadem's recovery story). The second key thing was Dr. John Sarno's work also called TMS, which points to emotional repression, so doing lots of work on processing emotions (see Rebecca Tolin's CSF recovery story). I also did DNRS for 4 months which really helped also. Deep belly breathing and learning to be in my body (out of my thoughts) was key also as was walking (I started at 3 mins a day, now walk 1 1/2 or more a day easily. It was really hard especially when I was more severe, but being kind to oneself and working on it slowly day by day you will get there! I wish you the best!
@@evelinel.9827 thank you so much for sharing! Maybe I’m very severe cause I just walk to go to the bathroom when I wake up , and spend rest of the day I’m in bed ! I know John, he is such an amazing soul ! But somehow I’m sabotaging myself , because I still can’t relax into my condition and focus on something else . I feel that I’m still looking for answers, maybe because I was diagnosed with Lyme and mold and not being able to treat it due to my weakness. Lots of questions, fear and worry , but at same time trying to work to calm down my nervous system. It’s seems that is not going to work !! Either you worry or you relax !! I also have pots and hormonal issues , well I have all the package of anrs dysfunction or Cfs /me , or lyme or mold loool . I don’t know if the mistakes you talked about looked liked mine but I’m very glad you are finding your way out through this . I hope I can find my way very soon because what it is really delaying my recovery it’s the worry, the denial and not knowing where to restart. Sending lots of love ❤️
@@clarissericardo2313 There are so many who recovered from Lyme and mold with DNRS and other mindbody approaches as once the brain and nervous system are out of the fight/flight/freeze response the body detoxes, digestion works well again, breathing is normal, etc. They tested loads of random people and so many people tested postitive for Lyme with zero symptoms. When I was really ill it took a lot for me to really go all in believing all the dysfunction is caused by my limbic system, but in the end it was 100% true. I am so glad I was able to adopt that belief or otherwise I would not where I am and probably still trying to figure it out. the trick which has took me over a year to get really good at is knowing I am ok at all times, not caring about symptoms and not fearing symptoms. If I every feel symptoms coming on I tell myself I am ok, I am so safe etc. If I were to worry about symptoms/worry about the condition/not want to feel the symptoms, not be in my body, not want myself to anywhere other than where I am now, my stress response would go up so I have trained myself to not do those things. I do a lot of somatic mediation which has really helped me be in my body feel the sentations (pain) calmly which is telling my brain that these sensations are safe. There is some type of loop where the brain feels unsafe and causes the symptoms, then the symptoms cause the brain to feel unsafe. Getting out of the loop is the key to healing.
YAYYY another long covid video thank you! Erik seems like a very smart person the way he handled the past 11 months. Good job bro! im on 11 months as well getting better slowly.
Wow I went through the exactly the same thing! Lots of my own research, taken to the ER a few times, breathing problems and Dr's telling me I'm fine...this is the most relatable long covid interview thus far. I'm about 80% recovered now. The most frustrating thing is, like Erik mentioned, I don't feel healthy but my medical tests are all perfect and with that, Dr's send you back home.
Glad to hear you have seen some progress. Good news is a few months after this interview, I’m feeling even better. Lots of hope out there for recovery. Hope you see more of your old self come back through soon!
@@RaelanAgle thank you yes, I also became a parent during my first months of being sick.. but ive had a great support system and your channel is helping. Thank you
The worst part I've experienced with LC is that u can feel pain in the chest but when u do a scan it's all OK and come bk from the hospital with no medication because everything is OK. But u would be in pain. Trying to find ways to deal with fatigue, back pain and leg pain right now 😫
@@RaelanAgle well since they couldn't get any positive results, the doctor I was seeing put me on prednisone and about the back pain he suggested physio I don't know how working out will help me when I literally fail to leave bed when I do simple yoga. Currently I'm just on supplements. I'm supposed to get bk to work but my fatigue is still there, body pains, chest pains and back pains..don't know what else to do.im from zambia and most of the doctors think it's all in our heads.
We got covid Oct 2022. I had it mild BUY I had some very strange symptoms and was left with bad after effects mainly in my legs. There were times in the weeks after I felt I might die. Nattokinase is helpful.
Wow that’s really great to hear ! I’m 10 months with LH. My main ones that are remaining is fatigue ! I tried watching the video as much as I can while driving but what really helped with your fatigue ? I mean I’m seeing alittle difference with the 2 doses but very minimal but it can takes months for my body to heal now! Just have to have a good mindset right !
All I can share is my experiences but I believe once you reach a baseline, keeping the boom and bust cycle low and slowly as your body truly allows to increase.
Methylene Blue and NAC brought me out of the brain fog, severe fatigue and POTS within 3 days of starting it. Still dealing with some anxiety and minor fatigue but getting there.
Erik, I've seen Miguel's videos about imagining the pain centers in the brain growing brighter (while you simultaneously imagine your pain increasing) and then imagining the pain centers dimming (while you imagine your pain decreasing). It sounds like you used this same technique for shortness of breath? Can you explain how? Also, have you ever used it when you're "crashed"/fatigued?
Most of my shortness of breath issues were past by the time I had learned that technique. I have tried it for fatigue/crashes. For me it’s very difficult since the fatigue is so much more debilitating than the pain. But I think with more practice it would work.
The only small little stupid difference would be that most long covid suffer for approx a year and gradually improve and real MEler suffer for life Very very small difference Wouldnt even notice
@@pYroPaNTeR you sure about that? you know the person who runs this channel had MECFS for 10 years and recovered, right? she also has hundreds of stories on here from people who have recovered from CFS after years
Hi. Creatine has helped me a lot with my pains and energy loss and i mean a lot. 3 to 5 grams a day distributed through out the day with some sweats and a lot of water. Good luck and pls let me know in the comments if it also worked for you.
So good to hear you are close to full recovery Erik and that ANS helped you...I also do the program. I think talking about vaccines is very controversial...I know of a lot of people who actually got ME following a vaccine and also some who's health has deteriorated from taking the current vaccine sadly....everyone's reaction could be different.
A lot of people have final triggers like vaccines, viruses, trauma etc. but it is not the triggers that "cause" the illness, the trigger is just the final straw for brain and body. Alex Howard from OHS calls it "loads on the boat" and the final load on the boat is just the final stressor what tips the brain and body in to the illness, but is not the cause.
This is your opinion...you don't know everyone's circstances so please don't generalise. And I'm far from anti vax...I'm just highlighting both sides as it should be!
Kudos to Erik for the work and patience. Glad to hear he’s getting better. I’ve had ME-CFS and fibromyalgia (post viral) since 2004. Based on my experience, expenses, and efforts, I would not compare long Covid to CFS. I will no longer be watching long Covid videos. I personally feel worse watching patients with a short term illness, who have access to medical care, recover. I’ve done and tried everything and I have never recovered. Please do continue your good work. It’s just not helpful to me. Unsubscribing, sadly.
CFS recovery time can be very short once someone finds what works for them. As short as a few months or even weeks in some cases. There are a lot more recovery resources out there now versus what was available in 2004. That's why some of these people are recovering so quickly.
Manon I hope you have kept looking for help. I don't know what or who you have looked to for information. Please try Mary Ruddick's story and information. Also dr. Zsofia Clemens, dr. Campbell-Mcbride, dr Anthony Chaffee. If you have checked these I hope you have found a way to health. Always keep learning
I have had long COVID for 16 months. I live in a rural area. No doctor here has helped me. I would have to travel about five hours to get to help. Even then it takes months to get an appointment. And as happened to me , the scheduling staff lost my information so I had to start over again. I still don’t have an appointment with a long COVID clinic. The staff just doesn’t call you back very quickly. This has not been an easy or quick recovery. I get on the internet everyday looking for help. And I have spent a small fortune for supplements, internet programs, books. Just to say, not everybody gets well quickly or has access to help.
I did get several prescriptions of prednisone especially in the beginning. I have not been on any in many months. They were for breathing and chest pain.
The dog addition is very very distracting...under the circumstances....talking recovery and then the distraction of your dog and your talking of your dog in mid conversation of recovery...back and forth...duh
Please dont mix up mecfs and long covid It‘s just different! Yes 10 to 20 % of long Covid sufferers develop mecfs but the rest is in the category of post fatigue sufferers and that‘s not mecfs Thank you!
Samual Illisei, please don’t pretend to know someone else’s struggles or illness. It would be very incorrect to say long covid sufferers are not ME/CFS sufferers. This isn’t a “my Illness is worse than your illness” competition. How ridiculous would that be?! Who would want to win that argument?
TIMESTAMPS:
00:00 Meet Erik + his (and his wife’s) Covid-19 infection
03:49 Erik’s scary symptoms with long Covid
07:50 How the medical community handled Erik’s long Covid condition
08:55 Erik’s thoughts during this scary experience
10:03 How the vaccine impacted Erik’s condition
12:26 The stages of Erik’s recovery & what helped
16:40 Wy Erik thinks he got long Covid despite his ‘perfect health’ and his wife did not
20:05 What Erik thought of ME/CFS when he made the connection
21:54 The top things that helped Erik go from bed-bound to mostly recovered
34:14 How it feels to be mostly recovered
35:46 How this experience has changed Erik
38:06 Erik’s message for people facing similar conditions
39:36 How to follow or reach Erik
Erik, what retraining program about ANS? Thank you!
I am a long hauler since March this year. I live in MO as well. Your story is so inspiration. I have experienced Many symptoms as you experienced. Thank you!!
@@benikocoller8124 I use ANS Rewire by Dan Neuffer. I believe Raelan has a video linked in the description of her interview with Dan.
@@erikhodge2298 Thank you so much. Erik. I will check on ANS program. You story give me hope. I am so glad to reach out you. I had COVID in March with mild symptoms except left side should, hip joints and muscles aches. I was getting better after a month, I relapsed when I got first Vaccine in May. I have been ill since then. Now I have CFS like syndrome, sleep program and other long hauler symptoms. It is so encouraging to know somebody recovering, I am in Springfield. I hope someday we have a community for long hauler near by to support each other.
@@benikocoller8124 I’m still on the journey with you. Ups and downs but there is hope.
Erik’s mom here, I have to say that Erik has come to this part of his journey changed. He had some really rough times and I was very scared for him but he is doing so so so much better now and I’m hopeful that he will eventually be back to 100%. Thank you for your part in his recovery. ❤️
There is nothing more powerful than the love of a mother.
Hi Jill! You have clearly raised an incredible person with Erik. I am so impressed by his strength, resilience, kindness, humility, and compassion for others. I'm so glad to hear that things are better now. Looking forward to that 100%
❤️
Hello (from Northern Ireland) Erik's mum. I hope he has continued to improve. These recovery stories give me hope.
@@maevey3 much improved. He still gets wiped out if he overdoes it but nothing like it was a few years ago.
First covid 17th March 2020. Long covid ever since. Covid again, December 2020 and again in September 2022. Asthmatic since young child. I knew I was at high risk. 3.5 years later, I now have fibromyalgia and Costochondritis and keep going to A&E with chest pain. I've been through so many Long Covid symptoms. I know that feeling of slumping through each day from one day to the next due to fatigue. This video is very helpful thank you.
I went through all of this Jan 2021 to around August 2021. Lost 25 lbs with most all the same symptoms described in this video. I got better and was 90-95%+ recovered. I got covid again about 7 weeks ago and after 3 weeks of being fine, it is back. Not as severe but still no fun. Can't exercise. Fatigue easily. Shortness of breath spells though not constant like last time. We can get through this.
Thanks Erik, again. Health is everything
Thanks Raelan and Erik! This is so relatable and helpful. 7 months in with LC and hearing Erik’s story gives me hope xx
I’m very glad to hear this Jayne! At this point I’m 18 months out and I’m doing better and better so there is more hope ahead. I’ve been out biking and exercising. Slowly regaining abilities and j can’t wait for you to feel the joy of your former self coming back! It’s the best feeling and I’m hopefully for everyone to get through this!
Thanks again Raelan for including long Covid recovery in your videos! I have been suffering for 14+ months now with long Covid. Identified a lot with Erik’s experiences. I’m not as close to recovery as I’d like but I feel like I’m getting closer as I learn from others experiences. Thanks again for your channel and all you do to help and give hope ❤️
Michelle, I'm so happy to hear that you are finding things that work for you! ❤️
I developed “ fibromyalgia , pots, cfs” the day after I took the shot - the doctor thinks it woke up a previous bout of long covid I experienced late 2019 before there were covid tests to prove I had covid , but I know I had it .So it’s very interesting to hear that he feels his helped him to kick off his recovery , this virus is so tricky . It’s been since may 17th 2021, my symptoms are so insanely painful and doctors have helped me zero . :(
I'm so sorry to hear that Nevea 💛
Wow Erik, I had a very similar experience to you! I had non stop shortness of breath for 3 months straight! My heart rate was also elevated for weeks! I would have intermittent chest pains as well. Went to ER several times and they found nothing. Was told I have anxiety of course. It's been almost two years now and I'm almost back to normal (I fell ill in March 2020). It was the worst three months of of my life and a gradual improvement over months. I hope that all long haulers will eventually make a full recovery.
I also got sick with covid when I was 9 weeks pregnant in March 2020 and am a long hauler. I had several ER visits and trips to my cardiologist and my ultrasound and Holter monitor all came back normal in May and June of 2020. It took me 5 months to recover from my acute covid symptoms.
I had a severe chest infection and it took 5 months for the SOB to subside. I still 2 years later suffer from fatigue, vertigo, moderate to severe brain fog, PEM, POTS, and occasional SOB and a host of other physical symptoms. Still hanging in there and have every hope and belief for full recovery. I recognize My body has been thru so much trauma after having covid while carrying my son. So I am being as gentle as I can with myself and allowing rest at this time. Im just So grateful for this channel though it gives me such comfort and hope!
I have the same symptons.Did you had shortness of breath in rest too? I got 24/7 shortness of breath and i have to self direct my breath also in bed which is very exhausting. Glad you are better!
@@SongofaBeach2012 Wish you the best! I have the same symptons.Did you had shortness of breath in rest too? I got 24/7 shortness of breath and i have to self direct my breath also in bed which is very exhausting.
@@creepybastard1988 Yes, when I was sick during those three months, I was pretty much SOB 24/7, although it would ease up in the evenings sometimes. I would also wake up in the middle of the night with a racing heart.
@@SongofaBeach2012 Two years on I still have intermittent bouts of fatigue. I was doing well for a while and then recently regressed again. My stamina is not what it used to be. I hesitate to push myself because I don't like feeling that chest heaviness, but I know that it is likely the only way I will ever strengthen my heart and lungs. I know that I am capable of being more fit and active as I went on longer hikes (including uphill) just last October and did quite well.
Raelan--you have such an impact on so many people!!!! It must feel so good that you have had such an impact on Erik and other people's recovery! I wish your channel had been around when I got sick 5 years ago. I am 95% recovered from once severe CFS and Fibro (all ready recovered from POTS) and have been on healing the healing path the last couple years, but wish I had more info the first 2-3 years as maybe I wouldn't have become as sick as I did.
Hi 👋!! I’m severe now and I have been doing so many mistakes … could you share how you got better ? Thank you 🙏
I would also love to hear how you got better :)
@@clarissericardo2313 Basically it was working on the overactive stress response every day while believing I could recover and cultivating self compassion. One of the key things is not worrying about the symptoms and getting out of fear of the symptoms and learning The Three Principles understanding was key for that (see John El Mokadem's recovery story). The second key thing was Dr. John Sarno's work also called TMS, which points to emotional repression, so doing lots of work on processing emotions (see Rebecca Tolin's CSF recovery story). I also did DNRS for 4 months which really helped also. Deep belly breathing and learning to be in my body (out of my thoughts) was key also as was walking (I started at 3 mins a day, now walk 1 1/2 or more a day easily. It was really hard especially when I was more severe, but being kind to oneself and working on it slowly day by day you will get there! I wish you the best!
@@evelinel.9827 thank you so much for sharing! Maybe I’m very severe cause I just walk to go to the bathroom when I wake up , and spend rest of the day I’m in bed ! I know John, he is such an amazing soul ! But somehow I’m sabotaging myself , because I still can’t relax into my condition and focus on something else . I feel that I’m still looking for answers, maybe because I was diagnosed with Lyme and mold and not being able to treat it due to my weakness. Lots of questions, fear and worry , but at same time trying to work to calm down my nervous system. It’s seems that is not going to work !! Either you worry or you relax !! I also have pots and hormonal issues , well I have all the package of anrs dysfunction or Cfs /me , or lyme or mold loool . I don’t know if the mistakes you talked about looked liked mine but I’m very glad you are finding your way out through this . I hope I can find my way very soon because what it is really delaying my recovery it’s the worry, the denial and not knowing where to restart. Sending lots of love ❤️
@@clarissericardo2313 There are so many who recovered from Lyme and mold with DNRS and other mindbody approaches as once the brain and nervous system are out of the fight/flight/freeze response the body detoxes, digestion works well again, breathing is normal, etc. They tested loads of random people and so many people tested postitive for Lyme with zero symptoms. When I was really ill it took a lot for me to really go all in believing all the dysfunction is caused by my limbic system, but in the end it was 100% true. I am so glad I was able to adopt that belief or otherwise I would not where I am and probably still trying to figure it out. the trick which has took me over a year to get really good at is knowing I am ok at all times, not caring about symptoms and not fearing symptoms. If I every feel symptoms coming on I tell myself I am ok, I am so safe etc. If I were to worry about symptoms/worry about the condition/not want to feel the symptoms, not be in my body, not want myself to anywhere other than where I am now, my stress response would go up so I have trained myself to not do those things. I do a lot of somatic mediation which has really helped me be in my body feel the sentations (pain) calmly which is telling my brain that these sensations are safe. There is some type of loop where the brain feels unsafe and causes the symptoms, then the symptoms cause the brain to feel unsafe. Getting out of the loop is the key to healing.
YAYYY another long covid video thank you! Erik seems like a very smart person the way he handled the past 11 months. Good job bro! im on 11 months as well getting better slowly.
I'm long covid and just listening to these recovery stories and also learning new techniques, ideas is priceless to me right now. Mahalo 😁
💓💓💓
Wow I went through the exactly the same thing! Lots of my own research, taken to the ER a few times, breathing problems and Dr's telling me I'm fine...this is the most relatable long covid interview thus far. I'm about 80% recovered now.
The most frustrating thing is, like Erik mentioned, I don't feel healthy but my medical tests are all perfect and with that, Dr's send you back home.
I'm so happy to hear about all the progress that you've made. ❤️
Glad to hear you have seen some progress. Good news is a few months after this interview, I’m feeling even better. Lots of hope out there for recovery. Hope you see more of your old self come back through soon!
Really appreciate you sharing this story, really helpful for fellow long hauler
I was exactly the same, had the same exact symptoms also super fit 28 year old. 2 years sick now
Anton, I'm sorry to hear about all that you've been facing, I hope you have some support and are managing ok 💓
@@RaelanAgle thank you yes, I also became a parent during my first months of being sick.. but ive had a great support system and your channel is helping. Thank you
Good job you two. Very relatable, humble, hopeful.
Nicely done.
💓💓💓
Thank you Eric and Raelan.
I could relate to so many things Eric.
💓💓💓
Thank you Erik and Raelan 🙏❤️💞🌸🧘🏻♀️😘😘😘😘
💓💓
Thank you Erik and Raelan, very inspiring 💜🧡💛
Thank you! 💓
The worst part I've experienced with LC is that u can feel pain in the chest but when u do a scan it's all OK and come bk from the hospital with no medication because everything is OK. But u would be in pain. Trying to find ways to deal with fatigue, back pain and leg pain right now 😫
Loiwe, I'm sorry to hear about all that you've been facing, I hope you have some support and are managing ok ❤️
@@RaelanAgle well since they couldn't get any positive results, the doctor I was seeing put me on prednisone and about the back pain he suggested physio I don't know how working out will help me when I literally fail to leave bed when I do simple yoga. Currently I'm just on supplements. I'm supposed to get bk to work but my fatigue is still there, body pains, chest pains and back pains..don't know what else to do.im from zambia and most of the doctors think it's all in our heads.
Well what does that tell you ? The doctors can’t find anything wrong, soooooo it’s youre brain you have to rewire
He mentioned Dan the man!
We got covid Oct 2022. I had it mild BUY I had some very strange symptoms and was left with bad after effects mainly in my legs. There were times in the weeks after I felt I might die.
Nattokinase is helpful.
Wow that’s really great to hear ! I’m 10 months with LH. My main ones that are remaining is fatigue ! I tried watching the video as much as I can while driving but what really helped with your fatigue ? I mean I’m seeing alittle difference with the 2 doses but very minimal but it can takes months for my body to heal now! Just have to have a good mindset right !
All I can share is my experiences but I believe once you reach a baseline, keeping the boom and bust cycle low and slowly as your body truly allows to increase.
Methylene Blue and NAC brought me out of the brain fog, severe fatigue and POTS within 3 days of starting it. Still dealing with some anxiety and minor fatigue but getting there.
How are you doing now? Will check those out
@@Nekonaa overall, been quite well. Have had a few flare-ups in the last year but nothing major and usually gone within a couple weeks.
When he said that the Moderna shot made him feel better, I lost hope. I’m terrified of those shots.
Great story, long covid same rules apply!
Erik, I've seen Miguel's videos about imagining the pain centers in the brain growing brighter (while you simultaneously imagine your pain increasing) and then imagining the pain centers dimming (while you imagine your pain decreasing). It sounds like you used this same technique for shortness of breath? Can you explain how? Also, have you ever used it when you're "crashed"/fatigued?
Most of my shortness of breath issues were past by the time I had learned that technique. I have tried it for fatigue/crashes. For me it’s very difficult since the fatigue is so much more debilitating than the pain. But I think with more practice it would work.
LC is a real nightmare; Im 25+ MONTHS IN and lose hope some days
❤️❤️❤️
Yoga and meditation for Long Covid is a good support group.
On fb.
Really interesting to see that there really isn’t much difference between long covid and CFS/ME. Thankyou Raelan!
Super appreciate it, Shannon💓💓💓
What is ME?
The only small little stupid difference would be that most long covid suffer for approx a year and gradually improve and real MEler suffer for life
Very very small difference
Wouldnt even notice
@@pYroPaNTeR you sure about that? you know the person who runs this channel had MECFS for 10 years and recovered, right? she also has hundreds of stories on here from people who have recovered from CFS after years
Hi. Creatine has helped me a lot with my pains and energy loss and i mean a lot. 3 to 5 grams a day distributed through out the day with some sweats and a lot of water. Good luck and pls let me know in the comments if it also worked for you.
Great to hear!
Inspirational! Who is ‘Miguel’ that your guest mentioned please? I would like to learn more. Thankyou 🙂
ruclips.net/video/tZURYiY1emg/видео.html
@@erikhodge2298 Thankyou.🙂
So good to hear you are close to full recovery Erik and that ANS helped you...I also do the program. I think talking about vaccines is very controversial...I know of a lot of people who actually got ME following a vaccine and also some who's health has deteriorated from taking the current vaccine sadly....everyone's reaction could be different.
A lot of people have final triggers like vaccines, viruses, trauma etc. but it is not the triggers that "cause" the illness, the trigger is just the final straw for brain and body. Alex Howard from OHS calls it "loads on the boat" and the final load on the boat is just the final stressor what tips the brain and body in to the illness, but is not the cause.
Also, talking about vaccine is only "very controversial" in the anti-vax and far right communities, not in the science world or the mainstream.
This is your opinion...you don't know everyone's circstances so please don't generalise. And I'm far from anti vax...I'm just highlighting both sides as it should be!
Kudos to Erik for the work and patience. Glad to hear he’s getting better. I’ve had ME-CFS and fibromyalgia (post viral) since 2004. Based on my experience, expenses, and efforts, I would not compare long Covid to CFS. I will no longer be watching long Covid videos. I personally feel worse watching patients with a short term illness, who have access to medical care, recover. I’ve done and tried everything and I have never recovered. Please do continue your good work. It’s just not helpful to me. Unsubscribing, sadly.
Long-Covid and CFS are the same thing: Dysautonomia.
CFS recovery time can be very short once someone finds what works for them. As short as a few months or even weeks in some cases. There are a lot more recovery resources out there now versus what was available in 2004. That's why some of these people are recovering so quickly.
@@erics4127 I completely agree. I see this as my biggest asset in recovering and why Raelan's work here is so very important!
Manon I hope you have kept looking for help. I don't know what or who you have looked to for information. Please try Mary Ruddick's story and information. Also dr. Zsofia Clemens, dr. Campbell-Mcbride, dr Anthony Chaffee. If you have checked these I hope you have found a way to health. Always keep learning
I have had long COVID for 16 months. I live in a rural area. No doctor here has helped me. I would have to travel about five hours to get to help. Even then it takes months to get an appointment. And as happened to me , the scheduling staff lost my information so I had to start over again. I still don’t have an appointment with a long COVID clinic. The staff just doesn’t call you back very quickly. This has not been an easy or quick recovery. I get on the internet everyday looking for help. And I have spent a small fortune for supplements, internet programs, books. Just to say, not everybody gets well quickly or has access to help.
Yea me and my girlfriend had so much nerve pain and covid toes. We got it months before the Wuhan story came out...
Did Eric use steroids, or is he using them now for the chest/breathing issues?
I did get several prescriptions of prednisone especially in the beginning. I have not been on any in many months. They were for breathing and chest pain.
I didnt get covid until i git the vaccine in october 2021
The dog addition is very very distracting...under the circumstances....talking recovery and then the distraction of your dog and your talking of your dog in mid conversation of recovery...back and forth...duh
Please dont mix up mecfs and long covid
It‘s just different!
Yes 10 to 20 % of long Covid sufferers develop mecfs but the rest is in the category of post fatigue sufferers and that‘s not mecfs
Thank you!
Samual Illisei, please don’t pretend to know someone else’s struggles or illness. It would be very incorrect to say long covid sufferers are not ME/CFS sufferers. This isn’t a “my Illness is worse than your illness” competition. How ridiculous would that be?! Who would want to win that argument?
@@tylerjohnson9957 nah he is right