This girl has incredible confidence and wisdom, not to mention aside from the dangers, it looks kinda cool. As long as she's careful, she should have a happy, awesome life.
My little brother was born with this condition 54 years ago. He didn’t make it past a couple of weeks. This is such a blessing. She is beautiful, and I wish her and her family health and happiness. ❤️❤️ 🥰 Side Note: Thank you to each and every one of you for your well wishes for what could have been 🙏❤️ I am just so happy medicine has come this far 🥰
I’m so sorry about your brother. RIP sweet baby. But in a sense his death was not in vain, because the babies that passed away with this condition, like your brother, gave doctors the inspiration to research and treat it so the next generation of babies, like this young girl, could survive. Doesn’t make it any easier for you and your family though. 💙
"I kept her ,coz I loved her"...a mother's love is unparalleled . Respect to all mothers coz they have the most beautiful heart filled with love for her baby 💕
Not unparalleled i guess(there are other people too)To be honest,not all mothers are same,it depends from each and every person,and the nature of the person depends on the person not on the kind of relationship with other people, but respect to that girls mom for taking care of her despite her condition
this gives me shivers. how careful she has to be and had been up until now. her heart is not protected with rib cage. she has my utmost respect for fighting throughout her life. keep fighting girl 💪😃
@@dterm8526 You can interpret it that way. It could also be that since filming/ interviewing takes many hours, the baby needed to eat. I'm not saying you're wrong, just offering another perspective.
Honestly, i've always imagined if someone's born with a heart that isn't on the right place and now a confident girl showing everyone that those people like her exist. I found this the most fascinating thing ever
She's amazing. I've met her once. She was so strong and her heart was actually beating outside of her body. She's a soldier and I hope she lives a long life.
@@blackburnphotographystudio6237 hope she still doing well she is a special person just like i am i was born with De Barsy syndrome and i'm in my 30's i am proud for who i am and she should be proud of who she is
I guess you can say that she has very heart touching moments when hugging someone... Hope she stays happy for the rest of her life she is amazing and brave.
Hi baby how are you doing now i hope you are really doing good you are awesome looking at you baby makes happy when I look at your picture it is beyond my imagination that a creature like you really exist like a rose you make the garden so beautiful You are a diamond to any man that have eyes to see goodness of a womanhood Baby am Ben easy going person very understandable Am a civil engineer and a contractor I work at so many places like Asia Europe and Africa I love art craft and I write music I like ideal people when I see your picture am impress I want a good woman that understand what real love is all about who will understand me and perfectly be for me So we can build our world strong enough to care for each other I want you to be mine and I hope to hear from you soonest thanks
I honestly am so proud of people who will go out of their way to show their true colors, sure she gets bullied for it. But personally if I was her friend I would for sure support and defend her. She deserves only love and kindness. Keep standing strong!
@@sosoalkha834 Look I'm on your side, but this is not the way to do it. People do not understand their transgressions against God/the Law, the Gospel, nor do they understand the implications of Jesus's death. Doing it this way even makes things worse.
When she started opening up about how some kids bully her it made me so sad. She is unique and special unlike so many people.. so they try to tear her down for it. but her resilience and words are inspiring ✨
It' so wise and simple: "It does not feel like anything because I'm used to it", it's about how other people feel. She's resuming what it's about in almost every single case of being different. Wise beyond her years.
When I saw her riding that skate board a painful shiver went through my body reminding me what happen if she falls face down. She must wear a shock, fire,shock, cold proof cage or something like a protective shield. Wow she is an inspiration. God bless her may she fulfill her dreams
I’m thinking they could create some kind of thing for her to wear with like a plastic (non collapsible) protector around her so if she were to fall or get hit, her heart is protected by some strong surface
This is undeniably extremely inspiring.It’s such a shame that some people out there choose to inflict pain on people who already battle a lot.I admire her confidence and her positive outlook.
@@glennsilva2822 It is special. She can tell people to watch Indiana Jones and the temple of doom, to see how this can happen to them!😁 You got to treat situations like this with some levity or it can way you down in depression. Like Atreyu's horse in the swamp of sadness in The Never Ending Story.
It's beautiful to see how comfortable the mother is with breastfeeding her baby comfortably, nobody making it a big deal or harassing her, like it's just normal as it should be everywhere. ♥️♥️♥️
I agree, and it's much healthier for the baby and the mother. It can help prevent postpartum depression and now they are even discovering it can help prevent against type 1 diabetes in young children(a condition my younger brother has who was not breast fed). I wish my mother breast fed me, I probably would have been a lot healthier.
@@theopulentone1650 I really hope you meant to say I hope my mom was able to breast feed me. You do realize that not everyone can breast feed. They either can't make enough (the baby stays hungry), their milk is making the baby sick (allergic) or they're sick and taking medication that makes their milk bad. I sure hope you don't catch your children saying "Doing this helps kids become smarter. I wish my mom had done this for me I probably would have done better in school."
I love how she isn't afraid to show the world about her heart condition ,I find it amazing and I love her confidence level she deserves so much she is a lovely person\Girl (some people might call it a disability but I call it a unique Ability)
I wouldn’t really call disabilities a “unique ability” since these conditions limit them from living their lives to the fullest but some people with disabilities are talented, intelligent, etc. and that’s a great thing People with disabilities shouldn’t be pitied or seen as super amazing. We should give them help when they need it and respect them
My son was born with Tetrology of Fallot its when the 4th chamber of your heart doesn't form correctly. He spend his first 90 days in the hospital very ill, but now that he's had a full repair he's a normal 3yr old. People still think he's super fragile but that's not the case. He's strong and resilient. She's beautiful and I'm happy she's grounded and unafraid. Love and light sweetheart 💕
Yes, it was terrifying. He coded twice, had a stent at 7 days old, was put on the Ecmo machine, a new nurse pulled out a cannulas on his neck trying to change his diaper. Which caused him to code in front of me and my ex husband. At 15 days old he had a mini repair because his oxygen was terrible. Day 94 he was sent home on oxygen , a feeding tube in his nose (aka NG tube), and a monitor for his heart. January 2020 he had a full repair in accordance with his age. He'll need another surgery when he's 8 or 9. And another, maybe, when he's an adult. He has a scar from his neck to his navel and he has no idea he was sick. Adults are the ones that know to worry they don't. He's beautiful and terrible. I love it! Oh all of this happens and my job calls and fires me😒
Hey, I also have Tetralogy of Fallot and I and I was diagnosed when I was just 40 days old. I had a surgery at the age of 3 and now I am 23 years old. For almost 19 years I had no serious problems, but I just had to be more careful than my peers. 7 months ago, during my routine check-up, my cardiologist said that I needed a second operation, and I myself had begun to realize how tired I was lately and how my heart was causing me difficulties. I am now waiting for the surgery day to come. I am sure your son will have a very happy and healthy life. Please hug him for me ❤️
i cant imagine how much she has to be careful with it it just gave me chills... BUT i love her confidence, and that she doesnt give a damn about what people think
Awww been following her story since she was a newborn on instagram. Little miss sure is a blessing so glad shes okay an living healthy an happy life. So proud of her mother for taking care of her no matter what. 🌷🌷🌷
This is really cool, shes so confident and I love that so much about her. Her heart actually looks super dope since you can actually see a heart in action
Bro but the thing it is not present in the mediastiam and not protected by the ribcage so even a small injury to her belly can be threat to her life .May god bless her and always save her from such incidents
With her heart out.. So vulnerable.. Such an angel looking.. .. God bless this girl, she is special, she has been sent to us in these cruel times to remember how fragile we are, how sensitive ❤️❤️❤️
I love how she absolutely isn't even afraid or embarrassed about her condition! 💛 she's such an amazing role model to the people around her, showing what a queen her mum raised her as 🥰💖 pop off! X
@@religionisstupid8082 People have to paid for their KARMAS. God made her this why? She must've done something horrible in her past life. Now, don't come up to me and tell "OH EWW I DON'T BELIEVE THOSE PAST LIFE AND ALL.." well, nothing gonna change with your believing. Truth is truth. That's why we are always advised to do good work. That's all. Some people don't have certain organs cuz they had misused them in their past life. We are lucky that we have everything in right places. Our actions will tell us about our results. So we should always keep up the good work. PEACE💜✌
You can tell how well mom the mom cares for her. This girl is so confident and strong and doesn’t seem really bothered. Her mom has given her so much love and confidence. I don’t even have a disability besides desperately needing glasses or contacts and my mom never made me this confident
I know someone who's daughter was born with either her heart or stomach outside of her body. Can't remember which. But he luckily was saved and everything went back inside with a little help from her doctors. Now except for her scar on her tummy youd never know it happened to her.❤ miracles do happen!! I think she looks so cool like that. Her bullies were just jealous.
YOU are an amazing young lady. SO STRONG. You are HUGE inspiration. It broke my heart to hear you say some of the kids make fun of you because your different. Well. I would like to say something to those who do that... there will come a day where someone will make you feel the exact same way you made this beautiful different STRONG girl feel. And when you do, that will be the karma, and you will think back and say to yourself “ what did I ever do to deserve this?”
@@hamps9285 welcome .. extra minded people... Why you people are just involve in finding the things which doesn't make sense even... Bieng a science student means here that I have studied in my books that what consist of heart .. and those who are not the students how they knows that heart has layers pericardium etc.. see the point I meant to say .. not the words...
I've heard people around here say that the heart is made up of strong muscles so it won't break on a little fall just like that, but if she gets hurt it can be a problem. I don't know much about this since I'm not a science student but yeah, she's very brave and I admire her for that 😭
Though she is vulnerable with this condition, I wish her a great life and I'm sure this pretty girl shall do fine! These clips are great showing us our differences, also how sharing can help and build confidence.
Same, the fact that she's gone through it this far is so encouraging for kids like her with disabilities. Everyone is special in their own eunique ways. 😊
Listening to her friends describe her, that friend is a keeper and love how confident she is, having severe health issues really knocks you, stay strong beautiful
i like how shes so confident,positive and strong even if didnt show it on this video but im pretty sure life mustve been very hard for her i hope she'll stay positive like this
She is such an inspiration to people who are different in there own way god bless her she made me smile so much her confidence is amazing you go girl don't let anyone stop you from doing what you want to do 😁👏
@@TrungCyf Tell me something I don't know and I was commenting on this girl with the heart condition on how she is a inspiration to people who are different
Girl you are you heart . The old phrase I wear my heart outside of my chest or on my sleeve you are the definition of that oh my God this is the most beautiful story ever heard on RUclips. You're an inspiration to all of us and I wish you good health and happiness and may God bless your family :-)
I am actually a medical engineer and specialize in rare genetic disorders and i have never heard of this one before. Wow . She seems like a lovely girl
i couldn't imagine myself in her place, i'm such a paranoic person and i get intrusive thoughts all the time which has made me extremely scared of dying and mentally exahusted, if i had this i woudn't be able to live, she's really brave.
Life is so beautiful, showing lots of part from this universe, sometimes pain with happiness, good with bad,, and people like you giving us so courage to accept ourself as we are, 🙏 pray 🙏 for your good health
Anyone that would make fun of her or anyone who maybe different than them are horrible people! It's not OK to ever be mean to anyone ! She is a beautiful kid with a awsome loving family!! I belive you get back what you put out and the haters will regreat the way they treat her ! Being a Bully should not be tolerated in our world!!
Now that right there shows me if a young girls as that massive spirit and confidence and doesn’t let her condition get her down then the world could learn so much from her beautiful young lady inside and out x
What an amazing young woman! You have THE most beautiful bedroom. Your importance to your mum, to your friends and to the world cannot be underestimated. I love who you are.!❤
Wow! You are so incredible! You are one special person. Never give up on your life. You are full of heart and very special. Big giant thank you to your mom too for choosing to be your mon and giving you life in this world.
My mother met this girl years ago and told me all about her 💗 She was so sweet and conversational and beautiful. I remember watching about her when i was younger and it was such a great inspiration to keep fighting no matter what’s the deal.
I have never seen this condition before.. heard of it.. wow. she is amazing.. wishing her all the best in life, May God keep her safe and happy through out her time.. best to you..
I loved her confidence and i know what it feels how difficult the life is with some problems but i am happy you are such a strong person. I hope you be happy and be this strong forever.
This girl has incredible confidence and wisdom, not to mention aside from the dangers, it looks kinda cool. As long as she's careful, she should have a happy, awesome life.
🙄
666 likes...
How she suppose to have a baby??
@@kevincovins3546 fr
@@kevincovins3546 Maybe she doesn't want any
You can tell her mom cares sooo much. The way she’s raised her. The way her daughter thinks. The room. She definetly is an amazing mother
L?
L ??
Yb better 🤡
Yeah
My little brother was born with this condition 54 years ago. He didn’t make it past a couple of weeks. This is such a blessing. She is beautiful, and I wish her and her family health and happiness. ❤️❤️ 🥰 Side Note: Thank you to each and every one of you for your well wishes for what could have been 🙏❤️ I am just so happy medicine has come this far 🥰
RIP to your brother!
May you're brother rest in peace
My condolences to you and your family.
Wow there beautiful
I’m so sorry about your brother. RIP sweet baby. But in a sense his death was not in vain, because the babies that passed away with this condition, like your brother, gave doctors the inspiration to research and treat it so the next generation of babies, like this young girl, could survive. Doesn’t make it any easier for you and your family though. 💙
"I kept her ,coz I loved her"...a mother's love is unparalleled . Respect to all mothers coz they have the most beautiful heart filled with love for her baby 💕
moms are the best huh. that love never goes away no matter how much trouble u get into or how old u get. thank u to all the real moms out there
Abortions are the leading cause of death in the U.S.
Not unparalleled i guess(there are other people too)To be honest,not all mothers are same,it depends from each and every person,and the nature of the person depends on the person not on the kind of relationship with other people, but respect to that girls mom for taking care of her despite her condition
@@dragoncat5767 I understand what you're saying, in fact that's why I specifically said "real moms".
I really wish I had a mom like that:(
That horrifying to have your heart in such vulnerable area. She is so brave!
Dude, the thought that someone can punch her accidentally in the stomach area is so scary. She could die from a little hit
One trip and she's on the one way express to the afterlife
@@amongerman4623 I mean your not wrong-
Brave ? It's not like she has a choice and if she did it wouldn't be to have her heart outside of her body .
I actually felt mine was outside watching this
this gives me shivers. how careful she has to be and had been up until now. her heart is not protected with rib cage. she has my utmost respect for fighting throughout her life. keep fighting girl 💪😃
If that was me I'd be dead by now considering the number of blows my rib cage has received from fights, and accidents 💀💀 💀
@@Delusion09 THIS ✋🏾💀
I think she has all our respect
@@wolfgirl1996 that's right .
Can u help me to grow chann
Love that the mom was so comfortable nursing. Not everyone feels at ease and it's beautiful to see.
I didn't even notice her doing it until you pointed it out lol I had to rewind
Wait for the camera to come, then do that. Seems extra to me
@@dterm8526 You can interpret it that way. It could also be that since filming/ interviewing takes many hours, the baby needed to eat. I'm not saying you're wrong, just offering another perspective.
@@AskMeABee nah they are wrong. Implying a woman feeding her baby is in anyway a grab for attention or sexual is weird.
@@dterm8526 you realize newborns need to eat every couple of hours and filming can take all day or multiple days, right?
Honestly, i've always imagined if someone's born with a heart that isn't on the right place and now a confident girl showing everyone that those people like her exist. I found this the most fascinating thing ever
Yb better 🤡
I saw a girl like her , she is brave too
i meant there are, but usually on the right or more in the middle part rather than the left side. But outside rib cage, its crazy
The fact that she could fall and squish her heart gives me anxiety.
Me too...I want to just wrap her up in pillows...
She probably wears something around it to protect it
@@brennathecatlover4360 ah true never thought of that. Still scares me lol
@@megan2122 like she can’t be that dumb to just normally walk around everyday life and not wear something to protect it
@@brennathecatlover4360 never mentions it in the video and most of photos she's taken she doesn't have anything on. Idk. Thought the worst ig
You're really a very brave girl.
Yes she is brave
Hi sir
Yes sir, she is!
Believe in Lord Jesus Christ/ Lord Yahshua and Repent from y’all sins/ evil deeds
Wow! You're here, I'm a class 10 icse student seeing your videos
This was very touching, her mother definitely raised her right.
I agree 100%
She's amazing. I've met her once. She was so strong and her heart was actually beating outside of her body. She's a soldier and I hope she lives a long life.
Same I go to school with her
wow, thanks grandfather nurgle
@@raspberryscented no?
@@blackburnphotographystudio6237 hope she still doing well she is a special person just like i am i was born with De Barsy syndrome and i'm in my 30's i am proud for who i am and she should be proud of who she is
@@raspberryscentedoooo someone's jealous!!!!😊
I guess you can say that she has very heart touching moments when hugging someone...
Hope she stays happy for the rest of her life she is amazing and brave.
Get out. lol
Yb better 🤡
You’re going to hell for this jokes 💀
@@KidnapT that’s not true
@@KidnapT God loves you
What a beautiful family and such a wonderful little girl. She’s not letting her condition define her and I love that 💜
@50T50T NEWS ????
She’s amazing and it’s so cool to watch her heart beat.
Yeah. She really has a big heart
@jenny🦋 YOU RUIN THE DAY YOU FREAK BOT GETTTT OUTAAAA HERE
@@ThePmso Both physically and figuratively.
@@Pablo64713 huh
Wouldn't say cool.. interesting and creepy though
The phrase "I'm more than just my heart." Just hit so deep and yet it was meant literally
okay but she has some serious drawing skills!!
Also, she is really beautiful and hella strong!
eyyy we love the genshin
Yes! She draws very nice. I felt so sad for her when I saw the thumbnail but I'm now happy that she's so strong
I just love her confidence!! It’s also cool to see her heart beating. It does look like it would be painful but I’m glad to hear that it isn’t.
Yess
yeah
COOL?? YALL WEIRD 😅
@mymomthinksimcool10 no lol
She is really brave that she shows her heart rather than hiding under clothing,that’s not something everyone can do so BIG thumbs up 👍🏻!!
She takes wearing your heart on your sleeve to another level❤️ good job for being confident and telling others about your condition
Yb better 🤡
Hi baby how are you doing now i hope you are really doing good you are awesome looking at you baby makes happy when I look at your picture it is beyond my imagination that a creature like you really exist like a rose you make the garden so beautiful You are a diamond to any man that have eyes to see goodness of a womanhood Baby am Ben easy going person very understandable Am a civil engineer and a contractor I work at so many places like Asia Europe and Africa I love art craft and I write music I like ideal people when I see your picture am impress I want a good woman that understand what real love is all about who will understand me and perfectly be for me So we can build our world strong enough to care for each other I want you to be mine and I hope to hear from you soonest thanks
@@valecowel6868 ?
She's definitely on a higher level.
Anyone who tries to use her condition against her is a monster.
We need to educate children how other children live
I just might be a monster
@@real.n0tcry_gg would you insult her, hurt or or just be mean to her in the past? If this isn't current, it's ok?
Sure a random killer is gonna have pity on her and not attack her exposed heart
@@hainesrossario8666 sure, jerks like that exist. But some of our opinions are influenced from our environment
Sound like we need to educate adults.
I honestly am so proud of people who will go out of their way to show their true colors, sure she gets bullied for it. But personally if I was her friend I would for sure support and defend her. She deserves only love and kindness. Keep standing strong!
Believe in Lord Jesus Christ/ Lord Yahshua and Repent from y’all sins/ evil deeds
@@sosoalkha834 Look I'm on your side, but this is not the way to do it. People do not understand their transgressions against God/the Law, the Gospel, nor do they understand the implications of Jesus's death. Doing it this way even makes things worse.
And respect
When she started opening up about how some kids bully her it made me so sad. She is unique and special unlike so many people.. so they try to tear her down for it. but her resilience and words are inspiring ✨
Kids/people in general always make fun of/tease/bully others who are DIFFERENT. They need to be taught by their parents it's not nice.
@@emlodi2310 At the same time, kids don’t learn behaviour like that themselves. It’s usually from witnessing their parents acting that way.
Bullies ( a.k.a. _oxygen thieves_ ) are a waste of space 👎🏻
It' so wise and simple: "It does not feel like anything because I'm used to it", it's about how other people feel. She's resuming what it's about in almost every single case of being different. Wise beyond her years.
She's incredible and an inspiration to those who are suffering with a similar problem. All the best to her. Keep smiling and go ahead! 😀☺️
nub
*Copied comment bruhh 😐.*
Similing like you chacha❣️
Xavier???
Yb better 🤡
When I saw her riding that skate board a painful shiver went through my body reminding me what happen if she falls face down. She must wear a shock, fire,shock, cold proof cage or something like a protective shield. Wow she is an inspiration. God bless her may she fulfill her dreams
Ameen Ameen
Yes , it's prone to so much danger , she must wear something protective.
foam vest
I’m thinking they could create some kind of thing for her to wear with like a plastic (non collapsible) protector around her so if she were to fall or get hit, her heart is protected by some strong surface
This is undeniably extremely inspiring.It’s such a shame that some people out there choose to inflict pain on people who already battle a lot.I admire her confidence and her positive outlook.
Yes 🙌🏽
She's totally an inspiration. God bless you always, babygirlll. Keep that smile on your face coz it gives sunshine to your family and others.
That's really special and unique condition. She doesn't need to imagine how the heart works in her biology class, she can just look at her heart!
unique,yes but special? no. it's a sensitive condition believe me you don't wanna be in that condition
@@glennsilva2822 Well I know, but your uniqueness is what makes you special, don't you think that way?
Yes but that speciality can prove to be dangerous for her for which i dont really consider it to be special in a good way
Cpr will be easy for her in case of emergency
@@glennsilva2822 It is special. She can tell people to watch Indiana Jones and the temple of doom, to see how this can happen to them!😁 You got to treat situations like this with some levity or it can way you down in depression. Like Atreyu's horse in the swamp of sadness in The Never Ending Story.
It's beautiful to see how comfortable the mother is with breastfeeding her baby comfortably, nobody making it a big deal or harassing her, like it's just normal as it should be everywhere. ♥️♥️♥️
I agree, and it's much healthier for the baby and the mother. It can help prevent postpartum depression and now they are even discovering it can help prevent against type 1 diabetes in young children(a condition my younger brother has who was not breast fed). I wish my mother breast fed me, I probably would have been a lot healthier.
@@theopulentone1650 I really hope you meant to say I hope my mom was able to breast feed me. You do realize that not everyone can breast feed. They either can't make enough (the baby stays hungry), their milk is making the baby sick (allergic) or they're sick and taking medication that makes their milk bad.
I sure hope you don't catch your children saying
"Doing this helps kids become smarter. I wish my mom had done this for me I probably would have done better in school."
Never understood how some cultures are scandalized by a mother breast feeding her baby outside the home (i.e in public). It's a natural process.
It’s excepted in the uk. Where do you live?
@@theopulentone1650 I have type 1 diabetes because when I was a baby I refused to be breast fed for whatever reason
I love how she isn't afraid to show the world about her heart condition ,I find it amazing and I love her confidence level she deserves so much she is a lovely person\Girl (some people might call it a disability but I call it a unique Ability)
I dont even think its a disability or an ability, cuz its not making her disabled or something. I think shes just cool :)
You right is also can help to make people around be carefull and care about her heart
I wouldn’t really call disabilities a “unique ability” since these conditions limit them from living their lives to the fullest but some people with disabilities are talented, intelligent, etc. and that’s a great thing
People with disabilities shouldn’t be pitied or seen as super amazing. We should give them help when they need it and respect them
She is so brave and inspirational for other
thats so cute, you can see her heart beat faster when she's excited or nervous. She will grow up to be a decent human being, i am so sure of that
My son was born with Tetrology of Fallot its when the 4th chamber of your heart doesn't form correctly. He spend his first 90 days in the hospital very ill, but now that he's had a full repair he's a normal 3yr old. People still think he's super fragile but that's not the case. He's strong and resilient. She's beautiful and I'm happy she's grounded and unafraid. Love and light sweetheart 💕
That must have been a scary 9 days for you. God bless you and your little boy
90 days*
Yes, it was terrifying. He coded twice, had a stent at 7 days old, was put on the Ecmo machine, a new nurse pulled out a cannulas on his neck trying to change his diaper. Which caused him to code in front of me and my ex husband. At 15 days old he had a mini repair because his oxygen was terrible. Day 94 he was sent home on oxygen , a feeding tube in his nose (aka NG tube), and a monitor for his heart. January 2020 he had a full repair in accordance with his age. He'll need another surgery when he's 8 or 9. And another, maybe, when he's an adult. He has a scar from his neck to his navel and he has no idea he was sick. Adults are the ones that know to worry they don't. He's beautiful and terrible. I love it! Oh all of this happens and my job calls and fires me😒
@@byrdiebae8774 oh my goodness. Thank you for sharing all of that. He has been through so much. That’s great that he’s in the clear for a while
Hey, I also have Tetralogy of Fallot and I and I was diagnosed when I was just 40 days old. I had a surgery at the age of 3 and now I am 23 years old. For almost 19 years I had no serious problems, but I just had to be more careful than my peers. 7 months ago, during my routine check-up, my cardiologist said that I needed a second operation, and I myself had begun to realize how tired I was lately and how my heart was causing me difficulties. I am now waiting for the surgery day to come. I am sure your son will have a very happy and healthy life. Please hug him for me ❤️
i cant imagine how much she has to be careful with it
it just gave me chills...
BUT i love her confidence, and that she doesnt give a damn about what people think
Awww been following her story since she was a newborn on instagram. Little miss sure is a blessing so glad shes okay an living healthy an happy life. So proud of her mother for taking care of her no matter what. 🌷🌷🌷
She literally has a BIG HEART to be born different!
It’s so cool to be able to see her heart beat. I also find it interesting that her heart is located away from where it usually is.
Same!! I’m studying the heart in A&P and honestly it’s amazing to see! I wish her a happy and healthy life.
@@cirruscriesit's not cool it's odd
This is really cool, shes so confident and I love that so much about her. Her heart actually looks super dope since you can actually see a heart in action
Him
*So true!!
Bro but the thing it is not present in the mediastiam and not protected by the ribcage so even a small injury to her belly can be threat to her life .May god bless her and always save her from such incidents
YOU'LL NEVER HAVE TO CHECK HER PULSE
@@NiteDriv3rnot if she wearin' a coat u should check pulse unless take her clothes off #perve
With her heart out.. So vulnerable.. Such an angel looking.. .. God bless this girl, she is special, she has been sent to us in these cruel times to remember how fragile we are, how sensitive ❤️❤️❤️
I love how she absolutely isn't even afraid or embarrassed about her condition! 💛 she's such an amazing role model to the people around her, showing what a queen her mum raised her as 🥰💖 pop off! X
If she fell she could probably die
I pray that she never has a bad accident and that she is protected by the angels. God bless her
The same God who made her this way? Thank the doctors who saved her you ungrateful person
@@religionisstupid8082shut it
@@soulplexis hes right tho, god be experimenting on people
@@religionisstupid8082 People have to paid for their KARMAS. God made her this why? She must've done something horrible in her past life. Now, don't come up to me and tell "OH EWW I DON'T BELIEVE THOSE PAST LIFE AND ALL.." well, nothing gonna change with your believing. Truth is truth. That's why we are always advised to do good work. That's all. Some people don't have certain organs cuz they had misused them in their past life. We are lucky that we have everything in right places. Our actions will tell us about our results. So we should always keep up the good work. PEACE💜✌
@@cuteunicorn1718 Why would God make her pay for something she can't remember? That makes no sense
She’s a really talented artist!
Yes! I thought that too! Such a strong girl too!! Her and her mom are so sweet together.
Hello 👋 there
How are you doing?
Its ironic , the character she drawings is called hu tao which is from genshin impacts and she provided funeral service
She's so pretty no matter what! Her heart makes her even more beautiful and I hope she knows that.
You can tell how well mom the mom cares for her. This girl is so confident and strong and doesn’t seem really bothered. Her mom has given her so much love and confidence. I don’t even have a disability besides desperately needing glasses or contacts and my mom never made me this confident
I know someone who's daughter was born with either her heart or stomach outside of her body. Can't remember which. But he luckily was saved and everything went back inside with a little help from her doctors. Now except for her scar on her tummy youd never know it happened to her.❤ miracles do happen!! I think she looks so cool like that. Her bullies were just jealous.
@Life with pets Cool
@Life with pets cause you've adopted so many pets
@Life with pets thats a lot of pets!
@Life with pets sure!❤
@Life with pets hii!
She is so cool, and her heart looks like E.T.’s heart, or a Care Bear. That’s unique, and beautiful!
😊
Aw that's so cute
Omg she is a care bear 🥺
@@manager-nim2623 ikr?
YOU are an amazing young lady. SO STRONG. You are HUGE inspiration. It broke my heart to hear you say some of the kids make fun of you because your different. Well. I would like to say something to those who do that... there will come a day where someone will make you feel the exact same way you made this beautiful different STRONG girl feel. And when you do, that will be the karma, and you will think back and say to yourself “ what did I ever do to deserve this?”
Yes
She doesn't exactly wear her heart on her sleeve, but it's pretty close! What a miracle.
Let’s just take a moment to appreciate her art like that’s soooo good and of course she is a brave girl and she proved all those doctors wrong
Being a science student.. I know how terrifying it can be.. if she hurt upon that by anything.. but she is brave and lucky to have such mother... ❤️
Heck i am not even sure if she should wear tight clothing that presses on her abdomen.
@@zeejay-junejo .. Actually yss.. her life is not easy at all.. but she is fighting that's really important.. I admire her.. 😊
I think not only just science students but everytype of student know how haunting this may be... So "Being a science student" is redundant here
@@hamps9285 welcome .. extra minded people... Why you people are just involve in finding the things which doesn't make sense even... Bieng a science student means here that I have studied in my books that what consist of heart .. and those who are not the students how they knows that heart has layers pericardium etc.. see the point I meant to say .. not the words...
I've heard people around here say that the heart is made up of strong muscles so it won't break on a little fall just like that, but if she gets hurt it can be a problem. I don't know much about this since I'm not a science student but yeah, she's very brave and I admire her for that 😭
It's actually kind of amazing to see what your heart looks like while it does its job! Beautiful, really!
I agree! it's fascinating
@frankjustfrank7754 NO ITS ACTUALLY WEIRD AND NOT NORMAL
Though she is vulnerable with this condition, I wish her a great life and I'm sure this pretty girl shall do fine!
These clips are great showing us our differences, also how sharing can help and build confidence.
i remember watching a documentary episode about this girl when she was younger, and it’s really sweet to see her doing well today ❤️
I remember that too! It's so amazing seeing her grow! Her art looks really really good and it just makes me soo happy!! 🥰
I remember watching it on the good doctor... oh my God
Same, the fact that she's gone through it this far is so encouraging for kids like her with disabilities. Everyone is special in their own eunique ways. 😊
Listening to her friends describe her, that friend is a keeper and love how confident she is, having severe health issues really knocks you, stay strong beautiful
Puts a whole new meaning to: putting/pouring your heart out for all to witness. I wish her good health!
LOVE her drawing of Hu Tao from Genshin Impact! She's beautiful, intelligent, and so strong. Wishing her the best for everything❤
i like how shes so confident,positive and strong even if didnt show it on this video but im pretty sure life mustve been very hard for her i hope she'll stay positive like this
Ya..
She's confident, soft spoken & beautiful. Her condition may make her vulnerable but her fighting spirit is what makes her story so amazing.
I’ve seen younger you and I can see you in pain in a video but seeing you now is making me so relieved and happy that you’re doing okay!
She is such an inspiration to people who are different in there own way god bless her she made me smile so much her confidence is amazing you go girl don't let anyone stop you from doing what you want to do 😁👏
People are dying in Ukraine bruh
@@TrungCyf Tell me something I don't know and I was commenting on this girl with the heart condition on how she is a inspiration to people who are different
@@AndyRich2022 Inspiration to people who are different? Arent we all different? Iguess not.
Girl you are you heart . The old phrase I wear my heart outside of my chest or on my sleeve you are the definition of that oh my God this is the most beautiful story ever heard on RUclips. You're an inspiration to all of us and I wish you good health and happiness and may God bless your family :-)
She has grown so much from when I last saw her and I am also proud of her for being so strong all these years ! You definitely inspire me
It doesn't make you weak just because you have something to deal with. Protect your heart and live a long time.
I am actually a medical engineer and specialize in rare genetic disorders and i have never heard of this one before. Wow . She seems like a lovely girl
Ok the best part was when her friend started talking about her, everyone deserves someone like that!
The girl has a heart. Her heart doesn't have her. She is beautiful INSIDE AND OUT ❣️💯
i couldn't imagine myself in her place, i'm such a paranoic person and i get intrusive thoughts all the time which has made me extremely scared of dying and mentally exahusted, if i had this i woudn't be able to live, she's really brave.
Wow, keep being a great person. The world needs more people like you!
Minus the heart out of the ribs protection
Glad she chose life for her child. What an inspiration!
yeah
Watching her heart beat is seriously cool! I hope she stays strong and healthy 👍 as she can!
Life is so beautiful, showing lots of part from this universe, sometimes pain with happiness, good with bad,, and people like you giving us so courage to accept ourself as we are, 🙏 pray 🙏 for your good health
Thank you so much, it was an honor to film with you guys! Much love, Virsaviya
I remember there was an episode of The Good Doctor about this. Fascinating that it’s a real thing.
I remember the last time I saw this girl she was less then 9 and now she's 12! She looks beautiful no matter if her heart is out of her chest
Some people are built different but this brings the whole new level
Wow she must be on alert 24/7. Watching out for falls, not sleeping on stomach etc
Anyone that would make fun of her or anyone who maybe different than them are horrible people! It's not OK to ever be mean to anyone ! She is a beautiful kid with a awsome loving family!! I belive you get back what you put out and the haters will regreat the way they treat her ! Being a Bully should not be tolerated in our world!!
Looking at her heart beat with bare eyes is so fascinating! More strength and good health to you girl!
Fascinating.. u think it's cool to see an abnormal condition?
I hope your life will be blessed because of your kindness. We all love you and thank you for trying to make a change.
Man what a strong & courageous young lady. Wishing her all the best.
Her mom is so supportive. You can tell she cares a lot for her daughter ❤
Now that right there shows me if a young girls as that massive spirit and confidence and doesn’t let her condition get her down then the world could learn so much from her beautiful young lady inside and out x
She's so positive. She seeked to inspire people and she's definitely inspired me. Amazing girl
She is confident and secure with her body. I'm glad she has an excellent support system.
Omg her mom is GORGEOUS and looks so young and she raised such a strong beautiful child!
What an amazing young woman! You have THE most beautiful bedroom. Your importance to your mum, to your friends and to the world cannot be underestimated. I love who you are.!❤
Wow! You are so incredible! You are one special person. Never give up on your life. You are full of heart and very special. Big giant thank you to your mom too for choosing to be your mon and giving you life in this world.
Oh hey I remembered about her a long time ago! So happy she's living healthy and happy!
Me too 🥰🤎
Same 🥰
I wish every kid was blessed with family like that. She's so unique and beautiful ❤
She is really cute, confident & accepting at this young age. I pray that she's always happy and healthy ❣️
The fact she wants to inspire people with and without her condition is just amazing. You’re a really brave girl.
What an inspiring young girl! I love her attitude and her positive way of looking at life! She's beautiful and a gift to the world! Blessings from NZ!
My mother met this girl years ago and told me all about her 💗 She was so sweet and conversational and beautiful. I remember watching about her when i was younger and it was such a great inspiration to keep fighting no matter what’s the deal.
Strong daughter and mom! I’m glad she has a great support system! Wishing her all the best!!!!! ❤️❤️❤️❤️🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼❤️❤️❤️
@CAROLYN🦋 stop
@@Nwildin It's a bot. It won't just stop because you say so. Report it instead, that's much more effective.
I'm so nervous about a bully punching her in her heart. So proud of her confidence
I hope they don’t. I hope she lives a long, healthy life
She's incredible and an inspiration to those who are suffering with a similar problem. All the best to her. Keep smiling and go ahead!
I have never seen this condition before.. heard of it.. wow. she is amazing.. wishing her all the best in life, May God keep her safe and happy through out her time.. best to you..
I loved her confidence and i know what it feels how difficult the life is with some problems but i am happy you are such a strong person. I hope you be happy and be this strong forever.
She is undoubtedly a bravest girl I have ever seen...Love and prayers for u