I am 42, Stargardt's since 9, about 20/500 acuity. I am also a teacher for the visually impaired. I use Schneider 157 pens, they come in black, blue and green. Fine point, does not bleed through and writes smoothly. My favorite magnifier is my iPhone magnifier app that you can add to the control panel for quick access. Seeing AI app is great also. It reads what ever you need, just move the camera over what you want to see or read.
I've been legally blind for 9 years. Its been frustrating. I have little to no help. My life has been on pause & not improving. Im glad to have found this video. It truly helps. Thank you.
hey love 💞 It's a hard journey. Hope this year brings some opportunity for things to move forward and look up for you. Happy you found my content and it helps
Hi, my brother has just moved in with me and my family, he is trying to adjust. Please let me know if there are any voice chat rooms for the blind or any resources for him. This IA all new for me and him. He wants to talk to people like himself
Honestly I don’t tell people out of embarrassment… I try to make it seem like I’m normal but they always find out and I just end up feeling bad that they have to go out of their way for me ,I also feel like a bother to my friends and family whenever I ask for rides or ask what’s that say
I have advanced glaucoma, blind in left eye, and low vision in right eye. I’m all alone now. I lost my mother, sister and 6 other family members last year 2023. I was my 96-year-old grandmother caregiver for 14 years, and she died in my arms on Christmas morning 2023 at home. I feel so alone. I’m trying to learn my life all over again back into the working world and living alone. I was diagnosed with advanced glaucoma six years ago. And anxiety is my enemy, and I refused to allow it to control my life. I need all the help I can get.
I’m very sorry for your loss. I also have glaucoma with low vision in one eye and only light - shadow perception in the other. My grandmother passed away in 2023 also. While I was not her sole caregiver A did provide support for her with daily living, doctors appointments, and other needs. I don’t know that I will be able to offer anything useful but I have experiences with researching resources and programs and services so if you’re looking for something specific let me know and I’d be happy to see what I could find.
My husband is VI and he will totally back you on the Mac. He had an old Macbook Pro like yours until it got too old to update, and then we skipped the iMac and went for a Mac Mini and he uses a 42" 4K TV as his monitor. Different impairment than you (retinopathy) but you are spot on. His 3X pocket magnifier, sold as a fire-starting tool, is his constant companion and essential to functioning in daily life for him.
TFS, i'm glad yor husband has found somethings to help him day to day. It's aways crazy when we talk about these things like 42" screens but that's the life we live... sometimes I look at mine and I'm like "Whoa I'm really blind" lol Hope the monitor and pocket magnify severs me for a long time xx
Hey Alisha. Love the Video. This past Monday sept 20th I was told that I have about five years of sight left. It's finally starting to hit that I'm going to lose my freedoms of being independent. It started with my reading vision. I'm now having to use a magnifying glass to read. It's getting harder to be able to write or read on paper with out a flashlight.."WAIT!" Who uses paper anymore? lol Reading labels is getting next to impossible. So far distance is fine and I'm still able to drive at night with out any issues but this will change I'm sure pretty quick. . I'm also finding that I need sunglasses a lot more due to light sensitivity. Thanks for sharing your story with all of us. You're a beautiful person both inside and out.
Sorry for the super late response, YT never notified me of this comment OMG I hope they were wrong and you have more than five years that's a crazy countdown. All I can say is, cherish the vision you have take advantage of the present and do you best. Keep me posted and if you need support reach out
I’ve been legally blind since 2009. It’s a challenge every day. I walk with a cane, and some people are courteous others just talk to ignore you. Stepping up on their sidewalk is difficult. Already fell 3 times. If I need a walker.
There are many different kinds of canes, some I found are better at negotiating uneven sidewalks than others. What kind of tip do you have that could play a role.
Your video popped up on my YT this evening. I've been partially blind/visually impaired since 2000, & my current visual accuity is between 20/155 & 20/160 in my left eye. I have no vision in my right eye. Depending on where I'm going, or what I'm doing, I use my cane to navigate as I'm walking. I use a 4x magnification lighted magnifier every day, & my church bought me an IrisVision device that I use to read things like menues, hbooks, video screens, anything far away. I'm in a tough spot when it cones to wearing sunglasses. I should wear them, as it gets difficult to see on sunny days. Especially if the sun's in my face. But when I try to wear sunglasses, it ends up being too dark for me to see. So I just don't wear them. I've got a pretty good support group with my dad, uncle, & friends from church. Although they're not all onboard with my plans for next year (check out my video). I do, unfortunately have a few fanily members that have made me feel like a burden. But I limit my contact with them.
Love love love your video. I got quite excited when you were talking about applying make up. I am visually impaired too and I’m trying to learn how to apply make up. Never got into it when I was younger but now that I’m getting older I want to try to do New things. Do you think you could do a make up tutorial.
Aww i’m so glad I stumbled onto your video. It definitely makes me feel es alone to hear about your tips and tricks and what you are going through and to see how similar it is the to what I’m going through, and to be able to imagine all the other viewers in your audience having similar experiences as well. We’re not alone !! 🥰 You seem like such a sweet playful person.
I'm happy to hear that that's what I'm here for. Yes, the community in the comment section shows us that the blind fam is strong and resistant and we're all doing the best we can and thanks love
Nice video! I have bought 20/20 bold pens that are markers that don’t stink and are not permanent. Now they are called Bold pens. You can get them from LSS Products, Maxi Aids, or ILA Independent Living AIDS. Yes, Walmart has pleasantly surprised me by carrying an electronic magnifier at a great price! The pebble Mini by Enhanced Vision is one of my most used tools. I love the Looky Plus by Irie! Cody is my salesman! I have bought, used, and have sold vision tools. Love easy to use products. Another favorite is the eye-pal solo. May be called ace now. Maybe you use lots of tools like me!
Wow something told me today to look up how blind people travel. Bam!! clicked on your video and got a wealth of information in just this short of time. Hahaha! I think losing independence of traveling was my biggest problem of depression since just getting in my car and taking off was so important to me. I felt like a high schooler again with just a state ID LOL! My kids have been my Biggest support over a course of 7yrs of vision decline. I have transition eyeglasses and just now putting no line bifocals because I want to look cute has nothing on trying to see!😂 I am slowly trying to find my independence once again to travel with my younger children so they can see other states like my older children and I did. They are not of driving age and uber or lyft can become expensive and I no longer can rent a car with an ID let alone be driving Lol! Any advice or videos on this would help greatly from the community.
so sorry for the late reply. glad you found my channel and the content helps! It's hard not being able to drive, so convenience jus to hop in and go from pint A to B but I"m sure you'll find away to manage. You may get annoyed sometime
Hi! I'm Molly, 55F, from FL. Been legally blind (retinopathy of prematurity) since I was born. I have that same little round mirror, and a ton of those Sharpies too! All of those shades looked great on you! You are so pretty. :-) Still so young! I'm getting up there. I just lost my Mom right at Christmas, and now I'm all alone. I don't have any siblings, nor kids, and all of my friends died from cancer or Covid. As you start to get older, you start to notice more and more friends die. Sorry to be so grim. I'm still grieving. Your video was awesome! I have an iMac too, I have the huge 27", that I bought a decade ago, and now I have one of the newer colored ones (in purple), and it's smaller, but I still love it. I love my iPhone too. Especially the magnifier, a lot!!
Hi Alisha, Your channel came up on my feed am I am so glad it did. I too am legally blind (since 2016) as a result of Diabetic Retinopathy. My vision is 20/400, but I am pretty high functioning although I no longer drive and I rarely go out at night. Otherwise I am truly grateful 🙏 for what vision I do have. I make the most of life as a writer, I use Kindle books and Audible for reading. I love how uou featured your "go-to" items, especially the bold pens, computer and Smartphone... I have an Android, my lifeline. Thank you for sharing 💕 😊 I just subscribed!
hey love thanks for sharing. so happy to hear you're still making the most of of life and enjoying things like reading. Stay positive, encouraged and stay blessed!
Miss I really enjoyed your video. I was blessed with the return on my sight on my right eye. I had a bad cataract due to a trauma 40 years ago I really like your videos. Luckily my surgery went very well and now I can see in both eyes.
My name is Blind 1982 September 2 or September 3. I should say it’s difficult but I don’t let that stop me. I’m a member of the Sligo Creek chapter of the Nfb Of Maryland. I love the next Federation Of The Blind for me. It’s done a lot without them. I will not be the guy that I am today, thank you Marley Burke and thank you Alicia for your RUclips channels. I am subscribed to both channels and I turned on notifications for both channels so thank you very much for empowering my life. I truly appreciate it. Y’all have a nice day.😅 Thank you so much Alicia be and for Marley Burke ladies thank you for all you do 0:16
I've lost my vision in my left eye due to retina detachment off the macular 3 times last year. Cataract surgery didn't improve my vision. I have so much distortion in my center vision. I'm basically only using my right eye. It's been a year now. My right eye has had laser 360 for holes and tears. I'm a -6.00 in my right eye. It's been a real-life challenge, and I can't lie. I'm learning to cope and find different ways of getting by.
Yeah it does impact everything I have low vision myself and I have a friend that doesn’t exactly understand it clearly so I have to make a video and explain this to him what it is like because he’s not understanding it right now
Seeing AI and Be My Eyes apps are awesome for assistance with any & everything that you might need help with throughout the day (when you’re alone or on your own)!
Thank you again Alisha 😊 You are just brilliant at conveying problems AND possible solutions, practically and emotionally. My vision is going with both AMD and glaucoma, there is very little support from the health service here (UK)…..I was fascinated to see that lol your six essential are ones I use all the time too😊 All the best to you, you are truly a star 🌟 xx
I use 'moisture chamber's sunglasses because I have 'Dry eye'. A moulded (removable) spongy fabric that blocks breeze and air conditioning flow and also helps with glare. They are a standard frame so look cool too! 😎 The Wiley X brand also has these frames available with clear lenses.
So glad to come across your channel, great content! Actually thinking about buying a Macbook rn so this is super helpful. Kind of feel like being part of a community even though it is just a video, thank you.
I know it sounds silly but if you wanna try pens for arthritis they are bulky and have nice ball pinpointed pens you can grab them off Amazon with any size you prefer! They can be nice and thick on the words and it’s comfy to hold 🙏🏻😅❤️
Were you thinking Transcribe? Apple is to confuseing to me. I stick with Amazon fir my talking TV And Samsung for my phone I still need to call Sony to see how they can make Spider Man 2 better for Visually Impaired. But my PS5 is new so Im still trying to see what Sony did for Accessability people
New subbie-great channel. Thanks for providing information, you are truly very inspiring. I was diagnosed with RP on 6/5/20... its been very challenging and difficult as my vision deteriorate. Please provide any additional info you may have to provide some understanding, and clarity of how to adjust and live a productive life. I live in a small rural town with very limited resources and support.
Hey thanks so much for the support! I know a few people who live with RP and it progresses differently from Stargardts's. The only advice I can give is to stay present. If you have a good support network let them know what you need, I think communication is the most important thing as our vision deteriorates. Help from family and friends is so crucial. Even just having people who try to understand helps. If you feel limited in resources, you'll have to become innovative and create to the best of your ability
So this is going to seem odd, I somehow stumbled across this video and comments. I Have Choroidermia . Pretty much RP's twin . I'm 30 and I've been legally blind 11+ years. This is a terrible hard life watching your vision go. Hang in there.
I wish I had seen this video 20 years ago when I first started losing my vision! I carry my 8x magnifier a modular...talking watch...mobility cane in unfamiliar places...an I'd cane because I've been accused of lying about being legally blind when I've asked for help? Small town problem unfortunately...people are are generally great and helpful in the bigger cities....google walking app...I use zoomtext software as I am an educational assistant and our school board uses Microsoft...google read and write... marker...good friends...supportive friends...a positive attitude...I encourage people to ask questions rather than speculate and make assumptions...I politely ask for what I need...I do look different at times bent over the shelves as I scan the0ugh the grocery aisles...I get it.. I'm brave enough to look a little silly to be independent....it gets easier...im thankful for my intuition and developed ability to read body language...and the fact that everyone looks beautiful to me...thank you for this video
Awww I'm so glad you found this video even if it's 2 decades late lol sorry to hear people don't believe you. The same thing happens to me too. Even other blind people discredit what I'm going through because my acuity isn't as far gone as theirs. Shame. Anyway, stay strong I'm happy you've found ways to adapt xx
I'm legally blind, my vision is 20/200 in I live in a small town. On top of that, my parents isolate me and I've never learned practical skills. I'm finally escaping to college soon and really need to know a few things. First, how do I cross streets? I can't listen to cars. I've tried, I can't accurately tells what is where. Sure, I can follow foot traffic but other people won't always be around. Second, how do I find stores and restaurants and stuf? I've been to a big city once, where I was dragged around by my cousin because I couldn't read shop signs. Lastly, where in the world am I supposed to get cheap cooking supplies made for blind people? I can't read brail bc the person who was supposed to teach me how to live decided I didn't need to know anything not directly related to school. could someone please explain these to me or maybe point me in the direction of videos that might help in situations like these?
hey love hope you're good. I'm not sure where you liv but you're going to have to reach out to an organization and services visually impaired person. Here we have osemthing called the CNIB, they have mobility class that can teach you how to cross safely, how to locate stores and restaurants etc. Where I live is very accessible and my vision loss so I can get around fine with the exception of not being able to see signs and numbers. Seems like your impairment is affecting your peripheral and you'r needs will be different from mine especially if your city isn't as accessible as mine.
@@alishainc I've reached out to the blind and vision, however they were less than helpful. The person who was suppose to teach me mobility taught me next to nothing. I saw her four times over the course of two years. The person who was suppose to help with schooling and domestic completely focused on my schooling and decided my vision wasn't as bad as I said and decided I was faking. Obviously, she hindered more than helped. I'll reach out the blind in vision in my new state, but I really don't hold high hopes after a two year nightmare they put me through.
@@katieneko674 that’s terrible that they weren’t helpful. I was lucky to receive services from my state commission for the blind but have friends who have also had unfortunate experience with theirs
You can work with vr volk rehab they can get you the training you need to get around the big city lm leagley blind myself but I take the city bus and lightrail to get to work and home or we're ever I need to go my right eye is 2200 vision left eye is blind.
I can subscribe to all (except the mirror maybe, a thing I neither have nor miss, cause I usually don’t wear make-up ;) ). Something to add: a kind of “pocket telescope”, e.g. for long distance usage, like checking the line no. on an arriving bus. It is not essential, and in most cases, its functionality can be replaced by a smart-phone, but the handling is faster and easier. But choose the right magnification rate: if it is too high -as the device is light and small-, if your fingers tremble, it is hard to read. Ah, one more: I got no idea what Apple IOS provides, but the magnifier function of Android (ref. also to comments below) is something I don’t want to miss. Stay healthy, and NO SURRENDER !
ok cool I've not heard of that but it sound pretty essential. Thanks for your positivity, means a lot in these strange times. I'll have to revisit the android if the magnifier is that good
Hello, I'm in Southern CA. I have a daughter that has albinism. It affected her eyes more than her pigmentation. Initially looking at her you would just think she was far skinned. I'm reaching out to you because her low vision has really taken a toll on her. She's a super intelligent 23 year old young lady, but depression and anxiety has consumed my babies life. She is just existing in life. I knew it could come to this, so my plan from birth was to make sure that she was full of confidence and that she was comfortable in her situation. I also planned to be her taxi whenever she wanted to go somewhere and show her that I would take her anywhere she wanted to go at anytime of the day. All that came to a halt, when I got hit on my Harley Davidson motorcycle, which let me unable to walk. I failed both of my daughters, but especially my youngest. I was outgoing and loved outdoor activities and I went from her superman to a deadbeat, by default. I didn't come out the house for a little over 5 years, and I'm still in a bad place, but a little better than I was. I'm sorry, I didn't mean to start making this about me, but I wanted to share how it reached this point. I'm actually reaching out to you to see if you could speak with my daughter, in your free time, if at all possible. Thanks in advance. You can reach me via email. mcneal.ramon7@gmail.com
Thank you for sharing sorry about your tragedies. Life is hard. Unfortunately, because creating and editing videos take a long time and I have a job out side of content creation, I don't have much free time. If you and your daughter would like you can support and connect through Patreon. I reply to my Patreon family quickly 💗💗
Your best course of action is to connect her with resources that will teach her how to be independant. Here in Canada we have the CNIB they are good people and offer a lot of services. As low vision or Legally Blind we cant always rely on others being there to help us.
I'm legally blind in my left eye and blind in my right. I love my Braille money marker, my bold pens and bold notebook paper, and my my 3D printed Braille cheetsheets!
I am 70 years old and had a brain stem infrct that left me visually impaired. Thank you for your video. I am looking for devices that will help me read, pay bills online and just generally live like I did before. I use to sew and make jewelry and I want to continue. Also is there any help to bet devices paid for by blind society etc
Hi Revens, thanks for taking time to comment. you can try using an electronic eyewear device to do those things. You may be able to make jewellery again using one of those but you'd have to test them out first to see if it's something that would actually help you. I wish that blind organizations and our governments in general saw our vision loss and the need for tech to bridge the gap a necessity hopefully soon they will.
Hi Alisha. I have IIH and I recently have vision loss. I called 911 a few days ago because it got so bad and I didn't know what was going on. Now I think I have tunnel vision. However, my mom and brother laughed at me a lot because of my walker. What would be your advice? They aren't being supportive and I feel like I am falling apart right now
That is so so sad they aren't supportive and are teasing you. You'll need to edify yourself and find strength in good people around who support you fully. If you are religious pray. If you are not, meditate. If you're not into either, seek help from a professional because you will need to have a strong foundation and some where to turn when things get tricky. You'll have to what's best for you at all times. Safety first and authenticity always
I take left or Uber daily in order to get to work. I have a condition called cone/rod dystrophy and cannot drive. I also can hardly afford to take these ride sharing services everywhere I go anymore but it is Phoenix Arizona and I just about melted yesterday. Any suggestions because at this point I'm working just to pay my rideshare bill.
Great job, I really enjoyed this video. I’d be interested in knowing if you are currently using any of the AI apps that are available and what you use them for.
Good vid. I lost my job as a concierge after 6 years. My vision is worse since so I'm struggling rly hard to find a new job. Any advice? Also, what do you do for work? Thanks
Thank you for busting my pitty party. I wasn't any fun anyway. ❤️ Thank you. This is a challenge but with cheerleaders like you this isn't as bad as it was 12 minutes ago.
I am am Android user and my phone is my lifeline too. I quite like the Android accessibility features. In fact, I have an iPhone for work and I freakin can't stand it and still can't figure out how to use everything LOL! I have a Samsung Galaxy S9 and def would like the new S20 soonish. I like my S9 a lot thi.
oh that's so good to hear! The last time I used a Samsung was two years ago and it felt like they were galaxies behind (see what I did there lol) but happy to hear that your S9 is treating you well xx
iam the biggest L .Blind woman i know let me tell it really ever had anybody to ndaerstand that i dont wanna taken care of ,I wanna take care of myself .Independence
I've been legally blind since 2020 and it is progressing Looking at me you can't tell because I still try to live normal I just can't drive anymore and I don't cut hair anymore
hey Jason, the group I created used to meet in Toronto due to schedules we stopped meeting If you are in toronto there may be offshoots now though the CNIB o Bayview
I am 42, Stargardt's since 9, about 20/500 acuity. I am also a teacher for the visually impaired. I use Schneider 157 pens, they come in black, blue and green. Fine point, does not bleed through and writes smoothly. My favorite magnifier is my iPhone magnifier app that you can add to the control panel for quick access. Seeing AI app is great also. It reads what ever you need, just move the camera over what you want to see or read.
Thanks for sharing & thanks for the recommendation
I have a blind friend. She’s the best ever.
That's so sweet. Stay blessed 💞💞💞
I also have low vision. It’s definitely a daily struggle. Thanks for your video, it’s very inspiring
of course lobe that's what I'm here for
I've been legally blind for 9 years. Its been frustrating. I have little to no help. My life has been on pause & not improving. Im glad to have found this video. It truly helps. Thank you.
hey love 💞 It's a hard journey. Hope this year brings some opportunity for things to move forward and look up for you. Happy you found my content and it helps
Hi, my brother has just moved in with me and my family, he is trying to adjust. Please let me know if there are any voice chat rooms for the blind or any resources for him. This IA all new for me and him. He wants to talk to people like himself
How did you watch this video?
Can someone be illegally blind?
I am happy that I found this page I don't feel like I am by myself now
Honestly I don’t tell people out of embarrassment… I try to make it seem like I’m normal but they always find out and I just end up feeling bad that they have to go out of their way for me ,I also feel like a bother to my friends and family whenever I ask for rides or ask what’s that say
I've felt embarrassed too sometimes then I have to tell myself I didn't choose this so I can't bear the burden of embarrassment on top of everything
I have advanced glaucoma, blind in left eye, and low vision in right eye. I’m all alone now. I lost my mother, sister and 6 other family members last year 2023. I was my 96-year-old grandmother caregiver for 14 years, and she died in my arms on Christmas morning 2023 at home. I feel so alone. I’m trying to learn my life all over again back into the working world and living alone. I was diagnosed with advanced glaucoma six years ago. And anxiety is my enemy, and I refused to allow it to control my life. I need all the help I can get.
I’m very sorry for your loss. I also have glaucoma with low vision in one eye and only light - shadow perception in the other. My grandmother passed away in 2023 also. While I was not her sole caregiver A did provide support for her with daily living, doctors appointments, and other needs. I don’t know that I will be able to offer anything useful but I have experiences with researching resources and programs and services so if you’re looking for something specific let me know and I’d be happy to see what I could find.
@@asecretcourtofcrowsandcloc4084 hey, what resources are you referring to
How are you doing now? I hope you're doing a little better at least
@@asecretcourtofcrowsandcloc4084 I feel pain in my eyes and back of my eyes
My husband is VI and he will totally back you on the Mac. He had an old Macbook Pro like yours until it got too old to update, and then we skipped the iMac and went for a Mac Mini and he uses a 42" 4K TV as his monitor. Different impairment than you (retinopathy) but you are spot on. His 3X pocket magnifier, sold as a fire-starting tool, is his constant companion and essential to functioning in daily life for him.
TFS, i'm glad yor husband has found somethings to help him day to day. It's aways crazy when we talk about these things like 42" screens but that's the life we live... sometimes I look at mine and I'm like "Whoa I'm really blind" lol
Hope the monitor and pocket magnify severs me for a long time xx
Smart glasses cheap and helpful
where?!!? send the link lol
Hey Alisha. Love the Video. This past Monday sept 20th I was told that I have about five years of sight left. It's finally starting to hit that I'm going to lose my freedoms of being independent. It started with my reading vision. I'm now having to use a magnifying glass to read. It's getting harder to be able to write or read on paper with out a flashlight.."WAIT!" Who uses paper anymore? lol Reading labels is getting next to impossible. So far distance is fine and I'm still able to drive at night with out any issues but this will change I'm sure pretty quick. . I'm also finding that I need sunglasses a lot more due to light sensitivity.
Thanks for sharing your story with all of us. You're a beautiful person both inside and out.
Sorry for the super late response, YT never notified me of this comment
OMG I hope they were wrong and you have more than five years that's a crazy countdown. All I can say is, cherish the vision you have take advantage of the present and do you best. Keep me posted and if you need support reach out
I’m legally blind. I use a 20/20 pen for people with low vision sold at Walmart , Amazon, and other stores aswell❤️
Excellent advice for newly diagnosed legally blind person
Happy you found iy useful
My handwriting has gone with my vision.
I’ve been legally blind since 2009. It’s a challenge every day. I walk with a cane, and some people are courteous others just talk to ignore you. Stepping up on their sidewalk is difficult. Already fell 3 times. If I need a walker.
There are many different kinds of canes, some I found are better at negotiating uneven sidewalks than others. What kind of tip do you have that could play a role.
@@asecretcourtofcrowsandcloc4084
Thank u
Your video popped up on my YT this evening. I've been partially blind/visually impaired since 2000, & my current visual accuity is between 20/155 & 20/160 in my left eye. I have no vision in my right eye.
Depending on where I'm going, or what I'm doing, I use my cane to navigate as I'm walking. I use a 4x magnification lighted magnifier every day, & my church bought me an IrisVision device that I use to read things like menues, hbooks, video screens, anything far away.
I'm in a tough spot when it cones to wearing sunglasses. I should wear them, as it gets difficult to see on sunny days. Especially if the sun's in my face. But when I try to wear sunglasses, it ends up being too dark for me to see. So I just don't wear them.
I've got a pretty good support group with my dad, uncle, & friends from church. Although they're not all onboard with my plans for next year (check out my video). I do, unfortunately have a few fanily members that have made me feel like a burden. But I limit my contact with them.
-3. Oh girlfriend, that's Beach weather. Try living in Winnipeg!
❤️ your videos!
LMAO I wouldn't be able to do it!! How do you surviveeeeeee?
Love love love your video. I got quite excited when you were talking about applying make up. I am visually impaired too and I’m trying to learn how to apply make up. Never got into it when I was younger but now that I’m getting older I want to try to do New things. Do you think you could do a make up tutorial.
Hey love thanks for the support! Yes I I’ve got one on my Struggling with Stargardt’s playlist 🙃🙃
Aww i’m so glad I stumbled onto your video. It definitely makes me feel es alone to hear about your tips and tricks and what you are going through and to see how similar it is the to what I’m going through, and to be able to imagine all the other viewers in your audience having similar experiences as well.
We’re not alone !! 🥰
You seem like such a sweet playful person.
I'm happy to hear that that's what I'm here for. Yes, the community in the comment section shows us that the blind fam is strong and resistant and we're all doing the best we can
and thanks love
Nice video! I have bought 20/20 bold pens that are markers that don’t stink and are not permanent. Now they are called Bold pens. You can get them from LSS Products, Maxi Aids, or ILA Independent Living AIDS. Yes, Walmart has pleasantly surprised me by carrying an electronic magnifier at a great price! The pebble Mini by Enhanced Vision is one of my most used tools. I love the Looky Plus by Irie! Cody is my salesman! I have bought, used, and have sold vision tools. Love easy to use products. Another favorite is the eye-pal solo. May be called ace now. Maybe you use lots of tools like me!
Wow something told me today to look up how blind people travel. Bam!! clicked on your video and got a wealth of information in just this short of time. Hahaha! I think losing independence of traveling was my biggest problem of depression since just getting in my car and taking off was so important to me. I felt like a high schooler again with just a state ID LOL! My kids have been my Biggest support over a course of 7yrs of vision decline. I have transition eyeglasses and just now putting no line bifocals because I want to look cute has nothing on trying to see!😂 I am slowly trying to find my independence once again to travel with my younger children so they can see other states like my older children and I did. They are not of driving age and uber or lyft can become expensive and I no longer can rent a car with an ID let alone be driving Lol! Any advice or videos on this would help greatly from the community.
so sorry for the late reply. glad you found my channel and the content helps! It's hard not being able to drive, so convenience jus to hop in and go from pint A to B but I"m sure you'll find away to manage. You may get annoyed sometime
Hi! I'm Molly, 55F, from FL. Been legally blind (retinopathy of prematurity) since I was born. I have that same little round mirror, and a ton of those Sharpies too! All of those shades looked great on you! You are so pretty. :-) Still so young! I'm getting up there. I just lost my Mom right at Christmas, and now I'm all alone. I don't have any siblings, nor kids, and all of my friends died from cancer or Covid. As you start to get older, you start to notice more and more friends die. Sorry to be so grim. I'm still grieving. Your video was awesome! I have an iMac too, I have the huge 27", that I bought a decade ago, and now I have one of the newer colored ones (in purple), and it's smaller, but I still love it. I love my iPhone too. Especially the magnifier, a lot!!
Hi Alisha, Your channel came up on my feed am I am so glad it did. I too am legally blind (since 2016) as a result of Diabetic Retinopathy. My vision is 20/400, but I am pretty high functioning although I no longer drive and I rarely go out at night. Otherwise I am truly grateful 🙏 for what vision I do have. I make the most of life as a writer, I use Kindle books and Audible for reading. I love how uou featured your "go-to" items, especially the bold pens, computer and Smartphone... I have an Android, my lifeline. Thank you for sharing 💕 😊 I just subscribed!
hey love thanks for sharing. so happy to hear you're still making the most of of life and enjoying things like reading. Stay positive, encouraged and stay blessed!
This is just what I needed. Your section on community was just si spot on. Great stuff. Thank you from the UK 🙋
Thanks love 💞 sending love to you in the UK!
Good job. Thanks. It is really nice to know there are others surmounting obstacles low vision throws in our path each day.
Expo Dry ERase is a good one that washes off.
Miss I really enjoyed your video. I was blessed with the return on my sight on my right eye. I had a bad cataract due to a trauma 40 years ago I really like your videos. Luckily my surgery went very well and now I can see in both eyes.
My name is Blind 1982 September 2 or September 3. I should say it’s difficult but I don’t let that stop me. I’m a member of the Sligo Creek chapter of the Nfb Of Maryland. I love the next Federation Of The Blind for me. It’s done a lot without them. I will not be the guy that I am today, thank you Marley Burke and thank you Alicia for your RUclips channels. I am subscribed to both channels and I turned on notifications for both channels so thank you very much for empowering my life. I truly appreciate it. Y’all have a nice day.😅
Thank you so much Alicia be and for Marley Burke ladies thank you for all you do 0:16
Thank you for making the video. What is your eye condition?
I've lost my vision in my left eye due to retina detachment off the macular 3 times last year. Cataract surgery didn't improve my vision. I have so much distortion in my center vision. I'm basically only using my right eye. It's been a year now. My right eye has had laser 360 for holes and tears. I'm a -6.00 in my right eye. It's been a real-life challenge, and I can't lie. I'm learning to cope and find different ways of getting by.
Thank you for your video. I truly appreciate it.
Yeah it does impact everything I have low vision myself and I have a friend that doesn’t exactly understand it clearly so I have to make a video and explain this to him what it is like because he’s not understanding it right now
so turue half hte work is explaining tho people who can see what you can't. Good luck with your video 😀
I'm 23 and was diagnosed legally blind February 2020 due to my diabetes
Oh man 2020 got extra complicated for you sorry to hear amigo how you been holding up?
Seeing AI and Be My Eyes apps are awesome for assistance with any & everything that you might need help with throughout the day (when you’re alone or on your own)!
yeah you're so right. I finally tried Be My Eyes for the first time on one of my videos and it was pretty neat
This is a brilliant video! Thank you
Hey Lauren, glad it helps 💛
Thank you again Alisha 😊 You are just brilliant at conveying problems AND possible solutions, practically and emotionally. My vision is going with both AMD and glaucoma, there is very little support from the health service here (UK)…..I was fascinated to see that lol your six essential are ones I use all the time too😊 All the best to you, you are truly a star 🌟 xx
I use 'moisture chamber's sunglasses because I have 'Dry eye'.
A moulded (removable) spongy fabric that blocks breeze and air conditioning flow and also helps with glare. They are a standard frame so look cool too! 😎
The Wiley X brand also has these frames available with clear lenses.
wow that's a smrt invention
So glad to come across your channel, great content! Actually thinking about buying a Macbook rn so this is super helpful.
Kind of feel like being part of a community even though it is just a video, thank you.
I know it sounds silly but if you wanna try pens for arthritis they are bulky and have nice ball pinpointed pens you can grab them off Amazon with any size you prefer! They can be nice and thick on the words and it’s comfy to hold 🙏🏻😅❤️
ohhhh that's a good sugggestion
Were you thinking Transcribe?
Apple is to confuseing to me.
I stick with Amazon fir my talking TV
And Samsung for my phone
I still need to call Sony to see how they can make Spider Man 2 better for Visually Impaired. But my PS5 is new so Im still trying to see what Sony did for Accessability people
Thank you
This was a well thought out and executed video. Thank you. BTW I use a Bic .7 mm black pen for years, it works for me
aww thanks! and that's a classic pen! the thicker, the better
New subbie-great channel. Thanks for providing information, you are truly very inspiring. I was diagnosed with RP on 6/5/20... its been very challenging and difficult as my vision deteriorate. Please provide any additional info you may have to provide some understanding, and clarity of how to adjust and live a productive life. I live in a small rural town with very limited resources and support.
Hey thanks so much for the support! I know a few people who live with RP and it progresses differently from Stargardts's. The only advice I can give is to stay present. If you have a good support network let them know what you need, I think communication is the most important thing as our vision deteriorates. Help from family and friends is so crucial. Even just having people who try to understand helps. If you feel limited in resources, you'll have to become innovative and create to the best of your ability
So this is going to seem odd, I somehow stumbled across this video and comments. I Have Choroidermia . Pretty much RP's twin . I'm 30 and I've been legally blind 11+ years. This is a terrible hard life watching your vision go. Hang in there.
I wish I had seen this video 20 years ago when I first started losing my vision! I carry my 8x magnifier a modular...talking watch...mobility cane in unfamiliar places...an I'd cane because I've been accused of lying about being legally blind when I've asked for help? Small town problem unfortunately...people are are generally great and helpful in the bigger cities....google walking app...I use zoomtext software as I am an educational assistant and our school board uses Microsoft...google read and write... marker...good friends...supportive friends...a positive attitude...I encourage people to ask questions rather than speculate and make assumptions...I politely ask for what I need...I do look different at times bent over the shelves as I scan the0ugh the grocery aisles...I get it.. I'm brave enough to look a little silly to be independent....it gets easier...im thankful for my intuition and developed ability to read body language...and the fact that everyone looks beautiful to me...thank you for this video
Awww I'm so glad you found this video even if it's 2 decades late lol sorry to hear people don't believe you. The same thing happens to me too. Even other blind people discredit what I'm going through because my acuity isn't as far gone as theirs. Shame. Anyway, stay strong I'm happy you've found ways to adapt xx
I'm legally blind, my vision is 20/200 in I live in a small town. On top of that, my parents isolate me and I've never learned practical skills. I'm finally escaping to college soon and really need to know a few things. First, how do I cross streets? I can't listen to cars. I've tried, I can't accurately tells what is where. Sure, I can follow foot traffic but other people won't always be around. Second, how do I find stores and restaurants and stuf? I've been to a big city once, where I was dragged around by my cousin because I couldn't read shop signs. Lastly, where in the world am I supposed to get cheap cooking supplies made for blind people? I can't read brail bc the person who was supposed to teach me how to live decided I didn't need to know anything not directly related to school. could someone please explain these to me or maybe point me in the direction of videos that might help in situations like these?
hey love hope you're good. I'm not sure where you liv but you're going to have to reach out to an organization and services visually impaired person. Here we have osemthing called the CNIB, they have mobility class that can teach you how to cross safely, how to locate stores and restaurants etc. Where I live is very accessible and my vision loss so I can get around fine with the exception of not being able to see signs and numbers. Seems like your impairment is affecting your peripheral and you'r needs will be different from mine especially if your city isn't as accessible as mine.
@@alishainc I've reached out to the blind and vision, however they were less than helpful. The person who was suppose to teach me mobility taught me next to nothing. I saw her four times over the course of two years. The person who was suppose to help with schooling and domestic completely focused on my schooling and decided my vision wasn't as bad as I said and decided I was faking. Obviously, she hindered more than helped. I'll reach out the blind in vision in my new state, but I really don't hold high hopes after a two year nightmare they put me through.
@@katieneko674 that’s terrible that they weren’t helpful. I was lucky to receive services from my state commission for the blind but have friends who have also had unfortunate experience with theirs
You can work with vr volk rehab they can get you the training you need to get around the big city lm leagley blind myself but I take the city bus and lightrail to get to work and home or we're ever I need to go my right eye is 2200 vision left eye is blind.
Thank you for posting this. Very helpful to me. I appreciate it.
Those first sunglasses 😍🤩
Im all about the thick tip pens.
Photographing things i cant see and wnlarging is my life!
Good sunhglasses with aides are a must
I can subscribe to all (except the mirror maybe, a thing I neither have nor miss, cause I usually don’t wear make-up ;) ). Something to add: a kind of “pocket telescope”, e.g. for long distance usage, like checking the line no. on an arriving bus. It is not essential, and in most cases, its functionality can be replaced by a smart-phone, but the handling is faster and easier. But choose the right magnification rate: if it is too high -as the device is light and small-, if your fingers tremble, it is hard to read.
Ah, one more: I got no idea what Apple IOS provides, but the magnifier function of Android (ref. also to comments below) is something I don’t want to miss.
Stay healthy, and NO SURRENDER !
ok cool I've not heard of that but it sound pretty essential. Thanks for your positivity, means a lot in these strange times.
I'll have to revisit the android if the magnifier is that good
Hello, I'm in Southern CA.
I have a daughter that has albinism. It affected her eyes more than her pigmentation. Initially looking at her you would just think she was far skinned. I'm reaching out to you because her low vision has really taken a toll on her. She's a super intelligent 23 year old young lady, but depression and anxiety has consumed my babies life. She is just existing in life. I knew it could come to this, so my plan from birth was to make sure that she was full of confidence and that she was comfortable in her situation. I also planned to be her taxi whenever she wanted to go somewhere and show her that I would take her anywhere she wanted to go at anytime of the day.
All that came to a halt, when I got hit on my Harley Davidson motorcycle, which let me unable to walk. I failed both of my daughters, but especially my youngest. I was outgoing and loved outdoor activities and I went from her superman to a deadbeat, by default. I didn't come out the house for a little over 5 years, and I'm still in a bad place, but a little better than I was. I'm sorry, I didn't mean to start making this about me, but I wanted to share how it reached this point. I'm actually reaching out to you to see if you could speak with my daughter, in your free time, if at all possible.
Thanks in advance.
You can reach me via email.
mcneal.ramon7@gmail.com
Thank you for sharing sorry about your tragedies. Life is hard. Unfortunately, because creating and editing videos take a long time and I have a job out side of content creation, I don't have much free time. If you and your daughter would like you can support and connect through Patreon. I reply to my Patreon family quickly 💗💗
Thanks for even responding...
I'm not familiar with Patreon.
Your best course of action is to connect her with resources that will teach her how to be independant. Here in Canada we have the CNIB they are good people and offer a lot of services. As low vision or Legally Blind we cant always rely on others being there to help us.
Transcribe is the word you want.
Thanks!!
IAM in Stage 2 Glucoma and my Glucoma is progressing very fast
Thank you ! 💓
I'm legally blind in my left eye and blind in my right. I love my Braille money marker, my bold pens and bold notebook paper, and my my 3D printed Braille cheetsheets!
I am 70 years old and had a brain stem infrct that left me visually impaired. Thank you for your video. I am looking for devices that will help me read, pay bills online and just generally live like I did before. I use to sew and make jewelry and I want to continue. Also is there any help to bet devices paid for by blind society etc
Hi Revens, thanks for taking time to comment. you can try using an electronic eyewear device to do those things. You may be able to make jewellery again using one of those but you'd have to test them out first to see if it's something that would actually help you. I wish that blind organizations and our governments in general saw our vision loss and the need for tech to bridge the gap a necessity hopefully soon they will.
You are a ray of sunshine! Thank you!
A magnifier and my phone are for sure things that are essential in my life lol.
Hi Alisha. I have IIH and I recently have vision loss. I called 911 a few days ago because it got so bad and I didn't know what was going on. Now I think I have tunnel vision. However, my mom and brother laughed at me a lot because of my walker. What would be your advice? They aren't being supportive and I feel like I am falling apart right now
That is so so sad they aren't supportive and are teasing you. You'll need to edify yourself and find strength in good people around who support you fully. If you are religious pray. If you are not, meditate. If you're not into either, seek help from a professional because you will need to have a strong foundation and some where to turn when things get tricky.
You'll have to what's best for you at all times. Safety first and authenticity always
Thank you that's all thank you
💜💜
I use a Sharpie 0.7 S-Gel pen. It is pretty bold.
I take left or Uber daily in order to get to work. I have a condition called cone/rod dystrophy and cannot drive. I also can hardly afford to take these ride sharing services everywhere I go anymore but it is Phoenix Arizona and I just about melted yesterday. Any suggestions because at this point I'm working just to pay my rideshare bill.
oh wow thanks for sharing it must be so expensive to do thata daily
Thanks. This was informative
np glad it was useful
Hi I'm visually impaired also you rock...
Great job, I really enjoyed this video. I’d be interested in knowing if you are currently using any of the AI apps that are available and what you use them for.
Good vid. I lost my job as a concierge after 6 years. My vision is worse since so I'm struggling rly hard to find a new job. Any advice? Also, what do you do for work? Thanks
Thank you for busting my pitty party. I wasn't any fun anyway. ❤️ Thank you. This is a challenge but with cheerleaders like you this isn't as bad as it was 12 minutes ago.
It's not easy but keep your head up. Sometimes you'll feel down and that's natural try your best not to stay there
I am am Android user and my phone is my lifeline too. I quite like the Android accessibility features. In fact, I have an iPhone for work and I freakin can't stand it and still can't figure out how to use everything LOL! I have a Samsung Galaxy S9 and def would like the new S20 soonish. I like my S9 a lot thi.
oh that's so good to hear! The last time I used a Samsung was two years ago and it felt like they were galaxies behind (see what I did there lol) but happy to hear that your S9 is treating you well xx
Apple is great if you're completely blind, but sucks if you're legally blind.
Hello their your story is so amazing . I am also legged blind I have retinitis pigmentosa short form is RP. Are you on any other social media.
Hey love thanks for sharing. Yes, I know a few people with RP how are you managing? Yes I'm on everything lol
My iPad my best friend
shades for the light, were light sensitive. Im legally blind since birth.
Overall I just feel very weak minded when I can’t do what other people do like drive I’m 21 and this has been my life since day 1
I know the feeling, it's hard for sure. Hope your managing the best you can
GIRL what is the magnifying app you use??? I need that shit yesterday lmao
It's a function that comes with iPhone if you going in settings > accessibility > visual (I think)> magnifier > on
then you can click 3x to turn it on
iam the biggest L .Blind woman i know let me tell it really ever had anybody to ndaerstand that i dont wanna taken care of ,I wanna take care of myself .Independence
yes independence 100%
Love ur video
I've been legally blind since 2020 and it is progressing
Looking at me you can't tell because I still try to live normal I just can't drive anymore and I don't cut hair anymore
WHAT TECH JOB TITLES CAN A LEGALLY BLIND PERSON GO TO SCHOOL FOR?
Whatever they're interested in.
I hope u make more video
❤️🧡💛💚💙💜🖤🤍🤎
just wanted to tell you as always great video-take care
awww tysm 💛
I’m legaklly blind I l love your videos
awww thanks love!
Transcribe and/or transpose.
No, I like my little stick. I like to use the sharpies like to use them well yes ma’am by the way, I’m new to your channel hi.
This is my comment how do I contact you for the community about which you are involved
hey Jason, the group I created used to meet in Toronto due to schedules we stopped meeting If you are in toronto there may be offshoots now though the CNIB o Bayview
Oh okay yeah I am in Florida
You are so beautiful
Biopic glasses
How did you notice that you had vision loss? I want to see if I have this. My vision is really terrible 😪
I share all the dets in this video: ruclips.net/video/ILSgUsjO9UM/видео.html
Signs, symptoms, seeing specialist I tell it all in that storytime 🙂
@@alishainc thank you I'll check it out
Try FL41 suñglasses😊
Is this free Scribition
Hello i am visually impaired too. I can related to your video
Thanks for sharing. Hope you’re managing OK
❤️❤️❤️
💞
❤️❤️❤️🥰🥰🥰
Have u got married
I am turning blind
Sorry tot hear love, hope your spirits are high I know it's a hard pill to swallow
You forget the white cane.
I don't use it so I didn't mention it
6:00
THAT'S WHAT SHE SAID!!!🤪